Category: Network News
Self-Determination Network News:
April 2025
Connect | Share |Learn | http://sdnetworkwi.org
Federal Fallout Update
Here is the recording from the latest webinar that the Wisconsin Board for People with Developmental Disabilities puts on about what's happening with Medicaid, Social Security, and beyond. Your relentless advocacy is making a difference, but we need to keep it up. Keep calling legislators, making visits, writing letters, etc... We need to keep these issues visible!
Call for Presenters for the 2025 Self-Determination Conference
Are you interested in presenting at the 2025 Self-Determination Conference? The Wisconsin Board for People with Developmental Disabilities is seeking session proposals for Tuesday, October 21st and Wednesday, October 22nd, 2025. This year’s theme: Self-Determination by Design: Your Life, Your Way will help people with disabilities lead more Self-Determined lives by offering tools to plan the life they want to live in the communities they choose! Proposals are due May 9th. Learn more and submit a proposal!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For April, we're catching up with Jason. This amazing self-advocate has played a pivotal role in turning one of Wisconsin’s state disability councils around over the last couple of years. He also has enjoyed helping family members navigate and advocate for what supports they need to be successful. Stop by this month's Member Spotlight to catch up with Jason.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Fear of Losing Protections: An ongoing lawsuit challenges Section 504 of the Rehabilitation Act, which legally mandates access and accommodations across wide swaths of the public. Learn what losing protections would mean for millions of people.
- Changes to the Social Security Administration: Recently proposed changes to the Social Security Administration have advocates worried. Read about what these changes entail.
- Five Key Facts about Medicaid Integrity: Program integrity efforts work to prevent and detect fraud, waste, and abuse, to increase program transparency and accountability, and to recover improperly used funds. Learn what these key things do to ensure integrity.
- Movie Star: In Wisconsin and beyond, Cindy Bentley is known as an incredible disability self-advocate. Learn about her new short film which highlights her story of determination and resilience.
- Risk of Work Requirements: Potential work requirements for people on Medicaid would further complicate things for people with disabilities. Find out why.
- Dismantling of the Administration for Community Living: Recently, the Trump administration announced the dismantling of the Administration for Community Living which oversees a wide range of services. Read about what what this could mean for people with disabilities.
- Proposed Improved Accessibility for 911 Networks: The Federal Communications Commission adopted a Further Notice of Proposed Rulemaking (FNPRM) proposing improvements to ensure the resiliency, reliability, interoperability, and accessibility of Next Generation 911 (NG911) networks Learn what these improvements will do.
- Voter Barriers Continue: Voting barriers for people with disabilities in Wisconsin continue. Read about how a lawsuit continues in the courts that would allow people with disabilities to use an electronic ballot to vote.
- REAL ID: When enforcement of the REAL ID Act begins May 7, 2025, the regular Wisconsin driver license or ID will no longer be accepted identification for domestic air travel or to enter a federal building or military base. Find out more about this new rule.
- Concerns over ACL Dismantling: Nearly half of staff at the Administration for Community Living have been terminated as part of broader Department of Health and Human Services (HHS) layoffs, disrupting funding distribution for disability programs nationwide Find out why advocates are concerned.
- Disrupting the Department of Education: The Education Department enforces disability rights in schools by distributing Individuals with Disabilities Education Act (IDEA) funds and investigating discrimination complaints. Learn why advocates are concerned with Trump transferring the responsibilities to Health and Human Services.
- Changing Course on Social Security Administration Requirements: The Trump administration is backing off the in-person requirements it announced for people needing services at Social Security Administration. Learn what made them change course.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Self-Direction for the Long Haul: April 16th, 1p.m. to 2p.m., Virtual
- Behind the Curtain: Understanding State Administration of Self-Direction: April 23rd, 1p.m. to 2p.m., Virtual
- People with Disabilities Love Self-Direction, But How Do Waiver Participants and Administrators Plan for the Future?: April 30th, 1p.m. to 2p.m., Virtual
- Webinar: Outdoor Dining, Retail, and Community Spaces: May 1st, 1:30p.m. to 3p.m., Virtual
- Circles of Life Conference 2025: May 8th & 9th, Wilderness Resort, Wisconsin Dells, WI
- Employment First Conference: May 19th & 20th, Kalahari Resort, Wisconsin Dells, WI
- National Symposium on Quality Employment 2025: May 20th-22nd, Memorial Union, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
March 2025
Connect | Share |Learn | http://sdnetworkwi.org
Call for Presenters for the 2025 Self-Determination Conference
Are you interested in presenting at the 2025 Self-Determination Conference? The Wisconsin Board for People with Developmental Disabilities is seeking session proposals for Tuesday, October 21st and Wednesday, October 22nd, 2025. This year’s theme: Self-Determination by Design: Your Life, Your Way will help people with disabilities lead more Self-Determined lives by offering tools to plan the life they want to live in the communities they choose! Proposals are due May 9th. Learn more and submit a proposal!
Keep Talking with your Legislators about Medicaid
Members of Congress will be back in their districts the week of March 15th. It’s a great opportunity to connect with federal lawmakers about and how important the help you get from Medicaid is to you and your family.
On February 25th, the U.S. House of Representatives passed a Budget Resolution that committee to $2 Trillion in cuts, with at least $880 Billion in cuts assigned to committee that covers Medicaid. On March 5th, the non-partisan Congressional Budget Office confirmed major cuts to Medicaid are the only way to reach the level of cuts required by the Budget Resolution.
- Can House Republicans Cut $880 Billion without slashing Medicaid? It’s Likely Impossible (Kaiser Health News)
Since January, Congress has been thinking about ways it could cut Medicaid to get money for other priorities. The public process that will let people know which Medicaid cut ideas and what the details of those ideas are has not started yet. However, the list of ideas on how to cut Medicaid has stayed the same, with some members of Congress publicly supporting certain ideas.
This week the President's nominee for the administrator for the Centers of Medicaid Services--the federal agency in charge of Medicaid--would not commit to opposing Medicaid cuts. This week the President indicated he was supportive of changes that would make it harder for people to get in or stay in Medicaid, and changes that could make it harder for health and long term care businesses to get paid in a timely way.
