Category: Network News
June 2020
Connect | Share |Learn | http://sdnetworkwi.org/
2020 Self-Determination Conference
The Wisconsin Board for People with Development Disabilities (WBPDD) announced that the 2020 Self-Determination Conference will be virtual in October. There still will be opportunities to participate in the things we all enjoy such as attend sessions led by self-advocates, have chances to obtain get information from exhibitors, shop at a virtual micro-business store, have time to chat with friends, and much more. In this time of uncertainty, the WBPDD and its sponsors understand people maybe struggling. In hopes of easing the burden, registration for the conference will be free for everyone this year! Stay tuned for more information about registration in the coming weeks, but, until then, we invite you to listen to the popular self-determination song that's played at the conference every year. Peter Leddy changed the words a little bit. We hope you enjoy it!
Check Out The Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.
Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. This month, we're introducing something a little different. One of the hosts on the Channel, Stacy, is going to do a vlog (which is a video blog) about her experiences living with a disability. We hope that you may be able to relate to some of the things she shares. We encourage you to share your own experiences and thoughts in the comments below the video.
Check out the newest videos on the channel:
- Thank You #EssentialWorkers
- Don't Tell Marie What She Can't Do, She'll Prove You Wrong
- Stewing with Stacy: Let Me Introduce Myself
We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
In June, we're shining the spotlight on Julie. This awesome mother strives to help her daughter have control over her life and encourages other parents to do the same. Stop this month's Member Spotlight to get to know Julie.
Who should we shine the spotlight on next?
"I find it incredibly sad that there isn’t a better option for people like me. I don’t have all the answers, but, until the day I die, I continue to advocate to make things better."
In this month's journal entry, Stacy opens up her continual care struggles. She discusses her experience with trying another program. Have you had a similar experience? We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Coronavirus Heightens Caregiver Shortage: For people with disabilities who are reliant on other people to assist them with all of their basic needs, the virus has brought some additional challenges. Read about some of the issues people are facing.
- House Approves Payment for People with Disabilities: A new round of stimulus checks for people with disabilities and billions for home- and community-based services are part of a $3 trillion relief bill that faces an uncertain future.Learn more about this bill.
- Guidelines for Voc Rehab Services: New guidance from the feds suggest that Vocational Rehabilitation agencies can continue providing services during the pandemic, but adjustments will be needed. Find out what is being done to keep people safe.
- Wheelchair Accessibility Feature: Google Maps now has a feature that indicates whether or not a place is wheelchair accessible.Learn how it works.
- Be Inspired: Two self-advocates are on an unique mission to raise awareness for people with disabilities. Read about what they're doing.
- Self-direction Model Becoming More Popular: With the pandemic, living in a facility setting has become much more dangerous. Read about why people are choosing the Self-direction model more and more these days.
- Website Accessibility Not a Priority: According to a recent study, most organizations don't do accessibility testing on their website. Learn what else the study found.
- Increase the Affordable Care Act: The Coronavirus has resulted in job loses or income changes, which has had an effect on health care. Learn why many people feel that Congress should pass a law--or laws--that would increase access to health insurance through the marketplace created by the Affordable Care Act.
- Online Disability History Exhibit: The Smithsonian put together an online exhibit about the history of disability in the United States. Find out what it includes.
- Resource for Job Seekers: Finding employment is hard for everyone right now. Learn about a helpful resource for job seekers with disabilities.
- Positives During a Pandemic: The pandemic has caused havoc across the world, but it has also brought out some positives for people with disabilities. Learn about going virtual has been a huge positive for students with disabilities at one Milwaukee theater.
- Hospital Visitor Policies: When the pandemic hit, hospitals quickly no visitors policies into effect. Often, people with disabilities rely on support from family and friends to effectively communicate with medical staff. Read about what laws allow people with disabilities to have attendants in the hospital to assist them.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Virtual Wellness: June 18th, 1p.m. to 2p.m., Online
- Webinar: Partners With Business: Building Capacity With Employers And Service Providers: June 25th, 10:30a.m. to 11:30a.m., Online
- Webinar: Partners With Business: Building Capacity With Employers And Service Providers: June 30th, 9a.m. to 10a.m., Online
- Webinar: Using The ADA And ABA Standards - Chapter 6: Plumbing Elements And Facilities: July 2nd, 1:30p.m. to 3p.m., Online
- 2020 Janesville Adaptive Water Ski Clinic: July 10th, 9a.m. to 3p.m., Traxler Park on the Rock River, Janesville WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
April/May 2020
Connect | Share |Learn | http://sdnetworkwi.org/
Take five minutes to check out what's happening on the Self-Determination Network:
- Watch: For people with disabilities, COVID-19 is especially dangerous. This short documentary talks about some of issues people with disabilities are facing.
- Technology Grant Opportunities: The Administration for Community Living has opened up two grant opportunities on technology to promote independence and community living and employment research. These opportunities close May 26th.
- The Importance of Website Accessibility: Website accessibility is a must these days. Read about why website accessibility is so important especially during a pandemic.
-
Effects of the Virus: The Coronavirus has shaken the world to its core. People with disabilities are facing the same issues as everyone else are, but they have additional concerns. Read about some of the challenges they are facing.
- Lifespan Respite Care Program Funding Opportunities: The Administration for Community Living has two grant opportunities for funding Lifespan Respite Care Programs. Learn about these opportunities.
- CARES Act: In March, the President signed the Coronavirus Aid, Relief and Economic Security Act, or CARES Act, into law. Read what it entails for people with disabilities.
- Can't Deny Care: During this time of uncertainty and crisis, there have been reports of health care providers in some states discriminating against people with disabilities. The feds issues a statement saying it's illegal to do so. Find out what laws protect this.
- Popular Documentary: A new documentary on Netflix produced by the Obamas is a popular in the disability community. Find Learn what it's about.
