Category: Network News
Self-Determination Network News:
June 2023
Connect | Share |Learn | http://sdnetworkwi.org
State Budget Advocacy: There is Still Time to Advocate!
This week, the legislative's Joint Finance Committee is making decisions on several budget items that can impact people with disabilities. Tomorrow, June 15th, the committee will be deciding on the Department of Health Services budget. This budget includes includes many disability programs and issues including Family Care, IRIS, caregiver wages, Guardianship Support Center, and Adult Protective Services. We encourage people to call or email your legislators and let them know what priorities you want in the state budget.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Jenny. After a tragic accident changed her life, this amazing lady made the decision to be a person who aspires to live life to the fullest. She has committed her life to raising awareness for people living with paralysis and neurological disorders. Check out this month's Member Spotlight to get to know Jenny.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Wheelchair Elevation: The Centers for Medicare and Medicaid Services recently announced that Medicare will now cover seat elevation devices for power wheelchairs. Learn more about this decision.
- Health Data Report: Reliable health data is important to supporting people with intellectual and developmental disabilities. Being counted is a health equity and civil rights issue. Although data collection about people with disabilities generally has improved in recent decades, there is still not enough information on how many people with I/DD live in the U.S., how healthy they are, and what things affect their health. Take a look at the report that the Administration for Community Living put together from a summit they put together in 2022 focused on health equity, remaining gaps, and priorities for the future.
- The Wait for Services: More than half a million Americans with intellectual and developmental disabilities are currently waiting for government funding for long-term care in their homes. Find out what some states are doing to clear waitlists.
- Advocates Advocate for Significant Pay Increases for Caregivers: It's no secret that Wisconsin advocates for people with disabilities and the elderly have been tiredlessly advocating for better pay for caregivers. Learn what advocates are asking for in the state budget.
- Inclusive Stock Photos: Generally, stock photos often don't include people with disabilities. Read about how the Consumer Product Safety Commission is working to change that.
- Public Comment Needed on Diagnostic Equipment: Medical diagnostic care is essential to everyone, including people with disabilities, and often requires people to transfer onto diagnostic equipment. The U.S. Access Board has issued a notice of proposed rulemaking on standards for accessible medical diagnostic equipment. Public comments are due July 24th.
- Project SEARCH: Project SEARCH provides vocational training for people with disabilities. Learn about how the program helps high school students transition into the workforce.
- Google Maps are More Accessible: With a minor change, Google is making it more obvious to users whether businesses and other public places are accessible to people with disabilities. Find out what small change made this possible.
- WisCaregiver Connection Workforce Platform: In partnership with UW-Green Bay, the Wisconsin Department of Heath Services have developed a training program to help 10,000 caregivers become certified direct care professionals. They also have developed a new workforce platform that will connect employers and job seekers. Find out more about these new programs.
- Protype of Wheelchair Seat on Planes: Delta has introduced a prototype of a new seat that would allow airlines to let passengers to stay in their wheelchairs in the cabin. Learn more about the design.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Addressing Sexual Assault Against People With Disabilities: June 14th, 2:30p.m. to 4p.m., Online
- Webinar: Adaptive Ballroom Dancing: June 15th, 1p.m. 2:30p.m., Online
- Webinar: Peer & Family Support Program: June 15th, 2p.m. to 3:30p.m., Online
- Webinar: Accessible Transient Lodging: July 6th, 1:30p.m. 3p.m., Online
- Webinar: Easy Read Icons: July 10th, 3p.m. to 4p.m., Online
- Webinar: Basic Formatting: July 31st, 3p.m. to 4p.m., p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
May 2023
Connect | Share |Learn | http://sdnetworkwi.org
The Ongoing Caregiver Crisis
In late April, the Survival Coalition put on a press event about how the ongoing caregiver caregiver crisis is really affecting people's lives. The results of 2023 caregiver survey that the Survival Coalition recently did will be released very soon, and the preliminary results indicate the impact of the care worker shortage has significantly increased since the initial survey was conducted last year. We encourage people to keep sharing their caregiver stories with legislators and remind them that caregiving needs to be a priority in the budget.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on David. This advocate extraordinaire continues to serve his community in any way he can. When he’s not busy serving on one of the many boards he’s on, he’s appraising antiques or officiating weddings. Check out this month's Member Spotlight to get to know David.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- What self-determination means to me #SHORTS
- Why I tell my story #SHORTS
- About me #SHORTS
- Ben's Transition Story
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Five Resources to Advocate for Workforce: Momentum for policy change at the state level continues to grow dramatically for the direct care workforce. Check out these resources to help people advocate for the direct care workforce.
- Fact Sheet: Recently, the Biden administration announced the most comprehensive set of actions an administration has taken to improve care and support caregivers (including family caregivers). Learn about some of the directives to expand affordable and high-quality care and provide support for caregivers.
- Care Workforce Not Keeping Pace: Research continues to show that the size of the home care workforce isn't keeping pace with home-and-community-based services. Read about how improving access to HCBS will require not only expanded insurance coverage but also new workforce investment.
- Supporting People with Invisible Disabilities: Invisible disabilities, as the name suggests, are disabilities that are not immediately apparent to others. Learn about ways leaders can support people who have invisible disabilities.
- Ending of the Public Health Emergency: The public health emergency from COVID-19 has now ended. Learn about some of the implications this may have on Medicaid HCBS programs, including workforce challenges and reductions in access to care.
- Wisconsintes with Disabilities Could Help Workforce Shortage: People with disabilities in Wisconsin could help solve the labor shortage, but recruitment efforts often disregard the population. Find out why there's such a mismatch between employers and people with disabilities.
- Input Needed: The Centers for Medicare & Medicaid Services published a proposed rule, Ensuring Access to Medicaid Services (Access Rule) to improve access to — and quality of — Medicaid services and promote health equity across the Medicaid program. The proposed rule applies to all Medicaid services, including the home and community-based services (HCBS) that are vital to people with disabilities and older adults. Comments must be received by July 3.
