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Category: Network News

96Self-Determination Network News:

 December 2017

Connect Share Learn http://sdnetworkwi.org/  

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InControl Wisconsin wants to take a minute to wish everyone Happy Holidays!  We really appreciate all of our Network members and Sponsors.  We couldn't keep this Network going with you!

This is the season of giving! Our sponsors help us out in so many ways. Learn about how you can support the Network.

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For December, we shine the spotlight on Carrie.  Between being the mother to five children and her job organizing events for IRIS participants, free time is rare for this busy lady.  Stop by this month's Member Spotlight to get to know Carrie.

128 Stacy’s Journal

"Dreams energize our imagination. They give us a glimpse of what in some cases is the possible. It’s nice to dream, but we have to remember it’s truly just a dream!"  In this month's entry, Stacy shares how while dreams can be fun to have, they can also sometimes be a reality check.  We encourage you to share your thoughts and experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Vacation Rental Accommodations:  More and more  vacation accommodation websites are making efforts to be accessible for people with disabilities. Learn about how one lodging rental company is coming out with a new website that will accommodate people with various types of disabilities.  
  • Dental Care Struggles:  The National Council on Disability has put out a brief about the concerning lack of dental care for people with disabilities.  Read what recommendations the Council suggests.
  • Website Accessibility:  New accessibility guidelines for government websites will take effect in January.  Find out what the new guidelines will mandate.
  • Problems with Fake Service Animals Continue:  Untrained service animals continue to be a problem across the country. Learn what service animal owners feel is needed to prevent these laws from being exploited.
  • Medicaid Summary:  In the Fall of 2014, the Center for Medicaid and CHIP Services (CMCS) conducted a Nationwide Adult Medicaid Consumer Assessment of Healthcare Providers and Systems (CAHPS) survey of Medicaid enrollees to attain national and state-by-state measures of access, barriers to care, and experiences with care across delivery systems and major population subgroups. Find out what the survey found.
  • Check it Out:  The Minnesota Department of Human Services created an awesome video series about supported decision making.  Check it out!  

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96 Self-Determination Network News:

November 2017

Connect | Share | Learn | http://sdnetworkwi.org/  

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1.jpgLet's keep the conversation going! Over 950 people attended the 10th annual Self-Determination Conference earlier this month.  It was great to see so many of you there. There were a ton of great sessions and events this year. What was your favorite part? What were some things that you learned? Do you have a funny story from the conference? Did something really inspire you?  What suggestions do you have for next year?

Share your comments, questions, and ideas in this discussion!  

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We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:

David Pinno

Sue Urban

Deb Wisniewski 

Abigail Tessmann

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196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Watch:  Watch this excellent short video done by The Arc designed to speak directly to people with developmental disabilities about supported decision-making and getting help making decision.
  • Caregiver Act:  A bill that would address the needs of family caregivers is gaining support. Learn how this act would help families.
  • Unique Fashion Line:   More and more fashion designers are designing clothes for people with disabilities.  Find out which popular designer recently launched an adaptive clothing line.
  • Accessible Airport Kiosks:  One airline has incorporated new technology into their self-service kiosks to ensure they are accessible to all travelers. Read about these new kiosks.
  • States Tighten Leash on Service Animals:  A growing number of states are enacting laws designed to keep people from passing off their pets as service animals. Learn what states are doing.
  • Smart Home Products Increase Independence:  Smart home products are often marketed for their convenience, but the technology also can help people with disabilities become more independent.  Read about how thousands of technology products have opened up a world of possibilities for people with disabilities.
  • Building Full Lives Grant:The Wisconsin Board for People with Developmental Disabilities in partnership with In Control Wisconsin is offering a great opportunity for organizations Interested in supporting individuals with disabilities to Build FULL LIVES in the community.  Applications due November 17th.
  • Interesting Court Case:  This in an interesting case about glass-front vending machines not being accessible.  Find out why the Supreme Court declined to review the case.
  • Successful Aging:  As people age, they may experience new and chronic health conditions that make it difficult to participate in activities at home, at work, and in the community.   A study showed that there are four  areas that people felt were important for successful aging with a physical disability. Learn what the areas are.
  • ABLE Account Annual Contribution Limit:   It was recently announced that  the total annual contribution limit to an ABLE account will increase in 2018.   Find out how much it will increase.
  • Polling Place Accessibility: A new report found that less than 20% of polling places were fully accessible during the 2016 election.  Read about what's being done to try to correct it.
  • Hunting Bill:  The State Assembly passed a bill that would allow people with disabilities to hunt from a car with a lift.  Read about the bill.

