SD Network

Category: Network News

96Self-Determination Network News:

March 2020

Connect Share |Learn http://sdnetworkwi.org/ 

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Disability Advocacy Day is CANCELED!

Disability Advocacy Day is canceled for this year due to concerns about containing the spread of Coronavirus. The Wisconsin Department of Health Services is recommending that large meetings and gatherings be canceled or held remotely as a strategy to slow the spread of the virus in Wisconsin.  Keep an eye on the InControl Wisconsin Facebook page for updates. 

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Check Out The Latest Videos! 

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.

The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.

Videos are posted weekly on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.

Then, click the "All" bell.

That's all there is to it. You will now get an email notification every time a video is posted.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on LisaWhen she's not reading or styling women in her boutique, she’s helping veterans get appropriate services. She encourages people to ask for the services they need to lead a self-determined life.  Stop by this month's Member Spotlight to get to know Lisa.

Who should we shine the spotlight on next?

128 Stacy’s Journal

"It’s Friday night and it’s been a long week. Some friends are meeting up for dinner and invited you to join. Without knowing or caring where, you accept the invite. You’re excited to kick back and relax. You get ready to go and you text a friend asking where they are meeting. The friend responds with the name of a popular restaurant in town. Suddenly, you cringe and rethink your decision to go out. The place they chose is definitely a really cool and fun place; however, accessibility is less than ideal."  In this month's entry, Stacy discusses the accessibility of restaurants. Do you find restaurants vary in terms of accessibility? What are some of the experiences you've had?

We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Respite Bill Moves Forward:  Legislators are planning to expand federal funding to support respite care for families of those with special needs. Learn how much money is being  allocated for the program. 
  • Public Comment open on Proposed Rules for Aircraft Accessibility and Service Animals:  The Department of Transportation (DOT) has issued two proposed rules for public comment on air travel and accessibility for passenger with disabilities. Find out what they are. Public comment due April 16th. 
  • New Non-Emergency Medical Transportation Contract Awarded:  The Department of Health Services awarded a new contract for non-emergency medical transportation to a new company.   Learn which company got the contract.
  • Transportation Grant Opportunity:  The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) at ACL has opened a new funding opportunity for the Rehabilitation Engineering and Research Centers (RERC) Program on Physical Access and Transportation.  This grant opportunity closes on April 28th. 
  • People Helping People:  Art is becoming more and more popular among people with disabilities.  Read this cool story about how a sculptor with challenges of his own is helping others be creative regardless of their limitations.   
  •  Supporting Family Caregivers:   As the aging population continues to grow, the concern over the caregiver crisis increases. Learn about how a roundtable discussion created an opportunity for people to share their stories with leaders. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96 Self-Determination Network News:

February 2020

Connect Share | Learn http://sdnetworkwi.org/ 

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Hurry! Disability Advocacy Day Registration Ends Soon!

Register now for Disability Advocacy Day!  Join fellow advocates on Tuesday March 24th in Madison to let your voice be heard.  Disability Advocacy Day is designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives. The day starts with a briefing of issues you and your fellow constituents want to discuss with your legislators and after lunch the whole group heads to the capitol for their legislative meetings.  Registration closes soon.  Register today!     

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Check Out The Latest Videos! 

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.

The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.

Videos are posted weekly on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.

Then, click the "All" bell.

That's all there is to it. You will now get an email notification every time a video is posted.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Cindy. Her amazing self-determination and attitude have gotten her where she is today. From growing up in an institution to being an Executive Director, this very determined lady believes everyone should have a chance.    Stop by this month's Member Spotlight to get to know Cindy.

Who should we shine the spotlight on next?

128 Stacy’s Journal

"Normalcy is something we all crave and strive for. That said, definitions of “normal” widely vary. Unless referring to something static like temperature, the word usually can be used pretty loosely. While we all have our own unique definitions, society has its own that many people continue to strive for!"  In this month's entry, Stacy discusses the fantasy of being "normal." It can be a pretty controversial topic in the disability community. How do you feel about it?

We encourage you to share your thoughts and experiences as well.

