SD Network

Category: Network News


96Self-Determination Network News:

September 2021

Connect Share |Learn http://sdnetworkwi.org/ 

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Don't Forget to Register!

Don't forget to register for this year's Self-Determination Conference. It will be held virtually October 18-20.You'll be able to learn from self-advocates who are living their best and most creative lives and get the latest information about how to self-direct your supports: inspiring employment, health solutions, housing options, financial opportunities, and so much more! See the Conference Brochure for details. If you register by September 30, you'll receive a great conference kit. Registration is FREE! Register today!

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Jordan. This recent high school graduate has found his love for advocacy, and he encourages people to get involved in any type of advocacy. He explains it's a good way to connect with people.  Stop by this month's Member Spotlight to get to know Jordan. 

Who should we shine the spotlight on next?

128 Stacy’s Journal






"When I see people “take advantage” of specialized equipment or say something irrational, it does affect me. I have to remind myself that they probably don’t realize what they’re doing or saying may be offensive. While I don’t see these situations changing anytime soon, educating people is important. Please take advantage of the abilities you do have."




In this month's journal entry, Stacy shares how it irritates her when capable people take advantage of specialized equipment or say something irrational about somebody's disability. Do these things bother you?






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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Hopes for SSI Overhaul: For the first time in year, there could be big changes to Supplemental Security Income. Find out what this could mean for the program. 
  • Input Needed: The National Quality Forum (NQF) is seeking input on 14 quality measures for home- and community-based services (HCBS).  Comments can be submitted through September 17.
  • CMS Vaccination Guidelines: The Center for Medicare and Medicaid Services released guidelines for vaccination education,  access and reporting for the residents and staff of nursing facilities and intermediate care facilities for people with intellectual and development disabilities. Read about what the guidelines are. 
  • Take Survey: Each year, the Wisconsin Board for People with Developmental Disabilities (BPDD) does an annual survey for self-advocates and family members who have participated in a BPDD project. Help them out by taking the survey! 
  • New Resource: The Center for Disease Control and Prevention recently released a toolkit to help people with disabilities understand more about COVID. Check it out.
  • Watch: The Applied Self-Direction website recently released a great short video explaining what self-direction is.
  • Climate Resilience Efforts Pose Risks: People with disabilities often face more challenges with the effects of climate change. Read about how some advocates feel that people are new risks from mitigation efforts.  
  • Summer Internship Program: The Association of People with Disabilities is accepting applications for their Summer Internship Program. Applications are due October 20. Learn more and apply today! 
  • Workforce Shortage Still Widespread:  The home health care workforce has more than doubled in the past 10 years, but it'll need to do that and more to keep up with demand in the next decade. Learn what will be needed to keep up. 
  • Annual Direct Care Workforce Data: Check out the annual data on the Direct Care Workforce. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96

Self-Determination Network News:

August 2021

Connect Share |Learn http://sdnetworkwi.org/ 

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Registration Now Open!

The 2021 Self-Determination Conference will be October 18-20. With the health and safety of participants in mind and with the current raise in COVID cases and variants, it has been decided that a virtual conference is the best option for 2021. You’re in for a great virtual conference experience again this year! There will be lots of interactive and networking opportunities.  You'll receive a great conference kit and registration is FREE! Register today!

Calling Microbusiness Owners

There is a new way to exhibit at the Self-Determination Conference this year! The All Abilities Market is an online marketplace where microenterprises and artists can sell their products and/or services. You have the unique opportunity to join this marketplace and sell online, not only at the Self-Determination Conference but all year long! Applications are due September 1.

Exhibitor Applications Available 

Applications to be an exhibitor at the conference are now being accepted. Organizations that support self-determination and self-directed supports are encouraged to apply. Applications are due September 1.

Diehard Award Nominations

Do you know someone who goes above and beyond to improve community supports for individuals with disabilities?  Do they support self-determination?  Nominate them for a Diehard Award in one of the following two categories: Professional Advocate or Self-Advocate/Grassroots Advocate. Nominations are due September 1.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Sydney. This animal–loving self-advocate keeps busy by participating in various advocacy organizations , and she encourages others to get involved in some sort of advocacy. Stop by this month's Member Spotlight to get to know Sydney. 

Who should we shine the spotlight on next?

Voting Bills Update

Governor Evers recently vetoed bills that would have created new barriers and have impacted the voting rights of many people with disabilities. The Wisconsin Disability Vote Coalition released a new document that highlights stories of voters who these bills would have impacted. While these bills were paused for now, we encourage you to continue to reach out to your legislators and share how important it is to make voting accessible for everyone. 

People First Wisconsin is Hiring! 

People First Wisconsin is a statewide Self-Advocacy organization for people with disabilities. They help people speak up for themselves, share ideas, start local Self-Advocacy groups, and work together with advocates across Wisconsin on issues important to members to improve life for people with disabilities. Currently, they're accepting applications for a Office Manager and a Financial Manger. Learn more about these positions and find out how to apply by clicking here. Applications are being accepted until September 8.