128 Stacy’s Journal

When most people hear the word “segregation,” they automatically assume it’s a negative thing. However, at times, that’s not the case. It’s human nature for people to associate with others like them. In this month's entry, Stacy discusses how, as a person with a physical disability, she often struggles to fit in within the disability community.  Have you had similar feelings?  We encourage you to share your thoughts and experiences as well.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

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Stop By and Say Hi!

More than 600 people will soon gather at the annual Self-Determination Conference.  This year's theme is "Self-Determination in Full Color: Celebrating You... Mind, Body and Spirit."  Participants will learn ​more ​about ​self-determination ​and ​self ​directed ​supports ​so ​they ​can ​live ​independently, ​be ​members ​of ​their ​communities, ​and ​use ​public ​funds ​efficiently.  We encourage you to look at the brochure to see all the interesting sectionals the conference will offer.  InControl Wisconsin will have a booth in the exhibit hall.  If you're going, be sure to stop by and say hi!  Registration closes on October 20th.  Register today!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For October, we shine the spotlight on Mike.  This self-advocate began leading a self-determined life at a very young age.  When he’s not busy volunteering for the Wisconsin Augmentative Alternative Communication Network or attending conferences, he enjoys catching up on his favorite TV shows.  Stop by this month's Member Spotlight to get to know Mike.

Who should we shine the Spotlight on next?

128 Stacy’s Journal

Having somebody who has a significant disability in a family has its challenges.  Extended family has a choice whether or not to accept the circumstances the person has.  In this month's entry, Stacy discusses how her extended family not only accepts, but embraces her unique challenges.  We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Compassionate Allowances List Grows:  New conditions have been added to the compassionate allowances list for U.S. Social Security.  Learn what the new conditions are.
  • Caregiving and Dementia: The Administration on Aging put out a special newsletter on dementia care and advocacy topics.  Read and learn about some helpful tips.
  • Scholarship Opportunity:  The American Association on Health and Disability is accepting applications for the Frederick J. Krause Scholarship for undergraduate (junior/senior status) and graduate students with disabilities who are majoring in a field related to disability and health.  Applications due November 15th.  Find out how to apply today!
  • Google Wants Help:  Google is looking to the public in an effort to make navigating the world easier for people with disabilities.  Read about how you can help.
  • Accessibility Hub:  A first of its kind digital hub is designed to address needs of over 1 billion people facing disability, digital literacy or aging related barriers.  Learn about this unique hub hopes to provide.
  • Results are In:  The National Association of States United for Aging Disabilities administered a survey of state agencies that deliver Long Term Services and Supports.  Find out what the survey found.
  • Home Care Worker Challenges:  According to a new national report, Wisconsin is expected to need an additional 20,000 home care workers  by 2024.  Read about why this is so frightening.
  • Poor Wages Hurt Care Worker Longevity:  A new report reveals that direct care workers can't afford to stay in their jobs.  Learn about why the average wage isn't enough to live on.
  • Criminal Justice and the ADA: The Justice Department issued guidance earlier this year to facilitate compliance with the Americans with Disabilities Act (ADA) during interactions criminal justice entities.  Read about what the guidelines include.
  • Estimated Social Security Increase:  It's estimated  that people who receive Social Security could see an increase in 2018.  Find out what the estimate is based on.
  • Sidewalk Requirements:  A new paper explains the historical and modern state of the ADA's legal influence on sidewalks and answers important legal questions about the duties of local communities and governments under the ADA.  Learn about available resources for businesses and governments to use in planning for accessible sidewalks.
  • Supported Decision Making:  The Council on Quality and Leadership recently issued a paper about applying approaches of Supported Decision Making in the US.  Read about practices and benefits of Supported Decision Making.
  • Best Cities for People with Disabilities:  Wallethub released its annual "Best & Worst Cities for People with Disabilities" report.  Find out which two Wisconsin cities are in the top 150 best cities.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

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Time is Running Out...Register Today!

