SD Network

Category: Network News

Self-Determination Network News: June 2024


By SD Network, 2024-06-20


96

Self-Determination Network News:

June 2024

Connect Share |Learn http://sdnetworkwi.org

Registration for the 2024 Self-Determination Conference Opens in July

The 2024 Self-Determination Conference will be held October 21st-23rd at the Kalahari Resort in Wisconsin Dells. It's one of Wisconsin’s biggest (and most amazing) event for people with disabilities and the people who support them. Last year, over 800 people attended the conference! This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined live. Registration will open in July. We'll be sending out a message when registration is available. Stay tuned for details! 

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InControl Wisconsin's Caring Across Cultures Project

InControl Wisconsin, with a grant from the Department of Health Services, is developing Caring Across Cultures (CAC), a web-based learning experience for older adults and people with disabilities who employ direct care workers, and for direct care workers.

 

The CAC courses focus on how individual differences, like race, ethnicity, language, family history, and other factors can make it more difficult to develop good working relationships. The Caring Across Cultures courses provide information and activities that will help employers and their workers understand their differences and develop better relationships with each other.

 

The CAC will be available to any employer and direct care worker on the web in September, 2024. Now, the CAC team is looking for people to test the learning modules and provide feedback. They are especially interested in individuals with disabilities, family members, and direct care workers. The testing can be done from your home, via a video call. It will take no more than 60 minutes. If you, or someone you know, is interested, please contact Dave Verban at dverban@inccontrolwisconsin.com.

Join an Upcoming Lunch & Learn Webinar about Voting 

Constitutional amendments will be on the ballot again in August. Changing our constitution is  big deal. Join the Wisconsin Disability Vote Coalition's Lunch & Learn on Tuesday June 25th from 12p.m. to 12:45p.m. to learn what they’re about. We  will also talk about how the new maps may impact you, what else is on the ballot, and how you can be prepared. Register for the webinar here.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on the vice president of InControl Wisconsin, Julie. This fierce advocate for people with disabilities full-heartedly believes in the true meaning of self-direction and continues to push for change.  Check out this month's Member Spotlight to get to know Julie.   

Who should we shine the spotlight on next?

128 Stacy’s Journal






"Whether we admit it or not, every single person in the world likely has a superhero that they look up to. People with disabilities are no different. Our superheroes may be different than the normal celebrities people commonly think of, but that’s because we often have a different perspective on life."

In this month's journal entry, Stacy opens up about a special superhero in her life and how she continues to look this person for inspiration. Do you have someone like that in your life?






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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).



196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Caregiving Front and Center in the Election: With the election a few short months away, caregivers of all types are seeking better health care options. According to one report,  home health care and child day care are both in the top 10 industries with the largest number of working Medicaid enrollees. Learn why Medicaid expansion would greatly help.
  • Accessible Workplaces: Every year, Global Accessibility Awareness Day brings awareness to the need for digital access and inclusion in the workplace. Read about else should be considered when creating an accessible workplace.
  • Adaptive Clothing Startup: When people pick out what clothes they're going to wear, most take things like the weather, plans for the day, and their mood in to consideration. However, not many people think about how many buttons something has or how hard the zipper is on a certain piece of clothing. For people who have dexterity limitations or physical limitations, things like that really matter. Find out about an adaptive clothing startup in Madison that seeks to resolve those types of problems for people with disabilities.
  • Changes to SSI: The Social Security Administration is making several changes to the Supplemental Security Income program, which will take effect in September. Read about the changes coming.
  • WisCaregiver Connections: WisCaregiver Careers offers a free training for certified direct care professionals and certified nursing assistants. One component of the program is the WisCaregiver Connections online workforce platform that gives hiring providers access to certified workers.  Learn more about  the program.
  • New Accessibility Features: Apple announced a range of new capabilities aimed at making life easier for people with disabilities including an option to control a phone or tablet using only a person’s eyes. Find out what other features are going to be available.
  • Solutions to the Direct Care Workforce Crisis: Experts discussed solutions to improve jobs for the nation’s direct care workers at the National Skills Coalition’s 2024 Skills Summit. Read about some of the ideas that were thought of.
  • Push for Better Healthcare for Co-occurring Conditions: National developmental disability advocacy groups are linking multimillion-dollar partnerships with some big players in health care in a push to better address co-occurring conditions.  Learn about what groups are hoping to do.
  • EVV Hard Launch Date: A date for the hard launch of electronic visit verification  (EVV) for home health care services and personal care nurse supervisory visits has been set. Find out when it is.
  • Rebuilding Trust in Healthcare: According to a recent poll, the majority of people with disabilities have negative health care experience. Read about why many advocates feel that it's time for government to step in.
  • The Pink Umbrella Theater Company: The Pink Umbrella Theater Company was founded in 2018 as Milwaukee’s first theater for artists with a wide range of disabilities. Find out more about this unique company.
  • Partners in Policymaking: Partners in Policymaking is an advocacy and systems change training program that develops leaders who are able to work with legislators and communities on policies and initiatives that will support the full inclusion and participation of people with disabilities in all aspects of life. Applications are due on October 4th.
  • SPARKs Grants: Do you have an idea to make your community a better place for people with disabilities? Organize your grassroots group and apply for funding to help make it happen! Find out more about SPARKs grants and apply today!
  • Funding for Transportation: The U.S. Department of Transportation’s Federal Transit Administration announced $7.8 million for 17 projects that will improve public transportation for people with disabilities, older adults, and low-income individuals. Learn about what these grants will support.
  •  Input Needed on the Family Care Waiver: Last year, the Wisconsin Department of Health Services asked members, family, friends, caregivers, providers, managed care organizations, tribal leaders, advocates, and other partners how they can improve Family Care and Family Care Partnership. They used that input to draft changes to the program waivers. Now, they want your input on the draft waiver renewal application. Comments due on July 5th.
  • National Strategy to Support Family Caregivers: The Administration for Community Living announced availability of $2 million to support the National Strategy to Support Family Caregivers. The applications are due August 6th.
  • Researchers Creating a Robotic Arm: Researchers at UW-Milwaukee are creating a robotic arm accessory to increase mobility for people with disabilities. Read about how this arm was created..
  • New Guidance: The nation’s pediatricians are getting new guidance on how to help teenagers with intellectual and developmental disabilities and their families navigate the transition to adulthood. Learn what's included in the guidance.