- The Influence of Disability in a Changing World: Change is inevitable yet within the arc of the disability narrative we have seen profound transformations happening over years starting with civil rights to the evolution of business, representation, and a revolution through a broad cultural zeitgeist that is redefining our understanding of the disability experience. Read this interesting reflection.
- Report on Equity and Access: A new report examines current research on equity, inclusion, and access for the 61+ million individuals in the United States with disabilities in key social determinants of health including employment, transportation, healthcare, and education. Learn what it revealed.
- New Funding to Support Family Caregivers: The Administration for Community Living recently announced a new funding opportunity for an initiative to support family caregivers. Applications are June 26th.
- Advisory on Loneliness and Isolation: A new advisory notes that older adults and people with disabilities are among the populations with the highest numbers of loneliness and isolation. Find out what recommendations are suggested.
- Fall Internship Opportunity: The American Association of People with Disabilities is seeking applicants for their fall internship program. The internship program places students and recent graduates in a paid program that builds leadership skills, explores career opportunities, and enriches connections in the disability community. Applications are due June 8lth.
- Bipartisan Bill Would Eliminate Derogatory Language: A new bipartisan bill is going around that would eliminate "outdated and derogatory" language on intellectual disability from federal law. Learn more about this bill.
- Bill Focusing on Strengthening Direct Care Workforce: A group of lawmakers has introduced legislation that not only focuses on improving conditions for professional caregivers, but family caregivers as well. Find out what this bill would do.
- Improving Air Travel: For many years, flying has been challenging for many people with disabilities. Read about a bill that would track damaged mobile aids and start research on designing planes that would allow people to stay in their mobility devices while flying.
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Addressing Disability Discrimination in Health Care: Two years after the feds suggested that they were going to update regulations to prevent health care providers from discriminating against people with disabilities, but advocates are still waiting for that to happen. Read about how advocates are pressuring lawmakers to urgently update regulations related to the Rehabilitation Act.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Mental Health First Aid In The Workplace: May 16th, 1p.m. to 2:30p.m., Online
- Webinar: Getting The Services You Need From The Waiver – Participant Rights: May 17th, 1p.m. to 2:30p.m.
- Employment First Conference: May 23rd, 9a.m. to 4p.m., Kalahari Resort, Wisconsin Dells WI
- Webinar: Easy Read Text: June 5th, 3p.m. to 4p.m., Online
- Webinar: Easy Read Icons: July 10th, 3p.m. to 4p.m., Online
- Webinar: Basic Formatting: July 31st, 3p.m. to 4p.m., p.m.
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
April 2023
Connect | Share |Learn | http://sdnetworkwi.org
Survival Coalition Survey: The Face of Caregiving
2023 Disability Advocacy Day
It was great seeing so many of you at Disability Advocacy Day a few weeks ago. If you weren’t able to attend in-person, we hope you were able to call your legislators. We want to keep the conversation going. By sharing our tips about tricks, we can help one another be stronger advocates! Join the Conversation
State Budget Advocacy
Late in February, Governor Evers released his 2023-2025 budget proposal. There is one more Joint Finance Committee listening session in Minocqua on April 26th. We strongly encourage people to attend if you're able. If you were unable to attend any of the sessions in-person, you can submit comments here. The Survival Coalition put together an analysis of the proposal from a disability perspective. The Caregiver Crisis Coalition also has created a proposal that addresses many aspects of the caregiver crisis. We encourage you to use these documents while submitting your comments and talking to your legislators about what you'd like to see in the budget.
2023 Self-Determination Conference Call for Presenters
Are you interested in presenting at the 2023 Self-Determination Conference? The Wisconsin Board for People with Developmental Disabilities is seeking session proposals for Tuesday, October 17 & Wednesday, October 18, 2023. Proposals are due by noon on May 12th. Submit a proposal today!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Emily. This karaoke singing young lady keeps busy by doing all sorts of fun activities. She loves to travel and play sports. She loves participating in activities with different groups and encourages people to join. Check out this month's Member Spotlight to get to know Emily.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Human Rights: #17 Protection within the Law and Your Services
- Disability Advocacy Day/Rally at the State Capitol
- Sydney Unplugged/Disability Advocacy Day
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Seniors Taking Care of Seniors: Older workers are helping fill a labor shortage in the home-care industry that worsened during the pandemic. Read about how more retirees are taking care of their elders.
- Home Care a Sticking Point for Medicaid Spending: President Joe Biden and his administration are using the importance of personal home care as a way to fight back against some Congress members’ desire to cut Medicaid funding. Learn how the White House is trying to keep health care off the chopping block for budget cuts.
- New Fact Sheet: The Centers for Medicare & Medicaid Services (CMS) has issued a fact sheet that addresses the following areas: COVID-19 vaccines, testing, and treatments, telehealth services, waiver flexibility, hospital-at-home care, provider scope and oversight flexibility, and Medicaid continuous enrollment. Check it out!
- Valuing Family Caregivers: Care provided by millions of unpaid family caregivers across the U.S. is valued at a staggering, estimated $600 billion annually. Learn about some of the efforts underway to strengthen support for family caregivers.
- Hiring People with Disabilities: With labor shortages across the country, overlooking those who can work but need some accommodations comes at a high cost. Find out why now more than ever it's critical to hire and retain people with disabilities.
- Accessibility Professional: The Accessibility professional is not just a change agent but in fact, part of a larger tribe that sees the world through a lens of inclusivity and espouses a new cultural norm that is essential in defining the mindset of the digital economy of the here-and-now and the future of the industry. Learn about how this profession has the responsibility of driving change in the disability economy.
