SD Network

Category: Network News


96

Self-Determination Network News:

December 2024

Connect Share |Learn http://sdnetworkwi.org

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We absolutely loved seeing and meeting so many of you at the Self-Determination Conference at the end of October. We want to thank everyone who participated in the Stewing with Stacy raffle, and we welcome all the new members who joined the Network! It was a great Conference again this year!  How did you like it? There were a ton of great sessions and events.  This year’s theme was A Seat At The Table: Nothing About Us, Without Us! What was your favorite part? What resources did you find particularly helpful? Did something really inspire you? Let's keep the conversation going! Share your comments, questions, and ideas here.

The session recordings and materials from the 2024 Self-Determination Conference are now available online! If you weren't able to make it this year, save the date for 2025 and join us October 20-22, 2025!

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For the first time since the IRIS Program started in 2008, a group of IRIS participants, families, self-direction advocates and other stakeholders spent a day together in November 2023 to discuss what is working well in IRIS and what could be improved. In addition, the group identified a number of recommendations for how to achieve improvements in the program. A public report summarizing the consensus from that gathering has now been released and submitted to the Wisconsin Department of Human Services, along with a proposal to create a broad-based task force to work through the issues and recommendations. Read the full report.


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🤝✨ Building strong relationships is at the heart of compassionate care! The team at InControl Wisconsin wants to hear from you: how do you foster connections with the people who support you? Have you used the resources from Caring Across Cultures? Whether it’s through active listening, shared activities, or cultural exchanges, your experiences matter! Share your tips and stories with us by going to the CAC website, and let’s inspire each other to create even deeper bonds. 🌈💖

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Disability Advocacy Day 2025

Save the date for the 2025 Disability Advocacy Day on Wednesday March 12th in Madison. We'll be sending out information about details and registration in a few weeks. We hope to see you there!


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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

In November, we shined the spotlight on Peter. This avid Wisconsin sports enthusiast loves connecting with others and hearing them share their story.  Check out this month's Member Spotlight to get to know Peter.

For December, we're shining the spotlight on Katrina. This video game obsessed self-advocate is the coordinator of the Self Advocacy Action committee at the University of Minnesota-Twin Cities Institute on Community Integration. Stop by this month's Member Spotlight to get to know Katrina.    

Who should we shine the spotlight on next?

128 Stacy’s Journal



"What happens when two major life changes happen at the same time? To put it bluntly, it’s pure chaos!" In November's journal entry, Stacy opened up about some major changes that happened in her life. Have you been through a major change recently? How did you deal with it?



"When something sounds too good to be true, it probably is. Second, the long-term care system continues to have roadblocks whether you’re working with an agency or hiring your own aides. Third, be grateful for the support system you have with family and/or friends! Finally, this experience just amplifies the need to continue to advocate for a better overall system in 2025 and beyond!" In December's journal entry, Stacy opens up about her recent care nightmare. Have you experienced something like this? How did you resolve it?




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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).



196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Advancing Independence and Community Integration for All: The President’s Committee for People with Intellectual Disabilities (PCPID) has prioritized high-quality home and community-based services for their report to the president with a focus on four key areas: direct support professionals, employment, community living, and federal support. Read the report.
  • Fear of Losing Benefits: Fear of losing Medicaid benefits is a factor in debates over law allowing certain workers with disabilities to be paid lower than minimum wage — advocates urge Wisconsin lawmakers to pursue expansion. Learn why.
  • Direct Care Wages Factsheet: This factsheet presents an analysis of wage disparities between direct care workers and similar occupations across the United States in 2023, as well as trends in this wage gap from 2014 to 2023. Take a look at it.
  • Increase in Employment: Federal data shows that the number of people with disabilities finding employment is increasing. Find out what advocates credit the rise to.
  • The Sandwich Gap: There’s a growing number of us who are Millennials or Generation X and struggle to balance the obligations of parenting school-age children, caring for elderly loved ones, and working for a living. Read about what a recent study found.
  • Airline Fined over Treatment of Passengers with Disabilities:  One airline has agreed to a record $50 million settlement with the U.S. Department of Transportation for violating laws that protect airline passengers with disabilities. Find out what else they are accused of.
  • Experiences of Direct Care Workers and Family Caregivers: This brief includes findings from focus groups with direct care workers and family caregivers who provide home-and-community-based services. Learn what the groups found.
  • Who Are the Direct Care Workers?: This analysis provides an overview of demographic information, wages, and health care coverage of direct care workers. Find out what this analysis found.
  • Sponsor and Exhibitor Registration Open: Registration for sponsors and exhibitors for the Circles of Life Conference is now open. Early bird registration ends in February!
  • Myths of Self-Directed Care: Enrollment and awareness of self-directed care remain low. Read about some of the myths.
  • Workforce Shortages Top the List: State legislatures passed over 3,000 health policy bills in 2024, focusing on healthcare workforce shortages, Medicaid changes, and youth mental health. Learn what key actions include.
  • Caregiver Impact Report: This report lists hundreds of actions that federal agencies, state and local governments, businesses, and communities that can be taken to improve caregivers' lives.. Learn what five goals the strategy includes.

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

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The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

October 2024

Connect Share |Learn http://sdnetworkwi.org


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Caring Across Cultures is a learning experience focused on helping people with disabilities and their direct care workers to develop stronger, more meaningful relationships. We believe that identifying the cultural differences that exist between two people is a critical step in the relationship building process.

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View This Free Resource

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The information covered by Caring Across Cultures includes materials for direct care workers  and those considering direct care work, direct care agencies, disabled adults, and older adults. 