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: May 2024


By SD Network, 2024-05-14


96

Self-Determination Network News:

May 2024

Connect Share |Learn http://sdnetworkwi.org

Registration for the 2024 Self-Determination Conference Opens in July

The 2024 Self-Determination Conference will be held October 21st-23rd at the Kalahari Resort in Wisconsin Dells. It's one of Wisconsin’s biggest (and most amazing) event for people with disabilities and the people who support them. Last year, over 800 people attended the conference! This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined live. Registration will open in July. Stay tuned for details!

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Please Help InControl Wisconsin's Caring Across Cultures Project

Are you someone who hires direct care workers?  Are you a family member of someone who receives support from a direct care worker?  Are you a direct care worker?  If so, InControl Wisconsin would like you to share a short video, audio clip, or written story of your personal experiences to help others understand the relationships between direct care workers and the people who hire them.  We will give you questions to answer, to make it easier for you.

Your stories will be used in online learning courses and/or other resources hosted on InControl Wisconsin’s website as part of the Caring Across Cultures learning platform. (See this link for more details about the project.)

Why are we asking for your help? Caring Across Cultures is a project with a goal of helping direct care workers and the people who hire them to build strong relationships. We want to help them connect and build trust across cultural differences.

What better way for someone who is thinking about hiring direct care workers to hear directly from people who are already doing it? The same is true for someone thinking about becoming a direct care worker. There’s nothing like hearing from someone first hand about what it’s like.

You can record a video or audio clip yourself with your phone (or other device) or you can ask us for help.

Here is a document to help you record your own video or audio.  This document will also tell you how to send us your finished recording: CLICK HERE

Need some help?

  • You can work on this at home. If you need some help, Contact Sarah Godfrey, at sarah@promotelocal.com / (262) 349-1968, and she will schedule a phone or video call with you.

  • Are you coming to Circles of Life on May 16h in Stevens Point?  How about Employment First in Wisconsin Dells on May 21st? We will have recording equipment on site at both conferences.

Ready to Do This?

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Emily. This active young woman loves being busy. Whether it’s she’s rock climbing, water skiing, snow skiing, traveling, or volunteering at her church, she can’t sit still. Check out this month's Member Spotlight to get to know Emily.   

Who should we shine the spotlight on next?

128 Stacy’s Journal






"Society has really transformed its norms over the last 30 years and that’s a great thing. The world has become more inclusive for everyone. Norms are always transforming, and, yet, they’re meant to be broken. It’d be a very boring world if everyone abided by the norms of society."

In this month's journal entry, Stacy talks about how she goes against the norm on various things. What things do you find yourself going against the norm on?






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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).



196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Take a Survey: The American Institutes of Research is looking for people with disabilities to take a survey about the ways you find and use information in your daily lives. Check it out!
  • Roadblock for Proposed Funding Boost for In-Home Care: A $258 million plan to improve the pay for thousands of home health care providers in Wisconsin was halted after lawmakers on the Legislature’s powerful budget committee blocked it. Learn the impact of this.
  • Research Funding for Mobile App Opportunity: A new funding opportunity is available for programming to plan and conduct research, demonstration projects, trainings, and related activities to develop methods, procedures, and rehabilitation technology that maximize the full inclusion and integration of people with disabilities. Applications due June 7th.
  • Lawsuit Seeks Electronic Ballot Option: Disability Rights Wisconsin, the League of Women Voters of Wisconsin, along with four voters with disabilities filed a lawsuit against the Wisconsin Elections Commission. The lawsuits seeks to allow voters with disabilities to cast their ballot electronically.  Learn more about what they are asking for.
  • 2024 Election Toolkit: The Wisconsin Disability Vote Coalition has released a toolkit which includes videos, posts, and graphics to get people ready to vote in elections this year. Check it out!
  • New Guidance on Voting Rights for People with Disabilities: The US Department of Justice issued an updated guide of The Americans with Disabilities Act and Other Federal Laws Protecting the Rights of Voters with Disabilities. Look at what's new.
  • ABLE Accounts: Recently, Governor Evers signed a bill ordering the state’s Department of Financial Institutions to set up an ABLE program for residents or join one of the existing multi-state consortiums. Read about how these accounts help people with disabilities.
  • Manufacturing Company: A manufacturing company in  West Allis has made a deliberate point to provide people who have autism meaningful employment opportunities. Find out more about this company.
  • Caregiver Champion Collaborative: The National Caregiver Champion Collaborative will facilitate peer networking and engagement among professionals who lead caregiver services and supports. Learn more about this program.
  • Best Airlines: U.S. airlines got a little bit better with mobility devices in 2023. Find out what the 10 best airlines for handling mobility devices are.
  • Talented Artist: An artist in Madison creates coloring books that have universal quotes. Read more about this talented artist.
  • Voting Grant Opportunity for Schools: The Wisconsin Disability Vote Coalition is looking for schools to partner with to help students with disabilities understand their voting rights and responsibilities. Learn about this opportunity.
  • Discrimination Rule Finalized: The U.S. Department of Health and Human Services finalized a rule that prohibits discrimination on the basis of disability. Find out more about what this rule means.
  • Workforce Brief: The US Department of Health and Human Services along with the Department of Labor released a brief summarizing a workgroup’s recommendations to federal and state agencies, non-profit organizations, and research institutions to improve data infrastructure and information on the HCBS workforce. Learn about the recommendations.

