SD Network

Category: Network News


96Self-Determination Network News:

August 2020

Connect Share |Learn http://sdnetworkwi.org/ 

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Registration Open

Join us for one of the biggest events for people with disabilities and the people who support them. The 2020 Self-Determination Conference will be held virtually October 26th-28th. Learn how to live more independently, participate more in your community, and direct your public funds efficiently. Registration is free, but you have to register by October 1st. Register now!

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Check Out The Latest Videos! 

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

In August, we're shining the spotlight on Evelyn. Being in the education field for 22 years, she has a wealth of knowledge about different types of services for people with disabilities. Stop this month's Member Spotlight to get to know Evelyn.

Who should we shine the spotlight on next?

128 Stacy’s Journal

"Making decisions and having choice is part of life. We make hundreds (or probably thousands) of choices on a daily basis. We learn from our choices—sometime we learn the hard way by making bad choices, but that’s ok because those choices we make that shape our life into what it is."

In this month's entry, Stacy talks about how being able to make choices is crucial in life. Have you had to make some life-changing choices?

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Be Inspired: A new coffee shop in Lake Geneva ran by people with disabilities found a way to open despite the pandemic. Find out how this unique shop works.
  • Apple TV Show: Apple TV has a new show that stars people with visual impairments. Learn more about the show.
  • Emergency Response Supports: To celebrate the 30th ADA Anniversary,  FEMA came up with 30 ways the agency supports emergency preparedness, response and recovery for people with disabilities. Check out the list.
  • Electronic Visit Verification: The Wisconsin Department of Health Services has released updates that explain Electronic Visit Verification (EVV) policy and training. Learn the latest.
  • Work-from-home Guidelines:  Working from home used to be a hard accommodation to get for people with disabilities and health conditions. However, the pandemic changed that. The Equal Employment Opportunity Commission recently released guidelines for accommodations during the pandemic. Read about these guidelines.
  • Watch: In late July, we celebrated the 30th anniversary of the Americans with Disabilities Act (ADA). Watch this video to learn how the legislation changed the lives of people with disabilities and where there's room for improvement.
  • Respite Grant Opportunity: Lifespan Respite Care programs are coordinated systems of accessible, community-based respite care services for family caregivers of children and adults of all ages. Learn about a grant opportunity for this program.
  • ADA Brings Security During a Pandemic: The pandemic has caused upheaval in everyone's life. Read about how the situation would be much worse for people with disabilities without the Americans with Disabilities  Act.
  • Equal Access to Medical Care: With the pandemic hitting the country hard, the topics of health care access has been front and center. Learn why many people feel it's time that health care systems be required to follow the non-discrimination laws to ensure that the medical system is accessible to everyone.
  • More Needs to be Done: For Wisconsin Representative Jimmy Anderson, the Americans with Disabilities Act is personal. Find out what he thinks still needs to be done.  
  • ADA Transformed the Country: The Americans with Disabilities Act  changed life for people with disabilities.  Read about the history of it and learn how it has impacted so many.
  • Relief Proposal Concerns: As another COVID relief bill begins to form, disability advocates worry that people with disabilities are being ignored again. Find out why.
  • Housing Trouble: Most people with disabilities in the United States have a hard time finding accessible housing. Learn why this is.
  • Accessibility Features Make Life Easier: Apple interviewed four people with disabilities to show how Apple's built-in accessibility settings have made the lives of people with disabilities easier. Read about these neat features.
  • Medicare Running Running Out: A new prediction suggests that a fund for Medicare that pays for hospitalizations and in-patient care may run out of money as early as 2022 or 2023. Find out why this is.
  • Employment Data Spotlight: The U.S. Department of Labor’s Bureau of Labor Statistics released a report that highlights data products that can be used to help people with disabilities plan their career paths. Check it out!
  • Caregiving Policy Proposal Survey Results: Earlier this summer, the Governor's Task Force on Caregiving conducted a survey about policy proposals. Take a look at this summary to see what it revealed.
  • Impact of Self-Driving Cars: A study is being done of the impact of self-driving cars.  Read about why many people feel they will be life-changing for people with disabilities.    

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: July 2020


By SD Network, 2020-07-14

96Self-Determination Network News:

July 2020

Connect Share |Learn http://sdnetworkwi.org/ 

Exhibit at the 2020 Self-Determination Conference 

Applications are now being accepted for organizations who support self-determination and self-direction and for micro-business owners to exhibit at the 2020 Self-determination Conference. Applications are due by August 1st. Apply today

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Check Out The Latest Videos! 