There is still time to register for the 10th annual Self-Determination Conference. This conference ​works ​to ​empower ​people ​with ​disabilities ​in ​Wisconsin ​to ​have ​more ​control ​over ​their ​lives. ​More ​than ​600 ​people ​each ​year ​participate ​in ​the ​conference ​to ​learn ​more ​about ​self-determination ​and ​self ​directed ​supports ​so ​they ​can ​live ​independently, ​be ​members ​of ​their ​communities, ​and ​use ​public ​funds ​efficiently. ​The ​conference ​participants ​include ​people ​with ​disabilities ​and ​their ​family ​members, ​direct ​care ​providers, ​and ​professionals ​from ​Wisconsin’s ​disability ​community.  View this year's conference brochure and register today

Diehard Award Nominations

Do you know someone who goes above and beyond to improve community supports for individuals with disabilities? Do they support self-determination? Nominate them for a Diehard Award! A Diehard is an individual who has made a significant contribution to the advocacy work here in Wisconsin. A diehard is someone with a steadfast commitment to the principles of community integration and self-determination. Diehards go above and beyond to make sure everyone is counted. Awards will be presented at the Self-Determination Conference on November 3rd at the Kalahari Resort and Conference Center in the Wisconsin Dells. Nominations are due on Friday, October 6th. Nominate someone today!

Stacy’s Journal128

Lately, it seems like all of the news coverage has been about the catastrophic storms that are happening around the world. Back to back major hurricanes in the south, wildfires in the west, earthquakes in Mexico… it seems endless. This month, Stacy discusses what extra steps people with disabilities have to take when Mother Nature throws curve balls.  We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Care Homes of the Future: As populations around the world begin to live for longer than they ever have, their individual needs related to their health become even more complex which means is that care homes need to use greater amounts of, and more intelligent, assistive technologies.  Learn what else research suggests.
  • Special Needs Trust Flexibility:  Thanks to a new law, people with disabilities can establish special needs trusts for themselves.  Read how this will help people save money.
  • Self-Driving Wheelchairs:  Researchers and robotics experts say they have developed cost-effective technology that would allow power wheelchairs to drive themselves. Find out what these chairs are expected to cost.
  • The Eclipse in Real Time:  The solar eclipse that happened last month was viewed by millions of Americans.  Learn how thanks to technology people with visual impairments wee able to experience the eclipse.
  • Automated Home:  Although initially developed by engineers to recreate sci-fi fantasies, smart homes in modern times are important tools for increasing agency and accessibility for elderly people and people with disabilities.  Read about how new technology is helping people live more independent.
  • Call for Proposals:  Proposals to present at the 2018 National ADA Symposium are now being accepted.  The submission deadline is September 30th.
  • Emergency Preparedness:  For older people and people with disabilities, emergency preparation is a must. The Administration for Community Living has put together resources for how to prepare for an emergency.
  •  Voters with Disabilities: New data has been released on voting experiences for people with disabilities.  Learn what the data showed.
  • Housing Barriers:  As people with developmental disabilities increasingly live in community-based settings, a new report finds that they face a multitude of barriers in obtaining housing.  Read about what's being done to try to resolve these.

Upcoming Events128

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96 Self-Determination Network News:

August 2017

Connect Share Learn http://sdnetworkwi.org/  

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Early Bird Registration Ends September 1st...Register Today!

Registration is now open for the 10th annual Self-Determination Conference. This conference ​works ​to ​empower ​people ​with ​disabilities ​in ​Wisconsin ​to ​have ​more ​control ​over ​their ​lives. ​More ​than ​600 ​people ​each ​year ​participate ​in ​the ​conference ​to ​learn ​more ​about ​self-determination ​and ​self ​directed ​supports ​so ​they ​can ​live ​independently, ​be ​members ​of ​their ​communities, ​and ​use ​public ​funds ​efficiently. ​The ​conference ​participants ​include ​people ​with ​disabilities ​and ​their ​family ​members, ​direct ​care ​providers, ​and ​professionals ​from ​Wisconsin’s ​disability ​community.  Early bird registration ends on September 1st. Register today! 