128 Stacy’s Journal




"Sports have a funny way of pushing people to their limit, but also bringing people together. They make people realize what they are capable of and how far they can go. They also help us realize that humans are humans, and nobody is perfect."


In this month's journal entry, Stacy discusses the different types of Olympics and how they impact the world. What do you learn from watching the Olympics?




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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

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Take five minutes to check out what's happening on the Self-Determination Network:

  • SPARKS Grants: SPARKS grants are meant to give people with disabilities more social connections by participating in community activities, and they help provide inclusive programming that gives people more opportunities. Applications are due September 10.
  • Input Needed on "No Surprise Billing" Rule: Surprise billing can occur when someone receives care from a provider outside of their insurance carrier’s network. This often occurs in emergency situations, when people do not have control over where they are taken for medical care. A new rule would implement requirements set in the No Surprises Act to establish protections against surprise billing. The public comment period closes September 7.
  • The Importance of Web Accessibility: Most use the Internet on a daily basis. The opportunities that the Internet brings are endless. However, for people with visual impairments, these opportunities are significantly more limited.  Learn why website accessibility is becoming more and more important. 
  • COVID Added to Disability Qualification List: Recently, the US Department of Justice and the US Department of Health and Human Services released guidance that explains that explains when “long COVID” may be a disability under the ADA, Section 504 of the Rehabilitation Act, and Section 1557 of the Affordable Care Act. Learn about what this means. 
  • Fact Sheet: Late in July, we celebrated the 31st anniversary of the Americans with Disabilities Act (ADA). The Biden-Harris administration released a fact sheet about what they've done to ensure people with disabilities receive resources and are included in key administration proposals.  Check it out. 
  • Report on AVs: The U.S. Access Board has released a summary report on its four-part series of virtual meetings on making autonomous vehicles (AVs) accessible to passengers with disabilities. Learn what the report reveals.  
  • Transit Training Opportunities: The National Center for Mobility Management recently announced some training opportunities for transit systems. Find out more about these opportunities. 
  • Website Accessibility Website: Recently, a baseline for testing accessibility of web content was developed. The criteria sets a minimum for testing accessibility of websites.  Learn about what the criteria is. 
  • Accessible Tourist Attraction: A popular tourist attraction in Door County has recently become accessible to all visitors. Find out which attraction got renovated. 
  • Health Care Outreach Toolkit: The Aging and Disability Business Institute has developed a toolkit for community-based organizations to help conduct outreach to potential partners and craft effective messages. Learn what else is included in the kit. 
  • Tech Giant Launches Employment Program: Google recently announced it's starting a program to help hire more people with autism. Read more about how the program is setup. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: July 2021


By SD Network, 2021-07-14

96Self-Determination Network News:

July 2021

Connect Share |Learn http://sdnetworkwi.org/ 

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Registration Opens August 2nd!

The 2021 Self-Determination Conference will be October 18-20. As the COVID variants continue to be monitored, plans are being made to offer three options how people can safely participate in the conference. 

  1. At the Kalahari! If you have been fully vaccinated and are comfortable with large in-door gatherings, join us at the Kalahari.
  2. At one of the local Watch Parties around the state. If you have been fully vaccinated and are comfortable with smaller in-door gatherings, join others at a local watch party.
  3. Join Virtually. If you are not comfortable with coming in person or have not been fully vaccinated, we are offering a virtual option.

Calling Microbusiness Owners

Business owners who have disabilities are encouraged to apply to sell their products/services/art at the conference. People will also have the opportunity to sell online all year long. Applications are due September 1.

Exhibitor Applications Available 

Applications to be an exhibitor at the conference are now being accepted. Organizations that support self-determination and self-directed supports are encouraged to apply. Applications are due September 1.

Diehard Award Nominations

Do you know someone who goes above and beyond to improve community supports for individuals with disabilities?  Do they support self-determination?  Nominate them for a Diehard Award in one of the following two categories: Professional Advocate or Self-Advocate/Grassroots Advocate. Nominations are due September 1.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Kristi. This up-and-coming self-advocate has found her passion--disability advocacy. She has recently realized that her voice does matter and that she can make a difference in the world. Stop by this month's Member Spotlight to get to know Kristi. 

Who should we shine the spotlight on next?

128 Stacy’s Journal



"Most people don’t live life on the clock, but that’s what many people like myself are being forced to do."


In this month's entry, Stacy talks about how a new federal mandate has made life more difficult for people who are in long-term care programs. Has Electronic Visit Verification impacted your life?