- Accessible Airline Seats: Air travel for people with disabilities continues to cause a variety of issues. A company in Colorado has developed a prototype of a plane where individuals can take their own wheelchairs onto the plane. Read about what needs to happen to get these seats on planes.
- Rail Vehicle Guidelines: In February, the US Access Board proposed updates to the ADA Accessibility Guidelines for Transportation Vehicles that apply to rail cars. Public comment on these recommendations is open through July 14th.
- Help and Be Helped: As we continue coming together to support people with disabilities through the COVID 19 Crisis in Wisconsin, we must look for creative ways to meet the changing needs of this new normal. Check out this list of resources a workgroup put together.
- Annual Report: The Administration for Community Living recently released Annual Report on Centers for Independent Living. Find out what it includes.
- Electronic Visit Verification Video: The Wisconsin Department of Health Services has released an informational video about Electronic Visit Verification. Learn how the system will work.
- Pandemic Brings Hope for an Employment Accommodation: Working from home has become the new norm for many people during this pandemic. Read about how people with disabilities are hoping that this will show employers that this is a reasonable accommodation in many circumstances.
- Unique Worries: For some people with disabilities, social distancing is literally not possible Learn why some people with disabilities are at even at greater risk of contracting the virus.
- Guidance on Accessible Restrooms and Drinking Fountains: The U.S. Access Board has released technical bulletins on accessibility to restrooms, bathing facilities, and drinking fountains. Learn what the technical bulletins explain.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
In April, we shined the spotlight on Mary Clare. This life-long Wisconsinite has been an advocate for people with disabilities for many years. She has seen self-determination grow, and she's looking forward to watching it continue to expand. Stop by April's Member Spotlight to get to know Mary Clare.
In May, we're shining the spotlight on Ashley. When she is not busy participating in Special Olympics or dancing with her friends, this vibrant young lady is out self-advocating! Stop by this month's Member Spotlight to get to know Ashley.
Who should we shine the spotlight on next?
"Social distancing. Mitigation. Isolation. Safer—at—Home orders. Terms such as these didn’t have much meaning to most people until the beginning of March. Now, thanks to COVID 19, such vocabulary has become the new norm in today’s society. For most people with disabilities, a pandemic of this magnitude often brings on some unique challenges." In April's entry, Stacy discusses the some of the challenges that she has encountered during this pandemic. What unique challenges have you faced during this time?
"I think this quarantine will bring out some positive aspects for people with disabilities." In this month's entry, Stacy talks about finding silver lining during this pandemic. What silver linings have you found? We encourage you to share your thoughts and experiences as well.
Check Out The Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.
The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.
Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Coronavirus: Tips For Staying Healthy
- US Census: Why is it Important?
- 10 Fun Things to do Online
- Technology for Independent Living
- My Safer at Home Plan
- Is Your Home Safe?
We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).
If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.
Then, click the "All" bell.
That's all there is to it. You will now get an email notification every time a video is posted.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: "Food Service Providers And The ADA": May 20th, 1p.m. To 2:30p.m., Online
- Webinar: "Supported Decision-Making: What Health Professionals Need To Know": May 21st, 12p.m. To 1p.m., Online
- Ability Now!: May 21st, 6:30p.m. To 7p.m., Online
- Ability Now!: May 28th, 6:30p.m. To 7p.m., Online
- Webinar: Using The ADA And ABA Standards - Chapter 5 General Site And Building Elements: June 4th, 1:30p.m. to 3p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
March 2020
Connect | Share |Learn | http://sdnetworkwi.org/
Disability Advocacy Day is CANCELED!
Disability Advocacy Day is canceled for this year due to concerns about containing the spread of Coronavirus. The Wisconsin Department of Health Services is recommending that large meetings and gatherings be canceled or held remotely as a strategy to slow the spread of the virus in Wisconsin. Keep an eye on the InControl Wisconsin Facebook page for updates.
Check Out The Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.
The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.
Videos are posted weekly on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).
If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.
Then, click the "All" bell.
That's all there is to it. You will now get an email notification every time a video is posted.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we're shining the spotlight on Lisa. When she's not reading or styling women in her boutique, she’s helping veterans get appropriate services. She encourages people to ask for the services they need to lead a self-determined life. Stop by this month's Member Spotlight to get to know Lisa.
Who should we shine the spotlight on next?
"It’s Friday night and it’s been a long week. Some friends are meeting up for dinner and invited you to join. Without knowing or caring where, you accept the invite. You’re excited to kick back and relax. You get ready to go and you text a friend asking where they are meeting. The friend responds with the name of a popular restaurant in town. Suddenly, you cringe and rethink your decision to go out. The place they chose is definitely a really cool and fun place; however, accessibility is less than ideal." In this month's entry, Stacy discusses the accessibility of restaurants. Do you find restaurants vary in terms of accessibility? What are some of the experiences you've had?
We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Respite Bill Moves Forward: Legislators are planning to expand federal funding to support respite care for families of those with special needs. Learn how much money is being allocated for the program.
- Public Comment open on Proposed Rules for Aircraft Accessibility and Service Animals: The Department of Transportation (DOT) has issued two proposed rules for public comment on air travel and accessibility for passenger with disabilities. Find out what they are. Public comment due April 16th.
- New Non-Emergency Medical Transportation Contract Awarded: The Department of Health Services awarded a new contract for non-emergency medical transportation to a new company. Learn which company got the contract.
- Transportation Grant Opportunity: The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) at ACL has opened a new funding opportunity for the Rehabilitation Engineering and Research Centers (RERC) Program on Physical Access and Transportation. This grant opportunity closes on April 28th.
- People Helping People: Art is becoming more and more popular among people with disabilities. Read this cool story about how a sculptor with challenges of his own is helping others be creative regardless of their limitations.
