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Category: Network News

96 Self-Determination Network News:

September 2018

Connect Share | Learn http://sdnetworkwi.org/  

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There is Still Time to Register!

Register today for the 2018 Self-Determination Conference!  The annual conference works to empower people with disabilities in Wisconsin to have more control over their lives. More than 600 people each year participate in the conference to learn more about self-determination and Self-Directed Supports so they can live independently, be members of their communities, and use public funds efficiently. The conference participants include people with disabilities and their family members, direct care providers, and professionals from Wisconsin’s disability community.  Registration closes October 12th.  Register today!

BPDD Releases State Budget and Policy Platform Recommendations

The Wisconsin Board for People with Developmental Disabilities (BPDD) is preparing for the upcoming elections and state budget and legislative session!  They have finalized their 2019-2021 budget and policy platform, which focuses on seven priority issues that impact people with Intellectual and Developmental Disabilities and their families in Wisconsin.

The Board has created a sheet for each issues: 

We encourage you to read over these sheets and share your thoughts with your legislators.  We also encourage people for share this information with family and friends.  

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For September, we shine the spotlight on Dave.   As a Behavioral Consultant, he helps to develop an understanding of what people are trying to communicate or achieve through behavior.  He believes that interdependence should be the goal of a self-determined life.  Stop by this month's Member Spotlight to get to know Dave.

128 Stacy’s Journal

“Life isn’t fair.” Most of us have heard that saying more than once in life. In this month's entry, Stacy opens up about the recent struggles she has had and how she tries to persevere through them.  How do you persevere through life's challenges? We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Self-Direction Questionnaire:  Citizen Network is working with the European SKILLS project to identify the extent to which self-directed support is being adopted in different countries around the world.  Take their questionnaire to help them track progress of self-directed supports.
  • Special Olympics Exhibit:  With a new exhibit, the Smithsonian Institution is highlighting how athletics have helped to dramatically change the lives of people with intellectual disabilities over the last 50 years.  Learn about how the exhibit showcases the history of Special Olympics.
  • Push for Doctors:   Federal lawmakers are pushing to make doctors and other health care services much more available for people with intellectual and developmental disabilities. Read about how a bipartisan bill would help.
  • Airline Accessibility:  A lawsuit is seeking to force the nation's airlines to make major changes to better accommodate travelers with disabilities.  Find out about how a lawsuit may speed up airline accessibility.
  • Google Accessibility:  In the past few years, Google has shifted the way that it thinks about accessibility, moving from grassroots advocacy to codified systems.   Learn about how it's  finding ways to help people with disabilities navigate the world.
  • Disability Statistics:  The Centers for Disease Control and Prevention recently released new statistics for disability.  Read about the most common disabilities.
  • Disability Policy:   Federal policy is often implemented with little consideration for how it will impact people with disabilities, but that could change under a new proposal.  Find out about how a new bill may change that.
  • Lack of Disability in Film: According to a new report, people with disabilities still remain largely underrepresented in major movies. Learn just how few movies have characters with disabilities.
  • Call for Artists:  Access to Independence is in the process of looking for artists as part of the commemorations for their 40Th Anniversary.  Find out how to get involved.
  • Call for Presenters:  The Circles of Life Conference invites you to submit a proposal for the 2019 conference.  Applications due September 30th.
  • Disability Museum:  Thanks to a high school history class studying history of disability, a student believes that there needs to a National Museum of Disability.  Learn why.
  • ADA Amendment Act: Ten  years ago this month, the Americans with Disabilities Amendment Act was passed.  It expanded the numbers of Americans covered  by the ADA.  However, many feel that the Amendment Act  doesn't go far enough.  Find out why.
  • Family Care Wavier Ideas:  The Wisconsin Department of Health Services (DHS) is preparing their applications to renew the Family Care waivers, and they would like input about what to include in the renewals.
  • Accessible Gaming:  Microsoft will soon sell a controller that offers touch controls, as well as connectors for each button on a standard controller.  Read about how this will help.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

96 Self-Determination Network News:

August 2018

Connect Share | Learn http://sdnetworkwi.org/  

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Hurry!  Early Bird Registration Ends Soon!

