SD Network

Category: Network News

Self-Determination Network News: June 2022


By SD Network, 2022-06-13

96

Self-Determination Network News:
June 2022

Connect Share |Learn http://sdnetworkwi.org/

Family Caregiver Survey 

Are you a family caregiver who provides care to a loved one? 

Have you been unable to find direct care workers to hire? Are you picking up the pieces and filling in the gaps yourself? 

Are you employed full or part time, or not working to make sure your loved one had the care they need?

Have you worried what would happen if you suddenly became unable to do your caregiving duties because of physical injury or illness?

You are not alone.

We need your stories to show the policy makers the reality of many people’s day to day lives.

Please take the Survival Coalition Family Caregiver Survey before June 17, 2022

Survey results will be used to educate policy makers, shared with media outlets and advocates.

sd 22.pngCall for Exhibitors 

The 2022 Self-Determination Conference will be held October 17-19 at the Kalahari Resort in Wisconsin Dells. Applications for exhibitors and microbusinesses are now being accepted. Microbusinesses have the unique opportunity to sell not only at the conference, but all year long. Visit www.allAmarket.org to sign up to sell merchandise year around. Click here to fill out the application to exhibit at the conference. Applications are due by July 20.

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Kai. This resilient lady has recently learned that, through self-determination, she can build a support circle who will support and encourage her to be successful. Check out this month's Member Spotlight to get to know Kai.   

Who should we shine the spotlight on next?

128 Stacy’s Journal


"The major risks I’ve taken in life have been required in order to live the life I desire. Sometimes, risks don’t work out the way we want, but taking risks often ignites a flame in us to make dreams become possibilities!"

In this month's journal entry, Stacy discusses risks. She talks about how taking certain risks has shaped her life. What are some risks that you've taken and how have they impacted your life?


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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Augmentative Alternative Communication Newsletter: Mike shared the newsletter from the Augmentative Alternative Communication Amplify program with us. Check it out and see what it's about. 
  • Artificial Intelligence Guidance: Recently, two government agencies issued guidance on artificial intelligence. Learn about what the guidance explains. 
  • EVV Reconsideration: The electronic visit verification process is using intense reconsideration. Read about why it's becoming a topic of heated debate. 
  • Impact of COVID on People with Disabilities: When COVID hit, nearly every project funded by the Administration for Community Living's Institute on Disability, Independent Living, and Rehabilitation Research experienced delays and pivoted. Learn what grantees found.
  • Assistive Technology State Plan: The Wisconsin Assistive Technology Advisory Council is looking for feedback on the 2021-2023 State AT Plan. Written feedback can be submitted until June 30.
  • Accessibility Gains From the Pandemic: As the pandemic whines don't (or at least as things return to a new normal), many people with disabilities hope accessibility gains made during the last few years won't be forgotten. Find out what accommodations people hope will continue. 
  • Watch: Many adults with disabilities often feel left hanging when they turn 18.A new documentary follows a young man with multiple physical disabilities as he navigates adulthood. Learn more and watch the film. 
  • Digital Access Video Series: The U.S. Department of Education’s Office for Civil Rights (OCR) released a 20-part video series covering a variety of topics on digital access in education, including how people with disabilities use technology, applicable federal regulations, and identifying and remediating barriers to access. Check them out! 
  • New Medicaid Waiver Rule: Federal officials say they are moving forward with implementing a Medicaid rules that standardizes what counts as home-and-community-based services for people with disabilities.  Read about what the rule entails. 
  • Public Health Emergency Unwinding Resource: The Centers for Medicare & Medicaid Services recently released a new resource to help states understand and meet legal requirements for Medicaid and other programs when the public health emergency ends. Check it out! 
  • Vaccine Information Website Accessibility: After many complaints about vaccine information websites being inaccessible for many people with disabilities, the Department of Justice came out with a fact sheet highlighting the guidance on website accessibility requirements and describes some of the actions taken to address inaccessibility of COVID vaccine websites. Learn what the fact sheet entails. 
  • Core Standards for Information and Assistance in Self-Direction: A new resource has been developed to provide information to states regarding competencies and skills for professionals providing Information and Assistance in support of self-direction. Find out what this resource suggests. 
  • Partners in Business: The Wisconsin Board for People with Developmental Disabilities is looking for businesses to partner with who are interested in hiring people with developmental and intellectual disabilities. Grantees are awarded up to $25,000 and technical support from the Board. Applications due June 17.