- Supporting Family Caregivers: As the aging population continues to grow, the concern over the caregiver crisis increases. Learn about how a roundtable discussion created an opportunity for people to share their stories with leaders.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Advocacy For Change 2020: March 12th, 8:30a.m. to 4:30p.m., Concourse Hotel, Madison WI
- ADA Audio Session: Accessible Polling Facilities And The ADA: March 17th, 1p.m. to 2:30p.m., Online
- Webinar: "The ADA And Religious Institutions": March 18th, 1p.m. to 2:30p.m., Online
- Webinar: Empowering Adults Through Supported Decision Making--The Role Of Families, Guardians, Caregivers, And Others In Supporting Individuals Receiving HCBS: March 19th, 2p.m. to 3:30p.m., Online
- Webinar: Accessible Social Media: March 21st, 12p.m. to 1:30p.m., Online
- Webinar: Building Block Requirements In ADA And ABA Standards: April 2nd, 1:30p.m. to 3p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
February 2020
Connect | Share | Learn | http://sdnetworkwi.org/
Hurry! Disability Advocacy Day Registration Ends Soon!
Register now for Disability Advocacy Day! Join fellow advocates on Tuesday March 24th in Madison to let your voice be heard. Disability Advocacy Day is designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives. The day starts with a briefing of issues you and your fellow constituents want to discuss with your legislators and after lunch the whole group heads to the capitol for their legislative meetings. Registration closes soon. Register today!
Check Out The Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.
The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.
Videos are posted weekly on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Ginger Proves Doctors Wrong
- Disability Advocacy Day 2020
- Tuesday's Tips for Friendships
- National Caregivers/Governor's Task Force on Caregiving
- Don Teaches Himself How to Read and Write
We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).
If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.
Then, click the "All" bell.
That's all there is to it. You will now get an email notification every time a video is posted.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we're shining the spotlight on Cindy. Her amazing self-determination and attitude have gotten her where she is today. From growing up in an institution to being an Executive Director, this very determined lady believes everyone should have a chance. Stop by this month's Member Spotlight to get to know Cindy.
Who should we shine the spotlight on next?
"Normalcy is something we all crave and strive for. That said, definitions of “normal” widely vary. Unless referring to something static like temperature, the word usually can be used pretty loosely. While we all have our own unique definitions, society has its own that many people continue to strive for!" In this month's entry, Stacy discusses the fantasy of being "normal." It can be a pretty controversial topic in the disability community. How do you feel about it?
We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Proposed Bill for Standing Wheelchairs: Standing wheelchairs are pricey, but they are beneficial to people who use them in more than one way. Find out why a Wisconsin legislator proposed a bill that would force BadgerCare to pay for standing wheelchairs.
- Volunteer Program Proposals: Community Care Corps seeks proposals for innovative local models in which volunteers assist family caregivers or directly help older adults or adults with disabilities with non-medical assistance in order to maintain their independence. Proposals due April 3rd.
- The Power of Robots: Two schools have teamed up to create a light weight robot to help elderly people and people with disabilities be able to stand and walk unassisted. Read more about this amazing invention.
- New Technology: People with visual impairments can now see television programs thanks to new technology. Learn about how this works.
- Feedback Needed: Recent data shows many families don't know they're eligible for long-term care supports. Take this survey to help determine if Family Navigators world be helpful.
- Youth Leadership Forum: Do you know a high school student with a disability who is a leader or a budding advocate? If so, please refer them to the Wisconsin Youth Leadership Forum (YLF)! Applications due April 1st.
- Grant Opportunities: The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) at ACL has opened several funding opportunities for the Disability and Rehabilitation Research Projects (DRRP) on Community Living and Participation (both Research and Development), Health and Function (both Research and Development), and Projects for Translating the Findings and Products of Disability Rehabilitation Research and Development into Practice. Applications due March 23rd.
- 2020 Census: Responses to this year's census will shape our future. Read about how there are multiple accessibility options to help people participate in the Census.
- Facilities Accessibility App: Accessibility continue to be an issue at many commercial and institutional facilities across the country. Find out how students at UW Milwaukee are developing an app where people can rank businesses based on accessibility.
- Service Animal Report: A survey was done on the treatment and inquiries from businesses regarding the presence of service animals. Read what the surveys revealed.
- NBA Star Brings Awareness to Mental Health: A first-first-round draft pick is bringing awareness to mental health by sharing his story. Read about how he used his fame to educate others.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Using Family-Centered Approaches To Promote The Best Life For Young Children With Disabilities: February 26th, 2p.m., to 3:30p.m., Online
- AbilityMKE NOW!: February 26th, 9p.m. to 10p.m., Online
- Webinar: "Digital Accessibility Fundamentals For Websites, Documents And Videos": February 27th, 12p.m., Online
- Electronic Visit Verification Forum: March 11th, 1p.m. to 3p.m., West Allis WI or Online
- Advocacy For Change 2020: March 12th, 8:30a.m. to 4:30p.m., Concourse Hotel, Madison WI
- Disability Advocacy Day: March 24th, 9a.m. to 4p.m., Monona Terrace and State Capitol, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
January 2020
Connect | Share | Learn | http://sdnetworkwi.org/
ACTION ALERT: New Wisconsin ABLE Legislation Could Help More People With Disabilities Save for the Future
ABLE (Achieving a Better Life Experience) accounts are a great new way for people with disabilities (or families on their behalf) to save money without harming their eligibility for important benefits like Medicaid or Social Security. Unfortunately, many Wisconsin residents don’t even know about ABLE or how to set up an account. That’s because Wisconsin is one of just 9 states that does not to operate or market an ABLE program.
Bi-partisan legislators have just introduced an ABLE bill that would require the state Department of Financial Institutions to start an ABLE program. This will increase awareness about ABLE as a savings tool so people with disabilities and their families feel more secure about earning and saving more money in an ABLE account to put toward important extra expenses like transportation, housing or other support needs.