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

April 2024

Connect Share |Learn http://sdnetworkwi.org

2024 Self-Determination Conference Call for Presenters

Are you interested in presenting at the 2024 Self-Determination Conference?  Session proposals for are now being accepted for Tuesday, October 22nd and Wednesday, October 23rd, 2024. This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined life. Proposals due by on May 10th. Submit an application today!

Untitled.png

Please Help InControl Wisconsin's Caring Across Cultures Project

Are you someone who hires direct care workers?  Are you a family member of someone who receives support from a direct care worker?  Are you a direct care worker?  If so, InControl Wisconsin would like you to share a short video, audio clip, or written story of your personal experiences to help others understand the relationships between direct care workers and the people who hire them.  We will give you questions to answer, to make it easier for you.

Your stories will be used in online learning courses and/or other resources hosted on InControl Wisconsin’s website as part of the Caring Across Cultures learning platform. (See this link for more details about the project.)

Why are we asking for your help? Caring Across Cultures is a project with a goal of helping direct care workers and the people who hire them to build strong relationships. We want to help them connect and build trust across cultural differences.

What better way for someone who is thinking about hiring direct care workers to hear directly from people who are already doing it? The same is true for someone thinking about becoming a direct care worker. There’s nothing like hearing from someone first hand about what it’s like.

You can record a video or audio clip yourself with your phone (or other device) or you can ask us for help.

Here is a document to help you record your own video or audio.  This document will also tell you how to send us your finished recording: CLICK HERE

Need some help?

  • You can work on this at home. If you need some help, Contact Sarah Godfrey, at sarah@promotelocal.com / (262) 349-1968, and she will schedule a phone or video call with you.

  • Are you coming to Circles of Life on May 16h in Stevens Point?  How about Employment First in Wisconsin Dells on May 21st? We will have recording equipment on site at both conferences.

Ready to Do This?

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Rosie. This Diehard Award winning very determined survivor and author travels around the world sharing her story of hope and perseverance. Her story has helped medical professionals, researchers, and advocates create needed changes to practices in medical facilities. Check out this month's Member Spotlight to get to know Rosie.   

Who should we shine the spotlight on next?

128 Stacy’s Journal





"Regardless of what it is, being in an emergency situation is scary for everyone. For people with disabilities or health impairments, there is often another layer of fear is added. Many times, unforeseen physical barriers are presented in crisis situations, and people with mobility limitations are faced with additional challenges."

In this month's journal entry, Stacy talks about how having physical barriers in emergency situations adds additional stress and anxiety for people who have mobility limitations. Have you or someone you know ever experienced this?






icon 2.jpg

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).




196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Investment in Disability Services: President Biden is pushing to improve support for people with disabilities living in the community. Learn about what's being done to strengthen services.
  • Funding Opportunity for Technology for Deaf and Hard of Hearing: The Administration of Community Living announced a new grant opportunity for research, development, and evaluation activities toward understanding and optimizing technologies and services used by people who are deaf and hard of hearing. Proposals are due May 6th.
  • FOCUS Conference Call for Proposals: The Wisconsin Department of Health Services is now accepting proposals to present at the 2024 FOCUS Conference. Proposals due on May 1st.
  • Flying with Dignity: The U.S. Department of Transportation is seeking public comments on a new proposed rule designed to ensure airline passengers who use wheelchairs can travel safely and with dignity.  Public comment due by May 13th.
  • Disability Advocacy Day: Hundreds of disability advocates gathered in Madison for Disability Advocacy Day in mid March. Find out what advocates talked with legislators about.
  • New Employment Resource: The US Department of Labor recently released a new resource in hopes of increasing integrated employment opportunities for people who have disabilities. Learn how the Competitive Integrated Employment Transformation Hub will help people with disabilities, their families, employment service providers, and state agencies.
  • Advocates Continue to Push for More Accessible Voting: Voters with disabilities continue to advocate for better voting accessibility.  Read about some of the challenges voters continue to face.
  • New Cafe: A new cafe in Racine is giving people with a chance to show off their skills and learn new ones. Find out more about this unique cafe.
  • Disability Issues Should be a Priority: Over 38 million people with disabilities voted in the 2020 election, so many people feel that key disability issues should be a priority in the upcoming election. Learn about what issues people think should be priorities.
  • Partners in Business Request for Proposals: The Wisconsin Board for People with Developmental Disabilities wants to partner with high schools to improve their employer engagement practices and employment outcomes for young adults with disabilities. Grant funds and technical assistance are available. Applications are due May 17th. They are also interested in partnering with businesses that want to hire and support individuals with intellectual disabilities. Applications for those grants are due May 31st.
  • Flat Funding in Federal Budget: A $1.2 trillion deal for to fund the federal government includes more money for special education and disability employment, but doesn't include money for other disability programs.  Read about why disability advocates feel like many programs that people rely on were essentially cut from the federal budget. 