Now is a great time to tell lawmakers what Medicaid helps you do, and what it would mean if you got any less help that you have now.
The Board for People with Developmental Disabilities is holding webinars every Friday at 9 AM unless cancelled. You can find recordings of these webinars at the BPDD Youtube Channel.
ACTION STEPS for this week.
Congress will be home this week.
- Go with a small group (no more than 3-4) of constituents to in-district offices to talk about Medicaid.
- Bring a written copy of your Medicaid story to leave behind.
- In-district office closed?
- Leave a note. Bring a written copy of your Medicaid story to leave behind.
- Take a picture of yourself and note at the in-district office and share it.
- Make sure the local press gets a copy of your story and picture at the in-district office too.
Upcoming Important Election
On April 1st the statewide Spring Election will be held in Wisconsin. Every ballot in Wisconsin will include races for the Wisconsin Supreme Court, the Wisconsin State Superintendent, and a Constitutional Amendment question. There will also be local races on many ballots which might include school board, mayor, city council, alderpersons, and circuit court judges. If you would like to see what is on your ballot, whether you are registered to vote, where you need to go on election day to cast your ballot, and more go myvote.wi.gov. If you would like more information about the candidates, visit Personalized Ballot | VOTE411, enter your address, and scroll down to research each candidate and the constitutional amendment on your ballot.
Voting is essential to upholding our democracy. Voting gives you the opportunity to express your opinion on important issues that affect you. If you don’t vote, other people get to choose who will represent you. If people with disabilities voted at the same rate of those without disabilities, there would be about 1.75 million more votes cast nationwide. 25% of eligible voters have one or more disabilities. People with disabilities are a powerful voting block that can impact the outcome of our elections.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For March, we're shining the spotlight on Lauren. This resilient author found her happy place at camp when she was a kid. She graduated from college, worked in nonprofit marketing for years, and now is a camp coordinator for a weeklong summer camp and weekend camps for adults with neuromuscular diseases. Stop by this month's Member Spotlight to get to know Lauren.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Home-and-Community-Based Service: This is an interesting brief what "home care" is, who is covered, and what services were available in 2024. Check it out!
- Airlines Push Back: Several major U.S. airlines are challenging a new federal rule aimed at improving travel for those with disabilities. Learn why the airlines are pushing back.
- DEIA Explanation: This resource provides an overview of what DEIA is, why DEIA efforts are essential for disabled Americans, and how diversity, equity, inclusion, and accessibility efforts have been affected by these recent Presidential action.
- Cool Story: For Garrett Murray of Mequon, announcing sporting events for Homestead High School has become a career. Read this neat story.
- The Pink Umbrella Theater: Milwaukee's "Pink Umbrella Theater" is the only professional theater company in Milwaukee working directly with actors and artists with disabilities. Learn about this unique theater.
- Medicaid Woes Continue: Medicaid serves as a lifeline for many people with disabilities. Learn about why advocates are concerned.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Lunch & Learn: The Spring Election Matters!: March 19th, 12p.m. to 12:45p.m., Virtual
- Too Big to Thrive: March 19th, 1:30p.m. to 3p.m., Virtual
- Webinar - Accessible Tech: Can you Read this Map: Checking Maps for ADA Accessibility: March 20th, 1p.m. to 2:30p.m., Virtual
- Unlocking Opportunities: A Case Study Spotlighting a Successful CIL-AAA Partnership - An Innovative Model for Health Care Contracting: March 20th, 2p.m. to 3:30p.m., Virtual
- Lessons from the Budget Authority State Innovation Lab Collaborative: March 26th, 1p.m. to 2p.m., Virtual
- Financial Management Services: Friend or Foe: April 2nd, 1p.m. to 2p.m., Virtual
- Webinar: Exhibition Design and Accessibility for Visitors with Disabilities: April 3rd, 1:30p.m. to 3p.m., Virtual
- Proactive Program Integrity Within Self-Direction: April 9th, 1p.m. to 2p.m., Virtual
- Self-Direction for the Long Haul: April 16th, 1p.m. to 2p.m., Virtual
- Behind the Curtain: Understanding State Administration of Self-Direction: April 23rd, 1p.m. to 2p.m., Virtual
- People with Disabilities Love Self-Direction, But How Do Waiver Participants and Administrators Plan for the Future?: April 30th, 1p.m. to 2p.m., Virtual
- Circles of Life Conference 2025: May 8th & 9th, Wilderness Resort, Wisconsin Dells, WI
- National Symposium on Quality Employment 2025: May 20th-22nd, Memorial Union, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
February 2025
Connect | Share |Learn | http://sdnetworkwi.org
Disability Advocacy Day 2025
Registration is open for Disability Advocacy Day 2025! Join us in Madison on Wednesday March 12th with other advocates from around the state and meet with your elected officials. This is a great opportunity to share your story and educate your legislators on disability rights! Registration is free but required to attend. Register closes on February 26th. Register today!
Last Thursday the U.S. Senate budget committee voted to advance the first of two budget reconciliation bills (Reconciliation is a special process that means the bill needs fewer votes to pass). It assigned Senate Committees, including the committee that covers health and education, to find at least $175 Billion in cuts. This week the full Senate may hold another vote to formally tell the committees to begin looking for cuts. Sen. Tammy Baldwin serves on the Health and Education committee.
Action Steps
- Contact U.S. Sen. Tammy Baldwin (202) 224-5653
- Ask how she can let constituents know what health and education cuts are being considered in real time
- Ask if there will be a public hearing, and how people can participate.
- Ask what kinds of stories would help her say what cuts would do to real people. (Sometimes Senators share constituent stories at public hearings.)
- Ask for no cuts to Medicaid, special education, or cuts of disability and aging organizations that serve people in Wisconsin.
- Ask how she can let constituents know what health and education cuts are being considered in real time
U.S. House
Last Thursday the U.S. House Budget Committee approved the "one-bill" reconciliation plan (Budget Blueprint) that calls for at least $2 Trillion in cuts and directed the committee that covers Medicaid to find at least $880 Billion in cuts. Multiple Medicaid cut ideas would have to be passed to reach $880 Billion in cuts.