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Take five minutes to check out what's happening on the Self-Determination Network:

  • Proposed Bill for Standing Wheelchairs:  Standing wheelchairs are pricey, but they are beneficial to people who use them in more than one way. Find out why a Wisconsin legislator proposed a bill that would force BadgerCare to pay for standing wheelchairs. 
  • Volunteer Program Proposals: Community Care Corps seeks proposals for innovative local models in which volunteers assist family caregivers or directly help older adults or adults with disabilities with non-medical assistance in order to maintain their independence.  Proposals due April 3rd.
  • The Power of Robots: Two schools have teamed up to create a light weight robot to help elderly people and people with disabilities be able to stand and walk unassisted. Read more about this amazing invention. 
  • New Technology:  People with visual impairments can now see television programs thanks to new technology. Learn about how this works. 
  • Feedback Needed:  Recent data shows many families don't know they're eligible for long-term care supports.   Take this survey to help determine if Family Navigators world be helpful. 
  • Youth Leadership Forum:  Do you know a high school student with a disability who is a leader or a budding advocate? If so, please refer them to the Wisconsin Youth Leadership Forum (YLF)!  Applications due April 1st.
  • Grant Opportunities: The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) at ACL has opened several funding opportunities for the Disability and Rehabilitation Research Projects (DRRP) on Community Living and Participation (both Research and Development), Health and Function (both Research and Development), and Projects for Translating the Findings and Products of Disability Rehabilitation Research and Development into Practice.  Applications due March 23rd. 
  • 2020 Census:  Responses to this year's census will shape our future. Read about how there are multiple accessibility options to help people participate in the Census. 
  • Facilities Accessibility App:  Accessibility continue to be an issue at many commercial and institutional facilities across the country. Find out how students at UW Milwaukee are developing an app where people can rank businesses based on accessibility. 
  • Service Animal Report:   A survey was done on the treatment and inquiries from businesses regarding the presence of service animals. Read what the surveys revealed. 
  • NBA Star Brings Awareness to Mental Health: A first-first-round draft pick is bringing awareness to mental health by sharing his story. Read about how he used his fame to educate others. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96 Self-Determination Network News:

January 2020

Connect Share | Learn http://sdnetworkwi.org/ 

ACTION ALERT:  New Wisconsin ABLE Legislation Could Help More People With Disabilities Save for the Future

ABLE (Achieving a Better Life Experience) accounts are a great new way for people with disabilities (or families on their behalf) to save money without harming their eligibility for important benefits like Medicaid or Social Security. Unfortunately, many Wisconsin residents don’t even know about ABLE or how to set up an account. That’s because Wisconsin is one of just 9 states that does not to operate or market an ABLE program.

Bi-partisan legislators have just introduced an ABLE bill that would require the state Department of Financial Institutions to start an ABLE program. This will increase awareness about ABLE as a savings tool so people with disabilities and their families feel more secure about earning and saving more money in an ABLE account to put toward important extra expenses like transportation, housing or other support needs.

You can learn more about ABLE here.

If you think Wisconsin should join the other 41 states with ABLE programs and make sure state residents with disabilities and their families know about ABLE here’s what you can do:

  • Contact your State Assembly Representative and State Senator TODAY and ask them to support LRB-3165 and LRB-5380 – the ABLE bill!
  • Go to Who are My Legislators to find your rep’s contact information.
  • Contact your representatives by January 24TH

 You can find links to the current ABLE bill draft and legislator memo here.

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2020 Disability Advocacy Day

Mark your calendars!  Make certain your voice is being heard by joining us for the 2020 Disability Advocacy Day in Madison on Tuesday March 24th! It's a day designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives.  Registration and additional information will be coming soon.

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Check Out The Latest Videos! 

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.

The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.

Videos are posted weekly on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.

Then, click the "All" bell.

That's all there is to it. You will now get an email notification every time a video is posted.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Barbra.  This worldwide traveler believes that people with disabilities should make their own choices and live their most meaningful lives--just like people without disabilities.  Stop by this month's Member Spotlight to get to know Barbra.

Who should we shine the spotlight on next?

128 Stacy’s Journal

"Whether it’s the waterpark, the sauna, the workout room, or a different amenity, it’s often fun to look around and see what the place has to offer. For people with physical disabilities, exploring hotels is also enjoyable experience; however, we often look at different things.In this month's entry, Stacy talks about how accessibility widely varies. What accessibility issues at hotels have you faced?

