Category: Network News
July 2018
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Registration for the 2018 Self-Determination Conference is Now Open
Registration for the 2018 Self-Determination Conference is now open! The annual conference works to empower people with disabilities in Wisconsin to have more control over their lives. More than 600 people each year participate in the conference to learn more about self-determination and Self-Directed Supports so they can live independently, be members of their communities, and use public funds efficiently. The conference participants include people with disabilities and their family members, direct care providers, and professionals from Wisconsin’s disability community. Conference Scholarships will be available until September 7, 2018 or until funds run out. There are a limited number of scholarships available and they are determined on a first come, first serve basis. Early bird registration ends August 30. Learn more and register today!
Direct Care Worker Shortage Stories Wanted
Wisconsin lawmakers need to hear from real people about the impact the direct care workforce crisis is having on your life! Aging and disability advocates are collecting stories about the direct care workforce crisis. We want to hear from everyone—people who need direct care workers, family caregivers and direct care workers—about why direct care workers are important and how the crisis is impacting people. Please submit your story using the following form by August 1: https://goo.gl/forms/tER259RStNwNDBJJ3. If you are willing to share a picture to go along with your story, you can email photos to wiworkforcestories@gmail.com.
Transportation Survey
Transportation is consistently identified as a top concern for older adults and people with disabilities. The Survival Coalition wants to hear how your transportation options—or lack of options—impact your life. The results of this survey will be used by Survival Coalition to inform policymakers on how Wisconsin can improve transportation for older adults and people with disabilities. Please share this survey with your family, friends, and others interested in improving transportation for older adults and people with disabilities, and encourage them to take this survey by July 30th, 2018.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For July, we shine the spotlight on InControl Wisconsin board member, Terry Lynch. Having worked in the disability field for many years, he has had a vital role in supporting independent living and self-determination. Stop by this month's Member Spotlight to get to know Terry.
"The direct care shortage is nationwide, so I know I’m not alone in this battle. Agencies, nursing homes, and hospitals are struggling to find caretakers too." For July's entry, Stacy discusses her struggle to find reliable care. We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Caregiver Strain on Families: A recent survey found that the majority of family caregivers are stressed out by the demands of their family members with developmental disabilities and have deep concerns about the future. Learn why family members are stressed.
- Home Modification Grant Opportunity: Home modifications and repairs can help older adults age in place and maintain their independence. Learn about a grant intended to address barriers to optimal access to and use of home modifications that support aging in place.
- Spike in Community Living Spending: According to a recent report, there has been a major increase in government spending on home and community based services. Find out what this is largely due to.
- Medicare and Mental Health: The Affordable Care Act expanded Medicare's coverage to include important therapies to keep people with mental illnesses from needing in-patient treatment, but there are many problems with Medicare's coverage for people with mental illnesses. Read about the issues.
- ABLE Accounts in Jeopardy: Disability advocates fear that without a major change ABLE accounts could be unsustainable. Find out why.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Disability Pride Fest: July 28th, 12p.m. to 5p.m., Tenney Park, Madison WI
- Endless Possibilities Conference: August 3rd, 8:30a.m. to 3:30p.m., UW-Whitewater, Whitewater WI
- Ability Fest: October 14th, 7:30a.m. to 4p.m., Camelot Golf Course, Lomira WI
- 2018 Self-Determination Conference: October 29th-31st, Kalahari Resort, Wisconsin Dells WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
June 2018
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Call for Exhibitors for the 2018 Self-Determination Conferencee
Calling all Wisconsin organizations that support self-determination and self-directed support in Wisconsin. We encourage you to submit an application. Space is limited and only applications from exhibitors that directly support self-determination and self-direction in WI will be accepted. All applications will be reviewed by a committee and selected based on interest, needs, variety and mission of the conference. We are particularly interested in having exhibitors with innovative approaches to services and supports for self- direction including health and wellness supports for people with disabilities. Exhibit tables are open Oct. 29-31.
Calling all Micro-business owners! If you are a person with a disability and own your own micro-business apply to share your gifts and talents with over 900 people this October? Be an exhibitor at the 2018 Self-Determination Conference.
Hurry! Applications must be received no later than July 10, 2018. Space is limited, and spots are expected to run out before the deadline date.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For June, we shine the spotlight on Jane. This past Diehard Advocate award recipient is dedicated to helping people with disabilities find employment. She also encourages people to ask for help because we can all learn from one another. Stop by this month's Member Spotlight to get to know Jane.