A growing number of U.S. Representatives are beginning to understand what deep Medicaid cuts would mean to their districts, and are uncomfortable with Medicaid cuts. This week members of Congress will be in their districts and hear from constituents.
Action Steps
- If you don’t already have a meeting with your U.S. Representative and U.S. Senators' in-district office, get a group of disability constituents together and drop by their in-district offices.
- You can ask for an impromptu meeting or to speak with staff.
- You can ask for an impromptu meeting or to speak with staff.
-
Ask your federal lawmakers what they think about Medicaid cuts (for or against).
-
If they are AGAINST Medicaid cuts, ask what they are doing to prevent cuts from happening.
-
If they SUPPORT cuts, ask what changes they want to make to Medicaid, why, and what they think the impact will be to Wisconsin's budget, workforce, and people with disabilities who need help over a long period of time.
-
- Take a picture at the in-district office and post (tag your lawmakers’ socials).
- Attend listening session your Representatives are holding and speak about Medicaid.
- Ask for a Medicaid town hall in every Congressional district to hear directly from constituents about what Medicaid cuts would mean for them.
The Board for People with Developmental Disabilities is hosting a webinar every Friday explaining the latest news about what's happening with Medicaid. Follow the Wisconsin Board for People with Developmental Disabilities and InControl Wisconsin on Facebook to find the registration information for the webinar every week.
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Ending Subminimum Wage: After years of advocacy from the disabled community, the Department of Labor is proposing a rule that would end the issuance of 14(c) certificates, which enable businesses to pay subminimum wages to disabled workers. Learn what this rules would assure.
- Caregiver Training Courses in Different Languages: The Wisconsin Wisconsin Department of Health Services recently announced that the free online training courses for direct care professionals are now available in English, Spanish, and Hmong. Share these resources with others who may benefit from these.
- Labor Crisis Puts People at Risk: Caregivers are underpaid, overwhelmed, and increasing leaving the field. Find out what advocates say needs to be done to help with this crisis.
- Medicaid 2025: What to Watch: In 2025, many issues are at play that could affect Medicaid coverage, financing, and access to care. Learn what big changes are expected.
- Youth Leadership Forum: The Youth Leadership Forum is a week-long, overnight leadership training and career awareness program for high school students who have disabilities. Applications due March 24th. Learn more and apply today!
- Disability Representation in Images: Getty Images recently committed to focusing on ensuring that its images depict disability authentically and with appropriate diversity. Learn what they're doing.
- Work Requirements: Work requirements in Medicaid have resurfaced as part of a broader legislative package of potential changes to Medicaid designed to significantly reduce federal Medicaid spending. Read about what's being considered.
- Black Disabled Activists: February is Black History month. Check out this list of famous black disabled activists.
- Disability Employment at an All-Time High: The latest disability employment report revealed that the Labor Force Participation Rate for people with disabilities. Read about what's contributing to this increase.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: I Do Not Want Your Cookies: People with Disabilities Experiences on Advisory Committees: February 26th, 1p.m to 2p.m., Virtual
- U.S. Access Board Webinar: Accessible Means of Egress: March 6th, 1:30p.m. to 3p.m., Virtual
- Disability Advocacy Day 2025: March 12th, Monona Terrace and State Capitol, Madison WI
- Natural Supports: Who's In My Circle?; March 12th, 1:30p.m. to 3p.m., Virtual
- Too Big to Thrive: March 19th, 1:30p.m. to 3p.m., Virtual
- Lessons from the Budget Authority State Innovation Lab Collaborative: March 26th, 1p.m. to 2p.m., Virtual
- Financial Management Services: Friend or Foe: April 2nd, 1p.m. to 2p.m., Virtual
- Proactive Program Integrity Within Self-Direction: April 9th, 1p.m. to 2p.m., Virtual
- Self-Direction for the Long Haul: April 16th, 1p.m. to 2p.m., Virtual
- Behind the Curtain: Understanding State Administration of Self-Direction: April 23rd, 1p.m. to 2p.m., Virtual
- People with Disabilities Love Self-Direction, But How Do Waiver Participants and Administrators Plan for the Future?: April 30th, 1p.m. to 2p.m., Virtual
- Circles of Life Conference 2025: May 8th & 9th, Wilderness Resort, Wisconsin Dells, WI
- National Symposium on Quality Employment 2025: May 20th-22nd, Memorial Union, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
January 2025
Connect | Share |Learn | http://sdnetworkwi.org
Disability Advocacy Day 2025
Save the date for the 2025 Disability Advocacy Day on Wednesday March 12th in Madison. We'll be sending out information about details and registration in early February. We hope to see you there!
Register for a BPDD virtual workshop
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For January, we're shining the spotlight on Rose. This photography loving self-advocate is taking the Partners in Policymaking class right now and is eager to advocate for Medicaid expansion. Stop by this month's Member Spotlight to get to know Rose.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Switzer Research Fellowship: The purpose of the Switzer Research Fellowships Program is to build research capacity by providing support to highly qualified individuals, including individuals with disabilities, to conduct research on rehabilitation, independent living, and other experiences and outcomes of people with disabilities. Applications due February 3rd.
- Disability Data Collection Practices: Read about some promising practices states can use to collect disability data to improve health equity.
- Self-Direction in Medicaid: This study’s aim was to examine how states across the United States implemented self-direction in their Medicaid home and community‐based services waiver programs for people with intellectual and developmental disabilities in fiscal year 2021. Learn about some of the interesting statistics that it revealed.
- Workforce Challenges Continue: A new survey highlighted the challenges facing America’s direct support workforce, revealing a care system in crisis due to ongoing recruitment and retention issues. Find out why this is.
- New Air Travel Rules: New rules aimed to ease air travel for people with disabilities will go into effect on January 18th. Learn what they are.
- Mom On a Mission: Going to the grocery store is not a big ordeal for most people, but for adults with disabilities and their caregivers, it can be challenging. Read about one Wisconsin mom's mission to get adult changing stations in more common places.
- Universal Design Funding Opportunity: The National Institute on Disability, Independent Living, and Rehabilitation Research announced a new funding opportunity on universal design. Applications are due March 6th. Learn more about this opportunity.