- Waiting Lists a Thing of the Past: A proposal in Congress would do away with Medicaid's institutional bias and guarantee people with developmental disabilities access to services in the community. Read about how a new law would eliminate waiting lists for community-based services over time.
- Massive Confusion over Ballot Assistance: Going into the April 4th supreme court election, Wisconsin voters were still confused about ballot assistance and ballot return assistance. Find out what caused the confusion.
- The Fight Against Subminimum Wages: Advocates are highlighting a system of state tax credits across the US that allow employers to pay employees as low as $3 an hour. Read about how some states have passed laws to ban subminimum wages.
- Professionalizing Caregiving: Could professionalizing caregiving be the answer to the shortage? Learn what advocates say is needed to solve the crisis.
- Lacking Data: Thousands of people in Wisconsin lose the right to vote due to being labeled "adjudicated incompetent." Learn about the state lacks a defined system to track people who receive this label.
- Municipal Clerks Week: Municipal Clerks Week is coming up the first week of May. Do you have a great municipal clerk? Nominate them today!
- Take Survey: The League of Women Voters of Wisconsin and partners are conducting a survey to learn about voters' experience during the April 4th election. Please take the survey!
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Guardianship and Voting Rights: In Wisconsin, people under guardianship retain the right to vote unless a court specifically removes the right. Check out these resources Disability Rights developed that explains how to determine if you retain or lost the right to vote, and, if you have lost the right to vote, how to petition the court to restore it.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Overview Of Accessible Formats: April 17th, 3p.m. to 4p.m., Online
- Webinar: Accessible Exterior Routes And Surfaces: May 4th, 1:30p.m. to 3p.m., Online
- Webinar: Plain Language: May 8th, 3p.m. to 4p.m., Online
- Circles Of Life Conference: May 11th & 12th, The Wilderness Resort, Wisconsin Dells, WI
- Webinar: Easy Read Text: June 5th, 3p.m. to 4p.m. Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
March 2023
Connect | Share |Learn | http://sdnetworkwi.org
2023 Self-Determination Conference Call for Presenters
Are you interested in presenting at the 2023 Self-Determination Conference? The Wisconsin Board for People with Developmental Disabilities is seeking session proposals for Tuesday, October 17 & Wednesday, October 18, 2023. Proposals are due by noon on May 12th. Submit a proposal today!
State Budget Advocacy
Late in February, Governor Evers released his 2023-2025 budget proposal. The Survival Coalition put together an analysis of the proposal from a disability perspective. The Caregiver Crisis Coalition also has created a proposal that addresses many aspects of the caregiver crisis. We encourage you to use these documents while talking to your legislators about what you'd like to see in the budget.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Stephenie. Thanks to her family’s encouragement and belief in her, this self-advocate has done so many incredible things. She believes self-determination is having a voice and a choice what happens in your life. Check out this month's Member Spotlight to get to know Stephenie.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Human Rights: #16 Rest and Do the Things You Like to Do
- Human Rights: #17 Protection within the Law and Your Services
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Proposed Change to Benefits: A new proposal from the Social Security Administration would make life easier for millions of disabled Americans whose friends or family help them out with food. Learn more about the proposal.
- Making Caregiving a Career: By 2030, more than 1 in 5 people in the United States are expected to be ages 65 and older, and nearly 70% of all adults who reach age 65 will eventually require some type of long-term services and supports. Read about how there are several caregiver occupations in the home health care industry that are growing.
- Disability Inclusion: Disability inclusion means intentionally cultivating environments where all can flourish. It means taking action to make change happen. It means including disabled consumers. While corporations are slow to latch onto the idea, read about how small steps are leading to great progress.
- Crisis Leaves People Abandoned: A member of the Madison City Council and the Dane County Board is talking about the caregiver crisis that has been affecting people with disabilities and the elderly. Learn why it's both political and personal for her.
- EVV Resources: Electronic visit verification (EVV) is required by federal law for personal care and applicable supportive home care services. Check out these resources to learn about EVV.
- Being Reliant on Caregivers: Listen to this commentary about the power dynamics at play between a care provider and recipient, and the devaluation and lack of investment in care work.
- Assistive Technology Day: On March 1, the U.S. Senate passed a resolution to raise awareness and celebrate National Assistive Technology (AT) Awareness Day. Learn what the day honors.
- Breaking Point: After warning for years of an impending collapse in the disability services system, advocates say that the crisis is here. Read about things have escalated to a dangerous level forcing providers to deny people with disabilities Care and services.
- Passing of Disability Activist: The disability community is mourning the passing of disability rights activist Judy Heumann. Learn about the integral role she had in the disability rights movement.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Person-Centered Methods For Expanding Self-Determination In Provider-Directed Services: March 15th, 2p.m. to 3:30p.m., Online
- Advocacy For Change: March 16th, 9a.m. to 4:30p.m., Concourse Hotel and the Capitol, Madison WI
- Webinar: Inclusive Imagery – Writing Alt-Text Depicting People With Disabilities And Other Marginalized Identities: March 16th, 1p.m. to 2:30p.m., Online
- Webinar: The Intersection Of Women And Disability: March 21st, 1p.m. to 2:30p.m., Online
- Webinar: COVID-19 Data On Individuals With I/DD: March 22nd, 11a.m. to 12p.m., Online
- Disability Advocacy Day: March 23rd, 10a.m. to 3p.m., Monona Terrace and the Capitol, Madison WI
- Home Health Care Services Electronic Visit Verification Forum: March 23rd, 1p.m. to 3p.m., Online
- Webinar: Person-Centered Approaches To Supporting Dignity Of Risk For People With Disabilities: March 23rd, 2p.m. to 3:30p.m., Online
- Circles Of Life Conference: May 11th & 12th, The Wilderness Resort, Wisconsin Dells, WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
February 2023
Connect | Share |Learn | http://sdnetworkwi.org
Disability Advocacy Day 2023
Mark your calendar for Thursday March 23rd! Disability Advocacy Day is a day-long event in Madison focused on connecting self-advocates with their legislators to talk about issues that matter to them. Attendees are expected to participate in the full day of activities.
