SD Network

Category: Network News

Self-Determination Network January 2022


By SD Network, 2022-01-20

96Self-Determination Network
January 2022

Connect Share |Learn http://sdnetworkwi.org/ 

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Disability Advocacy Day of Change 

Disability Advocacy Day of Change will be held virtually on March 15, 2022. It's a event focused on connecting Disability Advocates with their legislators to talk about issues important to them. Attendees are expected to participate in the morning briefing and call their legislators in the afternoon.   

Watch for registration information coming soon! 

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

In December, we shined the spotlight on Stefanie. Growing up with a sibling with a disability shaped her outlook and passion in life. She enjoys making self-determination the center of peoples lives. Stop by and get to know Stefanie in the December Member Spotlight

This month, we shined the spotlight on Jen This outgoing self-advocate does everything she can to change the world’s perception of Down Syndrome. She encourages everyone to advocate to achieve their girls and to set high expectations. Check out this month's Member Spotlight to get to know Jen.   

Who should we shine the spotlight on next?

128 Stacy’s Journal




"If we can send civilian tourists to space, we should be able to take flights in airplanes without our vital equipment being damaged. Unfortunately, I don’t foresee anything changing anytime soon. We, as a disability community, have to continue to make sure that we are seen and heard. That’s the only way changes are going to happen."


In December's journal entry, Stacy talked about how we are now sending tourists to space, but, yet, people who use wheelchairs can't fly in an airplane without worrying about our chairs being wrecked. Something doesn't add up - - she discussed how we need to make everything inclusive. Do you agree with her?

"I don’t have the solution to this massive issue. While I do think adequate pay and maybe some benefits would help, I don’t think that’s the whole issue either. People don’t want to work period. When you have an overall lack of enthusiasm to work and can make more money not working, how can you blame them?"


Stacy discusses how the direct caregiver shortage has become dire in this month's journal entry. Have you struggled to find caregivers?




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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

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Take five minutes to check out what's happening on the Self-Determination Network:

  • Assistive Technology Brief: The National Assistive Technology Act Technical Assistance and Training Center released a new issue brief that describes how AT Act programs are supporting people who are experiencing long-term effects of COVID. Learn what these programs offer. 
  • EVV Study: A research firm recently did a study on the affects Electronic Visit Verification (EVV) has on care. Find what what the study revealed.
  • Video Games Open Doors: Advancements in video game technology have made it possible for people with disabilities and health conditions to be able to experience outdoor environments without having to leave their house. Read about video games have become an unusual assistive technology tool. 
  • "Silent Majority": Why doesn't the disability community have more political power? There are over 61 million people living with a disability and yet  they still have little involvement in the political arena. Read more about how the disability community continues to lack in politics. 
  • Largest Home-and-Community-Based Services Increase Moves Forward: A $1.9 trillion bill that includes many different supports for home-and-community-based care and senior services was passed by the House of Representatives recently. Read about what this bill would include. 
  • Take Survey: The Southwest ADA Center is conducting a study on video game accessibility for people with disabilities. The survey closes February 28.
  • Airport Program: Mitchell International Airport in Milwaukee recently launched a program to assist adult travelers who have disabilities. Find out how the program works. 
  • Accessible Routes at Historical Museum: Recently, the Smithsonian Museum of Natural History held a ribbon-cutting ceremony to celebrate the installation of new sloped walkways for accessible entry on the National Mall side of the 111-year-old building. Read more about the accessibility change. 
  • State Transition Plan Submitted: The Wisconsin Department of Health Services (DHS) has submitted the updated statewide transition plan for final approval to the Centers for Medicare & Medicaid Services (CMS). Learn what changes were made. 
  • Cracking Down on Caregiver Mistreat: Federal officials are working to make sure that paid caregivers aren't being taken advantage of.  Learn about what the Department of Labor is doing to try to prevent some of the mistreatment. 
  • Rate Increase: The Wisconsin Medicaid reimbursement rates for home-and-community-based services went up 5%. Learn what programs this applies to. 
  • The Affordable Connectivity Program: The Federal Communications Commissions  launched a longer-term program to replaced the Emergency Broadband Benefit Program. Read about what the program would help ensure. 
  • Accessibility Awareness: In recent years, accessibility awareness has become more and more prevalent in conversation, but those conversations haven't necessarily turned into action. Read about how some people feel that accessibility should be part of the culture.
  • Vaccine Information: The Administration for Community Living recently released a good informational sheet about COVID vaccines and boosters. Check it out! 
  • Doctors Unclear about Obligations to People with Disabilities: A new study finds that many doctors don't know their obligations to people with disabilities. Learn about what some of requirements are.  