You can learn more about ABLE here.
If you think Wisconsin should join the other 41 states with ABLE programs and make sure state residents with disabilities and their families know about ABLE here’s what you can do:
- Contact your State Assembly Representative and State Senator TODAY and ask them to support LRB-3165 and LRB-5380 – the ABLE bill!
- Go to Who are My Legislators to find your rep’s contact information.
- Contact your representatives by January 24TH
You can find links to the current ABLE bill draft and legislator memo here.
2020 Disability Advocacy Day
Mark your calendars! Make certain your voice is being heard by joining us for the 2020 Disability Advocacy Day in Madison on Tuesday March 24th! It's a day designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives. Registration and additional information will be coming soon.
Check Out The Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.
The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.
Videos are posted weekly on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Tips for a Stress Free Holiday
- New Year Resolutions for 2020
- Self-Determination Channel 2019 Top 10 Moments
- Darwin Makes Up for Lost Time
We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).
If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.
Then, click the "All" bell.
That's all there is to it. You will now get an email notification every time a video is posted.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we're shining the spotlight on Barbra. This worldwide traveler believes that people with disabilities should make their own choices and live their most meaningful lives--just like people without disabilities. Stop by this month's Member Spotlight to get to know Barbra.
Who should we shine the spotlight on next?
"Whether it’s the waterpark, the sauna, the workout room, or a different amenity, it’s often fun to look around and see what the place has to offer. For people with physical disabilities, exploring hotels is also enjoyable experience; however, we often look at different things." In this month's entry, Stacy talks about how accessibility widely varies. What accessibility issues at hotels have you faced?
We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Free Resource: Check out the ABLE Employer Toolkit recently released by the ABLE National Resource Center.
- Help Shape the Future of the ADA: This year is the 30th anniversary of the Americans with Disabilities Act (ADA)! Help form the future of it by taking a survey.
- Feedback Needed: The national Recognize, Assist, Include, Support and Engage Family Caregivers Act (the RAISE Act) became law in January 2018. It requires the Department of Health and Human Services (HHS) to develop and maintain a national strategy to recognize and support family caregivers, and to organize an Advisory Council to make recommendations. Comments due February 7th.
- Members Needed: The Assistive Technology Advisory Council is seeking new members to fill vacancies on their roster. Learn about the qualifications and consider applying.
- Winter Fun: Wisconsin has a lot to offer in the winter, but not everyone can take advantage of it. Read about how three organizations want to change that.
- Feedback Wanted on Airplane Restroom Accessibility: The U.S. Department of Transportation (DOT) seeks public comments on a new proposed rule to improve restroom access for passengers with disabilities on single-aisle aircraft with 125 or more seats. Comments due by March 2nd.
- Changes to Social Security Could Put Beneficiaries with Disabilities at Risk: A proposed change to federal disability assistance would result in millions more case reviews, likely cutting off many recipients with disabilities if the changes are made. Read about the proposed change.
- Program Extended: For the fourth time in a year, lawmakers voted to keep alive a program that moves people with disabilities from institutions into the community, but its long-term fate remains in jeopardy. Find out why.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Waisman Center Day With The Experts: Autism: January 25th, 8:30a.m. to 12:15p.m., Waisman Center, Madison WI
- Ability Fest Planning: February 6th, 9a.m. to 10a.m., Milwaukee World Festival Inc., Milwaukee WI
- Adaptive Sports Night: February 8th, 5:30p.m. to 8:30p.m., YMCA, Kenosha WI
- SOPHIA Transportation Meeting: February 20th, 11:30a.m. to 1p.m., Unitarian Universalist Church West, Brookefield WI
- Advocacy For Change 2020: March 12th, 8:30a.m. to 4:30p.m., Concourse Hotel, Madison WI
- AbilityMKE NOW!: February 26th, 9p.m. to 10p.m., Online
- Disability Advocacy Day: March 24th, 9a.m. to 4p.m., Monona Terrace and State Capitol, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
November/December 2019
Connect | Share | Learn | http://sdnetworkwi.org/
During a Hot Topics session at the Self-Determination Conference, InControl Wisconsin board members Lynn Breedlove, Patti Becker, and Kate Norby facilitated a great discussion about self-determination and self-direction. People were asked to write down questions about self-direction. We've compiled them and we encourage people to share their thoughts. We can all learn by sharing our thoughts and ideas with each other. Join the discussion!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.
The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.
Videos are posted weekly on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the latest videos on the channel:
Tip for National Family Caregiver Month
Respite—A Break for Caregivers
We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).
If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.
Then, click the "All" bell.
That's all there is to it. You will now get an email notification every time a video is posted.
2020 Disability Advocacy Day
Mark your calendars! Make certain your voice is being heard by joining us for the 2020 Disability Advocacy Day in Madison on Tuesday March 24th! It's a day designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives. Registration and additional information will be coming in January.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For November, we shined the spotlight on Tasha. As someone who has always wanted to make a difference in her community, she has worked with multiple groups of people who are in need. Her current job has made her realize how important self-determination is for everyone. Stop by her Member Spotlight to get to know Tasha.
This month, we're shining the spotlight on Phillip. This Oscar trivia extraordinaire has become more involved in self-determination in recent years. He encourages people not to be afraid to advocate for himself/herself. Stop by this month's Member Spotlight to get to know Phillip.
Who should we shine the spotlight on next?
"Can you imagine your life without a computer? Most people now literally spend hours and hours a day on a computer. Although computers can open many great opportunities for people with disabilities, accessing them can often present many challenges." In November's entry, Stacy discussed how the way she accesses the computer has changed over the years and how new technology she recently got may replace her keyboard in the future.