Register today for the 2018 Self-Determination Conference!  The annual conference works to empower people with disabilities in Wisconsin to have more control over their lives. More than 600 people each year participate in the conference to learn more about self-determination and Self-Directed Supports so they can live independently, be members of their communities, and use public funds efficiently. The conference participants include people with disabilities and their family members, direct care providers, and professionals from Wisconsin’s disability community.  Conference Scholarships will be available until September 7, 2018 or until funds run out. There are a limited number of scholarships available and they are determined on a first come, first serve basis.  Early bird registration ends August 30th!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For August, we shine the spotlight on dedicated mother, Lisa. She's a firm believer in self-determination as she has witnessed it do amazing things for her daughter.   Stop by this month's Member Spotlight to get to know Lisa.

128 Stacy’s Journal

"We’re in the twenty-first century. Shouldn’t people know to treat a person who happens to have a disability like any other person? Unfortunately, that’s not the case. Although, it has significantly improved over the years, the general population still isn’t comfortable with people with disabilities."

In this month's entry, Stacy discusses how while the acceptance of people with disabilities has greatly improved, there is still a lot of work that needs to be done!  We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • SPARKS Grants:  Applications for the 2018-19 SPARKS Grants are now available. These grants help to organize grassroots groups to make changes in the community that will have a positive impact on the lives of people with intellectual and developmental disabilities.  Learn more and apply today!
  • 2018-19 Partners  in Policymaking: Partners in Policymaking is a six-session advocacy and systems change training program for people living with developmental disabilities, their siblings, and parents of children with disabilities ages birth to 21.  Applications for the 2018-19 Policymaking class are due September 1st.
  • Straw Bans:  States and cities are being pressed by environmentalists to eliminate plastic straws, but strong objections from disability advocates and others have delayed or stopped some proposed bans.  Learn why many people with disabilities are opposed to eliminating plastic straws.
  • Caregiver Shortages Affecting Housing Prices:  It's well known that the caregiver shortage is nationwide, but read about how now some people are saying that the high housing costs are making it more difficult to find caregivers.
  • Voter Registration:  Advocacy groups are working to educate people with disabilities about the multiple accommodations available to assist with voting.  Read about some of the available  accommodations.
  • Children's Long-Term Support Forums:  The Department of Health Services is holding multiple forums across the state about updates for Children's Long-Term Support.  Learn about the latest updates in the CLTS Waiver Program.
  • Segregation Comments Cause Alarms:  Remarks from a top official at the federal agency responsible for community living leaves lawmakers looking for answers.  Find out what was said.
  • National Park Accessibility:  The National Park Service recently announced that nine parks have received more than $10 million to improve accessibility.  Read about what the funding will be used for.
  • Transportation Survey:  The National Center for Mobility Management (NCMM) is seeking input from state and local stakeholders to inform the future of transportation coordination. 
  • Modernizing Home Care:  The Centers for Medicare & Medicaid Services (CMS) has suggested changes to its payment system to improve access to remote patient care services and update the payment model.  Read about what the changes will do.
  • Technology Helps Travelers with Disabilities to an Extent:  While some airlines have mandatory training on how to assist people with disabilities, the advances in technology have made it easier for people with disabilities to travel; however, transportation systems still need some improvements.  Learn about ways things could be improved.  

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

Self-Determination Network News: July 2018


By SD Network, 2018-07-17

96 Self-Determination Network News:

July 2018

Connect Share | Learn http://sdnetworkwi.org/  

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Registration for the 2018 Self-Determination Conference is Now Open

Registration for the 2018 Self-Determination Conference is now open!  The annual conference works to empower people with disabilities in Wisconsin to have more control over their lives. More than 600 people each year participate in the conference to learn more about self-determination and Self-Directed Supports so they can live independently, be members of their communities, and use public funds efficiently. The conference participants include people with disabilities and their family members, direct care providers, and professionals from Wisconsin’s disability community.  Conference Scholarships will be available until September 7, 2018 or until funds run out. There are a limited number of scholarships available and they are determined on a first come, first serve basis.  Early bird registration ends August 30. Learn more and register today! 


