Category: Network News
Self-Determination Network News:
March 2023
Connect | Share |Learn | http://sdnetworkwi.org
2023 Self-Determination Conference Call for Presenters
Are you interested in presenting at the 2023 Self-Determination Conference? The Wisconsin Board for People with Developmental Disabilities is seeking session proposals for Tuesday, October 17 & Wednesday, October 18, 2023. Proposals are due by noon on May 12th. Submit a proposal today!
State Budget Advocacy
Late in February, Governor Evers released his 2023-2025 budget proposal. The Survival Coalition put together an analysis of the proposal from a disability perspective. The Caregiver Crisis Coalition also has created a proposal that addresses many aspects of the caregiver crisis. We encourage you to use these documents while talking to your legislators about what you'd like to see in the budget.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Stephenie. Thanks to her family’s encouragement and belief in her, this self-advocate has done so many incredible things. She believes self-determination is having a voice and a choice what happens in your life. Check out this month's Member Spotlight to get to know Stephenie.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Human Rights: #16 Rest and Do the Things You Like to Do
- Human Rights: #17 Protection within the Law and Your Services
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Proposed Change to Benefits: A new proposal from the Social Security Administration would make life easier for millions of disabled Americans whose friends or family help them out with food. Learn more about the proposal.
- Making Caregiving a Career: By 2030, more than 1 in 5 people in the United States are expected to be ages 65 and older, and nearly 70% of all adults who reach age 65 will eventually require some type of long-term services and supports. Read about how there are several caregiver occupations in the home health care industry that are growing.
- Disability Inclusion: Disability inclusion means intentionally cultivating environments where all can flourish. It means taking action to make change happen. It means including disabled consumers. While corporations are slow to latch onto the idea, read about how small steps are leading to great progress.
- Crisis Leaves People Abandoned: A member of the Madison City Council and the Dane County Board is talking about the caregiver crisis that has been affecting people with disabilities and the elderly. Learn why it's both political and personal for her.
- EVV Resources: Electronic visit verification (EVV) is required by federal law for personal care and applicable supportive home care services. Check out these resources to learn about EVV.
- Being Reliant on Caregivers: Listen to this commentary about the power dynamics at play between a care provider and recipient, and the devaluation and lack of investment in care work.
- Assistive Technology Day: On March 1, the U.S. Senate passed a resolution to raise awareness and celebrate National Assistive Technology (AT) Awareness Day. Learn what the day honors.
- Breaking Point: After warning for years of an impending collapse in the disability services system, advocates say that the crisis is here. Read about things have escalated to a dangerous level forcing providers to deny people with disabilities Care and services.
- Passing of Disability Activist: The disability community is mourning the passing of disability rights activist Judy Heumann. Learn about the integral role she had in the disability rights movement.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Person-Centered Methods For Expanding Self-Determination In Provider-Directed Services: March 15th, 2p.m. to 3:30p.m., Online
- Advocacy For Change: March 16th, 9a.m. to 4:30p.m., Concourse Hotel and the Capitol, Madison WI
- Webinar: Inclusive Imagery – Writing Alt-Text Depicting People With Disabilities And Other Marginalized Identities: March 16th, 1p.m. to 2:30p.m., Online
- Webinar: The Intersection Of Women And Disability: March 21st, 1p.m. to 2:30p.m., Online
- Webinar: COVID-19 Data On Individuals With I/DD: March 22nd, 11a.m. to 12p.m., Online
- Disability Advocacy Day: March 23rd, 10a.m. to 3p.m., Monona Terrace and the Capitol, Madison WI
- Home Health Care Services Electronic Visit Verification Forum: March 23rd, 1p.m. to 3p.m., Online
- Webinar: Person-Centered Approaches To Supporting Dignity Of Risk For People With Disabilities: March 23rd, 2p.m. to 3:30p.m., Online
- Circles Of Life Conference: May 11th & 12th, The Wilderness Resort, Wisconsin Dells, WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
February 2023
Connect | Share |Learn | http://sdnetworkwi.org
Disability Advocacy Day 2023
Mark your calendar for Thursday March 23rd! Disability Advocacy Day is a day-long event in Madison focused on connecting self-advocates with their legislators to talk about issues that matter to them. Attendees are expected to participate in the full day of activities.
School Boards Matter Forum
Many Wisconsin communities will vote for school board members in the April 4th election. School Boards have a major impact on a community. On Monday March 6th from 6p.m to 7:15p.m., the Wisconsin Disability Vote Coalition is hosting a forum about the important role of school boards. The panel includes school board members who are parents of children with disabilities. You will also receive resources and be better prepared to vote on April 4th!
Registration is required. Register here for the School Boards Matter forum via Zoom.
Captioning will be provided. To request ASL Interpreters or other accommodations, please register as soon as possible and include that on your request.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Amy. As both former Miss Wheelchair Wisconsin and Miss Wheelchair USA, this teacher has a passion for education and making policy changes that benefit all people. Check out this month's Member Spotlight to get to know Amy.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Human Rights: #14 Have the Faith You Want
- Shining a Light on Richard
- Human Rights: #15 Own the Things You Want
- 3 Tips to work with caregivers #Shorts
- Thank a caregiver in your life #Shorts
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- 2022 was a Historic Year for Disability Employment: According to a recent report, 2022 was a remarkable and histrionic year for employment for people with disabilities. Learn about how people with disabilities out performed those without disabilities.
- Program Helps Gain Work Experience: Thanks to an internship program, young adults with disabilities are getting connected with career opportunities in the Chippewa Valley. Find out what the program entails.