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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Impact of the Pandemic: It's widely known that people with developmental and intellectual disabilities are at much higher risk of getting COVID and dying from it. Learn about what a study found about how COVID has impacted quality of life for people with disabilities. 
  • Inclusion Employment Platform: The push for inclusion in the workplace has become more popular in recent years. Read about a professional and employment platform with a committed focus on flipping the conversation around.
  • Budget Helps but not Enough: The state budget for the next two years has more money for nursing homes, an pay increase for in-home caregivers, and additional help for people with Alzheimer's and dementia, but it leaves out funding for improvements in services for people with disabilities. Find out what advocates feel was missed. 
  • Become a Leader: Wisconsin Partners in Policymaking is a six‐session advocacy and systems change training program that develops future leaders across the state who are able to work with legislators and communities on policies and initiatives that will support the full participation and inclusion of people with developmental disabilities in all aspects of life. Applications for the next class are due October 1. Find out more and apply today! 
  • Prioritizing Inclusion in Film: Recently, a famous Hollywood studio committed to putting more people with disabilities on screen. Learn how one Hollywood studio is taking steps to increase inclusion of people with disabilities. 
  • Ipads for Loan: WisTech, Wisconsin's Assistive Technology Act Program, now has iPads available for short term loan for up to 30 days. Find out how the program works. 
  • Paralympics May Help Boost Inclusion: Many experts think that this summer's Paralympic Games are an opportunity for businesses to embrace an underrepresented segment of the workforce and help with the global coronavirus recovery. Read about why advocates feel the games will spotlight the need for inclusion. 
  • Public Comment on Statewide Transition Plan: The Wisconsin Department of Health Services opened a 30-day public comment period on its updated statewide transition plan to be submitted for final approval to the Centers for Medicare & Medicaid Service.  The public comment period closes July 26.
  • Great Resources: Throughout the COVID-19 pandemic, the federal government has provided a range of programs to support individuals, families, and communities. Check them out! 
  • Executive Order: Recently, President Biden signed an Executive Order to advance diversity, equity, inclusion, and accessibility (DEIA) in the Federal workforce. Learn what the order confirms. 
  • Boost to Disability Services: Although, President Biden's effort to get eliminate waiting lists for people with disabilities by getting more funds into Medicaid and home-and-community-based services has halted at the moment, it appears the plan may soon get new life. Find out why advocates think an increase in funding will be coming soon. 
  • Travel Website: The world is opening up again and that means people are beginning to travel. The International Transport Forum and the Federation Internationale de l' Automobile recently launched a new website that has information on facilities and options for people with disabilities traveling by car. Read about what kind of information the website provides. 
  • Rise in Employment: According to the June jobs report, there were big rises in employment for people with and without disabilities. Find out how much it increased. 
  • Celebrity Case Calls Attention to Questions on Guardianship: Recently, due to the attention from the Britney Spears case, debate over Guardianship has been highlighted. While legal oversight arrangements are needed as protection for some, many disability advocates question the need for them in many cases.  Learn about why many people feel guardianship is too widely used for people with disabilities. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

Self-Determination Network News: June 2021


By SD Network, 2021-06-16

96Self-Determination Network News:

June 2021

Connect Share |Learn http://sdnetworkwi.org/ 

Now is the Time to Speak Up! 

Wisconsin Assembly Representatives will be voting very soon on voting bills that may make it harder for many people with disabilities, older adults, and people of color to vote. The Wisconsin Disability Vote Coalition has put together this summary of how the bills would impact people. If you are concerned about the bills, now is the time to call/email your Assembly Representative to share how these bills could impact you or a loved one.

Call or email your Assembly Representative about your concerns. You can find your Assembly Representative’s contact info by calling the Legislative Hotline at 1-800-362-9472 or click “Who Are My Legislators?” on the Wisconsin State Legislature Home Page.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Renee. This self-proclaimed “Benefits Nerd”  loves helping people with disabilities navigate their benefits and making them realize that they can work. Stop by this month's Member Spotlight to get to know Renee. 

Who should we shine the spotlight on next?

128 Stacy’s Journal

"How do you know when enough is enough? That’s a good question. I’m still trying to figure that out. Personally, I’m learning that I have to let my body be my guide. If I start feeling too much stress (of any kind), my muscles will let me know. People need to listen to their body."
In this month's journal entry, Stacy talks about how she has had to make some tough decisions to slow down recently. Have you experienced something similar?

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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Funding Opportunity for a Self-Advocacy and Technical Assistance Center: ACL's Administration on Disabilities (AoD) is seeking to fund one cooperative agreement  for a Self-Advocacy Resource and Technical Assistance Center. Applications due July 26th. 
  • Continued Need for Accessible Diagnostic Medical Equipment: People with disabilities often have more medical problems than the average person, people continue to have problems physically accessing diagnostic equipment. Learn about what a recent report revealed. 
  • Report Shows the Continued Caregiver Crisis is Taking a Toll: The Survival Coalition, which InControl Wisconsin is part of, continues to hear about how the caregiver crisis is having an impact on many lives of people with disabilities. Learn about what the showed. 
  • Bills Would Help with Police Interactions: In recent years, there have been many problems with police interactions with people with disabilities. Read about two bills that would help with this.
  • Launch of a Hotline for COVID Vaccine Information: The US Health and Human Services recently announced the launch of a hotline that will provide information about the vaccine to people with disabilities. Learn about this new hotline. 
  • Listen now: People with disabilities have felt the impact of emergency situations more than the general population. To try to solve these inequalities in the COVID response, disability and preparedness specialists were placed in health agencies around the country to promote inclusivity of people with disabilities. Listen to this podcast about what they have worked on. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: May 2021