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

Self-Determination Network News: May 2022


By SD Network, 2022-05-15

96 Self-Determination Network News:
May 2022

Connect Share |Learn http://sdnetworkwi.org/

Make your Voting Plan 

It's an important election year! Wisconsin will hold two statewide elections. The Partisan Primary is August 8th and the General Election is November 9th. The Wisconsin Disability Vote Coalition has put together several different resources to help people make a plan for voting. You can also check out their website for even more resources. Start planning now, so you can make sure your vote counts! 

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Martha. This incredible mom is an advocate for all families in her school district. In addition, she's a para-athlete who loves to do ballroom dancing! Check out this month's Member Spotlight to get to know Martha.   

Who should we shine the spotlight on next?

128 Stacy’s Journal

"On one hand, I know that I’m incredibly fortunate to have the amazing mom I do, but, yet, on the other hand, that selfish feeling of yearning to be a mother myself often creeps into my head."

In this month's journal entry, Stacy talks about her inner conflict around Mother's Day. Do you have similar thoughts?

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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Fact Sheet: Government agencies have begun reviewing policies that were put in place during the pandemic. Many flexibilities will need to be rolled back. Check out this fact sheet from the Administration for Community Living has put together to address some common questions. 
  • Recreation Technology Grant Opportunity: The RERC program is offering a grant opportunity to conduct research and development activities toward technologies that promote exercise and health for people with disabilities. Applications due June 13.
  • Stagnate Wages for Home Care Workers Continue to Cause Issues: With jobs readily available in today's economy, people can pick and choose. Unfortunately, this doesn't help the direct care workforce where wages aren't keeping up. Find out how this is affecting people with disabilities. 
  • Vetoed Bills: Governor Evers vetoed several bills that many feared would have a negative impact on people with disabilities. Learn about what the bills would have done. 
  • Economic Crisis Facing the Disability Community: This report has a snapshot of the economic crisis people with disabilities are facing and highlights some of the barriers and failed policies that stand in the way of economic justice. 
  • Community Conversations: The Wisconsin Statutory Council on Blindness wants to hear from you! They're holding community conversations to get input on what the important issues are that communities are facing right now. 
  • Legendary Senator Passes Away: Senator Orin Hatch of Utah recently passed away. Find out why people with disabilities are indebted to him.
  • Job Opportunity: Are you passionate about voting rights? Disability Rights Wisconsin is now hiring a Voting Outreach Advocacy Specialist. Learn more today. 
  • Issues with Parcel Deliveries: Many people think that people with disabilities use the parcel services more than most. Unfortunately, this isn't the case. Read about the barriers to deliveries. 
  • Funding Opportunity to Strengthen Workforce: The Administration for Community Living announced a funding opportunity to strengthen the workforce. It's a technical assistance and capacity building initiative. Applications due June 28.
  • Caregiver Growth Rate Drop Despite Increasing Client Need: Here's another article about the workforce shortage. There aren't enough home care providers to keep up with the system. Learn about about what studies found. 
  • Voters Continue to Worry about Restrictions: Many Wisconsin voters with disabilities continue to wonder if new restrictions will inhabit their ability to vote in the primary election. Read about what they are anxiously waiting for. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 


96 Self-Determination Network News:
April 2022

Connect Share |Learn http://sdnetworkwi.org/ 

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Join the Conversation: The Caregiver Crisis 

For many people with disabilities and their families, the caregiver crisis has become front and center in their lives.

There are thousands of hours of needed care are going unmet. People are not receiving the care they need. Whether you work for an agency trying to find caregivers for clients or a person who is trying to hire workers yourself, finding caregivers is almost impossible.

Lots of advocacy groups are trying to come up with a solution to this. When you need to find direct care workers, individually or with an agency, what are some unique ways it can be done? Do you have an idea of how to help improve the current situation we are in? What are some ways we can start to mitigate this issue?

If you could ask for one thing right now to fix the problem, what would it be?

Let’s brainstorm ideas here!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Emily. When this determined self-advocate isn’t working with the Living Well Grant, she’s probably busy doing one of her several hobbies. Check out this month's Member Spotlight to get to know Emily.   

Who should we shine the spotlight on next?

128 Stacy’s Journal



"In today’s world where everything is so divided, I would hope people would to accept people for who they are, and if they want to make a joke about someone publicly, at the very least, ask the person beforehand if it’s ok to use. "




In this month's entry, Stacy discusses the situation that happened during the Oscars and the connection to people with disabilities it has. What's your take on the situation? Have you ever been in a similar situation?