Diehard Award Nominations

Do you know someone who goes above and beyond to improve community supports for individuals with disabilities? Do they support self-determination? Nominate them for a Diehard Award! A Diehard is an individual who has made a significant contribution to the advocacy work here in Wisconsin. A diehard is someone with a steadfast commitment to the principles of community integration and self-determination. Diehards go above and beyond to make sure everyone is counted. Awards will be presented at the Self-Determination Conference on November 3rd at the Kalahari Resort and Conference Center in the Wisconsin Dells. Nominations are due on Friday, October 6th. Nominate someone today!

Annual Caregiver Award Nominations

Do you know a caregiver or team that deserves to be honored for the great work they do?  The Wisconsin Long-Term Care Workforce Alliance’s Annual Caregiver Awards are the only statewide recognition of these outstanding individuals and teams working tirelessly in all service locations.  Nominations are due this Friday, August 18th. Learn how to nominate someone deserving!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.  For August, we shine the spotlight on Barb. When she’s not traveling the world or reading mystery novels, she is busy helping people with self-direction.  She is a firm believer in using this Network as a resource to connect with others. Stop by this month's Member Spotlight to get to know Barb.

Who should we shine the Spotlight on next?

128 Stacy’s Journal

Most people don’t think twice about stepping off a sidewalk curb or running up a flight of stairs to get to their favorite restaurant. For people with disabilities, simple tasks such as these often present many challenges. In this month's entry, Stacy discusses how laws such as the Americans with Disabilities Act have greatly improved life for people with disabilities, but, yet, there's much room for improvement.  We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Wisconsin's Direct Care Worker Shortage:  It's no secret that Wisconsin has reached a crisis level shortage of direct care workers.  Find out why advocates feel that the 2% increase in long-term care isn't enough.
  • The 27th Anniversary of the ADA:  July marked the 27th anniversary of the Americans with Disabilities Act (ADA).  This publication put out by the Department of Justice highlights the enforcement efforts of the law this year.
  • Call for Presenters:  Proposals to present at the 2018 Circle of Life Conference are now being accepted.  Proposals are due October 5th.
  • Symbol of Access Controversy:  The international symbol of access was redesigned a few years ago.  Learn about the controversy surrounding the new symbol.
  • Uber Accessibility Lawsuit:   Uber was recently sued by the Equal Rights Center, a civil rights nonprofit based in Washington, D.C., for violating the Americans with Disabilities Act.  Find out why.
  • Gaming Accessibility:  Gaming is becoming more and more popular. Read about how one nonprofit organization is aiming make video games accessible for people with disabilities.
  • Test Driving:   Buying a new car is both exciting and a big decision for most people.  Learn how a recent court ruling confirmed that individuals who use hand controls to operate cars and trucks have equal right to test drive vehicles before purchasing them. 

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: July 2017


By SD Network, 2017-07-13

96 Self-Determination Network News:

July 2017

Connect Share Learn http://sdnetworkwi.org/  

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Registration is now open for the 10th annual Self-Determination Conference. This conference ​works ​to ​empower ​people ​with ​disabilities ​in ​Wisconsin ​to ​have ​more ​control ​over ​their ​lives. ​More ​than ​600 ​people ​each ​year ​participate ​in ​the ​conference ​to ​learn ​more ​about ​self-determination ​and ​self ​directed ​supports ​so ​they ​can ​live ​independently, ​be ​members ​of ​their ​communities, ​and ​use ​public ​funds ​efficiently. ​The ​conference ​participants ​include ​people ​with ​disabilities ​and ​their ​family ​members, ​direct ​care ​providers, ​and ​professionals ​from ​Wisconsin’s ​disability ​community. Register today! 

Changes to Medicaid and the AHCA

The Senate has delayed its vote on the American Health Care Act (AHCA) until after its summer recess. There is a lot at stake for Wisconsin in this vote. The AHCA cuts federal Medicaid funding by 25% over 10 years and eliminates key health care protections for children and adults with disabilitiesEstimates indicate Wisconsin could lose $1 billion in funding and put many essential programs and supports for children/adults with disabilities and seniors at risk. These significant cuts to Medicaid mean cuts to Wisconsin programs like Family Care, IRIS, the Children’s waiver, BadgerCare, mental health programs like CCS, Katie Beckett, SeniorCare, autism services, therapies like OT, PT and Speech, personal care, supports provided in schools and even Aging and Disability Resource Centers. Many of these are “optional services” in Medicaid and are at significant risk of being cut or eliminated.  We encourage people to continue to contact the Wisconsin Senators to ask questions and share their thoughts about this bill.