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96Self-Determination Network News:

November 2021

Connect Share |Learn http://sdnetworkwi.org/ 

National Family Caregiver Month

November is National Family Caregiver Month. The Survival Coalition, the Wisconsin Aging Advocacy Network, and the Wisconsin Family Caregiver Alliance released this three minute video to listen to some of the challenges facing family caregivers across Wisconsin: See Us: Wisconsin's Invisible Family Caregivers

Without this essential support from dedicated family members, many older adults and people with disabilities would not be able to live in their own homes and would be forced into expensive Medicaid-funded institutional settings. We encourage you to share this video with your legislators and tell them your story. 

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It was a great Self-Determination Conference again this year! We understand many people missed being able to attend in-person, but we were glad so many were able to join virtually. Let's keep the conversation going! Share your comments, questions, and ideas. Join the conversation!

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We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Olivia. This determined self-advocate doesn’t let anything stop her from achieving her goals. As director of an advocacy program for high school students, she helps others learn leadership and advocacy skills. Stop by this month's Member Spotlight to get to know Olivia.  

Who should we shine the spotlight on next?

128 Stacy’s Journal








"It’s really cool to experience something that you never thought would be possible, and know it was made possible due to generous people. In today’s world of so much doom and gloom, it’s refreshing to experience humanity first-hand."


In this month's journal entry, Stacy discusses her experience going up the Eagle Tower at Peninsula State Park. Have you been there? What did you think of it? Share your experience with us!








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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Landmark Bill Introduced: New legislation was recently introduced that would create add-on plans for Medicare Home Health Benefit that would allow providers to mix in telehealth, transportation, personal care, and other services. Learn more about this new bill. 
  • Benefits Increase: It was recently announced that Supplemental Security Income and Social Security will get a significant increase in 2022. Find out how much it will increase. 
  • Workforce Study: A study was done about the workforce displacement and re-entry during the pandemic among direct care workers and workers other jobs. Find out what the study revealed.
  • Technical Bulletins: The U.S. Access Board has released technical bulletins on accessibility to lavatories and sinks, washing machines and clothes dryers, and saunas and steam rooms. Read about what they specify
  • Workforce Safety: Due to the nature of the job, home care workers are at increased risk for experiencing workplace violence. Learn how the Occupational Safety and Health Administration is doing to try to prevent this. 
  • Federal Funding Increases Home Care Services: The Department of Health and Human Services unveiled a plan how to use funds to expand home-and-community-based services. Learn what they are planning to do. 
  • Public Comment Needed on Voting Access Recommendations: The National Institute on Standards and Technology is seeking public comment on recommendations for addressing voting access for people with disabilities. Public comment closes November 22.
  • Boost in Home-and-Community-Based Services: President Biden is moving forward with his push for the biggest increase to home-and-community-based services in 40 years. Learn what services this could improve.
  • Transportation Grant Opportunity: The U.S. Department of Transportation’s Federal Transit Administration (FTA) announced the availability of $3.5 million in Fiscal Year 2021 competitive grant funding for projects that improve access to vital services for older adults and people with disabilities, and in low-income communities. Proposals due December 6.
  • Family Caregiver Campaign: Due to the caregiver shortage across the country, family caregivers are overwhelmed and feeling the brunt of it. Find out what three policy changes advocates are  highlighting that would help family caregivers.
  • Assistive Technology Survey: WisTech is looking ahead to 2022 and would like your input on what training topics you are interested in.  The survey closes December 10.
  • Electronic Visit Verification Hard Launch Delayed: The Wisconsin Department of Health Services announced that they are delaying the hard launch of Electronic Visit Verification. Read more about the plan.  

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96Self-Determination Network News:

October 2021

Connect Share |Learn http://sdnetworkwi.org/ 

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Registration Closes Wednesday October 13th!

There's still time to register for this year's Self-Determination Conference. It will be held virtually October 18-20.You'll be able to learn from self-advocates who are living their best and most creative lives and get the latest information about how to self-direct your supports: inspiring employment, health solutions, housing options, financial opportunities, and so much more! See the Conference Brochure for details. Registration is FREE, but you have to register by this Wednesday. Register today!

After the conference, we'll have a discussion on the Network about it. Continue conversation and chat with others about what you learned during the conference. Watch for an email with instructions on how to join the discussion! 

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Tyler. This Special Olympian and Paralympian has real determination, and he has a great support circle who help him.  Stop by this month's Member Spotlight to get to know Tyler. 

Who should we shine the spotlight on next?

128 Stacy’s Journal








"We are accustomed to seeing people do things a certain way. When a person does a task or activity different, we are interested. It’s not wrong--it’s human nature to want to watch someone do something in a different way. "


In this month's journal entry, Stacy opens up about how sometimes she feels like a spectacle because she does things in a different way than most people do. Have you ever felt this way?