“Never judge someone by the way he/she looks.“ Most people are taught that beginning at an early age. Having a disability often makes fitting in difficult. Some people are completely okay with not fitting in because of their limitations, and others work hard to hide theirs. In this month's entry, Stacy discusses how she handles the desire to fit in. We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Be Inspired: It's graduation season. Many people with disabilities will cross the stage overcoming tremendous odds Read about how one UW-Green Bay grad didn't let his disabilities or growing up in poverty stop him from achieving his dream.
- Advocacy Trainings: Parents in Partnership (PIP) and Youth in Partnership with Parents for Employment have released their 2018-2019 training schedule. Learn about these programs and get involved!
- Voting Rights: It's not widely known, but in many states people with disabilities can be stripped of their right to vote. Find out why many people feel that the law needs to be changed.
- Wisconsin Disability Vote Coalition: During this important election year, the Wisconsin Disability Vote Coalition (WDVC) will work to increase voting turnout and participation in the electoral process among members of Wisconsin’s disability community by hosting voting trainings and registration days, creating comprehensive resources for people with disabilities around voting rights, and working with municipalities to ensure their polling places are up to accessibility standards. Learn how you can participate.
- Technology Initiative: Microsoft recently announced a multimillion dollar initiative to develop technology that will benefit people with disabilities. Read about what the initiative will create.
- Caregiver Check-In Mandate Delayed: Lawmakers have delayed legislation a controversial Medicaid requirement that personal care providers electronically check in when caring for people with disabilities. Find out why this requirement is causing controversy.
- The Disability Integration Act: The Supreme Court ruled that people with disabilities have the right to live in the community rather than in institutions and states must provide them with the services they need to do so. However, this rule is often ignored. Learn what this Act would do to ensure that people are allowed to live in the community.
- Feedback on State AT Plan: Wisconsin's Assistive Technology (AT) Advisory Council has completed a draft of Wisconsin’s State Plan for AT 2018-2020. The Wisconsin AT Advisory Council welcomes your comments, suggestions, and feedback on the state plan. Public comment ends June 30.
Here's a sample of upcoming events listed on the Self-Determination Network:
- 2018 Aging Empowerment Conference: June 14th-15th, Crowne Plaza Hotel and Conference Center, Madison WI
- Disability Rights Wisconsin Informational And Listening Session: June 22nd, 4p.m. to 6:30p.m., Urban League of Greater Madison, Madision WI
- Endless Possibilities Conference: August 3rd, 8:30a.m. to 3:30p.m., UW-Whitewater, Whitewater WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
May 2018
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Supported Decision-Making Webinar May 21
Register now for a webinar about supported decision making on Monday May 21st. Governor Walker recently signed a supported decision-making bill into law that gives people with disabilities and older adults options beyond guardianship for getting help with important decisions in their lives. Attend this webinar sponsored by The Arc of Wisconsin to learn what the law in Wisconsin does and how you might use it in your life or to support a family member.
Join the Discussion!
The Self-Determination Network posts a discussion question related to self-determination/self-direction every month in hopes that we can share experiences and learn from each other. Last month, we had a discussion about community employment for people with disabilities. We're switching gears a little bit in May and talking about how self-direction has impacted our lives. How has self-direction impacted your life? What words of advice do you have for others just beginning to use self-direction? Join the Discussion!
Registration is open for the 5th annual Aging Empowerment Conference: Living a Self-Determined Life!
Join InControl Wisconsin and our sponsors as we welcome international empowerment expert, Dr. Simon Duffy. We’ll learn highlights of global developments in the field of aging and discuss the movement toward self-determination and self-direction. Friday’s Advocacy Summit will be a strategic planning session focusing on Building Strong Moments for Change, in Wisconsin and beyond.
Keynote Address: Are older people still citizens?
A test of any decent society is how it respects the older generation. Are older people at the center of family and community life, or are they isolated or institutionalized? Can people set their own path, even when they need extra help, or are they forced to do what others think is best for them? While people with disabilities have demanded equal rights and self-determination, older people are often forced to accept lower standards. Dr Simon Duffy is both a philosopher and practitioner, who has worked for 30 years to develop ideas and systems to advance equal citizenship for all. Simon will explain what is happening around the world to enable people to be true citizens at any age, and whatever their needs. Simon will also explore how the idea of citizenship - which connects ancient Greece to the civil rights movement - must be central to solving the problems - and seizing the opportunities - ahead of us.
Know an older adult who would be interested in attending? Register for the conference, bring an older adult for free!