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

In July, we're shining the spotlight on Duane. When he’s not biking, kayaking, or playing hockey, he strives to assist people with disabilities have choices through the help of technology. Stop this month's Member Spotlight to get to know Duane.

Who should we shine the spotlight on next?

128 Stacy’s Journal

"With the ongoing pandemic colliding with the outbursts from the equity movement, 2020 will be read about in history books for years to come."

In this month's journal entry, Stacy shares some of her thoughts about what's going on in this country. Do you agree with her? What are some of your thoughts?

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Innovative Assistive Technology Grants:  The Administration for Community Living has opened up grant opportunities for to help state programs expand assistive technology through innovations. Applications are due September 15th.
  • Social Security Disability Insurance Confusion: Recently, there has been some confusion about Social Security Disability Insurance (SSDI) and the Pandemic Unemployment Assistance in Wisconsin. Read about where the situation stands. 
  • Be Inspired: It's becoming increasingly popular for parents to start businesses so that their son or daughter with a disability will be able to work. Learn about a neat father-son duo that has not one, but three businesses going.
  • Transit Woes Continue: After 30 years of the ADA, transit problems continue for people with disabilities. Find out what challenges people still face.
  • Housing Disparity Brief: Housing security is vital for the health, wellbeing,  and community integration of people with—and without—disabilities. Learn about some of the disparities. 
  • Employment First Partner Grants: Does your program, school or organization want to increase employment for people with disabilities? Applications for Employment First Partner grants are now available. Apply today!
  • SPARKS Grants:  Do you have an idea to make your community a better place for people with disabilities? Our SPARKs grant applications are now being accepted. Learn more!
  • Partners in Policymaking: This workshop will train you how to advocate for policies and initiatives that support full participation and inclusion of people with developmental disabilities. Apply today!
  • ADA Online Exhibit: Check out this online exhibit that showcases some of the history of the Americans with Disabilities Act.
  • ADA Timeline: This is an interesting timeline depicting the key steps of the Americans with Disabilities Act.  Learn about some of the legislation that went into it.   

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: June 2020


By SD Network, 2020-06-17

96Self-Determination Network News:

June 2020

Connect Share |Learn http://sdnetworkwi.org/ 

2020 Self-Determination Conference

The Wisconsin Board for People with Development Disabilities (WBPDD) announced that the 2020 Self-Determination Conference will be virtual in October. There still will be opportunities to participate in the things we all enjoy such as attend sessions led by self-advocates, have chances to obtain get information from exhibitors, shop at a virtual micro-business store, have time to chat with friends, and much more. In this time of uncertainty, the WBPDD and its sponsors understand people maybe struggling. In hopes of easing the burden, registration for the conference will be free for everyone this year! Stay tuned for more information about registration in the coming weeks, but, until then, we invite you to listen to the popular self-determination song that's played at the conference every year. Peter Leddy changed the words a little bit. We hope you enjoy it! 

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Check Out The Latest Videos! 

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.

Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. This month, we're introducing something a little different. One of the hosts on the Channel, Stacy, is going to do a vlog (which is a video blog) about her experiences living with a disability. We hope that you may be able to relate to some of the things she shares. We encourage you to share your own experiences and thoughts in the comments below the video. 

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

In June, we're shining the spotlight on Julie. This awesome mother strives to help her daughter have control over her life and encourages other parents to do the same. Stop this month's Member Spotlight to get to know Julie.

Who should we shine the spotlight on next?

128 Stacy’s Journal

"I find it incredibly sad that there isn’t a better option for people like me. I don’t have all the answers, but, until the day I die, I continue to advocate to make things better."