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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Hidden Costs: Two years into the pandemic, and many people with disabilities are facing hidden costs that most people don't even think about. Learn what some of these are. 
  • National Guard Assisting in Nursing Homes and Hospitals: Over 150 National Guard members recently completed CNA training and are assisting staff in hospitals and nursing homes. Read more about why this is. 
  • New Innovations Often Inaccessible: Through the pandemic, many new innovations have been created in the medical field. While great for most people, some of them aren't accessible to people with disabilities. Find out more about why some are inaccessible. 
  • A Vision of a Great Self-Direction Program: A recent paper was published by former InControl board member and forever friend,  Lynn Breedlove, entitled, " What Would a Great Self-Direction Program Look Like?" He lays out the information framework for what an ideal self-direction program would look like. This is meant to be conversation starter. What do you think? Do you have other ideas? 
  • Web Accessibility Guidance: The U.S. Department of Justice (DOJ) has published guidance on web accessibility and the Americans with Disabilities Act (ADA) to inform state and local governments and businesses open to the public on how to ensure their websites are accessible to people with disabilities. Learn about what the guidance explains.
  • Real Pay for Real Jobs Initiative: The U.S. Department of Education’s Rehabilitation Services Administration (RSA) invites applications for the Subminimum Wage to Competitive Integrated Employment (SWTCIE) demonstration project, aimed at increasing access for people with disabilities to jobs that pay good wages. Submissions are due June 21. 
  • Voting Worries: Due to recent court rulings, many people with disabilities in Wisconsin are concerned about their ability to vote. Read about what the rulings could mean.
  • States Efforts to Address Workforce Shortage: This brief looks at state Medicaid efforts to address the Home-and-Community-Based Services workforce shortage. Learn about what states are doing. 
  • Inclusive Coffee Shop: A new coffee shop in Waukesha, focused on inclusiveness, recently opened. Find out what makes this shop unique.
  • Robots in the Classroom: The use of artificial intelligence has skyrocketed in recent years. People with disabilities often can increase their independence with the use of it. Read about how robots are helping students with disabilities in the classroom. 
  • Proposed Rule to Improve Accessibility on Laboratories on Single-Aisle Aircraft: The Department of Transportation is seeking public comment a rule that would improve accessibility of laboratories on new single-aisle airplanes. Comments can be submitted until May 21.
  • History Made at the Oscars: A movie featuring predominately people with disabilities made history at this year's Oscars. Find out what film it was. 
  • Boost to Money Follows the Person Program: The Centers for Medicare & Medicaid recently announced a $110 million boost to the Money Follows the Person program. Learn about what this will help with. 
  • Voter Experience Survey: The League of Women Voters is conducting a Voter Experience survey to hear from voters about their experience in the April 5th election. Take the survey now.  

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 


96 Self-Determination Network News:
March 2022

Connect Share |Learn http://sdnetworkwi.org/ 

Time to Start Planning for the Spring Election 

The Spring Election is coming up April 5th. There are several things you should have an understanding about before going to the polls or filling out your absentee ballot. The Wisconsin Disability Vote Coalition has put together a toolkit for the Spring Election. It has fact sheets, timelines, and other resources you can look at to help you with the voting process. Remember, voting is an important part of advocating for what you want changed. 

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Katie. When she’s not busy crafting or gardening, she’s advocating for marriage equality not only for herself, but for others as well. Check out this month's Member Spotlight to get to know Katie.   

Who should we shine the spotlight on next?

128 Stacy’s Journal

"I don’t think I’ll ever get used to answering the hard questions. It’s a part of living with a disability I don’t like because I try not to focus on the abilities I don’t have."

In this month's entry, Stacy talks about how people with disabilities often have to answer hard questions more frequently than most. She opens up about how hard it can be mentally to keep having to talking about everything you can't do. Do you ever feel this way?

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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • The Rage Fund Survey: Anna posted a survey seeking information to understand the needs of people who use in-home care providers. The hope is to use the information to develop more responsive solutions. Please consider taking the survey if you use in-home caregivers. 
  • Disparities in Caregiving: A research brief was recently released detailing the caregiver workforce by gender and race / ethnicity. Learn about the need for policy and practice interventions to address these disparities in the workforce. 
  • Input Needed: The National Institute Of Health is seeking input on its framework for the Strategic Plan for Diversity, Equity, Inclusion, and Accessibility. Comments due April 3.
  • Insurance Coverage of At-Home COVID Tests:  The Administration for Community Living has released a fact sheet about insurance coverage for at-home COVID tests. Find out ways that you may be able get at-home tests for no cost. 
  • Guidance for Health Care Providers: Recently, new guidance was issued for health care providers working with people with disabilities. The guidance is meant to ensure people with disabilities aren't discriminated against in accessing health care during the COVID public health emergency. Learn more about what the guidance says.
  • Alternatives to Guardianship Website: The Center for Youth Voice, Youth Choice recently launched a website with resources about alternatives to guardianship. Check it out!  
  • Caregiving Report: The National Alliance for Caregiving has published a 2021 national report, "Caregiving in a Diverse America: Beginning to Understand the Systemic Challenges Facing Family Caregivers," which was based on results of the Caregiving in the U.S. 2020 study. Learn what the study revealed.
  • COVID Response and Recovery Fact Sheet: The Biden Administration released a fact sheet that lays out steps to address the needs of people with disabilities in response and recovery of COVID.  