Course Topics

  • Overview of Direct Care Work
  • Your Beliefs About Disability
  • Understanding Our Differences
  • Resolving Differences to Build Strong Relationships

Additional Resource Topics

  • Worker Rights
  • How I Interact With People
  • Worker Responsibilities
  • Employer Legal Responsibilities
  • Employer Best Practices
  • Tips For Writing Job Descriptions and Announcements
  • Interview Tips For Employers
  • Exploring My Identity
  • Preparing For Challenging Conversations 
  • Is Direct Care Work Right For You

128 Stacy’s Journal










"I know the exorbitant amount of joy they bring to my life; I only hope that I can bring a jolt of joy to theirs!"



In this month's journal entry, Stacy discusses the challenges and triumphs of being an aunt who has a significant physical disability. Are you an aunt or uncle who has some unique circumstances? How do you overcome them?










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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).



196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Updated Guidance on Housing Voucher: Recently, the Department of Housing and Urban Development has updated its guidance for the Mainstream Voucher program which creates new alternative requirements and waivers to allow public housing agencies to better utilize the vouchers by helping people with disabilities avoid institutional settings and live in the community. Learn more about the guidance.
  • Guardrails to People on Medicaid: People who receive Medicaid are regularly evaluated to determine eligibility. Read about the new guidance outlining steps states should take to make sure that people with disabilities are not accidentally dropped from Medicaid home and community-based services.
  • Voters with Disabilities Continue Battle for Electronic Ballots: Two months ago, many voters with disabilities in Wisconsin were looking forward to being able to receive and mark a ballot electronically. However, an appeals court disrupted the plan.  Learn about how advocates continue to fight for access to electronic ballots.
  • Right-of-Way Guidelines: The General Services Administration (GSA) recently published a final rule adopting the public right-of-way accessibility guidelines issued by the Access Board. Find out what the guidelines include.
  • Input Needed on AI: The Access Board is seeking feedback on the benefits and risks of artificial intelligence (AI) for people with disabilities. Comments due October 31st.
  • The Autism CARES Act of 2024: The U.S. House of Representatives has taken a crucial step forward in supporting the autism community by passing the Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act of 2024. Learn what this Act includes.
  • Wisconsin Medicaid Managed Care Quality Strategy: The Wisconsin Department of Health Services is seeking public comment on the 2025-2027 Wisconsin Medicaid Managed Care Quality Strategy. Comments due October 25th.
  • Free At-Home COVID Tests: The Department of Health and Human Services Administration for Strategic Preparedness and and the United States Postal Service is offering free at-home COVID tests. Find out how to get yours.
  • Best Cities: The annual ranking for best cities for people with disabilities was recently released. Check out to see which cities ranked highest.
  • Wisconsin Disability Policy Internship Program: The Wisconsin Disability Policy Internship Program is a 4-6 month, part-time paid internship designed to provide an early public policy career level experience in disability policy. Applications are due on October 28th. Learn more and apply today!
  • Call for Presenters: The 2025 Circles of Life Conference is May 8th & 9th in Wisconsin Dells. Proposals to present are now being accepted. Applications are due October 25th.

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

September 2024

Connect Share |Learn http://sdnetworkwi.org

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Registration Closes Soon--Register Now!

Registration is now open for the 2024 Self-Determination Conference which will be held October 21st-23rd at the Kalahari Resort in Wisconsin Dells. This year's theme is A Seat at the Table: Nothing About Us, Without Us. Join us for one of the largest events for people with disabilities and people who support them. Learn how to live more independently, participate in your community, and direct your public funds efficiently.  Registration closes September 20th. Learn more and register today!


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InControl Wisconsin's Caring Across Cultures Project

On October 1, InControl Wisconsin will release Caring Across Cultures, a learning platform for older adults and people with disabilities who employ direct care workers, and for direct care workers.  It provides information and activities that can help employers and their workers develop stronger relationships with each other by understanding their differences and communicating effectively. To learn more, go to the InControl Wisconsin website here.





Survival Coalition Releases Priorities 

Survival Coalition, a cross disability and aging coalition made up of more than 20 statewide organizations (including InControl Wisconsin) has released the top priorities affecting people with disabilities in Wisconsin. Among the top priorities are access to in-home care, voting, and transportation. Read the full press release.





Join the Wisconsin Disability Vote Coalition for a Lunch & Learn Webinar

Are you ready for the Presidential Election in November? Join the Wisconsin Disability Vote Coalition on Tuesday September 17th from 12p.m. to 12:45p.m. to learn how to do things such as: register or check your registration, request an absentee ballot, vote early (in person), use the My Vote Wisconsin website, exercise your basic voting rights, and request accommodations. Register now!



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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).



196

Take five minutes to check out what's happening on the Self-Determination Network:

  • New Data: The Center for Disease Control recently released the annual update to the Disability and Health Data System. Find out what the new data revealed.
  • Push for Nationwide Headcount: Disability advocates are pushing for the federal government to track the number of direct support professionals there are. Learn why this is a crucial piece of data that is missing.
  • Employment Toolkit: This U.S. Department of Labor toolkit provides strategies and best practices to recruit, hire, retain, and advance workers with disabilities in good jobs in construction, manufacturing, and clean energy. Check it out!
  • Proclamation: In late July, in celebration of the 34th anniversary of the Americans with Disabilities Act, the White House put out a proclamation explaining what has been accomplished and what still needs to be done. Read about the actions being taken to further make things accessible.
  • State Fee Changes: The Evers administration recently announced the establishment of minimum rates for home-and-community-based services care that must be paid by managed care organizations. Learn what advocates feel is needed to ensure that the increases actually show up in workers' paychecks.
  • Reflecting on the ADA: As we celebrated the anniversary of the Americans with Disabilities Act in July, there was a lot of reflection about not only how far the country has come, but also about how much still needs to be done.  Take a look at this very informative blog that recaps everything nicely.
  • Expanded Care Choices: Starting in January 2025, almost 8,000 Family Care and Family Care Partnership (Partnership) members in South Central Wisconsin will have more choices in who helps manage their long-term care. Find out which nine countries will be able to choose from two additional managed care organizations.
  • Laws Simplify Equipment Repair Process: For a long time, disability advocates and those who rely on mobility equipment have said that Wisconsin laws make it harder to repair devices. However, in the past year, two bills have been passed to address these issues Learn what these laws will do.
  • Updated Index: An updated online interactive tool and an accompanying report which allow users to analyze state policies and direct care workforce outcomes across the country. Learn why this is helpful to policy makers, advocates, and state leaders.
  • Finding Accessible Businesses: For people with disabilities, finding businesses that accommodate their accessibility needs can be challenging. Learn about the accessibility options one popular business review company added to help people find the specific accommodations they need when looking for a business.
  • Healthcare Task Force Report: Governor Evers recently announced that the Governor's Task Force on the Healthcare Workforce released its final report and advisory action plan including solutions to address the ongoing healthcare workforce shortages. Read about the recommendations the task force adopted.
  • Emerging Leader Award: The American Association of People with Disabilities Paul G. Hearne Emerging Leader Awards recognizes outstanding emerging leaders with disabilities who exemplify leadership, advocacy, and dedication to the broader cross-disability community. Applications due October 15th. Learn more and apply today!