School Boards Matter Forum
Many Wisconsin communities will vote for school board members in the April 4th election. School Boards have a major impact on a community. On Monday March 6th from 6p.m to 7:15p.m., the Wisconsin Disability Vote Coalition is hosting a forum about the important role of school boards. The panel includes school board members who are parents of children with disabilities. You will also receive resources and be better prepared to vote on April 4th!
Registration is required. Register here for the School Boards Matter forum via Zoom.
Captioning will be provided. To request ASL Interpreters or other accommodations, please register as soon as possible and include that on your request.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Amy. As both former Miss Wheelchair Wisconsin and Miss Wheelchair USA, this teacher has a passion for education and making policy changes that benefit all people. Check out this month's Member Spotlight to get to know Amy.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Human Rights: #14 Have the Faith You Want
- Shining a Light on Richard
- Human Rights: #15 Own the Things You Want
- 3 Tips to work with caregivers #Shorts
- Thank a caregiver in your life #Shorts
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- 2022 was a Historic Year for Disability Employment: According to a recent report, 2022 was a remarkable and histrionic year for employment for people with disabilities. Learn about how people with disabilities out performed those without disabilities.
- Program Helps Gain Work Experience: Thanks to an internship program, young adults with disabilities are getting connected with career opportunities in the Chippewa Valley. Find out what the program entails.
- Caregiver Shortage Hitting Hard: The caregiver is shortage affects almost everyone in one way or another. Read about how it's hitting LGBTQ elderly and people with disabilities really hard.
- Funding Awarded for Housing for People with Disabilities: In January, HUD announced that it would provide $24.7 million for permanent affordable housing to people with disabilities. Find out what this funding will be used for.
- Great Resources: Direct care workers, also referred to as direct service workers, provide essential supports to older adults and people with intellectual and developmental disabilities, physical disabilities, and behavioral health needs. Check out these great resources that owe strategies and information on self-direction of home and community-based services, strengthening the direct service workforce (DSW) in rural areas, and emerging strategies for states.
- Electronic Visit Verification: Electronic visit verification (EVV) is required by federal law. All states have to collect visit information using an EVV system or they won’t get their full federal funding for Medicaid. It's in soft launch currently, but find out when hard launch will start.
- State Transition Plan: The Wisconsin Department of Health Services (DHS) received final approval on its Statewide Transition Plan from the Centers for Medicare & Medicaid Services. Learn what it includes.
- Collection of Disability Stats: A recent report addresses critical gaps in national and state data related to people with disabilities by synthesizing complex data from numerous U.S. federal agencies into accessible formats. Learn what the data revealed.
- Bill to Increase Caregiver Pay: U.S. Sen. Bob Casey, chairman of the U.S. Senate Special Committee on Aging, and U.S. Rep. Debbie Dingell have introduced legislation to expand access to home and community-based services (HCBS) for adults, people with disabilities and injured workers, while increasing pay and improving benefits for in-home caregivers. Read about how this would help.
- Push to Make Transit Accessible: One in four adults in the US live with a disability; yet various public transportation continue to be inaccessible. Learn about how the Secretary of Transportation wants to make transit accessible for all.
- Future of Self-Directed Care: Self-directed care undeniably has a place in the future of home-based care. How big that place is, however, is still up in the air. Read about the benefits of self-directed. Learn about some of the benefits of self-directed care.
- President Calls to Invest in Services: President Joe Biden used his State of the Union address to double down on his plan to reinvigorate the nation's home and community-based services system. Find out what he plans to do.
- Immigrants Can Bridge Gaps: The U.S. is facing a growing crisis of unfilled job openings and high staff turnover that puts the safety of older, frail residents at risk. Read about why some experts feel that letting immigrants be care workers would work.
- Confusion about Ballot Return Assistance: As affirmed by an August 2022 Federal Court Order, people with disabilities have the right to receive assistance with all aspects of voting, including having a person of their choice deliver their ballot to their clerk or polling place. Read about how there is still confusion about this.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: One State’s Lessons Learned And Best Practices To Creating An Equitable Work Environment In State Government: February 21st, 1p.m. to 2:30p.m., Online
- Webinar On HCBS Waiver And Participant-Centered Service Planning And Delivery: February 21st, 2p.m. to 4p.m., Online
- Webinar: Accessible Parking And Passenger Loading Zones: March 2nd, 1:30p.m. to 3p.m., Online
- School Boards Matter Forum: March 6th, 6p.m. to 7:15p.m., Online
- An Untapped Funding Approach: Using Medicaid To Pay For Live-In Caregiver Housing And To Offset Wages For Care: March 7th, 1p.m. to 2p.m., Online
- Emerging Workforce Practices For Self-Direction: March 9th, 1p.m. to 2p.m., Online
- Advocacy For Change: March 16th, 9a.m. to 4:30p.m., Concourse Hotel and the Capitol, Madison WI
- Disability Advocacy Day: March 23rd, 10a.m. to 3p.m., Monona Terrace and the Capitol, Madison WI
- Home Health Care Services Electronic Visit Verification Forum: March 23rd, 1p.m. to 3p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
January 2023
Connect | Share |Learn | http://sdnetworkwi.org
Disability Advocacy Day 2023
Disability Advocacy Day will be Thursday March 23rd in Madison. We're excited that it will be back in-person! Registration opens February 1st, and we'll be sending out a message with information and a link. We hope to see you there!