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Direct Care Worker Shortage Stories Wanted

Wisconsin lawmakers need to hear from real people about the impact the direct care workforce crisis is having on your life!  Aging and disability advocates are collecting stories about the direct care workforce crisis. We want to hear from everyone—people who need direct care workers, family caregivers and direct care workers—about why direct care workers are important and how the crisis is impacting people.  Please submit your story using the following form by August 1: https://goo.gl/forms/tER259RStNwNDBJJ3.  If you are willing to share a picture to go along with your story, you can email photos to wiworkforcestories@gmail.com.

Transportation Survey

Transportation is consistently identified as a top concern for older adults and people with disabilities.  The Survival Coalition wants to hear how your transportation options—or lack of options—impact your life.  The results of this survey will be used by Survival Coalition to inform policymakers on how Wisconsin can improve transportation for older adults and people with disabilities.  Please share this survey with your family, friends, and others interested in improving transportation for older adults and people with disabilities, and encourage them to take this survey by July 30th, 2018.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For July, we shine the spotlight on InControl Wisconsin board member, Terry Lynch. Having worked in the disability field for many years, he has had a vital role in supporting independent living and self-determination. Stop by this month's Member Spotlight to get to know Terry.

128 Stacy’s Journal

"The direct care shortage is nationwide, so I know I’m not alone in this battle. Agencies, nursing homes, and hospitals are struggling to find caretakers too."  For July's entry, Stacy discusses her struggle to find reliable care.  We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Caregiver Strain on Families:  A recent survey found that the majority of family caregivers are stressed out by the demands of their family members with developmental disabilities and have deep concerns about the future.  Learn why family members are stressed.
  • Home Modification Grant Opportunity:   Home modifications and repairs can help older adults age in place and maintain their independence.  Learn about a grant intended to address barriers to optimal access to and use of home modifications that support aging in place. 
  • Spike in Community Living Spending: According to a recent report, there has been a major increase in government spending on  home and community based services.  Find out what this is largely due to.
  • Medicare and Mental Health:  The Affordable Care Act expanded Medicare's coverage to include important therapies to keep people with mental illnesses from needing in-patient treatment, but there are many problems with Medicare's coverage for people with mental illnesses.  Read about the issues.
  • ABLE Accounts in Jeopardy:  Disability advocates fear that without a major change ABLE accounts could be unsustainable.  Find out why.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: June 2018


By SD Network, 2018-06-12

96 Self-Determination Network News:

June 2018

Connect Share | Learn http://sdnetworkwi.org/  

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Call for Exhibitors for the 2018 Self-Determination Conferencee

Calling all Wisconsin organizations that support self-determination and self-directed support in Wisconsin. We encourage you to submit an application. Space is limited and only applications from exhibitors that directly support self-determination and self-direction in WI will be accepted. All applications will be reviewed by a committee and selected based on interest, needs, variety and mission of the conference. We are particularly interested in having exhibitors with innovative approaches to services and supports for self- direction including health and wellness supports for people with disabilities.  Exhibit tables are open Oct. 29-31.

Calling all Micro-business owners! If you are a person with a disability and own your own micro-business apply to share your gifts and talents with over 900 people this October? Be an exhibitor at the 2018 Self-Determination Conference.

Hurry! Applications must be received no later than July 10, 2018. Space is limited, and spots are expected to run out before the deadline date.


128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For June, we shine the spotlight on Jane. This past Diehard Advocate award recipient is dedicated to helping people with disabilities find employment. She also encourages people to ask for help because we can all learn from one another.   Stop by this month's Member Spotlight to get to know Jane.