128 Stacy’s Journal

Whether it’s going to the store to get milk, going to work, going to a doctor apportionment, or meeting friends for dinner, most people get out of their house on a daily basis. For many people with disabilities, going out isn’t always easy. In this month's entry, Stacy discusses how transportation is often one of the biggest barriers she faces. We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Guardianship Survey:  The Wisconsin Board for People with Developmental Disabilities is conducting a survey in hopes of gathering information from a variety of stakeholders about their knowledge of and experience(s) with Wisconsin's adult guardianship system and children transitioning into adulthood to assist the  Board in better understanding which issues should be prioritized for short-term and long-term planning and action.  The survey closes August 1st.
  • Caregiver Awards: Do you know a caregiver or team that deserves to be honored for the great work they do?  The Wisconsin Long-Term Care Workforce Alliance’s Annual Caregiver Awards are the only statewide recognition of these outstanding individuals and teams working tirelessly in all service locations.  Nominations are due August 1st.
  • Big City Challenges:  Even with the American with Disabilities Act (ADA) and federal legislation to protect the people  with disabilities, studies find that too many American citizens are restricted in where they can go or live due to lack of handicap-accessible accommodations. Find out what many people feel is causing this.
  • New Technology Eases Transportation Issues:  Public transportation often causes difficulty and stress for people with disabilities. Read about how modern technology firms are working to change this. 
  • Update to Building Accessibility Standards:  The  International Code Council recently released an update to 2009 Accessible and Usable Buildings and Facilities standards that provide greater accessibility to buildings for persons with physical disabilities and incorporates new elements of building design.  Learn what the new standards include.
  • Pros and Cons of On-Demand Services:  These days, people can do anything from make doctor appointments to get groceries or prepared meals delivered with just a click of a button.  While these on-demand services are often very for people with disabilities, they  often come with  some limitations.   Read about the benefits and risks of three common on-demand services.
  • MCOs and Consultant Agencies Selected for Dane County:  The Wisconsin Department of Health Services recently announced the managed care organizations selected to serve Family Care members and the IRIS consultant agencies that intend to serve participants in the IRIS program in Dane County.  Find out which care organizations and consultant agencies were selected.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: June 2017


By SD Network, 2017-06-19

96 Self-Determination Network News:

June 2017

Connect Share Learn http://sdnetworkwi.org/ 

2017 Disability Pride Fest

The 5th annual Disability Pride Festival will be held on Saturday July 29th from 12p.m. to 5p.m. at Tenney Park in Madison, near where the Yahara River empties into Lake Mendota. Each year, the festival brings together artists, performers, advocates, and organizations to celebrate the contributions made by people with disabilities to the local community. Well-known local talent such as Tara Ayres, Tani Diakite and the Afrofunkstars, First Wave performers Lewis Elder, and others have graced the stage in previous years. This year, Gaelynn Lea, winner of NPR’s Tiny Desk Competition, is coming back.  New groups of performers will be joining the fun as well.  Visit the website for more information!

Changes to Medicaid and the AHCA

Members of the U.S. Senate are working behind closed doors on their own version of American Health Care Act (AHCA).  The U.S. Senate is preparing to vote on the AHCA within the next two weeks. There is a lot at stake for Wisconsin in this vote. The AHCA cuts federal Medicaid funding by 25% over 10 years and eliminates key health care protections for children and adults with disabilitiesEstimates indicate Wisconsin could lose $1 billion in funding and put many essential programs and supports for children/adults with disabilities and seniors at risk.

There have been no public hearings held on these major proposed changes. These significant cuts to Medicaid mean cuts to Wisconsin programs like Family Care, IRIS, the Children’s waiver, BadgerCare, mental health programs like CCS, Katie Beckett, SeniorCare, autism services, therapies like OT, PT and Speech, personal care, supports provided in schools and even Aging and Disability Resource Centers. Many of these are “optional services” in Medicaid and are at significant risk of being cut or eliminated.  