- Caregiver Shortage Hitting Hard: The caregiver is shortage affects almost everyone in one way or another. Read about how it's hitting LGBTQ elderly and people with disabilities really hard.
- Funding Awarded for Housing for People with Disabilities: In January, HUD announced that it would provide $24.7 million for permanent affordable housing to people with disabilities. Find out what this funding will be used for.
- Great Resources: Direct care workers, also referred to as direct service workers, provide essential supports to older adults and people with intellectual and developmental disabilities, physical disabilities, and behavioral health needs. Check out these great resources that owe strategies and information on self-direction of home and community-based services, strengthening the direct service workforce (DSW) in rural areas, and emerging strategies for states.
- Electronic Visit Verification: Electronic visit verification (EVV) is required by federal law. All states have to collect visit information using an EVV system or they won’t get their full federal funding for Medicaid. It's in soft launch currently, but find out when hard launch will start.
- State Transition Plan: The Wisconsin Department of Health Services (DHS) received final approval on its Statewide Transition Plan from the Centers for Medicare & Medicaid Services. Learn what it includes.
- Collection of Disability Stats: A recent report addresses critical gaps in national and state data related to people with disabilities by synthesizing complex data from numerous U.S. federal agencies into accessible formats. Learn what the data revealed.
- Bill to Increase Caregiver Pay: U.S. Sen. Bob Casey, chairman of the U.S. Senate Special Committee on Aging, and U.S. Rep. Debbie Dingell have introduced legislation to expand access to home and community-based services (HCBS) for adults, people with disabilities and injured workers, while increasing pay and improving benefits for in-home caregivers. Read about how this would help.
- Push to Make Transit Accessible: One in four adults in the US live with a disability; yet various public transportation continue to be inaccessible. Learn about how the Secretary of Transportation wants to make transit accessible for all.
- Future of Self-Directed Care: Self-directed care undeniably has a place in the future of home-based care. How big that place is, however, is still up in the air. Read about the benefits of self-directed. Learn about some of the benefits of self-directed care.
- President Calls to Invest in Services: President Joe Biden used his State of the Union address to double down on his plan to reinvigorate the nation's home and community-based services system. Find out what he plans to do.
- Immigrants Can Bridge Gaps: The U.S. is facing a growing crisis of unfilled job openings and high staff turnover that puts the safety of older, frail residents at risk. Read about why some experts feel that letting immigrants be care workers would work.
- Confusion about Ballot Return Assistance: As affirmed by an August 2022 Federal Court Order, people with disabilities have the right to receive assistance with all aspects of voting, including having a person of their choice deliver their ballot to their clerk or polling place. Read about how there is still confusion about this.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: One State’s Lessons Learned And Best Practices To Creating An Equitable Work Environment In State Government: February 21st, 1p.m. to 2:30p.m., Online
- Webinar On HCBS Waiver And Participant-Centered Service Planning And Delivery: February 21st, 2p.m. to 4p.m., Online
- Webinar: Accessible Parking And Passenger Loading Zones: March 2nd, 1:30p.m. to 3p.m., Online
- School Boards Matter Forum: March 6th, 6p.m. to 7:15p.m., Online
- An Untapped Funding Approach: Using Medicaid To Pay For Live-In Caregiver Housing And To Offset Wages For Care: March 7th, 1p.m. to 2p.m., Online
- Emerging Workforce Practices For Self-Direction: March 9th, 1p.m. to 2p.m., Online
- Advocacy For Change: March 16th, 9a.m. to 4:30p.m., Concourse Hotel and the Capitol, Madison WI
- Disability Advocacy Day: March 23rd, 10a.m. to 3p.m., Monona Terrace and the Capitol, Madison WI
- Home Health Care Services Electronic Visit Verification Forum: March 23rd, 1p.m. to 3p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
January 2023
Connect | Share |Learn | http://sdnetworkwi.org
Disability Advocacy Day 2023
Disability Advocacy Day will be Thursday March 23rd in Madison. We're excited that it will be back in-person! Registration opens February 1st, and we'll be sending out a message with information and a link. We hope to see you there!
Wisconsin Courts Matter in the 2023 Election Virtual Forum
| Join the Disability Vote Coalition on Zoom on Thursday February 9th 6:30p.m. to 7:45p.m. to hear from their panel of experts about why Wisconsin Courts Matter. On February 21 and April 4, Wisconsin voters will decide who serves on our courts, including an open Wisconsin Supreme Court seat. The winning Supreme Court candidate will be appointed for a ten year term. Depending on where you live, you may also vote for Court of Appeals or Circuit Court. |
| State courts make decisions that affect our rights and liberties. They address issues like voting rights, education, mental health, access to healthcare, employment rights, guardianships, and more. Join them on February 9th to make sure you are prepared to vote. |
| Click here to register for the Zoom event. To request disability related accommodations, include your request with your registration. |
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Jeremiah. With help from his support circle, this very determined self-advocat has worked his way into a great position in the federal government. Check out this month's Member Spotlight to get to know Jeremiah.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Human Rights: #9 Control Your Money
- Human Rights: #10 Free From People Hurting You
- Human Rights: #11 Decide Your Own Schedule
- Human Rights: #12 Go to School
- Human Rights: #13 Get Medicine and Help From Doctors
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Disability Language Debate: New research dives into the heated debate surrounding the language of autism and finds that preferences about how to describe those on the spectrum vary substantially depending on who you ask. Find out what options are being debated.
- Watch: Watch this great video to learn more about Project SEARCH.
- Community-Based Services Should be Mandated: A report from the National Council on Disability finds that weaknesses in home and community-based services directly contributed to “needless deaths” among people with intellectual and developmental disabilities during the COVID-19 pandemic. Find out why community based services should be mandated.