We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Free Resource:  Check out the ABLE Employer Toolkit recently released by the ABLE National Resource Center.
  • Help Shape the Future of the ADA:  This year is the 30th anniversary of the Americans with Disabilities Act (ADA)!  Help form the future of it by taking a survey. 
  • Feedback Needed:  The national Recognize, Assist, Include, Support and Engage Family Caregivers Act (the RAISE Act) became law in January 2018. It requires the Department of Health and Human Services (HHS) to develop and maintain a national strategy to recognize and support family caregivers, and to organize an Advisory Council to make recommendations.  Comments due February 7th.
  • Members Needed:  The Assistive Technology Advisory Council is seeking new members to fill vacancies on their roster. Learn about the qualifications and consider applying.
  • Winter Fun:  Wisconsin has a lot to offer in the winter, but not everyone can take advantage of it. Read about how three organizations want to change that. 
  • Feedback Wanted on Airplane Restroom Accessibility: The U.S. Department of Transportation (DOT) seeks public comments on a new proposed rule to improve restroom access for passengers with disabilities on single-aisle aircraft with 125 or more seats. Comments due by March 2nd.
  • Changes to Social Security Could Put Beneficiaries with Disabilities at Risk: A proposed change to federal disability assistance would result in millions more case reviews, likely cutting off many recipients with disabilities if the changes are made.  Read about the proposed change.
  • Program Extended:  For the fourth time in a year, lawmakers voted to keep alive a program that moves people with disabilities from institutions into the community, but its long-term fate remains in jeopardy.  Find out why.     

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96 Self-Determination Network News:

November/December 2019

Connect Share | Learn http://sdnetworkwi.org/  

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During a Hot Topics session at the Self-Determination Conference, InControl Wisconsin board members Lynn Breedlove, Patti Becker, and Kate Norby facilitated a great discussion about self-determination and self-direction.  People were asked to write down questions about self-direction.  We've compiled them and we encourage people to share their thoughts.  We can all learn by sharing our thoughts and ideas with each other.  Join the discussion!

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The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.

The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.

Videos are posted weekly on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the latest videos on the channel:

Tip for National Family Caregiver Month

Tips for Success

Respite—A Break for Caregivers

Self-Advocates Speak Up

Inclusive Schools Week

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.

Then, click the "All" bell.

That's all there is to it. You will now get an email notification every time a video is posted.

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2020 Disability Advocacy Day

Mark your calendars!  Make certain your voice is being heard by joining us for the 2020 Disability Advocacy Day in Madison on Tuesday March 24th! It's a day designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives.  Registration and additional information will be coming in January.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For November, we shined the spotlight on Tasha. As someone who has always wanted to make a difference in her community, she has worked with multiple groups of people who are in need. Her current job has made her realize how important self-determination is for everyone.  Stop by her Member Spotlight to get to know Tasha.

This month, we're shining the spotlight on Phillip.  This Oscar trivia extraordinaire has become more involved in self-determination in recent years.  He encourages people not to be afraid to advocate for himself/herself.  Stop by this month's Member Spotlight to get to know Phillip.

Who should we shine the spotlight on next?

128 Stacy’s Journal

"Can you imagine your life without a computer? Most people now literally spend hours and hours a day on a computer. Although computers can open many great opportunities for people with disabilities, accessing them can often present many challenges."  In November's entry, Stacy discussed how the way she accesses the computer has changed over the years and how new technology she recently got may replace her keyboard in the future.


"The holiday season brings on different kinds of emotions for everyone. There are many different ways to deal with these."  In this month entry, Stacy talks about how the holiday season can bring on a mixed bag of emotions for many people. She opens up about some of her personal emotions and discuses how she tries to deal with them.  Do you sometimes have a hard time during the holidays? What helps you get through it?


We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Wheelchairs on Aircraft: There have been countless challenges with airline accessibility in recent years. Read about a study that the U.S. Access Board doing to assess the feasibility of equipping aircraft with restraint systems so that passengers can remain in their wheelchairs on flights. 
  • Achieving Health Equality:  When it comes to understanding the lives and health experiences of people with IDD, there is still a lot we do not know.   Two reports were developed to address the gap.  Learn what these reports include.
  • Cross-cultural Resources for the Direct Care Workforce:  Nearly half of all individuals dually eligible for Medicare and Medicaid receive help with personal care, such as bathing, dressing, managing medication, and other long-term services and support.  Check out  these resource briefs developed to help providers meet the cultural needs and preferences of dually eligible individuals.
  • Transportation Grant Opportunity:  The Federal Transit Administration has announced the Mobility for All Pilot Program.  This grant program will fund projects that enhance transportation connections to jobs, education, and health services for older adults, people with disabilities, and people with low income.  Applications due January 6th.
  • The Impact of Climate Change:  Climate change effects everyone, but some say the disability community is the most vulnerable to things such as wildfires, hurricanes and air pollution.  Learn what people think could be done to help.
  • Voting Barriers:  Every adult should be able to vote, but various barriers continue to prevent people with disabilities from doing so.  Find out what advocacy groups are doing to address these issues.
  • Hate Crimes on the Rise:  Recently released data indicates that hate crime incidents targeting people with disabilities are on the rise.  Read about the specifics.
  • Roommate Matching Service:  An online service that's believed to be the first of its kind is helping people with developmental disabilities find compatible roommates and settle into homes independent from their families. Learn how this service works.
  • Record High Representation: More characters with disabilities are set to appear on prime-time TV this season than ever before. Read about how while this is great news, people with disabilities are still way underrepresented on TV.
  • New Law Helps Voters with Disabilities:  Governor Evers recently signed a bill into law  that removes the requirement for people who are unable to say their name and address because of a disability.  Learn what's now accepted.
  • State Receives Funding for Housing:  It was recently announced that Wisconsin will get more than one million dollars to provide people with disabilities affordable housing.  Find out how the money will be used.  