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: July 2024


By SD Network, 2024-07-18


96

Self-Determination Network News:

July 2024

Connect Share |Learn http://sdnetworkwi.org

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Registration Now Open 

Registration is now open for the 2024 Self-Determination Conference which will be held October 21st-23rd at the Kalahari Resort in Wisconsin Dells. This year's theme is A Seat at the Table: Nothing About Us, Without Us. Join us for one of the largest events for people with disabilities and people who support them. Learn how to live more independently, participate in your community, and direct your public funds efficiently.  Learn more and register today!


 

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InControl Wisconsin's Caring Across Cultures Project

InControl Wisconsin, with a grant from the Department of Health Services, is developing Caring Across Cultures (CAC), a web-based learning experience for older adults and people with disabilities who employ direct care workers, and for direct care workers.

 

The CAC courses focus on how individual differences, like race, ethnicity, language, family history, and other factors can make it more difficult to develop good working relationships. The Caring Across Cultures courses provide information and activities that will help employers and their workers understand their differences and develop better relationships with each other.

 

The CAC will be available to any employer and direct care worker on the web in September, 2024. Now, the CAC team is looking for people to test the learning modules and provide feedback. They are especially interested in individuals with disabilities, family members, and direct care workers. The testing can be done from your home, via a video call. It will take no more than 60 minutes. If you, or someone you know, is interested, please contact Dave Verban at dverban@inccontrolwisconsin.com.

Join an Upcoming Lunch & Learn Webinar about Voting 

Join the Wisconsin Disability Vote on Tuesday July 23rd from 12-12:45p.m. for another Lunch & Learn webinar. Learn about voting rights for people living in residential settings like a nursing home, adult family home, or community based residential facility (CBRF). Plan to attend if you are a voter in a residential setting, staff from residential facilities, or anyone interested in this topic. Join Janet Zander, Advocacy and Public Policy Coordinator at the Greater Wisconsin Agency on Aging Resources, and the Wisconsin Disability Vote Coalition to learn about your voting rights for people living in a residential setting. Register here.

Opportunity to Give Feedback about the IRIS Program 

The Wisconsin Department of Health is in the process of renewing the IRIS waiver. This happens every five years. The department is requesting feedback from participants, family members, and caregivers about what's working well in the program and what needs to be improved in order to make things easier for people to live the lives they want. The department is holding public listening sessions on Tuesday July 30th from 6-8p.m. (register) and Wednesday July 31st from 1-3p.m. (register). There is also a survey you can fill out if you can't attend the listening sessions. It closes on August 2nd. This is really a great opportunity to let your voice be heard about what needs to be changed in IRIS.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on InControl Wisconsin board member, Cindy. She has been involved in self-determination in various ways for many years, and she loves seeing self-advocates speak up about what's really happening. Check out this month's Member Spotlight to get to know Cindy.   

Who should we shine the spotlight on next?

128 Stacy’s Journal








"Socialization is a crucial part of life for everyone. There are many different barriers that can make it hard; however, as long as you have great friends like I do, no amount of roadblocks will ever prevent you from seeing your closet friends!"



In this month's entry, Stacy talks about the barriers she has to overcome to try to socialize with friends. She explains how she has been blessed to have great friends who understand the challenges and make the effort to get together despite the roadblocks. Do you experience similar barriers? How do you overcome them?








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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).



196

Take five minutes to check out what's happening on the Self-Determination Network:

  • The Caravan for Disability Freedom and Justice: Marilee has posted information and the schedule for the Caravan for Disability Freedom and Justice. Find out when it's going to be in your area.
  • Accessible Absentee Ballot: A Dane County judge has ruled that voters who self-identify that they are unable to read or mark a ballot without assistance can be issued absentee ballots electronically.  Learn about this temporary injunction is part of a bigger lawsuit.
  • Voters Rights:  The Partisan Primary Election is August 13th and the General Election is November 5th. Read about the many important that voters with disabilities should know in an article that the Wisconsin Wisconsin Council of the Blind and Visually Impaired published.
  • Caregiver Survey: The Wisconsin Family and Caregiver Support Alliance wants to hear from family caregivers and professionals. Take this survey.
  • Accessibility Improvements to Google: Google recently a lot of new accessibility features for people who have vision impairments, cognitive delays, and physical limitations.  Find out what's being added.
  • Most Prevalent Disabilities in Wisconsin: A technology company working on solutions for web accessibility challenges collected disability statistics in Wisconsin. Learn what the data is being used to do.
  • Ballot Dropboxes: The Wisconsin Supreme Court recently overturned a previous ruling that banned dropboxes for returning absentee ballots. Learn why dropboxes are especially important for voters with disabilities.
  • Right-of-Way Accessibility Guidelines: The General Services Administration issued a final rule adopting the Access Board's Public Right-of-Way Accessibility Guidelines. Find out what these standards include.
  • Wisconsin Author: A lady from Rice Lake has found a way to turn the tragedies in her life into a life-long career of writing novels. Read about why she incorporates a character with a disability into each book.
  • Input Needed: The Office of Management and Budget is seeking input on a possible revision of the Standard Occupation Classification Manual. Comments are sought on a variety of topics, including whether OMB should consider adding “care workers” as a detailed occupation. Comments are due August 12th.
  • Disability Equality Index: The Disability Equality Index documents the growing importance of data in global business culture. Learn what companies use this information for.

