Self-Determination Network News:

September 2023

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Registration Closes Friday!

Have you registered for the 2023 Wisconsin Self-Determination Conference yet? It will be held October 16th-18th. Join us in-person at the Kalahari Resort in Wisconsin Dells or virtually for this year’s conference. The theme is Be Curious: Explore the Possibilities. Check out the brochure and website for more information.  Registration closes this Friday September 15th. Register today!

National Voter Registration Day

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Brandon. This camera enthusiast is a freelance content creator and also works as a communications assistant at a local television station. He’s determined not to let people tell him what he can and cannot do. Check out this month's Member Spotlight to get to know Brandon.   

Who should we shine the spotlight on next?

Stacy’s Journal

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

• Self-Advocates on Asking for Help

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

Take five minutes to check out what's happening on the Self-Determination Network:

• Web and Mobile App Accessibility: The Department of Justice has issued a notice of proposed rulemaking under Title II of the Americans with Disabilities Act that aims to improve web and mobile apps access for people with disabilities. Public comments on this rule are due October 4th.
• Amtrak Improving Accessibility: Amtrak is seeking approval from the Federal Railroad Administration to make their new, intercity trains more accessible than current regulations mandate. Learn about what they're planning to do.
• Training for Family Caregivers: A new proposal from the Centers for Medicare & Medicaid Services addresses this often-lamented failure to support family, friends and neighbors who care for frail, ill and disabled older adults. Read about what this would include.
• Adaptive Product Line: Walmart is introducing a new adaptive product line. Find out what types of products it includes.
• HCBS Webpage: The Wisconsin Department of Health Services has created a new webpage about home and community-based services. It has results and plans from the grantees. Check it out.
• Food Truck Employs People of All Abilities: The Aging & Disability Resource Center of Brown County has launched a new accessible food truck with Grounded Cafe to offer an opportunity for people of every ability to get involved with food service. Read about some of the accommodations the truck has.
• ADA Transition Plan: The Wisconsin Department of Transportation has published its 2023 Americans with Disabilities Act Transition Plan. There is a public comment period open through Wednesday, September 27th.
• Industries Hiring: It's widely known that people with disabilities are significantly less likely to get a job than the general population. However, the new tight job market has created new opportunities for people with disabilities.  Find out what industries are hiring people with disabilities.
• ABLE Accounts:  Wisconsin is currently the only state that doesn't have an ABLE program, which provides a tax-free savings account for people with disabilities. Read about a new bill that would a new bill that would allow Wisconsin to create an ABLE program.
• Family Care Concerns: Advocates are worried after two for-profit insurance companies are on track to take over the Family Care. Learn why there's such concern.
• Key Issues in 2024 Election:  There's a presidential election coming up in 2024, and, while it seems a little early to think about, there are some key issues voters with disabilities will be raising.   Learn what some of the hot issues will be.
• Self Identification Debate: Job seekers who have disabilities often need to decide whether or not to disclose they have some challenges. Read about some of the pros and cons of self Identification during the employment process.

Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

• Webinar: Promoting Person-Centered Communication And Care Coordination: September 13th, 11a.m. to 12p.m., Virtual
• National Voter Registration Day: September 19th, 6p.m., Virtual
• 2023 K.I.T.E. Conference: September 23rd, 9a.m. to 2p.m., Fox Valley Technical College, Appleton WI
• 2023 Self-Determination Conference: October 16th-18th, Kalahari Resort, Wisconsin Dells WI or Virtual
• Conference On Employment Of Transition-Age Youth With Disabilities: November 1st-2nd, Virtual

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News:

August 2023

Connect | Share |Learn | http://sdnetworkwi.org

Don't Forget to Register!

Have you registered for the 2023 Wisconsin Self-Determination Conference yet? It will be held October 16th-18th Join us in-person at the Kalahari Resort in Wisconsin Dells or virtually for this year’s conference. The theme is Be Curious: Explore the Possibilities. Check out the brochure and website for more information. Register today!

Share Your Caregiver Crisis Story with your Legislators 

Recently, Madison Magazine published an in-depth article "Wisconsin's Caregiver crisis: What happens when no one shows up?" In the article, people with disabilities and family members talk about the daily challenges they face because they do not have enough workers to hire, what has happened when they don't have enough workers, and their fears about the future. Do these people's stories match your lived experience? If so, you are not alone. People in every corner of Wisconsin are having the same struggles every day, day after day. If this story is your story, email your legislator a link to the article and say, "That's Me." Include a few sentences about how the care worker shortage is impacting you, your family, your future.

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Richard. When he’s not working at the Department of Revenue, he’s either advocating on the Arc board or participating in one of his many hobbies. Check out this month's Member Spotlight to get to know Richard.   

Who should we shine the spotlight on next?

Stacy’s Journal

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

• "Finding my passion has made a difference in my life"

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

Take five minutes to check out what's happening on the Self-Determination Network:

• Accessible Housing: Despite 26% of the US population having a disability, less than 5% of housing is accessible and less than 1% is wheelchair accessible. Learn about several ideas which came from a hearing attended by both political parties that would help with the shortage.
• Creating Accessible Transportation: Late in July, the Vice President and the Secretary of Transportation held a roundtable discussion about accessible transportation. Read about the meeting.
• Improving Online Access to State and Local Services: Ahead of the 33rd anniversary of the Americans with Disabilities Acts, the Biden-Harris Administration announced a new proposal that would improve online access to state and local services for people who have various limitations Find out what the proposal includes.
• Accessible Changing Tables: For many families in Wisconsin, it's nearly impossible to leave the house for an extended length of time because of the lack of accessible adult changing stations in public places.  Read about a new program that would require all public buildings to have adult changing stations.
• Airline to Add Braille to Planes Interior: Finding your seat on airplane is challenging for anyone, but for people who have visual impairments, it's usually impossible to find their seat independently.  Read about how one airline is planning to install Braille to signs inside planes.
• UpliftWI: The Wisconsin Department of Health Services announced a new phone line is now available allowing all Wisconsinites to share their successes and challenges with a peer who will listen and offer support. Find out more about this program.
• Partners in Policymaking: Wisconsin Partners in Policymaking is a six‐session advocacy and systems change training program that develops future leaders across the state who are able to work with legislators and communities on policies and initiatives that will support the full participation and inclusion of people with developmental disabilities in all aspects of life. Applications due October 2nd.
• SPARKS Grants:  Do you have an idea to make your community a better place for people with disabilities?  Organize your grassroots group and apply for funding to help make it happen! Individuals with developmental disabilities and family members may apply. Applications due September 1st. Learn more and apply today!
• Mandate to Make Planes More Accessible: The Department of Transportation is in the process of finalizing regulations to require many new commercial airplanes to more accessible for people with disabilities. Read about how new regulations would require some planes to have large enough restrooms that for a person with a disability and an attendant.
• Right-of-Way Guidelines: Pedestrians with disabilities throughout the United States continue to face major challenges in travel because many sidewalks, crosswalks, and other pedestrian facilities are inaccessible. Recently, the U.S. Access Board addressed this inequity by issuing a final rule on accessibility guidelines for pedestrian facilities in the public right-of-way. Learn what these guidelines are.
• WisCaregiver Connections: The Wisconsin Department of Health Services recently invested in an online training program for 10,000 people to become certified direct care professionals. Find out more about this program.
• Call for Proposals: 
  

  Applied Self-Direction is seeking conference sessions that focus on best practices and innovations related to self-direction. We strongly encourage a range of perspectives including people and families who self-direct, state program staff, Financial Management Services providers, direct care workers, support brokers, and policymakers. Proposals due October 11th.

Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

• Webinar: Housing Act: August 22nd, 1p.m. to 2:30p.m., Online
• 45th Anniversary Open House And Assistive Technology Donation Drive: August 24th, 10a.m. to 3p.m., Access to Independence, Madison WI
• Electronic Visit Verification Forum: August  24th, 2p.m. to 4p.m., Online
• Options For Independent Living Community Expo: August 24th, 3p.m. to 7p.m., Options for Independent Living, Green Bay WI
• Webinar: Accessible Residential Housing: September 7th, 1:30p.m. to 3p.m., Online

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News:

July 2023

Connect | Share |Learn | http://sdnetworkwi.org

Registration is Now Open 

Registration is now open for the 2023 Wisconsin Self-Determination Conference which will be held October 16th-18th. Join us in-person at the Kalahari Resort in Wisconsin Dells or virtually for this year’s conference. The theme is Be Curious: Explore the Possibilities. Check out the brochure and website for more information. Early bird registration ends August 15th. Register today!

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Kevin. This music-loving father loves watching his son succeed. He not only advocates with his son, but, as the director of an IRIS Consultant Agency, he also works with others with disabilities to ensure they have the support to be able to live and work in the community. Check out this month's Member Spotlight to get to know Kevin.   

Who should we shine the spotlight on next?

Stacy’s Journal

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

• Partners in Policymaking: Are you ready to take the next step in your advocacy journey?

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

Take five minutes to check out what's happening on the Self-Determination Network:

• Resources for Older Caregivers: The Centers for Medicare & Medicaid Services recently released a collection of resources designed to support state Medicaid and partner agencies in developing the supports and services being delivered to adults with I/DD and their aging caregivers. Take a look at these and pass them on to others who may find them beneficial.
• Employment Funding Opportunity: The Social Security Administration has announced a new funding opportunity for conducting interventional research to support its programs. They are seeking applicants in five key areas related to barriers to employment. Applications are due July 31st.
• Concerns over Medicaid Disenrollment: According to data, more than a million Medicaid beneficiaries have been disenrolled. Learn about one of the main reasons this is.
• CrossFit Class: A gym in Waterford has started a CrossFit class for people with different abilities. Find out more about the class.
• Digital Health Technologies: A new survey shows that older adults plan to use more assistive health-related technologies as they age. Read about what else the survey revealed.
• Accessible Hiking Trails: Hiking is becoming a very popular summer activity.  Take a look at this guide to accessible hiking trails in the U.S.
• Technology Accessibility in the Workplace: In today's world, technology plays a major role in almost every facet of every company. As we know, technology also enables people who have different abilities to be able to be productive in the workplace. Learn why it's crucial that employers make sure that technology equipment is accessible to all employees.
• Independent Living Program Pilot: The Wisconsin Department of Health Services is initiating an Independent Living Supports Pilot program, aimed at providing resources to eligible residents, enabling them to live independently at home. Find out more about this program.
• Family Care and Partnership Renewal Survey: Wisconsin Department of Health Services is in the process of renewing the Family Care and Partnership waivers. They are seeking input about these programs. Please take this survey by August 1st.
• New Program at Green Bay Airport: Austin Straubel Airport in Green Bay recently became the second airport in Wisconsin to participate in the Hidden Disabilities Sunshine Network which is a program that provides discreet assistance to people who have hidden disabilities. Read about how the program works.
• Listen Now: Wisconsin Public Radio recently did an interview with two disability service providers about how the community serves people with disabilities Listen to what they suggest would help communities better serve people with disabilities.
• Talk of Updating SSI Limits: The Supplemental Security Income (SSI) program for low-income elderly and disabled people has the strictest savings limits of any federal program. Eligibility is limited to people who have only $2,000 (or $3,000 for couples). Read about how most people feel this isn't enough for beneficiaries to weather an emergency or provide stability.
• Journey of a Lifetime: A young woman from Mazomanie who wasn't supposed survive through infancy is on a journey of a lifetime. Learn about her quest to compete in Miss Wheelchair America.

Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

• Family Care And Family Care Partnership Waiver Renewal Online Public Input Session: July 25th, 3p.m. to 5p.m., Online
• Family Care And Family Care Partnership Waiver Renewal Online Public Input Session: July  26th, 6p.m. to 8p.m., Online
• Webinar: Basic Formatting: July 31st, 3p.m. to 4p.m., p.m., Online
• Webinar: Designing For Children: August 3rd, 1:30p.m. to 3p.m., Online
• Webinar: Building An Inclusive Museum From The Ground Up: August 10th, 1p.m. to 2:30p.m., Online

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News:

June 2023

Connect | Share |Learn | http://sdnetworkwi.org

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Jenny. After a tragic accident changed her life, this amazing lady made the decision to be a person who aspires to live life to the fullest. She has committed her life to raising awareness for people living with paralysis and neurological disorders. Check out this month's Member Spotlight to get to know Jenny.   

Who should we shine the spotlight on next?

Stacy’s Journal

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

• Catching up with Ben
• What does LTGBQ+ mean?

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

Take five minutes to check out what's happening on the Self-Determination Network:

• Wheelchair Elevation:  The Centers for Medicare and Medicaid Services recently announced that Medicare will now cover seat elevation devices for power wheelchairs. Learn more about this decision.
• Health Data Report: Reliable health data is important to supporting people with intellectual and developmental disabilities. Being counted is a health equity and civil rights issue. Although data collection about people with disabilities generally has improved in recent decades, there is still not enough information on how many people with I/DD live in the U.S., how healthy they are, and what things affect their health. Take a look at the report that the Administration for Community Living put together from a summit they put together in 2022 focused on health equity, remaining gaps, and priorities for the future.
• The Wait for Services: More than half a million Americans with intellectual and developmental disabilities are currently waiting for government funding for long-term care in their homes. Find out what some states are doing to clear waitlists.
• Advocates Advocate for Significant Pay Increases for Caregivers: It's no secret that Wisconsin advocates for people with disabilities and the elderly have been tiredlessly advocating for better pay for caregivers.  Learn what advocates are asking for in the state budget.
• Inclusive Stock Photos: Generally, stock photos often don't include people with disabilities. Read about how the Consumer Product Safety Commission is working to change that.
• Public Comment Needed on Diagnostic Equipment: Medical diagnostic care is essential to everyone, including people with disabilities, and often requires people to transfer onto diagnostic equipment. The U.S. Access Board has issued a notice of proposed rulemaking on standards for accessible medical diagnostic equipment. Public comments are due July 24th.
• Project SEARCH: Project SEARCH provides vocational training for people with disabilities. Learn about how the program helps high school students transition into the workforce.
• Google Maps are More Accessible: With a minor change, Google is making it more obvious to users whether businesses and other public places are accessible to people with disabilities.  Find out what small change made this possible.
• WisCaregiver Connection Workforce Platform: In partnership with UW-Green Bay, the Wisconsin Department of Heath Services have developed a training program to help 10,000 caregivers become certified direct care professionals. They also have developed a new workforce platform that will connect employers and job seekers. Find out more about these new programs.
• Protype of Wheelchair Seat on Planes: Delta has introduced a prototype of a new seat that would allow airlines to let passengers to stay in their wheelchairs in the cabin. Learn more about the design.
   

Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

• Webinar: Addressing Sexual Assault Against People With Disabilities: June 14th, 2:30p.m. to 4p.m., Online
• Webinar: Adaptive Ballroom Dancing: June 15th, 1p.m. 2:30p.m., Online
• Webinar: Peer & Family Support Program: June 15th, 2p.m. to 3:30p.m., Online
• Webinar: Accessible Transient Lodging: July 6th, 1:30p.m. 3p.m., Online
• Webinar: Easy Read Icons: July 10th, 3p.m. to 4p.m., Online
• Webinar: Basic Formatting: July 31st, 3p.m. to 4p.m., p.m., Online

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News:

May 2023

Connect | Share |Learn | http://sdnetworkwi.org

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on David. This advocate extraordinaire continues to serve his community in any way he can. When he’s not busy serving on one of the many boards he’s on, he’s appraising antiques or officiating weddings. Check out this month's Member Spotlight to get to know David.   

Who should we shine the spotlight on next?

Stacy’s Journal

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

• What self-determination means to me #SHORTS
• Why I tell my story #SHORTS
• About me #SHORTS
• Ben's Transition Story

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

Take five minutes to check out what's happening on the Self-Determination Network:

• Five Resources to Advocate for Workforce: Momentum for policy change at the state level continues to grow dramatically for the direct care workforce. Check out these resources to help people advocate for the direct care workforce.
• Fact Sheet: Recently, the Biden administration announced the most comprehensive set of actions an administration has taken to improve care and support caregivers (including family caregivers). Learn about some of the directives to expand affordable and high-quality care and provide support for caregivers.
• Care Workforce Not Keeping Pace: Research continues to show that the size of the home care workforce isn't keeping pace with home-and-community-based services. Read about how improving access to HCBS will require not only expanded insurance coverage but also new workforce investment.
• Supporting People with Invisible Disabilities: Invisible disabilities, as the name suggests, are disabilities that are not immediately apparent to others. Learn about ways leaders can support people who have invisible disabilities.
• Ending of the Public Health Emergency: The public health emergency from COVID-19 has now ended. Learn about some of the implications this may have on Medicaid HCBS programs, including workforce challenges and reductions in access to care.
• Wisconsintes with Disabilities Could Help Workforce Shortage: People with disabilities in Wisconsin could help solve the labor shortage, but recruitment efforts often disregard the population. Find out why there's such a mismatch between employers and people with disabilities.
• Input Needed: The Centers for Medicare & Medicaid Services published a proposed rule, Ensuring Access to Medicaid Services (Access Rule) to improve access to — and quality of — Medicaid services and promote health equity across the Medicaid program. The proposed rule applies to all Medicaid services, including the home and community-based services (HCBS) that are vital to people with disabilities and older adults. Comments must be received by July 3.
• The Influence of Disability in a Changing World:  Change is inevitable yet within the arc of the disability narrative we have seen profound transformations happening over years starting with civil rights to the evolution of business, representation, and a revolution through a broad cultural zeitgeist that is redefining our understanding of the disability experience. Read this interesting reflection.
• Report on Equity and Access: A new report examines current research on equity, inclusion, and access for the 61+ million individuals in the United States with disabilities in key social determinants of health including employment, transportation, healthcare, and education. Learn what it revealed.
• New Funding to Support Family Caregivers: The Administration for Community Living recently announced a new funding opportunity for an initiative to support family caregivers. Applications are June 26th.
• Advisory on Loneliness and Isolation: A new advisory notes that older adults and people with disabilities are among the populations with the highest numbers of loneliness and isolation. Find out what recommendations are suggested.
• Fall Internship Opportunity: The American Association of People with Disabilities is seeking applicants for their fall internship program. The internship program places students and recent graduates in a paid program that builds leadership skills, explores career opportunities, and enriches connections in the disability community. Applications are due June 8lth.
• Bipartisan Bill Would Eliminate Derogatory Language: A new bipartisan bill is going around that would eliminate "outdated and derogatory" language on intellectual disability from federal law. Learn more about this bill.
• Bill Focusing on Strengthening Direct Care Workforce: A group of lawmakers has introduced legislation that not only focuses on improving conditions for professional caregivers, but family caregivers as well.  Find out what this bill would do.
• Improving Air Travel: For many years, flying has been challenging for many people with disabilities. Read about a bill that would track damaged mobile aids and start research on designing planes that would allow people to stay in their mobility devices while flying.
• Addressing Disability Discrimination in Health Care: Two years after the feds suggested that they were going to update regulations to prevent health care providers from discriminating against people with disabilities, but advocates are still waiting for that to happen. Read about how advocates are pressuring lawmakers to urgently update regulations related to the Rehabilitation Act.
   

Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

• Webinar: Mental Health First Aid In The Workplace: May 16th, 1p.m. to 2:30p.m., Online
• Webinar: Getting The Services You Need From The Waiver – Participant Rights: May 17th, 1p.m. to 2:30p.m.
• Employment First Conference: May 23rd, 9a.m. to 4p.m., Kalahari Resort, Wisconsin  Dells WI
• Webinar: Easy Read Text: June 5th, 3p.m. to 4p.m., Online
• Webinar: Easy Read Icons: July 10th, 3p.m. to 4p.m., Online
• Webinar: Basic Formatting: July 31st, 3p.m. to 4p.m., p.m. 

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News:

April 2023

Connect | Share |Learn | http://sdnetworkwi.org

Survival Coalition Survey: The Face of Caregiving

State Budget Advocacy

Late in February, Governor Evers released his 2023-2025 budget proposal.  There is one more Joint Finance Committee listening session in Minocqua on April 26th. We strongly encourage people to attend if you're able. If you were unable to attend any of the sessions in-person, you can submit comments here. The Survival Coalition put together an analysis of the proposal from a disability perspective.  The Caregiver Crisis Coalition also has created a proposal that addresses many aspects of the caregiver crisis. We encourage you to use these documents while submitting your comments and talking to your legislators about what you'd like to see in the budget.  

 2023 Self-Determination Conference Call for Presenters

Are you interested in presenting at the 2023 Self-Determination Conference?  The Wisconsin Board for People with Developmental Disabilities is seeking session proposals for Tuesday, October 17 & Wednesday, October 18, 2023.  Proposals are due by noon on May 12th. Submit a proposal today!

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Emily. This karaoke singing young lady keeps busy by doing all sorts of fun activities. She loves to travel and play sports. She loves participating in activities with different groups and encourages people to join. Check out this month's Member Spotlight to get to know Emily.   

Who should we shine the spotlight on next?

Stacy’s Journal

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

• Human Rights: #17 Protection within the Law and Your Services
• Disability Advocacy Day/Rally at the State Capitol
• Sydney Unplugged/Disability Advocacy Day

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

Take five minutes to check out what's happening on the Self-Determination Network:

• Seniors Taking Care of Seniors: Older workers are helping fill a labor shortage in the home-care industry that worsened during the pandemic. Read about how more retirees are taking care of their elders.
• Home Care a Sticking Point for Medicaid Spending: President Joe Biden and his administration are using the importance of personal home care as a way to fight back against some Congress members’ desire to cut Medicaid funding. Learn how the White House is trying to keep health care off the chopping block for budget cuts.
•  New Fact Sheet: The Centers for Medicare & Medicaid Services (CMS) has issued a fact sheet that addresses the following areas: COVID-19 vaccines, testing, and treatments, telehealth services, waiver flexibility, hospital-at-home care, provider scope and oversight flexibility, and Medicaid continuous enrollment. Check it out!
• Valuing Family Caregivers: Care provided by millions of unpaid family caregivers across the U.S. is valued at a staggering, estimated $600 billion annually. Learn about some of the efforts underway to strengthen support for family caregivers.
• Hiring People with Disabilities:  With labor shortages across the country, overlooking those who can work but need some accommodations comes at a high cost. Find out why now more than ever it's critical to hire and retain people with disabilities.
• Accessibility Professional: The Accessibility professional is not just a change agent but in fact, part of a larger tribe that sees the world through a lens of inclusivity and espouses a new cultural norm that is essential in defining the mindset of the digital economy of the here-and-now and the future of the industry. Learn about how this profession has the responsibility of driving change in the disability economy.
• Waiting Lists a Thing of the Past: A proposal in Congress would do away with Medicaid's institutional bias and guarantee people with developmental disabilities access to services in the community. Read about how a new law would eliminate waiting lists for community-based services over time.
• Massive Confusion over Ballot Assistance: Going into the April 4th supreme court election, Wisconsin voters were still confused about ballot assistance and ballot return assistance. Find out what caused the confusion.
• The Fight Against Subminimum Wages: Advocates are highlighting a system of state tax credits across the US that allow employers to pay employees as low as $3 an hour.  Read about how some states have passed laws to ban subminimum wages.
• Professionalizing Caregiving: Could professionalizing caregiving be the answer to the shortage? Learn what advocates say is needed to solve the crisis.
• Lacking Data: Thousands of people in Wisconsin lose the right to vote due to being labeled "adjudicated incompetent." Learn about the state lacks a defined system to track people who receive this label.
• Municipal Clerks Week: Municipal Clerks Week is coming up the first week of May. Do you have a great municipal clerk? Nominate them today!
• Take Survey: The League of Women Voters of Wisconsin and partners are conducting a survey to learn about voters' experience during the April 4th election. Please take the survey!
• Guardianship and Voting Rights: In Wisconsin, people under guardianship retain the right to vote unless a court specifically removes the right. Check out these resources Disability Rights developed  that explains how to determine if you retain  or lost the  right  to vote, and, if you have lost the right to vote, how to petition the court to restore it.

Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

• Webinar: Overview Of Accessible Formats: April 17th, 3p.m. to 4p.m., Online
• Webinar: Accessible Exterior Routes And Surfaces: May 4th, 1:30p.m. to 3p.m., Online
• Webinar: Plain Language: May 8th, 3p.m. to 4p.m., Online
• Circles Of Life Conference: May 11th & 12th, The Wilderness Resort, Wisconsin Dells, WI
• Webinar: Easy Read Text: June 5th, 3p.m. to 4p.m. Online

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News:

March 2023

Connect | Share |Learn | http://sdnetworkwi.org

2023 Self-Determination Conference Call for Presenters

Are you interested in presenting at the 2023 Self-Determination Conference?  The Wisconsin Board for People with Developmental Disabilities is seeking session proposals for Tuesday, October 17 & Wednesday, October 18, 2023.  Proposals are due by noon on May 12th. Submit a proposal today!

State Budget Advocacy

Late in February, Governor Evers released his 2023-2025 budget proposal.  The Survival Coalition put together an analysis of the proposal from a disability perspective.  The Caregiver Crisis Coalition also has created a proposal that addresses many aspects of the caregiver crisis.  We encourage you to use these documents while talking to your legislators about what you'd like to see in the budget.  

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Stephenie. Thanks to her family’s encouragement and belief in her, this self-advocate has done so many incredible things.  She believes self-determination is having a voice and a choice what happens in your life.  Check out this month's Member Spotlight to get to know Stephenie.   

Who should we shine the spotlight on next?

Stacy’s Journal

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

• Human Rights: #16 Rest and Do the Things You Like to Do
• Human Rights: #17  Protection within the Law and Your Services

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

Take five minutes to check out what's happening on the Self-Determination Network:

• Proposed Change to Benefits: A new proposal from the Social Security Administration would make life easier for millions of disabled Americans whose friends or family help them out with food. Learn more about the proposal.
• Making Caregiving a Career: By 2030, more than 1 in 5 people in the United States are expected to be ages 65 and older, and nearly 70% of all adults who reach age 65 will eventually require some type of long-term services and supports. Read about how there are several caregiver occupations in the home health care industry that are growing.
• Disability Inclusion: Disability inclusion means intentionally cultivating environments where all can flourish. It means taking action to make change happen. It means including disabled consumers. While corporations are slow to latch onto the idea, read  about how small steps are leading to great progress.
• Crisis Leaves People Abandoned: A member of the Madison City Council and the Dane County Board is talking about the caregiver crisis that has been affecting people with disabilities and the elderly. Learn why it's both political and personal for her.  
• EVV Resources:  Electronic visit verification (EVV) is required by federal law for personal care and applicable supportive home care services. Check out these resources to learn about EVV.
• Being Reliant on Caregivers: Listen to this commentary about the power dynamics at play between a care provider and recipient, and the devaluation and lack of investment in care work.
• Assistive Technology Day:  On March 1, the U.S. Senate passed a resolution to raise awareness and celebrate National Assistive Technology (AT) Awareness Day. Learn what the day honors. 
• Breaking Point: After warning for years of an impending collapse in the disability services system, advocates say that the crisis is here. Read about things have escalated to a dangerous level forcing providers to deny people with disabilities Care and services.
• Passing of Disability Activist: The disability community is mourning the passing of disability rights activist Judy Heumann.  Learn about the integral role she had in the disability rights movement.    

Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

• Webinar: Person-Centered Methods For Expanding Self-Determination In Provider-Directed Services: March 15th, 2p.m. to 3:30p.m., Online
• Advocacy For Change: March 16th, 9a.m. to 4:30p.m., Concourse Hotel and the Capitol, Madison WI
• Webinar: Inclusive Imagery – Writing Alt-Text Depicting People With Disabilities And Other Marginalized Identities: March 16th, 1p.m. to 2:30p.m., Online
• Webinar: The Intersection Of Women And Disability: March 21st, 1p.m. to 2:30p.m., Online
• Webinar: COVID-19 Data On Individuals With I/DD: March 22nd, 11a.m. to 12p.m., Online
• Disability Advocacy Day: March 23rd, 10a.m. to 3p.m., Monona Terrace and the Capitol, Madison WI  
• Home Health Care Services Electronic Visit Verification Forum: March 23rd, 1p.m. to 3p.m., Online
• Webinar: Person-Centered Approaches To Supporting Dignity Of Risk For People With Disabilities: March 23rd, 2p.m. to 3:30p.m., Online
• Circles Of Life Conference: May 11th & 12th, The Wilderness Resort, Wisconsin Dells, WI

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News:

February 2023

Connect | Share |Learn | http://sdnetworkwi.org

Disability Advocacy Day 2023

Mark your calendar for Thursday March 23rd! Disability Advocacy Day is a day-long event in Madison focused on connecting self-advocates with their legislators to talk about issues that matter to them. Attendees are expected to participate in the full day of activities.

Register now

School Boards Matter Forum

Many Wisconsin communities will vote for school board members in the April 4th election. School Boards have a major impact on a community. On Monday March 6th from 6p.m to 7:15p.m., the Wisconsin Disability Vote Coalition is hosting a forum about the important role of school boards. The panel includes school board members who are parents of children with disabilities. You will also receive resources and be better prepared to vote on April 4th!

Registration is required. Register here for the School Boards Matter forum via Zoom.

Captioning will be provided. To request ASL Interpreters or other accommodations, please register as soon as possible and include that on your request.

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Amy. As both former Miss Wheelchair Wisconsin and Miss Wheelchair USA, this teacher has a passion for education and making policy changes that benefit all people. Check out this month's Member Spotlight to get to know Amy.   

Who should we shine the spotlight on next?

Stacy’s Journal

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

• Human Rights: #14 Have the Faith You Want
• Shining a Light on Richard
• Human Rights: #15 Own the Things You Want
• 3 Tips to work with caregivers #Shorts
• Thank a caregiver in your life #Shorts

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

Take five minutes to check out what's happening on the Self-Determination Network:

• 2022 was a Historic Year for Disability Employment: According to a recent report, 2022 was a remarkable and histrionic year for employment for people with disabilities. Learn about how people with disabilities out performed those without disabilities.
• Program Helps Gain Work Experience: Thanks to an internship program, young adults with disabilities are getting connected with career opportunities in the Chippewa Valley. Find out what the program entails.
• Caregiver Shortage Hitting Hard: The caregiver is shortage affects almost everyone in one way or another.  Read about how it's hitting LGBTQ  elderly and people with disabilities really hard.
• Funding Awarded for Housing for People with Disabilities: In January, HUD announced that it would provide $24.7 million for permanent affordable housing to people with disabilities. Find out what this funding will be used for.
• Great Resources: Direct care workers, also referred to as direct service workers, provide essential supports to older adults and people with intellectual and developmental disabilities, physical disabilities, and behavioral health needs. Check out these great resources that owe strategies and information on self-direction of home and community-based services, strengthening the direct service workforce (DSW) in rural areas, and emerging strategies for states.
• Electronic Visit Verification: Electronic visit verification (EVV) is required by federal law. All states have to collect visit information using an EVV system or they won’t get their full federal funding for Medicaid. It's in soft launch currently, but find out when hard launch will start.
• State Transition Plan: The Wisconsin Department of Health Services (DHS) received final approval on its Statewide Transition Plan from the Centers for Medicare & Medicaid Services. Learn what it includes.
• Collection of Disability Stats:  A recent report addresses critical gaps in national and state data related to people with disabilities by synthesizing complex data from numerous U.S. federal agencies into accessible formats. Learn what the data revealed.
• Bill to Increase Caregiver Pay: U.S. Sen. Bob Casey, chairman of the U.S. Senate Special Committee on Aging, and U.S. Rep. Debbie Dingell have introduced legislation to expand access to home and community-based services (HCBS) for adults, people with disabilities and injured workers, while increasing pay and improving benefits for in-home caregivers. Read about how this would help.
• Push to Make Transit Accessible: One in four adults in the US live with a disability; yet various public transportation continue to be inaccessible.  Learn about how the Secretary of Transportation wants to make transit accessible for all.
• Future of Self-Directed Care: Self-directed care undeniably has a place in the future of home-based care. How big that place is, however, is still up in the air. Read about the benefits of self-directed. Learn about some of the benefits of self-directed care.
• President Calls to Invest in Services:  President Joe Biden used his State of the Union address to double down on his plan to reinvigorate the nation's home and community-based services system. Find out what he plans to do.
• Immigrants Can Bridge Gaps: The U.S. is facing a growing crisis of unfilled job openings and high staff turnover that puts the safety of older, frail residents at risk. Read about why some experts feel that letting immigrants be care workers would work.
• Confusion about Ballot Return Assistance: As affirmed by an August 2022 Federal Court Order, people with disabilities have the right to receive assistance with all aspects of voting, including having a person of their choice deliver their ballot to their clerk or polling place.  Read about how there is still confusion about this.  

Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

• Webinar: One State’s Lessons Learned And Best Practices To Creating An Equitable Work Environment In State Government: February 21st, 1p.m. to 2:30p.m., Online
• Webinar On HCBS Waiver And Participant-Centered Service Planning And Delivery: February 21st, 2p.m. to 4p.m., Online
• Webinar: Accessible Parking And Passenger Loading Zones: March 2nd, 1:30p.m. to 3p.m., Online
• School Boards Matter Forum: March 6th, 6p.m. to 7:15p.m., Online
• An Untapped Funding Approach: Using Medicaid To Pay For Live-In Caregiver Housing And To Offset Wages For Care: March 7th, 1p.m. to 2p.m., Online
• Emerging Workforce Practices For Self-Direction: March 9th, 1p.m. to 2p.m., Online 
• Advocacy For Change: March 16th, 9a.m. to 4:30p.m., Concourse Hotel and the Capitol, Madison WI
• Disability Advocacy Day: March 23rd, 10a.m. to 3p.m., Monona Terrace and the Capitol, Madison WI  
• Home Health Care Services Electronic Visit Verification Forum: March 23rd, 1p.m. to 3p.m., Online

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News:

January 2023

Connect | Share |Learn | http://sdnetworkwi.org

Disability Advocacy Day 2023

Disability Advocacy Day will be Thursday March 23rd in Madison. We're excited that it will be back in-person! Registration opens February 1st, and we'll be sending out a message with information and a link.  We hope to see you there!  

Wisconsin Courts Matter in the 2023 Election Virtual Forum

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Jeremiah. With help from his support circle, this very determined self-advocat has worked his way into a great position in the federal government. Check out this month's Member Spotlight to get to know Jeremiah.   

Who should we shine the spotlight on next?

Stacy’s Journal

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

• Human Rights: #9 Control Your Money
• Human Rights: #10 Free From People Hurting You
• Human Rights: #11 Decide Your Own Schedule
• Human Rights: #12 Go to School
• Human Rights: #13 Get Medicine and Help From Doctors

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

Take five minutes to check out what's happening on the Self-Determination Network:

• Disability Language Debate: New research dives into the heated debate surrounding the language of autism and finds that preferences about how to describe those on the spectrum vary substantially depending on who you ask. Find out what options are being debated.
• Watch: Watch this great  video to learn more about Project SEARCH.
• Community-Based Services Should be Mandated: A report from the National Council on Disability finds that weaknesses in home and community-based services directly contributed to “needless deaths” among people with intellectual and developmental disabilities during the COVID-19 pandemic. Find out why community based services should be mandated.
• Strengthening Support for Family Caregivers: There are about 53 million family caregivers in the US.  A new report reveals new opportunities for governments to support them.
• Boost in Rural Transit Funding: Late in December, Governor Evers' office announced $5 million in rural transit funding. Learn what the funding will be used for.
• Youth Leadership Forum 2023: The Youth Leadership Forum is a week-long, overnight leadership training and career awareness program at Edgewood College for high school sophomores, juniors, and seniors with disabilities to learn leadership and self-advocacy skills. This year, it's July 9-14. Applications due February 3.
• Transportation Barriers Continue: Transportation barriers continue to one of the main hurdles to employment for people with disabilities. Read about why this is.
• Resolution Approach: Instead of constantly pushing themselves, some people with  disabilities embrace a more relaxed approach to goal-setting. Learn and why some people with disabilities take a different approach to making New Year's resolutions.
• Disability Activist Aims to More Inclusive: When Saphonia Purnell was told that her child had a disability, she decided to make disability rights the center of her world.  Read about how she plans to pull youth  and civic leaders together with the goal of making Green Bay more inclusive and welcoming for people with disabilities.
• Community Transition Services: Community transition services help people with intellectual and developmental disabilities with their move from either an institution to a community setting, or a congregate community setting to an individual community setting. Learn about what these services can help with.   
• Limit Increase for ABLE Accounts: People with disabilities can put most money into ABLE accounts starting this month.  Find out what the limit now is.
• Businesses Need to Hire People with Disabilities: It's estimated that more than 15% of people in the world experience disability; yet very few companies prioritize diversity and inclusion considering disability in their initiatives.  Learn about the several reasons this is.
• University Awarded Grant to Help with Caregiver Crisis: Recently, UW-Green Bay was awarded a grant from the Wisconsin Department of Health Services to help with the caregiver crisis.  Learn about how.
• IRIS Advisory Committee is Recruiting: The IRIS Advisory Committee is currently looking for interested persons to apply to be on the committee. Applications due February 3. Learn more and apply.
• Long-Term Care Advisory Council Seeks Applicants: The Wisconsin Long-Term Care Advisory Council is currently looking for interested persons to apply to be on the committee. Applications due February 3. Learn more and apply.
• Family Caregiver Phone Line: The National Alliance wants to hear from family caregivers. A phone line has been setup to check on the mental health of family caregivers.  Find out how it works.

Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

• Webinar: Assistive Technology: January 31st, 1p.m. to 2:30p.m., Online
• Webinar: Creating And Fostering Inclusive Wellness And Recreation Programs For Individuals With Disabilities: February 9th, 1p.m. to 2:30p.m., Online
• Webinar: Wisconsin Courts Matter: Wisconsin 2023 Elections: February 9th, 6:30p.m. to 7:45p.m., Online
• Advocacy For Change: March 16th, 9a.m. to 4:30p.m., Concourse Hotel and the Capitol, Madison WI
• Disability Advocacy Day: March 23rd, 10a.m. to 3p.m., Monona Terrace and the Capitol, Madison WI  

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News:

December 2022

Connect | Share |Learn | http://sdnetworkwi.org/

Disability Advocacy Day 2023

Mark your calendars!  Disability Advocacy Day will be Thursday March 23rd. We're excited to announce it will be back in-person!  More details will be coming after the holidays, but we wanted to be sure people save the date.  We hope to see you there!  