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96 Self-Determination Network News:

October 2019

Connect Share | Learn http://sdnetworkwi.org/  

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Join the Conversation!

We were so excited to see many of you again at this year’s Self-Determination Conference. What was your favorite part? What were some things that you learned? Do you have a neat story from the conference? Did something really inspire you?  Let's keep the conversation going!  Share your comments, questions, and ideas in this discussion!

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At this year's conference, with support from an amazing team of people from different organizations, four self-advocates rolled out the Self-Determination Channel.  You can watch the trailer below.  We encourage you to watch, like, and comment on all the videos.  Don't forget to subscribe to the channel and share it with your family and friends!

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We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For October, we shine the spotlight on Jean. With a lengthy résumé highlighting her advocacy efforts, now retired, she continues to help write the story of the revolution in disability access, rights, and choices.  Stop by this month's Member Spotlight to get to know Jean.

128 Stacy’s Journal

"There will probably always be roadblocks and detours people with disabilities to overcome. Life is full of detours and roadblocks for everyone—not just those with disabilities. It’s hoping we handle and persevere through them that shows a person’s character!"

In this month's entry, Stacy talks about the accessibility roadblocks people with disabilities still face. Have you had similar experiences?  We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Get Involved:  Kurt posted about an awesome opportunity to help plan next year's Autumn Ability Fest.  Find out how to get involved!
  • Annual Report: The Wisconsin Board for People with Developmental Disabilities has released its annual report.  Learn which two areas they focused on.
  • Internet Essentials:  According to a recent study, people with disabilities are less likely to use the Internet than any other group.  Read about how Comcast is trying to make Internet affordable to everyone.
  • Take Survey:  The NIDILRR-funded Collaborative on Health Reform and Independent Living (CHRIL) is looking for adults with disabilities to complete an online survey about health insurance and health care services. Take the survey today.
  • Outdoor Wheelchairs Available:  Hiking is a common outdoor in Wisconsin.  Now people who have mobility issues can experience the beauty of  the outdoors  like never before. Read about the 15 all-terrain outdoor wheelchairs available to people in Wisconsin.   
  • Straw Ban:  The city of Madison is considering fining restaurants that give out plastic straws unless a customer asks for one first. Find out why the Disability Rights Commission doesn't support it.
  • Disability Employment Awareness Month:  President Trump proclaimed October as National Disability Employment Awareness Month.  Learn what the proclamation talks about.
  • Autism Insurance Coverage:  Thanks to a new rule, all 50 states and Washington, D.C. have mandates that require some level of insurance coverage for the treatment of autism.  Read about what's now required to be covered.

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

     

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96 Self-Determination Network News:

September 2019

Connect Share | Learn http://sdnetworkwi.org/  

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Hurry!  Registration Closes Friday!

The 2019 Self-Determination Conference will take place October 14th-16th at the Kalahari Resort in Wisconsin Dells.  The Conference empowers people with disabilities in Wisconsin to have more control over their lives. Technology is constantly evolving and so is the Self-Determination Conference. Join us as we learn ways to live healthier, happier and more productive lives.  Registration closes this Friday, September 27thRegister today!

 

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“Scotland Reports” from Lynn Breedlove

In early August, Lynn Breedlove represented In Control Wisconsin at an International Disability Congress in Glasgow, Scotland. He presented highlights of his paper entitled “Self-Direction Worldwide: Contrasting Beliefs and Their Impact on Practice” and attended several workshops focused on self-direction. He was the U.S. representative in a half-day brainstorm with self-direction advocates from 9 countries focused on the current state of self-direction around the world.  He is writing a series of articles for the SD Network about what he learned.  Today, we are pleased to share the second in his series.  Join the conversation: Please share comments, and thoughts with one another using the network. 