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: June 2024


By SD Network, 2024-06-20


96

Self-Determination Network News:

June 2024

Connect Share |Learn http://sdnetworkwi.org

Registration for the 2024 Self-Determination Conference Opens in July

The 2024 Self-Determination Conference will be held October 21st-23rd at the Kalahari Resort in Wisconsin Dells. It's one of Wisconsin’s biggest (and most amazing) event for people with disabilities and the people who support them. Last year, over 800 people attended the conference! This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined live. Registration will open in July. We'll be sending out a message when registration is available. Stay tuned for details! 

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InControl Wisconsin's Caring Across Cultures Project

InControl Wisconsin, with a grant from the Department of Health Services, is developing Caring Across Cultures (CAC), a web-based learning experience for older adults and people with disabilities who employ direct care workers, and for direct care workers.

 

The CAC courses focus on how individual differences, like race, ethnicity, language, family history, and other factors can make it more difficult to develop good working relationships. The Caring Across Cultures courses provide information and activities that will help employers and their workers understand their differences and develop better relationships with each other.

 

The CAC will be available to any employer and direct care worker on the web in September, 2024. Now, the CAC team is looking for people to test the learning modules and provide feedback. They are especially interested in individuals with disabilities, family members, and direct care workers. The testing can be done from your home, via a video call. It will take no more than 60 minutes. If you, or someone you know, is interested, please contact Dave Verban at dverban@inccontrolwisconsin.com.

Join an Upcoming Lunch & Learn Webinar about Voting 

Constitutional amendments will be on the ballot again in August. Changing our constitution is  big deal. Join the Wisconsin Disability Vote Coalition's Lunch & Learn on Tuesday June 25th from 12p.m. to 12:45p.m. to learn what they’re about. We  will also talk about how the new maps may impact you, what else is on the ballot, and how you can be prepared. Register for the webinar here.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on the vice president of InControl Wisconsin, Julie. This fierce advocate for people with disabilities full-heartedly believes in the true meaning of self-direction and continues to push for change.  Check out this month's Member Spotlight to get to know Julie.   

Who should we shine the spotlight on next?

128 Stacy’s Journal






"Whether we admit it or not, every single person in the world likely has a superhero that they look up to. People with disabilities are no different. Our superheroes may be different than the normal celebrities people commonly think of, but that’s because we often have a different perspective on life."

In this month's journal entry, Stacy opens up about a special superhero in her life and how she continues to look this person for inspiration. Do you have someone like that in your life?






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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).



196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Caregiving Front and Center in the Election: With the election a few short months away, caregivers of all types are seeking better health care options. According to one report,  home health care and child day care are both in the top 10 industries with the largest number of working Medicaid enrollees. Learn why Medicaid expansion would greatly help.
  • Accessible Workplaces: Every year, Global Accessibility Awareness Day brings awareness to the need for digital access and inclusion in the workplace. Read about else should be considered when creating an accessible workplace.
  • Adaptive Clothing Startup: When people pick out what clothes they're going to wear, most take things like the weather, plans for the day, and their mood in to consideration. However, not many people think about how many buttons something has or how hard the zipper is on a certain piece of clothing. For people who have dexterity limitations or physical limitations, things like that really matter. Find out about an adaptive clothing startup in Madison that seeks to resolve those types of problems for people with disabilities.
  • Changes to SSI: The Social Security Administration is making several changes to the Supplemental Security Income program, which will take effect in September. Read about the changes coming.
  • WisCaregiver Connections: WisCaregiver Careers offers a free training for certified direct care professionals and certified nursing assistants. One component of the program is the WisCaregiver Connections online workforce platform that gives hiring providers access to certified workers.  Learn more about  the program.
  • New Accessibility Features: Apple announced a range of new capabilities aimed at making life easier for people with disabilities including an option to control a phone or tablet using only a person’s eyes. Find out what other features are going to be available.
  • Solutions to the Direct Care Workforce Crisis: Experts discussed solutions to improve jobs for the nation’s direct care workers at the National Skills Coalition’s 2024 Skills Summit. Read about some of the ideas that were thought of.
  • Push for Better Healthcare for Co-occurring Conditions: National developmental disability advocacy groups are linking multimillion-dollar partnerships with some big players in health care in a push to better address co-occurring conditions.  Learn about what groups are hoping to do.
  • EVV Hard Launch Date: A date for the hard launch of electronic visit verification  (EVV) for home health care services and personal care nurse supervisory visits has been set. Find out when it is.
  • Rebuilding Trust in Healthcare: According to a recent poll, the majority of people with disabilities have negative health care experience. Read about why many advocates feel that it's time for government to step in.
  • The Pink Umbrella Theater Company: The Pink Umbrella Theater Company was founded in 2018 as Milwaukee’s first theater for artists with a wide range of disabilities. Find out more about this unique company.
  • Partners in Policymaking: Partners in Policymaking is an advocacy and systems change training program that develops leaders who are able to work with legislators and communities on policies and initiatives that will support the full inclusion and participation of people with disabilities in all aspects of life. Applications are due on October 4th.
  • SPARKs Grants: Do you have an idea to make your community a better place for people with disabilities? Organize your grassroots group and apply for funding to help make it happen! Find out more about SPARKs grants and apply today!
  • Funding for Transportation: The U.S. Department of Transportation’s Federal Transit Administration announced $7.8 million for 17 projects that will improve public transportation for people with disabilities, older adults, and low-income individuals. Learn about what these grants will support.
  •  Input Needed on the Family Care Waiver: Last year, the Wisconsin Department of Health Services asked members, family, friends, caregivers, providers, managed care organizations, tribal leaders, advocates, and other partners how they can improve Family Care and Family Care Partnership. They used that input to draft changes to the program waivers. Now, they want your input on the draft waiver renewal application. Comments due on July 5th.
  • National Strategy to Support Family Caregivers: The Administration for Community Living announced availability of $2 million to support the National Strategy to Support Family Caregivers. The applications are due August 6th.
  • Researchers Creating a Robotic Arm: Researchers at UW-Milwaukee are creating a robotic arm accessory to increase mobility for people with disabilities. Read about how this arm was created..
  • New Guidance: The nation’s pediatricians are getting new guidance on how to help teenagers with intellectual and developmental disabilities and their families navigate the transition to adulthood. Learn what's included in the guidance.