In this month's journal entry, Stacy opens up her continual care struggles. She discusses her experience with trying another program. Have you had a similar experience? We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Coronavirus Heightens Caregiver Shortage:   For people with disabilities who are reliant on other people to assist them with all of their basic needs, the virus has brought some additional challenges. Read about some of the issues people are facing.
  • House Approves Payment for People with Disabilities:  A new round of stimulus checks for people with disabilities and billions for home- and community-based services are part of a $3 trillion relief bill that faces an uncertain future.Learn more about this bill. 
  • Guidelines for Voc Rehab Services:  New guidance from the feds suggest that Vocational Rehabilitation agencies can continue providing services during the pandemic, but adjustments will be needed. Find out what is being done to keep people safe. 
  • Wheelchair Accessibility Feature:  Google Maps now has a feature that indicates whether or not a place is wheelchair accessible.Learn how it works. 
  • Be Inspired:  Two self-advocates are on an unique mission to raise awareness for people with disabilities. Read about what they're doing. 
  • Self-direction Model Becoming More Popular:  With the pandemic, living in a facility setting has become much more dangerous. Read about why people are choosing the Self-direction model more and more these days. 
  • Website Accessibility Not a Priority:  According to a recent study, most organizations don't do accessibility testing on their website. Learn what else the study found. 
  • Increase the Affordable Care Act: The Coronavirus has resulted in job loses or income changes, which has had an effect on health care. Learn why many people feel that Congress should pass a law--or laws--that would increase access to health insurance through the marketplace created by the Affordable Care Act.
  • Online Disability History Exhibit:  The Smithsonian put together an online exhibit about the history of disability in the United States. Find out what it includes.
  • Resource for Job Seekers:  Finding employment is hard for everyone right now. Learn about a helpful resource for job seekers with disabilities.
  • Positives During a Pandemic:  The pandemic has caused havoc across the world, but it has also brought out some positives for people with disabilities. Learn about going virtual has been a huge positive for students with disabilities at one Milwaukee theater. 
  • Hospital Visitor Policies:  When the pandemic hit, hospitals quickly no visitors policies into effect. Often, people with disabilities rely on support from family and friends to effectively communicate with medical staff.  Read about what laws allow people with disabilities to have attendants in the hospital to assist them.  

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96Self-Determination Network News:

April/May 2020

Connect Share |Learn http://sdnetworkwi.org/ 

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Watch:  For people with disabilities, COVID-19 is especially dangerous.  This short documentary talks about some of issues people with disabilities are facing.
  • Technology Grant Opportunities:  The Administration for Community Living has opened up two grant opportunities on technology to promote independence and community living and employment research.   These opportunities close May 26th. 
  • The Importance of Website Accessibility:  Website accessibility is a must these days.  Read about why website accessibility is so important especially during a pandemic.
  • Effects of the Virus:  The Coronavirus has shaken the world to its core. People with disabilities are facing the same issues as everyone else are, but they have additional concerns. Read about some of the challenges they are facing. 
  • Lifespan Respite Care Program Funding Opportunities: The Administration for Community Living has two grant opportunities for funding Lifespan Respite Care Programs. Learn about these opportunities. 
  • CARES Act:  In March,  the President signed the Coronavirus Aid, Relief and Economic Security Act, or CARES Act, into law.  Read what it entails for people with disabilities.
  • Can't Deny Care:  During this time of uncertainty and crisis, there have been reports of health care providers in some states discriminating against people with disabilities. The feds issues a statement saying it's illegal to do so. Find out what laws protect this.
  • Popular Documentary:  A new documentary on Netflix produced by the Obamas is a popular in the disability community. Find Learn what it's about.
  • Accessible Airline Seats:  Air travel for people with disabilities continues to cause a variety of issues. A company in Colorado has developed a prototype of a plane where individuals can take their own wheelchairs onto the plane.  Read about what needs to happen to get these seats on planes. 
  • Rail Vehicle Guidelines:  In February, the US Access Board proposed updates to the ADA Accessibility Guidelines for Transportation Vehicles that apply to rail cars. Public comment on these recommendations is open through July 14th.
  • Help and Be Helped:  As we continue coming together to support people with disabilities through the COVID 19 Crisis in Wisconsin, we must look for creative ways to meet the changing needs of this new normal. Check out this list of resources a workgroup put together. 
  • Annual Report:  The Administration for Community Living recently released Annual Report on Centers for Independent Living. Find out what it includes. 
  • Electronic Visit Verification Video:  The Wisconsin Department of Health Services has released an informational video about Electronic Visit Verification.  Learn how the system will work. 
  • Pandemic Brings Hope for an Employment Accommodation:  Working from home has become the new norm for many people during this pandemic. Read about how people with disabilities are hoping that this will show employers that this is a reasonable accommodation in many circumstances. 
  • Unique Worries:  For some people with disabilities, social distancing is literally not possible  Learn why some people with disabilities are at even at greater risk of contracting the virus. 
  • Guidance on Accessible Restrooms and Drinking Fountains:  The U.S. Access Board has released technical bulletins on accessibility to restrooms, bathing facilities, and drinking fountains.   Learn what the technical bulletins explain. 