128 Stacy’s Journal

“Never judge someone by the way he/she looks.“ Most people are taught that beginning at an early age. Having a disability often makes fitting in difficult. Some people are completely okay with not fitting in because of their limitations, and others work hard to hide theirs. In this month's entry, Stacy discusses how she handles the desire to fit in.  We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Be Inspired:  It's graduation season.  Many people with disabilities will cross the stage overcoming tremendous odds  Read about how one UW-Green Bay grad didn't let his disabilities or growing up in poverty stop him from achieving his dream.
  • Advocacy Trainings:  Parents in Partnership (PIP) and Youth in Partnership with Parents for Employment have released their 2018-2019 training schedule.  Learn about these programs and get involved!
  • Voting Rights:  It's not widely known, but in many states people with disabilities can be stripped of their right to vote. Find out why many people feel that the law needs to be changed. 
  • Wisconsin Disability Vote Coalition:  During this important election year, the Wisconsin Disability Vote Coalition (WDVC) will work to increase voting turnout and participation in the electoral process among members of Wisconsin’s disability community by hosting voting trainings and registration days, creating comprehensive resources for people with disabilities around voting rights, and working with municipalities to ensure their polling places are up to accessibility standards.  Learn how you can participate.
  • Technology Initiative:  Microsoft recently announced a multimillion dollar initiative to develop technology that will benefit people with disabilities. Read about what the initiative will  create.
  • Caregiver Check-In Mandate Delayed:  Lawmakers have delayed legislation a controversial Medicaid requirement that personal care providers electronically check in when caring for people with disabilities.  Find out why this requirement is causing controversy.
  • The Disability Integration Act: The Supreme Court ruled that people with disabilities have the right to live in the community rather than in institutions and states must provide them with the services they need to do so. However, this rule is often ignored.  Learn what this Act would do to ensure that people are allowed to live in the community.
  • Feedback on State AT Plan:  Wisconsin's Assistive Technology (AT) Advisory Council has completed a draft of Wisconsin’s State Plan for AT 2018-2020. The Wisconsin AT Advisory Council welcomes your comments, suggestions, and feedback on the state plan.  Public comment ends June 30.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: May 2018


By SD Network, 2018-05-15

96 Self-Determination Network News:

May 2018

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Supported Decision-Making Webinar May 21

Register now for a webinar about supported decision making on Monday May 21st.   Governor Walker recently signed a supported decision-making bill into law that gives people with disabilities and older adults options beyond guardianship for getting help with important decisions in their lives.  Attend this webinar sponsored by The Arc of Wisconsin to learn what the law in Wisconsin does and how you might use it in your life or to support a family member.

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Join the Discussion!

The Self-Determination Network posts a discussion question related to self-determination/self-direction every month in hopes that we can share experiences and learn from each other.  Last month, we had a discussion about community employment for people with disabilitiesWe're switching gears a little bit in May and talking about how self-direction has impacted our lives.   How has self-direction impacted your life?  What words of advice do you have for others just beginning to use self-direction?  Join the Discussion!

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Registration is open for the 5th annual Aging Empowerment Conference: Living a Self-Determined Life!

Join InControl Wisconsin and our sponsors as we welcome international empowerment expert, Dr. Simon Duffy. We’ll learn highlights of global developments in the field of aging and discuss the movement toward self-determination and self-direction. Friday’s Advocacy Summit will be a strategic planning session focusing on Building Strong Moments for Change, in Wisconsin and beyond.

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Keynote Address: Are older people still citizens?

A test of any decent society is how it respects the older generation. Are older people at the center of family and community life, or are they isolated or institutionalized? Can people set their own path, even when they need extra help, or are they forced to do what others think is best for them? While people with disabilities have demanded equal rights and self-determination, older people are often forced to accept lower standards. Dr Simon Duffy is both a philosopher and practitioner, who has worked for 30 years to develop ideas and systems to advance equal citizenship for all. Simon will explain what is happening around the world to enable people to be true citizens at any age, and whatever their needs. Simon will also explore how the idea of citizenship - which connects ancient Greece to the civil rights movement - must be central to solving the problems - and seizing the opportunities - ahead of us.

Know an older adult who would be interested in attending? Register for the conference, bring an older adult for free!

*Conference attendance is an activity that fulfills advocacy related goals for county and tribal aging units in your next three-year aging service plan!

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For more information, visit :  incontrolwi.org

 

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For May, we shine the spotlight on, Tyler, a junior at UW-Whitewater . As if he isn't busy enough double majoring in Accounting and Economics, he also self-directs all of his own supports.  He encourages people not to settle and not to let the logistics stop you from achieving your dreams.  Stop by this month's Member Spotlight to get to know Tyler.