We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Wheelchairs on Aircraft: There have been countless challenges with airline accessibility in recent years. Read about a study that the U.S. Access Board doing to assess the feasibility of equipping aircraft with restraint systems so that passengers can remain in their wheelchairs on flights.
- Achieving Health Equality: When it comes to understanding the lives and health experiences of people with IDD, there is still a lot we do not know. Two reports were developed to address the gap. Learn what these reports include.
- Cross-cultural Resources for the Direct Care Workforce: Nearly half of all individuals dually eligible for Medicare and Medicaid receive help with personal care, such as bathing, dressing, managing medication, and other long-term services and support. Check out these resource briefs developed to help providers meet the cultural needs and preferences of dually eligible individuals.
- Transportation Grant Opportunity: The Federal Transit Administration has announced the Mobility for All Pilot Program. This grant program will fund projects that enhance transportation connections to jobs, education, and health services for older adults, people with disabilities, and people with low income. Applications due January 6th.
- The Impact of Climate Change: Climate change effects everyone, but some say the disability community is the most vulnerable to things such as wildfires, hurricanes and air pollution. Learn what people think could be done to help.
- Voting Barriers: Every adult should be able to vote, but various barriers continue to prevent people with disabilities from doing so. Find out what advocacy groups are doing to address these issues.
- Hate Crimes on the Rise: Recently released data indicates that hate crime incidents targeting people with disabilities are on the rise. Read about the specifics.
- Roommate Matching Service: An online service that's believed to be the first of its kind is helping people with developmental disabilities find compatible roommates and settle into homes independent from their families. Learn how this service works.
- Record High Representation: More characters with disabilities are set to appear on prime-time TV this season than ever before. Read about how while this is great news, people with disabilities are still way underrepresented on TV.
- New Law Helps Voters with Disabilities: Governor Evers recently signed a bill into law that removes the requirement for people who are unable to say their name and address because of a disability. Learn what's now accepted.
- State Receives Funding for Housing: It was recently announced that Wisconsin will get more than one million dollars to provide people with disabilities affordable housing. Find out how the money will be used.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Community Resource Network: December 11th, 3:30p.m. to 5p.m., Lakeland University, Milwaukee WI
- Webinar: Finding The Balance: Person-Centered Supports That Honor Both Safety And Dignity Of Risk: December 17th, 1:30p.m. to 3p.m., Online
- Transportation Consumer Advocacy Team (TCAT): December 17th, 1p.m. to 3p.m., Independence First, Milwaukee WI
- Webinar: Supporting Individuals With Intellectual And Developmental Disabilities As They Age: December 18th, 11:30a.m. to 12:45p.m., Online
- Webinar: Celebrating The Fifth Anniversary Of ABLE With ABLE JeoPARODY: December 19th, 1p.m. to 2p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
October 2019
Connect | Share | Learn | http://sdnetworkwi.org/
Join the Conversation!
We were so excited to see many of you again at this year’s Self-Determination Conference. What was your favorite part? What were some things that you learned? Do you have a neat story from the conference? Did something really inspire you? Let's keep the conversation going! Share your comments, questions, and ideas in this discussion!
At this year's conference, with support from an amazing team of people from different organizations, four self-advocates rolled out the Self-Determination Channel. You can watch the trailer below. We encourage you to watch, like, and comment on all the videos. Don't forget to subscribe to the channel and share it with your family and friends!
We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:
- Lisa Pugh
- Shannon Webb
- Stacy Ellingen
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For October, we shine the spotlight on Jean. With a lengthy résumé highlighting her advocacy efforts, now retired, she continues to help write the story of the revolution in disability access, rights, and choices. Stop by this month's Member Spotlight to get to know Jean.
"There will probably always be roadblocks and detours people with disabilities to overcome. Life is full of detours and roadblocks for everyone—not just those with disabilities. It’s hoping we handle and persevere through them that shows a person’s character!"
In this month's entry, Stacy talks about the accessibility roadblocks people with disabilities still face. Have you had similar experiences? We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Get Involved: Kurt posted about an awesome opportunity to help plan next year's Autumn Ability Fest. Find out how to get involved!
- Annual Report: The Wisconsin Board for People with Developmental Disabilities has released its annual report. Learn which two areas they focused on.
- Internet Essentials: According to a recent study, people with disabilities are less likely to use the Internet than any other group. Read about how Comcast is trying to make Internet affordable to everyone.
- Take Survey: The NIDILRR-funded Collaborative on Health Reform and Independent Living (CHRIL) is looking for adults with disabilities to complete an online survey about health insurance and health care services. Take the survey today.
- Outdoor Wheelchairs Available: Hiking is a common outdoor in Wisconsin. Now people who have mobility issues can experience the beauty of the outdoors like never before. Read about the 15 all-terrain outdoor wheelchairs available to people in Wisconsin.
- Straw Ban: The city of Madison is considering fining restaurants that give out plastic straws unless a customer asks for one first. Find out why the Disability Rights Commission doesn't support it.
- Disability Employment Awareness Month: President Trump proclaimed October as National Disability Employment Awareness Month. Learn what the proclamation talks about.
- Autism Insurance Coverage: Thanks to a new rule, all 50 states and Washington, D.C. have mandates that require some level of insurance coverage for the treatment of autism. Read about what's now required to be covered.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Community Conversation: Finding Workforce Solutions: October 24th, 7:30a.m. to 9:30a.m., Red Lion Paper Valley Conference Center, Appleton WI
- Webinar: Supporting Employment For Transition-Age Youth With Disabilities: How ABLE Accounts And SSA Work Incentives Can Help!: October 24th, 1p.m. to 2:15p.m., Online
- Webinar: Bathing Facilities: October 24th, 1:30p.m. to 3p.m., Online
- Dan Johnson Advocacy Award Inaugural Award Ceremony: October 24th, 5p.m. to 7p.m., Sheraton Hotel, Madison WI
- ACAP Bowl-A-Thon: November 2nd, 11a.m. to 3p.m., Sunset Bowl, Waukesha WI
- Long Term Care Advocacy Team: November 12th, 2:30p.m. to 3:30p.m., Independence First, Milwaukee WI
- Community Resource Network (CRN) Southeast Wisconsin: November 13th, 3:30p.m. to 5p.m., Lakeland University, Milwaukee WI
- Transportation Consumer Advocacy Team (TCAT): November 19th, 1p.m. to 3p.m., Independence First, Milwaukee WI
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
September 2019
Connect | Share | Learn | http://sdnetworkwi.org/
Hurry! Registration Closes Friday!