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

March 2024

Connect Share |Learn http://sdnetworkwi.org

2024 Self-Determination Conference Call for Presenters

Are you interested in presenting at the 2024 Self-Determination Conference?  Session proposals for are now being accepted for Tuesday, October 22nd and Wednesday, October 23rd, 2024. This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined life. Proposals due by on May 10th. Submit an application today!

Make a Plan for the Next Election 

April 2nd is an important statewide election. Join the Wisconsin Disability Vote Coalition on Thursday March 14th from 12p.m. to 12:45p.m. for a Lunch and Learn webinar that will help you prepare by discussing what you may find on your ballot, how to find non-partisan candidate information, how to get involved in this election year, and more. You will also get the most up-to-date information about this year’s elections. Register here.

Disability Advocacy Day is March 20th 

We're looking forward to seeing many of you in Madison on March 20th for Disability Advocacy Day, but we understand that some people can't make it. For those who can't come, we want to encourage you to call or email your legislators. You can share your story and tell them what you'd like to see done. You can still let your voice be heard even if you are not able to attend!

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Please Help InControl Wisconsin's Caring Across Cultures Project

Are you someone who hires direct care workers?  Are you a family member of someone who receives support from a direct care worker?  Are you a direct care worker?  If so, InControl Wisconsin would like you to share a short video, audio clip, or written story of your personal experiences to help others understand the relationships between direct care workers and the people who hire them.  We will give you questions to answer, to make it easier for you.

Your stories will be used in online learning courses and/or other resources hosted on InControl Wisconsin’s website as part of the Caring Across Cultures learning platform. (See this link for more details about the project.)

Why are we asking for your help? Caring Across Cultures is a project with a goal of helping direct care workers and the people who hire them to build strong relationships. We want to help them connect and build trust across cultural differences.

What better way for someone who is thinking about hiring direct care workers to hear directly from people who are already doing it? The same is true for someone thinking about becoming a direct care worker. There’s nothing like hearing from someone first hand about what it’s like.

You can record a video or audio clip yourself with your phone (or other device) or you can ask us for help.

Here is a document to help you record your own video or audio.  This document will also tell you how to send us your finished recording: CLICK HERE

Need some help?

  • You can work on this at home. If you need some help, Contact Sarah Godfrey, at sarah@promotelocal.com / (262) 349-1968, and she will schedule a phone or video call with you.

  • Are you coming to Disability Advocacy Day, State Capital in Madison, March 20th?  We will have recording equipment on site.

Ready to Do This?

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Lindsey. This talented author, illustrator, artist, and motivational speaker has proven many people wrong. Check out this month's Member Spotlight to get to know Lindsey.   

Who should we shine the spotlight on next?

128 Stacy’s Journal

"There is no such thing as a right level of caution. It’s an individual choice."

In this month's journal entry, Stacy talks about how people have different levels of caution. She explains why she has to be a very cautious person.




Are you a cautious person or do you like to be more risky?





icon 2.jpg

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).




196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Prioritizing Accessibility and Inclusion: According to the World Economic Forum, of the 90% of companies that claim to make diversity a priority, only 4% are inclusive of people with disabilities. Learn what steps companies can take to improve efforts by focusing on communications and events.
  • Technology Grant Opportunity: The National Institute on Disability, Independent Living, and Rehabilitation Research announced a new grant opportunity on information and communication technologies access. Applications due April 15th. Learn more about this opportunity.
  • Fall Internship Program: The American Association of People with Disabilities is offering a paid internship to students and recent graduates with disabilities. The internship will help interns build leadership skills, explore career opportunities, and connect with the disability community.. Applications due March 13th.  Find out more and apply today!
  • Volunteers Needed: Volunteers are needed for a research study on people who have sustained spinal cord injuries. Read more about this study.
  • Initiatives for the Direct Care Workforce: The US Department of Health and Human Services recently announced several initiatives and resources to help with the dire need for caregivers. Read about the initiatives.
  • Employment Record: The number of people with disabilities who are employed has reached a record high. Find out how much it jumped.
  • Public Comment Wanted: The Federal Emergency Management Agency published an interim final rule that seeks to simplify processes, remove barriers to entry, and increase eligibility for certain types of assistance under their Individual Assistance program. Public comment is open until July 22nd.
  • Proposed Rule would Ensure Airline Dignity for Passengers: Recently, the US Transportation Secretary announced a new proposed rule that would ensure that airline passengers who use wheelchairs can travel safely with dignity. Find out about the standards airlines would need to follow to accommodate people. 

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

February 2024

Connect Share |Learn http://sdnetworkwi.org

Untitled.png

Please Help InControl Wisconsin's Caring Across Cultures Project

Are you someone who hires direct care workers?  Are you a family member of someone who receives support from a direct care worker?  Are you a direct care worker?  If so, InControl Wisconsin would like you to share a short video, audio clip, or written story of your personal experiences to help others understand the relationships between direct care workers and the people who hire them.  We will give you questions to answer, to make it easier for you.