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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

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Take five minutes to check out what's happening on the Self-Determination Network:

  • Emergency Response Report: The US Government Accountability Office recently released a report about how the CMS response to COVID could help in future emergencies. Learn about what the suggestions are. 
  • Disability Activism: Often, people with disabilities don't have choice, but to advocate for what they need. Read about the whole notion of disability activism. 
  • Emerging Leader Award Nominations: The American Association of People with disabilities announced applications are available for the 2022 Paul G. Hearne Emerging Leader Award. Applications are due October 27. Find out more about this award and apply today! 
  • Feasibility of Wheelchairs on Aircrafts: The US Access Board recently studied the feasibility of wheelchair securement systems for passenger use in airplanes. Learn about what the study found. 
  • Call for Presenters: Proposals to present at the 2022 Circles of Life Conference are now being accepted. Proposals due October 20.
  • Recommendations for Family Caregiver Support: The RAISE Family Caregiving Advisory Council recently gave their initial report to Congress. Read about what the recommendations are.
  • Vaccine Mandates Cause Concern: President Biden mandated that nursing home workers get vaccinated or they risk losing funding. However, this doesn't apply to most home care workers. Find out why advocates aren't pushing for this. 
  • Staff Shortages Continue: The direct care worker has gone from a problem to a crisis. Read about what a recent study found. 
  • Booster Guidelines: Recently, the CDC approved booster vaccines for some people. Learn about who may qualify. 
  • New Vendor for Non-Emergency Medical Transportation: The Wisconsin Department of Health Services announced that beginning November 1, Medicaid members will be working with a new vendor for non-emergency medical transportation services. Read more about this change. 
  • The Future of Disability Advocacy and Politics: Recently, the Biden Administration has leveraged disability rights. This is a very interesting article about what this could mean for the future of advocacy and politics. 
  • The State of America's Direct Support Workforce: A new reveals just how much the pandemic has impacted the already depleted direct care workforce. Learn about what people think needs to happen. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96Self-Determination Network News:

September 2021

Connect Share |Learn http://sdnetworkwi.org/ 

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Don't Forget to Register!

Don't forget to register for this year's Self-Determination Conference. It will be held virtually October 18-20.You'll be able to learn from self-advocates who are living their best and most creative lives and get the latest information about how to self-direct your supports: inspiring employment, health solutions, housing options, financial opportunities, and so much more! See the Conference Brochure for details. If you register by September 30, you'll receive a great conference kit. Registration is FREE! Register today!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Jordan. This recent high school graduate has found his love for advocacy, and he encourages people to get involved in any type of advocacy. He explains it's a good way to connect with people.  Stop by this month's Member Spotlight to get to know Jordan. 

Who should we shine the spotlight on next?

128 Stacy’s Journal






"When I see people “take advantage” of specialized equipment or say something irrational, it does affect me. I have to remind myself that they probably don’t realize what they’re doing or saying may be offensive. While I don’t see these situations changing anytime soon, educating people is important. Please take advantage of the abilities you do have."




In this month's journal entry, Stacy shares how it irritates her when capable people take advantage of specialized equipment or say something irrational about somebody's disability. Do these things bother you?






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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Hopes for SSI Overhaul: For the first time in year, there could be big changes to Supplemental Security Income. Find out what this could mean for the program. 
  • Input Needed: The National Quality Forum (NQF) is seeking input on 14 quality measures for home- and community-based services (HCBS).  Comments can be submitted through September 17.
  • CMS Vaccination Guidelines: The Center for Medicare and Medicaid Services released guidelines for vaccination education,  access and reporting for the residents and staff of nursing facilities and intermediate care facilities for people with intellectual and development disabilities. Read about what the guidelines are. 
  • Take Survey: Each year, the Wisconsin Board for People with Developmental Disabilities (BPDD) does an annual survey for self-advocates and family members who have participated in a BPDD project. Help them out by taking the survey! 
  • New Resource: The Center for Disease Control and Prevention recently released a toolkit to help people with disabilities understand more about COVID. Check it out.
  • Watch: The Applied Self-Direction website recently released a great short video explaining what self-direction is.
  • Climate Resilience Efforts Pose Risks: People with disabilities often face more challenges with the effects of climate change. Read about how some advocates feel that people are new risks from mitigation efforts.  
  • Summer Internship Program: The Association of People with Disabilities is accepting applications for their Summer Internship Program. Applications are due October 20. Learn more and apply today! 
  • Workforce Shortage Still Widespread:  The home health care workforce has more than doubled in the past 10 years, but it'll need to do that and more to keep up with demand in the next decade. Learn what will be needed to keep up. 
  • Annual Direct Care Workforce Data: Check out the annual data on the Direct Care Workforce. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

August 2021

Connect Share |Learn http://sdnetworkwi.org/ 

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Registration Now Open!

The 2021 Self-Determination Conference will be October 18-20. With the health and safety of participants in mind and with the current raise in COVID cases and variants, it has been decided that a virtual conference is the best option for 2021. You’re in for a great virtual conference experience again this year! There will be lots of interactive and networking opportunities.  You'll receive a great conference kit and registration is FREE! Register today!