*Conference attendance is an activity that fulfills advocacy related goals for county and tribal aging units in your next three-year aging service plan!
For more information, visit : incontrolwi.org
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For May, we shine the spotlight on, Tyler, a junior at UW-Whitewater . As if he isn't busy enough double majoring in Accounting and Economics, he also self-directs all of his own supports. He encourages people not to settle and not to let the logistics stop you from achieving your dreams. Stop by this month's Member Spotlight to get to know Tyler.
“If it works, don’t fix it.” While it’s human nature for people to want to make things better, sometimes people forget to consider the repercussions of changing things will have on others. Change is hard for everyone. In this month's entry, Stacy discusses while most of the time change is for the better, sometimes with all repercussions of the change, it can do more harm than good. We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Social Security Protections: Thanks to a new law, people who handle Social Security payments for those with disabilities will be more closely monitored. Read about how this law will more protect beneficiaries.
- Housing Voucher Opportunity: The U.S. Department of Housing and Urban Development (HUD) has announced a notice of funding availability for Mainstream Vouchers. Learn how these can help people with disabilities.
- Wisconsin Named Leader in Self-Direction: In a recent report by AARP, Wisconsin was highlighted for being a leader in self-direction. Find out why.
- Care Facilities Reviews: People often don't know where to start when it comes time to look for nursing homes or assisted living centers. Learn about how Yelp reviewers are looking at different aspects of care than the government reviews.
- Care Worker Shortage: A recent study finds that Wisconsin's care worker shortage continues to grow. Find out why this is and what's being done to address it.
- Public Comment on Family Care Amendment: The Department of Health Services is taking public comment on an amendment to the Family Care Wavier. Learn what changes are being proposed. Public comment closes May 30th.
- Caregiver Survey: To better understand the challenges employers experience as they address the needs of employees with caregiving responsibilities, the Wisconsin Women’s Council in partnership with the Wisconsin Family and Caregiver Support Alliance is looking for employers of all sizes to participate in a first annual survey on caregiving. The survey closes on May 30th.
Here's a sample of upcoming events listed on the Self-Determination Network:
- WI FACETS Self-Advocacy Workshop: Self-Advocacy Spotlight: May 21st, 6p.m. to 8p.m., WI FACETS, Milwaukee WI
-
Webinar: Training On Wisconsin’s New Supported Decision-Making Law: May 21st, 6:30p.m. to 8p.m., Online
- 2018 Employment First Conference: May 22nd, Kalahari Resort, Wisconsin Dells WI
- 2018 Aging Empowerment Conference: June 14th-15th, Crowne Plaza Hotel and Conference Center, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
March 2018
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Join the Discussion!
The Self-Determination Network posts a discussion question related to self-determination/self-direction every month in hopes that we can share experiences and learn from each other. Last month, we had to great discussion about transportation.
This month, we're tackling another major challenge for people with disabilities--housing. How can people use self-direction strategies to obtain affordable, accessible housing? Join the Discussion!
2018 marks a big milestone for InControl Wisconsin – our 5th Annual Aging Empowerment Conference! We are making a splash to celebrate, and hosting a global leader in the empowerment movement. Dr. Simon Duffy is the founding Director of the Centre for Welfare Reform in the UK, and Secretary to the international cooperative Citizen Network. Simon is best known for his work on models to extend self-directed support to all groups, including elders. His work on citizenship has also challenged the view that older people can no longer be citizens and he works to break down barriers between different groups trying to achieve a more inclusive and just society.
Simon's keynote address will illustrate a philosophical history of citizenship and old age; a review of the movement toward self-determination and self-direction; highlights of interesting developments globally; and strategic ideas for building strong moments for change on both the public awareness and political front. He'll stay with us for Friday's Advocacy Summit, where we will consider strategies relevant to our work in Wisconsin and learn how to impact change in our communities.
We are accepting workshop presentation ideas until April 1st. Here is our Call for Proposals, and we welcome your ideas about aging empowerment that you'd like to share with our conference audience! We also invite you to join us as a Sponsor/Exhibitor, where you'll be an instrumental presence throughout the conference. We'll have dedicated hours for tabling and networking, and every sponsor level includes conference registration, because we recognize that you'll want to be included in the entire event.
Take five minutes to check out what's happening on the Self-Determination Network:
- Call for Presentations: Proposals for presentations are now being accepted for the 2018 Self-Determination Conference. Submit a proposal today!
- Changes to the ADA: Despite strong opposition from disability advocates, the House approved the ADA Education and Reform Act. Learn what these changes would mean and why advocates are opposed.