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

In April, we shined the spotlight on Mary Clare. This life-long Wisconsinite has been an advocate for people with disabilities for many years. She has seen self-determination grow, and she's looking forward to watching it continue to expand.   Stop by April's Member Spotlight to get to know Mary Clare.

In May, we're shining the spotlight on Ashley. When she is not busy participating in Special Olympics or dancing with her friends, this vibrant young lady is out self-advocating!  Stop by this month's Member Spotlight to get to know Ashley.

Who should we shine the spotlight on next?

128 Stacy’s Journal

"Social distancing. Mitigation. Isolation. Safer—at—Home orders. Terms such as these didn’t have much meaning to most people until the beginning of March. Now, thanks to COVID 19, such vocabulary has become the new norm in today’s society. For most people with disabilities, a pandemic of this magnitude often brings on some unique challenges."  In April's entry, Stacy discusses the some of the challenges that she has encountered during this pandemic. What unique challenges have you faced during this time?

"I think this quarantine will bring out some positive aspects for people with disabilities."  In this month's entry, Stacy talks about finding silver lining during this pandemic. What silver linings have you found? We encourage you to share your thoughts and experiences as well.

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Check Out The Latest Videos! 

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.

The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.

Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.

Then, click the "All" bell.

That's all there is to it. You will now get an email notification every time a video is posted.

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96Self-Determination Network News:

March 2020

Connect Share |Learn http://sdnetworkwi.org/ 

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Disability Advocacy Day is CANCELED!

Disability Advocacy Day is canceled for this year due to concerns about containing the spread of Coronavirus. The Wisconsin Department of Health Services is recommending that large meetings and gatherings be canceled or held remotely as a strategy to slow the spread of the virus in Wisconsin.  Keep an eye on the InControl Wisconsin Facebook page for updates. 

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Check Out The Latest Videos! 

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.

The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.

Videos are posted weekly on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.

Then, click the "All" bell.

That's all there is to it. You will now get an email notification every time a video is posted.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on LisaWhen she's not reading or styling women in her boutique, she’s helping veterans get appropriate services. She encourages people to ask for the services they need to lead a self-determined life.  Stop by this month's Member Spotlight to get to know Lisa.

Who should we shine the spotlight on next?

128 Stacy’s Journal

"It’s Friday night and it’s been a long week. Some friends are meeting up for dinner and invited you to join. Without knowing or caring where, you accept the invite. You’re excited to kick back and relax. You get ready to go and you text a friend asking where they are meeting. The friend responds with the name of a popular restaurant in town. Suddenly, you cringe and rethink your decision to go out. The place they chose is definitely a really cool and fun place; however, accessibility is less than ideal."  In this month's entry, Stacy discusses the accessibility of restaurants. Do you find restaurants vary in terms of accessibility? What are some of the experiences you've had?

We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Respite Bill Moves Forward:  Legislators are planning to expand federal funding to support respite care for families of those with special needs. Learn how much money is being  allocated for the program. 
  • Public Comment open on Proposed Rules for Aircraft Accessibility and Service Animals:  The Department of Transportation (DOT) has issued two proposed rules for public comment on air travel and accessibility for passenger with disabilities. Find out what they are. Public comment due April 16th. 
  • New Non-Emergency Medical Transportation Contract Awarded:  The Department of Health Services awarded a new contract for non-emergency medical transportation to a new company.   Learn which company got the contract.
  • Transportation Grant Opportunity:  The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) at ACL has opened a new funding opportunity for the Rehabilitation Engineering and Research Centers (RERC) Program on Physical Access and Transportation.  This grant opportunity closes on April 28th. 
  • People Helping People:  Art is becoming more and more popular among people with disabilities.  Read this cool story about how a sculptor with challenges of his own is helping others be creative regardless of their limitations.   
  •  Supporting Family Caregivers:   As the aging population continues to grow, the concern over the caregiver crisis increases. Learn about how a roundtable discussion created an opportunity for people to share their stories with leaders. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96 Self-Determination Network News:

February 2020

Connect Share | Learn http://sdnetworkwi.org/ 

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Hurry! Disability Advocacy Day Registration Ends Soon!

Register now for Disability Advocacy Day!  Join fellow advocates on Tuesday March 24th in Madison to let your voice be heard.  Disability Advocacy Day is designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives. The day starts with a briefing of issues you and your fellow constituents want to discuss with your legislators and after lunch the whole group heads to the capitol for their legislative meetings.  Registration closes soon.  Register today!     