- Strengthening Support for Family Caregivers: There are about 53 million family caregivers in the US. A new report reveals new opportunities for governments to support them.
- Boost in Rural Transit Funding: Late in December, Governor Evers' office announced $5 million in rural transit funding. Learn what the funding will be used for.
- Youth Leadership Forum 2023: The Youth Leadership Forum is a week-long, overnight leadership training and career awareness program at Edgewood College for high school sophomores, juniors, and seniors with disabilities to learn leadership and self-advocacy skills. This year, it's July 9-14. Applications due February 3.
- Transportation Barriers Continue: Transportation barriers continue to one of the main hurdles to employment for people with disabilities. Read about why this is.
- Resolution Approach: Instead of constantly pushing themselves, some people with disabilities embrace a more relaxed approach to goal-setting. Learn and why some people with disabilities take a different approach to making New Year's resolutions.
- Disability Activist Aims to More Inclusive: When Saphonia Purnell was told that her child had a disability, she decided to make disability rights the center of her world. Read about how she plans to pull youth and civic leaders together with the goal of making Green Bay more inclusive and welcoming for people with disabilities.
- Community Transition Services: Community transition services help people with intellectual and developmental disabilities with their move from either an institution to a community setting, or a congregate community setting to an individual community setting. Learn about what these services can help with.
- Limit Increase for ABLE Accounts: People with disabilities can put most money into ABLE accounts starting this month. Find out what the limit now is.
- Businesses Need to Hire People with Disabilities: It's estimated that more than 15% of people in the world experience disability; yet very few companies prioritize diversity and inclusion considering disability in their initiatives. Learn about the several reasons this is.
- University Awarded Grant to Help with Caregiver Crisis: Recently, UW-Green Bay was awarded a grant from the Wisconsin Department of Health Services to help with the caregiver crisis. Learn about how.
- IRIS Advisory Committee is Recruiting: The IRIS Advisory Committee is currently looking for interested persons to apply to be on the committee. Applications due February 3. Learn more and apply.
- Long-Term Care Advisory Council Seeks Applicants: The Wisconsin Long-Term Care Advisory Council is currently looking for interested persons to apply to be on the committee. Applications due February 3. Learn more and apply.
- Family Caregiver Phone Line: The National Alliance wants to hear from family caregivers. A phone line has been setup to check on the mental health of family caregivers. Find out how it works.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Assistive Technology: January 31st, 1p.m. to 2:30p.m., Online
- Webinar: Creating And Fostering Inclusive Wellness And Recreation Programs For Individuals With Disabilities: February 9th, 1p.m. to 2:30p.m., Online
- Webinar: Wisconsin Courts Matter: Wisconsin 2023 Elections: February 9th, 6:30p.m. to 7:45p.m., Online
- Advocacy For Change: March 16th, 9a.m. to 4:30p.m., Concourse Hotel and the Capitol, Madison WI
- Disability Advocacy Day: March 23rd, 10a.m. to 3p.m., Monona Terrace and the Capitol, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
December 2022
Connect | Share |Learn | http://sdnetworkwi.org/
Disability Advocacy Day 2023
Mark your calendars! Disability Advocacy Day will be Thursday March 23rd. We're excited to announce it will be back in-person! More details will be coming after the holidays, but we wanted to be sure people save the date. We hope to see you there!
Center for Youth Voice, Youth Choice
BPDD has been working with a group of Youth Ambassadors as part of a project called CYVYC (Civic) it stands for Center for Youth Voice, Youth Choice.
The Board For People with Developmental Disabilities applied to be part of this national project. The goals of the project are: 1) to support states to promote alternatives to guardianship, so that fewer youth with intellectual or developmental disabilities (IDD) have legal guardians; and 2) to give youth opportunities to lead efforts to promote alternatives to guardianship. We are in year 2 or a 5 year project. The CYVYC project and it’s ambassadors are committed to working to promote the use of Supported Decision-Making and alternatives to guardianship for transition aged youth.
There are four ambassadors: Joran Anderson, Will Becker, Jennie Rojas, and Alesia Saffold. Ashley Mathy is mentor and Jordan also is a co-leader for the project.
About Supported Decision Making:
- Supported Decision-Making lets adults with disabilities get the help they need to make decisions while keeping all their rights.
- Supported Decision Making allows a person to identify Supporter(s) to help them get information, understand their options and tell others about their decisions.
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The Supported Decision-Making agreement lets teachers, doctors, bankers, and other professionals know that the person has given the Supporter permission to hear, receive, and talk about information with them.
Self-Determination is being able to make choices about your life.
The more choices you make in your life, the better you will become at making choices.
- Tool Kit, presentations, information sheets and materials for families: https://wi-bpdd.org/index.php/supporteddecision-making/
- Supported Decision Making Agreement form: https://www.dhs.wisconsin.gov/forms/f02377.pdf
- Self-Determination YouTube Channel: https://www.youtube.com/c/SelfDeterminationChannel
Contact Fil Clissa for more information: fil.clissa@wisconsin.gov.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Desi. This determined young lady is passionate about educating law enforcement and emergency personnel about how to interact with people with disabilities. Check out this month's Member Spotlight to get to know Desi.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Human Rights: #6 Choose your supports and services
- Human Rights: #7 Say What You Want and Express Yourself
- Pink Umbrella Theater Company
- Human Rights: #8 Talk To and Be Around People You Want
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Independent Living Support Pilot: The Wisconsin Department of Health Services is preparing to launch a pilot program in July 2023 to help Wisconsinites who are older or have a disability, and who are not eligible for Medicaid, get short-term services so they can stay independent and healthy. Learn more about this program.