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

Self-Determination Network February 2022


By SD Network, 2022-02-14

96Self-Determination Network
February 2022

Connect Share |Learn http://sdnetworkwi.org/ 

Register Now for Disability Advocacy Day of Change 

Registration is now open for Disability Advocacy Day of Change which will be held virtually on March 16, 2022. It's a event focused on connecting Disability Advocates with their legislators to talk about issues important to them. Attendees are expected to participate in the morning briefing and call their legislators in the afternoon. Registration deadline is March 8. Register today

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Krystal. This writer has overcome a challenging childhood and has learned writing helps her express her feelings. Check out this month's Member Spotlight to get to know Krystal.   

Who should we shine the spotlight on next?

128 Stacy’s Journal





"When I think of the word “disabled,” I think of something that does not work. A disabled car, for an example. What does it portray when we use the same word to describe a broken-down vehicle that we do a person?"

In this month's journal entry, Stacy tackles the controversial topic of disability labeling. She shares her thoughts on the topic and what her preferences are. What are your preferences on this?





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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Vaccine Mandates: Despite the Supreme Court blocking wider mandates, some support workers working with people with disabilities will still be required to be vaccinated. Read about what the Court decided. 
  • High Hopes for Legislation: Disability advocates have high hopes that the Build Back Better Act will bring some much needed increases for Home-and-community-based services. Learn about what advocates are hoping. 
  • Input Needed: The Office of Science and Technology is looking for input on how technologies are used, or could be used, to better community health, individual wellness, and health equity. Comments are due by February 28. 
  • Workforce Strategies: As we all know, for years there has been a national shortage of direct care workers. In a recent report done by the Center for Health Care Strategies, four key recommended. Learn what they are. 
  • 2020 Caregiving Study: The National Alliance for Caregiving released its report with the results of the Caregiving in the US 2020 study. Find out what the study found.
  • Lack of Candidates: Despite over a million people with disabilities wanting to work, new research shows that a key barrier to hiring people with disabilities is the lack of candidates.  Read about other factors that contribute the lack of disability representation in the work place. 
  • Wisconsin Youth Leadership Forum: The Wisconsin Youth Leadership Forum (YLF) is a week-long, overnight leadership training and career awareness program for high school sophomores, juniors and seniors with disabilities. Applications due April 1.
  •  Helpful Resource: The National Center for Advancing Person-Centered Practices and Systems compiled a list of helpful resources for person-centered practices and related activities to enhance work supporting people with disabilities and older adults with long-term services needs. Check it out! 
  • Medical Diagnostic Equipment: A final rule has been issued related to standards for medical diagnostic equipment. Learn about what the rule requires.
  • Input Needed: The Federal Communications Commission is seeking comments on an action to improve the clarity and accessible of visual Emergency Alert System messages to the public, particularly to people who are Deaf or hard of hearing. Comments due on March 28.  

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

Self-Determination Network January 2022


By SD Network, 2022-01-20

96Self-Determination Network
January 2022

Connect Share |Learn http://sdnetworkwi.org/ 

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Disability Advocacy Day of Change 

Disability Advocacy Day of Change will be held virtually on March 15, 2022. It's a event focused on connecting Disability Advocates with their legislators to talk about issues important to them. Attendees are expected to participate in the morning briefing and call their legislators in the afternoon.   

Watch for registration information coming soon! 

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

In December, we shined the spotlight on Stefanie. Growing up with a sibling with a disability shaped her outlook and passion in life. She enjoys making self-determination the center of peoples lives. Stop by and get to know Stefanie in the December Member Spotlight

This month, we shined the spotlight on Jen This outgoing self-advocate does everything she can to change the world’s perception of Down Syndrome. She encourages everyone to advocate to achieve their girls and to set high expectations. Check out this month's Member Spotlight to get to know Jen.   

Who should we shine the spotlight on next?