- Disability Providers Fear More Cuts: Disability service providers across the country are struggling to maintain their services, with many reporting that they are turning away new referrals and discontinuing programs and they’re concerned that it could get worse Learn why.
- Ending Subminimum Wage: As federal officials consider ending a program that allows employers to pay people with disabilities less than minimum wage, a new study suggests that doing so has little downside. Learn the reasoning.
- Input Needed: The Department of Health and Human Services is seeking input on the impact of ageism in health care. Comments due March 15th.
- Inspiring Wrestler: For Anthony Robles, coming out of retirement from wrestling to make a about his life was exciting. Read about one Wisconsin wrestler's unique story.
- Think Differently Database Act: President Biden signed the Think Differently Database Act to create an online resource for individuals with disabilities, caregivers, and families. Find out what this law requires.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Federal Medicaid Updates: What's going on and how to tell your story to policymakers: January 21st, 12p.m. to 1:30p.m., Virtual
- Webinar: Highlights from the Fiscal Year 2024 Government-wide Section 508 Assessment: January 21st, 12p.m. to 1:30p.m., Virtual
- Federal Medicaid Updates: What's going on and how to tell your story to policymakers: January 23rd, 3p.m. to 4:30p.m., Virtual
- Webinar: Innovation in the Direct Care Workforce: Unlocking Success Through Peer Learning: January 29th, 1p.m. to 2p.m., Virtual
- Webinar: Accessibility and Air Travel: February 6th, 1:30p.m. to 3p.m., Virtual
- Disability Advocacy Day 2025: March 12th, Monona Terrace and State Capitol, Madison WI
- National Symposium on Quality Employment 2025: May 20th-22nd, Memorial Union, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
December 2024
Connect | Share |Learn | http://sdnetworkwi.org
We absolutely loved seeing and meeting so many of you at the Self-Determination Conference at the end of October. We want to thank everyone who participated in the Stewing with Stacy raffle, and we welcome all the new members who joined the Network! It was a great Conference again this year! How did you like it? There were a ton of great sessions and events. This year’s theme was A Seat At The Table: Nothing About Us, Without Us! What was your favorite part? What resources did you find particularly helpful? Did something really inspire you? Let's keep the conversation going! Share your comments, questions, and ideas here.
The session recordings and materials from the 2024 Self-Determination Conference are now available online! If you weren't able to make it this year, save the date for 2025 and join us October 20-22, 2025!
For the first time since the IRIS Program started in 2008, a group of IRIS participants, families, self-direction advocates and other stakeholders spent a day together in November 2023 to discuss what is working well in IRIS and what could be improved. In addition, the group identified a number of recommendations for how to achieve improvements in the program. A public report summarizing the consensus from that gathering has now been released and submitted to the Wisconsin Department of Human Services, along with a proposal to create a broad-based task force to work through the issues and recommendations. Read the full report.
Building strong relationships is at the heart of compassionate care! The team at InControl Wisconsin wants to hear from you: how do you foster connections with the people who support you? Have you used the resources from Caring Across Cultures? Whether it’s through active listening, shared activities, or cultural exchanges, your experiences matter! Share your tips and stories with us by going to the CAC website, and let’s inspire each other to create even deeper bonds. 
Disability Advocacy Day 2025
Save the date for the 2025 Disability Advocacy Day on Wednesday March 12th in Madison. We'll be sending out information about details and registration in a few weeks. We hope to see you there!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
In November, we shined the spotlight on Peter. This avid Wisconsin sports enthusiast loves connecting with others and hearing them share their story. Check out this month's Member Spotlight to get to know Peter.
For December, we're shining the spotlight on Katrina. This video game obsessed self-advocate is the coordinator of the Self Advocacy Action committee at the University of Minnesota-Twin Cities Institute on Community Integration. Stop by this month's Member Spotlight to get to know Katrina.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Advancing Independence and Community Integration for All: The President’s Committee for People with Intellectual Disabilities (PCPID) has prioritized high-quality home and community-based services for their report to the president with a focus on four key areas: direct support professionals, employment, community living, and federal support. Read the report.
- Fear of Losing Benefits: Fear of losing Medicaid benefits is a factor in debates over law allowing certain workers with disabilities to be paid lower than minimum wage — advocates urge Wisconsin lawmakers to pursue expansion. Learn why.
- Direct Care Wages Factsheet: This factsheet presents an analysis of wage disparities between direct care workers and similar occupations across the United States in 2023, as well as trends in this wage gap from 2014 to 2023. Take a look at it.
- Increase in Employment: Federal data shows that the number of people with disabilities finding employment is increasing. Find out what advocates credit the rise to.
- The Sandwich Gap: There’s a growing number of us who are Millennials or Generation X and struggle to balance the obligations of parenting school-age children, caring for elderly loved ones, and working for a living. Read about what a recent study found.
- Airline Fined over Treatment of Passengers with Disabilities: One airline has agreed to a record $50 million settlement with the U.S. Department of Transportation for violating laws that protect airline passengers with disabilities. Find out what else they are accused of.
- Experiences of Direct Care Workers and Family Caregivers: This brief includes findings from focus groups with direct care workers and family caregivers who provide home-and-community-based services. Learn what the groups found.
- Who Are the Direct Care Workers?: This analysis provides an overview of demographic information, wages, and health care coverage of direct care workers. Find out what this analysis found.
- Sponsor and Exhibitor Registration Open: Registration for sponsors and exhibitors for the Circles of Life Conference is now open. Early bird registration ends in February!
- Myths of Self-Directed Care: Enrollment and awareness of self-directed care remain low. Read about some of the myths.
- Workforce Shortages Top the List: State legislatures passed over 3,000 health policy bills in 2024, focusing on healthcare workforce shortages, Medicaid changes, and youth mental health. Learn what key actions include.
- Caregiver Impact Report: This report lists hundreds of actions that federal agencies, state and local governments, businesses, and communities that can be taken to improve caregivers' lives.. Learn what five goals the strategy includes.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: From Standards to Support: Understanding the Access Board’s Role in Accessibility: January 9th, 1:30p.m. to 3p.m., Virtual
- Disability Advocacy Day 2025: March 12th, Monona Terrace and State Capitol, Madison WI
- National Symposium on Quality Employment 2025: May 20th-22nd, Memorial Union, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
October 2024
Connect | Share |Learn | http://sdnetworkwi.org
Caring Across Cultures is a learning experience focused on helping people with disabilities and their direct care workers to develop stronger, more meaningful relationships. We believe that identifying the cultural differences that exist between two people is a critical step in the relationship building process.