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Check Out The Latest Videos! 

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.

The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.

Videos are posted weekly on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.

Then, click the "All" bell.

That's all there is to it. You will now get an email notification every time a video is posted.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Cindy. Her amazing self-determination and attitude have gotten her where she is today. From growing up in an institution to being an Executive Director, this very determined lady believes everyone should have a chance.    Stop by this month's Member Spotlight to get to know Cindy.

Who should we shine the spotlight on next?

128 Stacy’s Journal

"Normalcy is something we all crave and strive for. That said, definitions of “normal” widely vary. Unless referring to something static like temperature, the word usually can be used pretty loosely. While we all have our own unique definitions, society has its own that many people continue to strive for!"  In this month's entry, Stacy discusses the fantasy of being "normal." It can be a pretty controversial topic in the disability community. How do you feel about it?

We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Proposed Bill for Standing Wheelchairs:  Standing wheelchairs are pricey, but they are beneficial to people who use them in more than one way. Find out why a Wisconsin legislator proposed a bill that would force BadgerCare to pay for standing wheelchairs. 
  • Volunteer Program Proposals: Community Care Corps seeks proposals for innovative local models in which volunteers assist family caregivers or directly help older adults or adults with disabilities with non-medical assistance in order to maintain their independence.  Proposals due April 3rd.
  • The Power of Robots: Two schools have teamed up to create a light weight robot to help elderly people and people with disabilities be able to stand and walk unassisted. Read more about this amazing invention. 
  • New Technology:  People with visual impairments can now see television programs thanks to new technology. Learn about how this works. 
  • Feedback Needed:  Recent data shows many families don't know they're eligible for long-term care supports.   Take this survey to help determine if Family Navigators world be helpful. 
  • Youth Leadership Forum:  Do you know a high school student with a disability who is a leader or a budding advocate? If so, please refer them to the Wisconsin Youth Leadership Forum (YLF)!  Applications due April 1st.
  • Grant Opportunities: The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) at ACL has opened several funding opportunities for the Disability and Rehabilitation Research Projects (DRRP) on Community Living and Participation (both Research and Development), Health and Function (both Research and Development), and Projects for Translating the Findings and Products of Disability Rehabilitation Research and Development into Practice.  Applications due March 23rd. 
  • 2020 Census:  Responses to this year's census will shape our future. Read about how there are multiple accessibility options to help people participate in the Census. 
  • Facilities Accessibility App:  Accessibility continue to be an issue at many commercial and institutional facilities across the country. Find out how students at UW Milwaukee are developing an app where people can rank businesses based on accessibility. 
  • Service Animal Report:   A survey was done on the treatment and inquiries from businesses regarding the presence of service animals. Read what the surveys revealed. 
  • NBA Star Brings Awareness to Mental Health: A first-first-round draft pick is bringing awareness to mental health by sharing his story. Read about how he used his fame to educate others. 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96 Self-Determination Network News:

January 2020

Connect Share | Learn http://sdnetworkwi.org/ 

ACTION ALERT:  New Wisconsin ABLE Legislation Could Help More People With Disabilities Save for the Future

ABLE (Achieving a Better Life Experience) accounts are a great new way for people with disabilities (or families on their behalf) to save money without harming their eligibility for important benefits like Medicaid or Social Security. Unfortunately, many Wisconsin residents don’t even know about ABLE or how to set up an account. That’s because Wisconsin is one of just 9 states that does not to operate or market an ABLE program.

Bi-partisan legislators have just introduced an ABLE bill that would require the state Department of Financial Institutions to start an ABLE program. This will increase awareness about ABLE as a savings tool so people with disabilities and their families feel more secure about earning and saving more money in an ABLE account to put toward important extra expenses like transportation, housing or other support needs.

You can learn more about ABLE here.

If you think Wisconsin should join the other 41 states with ABLE programs and make sure state residents with disabilities and their families know about ABLE here’s what you can do:

  • Contact your State Assembly Representative and State Senator TODAY and ask them to support LRB-3165 and LRB-5380 – the ABLE bill!
  • Go to Who are My Legislators to find your rep’s contact information.
  • Contact your representatives by January 24TH

 You can find links to the current ABLE bill draft and legislator memo here.

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2020 Disability Advocacy Day

Mark your calendars!  Make certain your voice is being heard by joining us for the 2020 Disability Advocacy Day in Madison on Tuesday March 24th! It's a day designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives.  Registration and additional information will be coming soon.