Read Scotland Report #2

Read a summary of “Self-Direction Worldwide”, with a link to the full paper

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For September, we shine the spotlight on Roxanne. When she isn’t traveling around the world, spending time with family and friends, reading, or gardening, she works with people teaching them about Self-Determination and Self-Directed Supports.  Stop by this month's Member Spotlight to get to know Roxanne.

128 Stacy’s Journal

"Many people my age have friends from moms’ groups, friends from their kids’ activities, friends from a volleyball league or other activities. While I’ll probably never friends from situations such as those, I’m incredibly fortunate to be friends with so many people who made such a profound impact on my life. It really does take a village, and I’m truly blessed to have an outstanding village of people who continue to support me! "

In this month's entry, Stacy talks about her special village of people who continue to support her. Who's in your village?  We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Public Comment on Guidelines for Onboard Wheelchairs:  The U.S. Access Board has released for public comment advisory guidelines for wheelchairs used on commercial passenger aircraft during flight.  Comments due October 21st.  Let your voice be heard!
  • Federal Program Extended: For the third time this year, additional funding will keep alive a federal program that moves individuals with disabilities from institutions into the community. Find out how this money will help, but why advocates are concerned.
  • Delay of Electronic Verification Visit: The Wisconsin Department of Health Services has been granted an extension which pushes the Electronic Visit  Verification (EVV) implementation date back into 2020.  Learn what EVV is about.
  • Exercise and Fitness for All Act: Three U.S. Senators have introduced “The Exercise and Fitness For All Act” to improve access to fitness equipment and classes for people with disabilities.  Read about what this bill would include.
  • Assistive Technology Brief:  The Administration for Community Living (ACL) has released a new Issue Brief on Assistive Technology. Learn what the brief includes.
  • Assistive Robots:  Assistive robots are growing in popularity.   Read about how they are helping people with disabilities be more independent.  
  • Emergency Preparedness:  Emergency preparation is important for everyone. However, older adults and people with disabilities often face additional challenges during emergencies.  Learn about some things to consider when creating a emergency plan.
  • Peers as Caregivers:  A unique program in Washington D.C. teaches people with disabilities to be care providers for their peers. Find out how this program works.
  • Call for Presenters:  Applications to present at the Circles of Life Conference, May 2020! Parents, family members, providers or anyone who has ideas and wisdom to share is encouraged to apply!   The deadline for proposals is October 1st.

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

96 Self-Determination Network News:

August 2019

Connect Share | Learn http://sdnetworkwi.org/  

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Register Today!

The 2019 Self-Determination Conference will take place October 14th-16th at the Kalahari Resort in Wisconsin Dells.  The Conference empowers people with disabilities in Wisconsin to have more control over their lives. Technology is constantly evolving and so is the Self-Determination Conference. Join us as we learn ways to live healthier, happier and more productive lives.  Registration closes September 27th.  Register today!

Diehard Award Nominations

Do you know someone who goes above and beyond to improve community supports for individuals with disabilities?  Do they support self-determination?  Nominate them for a Diehard Award!  A Diehard is an individual who has made a significant contribution to the advocacy work here in Wisconsin. A diehard is someone with a steadfast commitment to the principles of community integration and self-determination. Diehards go above and beyond to make sure everyone is counted.  Nominations are due by 12p.m. on September 5th.  Nominate someone today!

 

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“Scotland Reports” from Lynn Breedlove

In early August, Lynn Breedlove represented In Control Wisconsin at an International Disability Congress in Glasgow, Scotland. He presented highlights of his paper entitled “Self-Direction Worldwide: Contrasting Beliefs and Their Impact on Practice” and attended several workshops focused on self-direction. He was the U.S. representative in a half-day brainstorm with self-direction advocates from 9 countries focused on the current state of self-direction around the world.  He is writing a series of articles for the SD Network about what he learned.  Today, we are pleased to share the first in his series.  Join the conversation: Please share comments, and thoughts with one another using the network. 

Read Scotland Report #1

Read a summary of “Self-Direction Worldwide”, with a link to the full paper

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For August, we shine the spotlight on Lydia. This college senior is determined not to let anything stop her from achieving her goals!  She believes it’s so important to advocate and show the world what people with disabilities can do. Stop by this month's Member Spotlight to get to know Lydia.

128 Stacy’s Journal

"The events of the last month have been a whirlwind. I find myself trying to find a sweet spot between wanting to do all I can to advocate for people with all disabilities, but yet wanting to be as socially “normal” as I can. At times, it’s challenging to find the right balance, but I wouldn’t trade either for the world."

