Self-Determination Network News: July 2018
July 2018
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Registration for the 2018 Self-Determination Conference is Now Open
Registration for the 2018 Self-Determination Conference is now open! The annual conference works to empower people with disabilities in Wisconsin to have more control over their lives. More than 600 people each year participate in the conference to learn more about self-determination and Self-Directed Supports so they can live independently, be members of their communities, and use public funds efficiently. The conference participants include people with disabilities and their family members, direct care providers, and professionals from Wisconsin’s disability community. Conference Scholarships will be available until September 7, 2018 or until funds run out. There are a limited number of scholarships available and they are determined on a first come, first serve basis. Early bird registration ends August 30. Learn more and register today!
Direct Care Worker Shortage Stories Wanted
Wisconsin lawmakers need to hear from real people about the impact the direct care workforce crisis is having on your life! Aging and disability advocates are collecting stories about the direct care workforce crisis. We want to hear from everyone—people who need direct care workers, family caregivers and direct care workers—about why direct care workers are important and how the crisis is impacting people. Please submit your story using the following form by August 1: https://goo.gl/forms/tER259RStNwNDBJJ3. If you are willing to share a picture to go along with your story, you can email photos to wiworkforcestories@gmail.com.
Transportation Survey
Transportation is consistently identified as a top concern for older adults and people with disabilities. The Survival Coalition wants to hear how your transportation options—or lack of options—impact your life. The results of this survey will be used by Survival Coalition to inform policymakers on how Wisconsin can improve transportation for older adults and people with disabilities. Please share this survey with your family, friends, and others interested in improving transportation for older adults and people with disabilities, and encourage them to take this survey by July 30th, 2018.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For July, we shine the spotlight on InControl Wisconsin board member, Terry Lynch. Having worked in the disability field for many years, he has had a vital role in supporting independent living and self-determination. Stop by this month's Member Spotlight to get to know Terry.
"The direct care shortage is nationwide, so I know I’m not alone in this battle. Agencies, nursing homes, and hospitals are struggling to find caretakers too." For July's entry, Stacy discusses her struggle to find reliable care. We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Caregiver Strain on Families: A recent survey found that the majority of family caregivers are stressed out by the demands of their family members with developmental disabilities and have deep concerns about the future. Learn why family members are stressed.
- Home Modification Grant Opportunity: Home modifications and repairs can help older adults age in place and maintain their independence. Learn about a grant intended to address barriers to optimal access to and use of home modifications that support aging in place.
- Spike in Community Living Spending: According to a recent report, there has been a major increase in government spending on home and community based services. Find out what this is largely due to.
- Medicare and Mental Health: The Affordable Care Act expanded Medicare's coverage to include important therapies to keep people with mental illnesses from needing in-patient treatment, but there are many problems with Medicare's coverage for people with mental illnesses. Read about the issues.
- ABLE Accounts in Jeopardy: Disability advocates fear that without a major change ABLE accounts could be unsustainable. Find out why.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Disability Pride Fest: July 28th, 12p.m. to 5p.m., Tenney Park, Madison WI
- Endless Possibilities Conference: August 3rd, 8:30a.m. to 3:30p.m., UW-Whitewater, Whitewater WI
- Ability Fest: October 14th, 7:30a.m. to 4p.m., Camelot Golf Course, Lomira WI
- 2018 Self-Determination Conference: October 29th-31st, Kalahari Resort, Wisconsin Dells WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