The 2019 Self-Determination Conference will take place October 14th-16th at the Kalahari Resort in Wisconsin Dells. The Conference empowers people with disabilities in Wisconsin to have more control over their lives. Technology is constantly evolving and so is the Self-Determination Conference. Join us as we learn ways to live healthier, happier and more productive lives. Registration closes this Friday, September 27th. Register today!
“Scotland Reports” from Lynn Breedlove
In early August, Lynn Breedlove represented In Control Wisconsin at an International Disability Congress in Glasgow, Scotland. He presented highlights of his paper entitled “Self-Direction Worldwide: Contrasting Beliefs and Their Impact on Practice” and attended several workshops focused on self-direction. He was the U.S. representative in a half-day brainstorm with self-direction advocates from 9 countries focused on the current state of self-direction around the world. He is writing a series of articles for the SD Network about what he learned. Today, we are pleased to share the second in his series. Join the conversation: Please share comments, and thoughts with one another using the network.
Read a summary of “Self-Direction Worldwide”, with a link to the full paper
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For September, we shine the spotlight on Roxanne. When she isn’t traveling around the world, spending time with family and friends, reading, or gardening, she works with people teaching them about Self-Determination and Self-Directed Supports. Stop by this month's Member Spotlight to get to know Roxanne.
"Many people my age have friends from moms’ groups, friends from their kids’ activities, friends from a volleyball league or other activities. While I’ll probably never friends from situations such as those, I’m incredibly fortunate to be friends with so many people who made such a profound impact on my life. It really does take a village, and I’m truly blessed to have an outstanding village of people who continue to support me! "
In this month's entry, Stacy talks about her special village of people who continue to support her. Who's in your village? We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Public Comment on Guidelines for Onboard Wheelchairs: The U.S. Access Board has released for public comment advisory guidelines for wheelchairs used on commercial passenger aircraft during flight. Comments due October 21st. Let your voice be heard!
- Federal Program Extended: For the third time this year, additional funding will keep alive a federal program that moves individuals with disabilities from institutions into the community. Find out how this money will help, but why advocates are concerned.
- Delay of Electronic Verification Visit: The Wisconsin Department of Health Services has been granted an extension which pushes the Electronic Visit Verification (EVV) implementation date back into 2020. Learn what EVV is about.
- Exercise and Fitness for All Act: Three U.S. Senators have introduced “The Exercise and Fitness For All Act” to improve access to fitness equipment and classes for people with disabilities. Read about what this bill would include.
- Assistive Technology Brief: The Administration for Community Living (ACL) has released a new Issue Brief on Assistive Technology. Learn what the brief includes.
- Assistive Robots: Assistive robots are growing in popularity. Read about how they are helping people with disabilities be more independent.
- Emergency Preparedness: Emergency preparation is important for everyone. However, older adults and people with disabilities often face additional challenges during emergencies. Learn about some things to consider when creating a emergency plan.
- Peers as Caregivers: A unique program in Washington D.C. teaches people with disabilities to be care providers for their peers. Find out how this program works.
- Call for Presenters: Applications to present at the Circles of Life Conference, May 2020! Parents, family members, providers or anyone who has ideas and wisdom to share is encouraged to apply! The deadline for proposals is October 1st.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Transportation Consumer Advocacy Team (TCAT): September 24th, 1p.m. to 3p.m., IndependenceFirst, Milwaukee WI
- Autumn Ability Fest: September 29th, 7a.m. to 7p.m., Camelot Golf Club, Lomira WI
- 1st Annual HOPE And WISDOM Fundraiser: September 29th, 10a.m. to 3p.m., Camelot Golf Club, Lomira WI
- Emperor's New Tuxedo: October 5th, 7:30p.m. to 8:30p.m., Waukesha Civic Theatre, Waukesha WI
- Emperor's New Tuxedo: October 6th, 2p.m. to 3p.m., Waukesha Civic Theatre, Waukesha WI
- Webinar: Accessible Toilet Rooms: October 3rd, 1:30p.m. to 3p.m., Online
- Door County Job Fair: October 9th, 8:30a.m. to 1p.m., Door County ADRC, Sturgeon Bay WI
- Long Term Care Advocacy Team: October 8th, 2:30p.m. to 3:30p.m., IndependenceFirst, Milwaukee WI
- Autism Speaks Walk: October 13th, 9a.m. to 11:30a.m., Wisconsin State Fair Park, Milwaukee WI
- 2019 Self-Determination Conference: October 14th-16th, Kalahari Resort & Convention Center, Wisconsin Dells WI
- Transportation Consumer Advocacy Team (TCAT): October 22nd, 1p.m. to 3p.m., IndependenceFirst, Milwaukee WI
- Webinar: Bathing Facilities: October 24th, 1:30p.m. to 3p.m., Online
- Dan Johnson Advocacy Award Inaugural Award Ceremony: October 24th, 5p.m. 7p.m., Sheraton Hotel, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
August 2019
Connect | Share | Learn | http://sdnetworkwi.org/
Register Today!