Calling Microbusiness Owners

There is a new way to exhibit at the Self-Determination Conference this year! The All Abilities Market is an online marketplace where microenterprises and artists can sell their products and/or services. You have the unique opportunity to join this marketplace and sell online, not only at the Self-Determination Conference but all year long! Applications are due September 1.

Exhibitor Applications Available 

Applications to be an exhibitor at the conference are now being accepted. Organizations that support self-determination and self-directed supports are encouraged to apply. Applications are due September 1.

Diehard Award Nominations

Do you know someone who goes above and beyond to improve community supports for individuals with disabilities?  Do they support self-determination?  Nominate them for a Diehard Award in one of the following two categories: Professional Advocate or Self-Advocate/Grassroots Advocate. Nominations are due September 1.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Sydney. This animal–loving self-advocate keeps busy by participating in various advocacy organizations , and she encourages others to get involved in some sort of advocacy. Stop by this month's Member Spotlight to get to know Sydney. 

Who should we shine the spotlight on next?

Voting Bills Update

Governor Evers recently vetoed bills that would have created new barriers and have impacted the voting rights of many people with disabilities. The Wisconsin Disability Vote Coalition released a new document that highlights stories of voters who these bills would have impacted. While these bills were paused for now, we encourage you to continue to reach out to your legislators and share how important it is to make voting accessible for everyone. 

People First Wisconsin is Hiring! 

People First Wisconsin is a statewide Self-Advocacy organization for people with disabilities. They help people speak up for themselves, share ideas, start local Self-Advocacy groups, and work together with advocates across Wisconsin on issues important to members to improve life for people with disabilities. Currently, they're accepting applications for a Office Manager and a Financial Manger. Learn more about these positions and find out how to apply by clicking here. Applications are being accepted until September 8.

128 Stacy’s Journal




"Sports have a funny way of pushing people to their limit, but also bringing people together. They make people realize what they are capable of and how far they can go. They also help us realize that humans are humans, and nobody is perfect."


In this month's journal entry, Stacy discusses the different types of Olympics and how they impact the world. What do you learn from watching the Olympics?




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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

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Take five minutes to check out what's happening on the Self-Determination Network:

  • SPARKS Grants: SPARKS grants are meant to give people with disabilities more social connections by participating in community activities, and they help provide inclusive programming that gives people more opportunities. Applications are due September 10.
  • Input Needed on "No Surprise Billing" Rule: Surprise billing can occur when someone receives care from a provider outside of their insurance carrier’s network. This often occurs in emergency situations, when people do not have control over where they are taken for medical care. A new rule would implement requirements set in the No Surprises Act to establish protections against surprise billing. The public comment period closes September 7.
  • The Importance of Web Accessibility: Most use the Internet on a daily basis. The opportunities that the Internet brings are endless. However, for people with visual impairments, these opportunities are significantly more limited.  Learn why website accessibility is becoming more and more important. 
  • COVID Added to Disability Qualification List: Recently, the US Department of Justice and the US Department of Health and Human Services released guidance that explains that explains when “long COVID” may be a disability under the ADA, Section 504 of the Rehabilitation Act, and Section 1557 of the Affordable Care Act. Learn about what this means. 
  • Fact Sheet: Late in July, we celebrated the 31st anniversary of the Americans with Disabilities Act (ADA). The Biden-Harris administration released a fact sheet about what they've done to ensure people with disabilities receive resources and are included in key administration proposals.  Check it out. 
  • Report on AVs: The U.S. Access Board has released a summary report on its four-part series of virtual meetings on making autonomous vehicles (AVs) accessible to passengers with disabilities. Learn what the report reveals.  
  • Transit Training Opportunities: The National Center for Mobility Management recently announced some training opportunities for transit systems. Find out more about these opportunities. 
  • Website Accessibility Website: Recently, a baseline for testing accessibility of web content was developed. The criteria sets a minimum for testing accessibility of websites.  Learn about what the criteria is. 
  • Accessible Tourist Attraction: A popular tourist attraction in Door County has recently become accessible to all visitors. Find out which attraction got renovated. 
  • Health Care Outreach Toolkit: The Aging and Disability Business Institute has developed a toolkit for community-based organizations to help conduct outreach to potential partners and craft effective messages. Learn what else is included in the kit. 
  • Tech Giant Launches Employment Program: Google recently announced it's starting a program to help hire more people with autism. Read more about how the program is setup. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: July 2021


By SD Network, 2021-07-14

96Self-Determination Network News:

July 2021

Connect Share |Learn http://sdnetworkwi.org/ 

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Registration Opens August 2nd!

The 2021 Self-Determination Conference will be October 18-20. As the COVID variants continue to be monitored, plans are being made to offer three options how people can safely participate in the conference. 