- Be Inspired: For Daina of Nielsville, snowboarding is about being free. Read how participating in Special Olympics and training with famous Olympians has helped her gain so much confidence in herself.
- Medicaid Wavier Tracker: Are you trying to keep track of all the potential Medicaid waivers that are pending or approved? Check out the new Medicaid Wavier Tracker.
- Voting Struggles: Voting has long had various obstacles for people with disabilities, from inaccessible locations to unusable paper ballots. Find out what other factors have led to fewer people with disabilities voting in the last two elections.
- Key Findings: A report was recently published describing the percentage of adults with disabilities in the United States living in communities. Check out the interesting statistics in the report.
- Accessible Video Games: The racing auditory display (RAD) enables gamers who are visually impaired to play the same types of racing games that sighted players can play. Find out how the interface display works.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For March, we shine the spotlight on board member of InControl Wisconsin, Jim. He has seen self-determination transform from a far fetched concept to an actual movement that has provided opportunities for many people to live self-determined lives. He encourages people to keep conversations about his/her desires and wishes for self-determination going, so they can actually happen. Stop by this month's Member Spotlight to get to know Jim.
Is it safe to go anywhere anymore? Regardless of political beliefs, it’s a question is on many people’s minds lately. This month, Stacy discusses how people with disabilities are among the most vulnerable in violent situations. We encourage you to share your thoughts and experiences as well.
Here's a sample of upcoming events listed on the Self-Determination Network:
-
Disability Advocacy Day: March 20th, 9:30a.m. to 3:30p.m., State Capitol, Madison WI
- Webinar: Learn What You Need To Know To Open An ABLE Account; Tips For Special Needs Financial Planning In Wisconsin: March 28th, 6:30p.m., Online
- Advocacy for Change: April 12th, 8:30a.m. to 4p.m., Concourse Hotel, Madison WI
- 2018 Employment First Conference: May 22nd, Kalahari Resort, Wisconsin Dells WI
- 2018 Aging Empowerment Conference: June 14th-15th, Crowne Plaza Hotel and Conference Center, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
February 2018
Connect | Share | Learn | http://sdnetworkwi.org/
Register Now for Disability Advocacy Day
Let your voice be heard at the 2018 Disability Advocacy Day on March 20th in Madison. It's a day designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives. Learn more and register today!
Join the Discussion!
As mentioned in our last newsletter, the Self-determination Network will be posting a discussion question related to self-determination/self-direction every month. By doing this, our hope is that we can share experiences and learn from each other.
To kick this off, our first discussion question is about something that people with disabilities say is one of their biggest barriers--transportation. What are some promising ways to obtain affordable, accessible transportation using self-direction strategies? Join the Discussion!
2018 marks a big milestone for InControl Wisconsin – our 5th Annual Aging Empowerment Conference! We are making a splash to celebrate, and hosting a global leader in the empowerment movement. Dr. Simon Duffy is the founding Director of the Centre for Welfare Reform in the UK, and Secretary to the international cooperative Citizen Network. Simon is best known for his work on models to extend self-directed support to all groups, including elders. His work on citizenship has also challenged the view that older people can no longer be citizens and he works to break down barriers between different groups trying to achieve a more inclusive and just society.
Simon's keynote address will illustrate a philosophical history of citizenship and old age; a review of the movement toward self-determination and self-direction; highlights of interesting developments globally; and strategic ideas for building strong moments for change on both the public awareness and political front. He'll stay with us for Friday's Advocacy Summit, where we will consider strategies relevant to our work in Wisconsin and learn how to impact change in our communities.
We invite you to join us as a Sponsor/Exhibitor, where you'll be an instrumental presence throughout the conference. We'll have dedicated hours for tabling and networking, and every sponsor level includes conference registration, because we recognize that you'll want to be included in the entire event.
We are also accepting workshop presentation ideas. Here is our Call for Proposals, and we welcome your ideas about aging empowerment that you'd like to share with our conference audience!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For February, we shine the spotlight on board member of InControl Wisconsin, Lynn. Having been involved in a disability field for many years, he believes that we're still at the tip of the iceberg with learning how self-direction can impact on people's lives. When he's not busy advocating for people with disabilities, he enjoys traveling to new places and exploring different cultures. Stop by this month's Member Spotlight to get to know Lynn.