The 2019 Self-Determination Conference will take place October 14th-16th at the Kalahari Resort in Wisconsin Dells. The Conference empowers people with disabilities in Wisconsin to have more control over their lives. Technology is constantly evolving and so is the Self-Determination Conference. Join us as we learn ways to live healthier, happier and more productive lives. Registration closes September 27th. Register today!
Diehard Award Nominations
Do you know someone who goes above and beyond to improve community supports for individuals with disabilities? Do they support self-determination? Nominate them for a Diehard Award! A Diehard is an individual who has made a significant contribution to the advocacy work here in Wisconsin. A diehard is someone with a steadfast commitment to the principles of community integration and self-determination. Diehards go above and beyond to make sure everyone is counted. Nominations are due by 12p.m. on September 5th. Nominate someone today!
“Scotland Reports” from Lynn Breedlove
In early August, Lynn Breedlove represented In Control Wisconsin at an International Disability Congress in Glasgow, Scotland. He presented highlights of his paper entitled “Self-Direction Worldwide: Contrasting Beliefs and Their Impact on Practice” and attended several workshops focused on self-direction. He was the U.S. representative in a half-day brainstorm with self-direction advocates from 9 countries focused on the current state of self-direction around the world. He is writing a series of articles for the SD Network about what he learned. Today, we are pleased to share the first in his series. Join the conversation: Please share comments, and thoughts with one another using the network.
Read a summary of “Self-Direction Worldwide”, with a link to the full paper
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For August, we shine the spotlight on Lydia. This college senior is determined not to let anything stop her from achieving her goals! She believes it’s so important to advocate and show the world what people with disabilities can do. Stop by this month's Member Spotlight to get to know Lydia.
"The events of the last month have been a whirlwind. I find myself trying to find a sweet spot between wanting to do all I can to advocate for people with all disabilities, but yet wanting to be as socially “normal” as I can. At times, it’s challenging to find the right balance, but I wouldn’t trade either for the world."
In this month's entry, Stacy talks about trying to balance being a strong advocate and wanting to lead a "normal" life as possible. We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Family Caregiver Characteristics: The Administration for Community Living released a data profile using data from the Caregiver Outcome Evaluation Study of the National Family Caregiver Support Program which examines characteristics of caregivers including age, relationship to care recipient, level of caregiving intensity, and use of NFCSP services. Find out what the study found.
- State Budget Impact: The state budget passed by the legislature and approved by the Governor will fund state programs for the next two years. Read the Survival Coalition's summary.
- Inclusive Emojis: An updated collection of emojis intended to be more inclusive and diverse was released. Learn what new things are included.
- Housing Assistance Funding: Federal officials announced that they plan to set aside millions of dollars to help people with disabilities access housing in the community. Find out what the funding Will help with.
- Accessible Homes: For people with disabilities, house hunting can be very frustrating. Read about the push to make all homes more accessible.
- Employment First Partner Grants: The Wisconsin Board for People with Developmental Disabilities is seeking up to eight organizations to engage in community outreach activities that lead to increased community, integrated employment for people with intellectual and developmental disabilities. Applications are due August 30th.
- Self-Advocate Leaders Needed: People First Wisconsin is seeking applications from eight people with intellectual/developmental disabilities to become Self-Advocate Leaders for the Wisconsin Board for People with Developmental Disabilities’ Model Approaches to Living Well grant project. Learn more and apply today!
- Partners in Policymaking: Wisconsin Partners in Policymaking is a six‐session advocacy and systems change training program designed to develop a group of future leaders across the state who are able to work with legislators and communities on policies and initiatives that will support the full participation and inclusion of people with developmental disabilities in all aspects of life. Applications for Fall are due September 1st.
- New MCOs for Family Care: The Wisconsin Department of Health Services recently announced New managed care organizations (MCOs) have been selected to provide the Family Care program in some counties in Wisconsin beginning next year. Learn about the change.
- PIP and YiPPE Trainings: Transition Parents in Partnership (PIP) and Youth in Partnership with Parents for Empowerment (YiPPE) Trainings for 2020-2021 are now open for registration. Find out more about these great programs and register today!
Here's a sample of upcoming events listed on the Self-Determination Network:
- The Organizer’s Forum: August 20th, 12p.m. to 1p.m., Online
- Webinar: Insights On Traveling With A Mobility Disability: August 20th, 1p.m. to 2:30p.m., Online
- Adaptive Waterskiing: August 21st, 10a.m. to 3p.m., Lauderdale Landing, Elkhorn WI
- Webinar: Self-Direction For Dually Eligible Individuals Utilizing Long-Term Services And Supports (LTSS): August 21st, 11a.m. to 12:30p.m., Online
- At The Lake: August 23rd & 24th, Camp Whitcomb, Hartland WI
- Adaptive Sportsmen Family Picnic & Shoot: August 24th, 10a.m. to 3p.m., Schultz's Gun Club, Muskego WI
- Transportation Consumer Advocacy Team (TCAT): August 27th, 1p.m. to 3p.m., IndependenceFirst, Milwaukee WI
- Caregiver Summit: September 5th, 9:30a.m. to 3:30p.m., Department of Health Services, Madison WI
- Webinar: Disability-Competent Care Conversation On Care Coordination With Independence Care System (ICS): September 5th, 1p.m. to 1:30p.m., Online
- Webinar: Web Accessibility: September 5th, 1:30p.m. to 3p.m., Online
- Long Term Care Advocacy Team: September 10th, 2:30p.m. to 3:30p.m., IndependenceFirst, Milwaukee WI
- Abilities Travel Club: September 11th, 11:30a.m to 12:30p.m., Carroll University, Waukesha WI
- Community Resource Network : September 11th, 11:30a.m. to 12:30p.m., AbilityNow, Waukesha WI
- Supported Decision-Making And Other Alternatives To Guardianship Training: September 13th, 10a.m. to 4p.m., Kalahari Resort, Wisconsin Dells WI
- Laugh Comedy Hour: September 14th, 3p.m. to 4:45p.m., ComedySportz, Milwaukee WI
- Transportation Consumer Advocacy Team (TCAT): September 24th, 1p.m. to 3p.m., IndependenceFirst, Milwaukee WI
- Autumn Ability Fest: September 29th, 7a.m. to 7p.m., Camelot Golf Club, Lomira WI
- 1st Annual HOPE And WISDOM Fundraiser: September 29th, 10a.m. to 3p.m., Camelot Golf Club, Lomira WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
July 2019
Connect | Share | Learn | http://sdnetworkwi.org/
Registration Now Open
The 2019 Self-Determination Conference will take place October 14th-16th at the Kalahari Resort in Wisconsin Dells. The Conference empowers people with disabilities in Wisconsin to have more control over their lives. Technology is constantly evolving and so is the Self-Determination Conference. Join us as we learn ways to live healthier, happier and more productive lives. Register today!