  1. At the Kalahari! If you have been fully vaccinated and are comfortable with large in-door gatherings, join us at the Kalahari.
  2. At one of the local Watch Parties around the state. If you have been fully vaccinated and are comfortable with smaller in-door gatherings, join others at a local watch party.
  3. Join Virtually. If you are not comfortable with coming in person or have not been fully vaccinated, we are offering a virtual option.

Calling Microbusiness Owners

Business owners who have disabilities are encouraged to apply to sell their products/services/art at the conference. People will also have the opportunity to sell online all year long. Applications are due September 1.

Exhibitor Applications Available 

Applications to be an exhibitor at the conference are now being accepted. Organizations that support self-determination and self-directed supports are encouraged to apply. Applications are due September 1.

Diehard Award Nominations

Do you know someone who goes above and beyond to improve community supports for individuals with disabilities?  Do they support self-determination?  Nominate them for a Diehard Award in one of the following two categories: Professional Advocate or Self-Advocate/Grassroots Advocate. Nominations are due September 1.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Kristi. This up-and-coming self-advocate has found her passion--disability advocacy. She has recently realized that her voice does matter and that she can make a difference in the world. Stop by this month's Member Spotlight to get to know Kristi. 

Who should we shine the spotlight on next?

128 Stacy’s Journal



"Most people don’t live life on the clock, but that’s what many people like myself are being forced to do."


In this month's entry, Stacy talks about how a new federal mandate has made life more difficult for people who are in long-term care programs. Has Electronic Visit Verification impacted your life?



  icon 2.jpg

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Impact of the Pandemic: It's widely known that people with developmental and intellectual disabilities are at much higher risk of getting COVID and dying from it. Learn about what a study found about how COVID has impacted quality of life for people with disabilities. 
  • Inclusion Employment Platform: The push for inclusion in the workplace has become more popular in recent years. Read about a professional and employment platform with a committed focus on flipping the conversation around.
  • Budget Helps but not Enough: The state budget for the next two years has more money for nursing homes, an pay increase for in-home caregivers, and additional help for people with Alzheimer's and dementia, but it leaves out funding for improvements in services for people with disabilities. Find out what advocates feel was missed. 
  • Become a Leader: Wisconsin Partners in Policymaking is a six‐session advocacy and systems change training program that develops future leaders across the state who are able to work with legislators and communities on policies and initiatives that will support the full participation and inclusion of people with developmental disabilities in all aspects of life. Applications for the next class are due October 1. Find out more and apply today! 
  • Prioritizing Inclusion in Film: Recently, a famous Hollywood studio committed to putting more people with disabilities on screen. Learn how one Hollywood studio is taking steps to increase inclusion of people with disabilities. 
  • Ipads for Loan: WisTech, Wisconsin's Assistive Technology Act Program, now has iPads available for short term loan for up to 30 days. Find out how the program works. 
  • Paralympics May Help Boost Inclusion: Many experts think that this summer's Paralympic Games are an opportunity for businesses to embrace an underrepresented segment of the workforce and help with the global coronavirus recovery. Read about why advocates feel the games will spotlight the need for inclusion. 
  • Public Comment on Statewide Transition Plan: The Wisconsin Department of Health Services opened a 30-day public comment period on its updated statewide transition plan to be submitted for final approval to the Centers for Medicare & Medicaid Service.  The public comment period closes July 26.
  • Great Resources: Throughout the COVID-19 pandemic, the federal government has provided a range of programs to support individuals, families, and communities. Check them out! 
  • Executive Order: Recently, President Biden signed an Executive Order to advance diversity, equity, inclusion, and accessibility (DEIA) in the Federal workforce. Learn what the order confirms. 
  • Boost to Disability Services: Although, President Biden's effort to get eliminate waiting lists for people with disabilities by getting more funds into Medicaid and home-and-community-based services has halted at the moment, it appears the plan may soon get new life. Find out why advocates think an increase in funding will be coming soon. 
  • Travel Website: The world is opening up again and that means people are beginning to travel. The International Transport Forum and the Federation Internationale de l' Automobile recently launched a new website that has information on facilities and options for people with disabilities traveling by car. Read about what kind of information the website provides. 
  • Rise in Employment: According to the June jobs report, there were big rises in employment for people with and without disabilities. Find out how much it increased. 
  • Celebrity Case Calls Attention to Questions on Guardianship: Recently, due to the attention from the Britney Spears case, debate over Guardianship has been highlighted. While legal oversight arrangements are needed as protection for some, many disability advocates question the need for them in many cases.  Learn about why many people feel guardianship is too widely used for people with disabilities. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

Self-Determination Network News: June 2021


By SD Network, 2021-06-16

96Self-Determination Network News:

June 2021

Connect Share |Learn http://sdnetworkwi.org/ 

Now is the Time to Speak Up! 