Your stories will be used in online learning courses and/or other resources hosted on InControl Wisconsin’s website as part of the Caring Across Cultures learning platform. (See this link for more details about the project.)

Why are we asking for your help? Caring Across Cultures is a project with a goal of helping direct care workers and the people who hire them to build strong relationships. We want to help them connect and build trust across cultural differences.

What better way for someone who is thinking about hiring direct care workers to hear directly from people who are already doing it? The same is true for someone thinking about becoming a direct care worker. There’s nothing like hearing from someone first hand about what it’s like.

You can record a video or audio clip yourself with your phone (or other device) or you can ask us for help.

Here is a document to help you record your own video or audio.  This document will also tell you how to send us your finished recording: CLICK HERE

Need some help?

  • You can work on this at home. If you need some help, Contact Sarah Godfrey, at sarah@promotelocal.com / (262) 349-1968, and she will schedule a phone or video call with you.

  • Are you coming to Disability Advocacy Day, State Capital in Madison, March 15?  We will have recording equipment on site.

Ready to Do This?

Disability Advocacy Day 2024

Registration is open for Disability Advocacy Day 2024! Join us in Madison on Wednesday March 20th with other advocates from around the state and meet with your elected officials. This is a great opportunity to share your story and educate your legislators on disability rights! It's free to attend, but you must register by March 1st! Register now!

2024 Self-Determination Conference Call for Presenters

Are you interested in presenting at the 2024 Self-Determination Conference?  Session proposals for are now being accepted for Tuesday, October 22nd and Wednesday, October 23rd, 2024. This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined life. Proposals due by on May 10th. Submit an application today!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Chad. This rock climbing fanatic volunteers his time doing all sorts of advocacy things. Check out this month's Member Spotlight to get to know Chad.   

Who should we shine the spotlight on next?

128 Stacy’s Journal







"While I don’t like being seen as overly dramatic sometimes, I’ve learned to trust my gut when it comes to my health. My uncanny instinct has saved my life more than once!"

In this month's journal entry, Stacy talks about her keen instincts when it comes to her health. She discusses why she's hyper vigilant about her health. Do you find yourself being overly concerned about your health?







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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).





196

Take five minutes to check out what's happening on the Self-Determination Network:

  • New Report: Kaiser Family Foundation has published a new report that provides insight into one important measure of unmet need for home and community-based services across states. Learn what the report reveals.
  • Competitive Rock Climber Proves People with Disabilities Can do Anything: For this competitive athlete, rock climbing is just a sport. Find out how this climber excels despite having limitations.
  • Long-Range Plan: The Administration for Community Living has released its 2024-2028 Long-Range Plan for the National Institute on Disability, Independent Living and Rehabilitation Research. Learn what it includes.
  • New Enrollment Process for Providers: Beginning in September 2024, the Wisconsin Department of Health Services will require all adult long-term care waiver service providers to enroll with Wisconsin Medicaid through the ForwardHealth Portal. Read more about this process.
  • Medicaid Issues to Watch: In 2024, many issues are at play that will affect Medicaid coverage, financing, and access. Read about what else to watch for.
  • Proposed Changes to the Census Dropped: After strong pushback from the disability community, the U.S. Census Bureau is no longer moving forward with a proposal that could have decreased the estimated disability rates in the country. Learn about what the proposal would have asked.
  • Businesses Continue to Fall Short: A recent survey shows that businesses continue to fall short when it comes to meeting the needs of customers with disabilities. Find out what many advocates think that the main problem is.
  • Inclusive Town: The town of Union Grove banded together behind a common goal - to give everyone an equal chance by hiring as many people with disabilities as possible. Read about what the town has done.
  • Self-Direction Inventory: Applied Self-Direction conducted an extensive national survey of self-direction programs in the United States. Check out the many interesting statistics in the report. 

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

January 2024

Connect Share |Learn http://sdnetworkwi.org

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Disability Advocacy Day 2024

Save the date for the 2024 Disability Advocacy Day on Wednesday March 20th in Madison. It's on a Wednesday this year instead of the usual Tuesday. We'll be sending out information about details and registration in a few weeks. We hope to see you there!

Voting Lunch and Learns

2024 is a huge election year, and the Wisconsin Disability Vote Coalition has you covered! They will be holding virtual Lunch and Learns throughout the year about various voting topics. The first one (register here) is going to be Tuesday January 23rd from 12p.m. to 12:45p.m. It will be about registration and absentee voting. Another Lunch and Learn (register here) will be held on Tuesday February 6th from 12p.m. to 12:45p.m., and the topic will be voting rights and local elections matter. Make sure to keep up to date on voting issues by attending these events.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Brett. This fun-loving guy is determined to make the best of life regardless of the circumstances. He is determined to make an impact on as many lives as possible. Check out this month's Member Spotlight to get to know Brett.   

Who should we shine the spotlight on next?

128 Stacy’s Journal






"As I get older, I’m slowly realizing that there’s more to life than always trying to prove that you’re successful."

In this month's entry, Stacy shares about she's trying to be more intentional about what she agrees to do. She explains how she often takes on more than she should because she has a hard time turning down opportunities down.

Do you have a hard time saying no to opportunities?






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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).