What would the world be like today without cell phones or mobile devices? It’s nearly impossible to fathom. For many people, including those with disabilities, mobile devices have become a real lifeline. In this month's entry, Stacy discusses how having a cell phone has changed her life! We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Get Involved: Laura posted about an opportunity to get involved in an anti-violence leadership program for survivors of violence and underserved/under-represented communities. Learn how to get involved!
- Accessibility Survey: UW-Milwaukee is conducting a survey to examine the experiences of people with disabilities pertaining to the accessibility of public buildings, including physical and cognitive barriers that prevent people with disabilities from being able to participate fully in the community. Take the survey and share it with others!
- Group Home Report: The Department of Health and Human Services examined states' monitoring and reporting of injuries and other critical incidents of people with developmental disabilities living in group homes. Find out what they found.
- New Medicare-Medicaid Resources: The CMS Medicare-Medicaid Coordination Office has three new resource guides intended to support providers and health plans serving older adults and caregivers. Learn what these guides offer.
- Airline Service Animal Requirements: Airline accessibility has taken center stage recently. One airline is taking steps to further protect its customers, employees and service animals and support animals by implementing advance documentation requirements for those animals. Read about how the new requirements ensure safety for all.
- Poverty and Health Findings: Recent population surveys have shown that nearly one third of people with disabilities live below the poverty line and they’re more than twice as likely to live in poverty when compared to their non-disabled peers. Learn how this impacts their health.
- Updated Fact Sheet: The Consortium for Citizens with Disabilities recently released an updated fact sheet about Supplemental Security Income for people with disabilities. Check out what's new!
- Accessible Clothing: Another large retail chain announced a clothing line for people with disabilities. Find out which store and what it will include.
- State Family Caregiver Rankings: For family caregivers who provide unpaid to older adults and family members with disabilities, the state you live in can be a big factor in your ability to be a family caregiver. Learn where Wisconsin ranks.
- New Tool: Wisconsin has a new tool for people who are deaf or hard of hearing. Learn how communication visor cards give deaf and hard of hearing drivers a clear way to communicate with law enforcement.
Here's a sample of upcoming events listed on the Self-Determination Network:
- WisconsinSibs: Journey Forward : February 17th, 8:30a.m. to 1p.m., Easterseals, Waukesha, WI
- Disability Rights Wisconsin Listening Session: March 2nd, 4p.m. to 6:30p.m., Wisconsin African American Women's Center, Milwaukee WI
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Disability Advocacy Day: March 20th, 9:30a.m. to 3:30p.m., State Capitol, Madison WI
- Advocacy for Change: April 12th, 8:30a.m. to 4p.m., Concourse Hotel, Madison WI
- 2018 Employment First Conference: May 22nd, Kalahari Resort, Wisconsin Dells WI
- 2018 Aging Empowerment Conference: June 14th-15th, Crowne Plaza Hotel and Conference Center, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
January 2018
Connect | Share | Learn | http://sdnetworkwi.org/
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For January, we shine the spotlight on the Chair of InControl Wisconsin, Kate. As a firm believer of self-determination and self-direction, she loves that this Network brings people together who have the same passion. Stop by this month's Member Spotlight to get to know Kate.
Coming in February...
Beginning in February, the Self-Determination Network will post a monthly discussion question related to self-determination/self-direction. We will be sending out a special message in the first week of each month telling you what the question is and providing you with a link where you can respond. By doing this, our hope is that we can share experiences and learn from each other. Keep your eyes open for the first question!
"Oftentimes, comparing ourselves does no good, but sometimes it can ignite a spark in us and make us realize what is possible!" In January's entry, Stacy discusses how comparing ourselves to others is a part of life. Do you agree? We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- New Resource: Tyler, a junior at UW-Whitewater, developed a website about transitioning from high school to college when living with a disability. It's full of great tips and resources. Check it out and let Tyler know what you think.
- ABLE Accounts Popularity: According to a recent report, thousands of people with disabilities have opened ABLE accounts, but experts point out that millions more could benefit from them. Find out why participation has been slower than anticipated.
- Housing Affordability and Availability: A recent report released explains the nationwide housing affordability crisis people with disabilities are facing. Learn about some solutions and recommendations that some groups are suggesting to end this crisis.
- Website Accessibility: There has been a rise in the number of lawsuits alleging that companies with inaccessible websites are violating the American's with Disabilities Act (ADA). Read about why it is likely that companies will continue to reach settlements in web accessibility cases, rather than take cases to trial.
- ADA Guidance: The Justice Department has rescinded many guidance documents which clarify implications of the Americans with Disabilities Act. Learn what impact may have on people with disabilities.