Wisconsin Assembly Representatives will be voting very soon on voting bills that may make it harder for many people with disabilities, older adults, and people of color to vote. The Wisconsin Disability Vote Coalition has put together this summary of how the bills would impact people. If you are concerned about the bills, now is the time to call/email your Assembly Representative to share how these bills could impact you or a loved one.

Call or email your Assembly Representative about your concerns. You can find your Assembly Representative’s contact info by calling the Legislative Hotline at 1-800-362-9472 or click “Who Are My Legislators?” on the Wisconsin State Legislature Home Page.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Renee. This self-proclaimed “Benefits Nerd”  loves helping people with disabilities navigate their benefits and making them realize that they can work. Stop by this month's Member Spotlight to get to know Renee. 

Who should we shine the spotlight on next?

128 Stacy’s Journal

"How do you know when enough is enough? That’s a good question. I’m still trying to figure that out. Personally, I’m learning that I have to let my body be my guide. If I start feeling too much stress (of any kind), my muscles will let me know. People need to listen to their body."
In this month's journal entry, Stacy talks about how she has had to make some tough decisions to slow down recently. Have you experienced something similar?

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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Funding Opportunity for a Self-Advocacy and Technical Assistance Center: ACL's Administration on Disabilities (AoD) is seeking to fund one cooperative agreement  for a Self-Advocacy Resource and Technical Assistance Center. Applications due July 26th. 
  • Continued Need for Accessible Diagnostic Medical Equipment: People with disabilities often have more medical problems than the average person, people continue to have problems physically accessing diagnostic equipment. Learn about what a recent report revealed. 
  • Report Shows the Continued Caregiver Crisis is Taking a Toll: The Survival Coalition, which InControl Wisconsin is part of, continues to hear about how the caregiver crisis is having an impact on many lives of people with disabilities. Learn about what the showed. 
  • Bills Would Help with Police Interactions: In recent years, there have been many problems with police interactions with people with disabilities. Read about two bills that would help with this.
  • Launch of a Hotline for COVID Vaccine Information: The US Health and Human Services recently announced the launch of a hotline that will provide information about the vaccine to people with disabilities. Learn about this new hotline. 
  • Listen now: People with disabilities have felt the impact of emergency situations more than the general population. To try to solve these inequalities in the COVID response, disability and preparedness specialists were placed in health agencies around the country to promote inclusivity of people with disabilities. Listen to this podcast about what they have worked on. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: May 2021


By SD Network, 2021-05-25

96Self-Determination Network News:

May 2021

Connect Share |Learn http://sdnetworkwi.org/ 

New Bills Could Make it Harder for People with Disabilities to Vote

Wisconsin legislators have introduced bills that will make it harder for many people to vote. The Wisconsin Disability Vote Coalition has put together a summary of these bills and how it would impact people. We encourage you to look at this and, if you have concerns about the bills, to contact your legislators. 

Stay Up-to-Date about Long-Term Care Advocacy 

InControl Wisconsin is sending a letter to the Joint Finance Committee of the state legislature asking the Committee to ensure that if additional funding is added to the budget for Long-Term Care in general or for the workforce crisis, then IRIS should get its fair share. Family Care and nursing homes both received increases in the last two state budgets, but IRIS did not. 

The Wisconsin Long-Term Care Workforce Alliance does frequent videos about what's happening with the workforce advocacy. Check out this website for updates on what's happening with the workforce crisis. There are videos on how to talk to legislators about your experiences and concerns. Let your voice be heard! 

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Felicia. This self-advocate has been proving doctors wrong since she was born. Stop by this month's Member Spotlight to get to know Felicia. 

Who should we shine the spotlight on next?

128 Stacy’s Journal

"Mental Health is part of our overall well-being. Sometimes, life can be hard and unfair. We all have feelings of sadness and frustration sometimes. What’s important is how we deal with it."


In this month's journal entry, Stacy opens up about her recent health issues and how she deals with these issues. What are some ways you deal with frustration and sadness?

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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • No Oscar, but Nomination a Win for the Disability Community: The popular documentary, "Crip Camp," didn't win an Oscar, but many people with disabilities feel the nomination alone was a win. Learn why this is. 
  • Inclusive Deodorant: Most people were never think of a stick of deodorant as being an obstacle, but for people with visual impairments or limb motor challenges, putting on deodorant is a difficult task. Read about a how one company designed an inclusive deodorant container. 
  • Initiative to Hire People with Disabilities: A large technology recently announced a big initiative to hire people with disabilities.  Find out what the company plans to do. 
  • Wisconsin Lawmaker Asked for Accommodations: A Wisconsin lawmaker is asking the Assembly to allow him to participate in floor sessions remotely. Read about the ongoing situation.  
  • American Rescue Plan to Help Medicaid Services: The American Rescue Plan has over $12 billion for states to expand Medicaid home-and-community-based programs for people with disabilities. Find out what the plan entails.  
  • Emergency Broadband Benefit Program: The Emergency Broadband Benefit is a Federal Communication Commission program to help families and households struggling to afford internet service during the COVID-19 pandemic. Learn more about this program and find out how to apply. 
  • Vaccine Survey Findings: Two research studies have been done on vaccine statistics for people with disabilities. Read about what the studies found. 
  • Seeking Applicants for Emergency Preparedness Committees: The Office of Emergency Preparedness and Response is seeking applicants for two new committees to provide recommendations on enhancing public health preparedness, response, and recovery for people with disabilities. Applications are due June 12th. 
  • Family Caregiver Report: A new report summarizing listening sessions about the struggles and needs of family caregivers was recently released. Learn what the sessions revealed.
  • Spending Flexibility: States have lots of flexibility on what they can use the extra $12.67 billion for Medicaid home-and-community-based services on. Learn what states are using the money for. 
  • New Vaccine Guidelines for Facilities: Government officials have released new guidelines for the COVID vaccine at facilities serving people with disabilities. Find out what they say. 