128 Stacy’s Journal

“If it works, don’t fix it.” While it’s human nature for people to want to make things better, sometimes people forget to consider the repercussions of changing things will have on others. Change is hard for everyone. In this month's entry, Stacy discusses while most of the time change is for the better, sometimes with all repercussions of the change, it can do more harm than good.  We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Social Security Protections:  Thanks to a new law, people who handle Social Security payments for those with disabilities will be more closely monitored.  Read about how this law will more protect beneficiaries.
  • Housing Voucher Opportunity: The U.S. Department of Housing and Urban Development (HUD) has announced a notice of funding availability for Mainstream Vouchers. Learn how these can help people with disabilities.
  • Wisconsin Named Leader in Self-Direction:  In a recent report by AARP, Wisconsin was highlighted for being a leader in self-direction.  Find out why.
  • Care Facilities Reviews:  People often don't know where to start when it comes time to look for nursing homes or assisted living centers.  Learn about how Yelp reviewers are looking at different aspects of care than the government reviews.
  • Care Worker Shortage:  A recent study finds that Wisconsin's care worker shortage continues to grow.   Find out why this is and what's being done to address it.   
  • Public Comment on Family Care Amendment:  The Department of Health Services is taking  public comment on an amendment to the Family Care Wavier.  Learn what changes are being proposed.  Public comment closes May 30th.
  • Caregiver Survey: To better understand the challenges employers experience as they address the needs of employees with caregiving responsibilities, the Wisconsin Women’s Council in partnership with the Wisconsin Family and Caregiver Support Alliance is looking for employers of all sizes to participate in a first annual survey on caregiving.  The survey closes on May 30th.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

96 Self-Determination Network News:

March 2018

Connect Share | Learn http://sdnetworkwi.org/  

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Join the Discussion!

The Self-Determination Network posts a discussion question related to self-determination/self-direction every month in hopes that we can share experiences and learn from each other.  Last month, we had to great discussion about transportation.  

This month, we're tackling  another major challenge for people with disabilities--housing.  How can people use self-direction strategies to obtain affordable, accessible housing?  Join the Discussion!

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2018 marks a big milestone for InControl Wisconsin – our 5th Annual Aging Empowerment Conference!  We are making a splash to celebrate, and hosting a global leader in the empowerment movement. Dr. Simon Duffy is the founding Director of the Centre for Welfare Reform in the UK, and Secretary to the international cooperative Citizen Network. Simon is best known for his work on models to extend self-directed support to all groups, including elders. His work on citizenship has also challenged the view that older people can no longer be citizens and he works to break down barriers between different groups trying to achieve a more inclusive and just society.  

Simon's keynote address will illustrate a philosophical history of citizenship and old age; a review of the movement toward self-determination and self-direction; highlights of interesting developments globally; and strategic ideas for building strong moments for change on both the public awareness and political front.  He'll stay with us for Friday's Advocacy Summit, where we will consider strategies relevant to our work in Wisconsin and learn how to impact change in our communities.

We are accepting workshop presentation ideas until April 1st.  Here is our Call for Proposals, and we welcome your ideas about aging empowerment that you'd like to share with our conference audience!  We also invite you to join us as a Sponsor/Exhibitor, where you'll be an instrumental presence throughout the conference.  We'll have dedicated hours for tabling and networking, and every sponsor level includes conference registration, because we recognize that you'll want to be included in the entire event.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Call for Presentations:  Proposals for presentations are now being accepted for the 2018 Self-Determination Conference.  Submit a proposal today!
  • Changes to the ADA:  Despite strong opposition from disability advocates, the House approved the ADA Education and Reform Act.  Learn what these changes would mean and why advocates are opposed.
  • Be Inspired:  For Daina of Nielsville, snowboarding is about being free.  Read how participating in Special Olympics and training with famous Olympians has helped her gain so much confidence in herself.
  • Medicaid Wavier Tracker:  Are you trying to keep track of all the potential Medicaid waivers that are pending or approved?   Check out the new Medicaid Wavier Tracker.
  • Voting Struggles:  Voting has long had various obstacles for people with disabilities, from inaccessible locations to unusable paper ballots.  Find out what other factors have led to fewer people with disabilities voting in the last two elections.
  • Key Findings:  A report was recently published describing the percentage of adults with disabilities in the United States living in communities. Check out the interesting statistics in the report.
  • Accessible Video Games:  The racing auditory display (RAD) enables gamers who are visually impaired to play the same types of racing games that sighted players can play.  Find out how the interface display works.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For March, we shine the spotlight on board member of InControl Wisconsin, Jim. He has seen self-determination transform from a far fetched concept to an actual movement that has provided opportunities for many people to live self-determined lives.  He encourages people to keep conversations about his/her desires and wishes for self-determination going, so they can actually happen.  Stop by this month's Member Spotlight to get to know Jim.