Wisconsin Courts Matter in the 2023 Election Virtual Forum
| Join the Disability Vote Coalition on Zoom on Thursday February 9th 6:30p.m. to 7:45p.m. to hear from their panel of experts about why Wisconsin Courts Matter. On February 21 and April 4, Wisconsin voters will decide who serves on our courts, including an open Wisconsin Supreme Court seat. The winning Supreme Court candidate will be appointed for a ten year term. Depending on where you live, you may also vote for Court of Appeals or Circuit Court. |
| State courts make decisions that affect our rights and liberties. They address issues like voting rights, education, mental health, access to healthcare, employment rights, guardianships, and more. Join them on February 9th to make sure you are prepared to vote. |
| Click here to register for the Zoom event. To request disability related accommodations, include your request with your registration. |
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Jeremiah. With help from his support circle, this very determined self-advocat has worked his way into a great position in the federal government. Check out this month's Member Spotlight to get to know Jeremiah.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Human Rights: #9 Control Your Money
- Human Rights: #10 Free From People Hurting You
- Human Rights: #11 Decide Your Own Schedule
- Human Rights: #12 Go to School
- Human Rights: #13 Get Medicine and Help From Doctors
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Disability Language Debate: New research dives into the heated debate surrounding the language of autism and finds that preferences about how to describe those on the spectrum vary substantially depending on who you ask. Find out what options are being debated.
- Watch: Watch this great video to learn more about Project SEARCH.
- Community-Based Services Should be Mandated: A report from the National Council on Disability finds that weaknesses in home and community-based services directly contributed to “needless deaths” among people with intellectual and developmental disabilities during the COVID-19 pandemic. Find out why community based services should be mandated.
- Strengthening Support for Family Caregivers: There are about 53 million family caregivers in the US. A new report reveals new opportunities for governments to support them.
- Boost in Rural Transit Funding: Late in December, Governor Evers' office announced $5 million in rural transit funding. Learn what the funding will be used for.
- Youth Leadership Forum 2023: The Youth Leadership Forum is a week-long, overnight leadership training and career awareness program at Edgewood College for high school sophomores, juniors, and seniors with disabilities to learn leadership and self-advocacy skills. This year, it's July 9-14. Applications due February 3.
- Transportation Barriers Continue: Transportation barriers continue to one of the main hurdles to employment for people with disabilities. Read about why this is.
- Resolution Approach: Instead of constantly pushing themselves, some people with disabilities embrace a more relaxed approach to goal-setting. Learn and why some people with disabilities take a different approach to making New Year's resolutions.
- Disability Activist Aims to More Inclusive: When Saphonia Purnell was told that her child had a disability, she decided to make disability rights the center of her world. Read about how she plans to pull youth and civic leaders together with the goal of making Green Bay more inclusive and welcoming for people with disabilities.
- Community Transition Services: Community transition services help people with intellectual and developmental disabilities with their move from either an institution to a community setting, or a congregate community setting to an individual community setting. Learn about what these services can help with.
- Limit Increase for ABLE Accounts: People with disabilities can put most money into ABLE accounts starting this month. Find out what the limit now is.
- Businesses Need to Hire People with Disabilities: It's estimated that more than 15% of people in the world experience disability; yet very few companies prioritize diversity and inclusion considering disability in their initiatives. Learn about the several reasons this is.
- University Awarded Grant to Help with Caregiver Crisis: Recently, UW-Green Bay was awarded a grant from the Wisconsin Department of Health Services to help with the caregiver crisis. Learn about how.
- IRIS Advisory Committee is Recruiting: The IRIS Advisory Committee is currently looking for interested persons to apply to be on the committee. Applications due February 3. Learn more and apply.
- Long-Term Care Advisory Council Seeks Applicants: The Wisconsin Long-Term Care Advisory Council is currently looking for interested persons to apply to be on the committee. Applications due February 3. Learn more and apply.
- Family Caregiver Phone Line: The National Alliance wants to hear from family caregivers. A phone line has been setup to check on the mental health of family caregivers. Find out how it works.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Assistive Technology: January 31st, 1p.m. to 2:30p.m., Online
- Webinar: Creating And Fostering Inclusive Wellness And Recreation Programs For Individuals With Disabilities: February 9th, 1p.m. to 2:30p.m., Online
- Webinar: Wisconsin Courts Matter: Wisconsin 2023 Elections: February 9th, 6:30p.m. to 7:45p.m., Online
- Advocacy For Change: March 16th, 9a.m. to 4:30p.m., Concourse Hotel and the Capitol, Madison WI
- Disability Advocacy Day: March 23rd, 10a.m. to 3p.m., Monona Terrace and the Capitol, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
December 2022
Connect | Share |Learn | http://sdnetworkwi.org/
Disability Advocacy Day 2023
Mark your calendars! Disability Advocacy Day will be Thursday March 23rd. We're excited to announce it will be back in-person! More details will be coming after the holidays, but we wanted to be sure people save the date. We hope to see you there!
Center for Youth Voice, Youth Choice
BPDD has been working with a group of Youth Ambassadors as part of a project called CYVYC (Civic) it stands for Center for Youth Voice, Youth Choice.
The Board For People with Developmental Disabilities applied to be part of this national project. The goals of the project are: 1) to support states to promote alternatives to guardianship, so that fewer youth with intellectual or developmental disabilities (IDD) have legal guardians; and 2) to give youth opportunities to lead efforts to promote alternatives to guardianship. We are in year 2 or a 5 year project. The CYVYC project and it’s ambassadors are committed to working to promote the use of Supported Decision-Making and alternatives to guardianship for transition aged youth.
There are four ambassadors: Joran Anderson, Will Becker, Jennie Rojas, and Alesia Saffold. Ashley Mathy is mentor and Jordan also is a co-leader for the project.
About Supported Decision Making:
- Supported Decision-Making lets adults with disabilities get the help they need to make decisions while keeping all their rights.
- Supported Decision Making allows a person to identify Supporter(s) to help them get information, understand their options and tell others about their decisions.
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The Supported Decision-Making agreement lets teachers, doctors, bankers, and other professionals know that the person has given the Supporter permission to hear, receive, and talk about information with them.