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Check Out The Latest Videos! 

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.

The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.

Videos are posted weekly on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.

Then, click the "All" bell.

That's all there is to it. You will now get an email notification every time a video is posted.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we're shining the spotlight on Barbra.  This worldwide traveler believes that people with disabilities should make their own choices and live their most meaningful lives--just like people without disabilities.  Stop by this month's Member Spotlight to get to know Barbra.

Who should we shine the spotlight on next?

128 Stacy’s Journal

"Whether it’s the waterpark, the sauna, the workout room, or a different amenity, it’s often fun to look around and see what the place has to offer. For people with physical disabilities, exploring hotels is also enjoyable experience; however, we often look at different things.In this month's entry, Stacy talks about how accessibility widely varies. What accessibility issues at hotels have you faced?

We encourage you to share your thoughts and experiences as well.

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Take five minutes to check out what's happening on the Self-Determination Network:

  • Free Resource:  Check out the ABLE Employer Toolkit recently released by the ABLE National Resource Center.
  • Help Shape the Future of the ADA:  This year is the 30th anniversary of the Americans with Disabilities Act (ADA)!  Help form the future of it by taking a survey. 
  • Feedback Needed:  The national Recognize, Assist, Include, Support and Engage Family Caregivers Act (the RAISE Act) became law in January 2018. It requires the Department of Health and Human Services (HHS) to develop and maintain a national strategy to recognize and support family caregivers, and to organize an Advisory Council to make recommendations.  Comments due February 7th.
  • Members Needed:  The Assistive Technology Advisory Council is seeking new members to fill vacancies on their roster. Learn about the qualifications and consider applying.
  • Winter Fun:  Wisconsin has a lot to offer in the winter, but not everyone can take advantage of it. Read about how three organizations want to change that. 
  • Feedback Wanted on Airplane Restroom Accessibility: The U.S. Department of Transportation (DOT) seeks public comments on a new proposed rule to improve restroom access for passengers with disabilities on single-aisle aircraft with 125 or more seats. Comments due by March 2nd.
  • Changes to Social Security Could Put Beneficiaries with Disabilities at Risk: A proposed change to federal disability assistance would result in millions more case reviews, likely cutting off many recipients with disabilities if the changes are made.  Read about the proposed change.
  • Program Extended:  For the fourth time in a year, lawmakers voted to keep alive a program that moves people with disabilities from institutions into the community, but its long-term fate remains in jeopardy.  Find out why.     

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96 Self-Determination Network News:

November/December 2019

Connect Share | Learn http://sdnetworkwi.org/  

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During a Hot Topics session at the Self-Determination Conference, InControl Wisconsin board members Lynn Breedlove, Patti Becker, and Kate Norby facilitated a great discussion about self-determination and self-direction.  People were asked to write down questions about self-direction.  We've compiled them and we encourage people to share their thoughts.  We can all learn by sharing our thoughts and ideas with each other.  Join the discussion!

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The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content.

The theme of the channel is: Self-Determination is Empowerment. It’s a place where self-advocates can be seen and heard, connect with others, and mentor each other. The hope is that the channel can be used as a teaching tool and show examples of what is possible.

Videos are posted weekly on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy. 

Check out the latest videos on the channel:

Tip for National Family Caregiver Month

Tips for Success

Respite—A Break for Caregivers

Self-Advocates Speak Up

Inclusive Schools Week

We encourage you to subscribe to the Channel (you can do by clicking the red Subscribe button on any of the video pages).

If you want to be notified every time we post a new video, click on the bell that is next to the subscribe button on Channel homepage.

Then, click the "All" bell.

That's all there is to it. You will now get an email notification every time a video is posted.

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2020 Disability Advocacy Day

Mark your calendars!  Make certain your voice is being heard by joining us for the 2020 Disability Advocacy Day in Madison on Tuesday March 24th! It's a day designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives.  Registration and additional information will be coming in January.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For November, we shined the spotlight on Tasha. As someone who has always wanted to make a difference in her community, she has worked with multiple groups of people who are in need. Her current job has made her realize how important self-determination is for everyone.  Stop by her Member Spotlight to get to know Tasha.

This month, we're shining the spotlight on Phillip.  This Oscar trivia extraordinaire has become more involved in self-determination in recent years.  He encourages people not to be afraid to advocate for himself/herself.  Stop by this month's Member Spotlight to get to know Phillip.

Who should we shine the spotlight on next?