The information covered by Caring Across Cultures includes materials for direct care workers and those considering direct care work, direct care agencies, disabled adults, and older adults.
Course Topics
- Overview of Direct Care Work
- Your Beliefs About Disability
- Understanding Our Differences
- Resolving Differences to Build Strong Relationships
Additional Resource Topics
- Worker Rights
- How I Interact With People
- Worker Responsibilities
- Employer Legal Responsibilities
- Employer Best Practices
- Tips For Writing Job Descriptions and Announcements
- Interview Tips For Employers
- Exploring My Identity
- Preparing For Challenging Conversations
- Is Direct Care Work Right For You
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- "Looking people in the eye doesn't come natural to me"
- "The 5 qualities help me be a successful self-advocate and employee"
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Updated Guidance on Housing Voucher: Recently, the Department of Housing and Urban Development has updated its guidance for the Mainstream Voucher program which creates new alternative requirements and waivers to allow public housing agencies to better utilize the vouchers by helping people with disabilities avoid institutional settings and live in the community. Learn more about the guidance.
- Guardrails to People on Medicaid: People who receive Medicaid are regularly evaluated to determine eligibility. Read about the new guidance outlining steps states should take to make sure that people with disabilities are not accidentally dropped from Medicaid home and community-based services.
- Voters with Disabilities Continue Battle for Electronic Ballots: Two months ago, many voters with disabilities in Wisconsin were looking forward to being able to receive and mark a ballot electronically. However, an appeals court disrupted the plan. Learn about how advocates continue to fight for access to electronic ballots.
- Right-of-Way Guidelines: The General Services Administration (GSA) recently published a final rule adopting the public right-of-way accessibility guidelines issued by the Access Board. Find out what the guidelines include.
- Input Needed on AI: The Access Board is seeking feedback on the benefits and risks of artificial intelligence (AI) for people with disabilities. Comments due October 31st.
- The Autism CARES Act of 2024: The U.S. House of Representatives has taken a crucial step forward in supporting the autism community by passing the Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act of 2024. Learn what this Act includes.
- Wisconsin Medicaid Managed Care Quality Strategy: The Wisconsin Department of Health Services is seeking public comment on the 2025-2027 Wisconsin Medicaid Managed Care Quality Strategy. Comments due October 25th.
- Free At-Home COVID Tests: The Department of Health and Human Services Administration for Strategic Preparedness and and the United States Postal Service is offering free at-home COVID tests. Find out how to get yours.
- Best Cities: The annual ranking for best cities for people with disabilities was recently released. Check out to see which cities ranked highest.
- Wisconsin Disability Policy Internship Program: The Wisconsin Disability Policy Internship Program is a 4-6 month, part-time paid internship designed to provide an early public policy career level experience in disability policy. Applications are due on October 28th. Learn more and apply today!
- Call for Presenters: The 2025 Circles of Life Conference is May 8th & 9th in Wisconsin Dells. Proposals to present are now being accepted. Applications are due October 25th.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Ask an ADA Professional: Other Power-Driven Mobility Devices (OPDMD): October 9th, 1p.m. to 2p.m., Virtual
- Webinar: Bringing People to Golf - Creating Accessible and Inclusive Environments: October 10th, 1p.m. to 2:30p.m., Virtual
- Lunch & Learn Webinar: Make Your Plan to Vote: October 15th, 12p.m. to 12:45p.m., Virtual
- FOCUS 2024 Conference: November 20th-21st, KI Center, Green Bay WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
September 2024
Connect | Share |Learn | http://sdnetworkwi.org
Registration Closes Soon--Register Now!
Registration is now open for the 2024 Self-Determination Conference which will be held October 21st-23rd at the Kalahari Resort in Wisconsin Dells. This year's theme is A Seat at the Table: Nothing About Us, Without Us. Join us for one of the largest events for people with disabilities and people who support them. Learn how to live more independently, participate in your community, and direct your public funds efficiently. Registration closes September 20th. Learn more and register today!
InControl Wisconsin's Caring Across Cultures Project
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Story Studio Video: What are you most proud of? Part 2
- What do you want people to know about you?
- "It's important for me to advocate for what I believe in"
- "Introducing SDC's New Channel Host!"
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- New Data: The Center for Disease Control recently released the annual update to the Disability and Health Data System. Find out what the new data revealed.
- Push for Nationwide Headcount: Disability advocates are pushing for the federal government to track the number of direct support professionals there are. Learn why this is a crucial piece of data that is missing.
- Employment Toolkit: This U.S. Department of Labor toolkit provides strategies and best practices to recruit, hire, retain, and advance workers with disabilities in good jobs in construction, manufacturing, and clean energy. Check it out!
- Proclamation: In late July, in celebration of the 34th anniversary of the Americans with Disabilities Act, the White House put out a proclamation explaining what has been accomplished and what still needs to be done. Read about the actions being taken to further make things accessible.
- State Fee Changes: The Evers administration recently announced the establishment of minimum rates for home-and-community-based services care that must be paid by managed care organizations. Learn what advocates feel is needed to ensure that the increases actually show up in workers' paychecks.
- Reflecting on the ADA: As we celebrated the anniversary of the Americans with Disabilities Act in July, there was a lot of reflection about not only how far the country has come, but also about how much still needs to be done. Take a look at this very informative blog that recaps everything nicely.
- Expanded Care Choices: Starting in January 2025, almost 8,000 Family Care and Family Care Partnership (Partnership) members in South Central Wisconsin will have more choices in who helps manage their long-term care. Find out which nine countries will be able to choose from two additional managed care organizations.
- Laws Simplify Equipment Repair Process: For a long time, disability advocates and those who rely on mobility equipment have said that Wisconsin laws make it harder to repair devices. However, in the past year, two bills have been passed to address these issues Learn what these laws will do.