- Study Finds Doctors Discriminate: In a series of anonymous interviews with 22 U.S. doctors, some admitted to refusing care to people with disabilities, making the excuse that they weren't taking on new patients. Find out what else was revealed.
- Employment for People with Disabilities Trending Up: U.S. employment statistics over the last several months show an improvement in employment rates for people with disabilities. Read about the current employment statistics for people with disabilities.
- Housing Barriers: Millions of people living in the United States are feeling the effects of one of the worst affordable housing crises in a generation. But for the growing number of people with disabilities, finding and retaining quality housing they can afford is even more challenging. Learn about the barriers.
- Family Caregiver Hospital Discharge Survey: GWAAR, in partnership with our grassroots caregivers, are conducting a survey to collect Wisconsin family caregiver experiences at the time of a loved one/care recipient’s hospital discharge. Take the survey.
- Updated Long-Term Plan Needed: 25% of adult Americans live with a disability and nearly 75% of those live with family members. Find out why advocates are trying to get legislators to understand that there needs to be a better system.
- Electronic Visit Verification Hard Launch: The Wisconsin Department of Health Service announced a date for hard launch of electronic visit verification for personal care services to begin. Find out when it is.
- Study Highlights Impact of COVID: The ongoing COVID-19 pandemic has impacted marginalized communities in many ways, especially those with disabilities and their access to health care. Learn about the impact it had on personal assistance services.
- Addressing Wages of Direct Care Workers: The direct care workforce represents a critical component of the United States employment market, yet pay remains low. Learn how states have taken a variety of actions through provider rate increases and minimum wage policies through the Medicaid program as two strategies to address recruitment and retention.
- Vaccine Resources: Staying up-to-date on vaccinations is the most important thing we all can do to protect ourselves from serious illness due to COVID-19. It’s particularly crucial for older adults and people with disabilities. Check out this list of vaccine resources.
- Dangers of Congregate Settings: In the wake of the disproportionate death toll in congregate settings during the COVID-19 pandemic, this report examines weaknesses in the home and community-based services ecosystem and outlines a roadmap to expand community living options to meet the needs of people with disabilities across the lifespan. Learn about how it can be improved.
- Public Health Emergency: The United States will keep in place the public health emergency status of the COVID-19 pandemic, allowing millions of Americans to still receive free tests, vaccines, and treatments. Read about why it was extended.
- Organizations Receive Funding: Forty-three organizations focused on home and community-based services received $12 million from the Wisconsin Department of Health Services. Find out what it will be used for.
- Self-Advocacy Fellowship: The Self-Advocacy Resource and Technical Assistance Center is now accepting applications for fellows for a one-year self-advocacy project. Applications due January 9th.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Strengthening Advocacy In The HCBS Settings Rule: Getting The Services You Need From The Waiver: December 14th, 11:30a.m. to 1p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
November 2022
Connect | Share |Learn | http://sdnetworkwi.org/
Let's Keep the Conversation Going: The 2022 Self-Determination Conference
It was another great Self-Determination Conference this year. We enjoyed seeing many of you in-person, and we're glad that people who couldn't make it could join virtually. What was your favorite part about it? Let's keep the conversation going! Share your comments, questions, and ideas.
Congratulations to the 2022 Diehard Award Winners!
We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:
- Ramsey Lee
- Emily Savage
- Jenny Felty
- Lisa Schneider
- Lisa Sobczyk
Let's Talk About Solutions to the Caregiver Crisis
During the 2022 Self-Determination Conference, InControl Wisconsin led a session about the Wisconsin Direct Workforce Crisis. We talked about “what if, what then” situations we all face as caregivers and people with disabilities that are brought on by no available paid workers. Everyone’s situation is different. Everyone’s story is important.
We want to hear from more people about their “what if, what then” scenarios. More importantly, we want you to feel open to share your ideas with each other about how to make things better.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Kate. This avid Packers fan uses self-determination to live life to the fullest. She has been involved in all sorts of advocacy activities, and she loves connecting with others and hearing their stories. Check out this month's Member Spotlight to get to know Kate.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- 2022 Self-Determination Conference Wrap Up
- Human Rights: #3 Have privacy
- Human Rights: #4: Get a Job
- Human Rights #5: Vote
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Input Needed on National Strategy to Support Family Caregivers: The National Strategy to Support Family Caregivers is intended to serve as a roadmap for better recognizing and supporting family and kinship caregivers, backgrounds, and caregiving situations. A public comment period is open until November 30.
- Digital Accessibility Challenges: Despite a surge in hiring of digital accessibility specialists, as of 2022, only 3% of the Internet is fully accessible to people with disabilities. Read about some of the challenges of making the Internet accessible.
- Assessing Worker Needs and Shortages in Rural Areas: Increasing wages and benefits, improving training and career development options, and adding flexibility to state Medicaid waiver programs to pay family caregivers for providing personal care services are just some of the things that would help with improving the personal care aide workforce in rural areas. Learn about more would help with the shortage.
- Accessibility in the Apostle Islands: Sightseeing the Apostle Islands is often challenging for people who have mobility impairments. Find out what a nonprofit group is doing to try to make it more accessible.
- Caregiver Shortage Impact on the Economy: The caregiver shortage crisis impacts every field of the economy. Read about how the crisis is affecting the economy.
- People with Disabilities Reap Benefits of Remote Work: Adults with disabilities rarely have been employed at such a high rate as now. This is in large part thanks to the pandemic. Learn why more people are having success finding remote employment.
- Service Animal Survey: The Southwest ADA Center is conducting a study on the experiences of employed people with disabilities using service animals and other assistance animals at work. Take the survey.