128 Stacy’s Journal

"Can you imagine your life without a computer? Most people now literally spend hours and hours a day on a computer. Although computers can open many great opportunities for people with disabilities, accessing them can often present many challenges."  In November's entry, Stacy discussed how the way she accesses the computer has changed over the years and how new technology she recently got may replace her keyboard in the future.


"The holiday season brings on different kinds of emotions for everyone. There are many different ways to deal with these."  In this month entry, Stacy talks about how the holiday season can bring on a mixed bag of emotions for many people. She opens up about some of her personal emotions and discuses how she tries to deal with them.  Do you sometimes have a hard time during the holidays? What helps you get through it?


We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Wheelchairs on Aircraft: There have been countless challenges with airline accessibility in recent years. Read about a study that the U.S. Access Board doing to assess the feasibility of equipping aircraft with restraint systems so that passengers can remain in their wheelchairs on flights. 
  • Achieving Health Equality:  When it comes to understanding the lives and health experiences of people with IDD, there is still a lot we do not know.   Two reports were developed to address the gap.  Learn what these reports include.
  • Cross-cultural Resources for the Direct Care Workforce:  Nearly half of all individuals dually eligible for Medicare and Medicaid receive help with personal care, such as bathing, dressing, managing medication, and other long-term services and support.  Check out  these resource briefs developed to help providers meet the cultural needs and preferences of dually eligible individuals.
  • Transportation Grant Opportunity:  The Federal Transit Administration has announced the Mobility for All Pilot Program.  This grant program will fund projects that enhance transportation connections to jobs, education, and health services for older adults, people with disabilities, and people with low income.  Applications due January 6th.
  • The Impact of Climate Change:  Climate change effects everyone, but some say the disability community is the most vulnerable to things such as wildfires, hurricanes and air pollution.  Learn what people think could be done to help.
  • Voting Barriers:  Every adult should be able to vote, but various barriers continue to prevent people with disabilities from doing so.  Find out what advocacy groups are doing to address these issues.
  • Hate Crimes on the Rise:  Recently released data indicates that hate crime incidents targeting people with disabilities are on the rise.  Read about the specifics.
  • Roommate Matching Service:  An online service that's believed to be the first of its kind is helping people with developmental disabilities find compatible roommates and settle into homes independent from their families. Learn how this service works.
  • Record High Representation: More characters with disabilities are set to appear on prime-time TV this season than ever before. Read about how while this is great news, people with disabilities are still way underrepresented on TV.
  • New Law Helps Voters with Disabilities:  Governor Evers recently signed a bill into law  that removes the requirement for people who are unable to say their name and address because of a disability.  Learn what's now accepted.
  • State Receives Funding for Housing:  It was recently announced that Wisconsin will get more than one million dollars to provide people with disabilities affordable housing.  Find out how the money will be used.  

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96 Self-Determination Network News:

October 2019

Connect Share | Learn http://sdnetworkwi.org/  

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Join the Conversation!

We were so excited to see many of you again at this year’s Self-Determination Conference. What was your favorite part? What were some things that you learned? Do you have a neat story from the conference? Did something really inspire you?  Let's keep the conversation going!  Share your comments, questions, and ideas in this discussion!

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At this year's conference, with support from an amazing team of people from different organizations, four self-advocates rolled out the Self-Determination Channel.  You can watch the trailer below.  We encourage you to watch, like, and comment on all the videos.  Don't forget to subscribe to the channel and share it with your family and friends!

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We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For October, we shine the spotlight on Jean. With a lengthy résumé highlighting her advocacy efforts, now retired, she continues to help write the story of the revolution in disability access, rights, and choices.  Stop by this month's Member Spotlight to get to know Jean.

128 Stacy’s Journal

"There will probably always be roadblocks and detours people with disabilities to overcome. Life is full of detours and roadblocks for everyone—not just those with disabilities. It’s hoping we handle and persevere through them that shows a person’s character!"