In addition, the Senate is also debating things such as even larger cuts to Medicaid, weakening protections for people with disabilities and other pre-existing conditions by allowing states to charge them more for health care, and allowing states to stop providing Essential Health Benefits (rehabilitative services and devices, mental health services, prescription drug coverage, etc...).

There is going to be a Community Conversation About Changes to Medicaid in Wisconsin held in Oshkosh on Thursday evening of this week. We encourage people to attend and/or contact the Wisconsin Senators to ask questions and share their thoughts about this bill.  

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.  For June, we shine the spotlight on Ann.   This enthusiastic IRIS Consultant just won an award for Customer Experience/Living the Brand.  She encourages people to be creative and to dare to dream.  She enjoys watching people light up when they start discovering life’s possibilities.   Stop by this month's Member Spotlight to get to know Ann.

Who should we shine the Spotlight on next?

128 Stacy’s Journal

Ever want just one day where everything goes right? In this month's entry, Stacy shares how she was bound and determined to make that day happen, but, sometimes, life throws you unexpected curves.  We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Inclusive Design:  Making sure that websites and apps are accessible to people with disabilities has become a big emphasis.  Learn the difference between "accessibility" and "usability" when it comes to websites and apps, and what things developers have to think about when creating them.
  • Long-Term Care Survey:  The Waisman Center is conducting a WI Adult Long Term Care Survey.  Take the survey now.
  • Accessibility of Fitness Centers:  A recent study found that people with physical disabilities have limited opportunities to participate in physical activity.  Read about the factors causing this.
  • Health Care Kit:  The Wisconsin Board for People with Developmental Disabilities has developed a Self-directed Health Care Kit designed to help individuals with developmental and intellectual disabilities advocate for their own health care.  Check it out.
  • Disability Statistics:  A report recently came out about disability statistics in the US.  Take a look at the statistics for Wisconsin.
  • SPARKS Grants:  Applications are now being accepted for SPARKS Grants which are mini-grants of $500 to $3,000 are designed to help community groups of people with disabilities and family members make a change in their community.  Apply today!
  • Partners in Policymaking:  Partners in Policymaking is a leadership program for self-advocates, siblings, and parents of children birth to 21 meets six times in the coming year from Friday at noon to Saturday afternoon in Madison.  Learn more and apply today! 

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: May 2017


By SD Network, 2017-05-15

96 Self-Determination Network News:

May 2017

Connect Share Learn http://sdnetworkwi.org/  

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Register now for the 4th annual Aging Empowerment Conference: Living a Self-Determined Life which will be held June 6th (full conference) and June 7th (Self-Determination Summit) at  the Glacier Canyon Lodge Conference Center at the Wilderness Resort in Wisconsin Dells.  Sponsored by InControl Wisconsin, this unique event gathers older adults, their families, and the professionals who support them and explores self-determination and empowerment in aging.  Registration closes June 1st.  Learn more and register today!

Changes to Medicaid and the AHCA

Recently, the U.S. House passed a health reform bill (AHCA) that cuts Medicaid funding by 25%, and jeopardizes the important Medicaid supports that makes it possible for people with disabilities to live and work in the community instead of being forced into nursing homes or institutions. People with intellectual and developmental disabilities rely on Wisconsin’s 20 Medicaid programs— including Family Care, IRIS, MAPP, BadgerCare—and the ForwardHealth card to stay healthy, become employed, and remain in their homes. Medicaid also provides essential therapies, equipment, special education services and equipment from physical therapists to feeding tubes, and many other services critical to people with disabilities and often makes the difference between caregivers being able to keep their jobs or leaving the workforce to care for family members. The House bill caps and cuts federal funding for the entire Medicaid program without placing any controls on rising health care, prescription, and other increasing costs. The bill suggests per capita caps and block grants to Medicaid, which will force states to make decisions on who should be covered under state Medicaid programs, whether people have to wait for services, and what community based services and supports are included.  

The version of the bill passed by the House also allows states to charge people with pre-existing conditions more for their health care and lets health insurance plans stop providing Essential Health Benefits like prescription drugs, speech, physical and occupational therapies, and mental health and substance use disorder treatments. The AHCA has now moved to the Senate, where a 13-member working group has been established to draft a Senate health care bill that will draw 51 votes of support.  We encourage people to contact the Wisconsin Senators to ask questions and share their thoughts about this bill.  

