SD Network

Self-Determination Network News: February 2024

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By: SD Network
Posted in: Network News


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Self-Determination Network News:

February 2024

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Please Help InControl Wisconsin's Caring Across Cultures Project

Are you someone who hires direct care workers?  Are you a family member of someone who receives support from a direct care worker?  Are you a direct care worker?  If so, InControl Wisconsin would like you to share a short video, audio clip, or written story of your personal experiences to help others understand the relationships between direct care workers and the people who hire them.  We will give you questions to answer, to make it easier for you.

Your stories will be used in online learning courses and/or other resources hosted on InControl Wisconsin’s website as part of the Caring Across Cultures learning platform. (See this link for more details about the project.)

Why are we asking for your help? Caring Across Cultures is a project with a goal of helping direct care workers and the people who hire them to build strong relationships. We want to help them connect and build trust across cultural differences.

What better way for someone who is thinking about hiring direct care workers to hear directly from people who are already doing it? The same is true for someone thinking about becoming a direct care worker. There’s nothing like hearing from someone first hand about what it’s like.

You can record a video or audio clip yourself with your phone (or other device) or you can ask us for help.

Here is a document to help you record your own video or audio.  This document will also tell you how to send us your finished recording: CLICK HERE

Need some help?

  • You can work on this at home. If you need some help, Contact Sarah Godfrey, at sarah@promotelocal.com / (262) 349-1968, and she will schedule a phone or video call with you.

  • Are you coming to Disability Advocacy Day, State Capital in Madison, March 15?  We will have recording equipment on site.

Ready to Do This?

Disability Advocacy Day 2024

Registration is open for Disability Advocacy Day 2024! Join us in Madison on Wednesday March 20th with other advocates from around the state and meet with your elected officials. This is a great opportunity to share your story and educate your legislators on disability rights! It's free to attend, but you must register by March 1st! Register now!

2024 Self-Determination Conference Call for Presenters

Are you interested in presenting at the 2024 Self-Determination Conference?  Session proposals for are now being accepted for Tuesday, October 22nd and Wednesday, October 23rd, 2024. This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined life. Proposals due by on May 10th. Submit an application today!

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Chad. This rock climbing fanatic volunteers his time doing all sorts of advocacy things. Check out this month's Member Spotlight to get to know Chad.   

Who should we shine the spotlight on next?

128 Stacy’s Journal







"While I don’t like being seen as overly dramatic sometimes, I’ve learned to trust my gut when it comes to my health. My uncanny instinct has saved my life more than once!"

In this month's journal entry, Stacy talks about her keen instincts when it comes to her health. She discusses why she's hyper vigilant about her health. Do you find yourself being overly concerned about your health?







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Check out the Latest Videos!

The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.

Check out the newest videos on the channel:

We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).





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Take five minutes to check out what's happening on the Self-Determination Network:

  • New Report: Kaiser Family Foundation has published a new report that provides insight into one important measure of unmet need for home and community-based services across states. Learn what the report reveals.
  • Competitive Rock Climber Proves People with Disabilities Can do Anything: For this competitive athlete, rock climbing is just a sport. Find out how this climber excels despite having limitations.
  • Long-Range Plan: The Administration for Community Living has released its 2024-2028 Long-Range Plan for the National Institute on Disability, Independent Living and Rehabilitation Research. Learn what it includes.
  • New Enrollment Process for Providers: Beginning in September 2024, the Wisconsin Department of Health Services will require all adult long-term care waiver service providers to enroll with Wisconsin Medicaid through the ForwardHealth Portal. Read more about this process.
  • Medicaid Issues to Watch: In 2024, many issues are at play that will affect Medicaid coverage, financing, and access. Read about what else to watch for.
  • Proposed Changes to the Census Dropped: After strong pushback from the disability community, the U.S. Census Bureau is no longer moving forward with a proposal that could have decreased the estimated disability rates in the country. Learn about what the proposal would have asked.
  • Businesses Continue to Fall Short: A recent survey shows that businesses continue to fall short when it comes to meeting the needs of customers with disabilities. Find out what many advocates think that the main problem is.
  • Inclusive Town: The town of Union Grove banded together behind a common goal - to give everyone an equal chance by hiring as many people with disabilities as possible. Read about what the town has done.
  • Self-Direction Inventory: Applied Self-Direction conducted an extensive national survey of self-direction programs in the United States. Check out the many interesting statistics in the report. 

128 Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

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The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

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