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: May 2024


By SD Network, 2024-05-14


96

Self-Determination Network News:

May 2024

Connect Share |Learn http://sdnetworkwi.org

Registration for the 2024 Self-Determination Conference Opens in July

The 2024 Self-Determination Conference will be held October 21st-23rd at the Kalahari Resort in Wisconsin Dells. It's one of Wisconsin’s biggest (and most amazing) event for people with disabilities and the people who support them. Last year, over 800 people attended the conference! This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined live. Registration will open in July. Stay tuned for details!

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Please Help InControl Wisconsin's Caring Across Cultures Project

Are you someone who hires direct care workers?  Are you a family member of someone who receives support from a direct care worker?  Are you a direct care worker?  If so, InControl Wisconsin would like you to share a short video, audio clip, or written story of your personal experiences to help others understand the relationships between direct care workers and the people who hire them.  We will give you questions to answer, to make it easier for you.

Your stories will be used in online learning courses and/or other resources hosted on InControl Wisconsin’s website as part of the Caring Across Cultures learning platform. (See this link for more details about the project.)

Why are we asking for your help? Caring Across Cultures is a project with a goal of helping direct care workers and the people who hire them to build strong relationships. We want to help them connect and build trust across cultural differences.

What better way for someone who is thinking about hiring direct care workers to hear directly from people who are already doing it? The same is true for someone thinking about becoming a direct care worker. There’s nothing like hearing from someone first hand about what it’s like.

You can record a video or audio clip yourself with your phone (or other device) or you can ask us for help.

Here is a document to help you record your own video or audio.  This document will also tell you how to send us your finished recording: CLICK HERE

Need some help?

  • You can work on this at home. If you need some help, Contact Sarah Godfrey, at sarah@promotelocal.com / (262) 349-1968, and she will schedule a phone or video call with you.

  • Are you coming to Circles of Life on May 16h in Stevens Point?  How about Employment First in Wisconsin Dells on May 21st? We will have recording equipment on site at both conferences.

Ready to Do This?

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Emily. This active young woman loves being busy. Whether it’s she’s rock climbing, water skiing, snow skiing, traveling, or volunteering at her church, she can’t sit still. Check out this month's Member Spotlight to get to know Emily.   

Who should we shine the spotlight on next?

128 Stacy’s Journal






"Society has really transformed its norms over the last 30 years and that’s a great thing. The world has become more inclusive for everyone. Norms are always transforming, and, yet, they’re meant to be broken. It’d be a very boring world if everyone abided by the norms of society."

In this month's journal entry, Stacy talks about how she goes against the norm on various things. What things do you find yourself going against the norm on?






icon 2.jpg

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).



196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Take a Survey: The American Institutes of Research is looking for people with disabilities to take a survey about the ways you find and use information in your daily lives. Check it out!
  • Roadblock for Proposed Funding Boost for In-Home Care: A $258 million plan to improve the pay for thousands of home health care providers in Wisconsin was halted after lawmakers on the Legislature’s powerful budget committee blocked it. Learn the impact of this.
  • Research Funding for Mobile App Opportunity: A new funding opportunity is available for programming to plan and conduct research, demonstration projects, trainings, and related activities to develop methods, procedures, and rehabilitation technology that maximize the full inclusion and integration of people with disabilities. Applications due June 7th.
  • Lawsuit Seeks Electronic Ballot Option: Disability Rights Wisconsin, the League of Women Voters of Wisconsin, along with four voters with disabilities filed a lawsuit against the Wisconsin Elections Commission. The lawsuits seeks to allow voters with disabilities to cast their ballot electronically.  Learn more about what they are asking for.
  • 2024 Election Toolkit: The Wisconsin Disability Vote Coalition has released a toolkit which includes videos, posts, and graphics to get people ready to vote in elections this year. Check it out!
  • New Guidance on Voting Rights for People with Disabilities: The US Department of Justice issued an updated guide of The Americans with Disabilities Act and Other Federal Laws Protecting the Rights of Voters with Disabilities. Look at what's new.
  • ABLE Accounts: Recently, Governor Evers signed a bill ordering the state’s Department of Financial Institutions to set up an ABLE program for residents or join one of the existing multi-state consortiums. Read about how these accounts help people with disabilities.
  • Manufacturing Company: A manufacturing company in  West Allis has made a deliberate point to provide people who have autism meaningful employment opportunities. Find out more about this company.
  • Caregiver Champion Collaborative: The National Caregiver Champion Collaborative will facilitate peer networking and engagement among professionals who lead caregiver services and supports. Learn more about this program.
  • Best Airlines: U.S. airlines got a little bit better with mobility devices in 2023. Find out what the 10 best airlines for handling mobility devices are.
  • Talented Artist: An artist in Madison creates coloring books that have universal quotes. Read more about this talented artist.
  • Voting Grant Opportunity for Schools: The Wisconsin Disability Vote Coalition is looking for schools to partner with to help students with disabilities understand their voting rights and responsibilities. Learn about this opportunity.
  • Discrimination Rule Finalized: The U.S. Department of Health and Human Services finalized a rule that prohibits discrimination on the basis of disability. Find out more about what this rule means.
  • Workforce Brief: The US Department of Health and Human Services along with the Department of Labor released a brief summarizing a workgroup’s recommendations to federal and state agencies, non-profit organizations, and research institutions to improve data infrastructure and information on the HCBS workforce. Learn about the recommendations.