By SD Network, 2021-05-25

96Self-Determination Network News:

May 2021

Connect Share |Learn http://sdnetworkwi.org/ 

New Bills Could Make it Harder for People with Disabilities to Vote

Wisconsin legislators have introduced bills that will make it harder for many people to vote. The Wisconsin Disability Vote Coalition has put together a summary of these bills and how it would impact people. We encourage you to look at this and, if you have concerns about the bills, to contact your legislators. 

Stay Up-to-Date about Long-Term Care Advocacy 

InControl Wisconsin is sending a letter to the Joint Finance Committee of the state legislature asking the Committee to ensure that if additional funding is added to the budget for Long-Term Care in general or for the workforce crisis, then IRIS should get its fair share. Family Care and nursing homes both received increases in the last two state budgets, but IRIS did not. 

The Wisconsin Long-Term Care Workforce Alliance does frequent videos about what's happening with the workforce advocacy. Check out this website for updates on what's happening with the workforce crisis. There are videos on how to talk to legislators about your experiences and concerns. Let your voice be heard! 

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Felicia. This self-advocate has been proving doctors wrong since she was born. Stop by this month's Member Spotlight to get to know Felicia. 

Who should we shine the spotlight on next?

128 Stacy’s Journal

"Mental Health is part of our overall well-being. Sometimes, life can be hard and unfair. We all have feelings of sadness and frustration sometimes. What’s important is how we deal with it."


In this month's journal entry, Stacy opens up about her recent health issues and how she deals with these issues. What are some ways you deal with frustration and sadness?

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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • No Oscar, but Nomination a Win for the Disability Community: The popular documentary, "Crip Camp," didn't win an Oscar, but many people with disabilities feel the nomination alone was a win. Learn why this is. 
  • Inclusive Deodorant: Most people were never think of a stick of deodorant as being an obstacle, but for people with visual impairments or limb motor challenges, putting on deodorant is a difficult task. Read about a how one company designed an inclusive deodorant container. 
  • Initiative to Hire People with Disabilities: A large technology recently announced a big initiative to hire people with disabilities.  Find out what the company plans to do. 
  • Wisconsin Lawmaker Asked for Accommodations: A Wisconsin lawmaker is asking the Assembly to allow him to participate in floor sessions remotely. Read about the ongoing situation.  
  • American Rescue Plan to Help Medicaid Services: The American Rescue Plan has over $12 billion for states to expand Medicaid home-and-community-based programs for people with disabilities. Find out what the plan entails.  
  • Emergency Broadband Benefit Program: The Emergency Broadband Benefit is a Federal Communication Commission program to help families and households struggling to afford internet service during the COVID-19 pandemic. Learn more about this program and find out how to apply. 
  • Vaccine Survey Findings: Two research studies have been done on vaccine statistics for people with disabilities. Read about what the studies found. 
  • Seeking Applicants for Emergency Preparedness Committees: The Office of Emergency Preparedness and Response is seeking applicants for two new committees to provide recommendations on enhancing public health preparedness, response, and recovery for people with disabilities. Applications are due June 12th. 
  • Family Caregiver Report: A new report summarizing listening sessions about the struggles and needs of family caregivers was recently released. Learn what the sessions revealed.
  • Spending Flexibility: States have lots of flexibility on what they can use the extra $12.67 billion for Medicaid home-and-community-based services on. Learn what states are using the money for. 
  • New Vaccine Guidelines for Facilities: Government officials have released new guidelines for the COVID vaccine at facilities serving people with disabilities. Find out what they say. 







128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96Self-Determination Network News:

April 2021

Connect Share |Learn http://sdnetworkwi.org/ 

  icon 2.jpg

Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Volunteer Research Participants Wanted: Allison is looking for volunteers to help her in a research study about social isolation for people with disabilities. She is in search of community development practitioners/connecters/consultants/organizers or similar roles with communities who have experience working with people with disabilities. Learn more and contact her today! 
  • Executive Order Increases Voting Access: Recently, President Biden signed an executive order that will increase voting access. Find out what the order includes. 
  • Doctors Bias: A recent study found that many doctors have a bias against people with disabilities. Read about what exactly the study revealed. 
  • Vaccine Access: The Kaiser Family Foundation released a detailed report on COVID-19 and the disability community. Look at some of the interesting statistics and maps.
  • Take a Survey: The Collaborative on Health Reform and Independent Living is doing a survey about health insurance, health care access, and the pandemic for people with disabilities. The survey is open until April 30th. 
  • Home Modifications Grant Program: HUD’s Office of Lead Hazard Control and Healthy Homes has announced $30 million in grant funds and training resources to non-federal entities to establish the Older Adults Home Modification Grant Program. The grant program will assist experienced nonprofits, state and local governments, and public housing authorities in programs that make home modifications and limited repairs to meet the needs of low-income older adult homeowners. Applications due May 4th. 
  • Stimulus Checks: Many people with have received stimulus checks. Read about how some people are putting their money in an ABLE account. 
  • Waitlist Eliminated: At the end of February, Wisconsin achieved something highly anticipated for people with disabilities. Read about how the waitlist for long-term care services was eliminated for adults. 
  • Stimulus Bill Sends Funds to the Disability Community: Recently, President Biden signed a big pandemic relief bill that will send billions of dollars to special education and home-and-community-based services.  Learn details about how this will help people. 
  • Emergency Broadband Benefit Program: The Federal Communications Commission (FCC) has launched an Emergency Broadband Benefit Program to help households struggling to pay for internet service during the pandemic. Find out who is eligible. 
  • Vaccine Rollout Confusion: Vaccine rollout in Wisconsin is going study, but there has been a lot of confusion about who is eligible when. Read about how people were getting mixed messages. 
  • Self-Direction and COVID Study: Researchers at Brandeis University are conducting a study on the experiences of people with disabilities who self-direct Medicaid-funded HCBS during the pandemic.  Find out how to participate. 
  • Feedback Wanted on Employment Policies and Programs: The U.S. Department of Labor is seeking input on ideas for ensuring equity in employment policies and programs for people with disabilities from historically underserved communities.  Comments due April 26th. 
  • Feasibility of Internet Emergency Alerts: The Federal Communications Commission (FCC) recently proposed rules to improve the way the public receives emergency alerts on their mobile phones, televisions, and radios. They are seeking comments on these proposed rules. Comments are due June 14th. 
  • Lifespan Respite Care Program Grant Opportunities: The Administration for Community Living has opened up two grant opportunities for the Lifespan Respite Care Programs. Find out more about these! 
  • Bringing The Long-Term Care Reform Debate to the Forefront: President Biden has announced that he plans to expand Medicaid's Home-and-Community-Based Services for people who receive long-term care and supports. Read about how this has already achieved one major goal. 
  • COVID-19 Guidance for Day Centers: The Centers for Disease Control and Prevention is offering up new guidance for day centers and the people with disabilities they’re serving during the ongoing COVID-19 pandemic. Learn what this suggests. 
  • Accessible Airbnb Experiences: Airbnb is introducing a new slate of offerings specifically aimed at people with disabilities. Find out how they are catering to people with different abilities. 
  • Respite Program Survey: Do you know of a respite program that uses students as respite providers? Help create a toolkit for other respite programs by taking this survey. It closes June 1st. 

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Cynthia. Working to support people with disabilities for over four decades, she has seen many positive changes in the community. Stop by this month's Member Spotlight to get to know Cynthia. 

Who should we shine the spotlight on next?

128 Stacy’s Journal








"Will there ever be a day when the pronoun “them” will be just associated with a group of friends and that’s the only meaning? Unfortunately, I don’t see that day coming anytime soon. It’d be a very boring world if everyone was exact same. "


In this month's journal entry, Stacy shares some of her thoughts and feelings about being discriminated against as a person with a disability. Do you have similar thoughts?








128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96Self-Determination Network News:

March 2021

Connect Share |Learn http://sdnetworkwi.org/ 

Don't Forget to Register for Disability Advocacy Day of Action

Don't forget to register for Disability Day of Action that's on March 23rd. It's a virtual event focused on connecting Disability Advocates with their legislators to talk about issues that matter to them. Attendees are expected to participate in the morning briefing and call their legislators in the afternoon. Registration closes soon.  Learn more and register today

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2021 Self-Determination Conference Call for Proposals 

Are you interested in presenting at the 2021 Self-Determination Conference?  The Wisconsin Board for People with Developmental Disabilities is seeking session proposals for Tuesday, October 19th & Wednesday, October 20th, 2021. This year’s theme: Growing Stronger Together will help people with disabilities lead more Self-Determined lives by recognizing the valued role communities play in our lives! Presentations should include at least one self-advocate and must be able to be done both in-person and on video. Proposals are due April 2nd.  Learn more and apply today!  

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Opportunity to get Involved!

Are you a Self-Advocate?

Would you like an opportunity to speak up for yourself?

Do you want to be a part of the Self-Determination YouTube Channel?

Join the hosts of the Self-Determination Channel for a Zoom Drop In video recording session. We have questions- you have answers!

We will record your answers about how you live a Self-Determined life and what is important to you. This is your chance to make your voice heard.

Mark your calendar for Thursday, March 25th at 4p.m. You can drop in any time from 4:00 – 5:30 p.m.