- Updated Index: An updated online interactive tool and an accompanying report which allow users to analyze state policies and direct care workforce outcomes across the country. Learn why this is helpful to policy makers, advocates, and state leaders.
- Finding Accessible Businesses: For people with disabilities, finding businesses that accommodate their accessibility needs can be challenging. Learn about the accessibility options one popular business review company added to help people find the specific accommodations they need when looking for a business.
- Healthcare Task Force Report: Governor Evers recently announced that the Governor's Task Force on the Healthcare Workforce released its final report and advisory action plan including solutions to address the ongoing healthcare workforce shortages. Read about the recommendations the task force adopted.
- Emerging Leader Award: The American Association of People with Disabilities Paul G. Hearne Emerging Leader Awards recognizes outstanding emerging leaders with disabilities who exemplify leadership, advocacy, and dedication to the broader cross-disability community. Applications due October 15th. Learn more and apply today!
Here's a sample of upcoming events listed on the Self-Determination Network:
- WisTech 2024 Training #5 Technology And Tranquility: AT For Mental Health And And Self Care: September 17th, 10a.m. to 11a.m., Virtual
- Webinar: Accessible Tech: Locked Out: Barriers to Accessible Technology Inside Prison Education Programs: September 19th, 1p.m. to 2:30p.m., Virtual
- Webinar: Creating Healthy, Safe, and Connected Communities: The Living Well Blueprint: September 25th, 2p.m. to 3:30p.m., Virtual
- FOCUS 2024 Conference: November 20th-21st, KI Center, Green Bay WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
July 2024
Connect | Share |Learn | http://sdnetworkwi.org
Registration Now Open
Registration is now open for the 2024 Self-Determination Conference which will be held October 21st-23rd at the Kalahari Resort in Wisconsin Dells. This year's theme is A Seat at the Table: Nothing About Us, Without Us. Join us for one of the largest events for people with disabilities and people who support them. Learn how to live more independently, participate in your community, and direct your public funds efficiently. Learn more and register today!
InControl Wisconsin's Caring Across Cultures Project
Join an Upcoming Lunch & Learn Webinar about Voting
Join the Wisconsin Disability Vote on Tuesday July 23rd from 12-12:45p.m. for another Lunch & Learn webinar. Learn about voting rights for people living in residential settings like a nursing home, adult family home, or community based residential facility (CBRF). Plan to attend if you are a voter in a residential setting, staff from residential facilities, or anyone interested in this topic. Join Janet Zander, Advocacy and Public Policy Coordinator at the Greater Wisconsin Agency on Aging Resources, and the Wisconsin Disability Vote Coalition to learn about your voting rights for people living in a residential setting. Register here.
Opportunity to Give Feedback about the IRIS Program
The Wisconsin Department of Health is in the process of renewing the IRIS waiver. This happens every five years. The department is requesting feedback from participants, family members, and caregivers about what's working well in the program and what needs to be improved in order to make things easier for people to live the lives they want. The department is holding public listening sessions on Tuesday July 30th from 6-8p.m. (register) and Wednesday July 31st from 1-3p.m. (register). There is also a survey you can fill out if you can't attend the listening sessions. It closes on August 2nd. This is really a great opportunity to let your voice be heard about what needs to be changed in IRIS.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on InControl Wisconsin board member, Cindy. She has been involved in self-determination in various ways for many years, and she loves seeing self-advocates speak up about what's really happening. Check out this month's Member Spotlight to get to know Cindy.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- The Caravan for Disability Freedom and Justice: Marilee has posted information and the schedule for the Caravan for Disability Freedom and Justice. Find out when it's going to be in your area.
- Accessible Absentee Ballot: A Dane County judge has ruled that voters who self-identify that they are unable to read or mark a ballot without assistance can be issued absentee ballots electronically. Learn about this temporary injunction is part of a bigger lawsuit.
- Voters Rights: The Partisan Primary Election is August 13th and the General Election is November 5th. Read about the many important that voters with disabilities should know in an article that the Wisconsin Wisconsin Council of the Blind and Visually Impaired published.
- Caregiver Survey: The Wisconsin Family and Caregiver Support Alliance wants to hear from family caregivers and professionals. Take this survey.
- Accessibility Improvements to Google: Google recently a lot of new accessibility features for people who have vision impairments, cognitive delays, and physical limitations. Find out what's being added.
- Most Prevalent Disabilities in Wisconsin: A technology company working on solutions for web accessibility challenges collected disability statistics in Wisconsin. Learn what the data is being used to do.
- Ballot Dropboxes: The Wisconsin Supreme Court recently overturned a previous ruling that banned dropboxes for returning absentee ballots. Learn why dropboxes are especially important for voters with disabilities.
- Right-of-Way Accessibility Guidelines: The General Services Administration issued a final rule adopting the Access Board's Public Right-of-Way Accessibility Guidelines. Find out what these standards include.
- Wisconsin Author: A lady from Rice Lake has found a way to turn the tragedies in her life into a life-long career of writing novels. Read about why she incorporates a character with a disability into each book.
- Input Needed: The Office of Management and Budget is seeking input on a possible revision of the Standard Occupation Classification Manual. Comments are sought on a variety of topics, including whether OMB should consider adding “care workers” as a detailed occupation. Comments are due August 12th.