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

April 2024

Connect Share |Learn http://sdnetworkwi.org

2024 Self-Determination Conference Call for Presenters

Are you interested in presenting at the 2024 Self-Determination Conference?  Session proposals for are now being accepted for Tuesday, October 22nd and Wednesday, October 23rd, 2024. This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined life. Proposals due by on May 10th. Submit an application today!

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Please Help InControl Wisconsin's Caring Across Cultures Project

Are you someone who hires direct care workers?  Are you a family member of someone who receives support from a direct care worker?  Are you a direct care worker?  If so, InControl Wisconsin would like you to share a short video, audio clip, or written story of your personal experiences to help others understand the relationships between direct care workers and the people who hire them.  We will give you questions to answer, to make it easier for you.

Your stories will be used in online learning courses and/or other resources hosted on InControl Wisconsin’s website as part of the Caring Across Cultures learning platform. (See this link for more details about the project.)

Why are we asking for your help? Caring Across Cultures is a project with a goal of helping direct care workers and the people who hire them to build strong relationships. We want to help them connect and build trust across cultural differences.

What better way for someone who is thinking about hiring direct care workers to hear directly from people who are already doing it? The same is true for someone thinking about becoming a direct care worker. There’s nothing like hearing from someone first hand about what it’s like.

You can record a video or audio clip yourself with your phone (or other device) or you can ask us for help.

Here is a document to help you record your own video or audio.  This document will also tell you how to send us your finished recording: CLICK HERE

Need some help?

  • You can work on this at home. If you need some help, Contact Sarah Godfrey, at sarah@promotelocal.com / (262) 349-1968, and she will schedule a phone or video call with you.

  • Are you coming to Circles of Life on May 16h in Stevens Point?  How about Employment First in Wisconsin Dells on May 21st? We will have recording equipment on site at both conferences.

Ready to Do This?

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Rosie. This Diehard Award winning very determined survivor and author travels around the world sharing her story of hope and perseverance. Her story has helped medical professionals, researchers, and advocates create needed changes to practices in medical facilities. Check out this month's Member Spotlight to get to know Rosie.   

Who should we shine the spotlight on next?

128 Stacy’s Journal





"Regardless of what it is, being in an emergency situation is scary for everyone. For people with disabilities or health impairments, there is often another layer of fear is added. Many times, unforeseen physical barriers are presented in crisis situations, and people with mobility limitations are faced with additional challenges."

In this month's journal entry, Stacy talks about how having physical barriers in emergency situations adds additional stress and anxiety for people who have mobility limitations. Have you or someone you know ever experienced this?






icon 2.jpg

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).




196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Investment in Disability Services: President Biden is pushing to improve support for people with disabilities living in the community. Learn about what's being done to strengthen services.
  • Funding Opportunity for Technology for Deaf and Hard of Hearing: The Administration of Community Living announced a new grant opportunity for research, development, and evaluation activities toward understanding and optimizing technologies and services used by people who are deaf and hard of hearing. Proposals are due May 6th.
  • FOCUS Conference Call for Proposals: The Wisconsin Department of Health Services is now accepting proposals to present at the 2024 FOCUS Conference. Proposals due on May 1st.
  • Flying with Dignity: The U.S. Department of Transportation is seeking public comments on a new proposed rule designed to ensure airline passengers who use wheelchairs can travel safely and with dignity.  Public comment due by May 13th.
  • Disability Advocacy Day: Hundreds of disability advocates gathered in Madison for Disability Advocacy Day in mid March. Find out what advocates talked with legislators about.
  • New Employment Resource: The US Department of Labor recently released a new resource in hopes of increasing integrated employment opportunities for people who have disabilities. Learn how the Competitive Integrated Employment Transformation Hub will help people with disabilities, their families, employment service providers, and state agencies.
  • Advocates Continue to Push for More Accessible Voting: Voters with disabilities continue to advocate for better voting accessibility.  Read about some of the challenges voters continue to face.
  • New Cafe: A new cafe in Racine is giving people with a chance to show off their skills and learn new ones. Find out more about this unique cafe.
  • Disability Issues Should be a Priority: Over 38 million people with disabilities voted in the 2020 election, so many people feel that key disability issues should be a priority in the upcoming election. Learn about what issues people think should be priorities.
  • Partners in Business Request for Proposals: The Wisconsin Board for People with Developmental Disabilities wants to partner with high schools to improve their employer engagement practices and employment outcomes for young adults with disabilities. Grant funds and technical assistance are available. Applications are due May 17th. They are also interested in partnering with businesses that want to hire and support individuals with intellectual disabilities. Applications for those grants are due May 31st.
  • Flat Funding in Federal Budget: A $1.2 trillion deal for to fund the federal government includes more money for special education and disability employment, but doesn't include money for other disability programs.  Read about why disability advocates feel like many programs that people rely on were essentially cut from the federal budget. 

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

March 2024

Connect Share |Learn http://sdnetworkwi.org

2024 Self-Determination Conference Call for Presenters

Are you interested in presenting at the 2024 Self-Determination Conference?  Session proposals for are now being accepted for Tuesday, October 22nd and Wednesday, October 23rd, 2024. This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined life. Proposals due by on May 10th. Submit an application today!