128 Stacy’s Journal

Eating is a necessity of human survival, but it’s also a very social activity. In this month's entry, Stacy discusses some of the many challenges that people with disabilities face during mealtime. We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • New Approval Process for Personal Care Services:  The process for accessing personal care services through Medicaid is changing for those who are enrolled in “fee for services” Medicaid.  Learn how this will impact people.  
  • Interesting Court Case:  An interesting court case has recently surfaced about how the McDonald's website and mobile app violate the Americans with Disabilities Act (ADA).  Find out why McDonald's is being sued.  
  • Waterproof Wheelchair:  A new wheelchair has been invented that is lightweight, waterproof, and does not require batteries.  Read about how this chair works.   
  • Economic Barriers:  A recently released report finds that 27 years after the Americans with Disabilities Act was signed into law,  people with disabilities still face many hurdles to financial inclusion.    Learn what else the report reveals.    

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96 Self-Determination Network News: 

April 2017

Connect Share Learn http://sdnetworkwi.org/  

Let Your Voice Be Heard!

The State legislature’s Joint Finance Committee has finished most of the public hearings on the 2017-2019 state budget.  There are three more public hearings remaining.  The proposed budget includes small increases for some programs such as specialized transportation and the Medicaid Personal Care program.  These increases do not reflect the actual need and are not guaranteed to stay in the budget.  This is your opportunity to let members of the JFC know what you like and what you don’t like! 

Aging Advocacy Day

Are you interested in issues affecting older adults? You’re invited to join members of the Wisconsin Aging Advocacy Network (WAAN) and others to help educate state legislators about issues affecting Wisconsin’s aging population.

On Wednesday May 17th, citizens from around the state will gather in Madison for a day of advocacy training and meetings with legislators. No experience is necessary; you’ll get the training and support you need before meeting with state lawmakers. Following the training, join others from your assembly and senate district to provide information and share personal stories with your legislators to help them understand how specific legislative policies impact older constituents.  Registration closes May 1st. Learn more and register today!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.  For April, we shine the spotlight on Kurt.   This avid water skier  is involved in a plethora of disability organizations. He believes self-determination is about lifestyle development and letting people be the best versions of themselves. Stop by this month's Member Spotlight to get to know Kurt.

Who should we shine the Spotlight on next?

128 Stacy’s Journal

For this month's entry, Stacy talks about how having a physical disability impacts a person's fashion. We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Supporting Wellness Resource:  Here's a great resource about health and wellness activities for people who have disabilities. Check it out!
  • Health and Transition Resource:  PACER's National Parent Center on Transition & Employment has a new section on their website focused on health and transition for students with disabilities.  Discover what information it has to offer.
  • Neat Photo Exhibit:  A photographer did a neat project where she  took photos and interviewed people with disabilities about what they wish others understood about their condition.  Check out the photos.
  • 'Special Needs' Controversy:  A group of celebrities are taking a stand against the term "special needs."  Learn about what they are did to demonstrate that everyone has the same needs.
  • Caregiver Career Program:  In an effort to attract and retain more nursing home caregivers, Wisconsin is launching an innovative program called the Caregiver Career Program. Find out more about the program.
  • New App:  A new dating app, Glimmer, is trying to create an inclusive space for online dating, particularly for people with disabilities.  Learn about this app.
  • Interesting Court Case:  There is an interesting court case going on about how existing 911 services are inaccessible to people who have hearing impairments.  Read about the case.
  • Accessible Kiosks:  New kiosks are available which translates customer's selections into sign language.  Find out how these kiosks work. 
  • Impact of Care Worker Shortage:  The home care worker crisis isn't  just effecting people with disabilities who live independently in their own home or apartment; it's also effecting group homes and nursing homes.  Learn what many feel needs to be done to fix it.
  • ABLE Act Improvements:  Earlier this month, a bi-partisan group of Members of Congress introduced a group of individual bills that would better the benefits provided through the ABLE Act.  Read about the proposed bills.  