128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96Self-Determination Network News:

April 2021

Connect Share |Learn http://sdnetworkwi.org/ 

  icon 2.jpg

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Volunteer Research Participants Wanted: Allison is looking for volunteers to help her in a research study about social isolation for people with disabilities. She is in search of community development practitioners/connecters/consultants/organizers or similar roles with communities who have experience working with people with disabilities. Learn more and contact her today! 
  • Executive Order Increases Voting Access: Recently, President Biden signed an executive order that will increase voting access. Find out what the order includes. 
  • Doctors Bias: A recent study found that many doctors have a bias against people with disabilities. Read about what exactly the study revealed. 
  • Vaccine Access: The Kaiser Family Foundation released a detailed report on COVID-19 and the disability community. Look at some of the interesting statistics and maps.
  • Take a Survey: The Collaborative on Health Reform and Independent Living is doing a survey about health insurance, health care access, and the pandemic for people with disabilities. The survey is open until April 30th. 
  • Home Modifications Grant Program: HUD’s Office of Lead Hazard Control and Healthy Homes has announced $30 million in grant funds and training resources to non-federal entities to establish the Older Adults Home Modification Grant Program. The grant program will assist experienced nonprofits, state and local governments, and public housing authorities in programs that make home modifications and limited repairs to meet the needs of low-income older adult homeowners. Applications due May 4th. 
  • Stimulus Checks: Many people with have received stimulus checks. Read about how some people are putting their money in an ABLE account. 
  • Waitlist Eliminated: At the end of February, Wisconsin achieved something highly anticipated for people with disabilities. Read about how the waitlist for long-term care services was eliminated for adults. 
  • Stimulus Bill Sends Funds to the Disability Community: Recently, President Biden signed a big pandemic relief bill that will send billions of dollars to special education and home-and-community-based services.  Learn details about how this will help people. 
  • Emergency Broadband Benefit Program: The Federal Communications Commission (FCC) has launched an Emergency Broadband Benefit Program to help households struggling to pay for internet service during the pandemic. Find out who is eligible. 
  • Vaccine Rollout Confusion: Vaccine rollout in Wisconsin is going study, but there has been a lot of confusion about who is eligible when. Read about how people were getting mixed messages. 
  • Self-Direction and COVID Study: Researchers at Brandeis University are conducting a study on the experiences of people with disabilities who self-direct Medicaid-funded HCBS during the pandemic.  Find out how to participate. 
  • Feedback Wanted on Employment Policies and Programs: The U.S. Department of Labor is seeking input on ideas for ensuring equity in employment policies and programs for people with disabilities from historically underserved communities.  Comments due April 26th. 
  • Feasibility of Internet Emergency Alerts: The Federal Communications Commission (FCC) recently proposed rules to improve the way the public receives emergency alerts on their mobile phones, televisions, and radios. They are seeking comments on these proposed rules. Comments are due June 14th. 
  • Lifespan Respite Care Program Grant Opportunities: The Administration for Community Living has opened up two grant opportunities for the Lifespan Respite Care Programs. Find out more about these! 
  • Bringing The Long-Term Care Reform Debate to the Forefront: President Biden has announced that he plans to expand Medicaid's Home-and-Community-Based Services for people who receive long-term care and supports. Read about how this has already achieved one major goal. 
  • COVID-19 Guidance for Day Centers: The Centers for Disease Control and Prevention is offering up new guidance for day centers and the people with disabilities they’re serving during the ongoing COVID-19 pandemic. Learn what this suggests. 
  • Accessible Airbnb Experiences: Airbnb is introducing a new slate of offerings specifically aimed at people with disabilities. Find out how they are catering to people with different abilities. 
  • Respite Program Survey: Do you know of a respite program that uses students as respite providers? Help create a toolkit for other respite programs by taking this survey. It closes June 1st. 

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Cynthia. Working to support people with disabilities for over four decades, she has seen many positive changes in the community. Stop by this month's Member Spotlight to get to know Cynthia. 