Self-Determination is being able to make choices about your life.
The more choices you make in your life, the better you will become at making choices.
- Tool Kit, presentations, information sheets and materials for families: https://wi-bpdd.org/index.php/supporteddecision-making/
- Supported Decision Making Agreement form: https://www.dhs.wisconsin.gov/forms/f02377.pdf
- Self-Determination YouTube Channel: https://www.youtube.com/c/SelfDeterminationChannel
Contact Fil Clissa for more information: fil.clissa@wisconsin.gov.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Desi. This determined young lady is passionate about educating law enforcement and emergency personnel about how to interact with people with disabilities. Check out this month's Member Spotlight to get to know Desi.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Human Rights: #6 Choose your supports and services
- Human Rights: #7 Say What You Want and Express Yourself
- Pink Umbrella Theater Company
- Human Rights: #8 Talk To and Be Around People You Want
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Independent Living Support Pilot: The Wisconsin Department of Health Services is preparing to launch a pilot program in July 2023 to help Wisconsinites who are older or have a disability, and who are not eligible for Medicaid, get short-term services so they can stay independent and healthy. Learn more about this program.
- Study Finds Doctors Discriminate: In a series of anonymous interviews with 22 U.S. doctors, some admitted to refusing care to people with disabilities, making the excuse that they weren't taking on new patients. Find out what else was revealed.
- Employment for People with Disabilities Trending Up: U.S. employment statistics over the last several months show an improvement in employment rates for people with disabilities. Read about the current employment statistics for people with disabilities.
- Housing Barriers: Millions of people living in the United States are feeling the effects of one of the worst affordable housing crises in a generation. But for the growing number of people with disabilities, finding and retaining quality housing they can afford is even more challenging. Learn about the barriers.
- Family Caregiver Hospital Discharge Survey: GWAAR, in partnership with our grassroots caregivers, are conducting a survey to collect Wisconsin family caregiver experiences at the time of a loved one/care recipient’s hospital discharge. Take the survey.
- Updated Long-Term Plan Needed: 25% of adult Americans live with a disability and nearly 75% of those live with family members. Find out why advocates are trying to get legislators to understand that there needs to be a better system.
- Electronic Visit Verification Hard Launch: The Wisconsin Department of Health Service announced a date for hard launch of electronic visit verification for personal care services to begin. Find out when it is.
- Study Highlights Impact of COVID: The ongoing COVID-19 pandemic has impacted marginalized communities in many ways, especially those with disabilities and their access to health care. Learn about the impact it had on personal assistance services.
- Addressing Wages of Direct Care Workers: The direct care workforce represents a critical component of the United States employment market, yet pay remains low. Learn how states have taken a variety of actions through provider rate increases and minimum wage policies through the Medicaid program as two strategies to address recruitment and retention.
- Vaccine Resources: Staying up-to-date on vaccinations is the most important thing we all can do to protect ourselves from serious illness due to COVID-19. It’s particularly crucial for older adults and people with disabilities. Check out this list of vaccine resources.
- Dangers of Congregate Settings: In the wake of the disproportionate death toll in congregate settings during the COVID-19 pandemic, this report examines weaknesses in the home and community-based services ecosystem and outlines a roadmap to expand community living options to meet the needs of people with disabilities across the lifespan. Learn about how it can be improved.
- Public Health Emergency: The United States will keep in place the public health emergency status of the COVID-19 pandemic, allowing millions of Americans to still receive free tests, vaccines, and treatments. Read about why it was extended.
- Organizations Receive Funding: Forty-three organizations focused on home and community-based services received $12 million from the Wisconsin Department of Health Services. Find out what it will be used for.
- Self-Advocacy Fellowship: The Self-Advocacy Resource and Technical Assistance Center is now accepting applications for fellows for a one-year self-advocacy project. Applications due January 9th.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Strengthening Advocacy In The HCBS Settings Rule: Getting The Services You Need From The Waiver: December 14th, 11:30a.m. to 1p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
November 2022
Connect | Share |Learn | http://sdnetworkwi.org/
Let's Keep the Conversation Going: The 2022 Self-Determination Conference
It was another great Self-Determination Conference this year. We enjoyed seeing many of you in-person, and we're glad that people who couldn't make it could join virtually. What was your favorite part about it? Let's keep the conversation going! Share your comments, questions, and ideas.
Congratulations to the 2022 Diehard Award Winners!
We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:
- Ramsey Lee
- Emily Savage
- Jenny Felty
- Lisa Schneider
- Lisa Sobczyk
Let's Talk About Solutions to the Caregiver Crisis
During the 2022 Self-Determination Conference, InControl Wisconsin led a session about the Wisconsin Direct Workforce Crisis. We talked about “what if, what then” situations we all face as caregivers and people with disabilities that are brought on by no available paid workers. Everyone’s situation is different. Everyone’s story is important.
We want to hear from more people about their “what if, what then” scenarios. More importantly, we want you to feel open to share your ideas with each other about how to make things better.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Kate. This avid Packers fan uses self-determination to live life to the fullest. She has been involved in all sorts of advocacy activities, and she loves connecting with others and hearing their stories. Check out this month's Member Spotlight to get to know Kate.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- 2022 Self-Determination Conference Wrap Up
- Human Rights: #3 Have privacy
- Human Rights: #4: Get a Job
- Human Rights #5: Vote
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Input Needed on National Strategy to Support Family Caregivers: The National Strategy to Support Family Caregivers is intended to serve as a roadmap for better recognizing and supporting family and kinship caregivers, backgrounds, and caregiving situations. A public comment period is open until November 30.
- Digital Accessibility Challenges: Despite a surge in hiring of digital accessibility specialists, as of 2022, only 3% of the Internet is fully accessible to people with disabilities. Read about some of the challenges of making the Internet accessible.