- Challenging Situation: As the direct care worker shortage continues, more and more people are being affected. Learn about one couple's struggle to get in-home caregivers.
- Climate Change Effects: As climate-related disasters become more common and severe, some feel that people with disabilities are being left out of the planning process. Read what a recent report found.
- Caregiver Report: ANCOR has measured the impact of the direct support workforce crisis on community providers and their ability to provide high-quality community-based services for people with intellectual and developmental disabilities (I/DD). Learn what the research found.
- The Pandemic Continues to Shape Medicaid Priorities: After substantial gains in 2020, Medicaid enrollment is expected to decline in 2020 due to the COVID public health emergency ending Take a look at the examination of the changes to Medicaid taking place across the country.
- Ageism and Ableism: Nine in 10 older adults experience everyday ageism, yet it is rarely talked about. Learn about how ageism is deeply embedded in the health care system.
- Independent Living Survey: The Independent Living Council of Wisconsin is looking for public input from consumers, stakeholders, and community partners is needed to describe the challenges and barriers persons with disabilities face. Take the survey!
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Veterans With Disabilities: An Overview Of Veteran Affairs (VA) Resources Supporting Independence And Inclusion: November 15, 1p.m. to 2:30p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
October 2022
Connect | Share |Learn | http://sdnetworkwi.org/
We're looking forward to seeing many of you next week at the Self-Determination Conference. InControl Wisconsin will have an exhibit table at The conference and we'd love it if people stop by and say hi! The week after the conference, we'll start a discussion on the Network for people to share their thoughts and experiences about the conference. Watch for an email the week after with a link and continue the great conversation!
Survival Coalition Family Caregiver Survey Results
The Survival Coalition (which InControl Wisconsin is part of) would like to thank everyone who took the Family Caregiver Survey. Here is a summary of the results. Survival Coalition recently held a press event sharing the results of the survey, and family caregivers and those with needing care shared their personal experiences and struggles about the caregiver shortage crisis. We encourage you to share your personal stories about the crisis and ask legislators to make helping family caregivers a priority in the next state budget.
November 8th Election
Wisconsin will hold a mid-term election on Tuesday November 8th. We want to thank the Wisconsin Disability Vote Coalition for providing us with the following information regarding absentee ballots.
Absentee Voting for the November 8th Election: New Guidance
Are you voting by mail for the November 8th election? Make sure you know your rights.
Ballot Return Assistance
An August 31st federal court order clarified that federal law protects the right of all disabled Wisconsin voters to receive assistance to mail or deliver their absentee ballots, or to assist with any part of the voting process.
Voters with a disability may request assistance with voting from a person of their choice, other than the voter’s employer or agent of that employer or officer or agent of the voter’s union. Voters should let their assistor know that clerks may ask their “assistor” to confirm that they are returning a ballot for a person with a disability. The voter and assistor should not have to fill out any forms or provide proof of disability.
Disability Rights Wisconsin (DRW) has guidance for voters who need assistance mailing or returning their absentee ballot:
Completing and Returning Your Ballot
Make sure your vote counts! Carefully follow the instructions for completing your absentee ballot and the certificate envelope. Make sure that your witness signs their name and records their complete address on the envelope including street number, street name, municipality, state and zip code. Clerks are no longer able to correct missing or incomplete witness address information.
Drop boxes are no longer allowed for ballot return. You will need to return your ballot by mail or deliver your ballot in person to your clerk or clerk’s office by Election Day.
- If you are mailing your completed ballot, be sure to allow plenty of time for mail delivery, to make sure your ballot arrives in time.
- If you or an assistor are delivering your ballot, it must be returned by 8 PM on Election Day.
- You may check with your Municipal Clerk to determine where your assistor should deliver your ballot. Find contact information for your Clerk on My Vote Wisconsin.
If you have questions or experiences barriers to voting, please contact DRW.
DRW Voter Hotline: call 844-347-8683 or email info@disabilityvote.org
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Jennie. This incredible self-advocate enjoys attending advocacy conferences, and she's learning about supported decision making. Check out this month's Member Spotlight to get to know Jennie.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Human Rights: #1 Live Where You Want
- Human Rights: #2 Make Your Own Choices
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Augmentitive and Alternative Communication Survey: Mike posted about an opportunity to participate in a survey about Augmentitive and Alternative Communication. Learn more about this opportunity!
- Importance of DSPs in the Workplace: Everyday, thousands of Direct Support Professionals assist people with disabilities in the workplace. In honor of DSP Recognition Week, the Department of Labor put together a webpage talking about their contributions and access to resources for them. Check it out.
- Language Change in US Code: A bill eliminating the term "mentally retarded" from the US code was recently introduced to the US House of Representatives. Learn why this is finally being done.
- Self-Direction Call for Presenters: Applications to present during a virtual self-direction conference series in 2023 are now being accepted. Applications due October 20th.
- Survey on Access to Healthcare: The Southwest ADA Center is conducting a study on the experiences of people with disabilities with their accessibility of healthcare. Take a few minutes to complete the survey.
- National Strategy to Support Family Caregivers: The US Department of Health and Human Services released a roadmap needed to better support family caregivers. Learn about some of actions suggested.
- 10 Things to Know: Millions of people use long-term services and supports delivered in home and community based settings. Find out 10 facts about long-term care.
- Hackers out of Necessity: People with disabilities often become " hackers" because they are forced to figure out how to adapt things to make things functional for them. Read this incredible essay by a son of two parents who have physical limitations comparing their navigating their world to skateboarding.
- Public Comment on Accessibility Guidelines for Transaction Machines: The US Access Board is seeking public comment on accessibility guidelines for self-service transaction machines. Give your feedback!