- Changes to ABLE Accounts: A major tax law that took effect in January is bringing changes to savings accounts for people with disabilities and causing concern about funding for programs. Find out why advocates are concerned.
- Family Caregiver Input: When developing health and long-term care policy, the government hears a lot from providers, drug and medical device makers, and various lobbyists and advocates, but they rarely hear from family caregivers. Read about how a new law could change that.
- Be Inspired: Read about how having a disability doesn't stop one Wisconsin farmer from living his dream.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Changes To ABLE In 2018: January 25th, 1p.m. to 2:30p.m., Online
- Webinar: International Perspectives On Supporting People With Dementia And Caregivers: January 30th, 1p.m. to 2p.m. Online
- Transition Conference 2018: Answering The Call, Pathways To Success!: February 5th-6th, Kalahari Resort and Convention Center, Wisconsin Dells WI
- ADA Live! Rights And Responsibilities With The Americans With Disabilities Act (ADA): February 7th, 12p.m. to 12:30p.m., Online
- Disability Advocacy Day: March 20th, 9:30a.m. to 3:30p.m., State Capitol, Madison WI
- WisconsinSibs: Journey Forward : February 17th, 8:30a.m. to 1p.m., Easterseals, Waukesha, WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
December 2017
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InControl Wisconsin wants to take a minute to wish everyone Happy Holidays! We really appreciate all of our Network members and Sponsors. We couldn't keep this Network going with you!
This is the season of giving! Our sponsors help us out in so many ways. Learn about how you can support the Network.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For December, we shine the spotlight on Carrie. Between being the mother to five children and her job organizing events for IRIS participants, free time is rare for this busy lady. Stop by this month's Member Spotlight to get to know Carrie.
"Dreams energize our imagination. They give us a glimpse of what in some cases is the possible. It’s nice to dream, but we have to remember it’s truly just a dream!" In this month's entry, Stacy shares how while dreams can be fun to have, they can also sometimes be a reality check. We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Vacation Rental Accommodations: More and more vacation accommodation websites are making efforts to be accessible for people with disabilities. Learn about how one lodging rental company is coming out with a new website that will accommodate people with various types of disabilities.
- Dental Care Struggles: The National Council on Disability has put out a brief about the concerning lack of dental care for people with disabilities. Read what recommendations the Council suggests.
- Website Accessibility: New accessibility guidelines for government websites will take effect in January. Find out what the new guidelines will mandate.
- Problems with Fake Service Animals Continue: Untrained service animals continue to be a problem across the country. Learn what service animal owners feel is needed to prevent these laws from being exploited.
- Medicaid Summary: In the Fall of 2014, the Center for Medicaid and CHIP Services (CMCS) conducted a Nationwide Adult Medicaid Consumer Assessment of Healthcare Providers and Systems (CAHPS) survey of Medicaid enrollees to attain national and state-by-state measures of access, barriers to care, and experiences with care across delivery systems and major population subgroups. Find out what the survey found.
- Check it Out: The Minnesota Department of Human Services created an awesome video series about supported decision making. Check it out!
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Implementing Person-Centered Principles In TBI Service Systems: December 12th, 12p.m. to 1p.m., Online
- Webinar: Disability-Competent Care Self-Assessment Tool: December 13th, 1p.m. to 2p.m., Online
- WisconsinSibs: Journey Forward : February 17th, 8:30a.m. to 1p.m., Easterseals, Waukesha, WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
November 2017
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Share your comments, questions, and ideas in this discussion!
We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:
David Pinno
Sue Urban
Take five minutes to check out what's happening on the Self-Determination Network:
- Watch: Watch this excellent short video done by The Arc designed to speak directly to people with developmental disabilities about supported decision-making and getting help making decision.
- Caregiver Act: A bill that would address the needs of family caregivers is gaining support. Learn how this act would help families.
- Unique Fashion Line: More and more fashion designers are designing clothes for people with disabilities. Find out which popular designer recently launched an adaptive clothing line.
- Accessible Airport Kiosks: One airline has incorporated new technology into their self-service kiosks to ensure they are accessible to all travelers. Read about these new kiosks.
- States Tighten Leash on Service Animals: A growing number of states are enacting laws designed to keep people from passing off their pets as service animals. Learn what states are doing.
- Smart Home Products Increase Independence: Smart home products are often marketed for their convenience, but the technology also can help people with disabilities become more independent. Read about how thousands of technology products have opened up a world of possibilities for people with disabilities.