- Assessing Worker Needs and Shortages in Rural Areas: Increasing wages and benefits, improving training and career development options, and adding flexibility to state Medicaid waiver programs to pay family caregivers for providing personal care services are just some of the things that would help with improving the personal care aide workforce in rural areas. Learn about more would help with the shortage.
- Accessibility in the Apostle Islands: Sightseeing the Apostle Islands is often challenging for people who have mobility impairments. Find out what a nonprofit group is doing to try to make it more accessible.
- Caregiver Shortage Impact on the Economy: The caregiver shortage crisis impacts every field of the economy. Read about how the crisis is affecting the economy.
- People with Disabilities Reap Benefits of Remote Work: Adults with disabilities rarely have been employed at such a high rate as now. This is in large part thanks to the pandemic. Learn why more people are having success finding remote employment.
- Service Animal Survey: The Southwest ADA Center is conducting a study on the experiences of employed people with disabilities using service animals and other assistance animals at work. Take the survey.
- Challenging Situation: As the direct care worker shortage continues, more and more people are being affected. Learn about one couple's struggle to get in-home caregivers.
- Climate Change Effects: As climate-related disasters become more common and severe, some feel that people with disabilities are being left out of the planning process. Read what a recent report found.
- Caregiver Report: ANCOR has measured the impact of the direct support workforce crisis on community providers and their ability to provide high-quality community-based services for people with intellectual and developmental disabilities (I/DD). Learn what the research found.
- The Pandemic Continues to Shape Medicaid Priorities: After substantial gains in 2020, Medicaid enrollment is expected to decline in 2020 due to the COVID public health emergency ending Take a look at the examination of the changes to Medicaid taking place across the country.
- Ageism and Ableism: Nine in 10 older adults experience everyday ageism, yet it is rarely talked about. Learn about how ageism is deeply embedded in the health care system.
- Independent Living Survey: The Independent Living Council of Wisconsin is looking for public input from consumers, stakeholders, and community partners is needed to describe the challenges and barriers persons with disabilities face. Take the survey!
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Veterans With Disabilities: An Overview Of Veteran Affairs (VA) Resources Supporting Independence And Inclusion: November 15, 1p.m. to 2:30p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
October 2022
Connect | Share |Learn | http://sdnetworkwi.org/
We're looking forward to seeing many of you next week at the Self-Determination Conference. InControl Wisconsin will have an exhibit table at The conference and we'd love it if people stop by and say hi! The week after the conference, we'll start a discussion on the Network for people to share their thoughts and experiences about the conference. Watch for an email the week after with a link and continue the great conversation!
Survival Coalition Family Caregiver Survey Results
The Survival Coalition (which InControl Wisconsin is part of) would like to thank everyone who took the Family Caregiver Survey. Here is a summary of the results. Survival Coalition recently held a press event sharing the results of the survey, and family caregivers and those with needing care shared their personal experiences and struggles about the caregiver shortage crisis. We encourage you to share your personal stories about the crisis and ask legislators to make helping family caregivers a priority in the next state budget.
November 8th Election
Wisconsin will hold a mid-term election on Tuesday November 8th. We want to thank the Wisconsin Disability Vote Coalition for providing us with the following information regarding absentee ballots.
Absentee Voting for the November 8th Election: New Guidance
Are you voting by mail for the November 8th election? Make sure you know your rights.
Ballot Return Assistance
An August 31st federal court order clarified that federal law protects the right of all disabled Wisconsin voters to receive assistance to mail or deliver their absentee ballots, or to assist with any part of the voting process.
Voters with a disability may request assistance with voting from a person of their choice, other than the voter’s employer or agent of that employer or officer or agent of the voter’s union. Voters should let their assistor know that clerks may ask their “assistor” to confirm that they are returning a ballot for a person with a disability. The voter and assistor should not have to fill out any forms or provide proof of disability.
Disability Rights Wisconsin (DRW) has guidance for voters who need assistance mailing or returning their absentee ballot:
Completing and Returning Your Ballot
Make sure your vote counts! Carefully follow the instructions for completing your absentee ballot and the certificate envelope. Make sure that your witness signs their name and records their complete address on the envelope including street number, street name, municipality, state and zip code. Clerks are no longer able to correct missing or incomplete witness address information.
Drop boxes are no longer allowed for ballot return. You will need to return your ballot by mail or deliver your ballot in person to your clerk or clerk’s office by Election Day.
- If you are mailing your completed ballot, be sure to allow plenty of time for mail delivery, to make sure your ballot arrives in time.
- If you or an assistor are delivering your ballot, it must be returned by 8 PM on Election Day.
- You may check with your Municipal Clerk to determine where your assistor should deliver your ballot. Find contact information for your Clerk on My Vote Wisconsin.
If you have questions or experiences barriers to voting, please contact DRW.
DRW Voter Hotline: call 844-347-8683 or email info@disabilityvote.org
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Jennie. This incredible self-advocate enjoys attending advocacy conferences, and she's learning about supported decision making. Check out this month's Member Spotlight to get to know Jennie.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Human Rights: #1 Live Where You Want
- Human Rights: #2 Make Your Own Choices
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Augmentitive and Alternative Communication Survey: Mike posted about an opportunity to participate in a survey about Augmentitive and Alternative Communication. Learn more about this opportunity!
- Importance of DSPs in the Workplace: Everyday, thousands of Direct Support Professionals assist people with disabilities in the workplace. In honor of DSP Recognition Week, the Department of Labor put together a webpage talking about their contributions and access to resources for them. Check it out.
- Language Change in US Code: A bill eliminating the term "mentally retarded" from the US code was recently introduced to the US House of Representatives. Learn why this is finally being done.
- Self-Direction Call for Presenters: Applications to present during a virtual self-direction conference series in 2023 are now being accepted. Applications due October 20th.