128 Stacy’s Journal




"If we can send civilian tourists to space, we should be able to take flights in airplanes without our vital equipment being damaged. Unfortunately, I don’t foresee anything changing anytime soon. We, as a disability community, have to continue to make sure that we are seen and heard. That’s the only way changes are going to happen."


In December's journal entry, Stacy talked about how we are now sending tourists to space, but, yet, people who use wheelchairs can't fly in an airplane without worrying about our chairs being wrecked. Something doesn't add up - - she discussed how we need to make everything inclusive. Do you agree with her?

"I don’t have the solution to this massive issue. While I do think adequate pay and maybe some benefits would help, I don’t think that’s the whole issue either. People don’t want to work period. When you have an overall lack of enthusiasm to work and can make more money not working, how can you blame them?"


Stacy discusses how the direct caregiver shortage has become dire in this month's journal entry. Have you struggled to find caregivers?




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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

Join us to Film a Video 


Are you a Self-Advocate? Would you like an opportunity to speak up for yourself? Do you want to be on the Self-Determination YouTube Channel?




Join the hosts of the Self-Determination Channel for a Zoom Meet-Up video recording session. We will record your conversation on why it’s important to stay connected with family, friends, and your community. Share your feelings about how Covid 19 has changed your life and relationships. This is your chance to make your voice heard.




Mark your calendar for Tuesday, February 8 from 6:00 – 7:00 pm.  Contact Fil Clissa at fil.clissa@wisconsin.gov for the link to participate.


196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Assistive Technology Brief: The National Assistive Technology Act Technical Assistance and Training Center released a new issue brief that describes how AT Act programs are supporting people who are experiencing long-term effects of COVID. Learn what these programs offer. 
  • EVV Study: A research firm recently did a study on the affects Electronic Visit Verification (EVV) has on care. Find what what the study revealed.
  • Video Games Open Doors: Advancements in video game technology have made it possible for people with disabilities and health conditions to be able to experience outdoor environments without having to leave their house. Read about video games have become an unusual assistive technology tool. 
  • "Silent Majority": Why doesn't the disability community have more political power? There are over 61 million people living with a disability and yet  they still have little involvement in the political arena. Read more about how the disability community continues to lack in politics. 
  • Largest Home-and-Community-Based Services Increase Moves Forward: A $1.9 trillion bill that includes many different supports for home-and-community-based care and senior services was passed by the House of Representatives recently. Read about what this bill would include. 
  • Take Survey: The Southwest ADA Center is conducting a study on video game accessibility for people with disabilities. The survey closes February 28.
  • Airport Program: Mitchell International Airport in Milwaukee recently launched a program to assist adult travelers who have disabilities. Find out how the program works. 
  • Accessible Routes at Historical Museum: Recently, the Smithsonian Museum of Natural History held a ribbon-cutting ceremony to celebrate the installation of new sloped walkways for accessible entry on the National Mall side of the 111-year-old building. Read more about the accessibility change. 
  • State Transition Plan Submitted: The Wisconsin Department of Health Services (DHS) has submitted the updated statewide transition plan for final approval to the Centers for Medicare & Medicaid Services (CMS). Learn what changes were made. 
  • Cracking Down on Caregiver Mistreat: Federal officials are working to make sure that paid caregivers aren't being taken advantage of.  Learn about what the Department of Labor is doing to try to prevent some of the mistreatment. 
  • Rate Increase: The Wisconsin Medicaid reimbursement rates for home-and-community-based services went up 5%. Learn what programs this applies to. 
  • The Affordable Connectivity Program: The Federal Communications Commissions  launched a longer-term program to replaced the Emergency Broadband Benefit Program. Read about what the program would help ensure. 
  • Accessibility Awareness: In recent years, accessibility awareness has become more and more prevalent in conversation, but those conversations haven't necessarily turned into action. Read about how some people feel that accessibility should be part of the culture.
  • Vaccine Information: The Administration for Community Living recently released a good informational sheet about COVID vaccines and boosters. Check it out! 
  • Doctors Unclear about Obligations to People with Disabilities: A new study finds that many doctors don't know their obligations to people with disabilities. Learn about what some of requirements are.  

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96Self-Determination Network News:

November 2021

Connect Share |Learn http://sdnetworkwi.org/ 

National Family Caregiver Month

November is National Family Caregiver Month. The Survival Coalition, the Wisconsin Aging Advocacy Network, and the Wisconsin Family Caregiver Alliance released this three minute video to listen to some of the challenges facing family caregivers across Wisconsin: See Us: Wisconsin's Invisible Family Caregivers

Without this essential support from dedicated family members, many older adults and people with disabilities would not be able to live in their own homes and would be forced into expensive Medicaid-funded institutional settings. We encourage you to share this video with your legislators and tell them your story. 