196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Tools to Help Strengthen HCBS: Recently, the Centers for Medicare & Medicaid Services released new tools that will help improve access for millions who receive home and community-based services through Medicaid. Learn about what these tools will help.
  • Concerns over the the Census Questioning: The U.S. Census Bureau is considering changing the way it asks people about disabilities and advocates are concerned. Find out why advocates are concerned.
  • Investment in Services: Recently, the Biden-Harris Administration announced actions and new data that will help expand home-and-community-based services.  Read about what actions are being taken.
  • Guide to Accessible Travel: Traveling is generally fun and exciting, but it also can be stressful. This is especially true for many people who have disabilities. Check out this guide to accessible travel.
  • Request for Comment: The Administration for Community Living is announcing an opportunity for the public to comment on the data collection requirements for the ACL Evidence-Based Falls Prevention Program Information Collection. Comments are due February 12th.
  • Be your Best Self-Advocate: You are your own best advocate. Take a look at some great tips for being an advocate.
  • Youth Leadership Forum: YLF is a week-long forum for high school with disabilities who want to learn more about leadership, self-advocacy skills, and career awareness. Share this opportunity with students who would benefit!
  • What's Behind the Shortage: The nearly five million direct care workers who support older adults and people with disabilities are the largest workforce in the U.S. Watch this news clip about what are the causes of the caregiver shortage.
  • ABLE Limit Increase: Starting January 1st, people with disabilities are able to save more money in ABLE accounts which are accounts that allow them to save without jeopardizing their government benefits. Find out how much it increased.
  • Digital Accessibility Guidelines: The Office of Management and Budget recently released updated guidance requiring federal agencies to improve their digital accessibility for people with disabilities. Learn about what the guidelines are. 

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 


96

Self-Determination Network News:

December 2023

Connect Share |Learn http://sdnetworkwi.org

Resources for Employing Caregivers 

It's no secret that there has been a caregiver shortage for many years. This crisis affects almost everyone in one way or another. Hiring and retaining workers is challenging--especially for people who hiring their own workers. Applied Self-Directed published a report entitled, Bridging the Gap: Strengthening Insights Into Strengthening the Self-Directed Workforce. Included in the report were a few great appendices about finding and keeping workers. 

Appendix l gives many great examples of where people can try to find workers. It lists different websites that people can post ads on, and it also includes examples of places where people can post ads and flyers in their community. It also gives examples of how people could use word of mouth to recruit caregivers.

In Appendix lll, it talks about many easy ways that people can show appreciation for their workers. It lists many examples of acts of gratitude that don't take a lot of work and don't cost very much. Giving gratitude and having small perks for employees often helps keep them longer.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Randi. This advocate extraordinaire believes that everyone has a right to make choices and encourages people to keep asking questions. Check out this month's Member Spotlight to get to know Randi.   

Who should we shine the spotlight on next?

128 Stacy’s Journal





"People who have disabilities are no different. We encounter many things that are out of our control—in fact, I’d argue that we face more things that are out of our control than the average person does."

In this month's entry, Stacy discusses how many people with disabilities simply have no control over several things that people without disabilities never think about. What unique things in your life are out of your control?





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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).





Recordings from the 2023 Self-Determination Conference 

Video recordings of all the sessions from the 2023 Self-Determination Conference are now available on the Self-Determination Channel on YouTube. The pre-conference sessions as well as the Diehard award presentations are also available. Check out the presentations that you may have missed at the conference!

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Impact of Climate Change: As the planet warms scientists say natural disasters are becoming more destructive and more frequent, and the data shows certain communities are hit harder than others Watch an interview about how it's affecting people with disabilities.
  • Voting Barriers: A recent survey found that people with disabilities continue to face challenges voting. Learn about what some of the barriers are.
  • Unique Duo: Neighbors in Greenfield don't let having Down Syndrome stop them from living successful lives. Read about these inspiring young women.
  • The CARE Act: Organizations advocating for older adults and people with disabilities are hoping to build new support for a bill that would require Wisconsin hospitals to communicate with a patient's family caregivers. Find out more about this bill.
  • Take Survey: The University of Kansas is seeking participants to take the 2023 National Survey on Health and Disability. Take the survey today!
  • Actress Calls for Sub-Minimum Wage to End: Actress Selma Blair recently said sub-minimum wage is "out of touch and wrong." Listen to the interview.
  • Updated Web Content Accessibility Guidelines: Updated Web Content Accessibility Guidelines were recently released. Find out what is new.
  • America's Long-Term Care Crisis: Long-term care systems are in crisis. Learn about steps that could be taken to improve the systems and ease the strain on the federal budget.
  • Proclamation: December 1st was International Day of Persons with Disabilities. Read the proclamation from the White House to learn about what this day is meant to celebrate.
  • Request for Public Comment:  The Department of Health Services (DHS) has revised the Wisconsin Medicaid Standards for Certified 1-2 Bed Adult Family Homes The public comment period is open until January 31st.
  • New Version of Disaster Course: FEMA released an updated version of its training course on Including People with Disabilities in Disaster Operations. Learn more about this course.

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 


96

Self-Determination Network News:

November 2023

Connect Share |Learn http://sdnetworkwi.org

National Family Caregiver Month

November is National Family Caregiver Month. We know that many people are caregivers for family members and we thank you. Legislators need to hear your story. We encourage you to contact your legislators and share your experience. The Survival Coalition put together a fact sheet that you can use when you do so. 