In this month's entry, Stacy talks about trying to balance being a strong advocate and wanting to lead a "normal" life as possible.  We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Family Caregiver Characteristics: The Administration for Community Living released a data profile using data from the Caregiver Outcome Evaluation Study of the National Family Caregiver Support Program which examines characteristics of caregivers including age, relationship to care recipient, level of caregiving intensity, and use of NFCSP services.  Find out what the study found.
  • State Budget Impact:  The state budget passed by the legislature and approved by the Governor will fund state programs for the next two years. Read the Survival Coalition's summary.
  • Inclusive Emojis: An updated collection of emojis intended to be more inclusive and diverse was released.  Learn what new things are included.
  • Housing Assistance Funding: Federal officials announced that they plan to set aside millions of dollars to help people with disabilities access housing in the community. Find out what the funding Will help with.
  • Accessible Homes:  For people with disabilities, house  hunting can be very frustrating. Read about the push to make all homes more accessible.
  • Employment First Partner Grants:  The Wisconsin Board for People with Developmental Disabilities is seeking up to eight organizations to engage in community outreach activities that lead to increased community, integrated employment for people with intellectual and developmental disabilities. Applications are due August 30th.
  • Self-Advocate Leaders Needed:  People First Wisconsin is seeking applications from eight people with intellectual/developmental disabilities to become Self-Advocate Leaders for the Wisconsin Board for People with Developmental Disabilities’ Model Approaches to Living Well grant project. Learn more and apply today! 
  • Partners in Policymaking:  Wisconsin Partners in Policymaking is a six‐session advocacy and systems change training program designed to develop a group of future leaders across the state who are able to work with legislators and communities on policies and initiatives that will support the full participation and inclusion of people with developmental disabilities in all aspects of life. Applications for Fall are due September 1st.
  • New MCOs for Family Care: The Wisconsin Department of Health Services recently announced New managed care organizations (MCOs) have been selected to provide the Family Care program in some counties in Wisconsin beginning next year.  Learn about the change.
  • PIP and YiPPE Trainings: Transition Parents in Partnership (PIP) and Youth in Partnership with Parents for Empowerment (YiPPE) Trainings for 2020-2021 are now open for registration. Find out more about these great programs and register today! 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

Self-Determination Network News: July 2019


By SD Network, 2019-07-15

96 Self-Determination Network News:

July 2019

Connect Share | Learn http://sdnetworkwi.org/  

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Registration Now Open

The 2019 Self-Determination Conference will take place October 14th-16th at the Kalahari Resort in Wisconsin Dells.  The Conference empowers people with disabilities in Wisconsin to have more control over their lives. Technology is constantly evolving and so is the Self-Determination Conference. Join us as we learn ways to live healthier, happier and more productive lives.  Register today!

lets talk icon.jpg

Let's Talk about Self-Direction!

InControl Wisconsin Board member Lynn Breedlove has written a paper entitled, "Self-Direction Worldwide: Contrasting Beliefs and their Impact on Practice", which reviews the evolution of self-direction over the last 25 years, and the variety of self-direction definitions, values, and practices around the world.  He will present the paper at an international  Disability Congress in Scotland in August. We invite you to read the paper and join the discussion

128 Stacy’s Journal

"Whether it’s getting a new car, a new outfit, new appliances, or whatever it may be, getting something new brings excitement to people most of the time. Sometimes, though, getting new things can bring on mixed emotions and can feel like a reality check."


In this month's entry, Stacy talks about how getting medical equipment isn't always fun and can be emotionally difficult for some people. Have you ever experienced this?We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • New Technology:  Technology continues to evolve.  Learn about a new service that allows people to control the television with their eyes. 
  • ABLE Accounts Off to a Slow Start:  Viability of the ABLE account program is in question as far fewer people have opened accounts than expected.  Find out how many accounts need to be opened by 2021 in order to sustain the program.
  • Comment Period for Nondiscrimination Rule: The U.S. Department of Health and Human Services (HHS) has issued a proposed rule to revise regulations implementing and enforcing Section 1557 of the Affordable Care Act (ACA). Section 1557 prohibits discrimination on the basis of race, color, national origin, sex, age, or disability in certain health programs or activities.  People can submit comments on this until August 13th.
  • Access to Fitness Equipment:  Recently,a bill was introduced in the Senate to improve access to fitness facilities for people with disabilities.  Read about what this bill would ensure.
  • New Law Helps Deaf Community: In June, a bill was passed in Wisconsin that gives the Deaf community more assistance.  Find out what this bill does.
  • Supported Decision Making Grant:  The Administration for Community Living seeks to support the planning of future state-based collaborative projects to make progress in strategies and facilitate decisional supports for all adults. The purpose of these planning grants is to develop action plans for advancing strategies that will ensure self-determination of older adults and adults with intellectual and developmental disabilities through the use of a full range of decisional supports. The grant opportunity closes August 19th.
  • Transition Grants for People with Disabilities from Minority Backgrounds: The National Institute on Disability, Independent Living, and Rehabilitation Research announced funding opportunities for new Disability and Rehabilitation Research Projects on Independent Living Transition Services for Youth and Young Adults with Significant Disabilities from Minority Backgrounds.  Find out more about these grants.
  • Disability Inclusion Award:  The Department of Labor announced a new award program for federal contractors.  Learn more about the award.  