Center for Youth Voice, Youth Choice

BPDD has been working with a group of Youth Ambassadors as part of a  project called CYVYC (Civic) it stands for Center for Youth Voice, Youth Choice.

The Board For People with Developmental Disabilities applied to  be part of this national project. The goals of the project are: 1) to support states to promote alternatives to guardianship, so that fewer youth with intellectual or developmental disabilities (IDD) have legal guardians; and 2) to give youth opportunities to lead efforts to promote alternatives to guardianship. We are in year 2 or a 5 year project. The CYVYC  project and it’s ambassadors are committed to working to promote the use of Supported Decision-Making and alternatives to guardianship for transition aged youth. 

There are four ambassadors: Joran Anderson, Will Becker, Jennie Rojas, and Alesia Saffold. Ashley Mathy is mentor and Jordan also is a co-leader for the  project.

About Supported Decision Making:

• Supported Decision-Making lets adults with disabilities get the help they need to make decisions while keeping all their rights. 
• Supported Decision Making allows a person to identify Supporter(s) to help them get information, understand their options and tell others about their decisions.
• The Supported Decision-Making agreement lets teachers, doctors, bankers, and other professionals know that the person has given the Supporter permission to hear, receive, and talk about information with them.
  
  

Self-Determination is being able to  make choices about your life.

The more choices you make in your life, the better you will become at making choices.

• Tool Kit, presentations, information sheets and materials for families: https://wi-bpdd.org/index.php/supporteddecision-making/ 
• Supported Decision Making Agreement form: https://www.dhs.wisconsin.gov/forms/f02377.pdf
• Self-Determination YouTube Channel: https://www.youtube.com/c/SelfDeterminationChannel

Contact Fil Clissa for more information: fil.clissa@wisconsin.gov.

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Desi. This determined young lady is passionate about educating law enforcement and emergency personnel about how to interact with people with disabilities. Check out this month's Member Spotlight to get to know Desi.   

Who should we shine the spotlight on next?

Stacy’s Journal

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

• Human Rights: #6 Choose your supports and services
• Human Rights: #7 Say What You Want and Express Yourself
• Pink Umbrella Theater Company
• Human Rights: #8 Talk To and Be Around People You Want  

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

Take five minutes to check out what's happening on the Self-Determination Network:

• Independent Living Support Pilot: The Wisconsin Department of Health Services is preparing to launch a pilot program in July 2023 to help Wisconsinites who are older or have a disability, and who are not eligible for Medicaid, get short-term services so they can stay independent and healthy. Learn more about this program.
• Study Finds Doctors Discriminate: In a series of anonymous interviews with 22 U.S. doctors, some admitted to refusing care to people with disabilities, making the excuse that they weren't taking on new patients. Find out what else was revealed.
• Employment for People with Disabilities Trending Up: U.S. employment statistics over the last several months show an improvement in employment rates for people with disabilities. Read about the current employment statistics for people with disabilities.
• Housing Barriers: Millions of people living in the United States are feeling the effects of one of the worst affordable housing crises in a generation. But for the growing number of people with disabilities, finding and retaining quality housing they can afford is even more challenging. Learn about the barriers.
• Family Caregiver Hospital Discharge Survey: GWAAR, in partnership with our grassroots caregivers, are conducting a survey to collect Wisconsin family caregiver experiences at the time of a loved one/care recipient’s hospital discharge.  Take the survey.
• Updated Long-Term Plan Needed: 25% of adult Americans live with a disability and nearly 75% of those live with family members. Find out why advocates are trying to get legislators to understand  that there needs to be a better system.
• Electronic Visit Verification Hard Launch: The Wisconsin Department of Health Service announced a date for hard launch of electronic visit verification for personal care services to begin.  Find out when it is.
• Study Highlights Impact of COVID: The ongoing COVID-19 pandemic has impacted marginalized communities in many ways, especially those with disabilities and their access to health care. Learn about the impact it had on personal assistance services.
• Addressing Wages of Direct Care Workers: The direct care workforce represents a critical component of the United States employment market, yet pay remains low. Learn how states have taken a variety of actions through provider rate increases and minimum wage policies through the Medicaid program as two strategies to address recruitment and retention. 
• Vaccine Resources: Staying up-to-date on vaccinations is the most important thing we all can do to protect ourselves from serious illness due to COVID-19. It’s particularly crucial for older adults and people with disabilities. Check out this list of vaccine resources.
• Dangers of Congregate Settings: In the wake of the disproportionate death toll in congregate settings during the COVID-19 pandemic, this report examines weaknesses in the home and community-based services ecosystem and outlines a roadmap to expand community living options to meet the needs of people with disabilities across the lifespan. Learn about how it can be improved.
• Public Health Emergency: The United States will keep in place the public health emergency status of the COVID-19 pandemic, allowing millions of Americans to still receive free tests, vaccines, and treatments. Read about why it was extended.
• Organizations Receive Funding: Forty-three organizations focused on home and community-based services received $12 million from the Wisconsin Department of Health Services. Find out what it will be used for.
• Self-Advocacy Fellowship: The Self-Advocacy Resource and Technical Assistance Center is now accepting applications for fellows for a one-year self-advocacy project. Applications due January 9th.

Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

• Webinar: Strengthening Advocacy In The HCBS Settings Rule: Getting The Services You Need From The Waiver: December 14th, 11:30a.m. to 1p.m., Online

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.