Remembering Terry Lynch, a Wisconsin Self-Direction Pioneer

Terry Lynch, one of the earliest pre-IRIS self-direction practitioners and activists in Wisconsin, passed away on September 10. He was one of the founders of In Control Wisconsin and the author of But I Don’t Want Eldercare. Terry was a trainer, speaker and consultant on self-direction and workforce issues. To read Lynn Breedlove’s reflections on Terry’s contributions to the self-direction movement and the lessons we can learn from his book and his life, click here.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Jen. This volleyball fanatic has faced some challenges which have kept her off the court in recent years, but she has a goal of playing again one day. Check out this month's Member Spotlight to get to know Jen.   

Who should we shine the spotlight on next?

128 Stacy’s Journal




"People have various reactions to change. Some people have no problem adjusting to change; while others have a difficult time. Like everyone else, people with disabilities have various reactions to change. Generally speaking, many of us are so routine based, so often we have a hard time adjusting to change."



In this month's entry, Stacy discusses how simple adjustments can be life-changing for some people. She talks about how people react to adjustments differently. Do you react to change well or do you have a hard time adjusting.




196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Celebrating 25 Years of ADRCs: The Wisconsin Department of Health Services is celebrating the 25th anniversary of aging and disability resource centers (ADRCs) helping older adults and people with disabilities in our state to thrive. Learn about what ADRCs do.
  • Inclusive TV: Read about how one television network is making strides in including performers who have disabilities.
  • Disability Employment: As Disability Employment Awareness Month came to an end in October, it's obvious that most people with disabilities want to work, but there are many different barriers that make it challenging. Learn about some of the problems people are facing.
  • Wisconsin Wayfinder: The Wisconsin Department of Health Services launched a new service that will transform the support structure for families of children with delays, disabilities, special health care needs, or mental health conditions.  Find out how it works.
  • 60th Anniversary of the DD Act:  In late October, we celebrated the 60th anniversary of the Developmental Disabilities Assistance and Bill of Rights Act. Find out what this act does.
  • Sheltered Workshops Violation: According to the Justice Department, segregating people with disabilities in employment and other day programs may violate their rights under the Americans with Disabilities Act.  Learn why.
  • Proclamation: Read the proclamation from the White House for National Family Caregiver Month.
  • New Accessibility Features in Google Maps: Google recently released many new accessibility features to make it easier for people with disabilities. Find out what these include.
  • Medicaid Transportation Guide: CMS recently released a Medicaid Transportation Coverage Guide, which highlights existing policies and includes new policies to address issues such as extended wait times and long-distance trips. Check out this great resource.

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

October 2023

Connect Share |Learn http://sdnetworkwi.org

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It was another great Self-Determination Conference this year. We enjoyed seeing many of you in-person, and we're glad that people who couldn't make it could join virtually. What was your favorite part about it?  Let's keep the conversation going! Share your comments, questions, and ideas. Join the conversation!

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Congratulations to the 2023 Diehard Award Winners! 

We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Melanie. This young lady is determined not to let her limitations stop her from living a successful life. She has many goals and she’s determined to meet them. Check out this month's Member Spotlight to get to know Melanie.   

Who should we shine the spotlight on next?

128 Stacy’s Journal


"Everyone has some amount of stress and anxiety. It’s life. It’s perfectly okay to reach out for a little help if life gets to be too much. Do it for yourself, so you can find joy in your journey!'

In this month's entry, Stacy opens up about getting some help with her mental health and how beneficial it has been.


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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • New Home Care Program: Some patients can now get the same care at home as they would at the hospital. The Home-Based Hospital Care program, which began in July, allows patients to stay in a more comfortable place. Learn more about this program.
  • Push for More Services and Supports in the Community:  Every year, Medicaid spends more than $200 billion on long-term services and supports (LTSS) for people with physical, intellectual, and developmental disabilities. Historically, over 80% of these funds were spent on institutional care in long-term care facilities. But, over the past thirty-plus years, in response to escalating LTSS expenditures and consumer preferences, both the federal and state governments have pushed to deliver more LTSS in the home and community. Read more about the efforts being done to make more services available.
  • Input Needed:  The National Institutes of Health (NIH) has issued a Request for Information (RFI) inviting feedback on a proposed update to its mission statement. Comments due November 24th.
  • Advocating for Marriage Equality: Disability advocates are staging a mass commitment ceremony on the National Mall in an effort to raise awareness about marriage penalties. Find out what advocates want.
  • Annual Direct Care Workforce Report:  Review a new annual snapshot of the direct care workforce, including its demographics, occupational roles, job quality challenges, and projected job openings.
  • Inclusive Farm: A farm in Fredonia hires people with disabilities. Find out what "farm fellows" do.
  • Inclusive Outdoors Recreation: People with disabilities often face obstacles or unwelcoming environments when they try to use outdoor spaces. Read about the growing movement that is actively working to challenge the barriers and promote inclusivity in outdoor recreation.
  • Disability as a Health Disparity: The National Institutes of Health recently designated people with disabilities as a population with health disparities. Find out what this means.
  • Self-driving Vehicles: Driverless vehicles are becoming more and more popular. Read about some of the pros and cons of these vehicles for people with disabilities.
  • 50th Anniversary of the Rehabilitation Act: The 50th anniversary of the Rehabilitation Act was in late September. Learn what this Act is responsible for.
  • Family Care Concerns Continue: Wisconsin disability advocates continue to worry as for-profit companies buy two of the four nonprofit organizations that run Family Care. Find out why advocates are concerned.
  • Airline Making Improvements: Following an investigation by the federal government after a complaint by a disability advocate, United Airlines has agreed to improve the experience for passengers who use wheelchairs. Read about what they're doing.
  • Resource Line: The Disability Information and Access Line (DIAL) is an easy way to get connected to the services you need. Learn about this resource,
  • Proclamation: October is National Disability Employment Awareness Month. Find out what this month recognizes.
  • Aging Caregiver Resources: CMS released a set of resources addressing the needs of adults with intellectual and developmental disabilities living with, and receiving care from, aging parents or guardians. Check them out.
  • Watch: Actor and disability rights advocate Selma Blair and President Biden recently celebrated the legacy of the Americans with Disabilities Act and the Rehabilitation Act. Watch their remarks.
  • Effort to Update Limits:  People who receive SSI are forced to live in poverty. However, read about how that may be changing.
  • EVV for Home Health Care Services:  Beginning January 1, 2024, the Wisconsin Department of Health Services will require electronic visit verification (EVV) for home health care services and nurse supervisory visits. Learn what this means.
  • Hotel Struggles:  Staying in hotels can be a harrowing experience for people with disabilities. Find out about some of the hurdles people encounter.
  • Enhancing Support for Immigrant Caregivers: A new report discusses the crucial role that immigrant direct care workers play in the U.S. healthcare system, particularly in long-term care for older adults and people with disabilities. Find out what it revealed.  