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

96 Self-Determination Network News:

March 2017

Connect Share Learn http://sdnetworkwi.org/  

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dsc_5212 6 2.jpgThe keynote speaker for the 4th annual Aging Empowerment Conference: Living a Self-Determined Life, s
ponsored by InControl Wisconsin, will be the Associate State Director State Advocacy from AARP Wisconsin, Helen Marks Dicks.   The keynote address is titled, "Powerful Aging: Changing the Stories We Tell."  Relationships between generations, just like those between individuals, are often based on perceptions, both positive and negative. How powerful we are and how powerful people perceive us to be can be limited or enhanced by attitudes about aging.  On one hand, those perceptions can be empowering and enriching.  They can enable and embolden people to stand up for their beliefs in the face of fear.  They can cultivate passion and meaning out of the pursuit of lifelong goals and dreams.  On the other hand, negative perceptions, if left unchecked and unchallenged, can construct barriers that limit our possibilities and define us in terms of deficit, particularly when it comes to aging.  The challenge for each of us is to rewrite the narrative of aging and tell a story that we have written and the one we want to live.  Helen Marks Dicks will share her thoughts on how we can all express our own power as the author of our own life story and how together we can reshape perceptions of aging.

Watch for registration information for this year's Aging Empowerment Conference coming soon! 

State Budget Summary

The voices of people with disabilities and their families are so important in shaping public policy at the local, state and federal levels. Here's a great new document from People First WI that shows what's in the Governor's proposed budget for the WI disability community, along with questions you can ask your legislators and the Governor. You can also use this at Disability Advocacy Day on March 21st in Madison.  Let your voice be heard!

Changes to Medicaid and the ACA

The House Health Subcommittee of the Energy & Commerce Committee introduced the Affordable Care Act (ACA or Obamacare) replacement bill last week. A markup is the process by which congressional committees and subcommittees debate, amend, and rewrite proposed legislation. In addition, according to The Hill, the Congressional Budget Office (CBO) analysis of the bill is not ready. A CBO analysis shows items like how much the bill would cost and how many people could lose coverage.

The ACA contains many protections important to people with disabilities, including protections for people with pre-existing conditions, making sure that coverage people with disabilities need cannot be denied, and ensuring there is no lifetime limit on the amount of or cost of coverage you can receive.  This ACA bill contains major changes to Medicaid in the form of  Per Capita Caps--that will reduce funding and could result in changes to Wisconsin Medicaid funded programs like Family Care/IRIS, Katie Beckett, Children's Long-Term Supports, school and autism therapies and more. Medicaid makes it possible for people with disabilities and older adults to live in the community instead of nursing homes or institutions.  The Wisconsin Board for People with Developmental Disabilities has put together this presentation about how these changes would impact people with disabilities.  This article lists the top threats that these changes would pose to children and families.  Also, this video by the Kaiser Family Foundation does an excellent job of explaining how Medicaid currently works and what the proposed changes would mean for people. We encourage people to ask questions and share their thoughts about this proposal with their Representatives.  

128 Stacy’s Journal

In this month's entry, Stacy discusses how, just like everyone else, people with disabilities strive to be independent. She shares how a recent change in her life has been stressful, but, yet, has made her as independent as possible! We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • HCBS Statewide Transition Plan:  DHS is seeking public comment on its Medicaid Home and Community-Based Services statewide transition plan.  Let your voice be heard!
  • 2017 Employment First Conference:  The Employment First Conference focuses on things such as integrated employment.  Register for this year's conference today!
  • Tax Tips:  Regardless if they're working or not, people with disabilities and their caregivers usually have higher daily living and medical care costs. Learn about how some costs could be deductible. 
  • Worker Shortage:  Governor Walker's next budget calls for a four percent increase in the Medicaid reimbursement rate for personal care, but advocates say this won't solve the problem.  Find out why.
  • New App:  A new free app allows people who are deaf or hard of hearing to easily communicate with others.  Read about how this new app works.
  • Criminal Justice Entities:  The Department of Justice recently released a guidance statement to address various criminal justice entities regarding compliance of the Americans with Disabilities Act (ADA).  Find out what the statement ensures.
  • Update on Service Dogs:  Here's an update on a popular service dog case.  Learn how the U.S. Supreme Court ruled.
  • 2017 Circles of Life Conference:  There are several opportunities to participate in this year's Circles of Life Conference.  Find how you can get involved.
  • Disability Services Rating Site:  There's a new website where people can rate disability care and support options.  Read about how this website works.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

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