- Disability Equality Index: The Disability Equality Index documents the growing importance of data in global business culture. Learn what companies use this information for.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Lunch And Learn: Voters Living In Residential Settings-- Make Your Plan To Vote And Know Your Rights!: July 23rd, 12p.m. to 12:45p.m., Virtual
- Webinar: Climate Change, Health, And Disability: July 25th, 11a.m. to 12p.m., Virtual
- Disability Pride Festival: July 27th, 12p.m. to 5p.m., Warner Park, Madison WI
- Webinar: Beyond Section 508 Digital Accessibility Requirements: July 30th, 12p.m.to 1:30p.m., Virtual
- IRIS Waiver Renewal Listening Session: July 30th, 6p.m. to 8p.m., Virtual
- IRIS Waiver Renewal Listening Session: July 31st, 1p.m. to 3p.m., Virtual
- WisTech 2024 Training #4 Towards Trustworthy Artificial Intelligence: August 20th, 10a.m. to 11a.m., Virtual
- State Plan For Assistive Technology Public Hearing: August 21st, 1p.m. to 2p.m., Virtual
- State Plan For Assistive Technology Public Hearing: August 21st, 4:30p.m. to 5:30p.m., Virtual
- State Plan For Assistive Technology Public Hearing: August 22nd, 10a.m. to 11a.m., Virtual
- WisTech 2024 Training #5 Technology And Tranquility: AT For Mental Health And And Self Care: September 17th, 10a.m. to 11a.m., Virtual
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
June 2024
Connect | Share |Learn | http://sdnetworkwi.org
Registration for the 2024 Self-Determination Conference Opens in July
The 2024 Self-Determination Conference will be held October 21st-23rd at the Kalahari Resort in Wisconsin Dells. It's one of Wisconsin’s biggest (and most amazing) event for people with disabilities and the people who support them. Last year, over 800 people attended the conference! This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined live. Registration will open in July. We'll be sending out a message when registration is available. Stay tuned for details!
InControl Wisconsin's Caring Across Cultures Project
Join an Upcoming Lunch & Learn Webinar about Voting
Constitutional amendments will be on the ballot again in August. Changing our constitution is big deal. Join the Wisconsin Disability Vote Coalition's Lunch & Learn on Tuesday June 25th from 12p.m. to 12:45p.m. to learn what they’re about. We will also talk about how the new maps may impact you, what else is on the ballot, and how you can be prepared. Register for the webinar here.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on the vice president of InControl Wisconsin, Julie. This fierce advocate for people with disabilities full-heartedly believes in the true meaning of self-direction and continues to push for change. Check out this month's Member Spotlight to get to know Julie.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Your own personal story matters.
- LGTBQ+ We are out there. You are not alone.
- What change would you like to see in the disability community?
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Caregiving Front and Center in the Election: With the election a few short months away, caregivers of all types are seeking better health care options. According to one report, home health care and child day care are both in the top 10 industries with the largest number of working Medicaid enrollees. Learn why Medicaid expansion would greatly help.
- Accessible Workplaces: Every year, Global Accessibility Awareness Day brings awareness to the need for digital access and inclusion in the workplace. Read about else should be considered when creating an accessible workplace.
- Adaptive Clothing Startup: When people pick out what clothes they're going to wear, most take things like the weather, plans for the day, and their mood in to consideration. However, not many people think about how many buttons something has or how hard the zipper is on a certain piece of clothing. For people who have dexterity limitations or physical limitations, things like that really matter. Find out about an adaptive clothing startup in Madison that seeks to resolve those types of problems for people with disabilities.
- Changes to SSI: The Social Security Administration is making several changes to the Supplemental Security Income program, which will take effect in September. Read about the changes coming.
- WisCaregiver Connections: WisCaregiver Careers offers a free training for certified direct care professionals and certified nursing assistants. One component of the program is the WisCaregiver Connections online workforce platform that gives hiring providers access to certified workers. Learn more about the program.
- New Accessibility Features: Apple announced a range of new capabilities aimed at making life easier for people with disabilities including an option to control a phone or tablet using only a person’s eyes. Find out what other features are going to be available.
- Solutions to the Direct Care Workforce Crisis: Experts discussed solutions to improve jobs for the nation’s direct care workers at the National Skills Coalition’s 2024 Skills Summit. Read about some of the ideas that were thought of.
- Push for Better Healthcare for Co-occurring Conditions: National developmental disability advocacy groups are linking multimillion-dollar partnerships with some big players in health care in a push to better address co-occurring conditions. Learn about what groups are hoping to do.
- EVV Hard Launch Date: A date for the hard launch of electronic visit verification (EVV) for home health care services and personal care nurse supervisory visits has been set. Find out when it is.
- Rebuilding Trust in Healthcare: According to a recent poll, the majority of people with disabilities have negative health care experience. Read about why many advocates feel that it's time for government to step in.
- The Pink Umbrella Theater Company: The Pink Umbrella Theater Company was founded in 2018 as Milwaukee’s first theater for artists with a wide range of disabilities. Find out more about this unique company.
- Partners in Policymaking: Partners in Policymaking is an advocacy and systems change training program that develops leaders who are able to work with legislators and communities on policies and initiatives that will support the full inclusion and participation of people with disabilities in all aspects of life. Applications are due on October 4th.
- SPARKs Grants: Do you have an idea to make your community a better place for people with disabilities? Organize your grassroots group and apply for funding to help make it happen! Find out more about SPARKs grants and apply today!
- Funding for Transportation: The U.S. Department of Transportation’s Federal Transit Administration announced $7.8 million for 17 projects that will improve public transportation for people with disabilities, older adults, and low-income individuals. Learn about what these grants will support.
- Input Needed on the Family Care Waiver: Last year, the Wisconsin Department of Health Services asked members, family, friends, caregivers, providers, managed care organizations, tribal leaders, advocates, and other partners how they can improve Family Care and Family Care Partnership. They used that input to draft changes to the program waivers. Now, they want your input on the draft waiver renewal application. Comments due on July 5th.
- National Strategy to Support Family Caregivers: The Administration for Community Living announced availability of $2 million to support the National Strategy to Support Family Caregivers. The applications are due August 6th.
- Researchers Creating a Robotic Arm: Researchers at UW-Milwaukee are creating a robotic arm accessory to increase mobility for people with disabilities. Read about how this arm was created..
- New Guidance: The nation’s pediatricians are getting new guidance on how to help teenagers with intellectual and developmental disabilities and their families navigate the transition to adulthood. Learn what's included in the guidance.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Lunch And Learn: Constitutional Amendments And Fair Maps Webinar: June 25th, 12p.m. to 12:45p.m., Virtual
- Webinar: Picture This! Identifying Non-Compliant Elements & Spaces: July 11th, 1:30p.m. to 3p.m., Virtual
- WisTech 2024 Training # 3 Host With The Most: Inclusive Party Planning: July 16th, 10a.m. to 11a.m., Virtual
- WisTech 2024 Training #4 Towards Trustworthy Artificial Intelligence: August 20th, 10a.m. to 11a.m., Virtual
- WisTech 2024 Training #5 Technology And Tranquility: AT For Mental Health And And Self Care: September 17th, 10a.m. to 11a.m., Virtual
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
May 2024
Connect | Share |Learn | http://sdnetworkwi.org
Registration for the 2024 Self-Determination Conference Opens in July
The 2024 Self-Determination Conference will be held October 21st-23rd at the Kalahari Resort in Wisconsin Dells. It's one of Wisconsin’s biggest (and most amazing) event for people with disabilities and the people who support them. Last year, over 800 people attended the conference! This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined live. Registration will open in July. Stay tuned for details!