128 Stacy’s Journal

Is it safe to go anywhere anymore? Regardless of political beliefs, it’s a question is on many people’s minds lately. This month, Stacy discusses how people with disabilities are among the most vulnerable in violent situations.  We encourage you to share your thoughts and experiences as well.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

96 Self-Determination Network News:

February 2018

Connect Share | Learn http://sdnetworkwi.org/  

Register Now for Disability Advocacy Day

Let your voice be heard at the 2018 Disability Advocacy Day on March 20th in Madison.  It's a day designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives.  Learn more and register today!

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Join the Discussion!

As mentioned in our last newsletter, the Self-determination Network will be posting a discussion question related to self-determination/self-direction every month.   By doing this, our hope is that we can share experiences and learn from each other.

To kick this off, our first discussion question is about something that people with disabilities say is one of their biggest barriers--transportation.  What are some promising ways to obtain affordable, accessible transportation using self-direction strategies?  Join the Discussion!

2018 aec logo 1.jpg

2018 marks a big milestone for InControl Wisconsin – our 5th Annual Aging Empowerment Conference!  We are making a splash to celebrate, and hosting a global leader in the empowerment movement. Dr. Simon Duffy is the founding Director of the Centre for Welfare Reform in the UK, and Secretary to the international cooperative Citizen Network. Simon is best known for his work on models to extend self-directed support to all groups, including elders. His work on citizenship has also challenged the view that older people can no longer be citizens and he works to break down barriers between different groups trying to achieve a more inclusive and just society.  

Simon's keynote address will illustrate a philosophical history of citizenship and old age; a review of the movement toward self-determination and self-direction; highlights of interesting developments globally; and strategic ideas for building strong moments for change on both the public awareness and political front.  He'll stay with us for Friday's Advocacy Summit, where we will consider strategies relevant to our work in Wisconsin and learn how to impact change in our communities.

We invite you to join us as a Sponsor/Exhibitor, where you'll be an instrumental presence throughout the conference.  We'll have dedicated hours for tabling and networking, and every sponsor level includes conference registration, because we recognize that you'll want to be included in the entire event.

We are also accepting workshop presentation ideas.  Here is our Call for Proposals, and we welcome your ideas about aging empowerment that you'd like to share with our conference audience!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For February, we shine the spotlight on board member of InControl Wisconsin, Lynn.   Having been involved in a disability field for many years, he believes that we're still at the tip of the iceberg with learning how self-direction can impact on people's lives.  When he's not busy advocating for people with disabilities, he enjoys traveling to new places and exploring different cultures.  Stop by this month's Member Spotlight to get to know Lynn.

128 Stacy’s Journal

 

What would the world be like today without cell phones or mobile devices? It’s nearly impossible to fathom. For many people, including those with disabilities, mobile devices have become a real lifeline. In this month's entry, Stacy discusses how having a cell phone has changed her life!  We encourage you to share your thoughts and experiences as well.

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Take five minutes to check out what's happening on the Self-Determination Network:

  • Get Involved:  Laura posted about an opportunity to get involved in an anti-violence leadership program for survivors of violence and underserved/under-represented communities.  Learn how to get involved!
  • Accessibility Survey:  UW-Milwaukee is conducting a survey to examine the experiences of people with disabilities pertaining to the accessibility of public buildings, including physical and cognitive barriers that prevent people with disabilities from being able to participate fully in the community.  Take the survey and share it with others!
  • Group Home Report:  The Department of Health and Human Services examined states' monitoring and reporting of injuries and other critical incidents of people with developmental disabilities living in group homes.  Find out what they found.
  • New Medicare-Medicaid Resources:  The CMS Medicare-Medicaid Coordination Office has three new resource guides intended to support providers and health plans serving older adults and caregivers. Learn what these guides offer.
  • Airline Service Animal Requirements:  Airline accessibility has taken center stage recently.  One airline is taking steps to further protect its customers, employees and service animals and support animals by implementing advance documentation requirements for those animals.  Read about how the new requirements ensure safety for all.
  • Poverty and Health Findings:   Recent population surveys have shown that nearly one third of people with disabilities live below the poverty line and they’re more than twice as likely to live in poverty when compared to their non-disabled peers.  Learn how this impacts their health.
  • Updated Fact Sheet:  The Consortium for Citizens with Disabilities recently released an updated fact sheet about Supplemental Security Income for people with disabilities.   Check out what's new!
  • Accessible Clothing:  Another large retail chain announced a clothing line for people with disabilities.  Find out which store and what it will include.
  • State Family Caregiver Rankings:  For family caregivers who provide unpaid to older adults and family members with disabilities, the state you live in can be a big factor in your ability to be a family caregiver.  Learn where Wisconsin ranks.
  • New Tool:  Wisconsin has a new tool for people who are deaf or hard of hearing. Learn how communication visor cards give deaf and hard of hearing drivers a clear way to communicate with law enforcement.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

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The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96 Self-Determination Network News:

January 2018

Connect Share Learn http://sdnetworkwi.org/  

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For January, we shine the spotlight on the Chair of InControl Wisconsin, Kate.  As a firm believer of self-determination and self-direction, she loves that this Network brings people together who have the same passion.  Stop by this month's Member Spotlight to get to know Kate.

Coming in February...

Beginning in February, the Self-Determination Network will post a monthly discussion question related to self-determination/self-direction.  We will be sending out a special message in the first week of each month telling you what the question is and providing you with a link where you can respond.  By doing this, our hope is that we can share experiences and learn from each other.  Keep your eyes open for the first question!  

128 Stacy’s Journal

 

"Oftentimes, comparing ourselves does no good, but sometimes it can ignite a spark in us and make us realize what is possible!"  In January's entry, Stacy discusses how comparing ourselves to others is a part of life. Do you agree?  We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • New Resource: Tyler, a junior at UW-Whitewater, developed a website about transitioning from high school to college when living with a disability.  It's full of great tips and resources.  Check it out and let Tyler know what you think.
  • ABLE Accounts Popularity:  According to a recent report, thousands of people with disabilities have opened ABLE accounts, but experts point out that millions more could benefit from them.  Find out why participation has been slower than anticipated.
  • Housing Affordability and Availability: A recent report released explains the nationwide housing affordability crisis people with disabilities are facing.  Learn about some solutions and recommendations that some groups are suggesting to end this crisis.
  • Website Accessibility:  There has been a rise in the number of lawsuits alleging that companies with inaccessible websites are violating the American's with Disabilities Act (ADA).  Read about why  it is likely that companies will continue to reach settlements in web accessibility cases, rather than take cases to trial.
  • ADA Guidance:  The Justice Department has rescinded many guidance documents which clarify implications of the Americans with Disabilities Act.  Learn what impact may have on people with disabilities.
  • Changes to ABLE Accounts:  A major tax law that took effect in January is bringing changes to savings accounts for people with disabilities and causing concern about funding for programs.  Find out why advocates are concerned.
  • Family Caregiver Input:  When developing health and long-term care policy, the government hears a lot from providers, drug and medical device makers, and various lobbyists and advocates, but they rarely hear from family caregivers.  Read about how a new law could change that.
  • Be Inspired:  Read about how having a disability doesn't stop one Wisconsin farmer from living his dream.  

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96Self-Determination Network News:

 December 2017

Connect Share Learn http://sdnetworkwi.org/  

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InControl Wisconsin wants to take a minute to wish everyone Happy Holidays!  We really appreciate all of our Network members and Sponsors.  We couldn't keep this Network going with you!

This is the season of giving! Our sponsors help us out in so many ways. Learn about how you can support the Network.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For December, we shine the spotlight on Carrie.  Between being the mother to five children and her job organizing events for IRIS participants, free time is rare for this busy lady.  Stop by this month's Member Spotlight to get to know Carrie.