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 


96

Self-Determination Network News:

September 2023

Connect Share |Learn http://sdnetworkwi.org

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Registration Closes Friday!

Have you registered for the 2023 Wisconsin Self-Determination Conference yet? It will be held October 16th-18th. Join us in-person at the Kalahari Resort in Wisconsin Dells or virtually for this year’s conference. The theme is Be Curious: Explore the Possibilities. Check out the brochure and website for more information.  Registration closes this Friday September 15th. Register today!

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National Voter Registration Day

Join the Wisconsin Disability Vote Coalition on the high seas of civic engagement for an unforgettable virtual event on National Voter Registration Day (which also happens to be National Talk Like a Pirate Day)! Mark your calendars for 6 p.m. Tuesday, September 19 and prepare to embark on an adventure that will empower you to seize your freedom to vote.  We can promise fun and information, but we can't promise that we'll slow down on the pirate puns!  Register here!
What to Expect:
Stories on the importance of voting
Answers to your voter registration questions
Create and share fun content about voter registration
Sessions to text friends with info
Opportunities to win merch and prizes
For more information, check out the event page on Facebook.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Brandon. This camera enthusiast is a freelance content creator and also works as a communications assistant at a local television station. He’s determined not to let people tell him what he can and cannot do. Check out this month's Member Spotlight to get to know Brandon.   

Who should we shine the spotlight on next?

128 Stacy’s Journal

"Sometimes, people ask me if I could have one ability that I don’t have, what would it be? Without hesitation, I always say the ability to verbally speak. This surprises people, but it’s a no-brainer for me. "
In this month's entry, Stacy talks about how frustrating it is not being able to verbally speak. Can you or someone you know relate?

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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Web and Mobile App Accessibility: The Department of Justice has issued a notice of proposed rulemaking under Title II of the Americans with Disabilities Act that aims to improve web and mobile apps access for people with disabilities. Public comments on this rule are due October 4th.
  • Amtrak Improving Accessibility: Amtrak is seeking approval from the Federal Railroad Administration to make their new, intercity trains more accessible than current regulations mandate. Learn about what they're planning to do.
  • Training for Family Caregivers: A new proposal from the Centers for Medicare & Medicaid Services addresses this often-lamented failure to support family, friends and neighbors who care for frail, ill and disabled older adults. Read about what this would include.
  • Adaptive Product Line: Walmart is introducing a new adaptive product line. Find out what types of products it includes.
  • HCBS Webpage: The Wisconsin Department of Health Services has created a new webpage about home and community-based services. It has results and plans from the grantees. Check it out.
  • Food Truck Employs People of All Abilities: The Aging & Disability Resource Center of Brown County has launched a new accessible food truck with Grounded Cafe to offer an opportunity for people of every ability to get involved with food service. Read about some of the accommodations the truck has.
  • ADA Transition Plan: The Wisconsin Department of Transportation has published its 2023 Americans with Disabilities Act Transition Plan. There is a public comment period open through Wednesday, September 27th.
  • Industries Hiring: It's widely known that people with disabilities are significantly less likely to get a job than the general population. However, the new tight job market has created new opportunities for people with disabilities.  Find out what industries are hiring people with disabilities.
  • ABLE Accounts:  Wisconsin is currently the only state that doesn't have an ABLE program, which provides a tax-free savings account for people with disabilities. Read about a new bill that would a new bill that would allow Wisconsin to create an ABLE program.
  • Family Care Concerns: Advocates are worried after two for-profit insurance companies are on track to take over the Family Care. Learn why there's such concern.
  • Key Issues in 2024 Election:  There's a presidential election coming up in 2024, and, while it seems a little early to think about, there are some key issues voters with disabilities will be raising.   Learn what some of the hot issues will be.
  • Self Identification Debate: Job seekers who have disabilities often need to decide whether or not to disclose they have some challenges. Read about some of the pros and cons of self Identification during the employment process.

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

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