Please Help InControl Wisconsin's Caring Across Cultures Project
Are you someone who hires direct care workers? Are you a family member of someone who receives support from a direct care worker? Are you a direct care worker? If so, InControl Wisconsin would like you to share a short video, audio clip, or written story of your personal experiences to help others understand the relationships between direct care workers and the people who hire them. We will give you questions to answer, to make it easier for you.
Your stories will be used in online learning courses and/or other resources hosted on InControl Wisconsin’s website as part of the Caring Across Cultures learning platform. (See this link for more details about the project.)
Why are we asking for your help? Caring Across Cultures is a project with a goal of helping direct care workers and the people who hire them to build strong relationships. We want to help them connect and build trust across cultural differences.
What better way for someone who is thinking about hiring direct care workers to hear directly from people who are already doing it? The same is true for someone thinking about becoming a direct care worker. There’s nothing like hearing from someone first hand about what it’s like.
You can record a video or audio clip yourself with your phone (or other device) or you can ask us for help.
Here is a document to help you record your own video or audio. This document will also tell you how to send us your finished recording: CLICK HERE
Need some help?
-
You can work on this at home. If you need some help, Contact Sarah Godfrey, at sarah@promotelocal.com / (262) 349-1968, and she will schedule a phone or video call with you.
- Are you coming to Circles of Life on May 16h in Stevens Point? How about Employment First in Wisconsin Dells on May 21st? We will have recording equipment on site at both conferences.
Ready to Do This?
-
Questions for you to answer when you record yourself
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Emily. This active young woman loves being busy. Whether it’s she’s rock climbing, water skiing, snow skiing, traveling, or volunteering at her church, she can’t sit still. Check out this month's Member Spotlight to get to know Emily.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Felicia and I take things literally
- Cindy and I feel different about mascots
- I calm myself with fidgets
- I separate my food and that's OK
- Mental Health and LTGBQ+
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Take a Survey: The American Institutes of Research is looking for people with disabilities to take a survey about the ways you find and use information in your daily lives. Check it out!
- Roadblock for Proposed Funding Boost for In-Home Care: A $258 million plan to improve the pay for thousands of home health care providers in Wisconsin was halted after lawmakers on the Legislature’s powerful budget committee blocked it. Learn the impact of this.
- Research Funding for Mobile App Opportunity: A new funding opportunity is available for programming to plan and conduct research, demonstration projects, trainings, and related activities to develop methods, procedures, and rehabilitation technology that maximize the full inclusion and integration of people with disabilities. Applications due June 7th.
- Lawsuit Seeks Electronic Ballot Option: Disability Rights Wisconsin, the League of Women Voters of Wisconsin, along with four voters with disabilities filed a lawsuit against the Wisconsin Elections Commission. The lawsuits seeks to allow voters with disabilities to cast their ballot electronically. Learn more about what they are asking for.
- 2024 Election Toolkit: The Wisconsin Disability Vote Coalition has released a toolkit which includes videos, posts, and graphics to get people ready to vote in elections this year. Check it out!
- New Guidance on Voting Rights for People with Disabilities: The US Department of Justice issued an updated guide of The Americans with Disabilities Act and Other Federal Laws Protecting the Rights of Voters with Disabilities. Look at what's new.
- ABLE Accounts: Recently, Governor Evers signed a bill ordering the state’s Department of Financial Institutions to set up an ABLE program for residents or join one of the existing multi-state consortiums. Read about how these accounts help people with disabilities.
- Manufacturing Company: A manufacturing company in West Allis has made a deliberate point to provide people who have autism meaningful employment opportunities. Find out more about this company.
- Caregiver Champion Collaborative: The National Caregiver Champion Collaborative will facilitate peer networking and engagement among professionals who lead caregiver services and supports. Learn more about this program.
- Best Airlines: U.S. airlines got a little bit better with mobility devices in 2023. Find out what the 10 best airlines for handling mobility devices are.
- Talented Artist: An artist in Madison creates coloring books that have universal quotes. Read more about this talented artist.
- Voting Grant Opportunity for Schools: The Wisconsin Disability Vote Coalition is looking for schools to partner with to help students with disabilities understand their voting rights and responsibilities. Learn about this opportunity.
- Discrimination Rule Finalized: The U.S. Department of Health and Human Services finalized a rule that prohibits discrimination on the basis of disability. Find out more about what this rule means.
- Workforce Brief: The US Department of Health and Human Services along with the Department of Labor released a brief summarizing a workgroup’s recommendations to federal and state agencies, non-profit organizations, and research institutions to improve data infrastructure and information on the HCBS workforce. Learn about the recommendations.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Wisconsin Council Of The Blind & Visually Impaired Advocacy Day: May 16th, 12p.m. to 1:30p.m., Virtual
- Webinar: Assistive Listening Systems: Where We Are Today And What’s On The Horizon: May 16th, 1p.m. to 2:30p.m., Virtual
- Employment First Conference: May 21st, Kalahari Resort, Wisconsin Dells WI
- Community Conversation: May 23rd, 10a.m. to 1p.m., Independence First, Milwaukee WI
- Webinar: Building And Sustaining An Accessible Federal Technology Environment: May 28th, 12p.m. to 1:30p.m., Virtual
- WisTech 2024 Training # 1 Unlocking The Power Of Recreation: June 11th, 10a.m. to 11a.m., Virtual
- WisTech 2024 Training #2 The ABCs Of AAC: June 18th, 10a.m. to 11a.m., Virtual
- WisTech 2024 Training # 3 Host With The Most: Inclusive Party Planning: July 16th, 10a.m. to 11a.m., Virtual
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.