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It was a great Self-Determination Conference again this year! We understand many people missed being able to attend in-person, but we were glad so many were able to join virtually. Let's keep the conversation going! Share your comments, questions, and ideas. Join the conversation!

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We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Olivia. This determined self-advocate doesn’t let anything stop her from achieving her goals. As director of an advocacy program for high school students, she helps others learn leadership and advocacy skills. Stop by this month's Member Spotlight to get to know Olivia.  

Who should we shine the spotlight on next?

128 Stacy’s Journal








"It’s really cool to experience something that you never thought would be possible, and know it was made possible due to generous people. In today’s world of so much doom and gloom, it’s refreshing to experience humanity first-hand."


In this month's journal entry, Stacy discusses her experience going up the Eagle Tower at Peninsula State Park. Have you been there? What did you think of it? Share your experience with us!








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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Landmark Bill Introduced: New legislation was recently introduced that would create add-on plans for Medicare Home Health Benefit that would allow providers to mix in telehealth, transportation, personal care, and other services. Learn more about this new bill. 
  • Benefits Increase: It was recently announced that Supplemental Security Income and Social Security will get a significant increase in 2022. Find out how much it will increase. 
  • Workforce Study: A study was done about the workforce displacement and re-entry during the pandemic among direct care workers and workers other jobs. Find out what the study revealed.
  • Technical Bulletins: The U.S. Access Board has released technical bulletins on accessibility to lavatories and sinks, washing machines and clothes dryers, and saunas and steam rooms. Read about what they specify
  • Workforce Safety: Due to the nature of the job, home care workers are at increased risk for experiencing workplace violence. Learn how the Occupational Safety and Health Administration is doing to try to prevent this. 
  • Federal Funding Increases Home Care Services: The Department of Health and Human Services unveiled a plan how to use funds to expand home-and-community-based services. Learn what they are planning to do. 
  • Public Comment Needed on Voting Access Recommendations: The National Institute on Standards and Technology is seeking public comment on recommendations for addressing voting access for people with disabilities. Public comment closes November 22.
  • Boost in Home-and-Community-Based Services: President Biden is moving forward with his push for the biggest increase to home-and-community-based services in 40 years. Learn what services this could improve.
  • Transportation Grant Opportunity: The U.S. Department of Transportation’s Federal Transit Administration (FTA) announced the availability of $3.5 million in Fiscal Year 2021 competitive grant funding for projects that improve access to vital services for older adults and people with disabilities, and in low-income communities. Proposals due December 6.
  • Family Caregiver Campaign: Due to the caregiver shortage across the country, family caregivers are overwhelmed and feeling the brunt of it. Find out what three policy changes advocates are  highlighting that would help family caregivers.
  • Assistive Technology Survey: WisTech is looking ahead to 2022 and would like your input on what training topics you are interested in.  The survey closes December 10.
  • Electronic Visit Verification Hard Launch Delayed: The Wisconsin Department of Health Services announced that they are delaying the hard launch of Electronic Visit Verification. Read more about the plan.  

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

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The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96Self-Determination Network News:

October 2021

Connect Share |Learn http://sdnetworkwi.org/ 

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Registration Closes Wednesday October 13th!

There's still time to register for this year's Self-Determination Conference. It will be held virtually October 18-20.You'll be able to learn from self-advocates who are living their best and most creative lives and get the latest information about how to self-direct your supports: inspiring employment, health solutions, housing options, financial opportunities, and so much more! See the Conference Brochure for details. Registration is FREE, but you have to register by this Wednesday. Register today!

After the conference, we'll have a discussion on the Network about it. Continue conversation and chat with others about what you learned during the conference. Watch for an email with instructions on how to join the discussion! 

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Tyler. This Special Olympian and Paralympian has real determination, and he has a great support circle who help him.  Stop by this month's Member Spotlight to get to know Tyler. 

Who should we shine the spotlight on next?

128 Stacy’s Journal








"We are accustomed to seeing people do things a certain way. When a person does a task or activity different, we are interested. It’s not wrong--it’s human nature to want to watch someone do something in a different way. "


In this month's journal entry, Stacy opens up about how sometimes she feels like a spectacle because she does things in a different way than most people do. Have you ever felt this way?