We look forward to seeing you and hearing what you have to say! 

Contact Fil Clissa at fil.clissa@wisconsin.gov for the  link to participate.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on new InControl Wisconsin board member, Julie! As one of the founders of the Save IRIS movement, she’s a huge advocate for self-direction. She encourages everyone to remember the word “self” in self-direction and to get involved in some sort of advocacy. Stop by this month's Member Spotlight to get to know Julie. 

Who should we shine the spotlight on next?

128 Stacy’s Journal







"Most people aren’t comfortable with being called out for doing something good. Often, people appreciate acknowledgement and praise, but we are uncomfortable with it. For people with disabilities or health conditions, many times, offering to meet a celebrity or being praised for something can be a unique experience."


In this month's journal entry, Stacy talks about being recognized and receiving praise as someone with a disability. Do you have similar feelings?







196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Where Healthcare is Headed: As health systems continue to test approaches to better health care quality, the delivery of person-centered care is key for health care system transformation. Learn what researchers found in a recent study. 
  • Report Shows Improvement in Voter Accessibility: According to a new report, people with disabilities had far fewer problems with voting accessibility in 2020 than in 2012. Find out how things improved. 
  • Research Funding Opportunity for Blindness and Low Vision: The Administration for Community Living has opened up a funding opportunity to conduct research and development activities that will promote independence and community living for those with low vision and blindness. Applications due April 19th. 
  • Public Comment on Heightened Scrutiny: The Wisconsin Department of Health Services is opening a 30-day public comment period on its findings about home and community-based service long-term care settings that were identified for heightened scrutiny review. Review is needed to determine if these settings are truly home and community based and not institutional.  Public comment open until March 24th. 
  • Self-driving Vehicles Online Forum: Self-driving or “autonomous” vehicles stand to revolutionize transportation in the U.S. and around the world. Here's an opportunity to join an online forum discussing inclusive design for autonomous vehicles. 
  • Vaccine Frustration: While Wisconsin has made progress in the vaccine rollout, disability advocates say some of the most vulnerable  people still face multiple challenges accessing it. Read about some of the obstacles people with disabilities are facing. 
  • Self-advocate Class: The ARC of Wisconsin is leading a class for self-advocates. Registration closes April 1st. Learn more and register today! 
  • Your Input is Needed: The Center on Aging and Trauma of The Jewish Federations of North America’s Holocaust Survivor Initiative, invites organizations to participate in a national survey on Person-Centered, Trauma-Informed Care. Survey closes March 22nd. 
  • Vaccine Prioritization: With vaccines beginning to be more available, disability advocates want the Center for Disease Control and Prevention to update its prioritization plan to include the high-risk disability community. Read about why advocates want this.
  • Funding Opportunities for Technology Research and Activities: The Administration for Community Living has two new funding opportunities for research and activities for technology interventions to encourage community living outcomes for people with disabilities. Applications due April 26th. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96Self-Determination Network Network:

February 2021

Connect Share |Learn http://sdnetworkwi.org/ 

Disability Advocacy Day of Action

Mark your calendar! Disability Day of Action is March 23rd. It's a virtual event focused on connecting Disability Advocates with their legislators to talk about issues that matter to them. Attendees are expected to participate in the morning briefing and call their legislators in the afternoon. Learn more and register today

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Check Out The Latest Videos! 

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Lynndale. As a dedicated self-advocate, she encourages people to follow the path to look forward.  Stop by this month's Member Spotlight to get to know Lynndale. 

Who should we shine the spotlight on next?

128 Stacy’s Journal







"Wishes are like dreams. While some are tangible or realistic, others are far-fetched and fantasy like. Wishes and dreams often keep us going."


In this month's journal entry, Stacy discusses how her wishes differ from an average person her age. Do you have unique wishes?