Let's Talk about Self-Direction!
InControl Wisconsin Board member Lynn Breedlove has written a paper entitled, "Self-Direction Worldwide: Contrasting Beliefs and their Impact on Practice", which reviews the evolution of self-direction over the last 25 years, and the variety of self-direction definitions, values, and practices around the world. He will present the paper at an international Disability Congress in Scotland in August. We invite you to read the paper and join the discussion.
"Whether it’s getting a new car, a new outfit, new appliances, or whatever it may be, getting something new brings excitement to people most of the time. Sometimes, though, getting new things can bring on mixed emotions and can feel like a reality check."
In this month's entry, Stacy talks about how getting medical equipment isn't always fun and can be emotionally difficult for some people. Have you ever experienced this?We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- New Technology: Technology continues to evolve. Learn about a new service that allows people to control the television with their eyes.
- ABLE Accounts Off to a Slow Start: Viability of the ABLE account program is in question as far fewer people have opened accounts than expected. Find out how many accounts need to be opened by 2021 in order to sustain the program.
- Comment Period for Nondiscrimination Rule: The U.S. Department of Health and Human Services (HHS) has issued a proposed rule to revise regulations implementing and enforcing Section 1557 of the Affordable Care Act (ACA). Section 1557 prohibits discrimination on the basis of race, color, national origin, sex, age, or disability in certain health programs or activities. People can submit comments on this until August 13th.
- Access to Fitness Equipment: Recently,a bill was introduced in the Senate to improve access to fitness facilities for people with disabilities. Read about what this bill would ensure.
- New Law Helps Deaf Community: In June, a bill was passed in Wisconsin that gives the Deaf community more assistance. Find out what this bill does.
- Supported Decision Making Grant: The Administration for Community Living seeks to support the planning of future state-based collaborative projects to make progress in strategies and facilitate decisional supports for all adults. The purpose of these planning grants is to develop action plans for advancing strategies that will ensure self-determination of older adults and adults with intellectual and developmental disabilities through the use of a full range of decisional supports. The grant opportunity closes August 19th.
- Transition Grants for People with Disabilities from Minority Backgrounds: The National Institute on Disability, Independent Living, and Rehabilitation Research announced funding opportunities for new Disability and Rehabilitation Research Projects on Independent Living Transition Services for Youth and Young Adults with Significant Disabilities from Minority Backgrounds. Find out more about these grants.
- Disability Inclusion Award: The Department of Labor announced a new award program for federal contractors. Learn more about the award.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: ADA Anniversary Update: 29 Years Burning Down The Road: July 16th, 1p.m. to 2:30p.m, Online
- ADA/Access Consumer Advocacy Team: July 17th, 9:30a.m. to 12p.m., FISERV Forum
- Disability Rights Radio Show: July 23rd, 7p.m. to 7:30p.m., Online
- Electronic Visit Verification Forum: July 24th, 10a.m. to 11:30a.m. (for consumers) and 1:30p.m. to 3:30p.m (for providers), Online or Madison WI
- AbilityMKE Now!: July 24th, 9p.m. to 10p.m., Online or Milwaukee WI
- Webinar: Understanding The Supplemental Security Income (SSI) Program: July 25th, 11a.m. to 12p.m., Online
- Lynzay Legois Adaptive Water Skiing: July 26th, 12p.m. to 5:30p.m., Fischer County Park, Burlington WI
- Madison Disability Pride Festival!: July 27th, 12p.m. to 5p.m., Tenney Park Shelter, Madison WI
- Webinar: How To Create And Test Accessible PDFs: July 30th, 12p.m. to 1:30p.m., Online
- Transportation Consumer Advocacy Team (TCAT): July 30th, 1p.m. to 3p.m., IndependenceFirst, Milwaukee WI
- Adaptive Waterskiing: July 31st, 10a.m. to 3p.m., Lauderdale Landing, Elkhorn WI
- Smash Zone Social Hours: August 5th, 12p.m. to 3p.m., Milwaukee WI
- Long Term Care Advocacy Team: August 13th, 2:30p.m. to 3:30p.m., IndependenceFirst, Milwaukee WI
- Transition To Adulthood Town Hall: August 14th, 5p.m. to 7:30p.m., Warner Park Community Recreation Center, Madison WI
- Lynzay Legois Adaptive Water Skiing: August 16th, 12p.m. to 5:30p.m., Fischer County Park, Burlington WI
- The Organizer’s Forum: August 20th, 12p.m. to 1p.m., Online
- Adaptive Waterskiing: August 21st, 10a.m. to 3p.m., Lauderdale Landing, Elkhorn WI
- Adaptive Sportsmen Family Picnic & Shoot: August 24th, 10a.m. to 3p.m., Schultz's Gun Club, Muskego WI
- Transportation Consumer Advocacy Team (TCAT): August 27th, 1p.m. to 3p.m., IndependenceFirst, Milwaukee WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.