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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Emergency Response Report: The US Government Accountability Office recently released a report about how the CMS response to COVID could help in future emergencies. Learn about what the suggestions are. 
  • Disability Activism: Often, people with disabilities don't have choice, but to advocate for what they need. Read about the whole notion of disability activism. 
  • Emerging Leader Award Nominations: The American Association of People with disabilities announced applications are available for the 2022 Paul G. Hearne Emerging Leader Award. Applications are due October 27. Find out more about this award and apply today! 
  • Feasibility of Wheelchairs on Aircrafts: The US Access Board recently studied the feasibility of wheelchair securement systems for passenger use in airplanes. Learn about what the study found. 
  • Call for Presenters: Proposals to present at the 2022 Circles of Life Conference are now being accepted. Proposals due October 20.
  • Recommendations for Family Caregiver Support: The RAISE Family Caregiving Advisory Council recently gave their initial report to Congress. Read about what the recommendations are.
  • Vaccine Mandates Cause Concern: President Biden mandated that nursing home workers get vaccinated or they risk losing funding. However, this doesn't apply to most home care workers. Find out why advocates aren't pushing for this. 
  • Staff Shortages Continue: The direct care worker has gone from a problem to a crisis. Read about what a recent study found. 
  • Booster Guidelines: Recently, the CDC approved booster vaccines for some people. Learn about who may qualify. 
  • New Vendor for Non-Emergency Medical Transportation: The Wisconsin Department of Health Services announced that beginning November 1, Medicaid members will be working with a new vendor for non-emergency medical transportation services. Read more about this change. 
  • The Future of Disability Advocacy and Politics: Recently, the Biden Administration has leveraged disability rights. This is a very interesting article about what this could mean for the future of advocacy and politics. 
  • The State of America's Direct Support Workforce: A new reveals just how much the pandemic has impacted the already depleted direct care workforce. Learn about what people think needs to happen. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

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The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96Self-Determination Network News:

September 2021

Connect Share |Learn http://sdnetworkwi.org/ 

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Don't Forget to Register!

Don't forget to register for this year's Self-Determination Conference. It will be held virtually October 18-20.You'll be able to learn from self-advocates who are living their best and most creative lives and get the latest information about how to self-direct your supports: inspiring employment, health solutions, housing options, financial opportunities, and so much more! See the Conference Brochure for details. If you register by September 30, you'll receive a great conference kit. Registration is FREE! Register today!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Jordan. This recent high school graduate has found his love for advocacy, and he encourages people to get involved in any type of advocacy. He explains it's a good way to connect with people.  Stop by this month's Member Spotlight to get to know Jordan. 

Who should we shine the spotlight on next?

128 Stacy’s Journal






"When I see people “take advantage” of specialized equipment or say something irrational, it does affect me. I have to remind myself that they probably don’t realize what they’re doing or saying may be offensive. While I don’t see these situations changing anytime soon, educating people is important. Please take advantage of the abilities you do have."




In this month's journal entry, Stacy shares how it irritates her when capable people take advantage of specialized equipment or say something irrational about somebody's disability. Do these things bother you?






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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Hopes for SSI Overhaul: For the first time in year, there could be big changes to Supplemental Security Income. Find out what this could mean for the program. 
  • Input Needed: The National Quality Forum (NQF) is seeking input on 14 quality measures for home- and community-based services (HCBS).  Comments can be submitted through September 17.
  • CMS Vaccination Guidelines: The Center for Medicare and Medicaid Services released guidelines for vaccination education,  access and reporting for the residents and staff of nursing facilities and intermediate care facilities for people with intellectual and development disabilities. Read about what the guidelines are. 
  • Take Survey: Each year, the Wisconsin Board for People with Developmental Disabilities (BPDD) does an annual survey for self-advocates and family members who have participated in a BPDD project. Help them out by taking the survey! 
  • New Resource: The Center for Disease Control and Prevention recently released a toolkit to help people with disabilities understand more about COVID. Check it out.
  • Watch: The Applied Self-Direction website recently released a great short video explaining what self-direction is.
  • Climate Resilience Efforts Pose Risks: People with disabilities often face more challenges with the effects of climate change. Read about how some advocates feel that people are new risks from mitigation efforts.  
  • Summer Internship Program: The Association of People with Disabilities is accepting applications for their Summer Internship Program. Applications are due October 20. Learn more and apply today! 
  • Workforce Shortage Still Widespread:  The home health care workforce has more than doubled in the past 10 years, but it'll need to do that and more to keep up with demand in the next decade. Learn what will be needed to keep up. 
  • Annual Direct Care Workforce Data: Check out the annual data on the Direct Care Workforce. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

August 2021

Connect Share |Learn http://sdnetworkwi.org/ 

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Registration Now Open!