- Survey on Access to Healthcare: The Southwest ADA Center is conducting a study on the experiences of people with disabilities with their accessibility of healthcare. Take a few minutes to complete the survey.
- National Strategy to Support Family Caregivers: The US Department of Health and Human Services released a roadmap needed to better support family caregivers. Learn about some of actions suggested.
- 10 Things to Know: Millions of people use long-term services and supports delivered in home and community based settings. Find out 10 facts about long-term care.
- Hackers out of Necessity: People with disabilities often become " hackers" because they are forced to figure out how to adapt things to make things functional for them. Read this incredible essay by a son of two parents who have physical limitations comparing their navigating their world to skateboarding.
- Public Comment on Accessibility Guidelines for Transaction Machines: The US Access Board is seeking public comment on accessibility guidelines for self-service transaction machines. Give your feedback!
- Seeking Information on Person-Centered Planning for Multiple Chronic Conditions: The Agency for Healthcare Research and Quality (AHRQ) is seeking public comment about comprehensive, longitudinal, person-centered care planning for people at risk for or living with multiple chronic conditions. Comments due November 20th .
- Disability Employment Awareness Month: October is National Disability Employment Awareness Month. Read the declaration President Biden released.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: States’ Journey In Using American Rescue Plan Funding To Increase Competitive, Integrated Employment: October 11th, 2p.m. to 3:30p.m., Online
- Webinar: Accessible Camping: October 13, 1p.m. to 2:30p.m., Online
- Webinar: Disability And DEI (Diversity, Equity, And Inclusion) Panel Discussion: October 13, 1p.m. to 2:30p.m., Online
- INTEGRAL Adult Autism Conference: November 5th, Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:
September 2022
Connect | Share |Learn | http://sdnetworkwi.org/
Have you registered for the 2022 Self-Determination Conference yet? It will be held October 17-19 at the Kalahari Resort in Wisconsin Dells. Join us for one of the largest events for people with disabilities and people who support them. There is an option to attend virtually as well. Registration closes September 30. Register now!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Hannah. When this very determined lady isn’t working or volunteering in her community, you may find her doing a wide array of hobbies. Check out this month's Member Spotlight to get to know Hannah.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- Adult Changing Tables: Most people don't think twice about the ability to use a public restroom, but, for some people with different abilities, using the restroom requires accommodations that aren't readily available in most public places. Read about how one county in Wisconsin is purposing that adult changing stations be installed in county faculties with the highest foot traffic.
- Outdoor Accessibility: More people started visiting their local and state parks at the start of the COVID-19 pandemic, but who has access to those outdoor spaces? Listen to this interview to learn about what's being done to make outdoor spaces more accessible.
- Marriage Equality: For many people with disabilities, marriage is a tricky topic. Those who receive Social Security benefits often have to make the tough decision to not get legally married because they would lose their benefits they rely on. Read about how disability advocates continue to talk with legislators in hopes to make changes happen.
- Battle Continues over Rideshare Accessibility: Disability advocates continue to advocate for wheelchair accessible vehicles to be available in ride share companies such as Uber and Lyft. Learn why companies are arguing they're not required to follow the Americans with Disabilities Act.
- Increase in Representation: A new study found that representation among adults who have Autism and development disabilities is growing. Find out where the increase is being seen.
- Supplemental Security Income Benefits Fall Short: Because of a quirk in the calendar, people receiving Supplemental Security Income will receive two payments in September, but none in October. The average monthly benefit is $624 per month, but many people feel it isn't enough. Read about why many people feel it isn't enough.
- Ruling Brings Sigh of Relief: Wisconsin voters with disabilities recently breathed a sigh of relief when a US District Judge said that voters with disabilities can receive assistance returning their ballot despite a state Supreme Court ruling. Learn what the judge based the ruling on.
- New Guidance for Voters: After a federal judge ruled that people with disabilities could receive assistance returning their ballot, the Wisconsin Elections Commission issued guidance about how people can assist. Find out what it says.
- iPad Loan Program: WisTech, Wisconsin's Assistive Technology Act Program, reminds everyone that we have iPads (including a mini and an iTouch) available for short-term loans for 30 days. Learn more about this program.
- 2022 ADA Transition Plan: WisDOT has published the 2022 Americans with Disabilities Act (ADA) Transition Plan. There is a public comment period open through Friday, September 30. Your feedback is very important, and we encourage you to take the time to participate in this opportunity.
- Transportation Survey: The National Aging and Transportation Center wants to hear about challenges and promising practices in providing accessible transportation to older adults and people with disabilities. Take their survey by September 28th.
- Call for Presenters: Applications are now being accepted to present at the 2023 Circles of Life Conference. Applications due October 28th.
- Home Care Industry: Home-based care will account for the majority of an estimated 1.2 million new jobs in the direct care workforce sector from now until 2030. Find out what a new report suggests the industry will need to do in order to keep up with the growth.
- Direct Care Worker Report: A report was recently released that provides a snapshot was the direct care workforce. Take a few minutes to look at it.
- Wisconsin Voters Relieved, but Not the Case Elsewhere: While Wisconsin voters with disabilities continue to breathe a sigh of relief after a federal judge ruled that the Voting Rights Act, which allows for voter assistance, trumps state law, voters in other states continue to fight over ballot assistance. Read about how laws in other states have made it difficult or impossible for some voters with disabilities to vote.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: ADA Enforcement And Steps You Can Take Before You File An ADA Complaint: September 20th, 1p.m. to 2:30p.m., Online
- Webinar: The Voices Of People With Disabilities And Older Adults - Strengthening Advocacy In The HCBS Settings Rule: September 23rd, 1p.m. to 2:30p.m., Online
- Webinar: Building A Successful Document Accessibility Program: Strategies, Methods, And Workplans For Inclusive Programs: September 28th, 12p.m. to 1p.m., Online
- Webinar: Accessible Amusement Rides: October 6th, 1:30p.m. to 3p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.