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: June 2019


By SD Network, 2019-06-16

96 Self-Determination Network News:

June 2019

Connect Share | Learn http://sdnetworkwi.org/  

State Budget Update


The Joint Finance Committee (JFC) finished making changes to the Governor’s proposed budget last week. The state budget must now be approved or amended further by the full State Senate and State Assembly.



 



Survival Coalition has developed a summary of disability issues as proposed in the Governor’s budget compared with the Joint Finance Committee proposal. There will be three call-in days this week (Tuesday, Wednesday, and Thursday) for people with disabilities and family members to call their state Senators and State Representatives to let them know the good things that should be kept in the budget, need more funding, and should be added to the budget.  



 



We encourage you to use the Legislative Hotline (1-800-362-9472) to call your state Senator and state Representative to let them know what you like in JFC’s proposal and what you think should be changed.



 




The main issues will be Special Education funding, Transportation, Dental Care, Children's Disability ProgramsMental Health, and Caregiving.  We'll be sending out more information throughout the week, and we strongly encourage people to take action!  


128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For June, we shine the spotlight on Jenny.  This marketing extraordinaire found her passion to help the disability community while volunteering with the Fishing Has No Boundaries program. She encourages people not to be afraid to repeat yourself when advocating for what you need and want.  Stop by this month's Member Spotlight to get to know Jenny.

128 Stacy’s Journal


"We hear people say you should always keep learning. When we are younger, we often think we know everything we need to know about life. As we age, though, we realize that there is so much more to learn. People with disabilities are no different—in fact, it sometimes seems like we are forced to find out more information and figure complicated situations out more than the average person."

In this month's entry, Stacy discusses how she and her family are still learning the hoops of the "disability system." We encourage you to share your thoughts and experiences as well.


196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Rideshare Discrimination: Kurt posted an article about how rideshare companies have a long way to go with disability inclusion.  Read about how people with disabilities continue to face discrimination when it comes to transportation.
  • Seeing Disability Through Photos:  A growing collection of stock images that break stereotypes and authentically portray people with disabilities in everyday life are being compiled for use by the public.  Learn about how this is being done.
  • Improving Technology:  There's no doubt that technology has become much more accessible to people with disabilities, but many people feel there's lots of room to improve things.  Find out what's being done to improve things even more.
  • Enhancing Technology for People with Intellectual Grant Opportunity:  A new grant seeks to fund research and development toward technologies that contribute to improved abilities of adults with cognitive impairment to perform daily activities of their choice in the home, community, or workplace. Grant applications are due July 15th.
  • Wheelchair Survey:  Do you use a wheelchair?  People are needed to participate in a survey about falls.  Learn more!
  • Voice Assistant Devices:  Voice activated digital assistants have become more and more popular in households around the world.  Read a story about one engineer's mission To make them accessible to those who are unable to speak.
  • Neat Opportunity for Entertainment Professionals:  Great entertainment requires authentic stories and genuine representation of all people. This includes diverse people with physical, cognitive, sensory, mental health and other disabilities. Learn about a new program for  emerging entertainment professionals with disabilities.
  • Grant for Enhancing Technology for People who are Deaf or Hard of Hearing: A new grant seeks to fund research and development that leads to innovative technological solutions and strategies to improve the accessibility, usability, and performance of technologies designed to benefit people who are deaf or hard of hearing.  Grant applications are due July 19th.
  • ABLE Accounts Shouldn't  Effect Housing Access: Federal officials are looking closer at how money is being spent in ABLE accounts. Read about the guidance recently issued clarifying how housing officials should treat ABLE accounts.
  • New Rule has Advocates Worried:  The new "conscience rule" which allows health care providers more leverage to decline care that they disagree with has disability advocates worried.  Find out why.
  • Disaster Report:  Hurricane and tornado season has begun.  The National Council on Disability released a report on how major storms impact people with disabilities.  Find out what the report reveals.
  • Employment First Partner Grants:  The Wisconsin Board for People with Developmental Disabilities is seeking up to eight organizations to engage in community outreach activities that lead to increased community integrated employment for people with intellectual and developmental disabilities. Applications are due August 16th.  Learn more!
  • SPARKS Grants:  Applications for  SPARKS Grants, which are meant to organize local grassroots groups to make changes in their communities that result in a positive impact on the lives of people with intellectual and developmental disabilities, are now being accepted.  August 19th is the deadline.
  • Air Travel to Improve: The International Air Transport Association 75th Annual General Meeting unanimously approved a resolution to improve the air travel experience for the estimated one billion people living with disabilities worldwide.  Learn what this means.
  • Watch:  This is a great interview about the under representation of the disability community in the film industry.  Do you agree?  