- Seeking Information on Person-Centered Planning for Multiple Chronic Conditions: The Agency for Healthcare Research and Quality (AHRQ) is seeking public comment about comprehensive, longitudinal, person-centered care planning for people at risk for or living with multiple chronic conditions. Comments due November 20th .
- Disability Employment Awareness Month: October is National Disability Employment Awareness Month. Read the declaration President Biden released.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: States’ Journey In Using American Rescue Plan Funding To Increase Competitive, Integrated Employment: October 11th, 2p.m. to 3:30p.m., Online
- Webinar: Accessible Camping: October 13, 1p.m. to 2:30p.m., Online
- Webinar: Disability And DEI (Diversity, Equity, And Inclusion) Panel Discussion: October 13, 1p.m. to 2:30p.m., Online
- INTEGRAL Adult Autism Conference: November 5th, Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
September 2022
Connect | Share |Learn | http://sdnetworkwi.org/
Have you registered for the 2022 Self-Determination Conference yet? It will be held October 17-19 at the Kalahari Resort in Wisconsin Dells. Join us for one of the largest events for people with disabilities and people who support them. There is an option to attend virtually as well. Registration closes September 30. Register now!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Hannah. When this very determined lady isn’t working or volunteering in her community, you may find her doing a wide array of hobbies. Check out this month's Member Spotlight to get to know Hannah.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Adult Changing Tables: Most people don't think twice about the ability to use a public restroom, but, for some people with different abilities, using the restroom requires accommodations that aren't readily available in most public places. Read about how one county in Wisconsin is purposing that adult changing stations be installed in county faculties with the highest foot traffic.
- Outdoor Accessibility: More people started visiting their local and state parks at the start of the COVID-19 pandemic, but who has access to those outdoor spaces? Listen to this interview to learn about what's being done to make outdoor spaces more accessible.
- Marriage Equality: For many people with disabilities, marriage is a tricky topic. Those who receive Social Security benefits often have to make the tough decision to not get legally married because they would lose their benefits they rely on. Read about how disability advocates continue to talk with legislators in hopes to make changes happen.
- Battle Continues over Rideshare Accessibility: Disability advocates continue to advocate for wheelchair accessible vehicles to be available in ride share companies such as Uber and Lyft. Learn why companies are arguing they're not required to follow the Americans with Disabilities Act.
- Increase in Representation: A new study found that representation among adults who have Autism and development disabilities is growing. Find out where the increase is being seen.
- Supplemental Security Income Benefits Fall Short: Because of a quirk in the calendar, people receiving Supplemental Security Income will receive two payments in September, but none in October. The average monthly benefit is $624 per month, but many people feel it isn't enough. Read about why many people feel it isn't enough.
- Ruling Brings Sigh of Relief: Wisconsin voters with disabilities recently breathed a sigh of relief when a US District Judge said that voters with disabilities can receive assistance returning their ballot despite a state Supreme Court ruling. Learn what the judge based the ruling on.
- New Guidance for Voters: After a federal judge ruled that people with disabilities could receive assistance returning their ballot, the Wisconsin Elections Commission issued guidance about how people can assist. Find out what it says.
- iPad Loan Program: WisTech, Wisconsin's Assistive Technology Act Program, reminds everyone that we have iPads (including a mini and an iTouch) available for short-term loans for 30 days. Learn more about this program.
- 2022 ADA Transition Plan: WisDOT has published the 2022 Americans with Disabilities Act (ADA) Transition Plan. There is a public comment period open through Friday, September 30. Your feedback is very important, and we encourage you to take the time to participate in this opportunity.
- Transportation Survey: The National Aging and Transportation Center wants to hear about challenges and promising practices in providing accessible transportation to older adults and people with disabilities. Take their survey by September 28th.
- Call for Presenters: Applications are now being accepted to present at the 2023 Circles of Life Conference. Applications due October 28th.
- Home Care Industry: Home-based care will account for the majority of an estimated 1.2 million new jobs in the direct care workforce sector from now until 2030. Find out what a new report suggests the industry will need to do in order to keep up with the growth.
- Direct Care Worker Report: A report was recently released that provides a snapshot was the direct care workforce. Take a few minutes to look at it.
- Wisconsin Voters Relieved, but Not the Case Elsewhere: While Wisconsin voters with disabilities continue to breathe a sigh of relief after a federal judge ruled that the Voting Rights Act, which allows for voter assistance, trumps state law, voters in other states continue to fight over ballot assistance. Read about how laws in other states have made it difficult or impossible for some voters with disabilities to vote.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: ADA Enforcement And Steps You Can Take Before You File An ADA Complaint: September 20th, 1p.m. to 2:30p.m., Online
- Webinar: The Voices Of People With Disabilities And Older Adults - Strengthening Advocacy In The HCBS Settings Rule: September 23rd, 1p.m. to 2:30p.m., Online
- Webinar: Building A Successful Document Accessibility Program: Strategies, Methods, And Workplans For Inclusive Programs: September 28th, 12p.m. to 1p.m., Online
- Webinar: Accessible Amusement Rides: October 6th, 1:30p.m. to 3p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
August 2022
Connect | Share |Learn | http://sdnetworkwi.org/
Have you registered for the 2022 Self-Determination Conference yet? It will be held October 17-19 at the Kalahari Resort in Wisconsin Dells. Join us for one of the largest events for people with disabilities and people who support them. There is an option to attend virtually as well. Register now!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Rachel. Between working for the state and being involved in different advocacy activities, this busy lady doesn’t have much free time. Check out this month's Member Spotlight to get to know Rachel.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Take the Survey: The National Survey on Health and Disability is an annual survey about health, quality of life, access to health care services, and the COVID-19 pandemic, concerning people with disabilities or health conditions. The survey closes September 2nd.