128 Stacy’s Journal

"Dreams energize our imagination. They give us a glimpse of what in some cases is the possible. It’s nice to dream, but we have to remember it’s truly just a dream!"  In this month's entry, Stacy shares how while dreams can be fun to have, they can also sometimes be a reality check.  We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Vacation Rental Accommodations:  More and more  vacation accommodation websites are making efforts to be accessible for people with disabilities. Learn about how one lodging rental company is coming out with a new website that will accommodate people with various types of disabilities.  
  • Dental Care Struggles:  The National Council on Disability has put out a brief about the concerning lack of dental care for people with disabilities.  Read what recommendations the Council suggests.
  • Website Accessibility:  New accessibility guidelines for government websites will take effect in January.  Find out what the new guidelines will mandate.
  • Problems with Fake Service Animals Continue:  Untrained service animals continue to be a problem across the country. Learn what service animal owners feel is needed to prevent these laws from being exploited.
  • Medicaid Summary:  In the Fall of 2014, the Center for Medicaid and CHIP Services (CMCS) conducted a Nationwide Adult Medicaid Consumer Assessment of Healthcare Providers and Systems (CAHPS) survey of Medicaid enrollees to attain national and state-by-state measures of access, barriers to care, and experiences with care across delivery systems and major population subgroups. Find out what the survey found.
  • Check it Out:  The Minnesota Department of Human Services created an awesome video series about supported decision making.  Check it out!  

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96 Self-Determination Network News:

November 2017

Connect | Share | Learn | http://sdnetworkwi.org/  

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1.jpgLet's keep the conversation going! Over 950 people attended the 10th annual Self-Determination Conference earlier this month.  It was great to see so many of you there. There were a ton of great sessions and events this year. What was your favorite part? What were some things that you learned? Do you have a funny story from the conference? Did something really inspire you?  What suggestions do you have for next year?

Share your comments, questions, and ideas in this discussion!  

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We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:

David Pinno

Sue Urban

Deb Wisniewski 

Abigail Tessmann

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196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Watch:  Watch this excellent short video done by The Arc designed to speak directly to people with developmental disabilities about supported decision-making and getting help making decision.
  • Caregiver Act:  A bill that would address the needs of family caregivers is gaining support. Learn how this act would help families.
  • Unique Fashion Line:   More and more fashion designers are designing clothes for people with disabilities.  Find out which popular designer recently launched an adaptive clothing line.
  • Accessible Airport Kiosks:  One airline has incorporated new technology into their self-service kiosks to ensure they are accessible to all travelers. Read about these new kiosks.
  • States Tighten Leash on Service Animals:  A growing number of states are enacting laws designed to keep people from passing off their pets as service animals. Learn what states are doing.
  • Smart Home Products Increase Independence:  Smart home products are often marketed for their convenience, but the technology also can help people with disabilities become more independent.  Read about how thousands of technology products have opened up a world of possibilities for people with disabilities.
  • Building Full Lives Grant:The Wisconsin Board for People with Developmental Disabilities in partnership with In Control Wisconsin is offering a great opportunity for organizations Interested in supporting individuals with disabilities to Build FULL LIVES in the community.  Applications due November 17th.
  • Interesting Court Case:  This in an interesting case about glass-front vending machines not being accessible.  Find out why the Supreme Court declined to review the case.
  • Successful Aging:  As people age, they may experience new and chronic health conditions that make it difficult to participate in activities at home, at work, and in the community.   A study showed that there are four  areas that people felt were important for successful aging with a physical disability. Learn what the areas are.
  • ABLE Account Annual Contribution Limit:   It was recently announced that  the total annual contribution limit to an ABLE account will increase in 2018.   Find out how much it will increase.
  • Polling Place Accessibility: A new report found that less than 20% of polling places were fully accessible during the 2016 election.  Read about what's being done to try to correct it.
  • Hunting Bill:  The State Assembly passed a bill that would allow people with disabilities to hunt from a car with a lift.  Read about the bill.

128 Stacy’s Journal

When most people hear the word “segregation,” they automatically assume it’s a negative thing. However, at times, that’s not the case. It’s human nature for people to associate with others like them. In this month's entry, Stacy discusses how, as a person with a physical disability, she often struggles to fit in within the disability community.  Have you had similar feelings?  We encourage you to share your thoughts and experiences as well.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

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