Make a Plan for the Next Election 

April 2nd is an important statewide election. Join the Wisconsin Disability Vote Coalition on Thursday March 14th from 12p.m. to 12:45p.m. for a Lunch and Learn webinar that will help you prepare by discussing what you may find on your ballot, how to find non-partisan candidate information, how to get involved in this election year, and more. You will also get the most up-to-date information about this year’s elections. Register here.

Disability Advocacy Day is March 20th 

We're looking forward to seeing many of you in Madison on March 20th for Disability Advocacy Day, but we understand that some people can't make it. For those who can't come, we want to encourage you to call or email your legislators. You can share your story and tell them what you'd like to see done. You can still let your voice be heard even if you are not able to attend!

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Please Help InControl Wisconsin's Caring Across Cultures Project

Are you someone who hires direct care workers?  Are you a family member of someone who receives support from a direct care worker?  Are you a direct care worker?  If so, InControl Wisconsin would like you to share a short video, audio clip, or written story of your personal experiences to help others understand the relationships between direct care workers and the people who hire them.  We will give you questions to answer, to make it easier for you.

Your stories will be used in online learning courses and/or other resources hosted on InControl Wisconsin’s website as part of the Caring Across Cultures learning platform. (See this link for more details about the project.)

Why are we asking for your help? Caring Across Cultures is a project with a goal of helping direct care workers and the people who hire them to build strong relationships. We want to help them connect and build trust across cultural differences.

What better way for someone who is thinking about hiring direct care workers to hear directly from people who are already doing it? The same is true for someone thinking about becoming a direct care worker. There’s nothing like hearing from someone first hand about what it’s like.

You can record a video or audio clip yourself with your phone (or other device) or you can ask us for help.

Here is a document to help you record your own video or audio.  This document will also tell you how to send us your finished recording: CLICK HERE

Need some help?

  • You can work on this at home. If you need some help, Contact Sarah Godfrey, at sarah@promotelocal.com / (262) 349-1968, and she will schedule a phone or video call with you.

  • Are you coming to Disability Advocacy Day, State Capital in Madison, March 20th?  We will have recording equipment on site.

Ready to Do This?

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Lindsey. This talented author, illustrator, artist, and motivational speaker has proven many people wrong. Check out this month's Member Spotlight to get to know Lindsey.   

Who should we shine the spotlight on next?

128 Stacy’s Journal

"There is no such thing as a right level of caution. It’s an individual choice."

In this month's journal entry, Stacy talks about how people have different levels of caution. She explains why she has to be a very cautious person.




Are you a cautious person or do you like to be more risky?





icon 2.jpg

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).




196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Prioritizing Accessibility and Inclusion: According to the World Economic Forum, of the 90% of companies that claim to make diversity a priority, only 4% are inclusive of people with disabilities. Learn what steps companies can take to improve efforts by focusing on communications and events.
  • Technology Grant Opportunity: The National Institute on Disability, Independent Living, and Rehabilitation Research announced a new grant opportunity on information and communication technologies access. Applications due April 15th. Learn more about this opportunity.
  • Fall Internship Program: The American Association of People with Disabilities is offering a paid internship to students and recent graduates with disabilities. The internship will help interns build leadership skills, explore career opportunities, and connect with the disability community.. Applications due March 13th.  Find out more and apply today!
  • Volunteers Needed: Volunteers are needed for a research study on people who have sustained spinal cord injuries. Read more about this study.
  • Initiatives for the Direct Care Workforce: The US Department of Health and Human Services recently announced several initiatives and resources to help with the dire need for caregivers. Read about the initiatives.
  • Employment Record: The number of people with disabilities who are employed has reached a record high. Find out how much it jumped.
  • Public Comment Wanted: The Federal Emergency Management Agency published an interim final rule that seeks to simplify processes, remove barriers to entry, and increase eligibility for certain types of assistance under their Individual Assistance program. Public comment is open until July 22nd.
  • Proposed Rule would Ensure Airline Dignity for Passengers: Recently, the US Transportation Secretary announced a new proposed rule that would ensure that airline passengers who use wheelchairs can travel safely with dignity. Find out about the standards airlines would need to follow to accommodate people. 

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

February 2024

Connect Share |Learn http://sdnetworkwi.org

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Please Help InControl Wisconsin's Caring Across Cultures Project

Are you someone who hires direct care workers?  Are you a family member of someone who receives support from a direct care worker?  Are you a direct care worker?  If so, InControl Wisconsin would like you to share a short video, audio clip, or written story of your personal experiences to help others understand the relationships between direct care workers and the people who hire them.  We will give you questions to answer, to make it easier for you.

Your stories will be used in online learning courses and/or other resources hosted on InControl Wisconsin’s website as part of the Caring Across Cultures learning platform. (See this link for more details about the project.)

Why are we asking for your help? Caring Across Cultures is a project with a goal of helping direct care workers and the people who hire them to build strong relationships. We want to help them connect and build trust across cultural differences.

What better way for someone who is thinking about hiring direct care workers to hear directly from people who are already doing it? The same is true for someone thinking about becoming a direct care worker. There’s nothing like hearing from someone first hand about what it’s like.

You can record a video or audio clip yourself with your phone (or other device) or you can ask us for help.

Here is a document to help you record your own video or audio.  This document will also tell you how to send us your finished recording: CLICK HERE

Need some help?

  • You can work on this at home. If you need some help, Contact Sarah Godfrey, at sarah@promotelocal.com / (262) 349-1968, and she will schedule a phone or video call with you.

  • Are you coming to Disability Advocacy Day, State Capital in Madison, March 15?  We will have recording equipment on site.

Ready to Do This?