196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Voter Challenges Continue: While some recent legislative changes and an increased emphasis on absentee voting helped some, Wisconsinites with disabilities continue to face multiple challenges when trying to exercise their right to vote. Find out how advocates are still working to get better access for voting. 
  • Plain Language Guide for Person-Centered Self-Assessment: Your state is trying to make services work better for people. They want people who use support services to be listened to. Take a look at this great resource. 
  • New Study Shows Prevalence of Intellectual Disability: According to a new study from the Center for Disease Control, there is an increase in children with intellectual disabilities. Read more about what the study found. 
  • Electronic Health Records: People with disabilities often face multiple challenges when accessing healthcare services. Learn about how Electronic Health Records may help with some of this. 
  • Voting Resources: There's a election coming up in April. Check out these great resources from the Wisconsin Disability Vote Coalition. 
  • The Future of the Direct Care Workforce: The direct care workforce shortage has continued across the country. Look at this detailed report which includes a current analysis of the workforce and recommendations to improve the jobs for this workforce. 
  • New Means of Emotional Support: Voice assistant devices, such as the Amazon Alexa, have made more things possible for people with disabilities. Learn about how a new study suggests that these devices also provide some emotional support for people. 
  • Employment Outcome Research Funding Opportunity: A new funding opportunity from the Disability and Rehabilitation Research Projects and Center Program hopes to achieve the goals of, and improve the effectiveness of, services authorized under the Rehabilitation Act through well-designed research, training, technical assistance, and dissemination activities to benefit rehabilitation service providers, individuals with disabilities, family members, and other stakeholders. Grant applications are due March 22nd.
  • Economy Recovery Agenda: National Disability Institute offers a 15-point agenda to advance economic recovery and resilience for people with disabilities who represent a most vulnerable population too often ignored in plans for the economic recovery for our nation. Learn about some of the suggestions.
  • Opportunity to Provide Feedback on Web Accessibility Guidelines: The Accessibility Guidelines Working Group has published a working draft of the third version of the Web Accessibility Guidelines. Feed back is due February 26th. 
  • Employment for People with Disabilities Continues to Stall: According to the January Jobs Report, the pandemic continues to slow employment for people with disabilities.  Find out why people are hopeful it will start to improve soon. 
  • New Administration Prioritizing Accessibility: The new president administration is making accessibility a priority. Learn about what steps are being made to ensure accessibility for everyone. 
  • Accessible COVID-19 Resources: The Center for Inclusive Design and Innovation, a part of the College of Design at Georgia Tech, has partnered with the CDC to ensure that important information about the virus is accessible for all people. Check out these great resources!
  • "Nothing About Us Without Us" Call to Action: The saying, "Nothing About Us Without Us"  has been used in the disability community for many years. It simply means that no decisions should be made regarding people with disabilities without their input.  Read about a nationwide program that aims to increase participation of underrepresented communities in medical research.
  • Television Representation: More and more entertainment companies are committing to consider actors/actresses with disabilities in their movies.  Read about how a big tv network recently committed to auditions for actors/actresses with disabilities.
  • Impact of the Pandemic:  A recent survey done by the Wisconsin Survival Coalition revealed the impact of the pandemic is having on people with disabilities and their families. Learn what the survey found.  

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96Self-Determination Network Network:

January 2021

Connect Share |Learn http://sdnetworkwi.org/ 

Happy New Year!

InControl Wisconsin would like to wish you a Happy New Year! We hope 2021 is a better year for everyone. To start off the new year, we want to encourage members of the Self-Determination Network to post news items or questions about self-determination or disability-related issues. By sharing knowledge and experiences with others, we can all learn from each other. If you have questions about how to post things, please contact Network Manager, Stacy Ellingen. Let's help one another by connecting with each other! 

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Check Out The Latest Videos! 

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Anna. This coffee-loving author believes anything can be done by taking one step at a time. Stop by this month's Member Spotlight to get to know Anna. 

Who should we shine the spotlight on next?

128 Stacy’s Journal






"While understandably, some people are hesitant to get vaccinated, I’m more than ready. Even though we don’t know the long-term effects of it, my opinion is that we have something that will most likely keep us safe and make it so that we can gather freely again hopefully sooner than later. "


In this month's journal entry, Stacy discusses the vaccine distribution and her view on the situation. What's your opinion?






196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Candidates with Disabilities: Disability issues have become more prevalent in elections recently. Find out why many people feel that more people with disabilities need to run for political office.
  • Input on Autonomous Vehicles: This spring, the U.S. Access Board, in partnership with other federal agencies, will host a series of virtual meetings on making autonomous vehicle accessible to all passengers, including those with disabilities. Find out how to participate. 
  • Program Helps with Isolation:  We all have felt some degree of isolation during the pandemic. Read about a program in Marathon County that helps social isolation for seniors. 
  • Push to Make Rental Vehicles Accessible: The National Highway Traffic Safety Administration is aiming to make mobility far more accessible for people with disabilities - - especially those who use wheelchairs. Learn what is being proposed. 
  • The Remote Work is Evening the Playing Field: People with disabilities are often unemployed, even in times where a pandemic is not a factor.  Read about how the new movement to work remotely is evening the playing field for people with disabilities. 
  • New Policy for Service Animals on Airlines:  Airlines no longer have to make the same accommodations for emotional support animals as they do for service animals. Learn about why this is. 
  • Disability Employment Remains Study: According to December's disability employment report, despite a decline in the economy, people with disabilities remain active in the workforce. Find out what some people are worried about due to the pandemic surges. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96Self-Determination Network News:

November/December 2020

Connect Share |Learn http://sdnetworkwi.org/ 

Your Input is Needed! 

Wisconsin policymakers are right now making critical decisions about funding and changes to disability programs. The state budget is the most important piece of legislation that impacts people’s lives. Survival Coalition is gathering people’s stories and thoughts about the most pressing needs in our state to help policymakers understand disability issues. We encourage you to complete this survey to help bring the most important issues to the forefront.  