- Continued Struggles for Family Caregivers: Family caregivers continue to be forced to pick up the slack due to the workforce shortage. Read about how the pandemic only made the situation worse.
- Lack of Hazard Pay for Caregivers: According to a recent study, more than half of US states didn't support caregivers with hazard pay or paid sick leave policies during the first 18 months of the pandemic. Learn about what else the study revealed.
- Affects of Unwinding the Public Health Emergency Policies: A report was recently released about how unwinding the public health emergency policies is affecting those who have disabilities. Find out what the main issues seems to be.
- Vocational Rehabilitation Success: After a life-changing injury, a man in Price County was able to get back to doing what he loves thanks to help from the Department of Department of Vocational Rehabilitation. Read about what accommodations and technology he was able to get.
- Listen Now: National Public Radio did an interview to commemorate the 32nd anniversary of the Americans with Disabilities Act. It talks about the protections people have and what more is needed. Listen to the interview.
- Fact Sheet: To mark the 32nd anniversary of the Americans with Disabilities Act, the Biden-Harris Administration released a new fact sheet. Check it out!
- Voting Lawsuit: Recently, four Wisconsin voters with disabilities filed a lawsuit asking the federal court to ensure that voters can get assistance returning their ballot. Read about why this is so important.
- Employment Brief: The Administration for Community Living recently released a new brief summarizing research on Customized Integrated Employment. Find out what is being done to increase knowledge about the benefits of Customized Employment.
- Long COVID Reports: The Department of Health and Human Services released two reports on the effects of Long COVID. Learn what the reports are about.
- Partners in Policymaking: Applications for the next Partners in Policymaking class are now being accepted. Partners is a six weekend hybrid course that trains people how to advocate for policies and initiatives that support full participation and inclusion of people with disabilities. Applications due September 30th.
- SPARK Grants: Applications are now available for Sparks Grants. Sparks grants are available for grassroots groups that want to be more inclusive of people with disabilities, but are not sure how to do it. Applications are due September 10th.
- Flying Problems Continue: For travelers who wheelchairs or scooters, flying is an embarrassing and risky ordeal. Check out this article documenting a person who uses while navigating taking a flight.
- Key Disability Questions for Candidates: Midterm elections are happening in many states. Learn about five key questions that people with disabilities may want to consider when researching candidates.
- Input Needed on Long-Range Plan: The Administration for Community Living is seeking input from stakeholders in developing its 2024-2029 long-range plan. Participate in a listening session.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Common Sources Of Confusion In The ADA And ABA Standard: September 1, 1:30p.m. to 3p.m. Online
- 2022 Update On Got Transition®’S Health Care Transition Resources: September 8, 12p.m. to 1p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
July 2022
Connect | Share |Learn | http://sdnetworkwi.org/
The 2022 Self-Determination Conference will be held October 17-19 at the Kalahari Resort in Wisconsin Dells. Join us for one of the largest events for people with disabilities and people who support them. There is an option to attend virtually as well. Register now!
2022 Diehard Award Nominations
Do you know someone who goes above and beyond to improve community supports for individuals with disabilities? Do they support self-determination? Nominate them for a Diehard Award in one of the following two categories: Professional Advocate and Self-Advocate/Grassroots Advocate.
A Diehard is an individual who has made a significant contribution to the advocacy work here in Wisconsin. A diehard is someone with a steadfast commitment to the principles of community integration and self-determination. Diehards go above and beyond to make sure everyone is counted. Awards will be presented Tuesday October 18th at the Self-Determination Conference. Nominations due by noon on August 15th. Nominate someone today!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Cheryl. Not only is she a phenomenal photographer, she’s also a best-selling author. She believes self-determination is the key to creating the life just as we want it to be. Check out this month's Member Spotlight to get to know Cheryl.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Electronic Visit Verification Impedes Quality and Quantity of Care: In 2016, the CURES Act required all Medicaid-funded Personal Care Services and Home Health Services to implement Electronic Visit Verification. States have been working on getting a system set up; however, several issues have come up. Read about how a impact study found EVV tends to reduce quality and quantity of care.
- Funding Deadline Extended: The Department of Health Services announced that states would have an additional year to use the funding from the American Rescue Plan to enhance and expand home-and-community-based services. Find out why this is great news.
- COVID Changed the Way the World Sees Disability: The pandemic has opened many people's eyes about disability. Learn about how many found their lives drastically changed and learning what it's like to have a disability.
- Disability and the Digital Divide: The Office of Disability Employment Policy in the Department of Labor has released a paper on the digital divide and disability. It discusses details in three main categories: employment outcomes, home internet subscriptions, and internet use. Find out why people with disabilities tend to use the Internet less.
- Medicaid and CHIP Report: The Medicaid and CHIP Payment and Access Commission released its 2022 report to Congress with various recommendations on how to improve Medicaid and CHIP. Learn what those recommendations include.
- Take a Survey: Are you a person with a disability who is working for an employer? Take this survey to about the wellness programs you participate in.
- Advocacy Priorities Guide: The National Council on Independent Living released its 2022 Advocacy Priorities Guide. Check out this great resource.
- Watch: The Wisconsin workforce shortage is worsening partly because family caregivers are being overlooked. In this interview on Wisconsin Eye, experts discuss survey results, tell us what employers are saying, and share recommendations for improvement.
- Inaccessible Sidewalks and Streets: The Americans with Disabilities Act was signed into law almost 32 years ago, but, yet, there are several public places that still aren't accessible--especially streets and sidewalks. Read about what advocates hope the infrastructure bill will help with.