- Building Full Lives Grant:The Wisconsin Board for People with Developmental Disabilities in partnership with In Control Wisconsin is offering a great opportunity for organizations Interested in supporting individuals with disabilities to Build FULL LIVES in the community. Applications due November 17th.
- Interesting Court Case: This in an interesting case about glass-front vending machines not being accessible. Find out why the Supreme Court declined to review the case.
- Successful Aging: As people age, they may experience new and chronic health conditions that make it difficult to participate in activities at home, at work, and in the community. A study showed that there are four areas that people felt were important for successful aging with a physical disability. Learn what the areas are.
- ABLE Account Annual Contribution Limit: It was recently announced that the total annual contribution limit to an ABLE account will increase in 2018. Find out how much it will increase.
- Polling Place Accessibility: A new report found that less than 20% of polling places were fully accessible during the 2016 election. Read about what's being done to try to correct it.
- Hunting Bill: The State Assembly passed a bill that would allow people with disabilities to hunt from a car with a lift. Read about the bill.
When most people hear the word “segregation,” they automatically assume it’s a negative thing. However, at times, that’s not the case. It’s human nature for people to associate with others like them. In this month's entry, Stacy discusses how, as a person with a physical disability, she often struggles to fit in within the disability community. Have you had similar feelings? We encourage you to share your thoughts and experiences as well.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Interdisciplinary Care Teams For Older Adults: December 7th, 11a.m. to 12:30p.m., Online
- WisconsinSibs: Journey Forward : February 17th, 8:30a.m. to 1p.m., Easterseals, Waukesha, WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Stop By and Say Hi!
More than 600 people will soon gather at the annual Self-Determination Conference. This year's theme is "Self-Determination in Full Color: Celebrating You... Mind, Body and Spirit." Participants will learn more about self-determination and self directed supports so they can live independently, be members of their communities, and use public funds efficiently. We encourage you to look at the brochure to see all the interesting sectionals the conference will offer. InControl Wisconsin will have a booth in the exhibit hall. If you're going, be sure to stop by and say hi! Registration closes on October 20th. Register today!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For October, we shine the spotlight on Mike. This self-advocate began leading a self-determined life at a very young age. When he’s not busy volunteering for the Wisconsin Augmentative Alternative Communication Network or attending conferences, he enjoys catching up on his favorite TV shows. Stop by this month's Member Spotlight to get to know Mike.
Who should we shine the Spotlight on next?
Having somebody who has a significant disability in a family has its challenges. Extended family has a choice whether or not to accept the circumstances the person has. In this month's entry, Stacy discusses how her extended family not only accepts, but embraces her unique challenges. We encourage you to share your experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Compassionate Allowances List Grows: New conditions have been added to the compassionate allowances list for U.S. Social Security. Learn what the new conditions are.
- Caregiving and Dementia: The Administration on Aging put out a special newsletter on dementia care and advocacy topics. Read and learn about some helpful tips.
- Scholarship Opportunity: The American Association on Health and Disability is accepting applications for the Frederick J. Krause Scholarship for undergraduate (junior/senior status) and graduate students with disabilities who are majoring in a field related to disability and health. Applications due November 15th. Find out how to apply today!
- Google Wants Help: Google is looking to the public in an effort to make navigating the world easier for people with disabilities. Read about how you can help.
- Accessibility Hub: A first of its kind digital hub is designed to address needs of over 1 billion people facing disability, digital literacy or aging related barriers. Learn about this unique hub hopes to provide.
- Results are In: The National Association of States United for Aging Disabilities administered a survey of state agencies that deliver Long Term Services and Supports. Find out what the survey found.
- Home Care Worker Challenges: According to a new national report, Wisconsin is expected to need an additional 20,000 home care workers by 2024. Read about why this is so frightening.
- Poor Wages Hurt Care Worker Longevity: A new report reveals that direct care workers can't afford to stay in their jobs. Learn about why the average wage isn't enough to live on.
- Criminal Justice and the ADA: The Justice Department issued guidance earlier this year to facilitate compliance with the Americans with Disabilities Act (ADA) during interactions criminal justice entities. Read about what the guidelines include.
- Estimated Social Security Increase: It's estimated that people who receive Social Security could see an increase in 2018. Find out what the estimate is based on.
- Sidewalk Requirements: A new paper explains the historical and modern state of the ADA's legal influence on sidewalks and answers important legal questions about the duties of local communities and governments under the ADA. Learn about available resources for businesses and governments to use in planning for accessible sidewalks.