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: May 2019


By SD Network, 2019-05-12

96 Self-Determination Network News:

May 2019

Connect Share | Learn http://sdnetworkwi.org/  

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Call for Exhibitors

The Wisconsin Self-Determination Conference empowers people with disabilities to have more control over their lives. Each year, people with disabilities, their families and people who support them participate in the conference to learn more about self-determination and self-directed supports so they can live more independently, actively participate in their communities, and use public funds efficiently.

The Wisconsin Board for People with Developmental Disabilities is currently accepting applications to be an Exhibitor/Micro-enterprise vendor at the Self-Determination Conference. Tables will be available on Tuesday October 15th and Wednesday October 16th. Space is limited and only applications from exhibitors that directly support self-determination and self-direction in WI will be accepted.  Apply to be an exhibitor today!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For May, we shine the spotlight on Marilee.  This advocate extraordinaire doesn’t let limitations get in the way of leading a very successful life.  In addition to owning her own graphic design business, she’s very involved in ADAPT. She encourages people to get involved in disability advocacy and to never give up. Stop by this month's Member Spotlight to get to know Marilee.

128 Stacy’s Journal


"Imagine relying on assistance of another person to accomplish every single task you need to survive on Earth. For people with disabilities (born with or acquired) or health conditions, relying on other people to assist you with all of your basic needs can often seem overwhelming."

In this month's entry, Stacy discusses how having to rely on others can be very challenging at times.  We encourage you to share your thoughts and experiences as well.


196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Program Extension:  Legislation that the President recently signed ensures that a program that moves people with disabilities from institutions to the community can stick around while advocates push for a longer-term solution.  Lean about how the program is helping move people into the community.
  • Effort to Expand Respite Care:  Caring for loved ones with special needs is often very rewarding, but it can also take a physical, emotional and financial toll on families.  Read about a bipartisan bill that would boost respite care services across the country.
  • New TV Show:  A new television series chronicling the experiences of people with autism and other special needs as they search for meaningful employment is set to debut.   Find out more about the show.
  • Research Funding Opportunity on Family Support:  The purpose of this opportunity  is to conduct research, training, technical assistance, and related activities to contribute to effective support of family caregivers of people with disabilities, and ultimately to improved community living, health and function, and employment outcomes of people with disabilities who are supported by family members.  This opportunity closes on June 10th.
  • Neighborhood for Those with Special Needs:  In recent years, more and more housing options for people with disabilities have appeared.  Read about how, in Phoenix Arizona, a whole neighborhood is being developed for people with special needs.  
  • Advocacy Training Opportunities:  PIP and YiPPE are training programs for parents and youth with disabilities to learn about the transition process in the areas of employment, education, living and health.  Find out more about these great programs.
  • Worries about Medicaid Changes:  Advocates worry that Medicaid funding for people with disabilities could be jeopardized if some states succeed in overhauling how they receive federal dollars.  Learn why advocates are worried.
  • Governor Evers' First Signed Bill:  Recently, Governor Evers signed his first bill into law. Find out why this bill was so significant to the disability community.
  • Managed Care Providers Investigation:  With many states turning to private insurers to handle Medicaid services, an investigation is underway to investigate whether these insurers are offering people with disabilities the care they're entitled to.  Read about why it's being questioned.
  • National Family Support Program:  A research brief serves as an introduction to the National Family Caregiver Support Program and related programs administered by Administration for Community Living (ACL) that provide support to caregivers of older adults, as well as caregivers of persons with disabilities.  Learn about this new program.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

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