- Accessible At-Home COVID Tests: The Biden-Harris Administration has launched a new initiative to expand the availability of at-home tests that are more accessible for people who are blind or have low vision. Learn about how they work.
- Report Illustrates Increased Risk of COVID for People with Disabilities: The CDC recently released findings from a comparison data on COVID cases and hospitalizations for two groups of Medicare beneficiaries. Learn what the report found.
- Program Helps Farmers Find Success: There are about 38000 farmers who have a disability or limitation in Wisconsin. Learn about a program that helps them succeed.
- Social Security Benefits Expected to Increase: People who receive Social Security and Supplemental Security Income will likely see a significant increase in their benefits next year. Find out why.
- Accessible Housing Training: The U.S. Department of Housing and Urban Development's Office of Fair Housing/Equal Opportunity (FHEO) will provide comprehensive virtual training on accessibility requirements of the Fair Housing Act for residential elements and spaces, including kitchens, bathrooms, routes, public and common-use areas, and structures Find out when more about this training.
-
Court Ruling Concerns Advocates: A recent ruling by the Wisconsin Supreme Court bars drop boxes and restricts how voters return their ballots. Read about why this is concerning.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: ADA Anniversary Update: July 18th, 1p.m. to 2:30p.m., Online
- Meeting Of The President's Committee For People With Intellectual Disabilities: July 28th, 11a.m. to 4p.m. Online
- Webinar: Accessible Recreational Boating Facilities And Fishing Piers And Platforms: August 4th, 1:30p.m. to 3p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
June 2022
Connect | Share |Learn | http://sdnetworkwi.org/
Family Caregiver Survey
Are you a family caregiver who provides care to a loved one?
Have you been unable to find direct care workers to hire? Are you picking up the pieces and filling in the gaps yourself?
Are you employed full or part time, or not working to make sure your loved one had the care they need?
Have you worried what would happen if you suddenly became unable to do your caregiving duties because of physical injury or illness?
You are not alone.
We need your stories to show the policy makers the reality of many people’s day to day lives.
Please take the Survival Coalition Family Caregiver Survey before June 17, 2022.
Survey results will be used to educate policy makers, shared with media outlets and advocates.
The 2022 Self-Determination Conference will be held October 17-19 at the Kalahari Resort in Wisconsin Dells. Applications for exhibitors and microbusinesses are now being accepted. Microbusinesses have the unique opportunity to sell not only at the conference, but all year long. Visit www.allAmarket.org to sign up to sell merchandise year around. Click here to fill out the application to exhibit at the conference. Applications are due by July 20.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Kai. This resilient lady has recently learned that, through self-determination, she can build a support circle who will support and encourage her to be successful. Check out this month's Member Spotlight to get to know Kai.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Augmentative Alternative Communication Newsletter: Mike shared the newsletter from the Augmentative Alternative Communication Amplify program with us. Check it out and see what it's about.
- Artificial Intelligence Guidance: Recently, two government agencies issued guidance on artificial intelligence. Learn about what the guidance explains.
- EVV Reconsideration: The electronic visit verification process is using intense reconsideration. Read about why it's becoming a topic of heated debate.
- Impact of COVID on People with Disabilities: When COVID hit, nearly every project funded by the Administration for Community Living's Institute on Disability, Independent Living, and Rehabilitation Research experienced delays and pivoted. Learn what grantees found.
- Assistive Technology State Plan: The Wisconsin Assistive Technology Advisory Council is looking for feedback on the 2021-2023 State AT Plan. Written feedback can be submitted until June 30.
- Accessibility Gains From the Pandemic: As the pandemic whines don't (or at least as things return to a new normal), many people with disabilities hope accessibility gains made during the last few years won't be forgotten. Find out what accommodations people hope will continue.
- Watch: Many adults with disabilities often feel left hanging when they turn 18.A new documentary follows a young man with multiple physical disabilities as he navigates adulthood. Learn more and watch the film.
- Digital Access Video Series: The U.S. Department of Education’s Office for Civil Rights (OCR) released a 20-part video series covering a variety of topics on digital access in education, including how people with disabilities use technology, applicable federal regulations, and identifying and remediating barriers to access. Check them out!
- New Medicaid Waiver Rule: Federal officials say they are moving forward with implementing a Medicaid rules that standardizes what counts as home-and-community-based services for people with disabilities. Read about what the rule entails.
- Public Health Emergency Unwinding Resource: The Centers for Medicare & Medicaid Services recently released a new resource to help states understand and meet legal requirements for Medicaid and other programs when the public health emergency ends. Check it out!
- Vaccine Information Website Accessibility: After many complaints about vaccine information websites being inaccessible for many people with disabilities, the Department of Justice came out with a fact sheet highlighting the guidance on website accessibility requirements and describes some of the actions taken to address inaccessibility of COVID vaccine websites. Learn what the fact sheet entails.
- Core Standards for Information and Assistance in Self-Direction: A new resource has been developed to provide information to states regarding competencies and skills for professionals providing Information and Assistance in support of self-direction. Find out what this resource suggests.
- Partners in Business: The Wisconsin Board for People with Developmental Disabilities is looking for businesses to partner with who are interested in hiring people with developmental and intellectual disabilities. Grantees are awarded up to $25,000 and technical support from the Board. Applications due June 17.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: ADA Coordinator: Getting The Job Done: June 21, 1p.m. to 2:30p.m., Online
- Webinar: Pathways To Person-Centered Decision-Making And Alternatives To Guardianship: June 21, 2p.m. to 3:30p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.