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This year's Self-Determination Conference was a little different, but we were glad so many people could join virtually.   Let's keep the conversation going! Share your comments, questions, and ideas.

Join the conversation!

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We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:

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Check Out The Latest Videos! 

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

In November, we shined the spotlight on Anastasia. This talented artist doesn’t let her limitations get in the way of pursuing her dreams. Stop by last month's Member Spotlight to get to know Anastasia.

This month, we're shining the spotlight on Emily. When this self-advocate isn't busy planning conferences and volunteering, she enjoys hiking and biking. Stop by this month's Member Spotlight to get to know more about Emily. 

Who should we shine the spotlight on next?

128 Stacy’s Journal





"This Thanksgiving, I challenge each of you to take five minutes and reflect on the good things that happened this year. Yes, there were a lot of unpleasant things that occurred, but I’m willing to bet if we truly think about it, the good outweigh the bad."


In November's journal entry, Stacy reflected on the year. She opened up about some of the things that she has been thankful for during this unprecedented year. What are you thankful for this year?



"Patience is truly a virtue, and, while some have more than others, waiting is something everyone has to do to some extent. All the time—but especially during the holiday season this year—remember people are doing the best they can. Be patient with others. Take the time to talk to people. Try not to rush people. Life is too short!"




In this month's entry, Stacy talks about how people who work with people with disabilities need to have some extra patience. Have you found this to be true?




196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Home-and-Community-Based Services Resources: The quality of life of persons living with all types of disabilities is closely tied to the services they receive in home- and community-based settings.  Check out the new briefs on quality measures for HCBS. 
  • Accessible Housing Struggles: For many people with disabilities, finding accessible housing is very challenging. Read about how one woman in Wisconsin is taking matters into her own hands. 
  • COVID Dashboard: The Wisconsin Department of Health Services (DHS) has developed several dashboards to provide information regarding how the COVID-19 pandemic is affecting members and participants in the adult long-term care programs. Learn what the statistics show. 
  • Assistive Technology Channel: Wisconsin’s Assistive Technology Advisory Council (AT Council) has launched a YouTube channel in order to share videos of WisTech assistive technology trainings. Check it out and see if any of of the videos may be useful to you. 
  • Social Security Increase: Beginning in 2021, Supplemental Social Security and other benefits will increase. Find out how much the increase will be. 
  • Great Resource: Parents of children with disabilities are facing difficult decisions about how to keep their children safe and learning.  Check out this "Back to SCOL" decision guide developed by Stanford University to help parents decide what is best for their child. 
  • Emergency Preparedness Trainings: The Health and Human Services Office of Assistant Secretary for Preparedness and Response created a new online training on older adults and disasters. Learn about what this training includes. 
  • Seeking Inventive Solutions: The Administration for Community Living is looking for creative solutions to help with better the direct care workforce and improve the quality of home-and-community-based services. Learn more about this competitive challenge. 
  • Prioritizing Services: Medicaid officials are pushing states to move forward with efforts to rebalance the long-term care services for people with disabilities to favor home-and-community-based services rather than institutions. Read about a toolkit to to help providers and people who receive services make sure they're doing everything possible. 
  • Biannual Report: The Wisconsin Board for People with Developmental Disabilities released its biannual report highlighting what they've done to support people with disabilities. Learn about some of the things they've done. 
  • Guardianship Reform Briefing: The national Working Interdisciplinary Networks of Guardianship Stakeholders released briefing about guardianship reform and encouraging less restrictive options. Find out what some of the suggestions are. 
  • Technology Competition: Most people don't think twice about completing simple tasks such as slicing bread or doing laundry, but for people with disabilities, technology equipment often help them do these basic tasks. Read about a competition for people with physical disabilities highlighting new technology that helps them complete daily tasks. 
  • Caregiver Struggles: A recent survey found that nearly half of Wisconsin's direct care workers work a second job to support themselves. Find out what advocacy groups are urging the state Legislature to do to help with this. 
  • Free Online Caregiver Courses: The Wisconsin Department of Health Services (DHS) and the Greater Wisconsin Agency on Aging Resources (GWAAR) recently announced a partnership with Trualta, a new free online educational tool for family caregivers across the state.  Learn more about these courses. 
  • Accessibility in the 2020 Election: The 2020 election will be talked about for years to come. Despite all of the different challenges, it appears that voters with disabilities may have turned out more than people anticipated. Read about the initial findings. 
  • People with Disabilities are Assets to the Economy: People with disabilities are aren't often thought of as assets to the economy, but, in several ways, they actually help it grow and thrive. Read about how one educator feels. 
  • Pandemic Helpline: As the pandemic continues, a new 24-hour support line is working to help individuals with developmental disabilities and those who care for them cope during this tough time. Learn more about this free service. 
  • Vaccine Distribution: With a COVID vaccine on the horizon, many disability advocates feel people with disabilities aren't being prioritized enough in distribution plans. Find out why advocates are concerned. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

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