In this month's entry, Stacy talks about the accessibility roadblocks people with disabilities still face. Have you had similar experiences?  We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Get Involved:  Kurt posted about an awesome opportunity to help plan next year's Autumn Ability Fest.  Find out how to get involved!
  • Annual Report: The Wisconsin Board for People with Developmental Disabilities has released its annual report.  Learn which two areas they focused on.
  • Internet Essentials:  According to a recent study, people with disabilities are less likely to use the Internet than any other group.  Read about how Comcast is trying to make Internet affordable to everyone.
  • Take Survey:  The NIDILRR-funded Collaborative on Health Reform and Independent Living (CHRIL) is looking for adults with disabilities to complete an online survey about health insurance and health care services. Take the survey today.
  • Outdoor Wheelchairs Available:  Hiking is a common outdoor in Wisconsin.  Now people who have mobility issues can experience the beauty of  the outdoors  like never before. Read about the 15 all-terrain outdoor wheelchairs available to people in Wisconsin.   
  • Straw Ban:  The city of Madison is considering fining restaurants that give out plastic straws unless a customer asks for one first. Find out why the Disability Rights Commission doesn't support it.
  • Disability Employment Awareness Month:  President Trump proclaimed October as National Disability Employment Awareness Month.  Learn what the proclamation talks about.
  • Autism Insurance Coverage:  Thanks to a new rule, all 50 states and Washington, D.C. have mandates that require some level of insurance coverage for the treatment of autism.  Read about what's now required to be covered.

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

     

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96 Self-Determination Network News:

September 2019

Connect Share | Learn http://sdnetworkwi.org/  

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Hurry!  Registration Closes Friday!

The 2019 Self-Determination Conference will take place October 14th-16th at the Kalahari Resort in Wisconsin Dells.  The Conference empowers people with disabilities in Wisconsin to have more control over their lives. Technology is constantly evolving and so is the Self-Determination Conference. Join us as we learn ways to live healthier, happier and more productive lives.  Registration closes this Friday, September 27thRegister today!

 

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“Scotland Reports” from Lynn Breedlove

In early August, Lynn Breedlove represented In Control Wisconsin at an International Disability Congress in Glasgow, Scotland. He presented highlights of his paper entitled “Self-Direction Worldwide: Contrasting Beliefs and Their Impact on Practice” and attended several workshops focused on self-direction. He was the U.S. representative in a half-day brainstorm with self-direction advocates from 9 countries focused on the current state of self-direction around the world.  He is writing a series of articles for the SD Network about what he learned.  Today, we are pleased to share the second in his series.  Join the conversation: Please share comments, and thoughts with one another using the network. 

Read Scotland Report #2

Read a summary of “Self-Direction Worldwide”, with a link to the full paper

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For September, we shine the spotlight on Roxanne. When she isn’t traveling around the world, spending time with family and friends, reading, or gardening, she works with people teaching them about Self-Determination and Self-Directed Supports.  Stop by this month's Member Spotlight to get to know Roxanne.

128 Stacy’s Journal

"Many people my age have friends from moms’ groups, friends from their kids’ activities, friends from a volleyball league or other activities. While I’ll probably never friends from situations such as those, I’m incredibly fortunate to be friends with so many people who made such a profound impact on my life. It really does take a village, and I’m truly blessed to have an outstanding village of people who continue to support me! "

In this month's entry, Stacy talks about her special village of people who continue to support her. Who's in your village?  We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Public Comment on Guidelines for Onboard Wheelchairs:  The U.S. Access Board has released for public comment advisory guidelines for wheelchairs used on commercial passenger aircraft during flight.  Comments due October 21st.  Let your voice be heard!
  • Federal Program Extended: For the third time this year, additional funding will keep alive a federal program that moves individuals with disabilities from institutions into the community. Find out how this money will help, but why advocates are concerned.
  • Delay of Electronic Verification Visit: The Wisconsin Department of Health Services has been granted an extension which pushes the Electronic Visit  Verification (EVV) implementation date back into 2020.  Learn what EVV is about.
  • Exercise and Fitness for All Act: Three U.S. Senators have introduced “The Exercise and Fitness For All Act” to improve access to fitness equipment and classes for people with disabilities.  Read about what this bill would include.
  • Assistive Technology Brief:  The Administration for Community Living (ACL) has released a new Issue Brief on Assistive Technology. Learn what the brief includes.
  • Assistive Robots:  Assistive robots are growing in popularity.   Read about how they are helping people with disabilities be more independent.  
  • Emergency Preparedness:  Emergency preparation is important for everyone. However, older adults and people with disabilities often face additional challenges during emergencies.  Learn about some things to consider when creating a emergency plan.
  • Peers as Caregivers:  A unique program in Washington D.C. teaches people with disabilities to be care providers for their peers. Find out how this program works.
  • Call for Presenters:  Applications to present at the Circles of Life Conference, May 2020! Parents, family members, providers or anyone who has ideas and wisdom to share is encouraged to apply!   The deadline for proposals is October 1st.

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

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