The 2021 Self-Determination Conference will be October 18-20. With the health and safety of participants in mind and with the current raise in COVID cases and variants, it has been decided that a virtual conference is the best option for 2021. You’re in for a great virtual conference experience again this year! There will be lots of interactive and networking opportunities.  You'll receive a great conference kit and registration is FREE! Register today!

Calling Microbusiness Owners

There is a new way to exhibit at the Self-Determination Conference this year! The All Abilities Market is an online marketplace where microenterprises and artists can sell their products and/or services. You have the unique opportunity to join this marketplace and sell online, not only at the Self-Determination Conference but all year long! Applications are due September 1.

Exhibitor Applications Available 

Applications to be an exhibitor at the conference are now being accepted. Organizations that support self-determination and self-directed supports are encouraged to apply. Applications are due September 1.

Diehard Award Nominations

Do you know someone who goes above and beyond to improve community supports for individuals with disabilities?  Do they support self-determination?  Nominate them for a Diehard Award in one of the following two categories: Professional Advocate or Self-Advocate/Grassroots Advocate. Nominations are due September 1.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Sydney. This animal–loving self-advocate keeps busy by participating in various advocacy organizations , and she encourages others to get involved in some sort of advocacy. Stop by this month's Member Spotlight to get to know Sydney. 

Who should we shine the spotlight on next?

Voting Bills Update

Governor Evers recently vetoed bills that would have created new barriers and have impacted the voting rights of many people with disabilities. The Wisconsin Disability Vote Coalition released a new document that highlights stories of voters who these bills would have impacted. While these bills were paused for now, we encourage you to continue to reach out to your legislators and share how important it is to make voting accessible for everyone. 

People First Wisconsin is Hiring! 

People First Wisconsin is a statewide Self-Advocacy organization for people with disabilities. They help people speak up for themselves, share ideas, start local Self-Advocacy groups, and work together with advocates across Wisconsin on issues important to members to improve life for people with disabilities. Currently, they're accepting applications for a Office Manager and a Financial Manger. Learn more about these positions and find out how to apply by clicking here. Applications are being accepted until September 8.

128 Stacy’s Journal




"Sports have a funny way of pushing people to their limit, but also bringing people together. They make people realize what they are capable of and how far they can go. They also help us realize that humans are humans, and nobody is perfect."


In this month's journal entry, Stacy discusses the different types of Olympics and how they impact the world. What do you learn from watching the Olympics?




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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • SPARKS Grants: SPARKS grants are meant to give people with disabilities more social connections by participating in community activities, and they help provide inclusive programming that gives people more opportunities. Applications are due September 10.
  • Input Needed on "No Surprise Billing" Rule: Surprise billing can occur when someone receives care from a provider outside of their insurance carrier’s network. This often occurs in emergency situations, when people do not have control over where they are taken for medical care. A new rule would implement requirements set in the No Surprises Act to establish protections against surprise billing. The public comment period closes September 7.
  • The Importance of Web Accessibility: Most use the Internet on a daily basis. The opportunities that the Internet brings are endless. However, for people with visual impairments, these opportunities are significantly more limited.  Learn why website accessibility is becoming more and more important. 
  • COVID Added to Disability Qualification List: Recently, the US Department of Justice and the US Department of Health and Human Services released guidance that explains that explains when “long COVID” may be a disability under the ADA, Section 504 of the Rehabilitation Act, and Section 1557 of the Affordable Care Act. Learn about what this means. 
  • Fact Sheet: Late in July, we celebrated the 31st anniversary of the Americans with Disabilities Act (ADA). The Biden-Harris administration released a fact sheet about what they've done to ensure people with disabilities receive resources and are included in key administration proposals.  Check it out. 
  • Report on AVs: The U.S. Access Board has released a summary report on its four-part series of virtual meetings on making autonomous vehicles (AVs) accessible to passengers with disabilities. Learn what the report reveals.  
  • Transit Training Opportunities: The National Center for Mobility Management recently announced some training opportunities for transit systems. Find out more about these opportunities. 
  • Website Accessibility Website: Recently, a baseline for testing accessibility of web content was developed. The criteria sets a minimum for testing accessibility of websites.  Learn about what the criteria is. 
  • Accessible Tourist Attraction: A popular tourist attraction in Door County has recently become accessible to all visitors. Find out which attraction got renovated. 
  • Health Care Outreach Toolkit: The Aging and Disability Business Institute has developed a toolkit for community-based organizations to help conduct outreach to potential partners and craft effective messages. Learn what else is included in the kit. 
  • Tech Giant Launches Employment Program: Google recently announced it's starting a program to help hire more people with autism. Read more about how the program is setup. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

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