- Supported Decision Making: The Council on Quality and Leadership recently issued a paper about applying approaches of Supported Decision Making in the US. Read about practices and benefits of Supported Decision Making.
- Best Cities for People with Disabilities: Wallethub released its annual "Best & Worst Cities for People with Disabilities" report. Find out which two Wisconsin cities are in the top 150 best cities.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Long-Term Services And Supports And Caregiving For Adults Aging With Disability--Session 1: October 16th, 11a.m. to 1p.m., Online
- Veterans' Resource Fair: October 16th-17th, Waukesha County Expo Center Arena, Waukesha WI
- Webinar: Advances At The Intersection Of Aging And Long-Term Disability-- Session 2: October 18th, 11a.m. to 1p.m., Online
- Webinar: Advances At The Intersection Of Aging And Long-Term Disability-- Session 3: October 20th, 11a.m. to 1p.m., Online
- 2017 Self-Determination Conference: November 1st-3rd, Kalahari Resort, Wisconsin Dells WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Time is Running Out...Register Today!
There is still time to register for the 10th annual Self-Determination Conference. This conference works to empower people with disabilities in Wisconsin to have more control over their lives. More than 600 people each year participate in the conference to learn more about self-determination and self directed supports so they can live independently, be members of their communities, and use public funds efficiently. The conference participants include people with disabilities and their family members, direct care providers, and professionals from Wisconsin’s disability community. View this year's conference brochure and register today!
Diehard Award Nominations
Do you know someone who goes above and beyond to improve community supports for individuals with disabilities? Do they support self-determination? Nominate them for a Diehard Award! A Diehard is an individual who has made a significant contribution to the advocacy work here in Wisconsin. A diehard is someone with a steadfast commitment to the principles of community integration and self-determination. Diehards go above and beyond to make sure everyone is counted. Awards will be presented at the Self-Determination Conference on November 3rd at the Kalahari Resort and Conference Center in the Wisconsin Dells. Nominations are due on Friday, October 6th. Nominate someone today!
Stacy’s Journal
Lately, it seems like all of the news coverage has been about the catastrophic storms that are happening around the world. Back to back major hurricanes in the south, wildfires in the west, earthquakes in Mexico… it seems endless. This month, Stacy discusses what extra steps people with disabilities have to take when Mother Nature throws curve balls. We encourage you to share your experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Care Homes of the Future: As populations around the world begin to live for longer than they ever have, their individual needs related to their health become even more complex which means is that care homes need to use greater amounts of, and more intelligent, assistive technologies. Learn what else research suggests.
- Special Needs Trust Flexibility: Thanks to a new law, people with disabilities can establish special needs trusts for themselves. Read how this will help people save money.
- Self-Driving Wheelchairs: Researchers and robotics experts say they have developed cost-effective technology that would allow power wheelchairs to drive themselves. Find out what these chairs are expected to cost.
- The Eclipse in Real Time: The solar eclipse that happened last month was viewed by millions of Americans. Learn how thanks to technology people with visual impairments wee able to experience the eclipse.
- Automated Home: Although initially developed by engineers to recreate sci-fi fantasies, smart homes in modern times are important tools for increasing agency and accessibility for elderly people and people with disabilities. Read about how new technology is helping people live more independent.
- Call for Proposals: Proposals to present at the 2018 National ADA Symposium are now being accepted. The submission deadline is September 30th.
- Emergency Preparedness: For older people and people with disabilities, emergency preparation is a must. The Administration for Community Living has put together resources for how to prepare for an emergency.
- Voters with Disabilities: New data has been released on voting experiences for people with disabilities. Learn what the data showed.
- Housing Barriers: As people with developmental disabilities increasingly live in community-based settings, a new report finds that they face a multitude of barriers in obtaining housing. Read about what's being done to try to resolve these.
Upcoming Events
Here's a sample of upcoming events listed on the Self-Determination Network:
- Sibshop Kickoff: September 17th, 3p.m. to 5p.m., The Building for Kids, Appleton WI
- Webinar: Section 504 Workshop: September 19th, 12p.m., Online
- Red Roskopf Day AbilityFest Celebrating Communities And Families: October 1st, The Golf Club at Camelot, Lomira WI
- The Riot 2017 National Conversation: October 5th, Teleconference
- Veterans' Resource Fair: October 16th-17th, Waukesha County Expo Center Arena, Waukesha WI
- 2017 Self-Determination Conference: November 1st to 3rd, Kalahari Resort, Wisconsin Dells WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.