Disability Advocacy Day 2024

Registration is open for Disability Advocacy Day 2024! Join us in Madison on Wednesday March 20th with other advocates from around the state and meet with your elected officials. This is a great opportunity to share your story and educate your legislators on disability rights! It's free to attend, but you must register by March 1st! Register now!

2024 Self-Determination Conference Call for Presenters

Are you interested in presenting at the 2024 Self-Determination Conference?  Session proposals for are now being accepted for Tuesday, October 22nd and Wednesday, October 23rd, 2024. This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined life. Proposals due by on May 10th. Submit an application today!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Chad. This rock climbing fanatic volunteers his time doing all sorts of advocacy things. Check out this month's Member Spotlight to get to know Chad.   

Who should we shine the spotlight on next?

128 Stacy’s Journal







"While I don’t like being seen as overly dramatic sometimes, I’ve learned to trust my gut when it comes to my health. My uncanny instinct has saved my life more than once!"

In this month's journal entry, Stacy talks about her keen instincts when it comes to her health. She discusses why she's hyper vigilant about her health. Do you find yourself being overly concerned about your health?







icon 2.jpg

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).





196

Take five minutes to check out what's happening on the Self-Determination Network:

  • New Report: Kaiser Family Foundation has published a new report that provides insight into one important measure of unmet need for home and community-based services across states. Learn what the report reveals.
  • Competitive Rock Climber Proves People with Disabilities Can do Anything: For this competitive athlete, rock climbing is just a sport. Find out how this climber excels despite having limitations.
  • Long-Range Plan: The Administration for Community Living has released its 2024-2028 Long-Range Plan for the National Institute on Disability, Independent Living and Rehabilitation Research. Learn what it includes.
  • New Enrollment Process for Providers: Beginning in September 2024, the Wisconsin Department of Health Services will require all adult long-term care waiver service providers to enroll with Wisconsin Medicaid through the ForwardHealth Portal. Read more about this process.
  • Medicaid Issues to Watch: In 2024, many issues are at play that will affect Medicaid coverage, financing, and access. Read about what else to watch for.
  • Proposed Changes to the Census Dropped: After strong pushback from the disability community, the U.S. Census Bureau is no longer moving forward with a proposal that could have decreased the estimated disability rates in the country. Learn about what the proposal would have asked.
  • Businesses Continue to Fall Short: A recent survey shows that businesses continue to fall short when it comes to meeting the needs of customers with disabilities. Find out what many advocates think that the main problem is.
  • Inclusive Town: The town of Union Grove banded together behind a common goal - to give everyone an equal chance by hiring as many people with disabilities as possible. Read about what the town has done.
  • Self-Direction Inventory: Applied Self-Direction conducted an extensive national survey of self-direction programs in the United States. Check out the many interesting statistics in the report. 

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

January 2024

Connect Share |Learn http://sdnetworkwi.org

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Disability Advocacy Day 2024

Save the date for the 2024 Disability Advocacy Day on Wednesday March 20th in Madison. It's on a Wednesday this year instead of the usual Tuesday. We'll be sending out information about details and registration in a few weeks. We hope to see you there!

Voting Lunch and Learns

2024 is a huge election year, and the Wisconsin Disability Vote Coalition has you covered! They will be holding virtual Lunch and Learns throughout the year about various voting topics. The first one (register here) is going to be Tuesday January 23rd from 12p.m. to 12:45p.m. It will be about registration and absentee voting. Another Lunch and Learn (register here) will be held on Tuesday February 6th from 12p.m. to 12:45p.m., and the topic will be voting rights and local elections matter. Make sure to keep up to date on voting issues by attending these events.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Brett. This fun-loving guy is determined to make the best of life regardless of the circumstances. He is determined to make an impact on as many lives as possible. Check out this month's Member Spotlight to get to know Brett.   

Who should we shine the spotlight on next?

128 Stacy’s Journal






"As I get older, I’m slowly realizing that there’s more to life than always trying to prove that you’re successful."

In this month's entry, Stacy shares about she's trying to be more intentional about what she agrees to do. She explains how she often takes on more than she should because she has a hard time turning down opportunities down.

Do you have a hard time saying no to opportunities?






icon 2.jpg

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).





196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Tools to Help Strengthen HCBS: Recently, the Centers for Medicare & Medicaid Services released new tools that will help improve access for millions who receive home and community-based services through Medicaid. Learn about what these tools will help.
  • Concerns over the the Census Questioning: The U.S. Census Bureau is considering changing the way it asks people about disabilities and advocates are concerned. Find out why advocates are concerned.
  • Investment in Services: Recently, the Biden-Harris Administration announced actions and new data that will help expand home-and-community-based services.  Read about what actions are being taken.
  • Guide to Accessible Travel: Traveling is generally fun and exciting, but it also can be stressful. This is especially true for many people who have disabilities. Check out this guide to accessible travel.
  • Request for Comment: The Administration for Community Living is announcing an opportunity for the public to comment on the data collection requirements for the ACL Evidence-Based Falls Prevention Program Information Collection. Comments are due February 12th.
  • Be your Best Self-Advocate: You are your own best advocate. Take a look at some great tips for being an advocate.
  • Youth Leadership Forum: YLF is a week-long forum for high school with disabilities who want to learn more about leadership, self-advocacy skills, and career awareness. Share this opportunity with students who would benefit!
  • What's Behind the Shortage: The nearly five million direct care workers who support older adults and people with disabilities are the largest workforce in the U.S. Watch this news clip about what are the causes of the caregiver shortage.
  • ABLE Limit Increase: Starting January 1st, people with disabilities are able to save more money in ABLE accounts which are accounts that allow them to save without jeopardizing their government benefits. Find out how much it increased.
  • Digital Accessibility Guidelines: The Office of Management and Budget recently released updated guidance requiring federal agencies to improve their digital accessibility for people with disabilities. Learn about what the guidelines are. 

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

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The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

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