Who should we shine the spotlight on next?

128 Stacy’s Journal








"Will there ever be a day when the pronoun “them” will be just associated with a group of friends and that’s the only meaning? Unfortunately, I don’t see that day coming anytime soon. It’d be a very boring world if everyone was exact same. "


In this month's journal entry, Stacy shares some of her thoughts and feelings about being discriminated against as a person with a disability. Do you have similar thoughts?








128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96Self-Determination Network News:

March 2021

Connect Share |Learn http://sdnetworkwi.org/ 

Don't Forget to Register for Disability Advocacy Day of Action

Don't forget to register for Disability Day of Action that's on March 23rd. It's a virtual event focused on connecting Disability Advocates with their legislators to talk about issues that matter to them. Attendees are expected to participate in the morning briefing and call their legislators in the afternoon. Registration closes soon.  Learn more and register today

2021 sdc.png

2021 Self-Determination Conference Call for Proposals 

Are you interested in presenting at the 2021 Self-Determination Conference?  The Wisconsin Board for People with Developmental Disabilities is seeking session proposals for Tuesday, October 19th & Wednesday, October 20th, 2021. This year’s theme: Growing Stronger Together will help people with disabilities lead more Self-Determined lives by recognizing the valued role communities play in our lives! Presentations should include at least one self-advocate and must be able to be done both in-person and on video. Proposals are due April 2nd.  Learn more and apply today!  

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Opportunity to get Involved!

Are you a Self-Advocate?

Would you like an opportunity to speak up for yourself?

Do you want to be a part of the Self-Determination YouTube Channel?

Join the hosts of the Self-Determination Channel for a Zoom Drop In video recording session. We have questions- you have answers!

We will record your answers about how you live a Self-Determined life and what is important to you. This is your chance to make your voice heard.

Mark your calendar for Thursday, March 25th at 4p.m. You can drop in any time from 4:00 – 5:30 p.m.

We look forward to seeing you and hearing what you have to say! 

Contact Fil Clissa at fil.clissa@wisconsin.gov for the  link to participate.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on new InControl Wisconsin board member, Julie! As one of the founders of the Save IRIS movement, she’s a huge advocate for self-direction. She encourages everyone to remember the word “self” in self-direction and to get involved in some sort of advocacy. Stop by this month's Member Spotlight to get to know Julie. 

Who should we shine the spotlight on next?

128 Stacy’s Journal







"Most people aren’t comfortable with being called out for doing something good. Often, people appreciate acknowledgement and praise, but we are uncomfortable with it. For people with disabilities or health conditions, many times, offering to meet a celebrity or being praised for something can be a unique experience."


In this month's journal entry, Stacy talks about being recognized and receiving praise as someone with a disability. Do you have similar feelings?







196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Where Healthcare is Headed: As health systems continue to test approaches to better health care quality, the delivery of person-centered care is key for health care system transformation. Learn what researchers found in a recent study. 
  • Report Shows Improvement in Voter Accessibility: According to a new report, people with disabilities had far fewer problems with voting accessibility in 2020 than in 2012. Find out how things improved. 
  • Research Funding Opportunity for Blindness and Low Vision: The Administration for Community Living has opened up a funding opportunity to conduct research and development activities that will promote independence and community living for those with low vision and blindness. Applications due April 19th. 
  • Public Comment on Heightened Scrutiny: The Wisconsin Department of Health Services is opening a 30-day public comment period on its findings about home and community-based service long-term care settings that were identified for heightened scrutiny review. Review is needed to determine if these settings are truly home and community based and not institutional.  Public comment open until March 24th. 
  • Self-driving Vehicles Online Forum: Self-driving or “autonomous” vehicles stand to revolutionize transportation in the U.S. and around the world. Here's an opportunity to join an online forum discussing inclusive design for autonomous vehicles. 
  • Vaccine Frustration: While Wisconsin has made progress in the vaccine rollout, disability advocates say some of the most vulnerable  people still face multiple challenges accessing it. Read about some of the obstacles people with disabilities are facing. 
  • Self-advocate Class: The ARC of Wisconsin is leading a class for self-advocates. Registration closes April 1st. Learn more and register today! 
  • Your Input is Needed: The Center on Aging and Trauma of The Jewish Federations of North America’s Holocaust Survivor Initiative, invites organizations to participate in a national survey on Person-Centered, Trauma-Informed Care. Survey closes March 22nd. 
  • Vaccine Prioritization: With vaccines beginning to be more available, disability advocates want the Center for Disease Control and Prevention to update its prioritization plan to include the high-risk disability community. Read about why advocates want this.
  • Funding Opportunities for Technology Research and Activities: The Administration for Community Living has two new funding opportunities for research and activities for technology interventions to encourage community living outcomes for people with disabilities. Applications due April 26th. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

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