Category: Network News
February 2018
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Register Now for Disability Advocacy Day
Let your voice be heard at the 2018 Disability Advocacy Day on March 20th in Madison. It's a day designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives. Learn more and register today!
Join the Discussion!
As mentioned in our last newsletter, the Self-determination Network will be posting a discussion question related to self-determination/self-direction every month. By doing this, our hope is that we can share experiences and learn from each other.
To kick this off, our first discussion question is about something that people with disabilities say is one of their biggest barriers--transportation. What are some promising ways to obtain affordable, accessible transportation using self-direction strategies? Join the Discussion!
2018 marks a big milestone for InControl Wisconsin – our 5th Annual Aging Empowerment Conference! We are making a splash to celebrate, and hosting a global leader in the empowerment movement. Dr. Simon Duffy is the founding Director of the Centre for Welfare Reform in the UK, and Secretary to the international cooperative Citizen Network. Simon is best known for his work on models to extend self-directed support to all groups, including elders. His work on citizenship has also challenged the view that older people can no longer be citizens and he works to break down barriers between different groups trying to achieve a more inclusive and just society.
Simon's keynote address will illustrate a philosophical history of citizenship and old age; a review of the movement toward self-determination and self-direction; highlights of interesting developments globally; and strategic ideas for building strong moments for change on both the public awareness and political front. He'll stay with us for Friday's Advocacy Summit, where we will consider strategies relevant to our work in Wisconsin and learn how to impact change in our communities.
We invite you to join us as a Sponsor/Exhibitor, where you'll be an instrumental presence throughout the conference. We'll have dedicated hours for tabling and networking, and every sponsor level includes conference registration, because we recognize that you'll want to be included in the entire event.
We are also accepting workshop presentation ideas. Here is our Call for Proposals, and we welcome your ideas about aging empowerment that you'd like to share with our conference audience!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For February, we shine the spotlight on board member of InControl Wisconsin, Lynn. Having been involved in a disability field for many years, he believes that we're still at the tip of the iceberg with learning how self-direction can impact on people's lives. When he's not busy advocating for people with disabilities, he enjoys traveling to new places and exploring different cultures. Stop by this month's Member Spotlight to get to know Lynn.
What would the world be like today without cell phones or mobile devices? It’s nearly impossible to fathom. For many people, including those with disabilities, mobile devices have become a real lifeline. In this month's entry, Stacy discusses how having a cell phone has changed her life! We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Get Involved: Laura posted about an opportunity to get involved in an anti-violence leadership program for survivors of violence and underserved/under-represented communities. Learn how to get involved!
- Accessibility Survey: UW-Milwaukee is conducting a survey to examine the experiences of people with disabilities pertaining to the accessibility of public buildings, including physical and cognitive barriers that prevent people with disabilities from being able to participate fully in the community. Take the survey and share it with others!
- Group Home Report: The Department of Health and Human Services examined states' monitoring and reporting of injuries and other critical incidents of people with developmental disabilities living in group homes. Find out what they found.
- New Medicare-Medicaid Resources: The CMS Medicare-Medicaid Coordination Office has three new resource guides intended to support providers and health plans serving older adults and caregivers. Learn what these guides offer.
- Airline Service Animal Requirements: Airline accessibility has taken center stage recently. One airline is taking steps to further protect its customers, employees and service animals and support animals by implementing advance documentation requirements for those animals. Read about how the new requirements ensure safety for all.
- Poverty and Health Findings: Recent population surveys have shown that nearly one third of people with disabilities live below the poverty line and they’re more than twice as likely to live in poverty when compared to their non-disabled peers. Learn how this impacts their health.
- Updated Fact Sheet: The Consortium for Citizens with Disabilities recently released an updated fact sheet about Supplemental Security Income for people with disabilities. Check out what's new!
- Accessible Clothing: Another large retail chain announced a clothing line for people with disabilities. Find out which store and what it will include.
- State Family Caregiver Rankings: For family caregivers who provide unpaid to older adults and family members with disabilities, the state you live in can be a big factor in your ability to be a family caregiver. Learn where Wisconsin ranks.
- New Tool: Wisconsin has a new tool for people who are deaf or hard of hearing. Learn how communication visor cards give deaf and hard of hearing drivers a clear way to communicate with law enforcement.
Here's a sample of upcoming events listed on the Self-Determination Network:
- WisconsinSibs: Journey Forward : February 17th, 8:30a.m. to 1p.m., Easterseals, Waukesha, WI
- Disability Rights Wisconsin Listening Session: March 2nd, 4p.m. to 6:30p.m., Wisconsin African American Women's Center, Milwaukee WI
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Disability Advocacy Day: March 20th, 9:30a.m. to 3:30p.m., State Capitol, Madison WI
- Advocacy for Change: April 12th, 8:30a.m. to 4p.m., Concourse Hotel, Madison WI
- 2018 Employment First Conference: May 22nd, Kalahari Resort, Wisconsin Dells WI
- 2018 Aging Empowerment Conference: June 14th-15th, Crowne Plaza Hotel and Conference Center, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
January 2018
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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For January, we shine the spotlight on the Chair of InControl Wisconsin, Kate. As a firm believer of self-determination and self-direction, she loves that this Network brings people together who have the same passion. Stop by this month's Member Spotlight to get to know Kate.
Coming in February...
Beginning in February, the Self-Determination Network will post a monthly discussion question related to self-determination/self-direction. We will be sending out a special message in the first week of each month telling you what the question is and providing you with a link where you can respond. By doing this, our hope is that we can share experiences and learn from each other. Keep your eyes open for the first question!
"Oftentimes, comparing ourselves does no good, but sometimes it can ignite a spark in us and make us realize what is possible!" In January's entry, Stacy discusses how comparing ourselves to others is a part of life. Do you agree? We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- New Resource: Tyler, a junior at UW-Whitewater, developed a website about transitioning from high school to college when living with a disability. It's full of great tips and resources. Check it out and let Tyler know what you think.
- ABLE Accounts Popularity: According to a recent report, thousands of people with disabilities have opened ABLE accounts, but experts point out that millions more could benefit from them. Find out why participation has been slower than anticipated.
- Housing Affordability and Availability: A recent report released explains the nationwide housing affordability crisis people with disabilities are facing. Learn about some solutions and recommendations that some groups are suggesting to end this crisis.
- Website Accessibility: There has been a rise in the number of lawsuits alleging that companies with inaccessible websites are violating the American's with Disabilities Act (ADA). Read about why it is likely that companies will continue to reach settlements in web accessibility cases, rather than take cases to trial.
- ADA Guidance: The Justice Department has rescinded many guidance documents which clarify implications of the Americans with Disabilities Act. Learn what impact may have on people with disabilities.
- Changes to ABLE Accounts: A major tax law that took effect in January is bringing changes to savings accounts for people with disabilities and causing concern about funding for programs. Find out why advocates are concerned.
- Family Caregiver Input: When developing health and long-term care policy, the government hears a lot from providers, drug and medical device makers, and various lobbyists and advocates, but they rarely hear from family caregivers. Read about how a new law could change that.
- Be Inspired: Read about how having a disability doesn't stop one Wisconsin farmer from living his dream.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Changes To ABLE In 2018: January 25th, 1p.m. to 2:30p.m., Online
- Webinar: International Perspectives On Supporting People With Dementia And Caregivers: January 30th, 1p.m. to 2p.m. Online
- Transition Conference 2018: Answering The Call, Pathways To Success!: February 5th-6th, Kalahari Resort and Convention Center, Wisconsin Dells WI
- ADA Live! Rights And Responsibilities With The Americans With Disabilities Act (ADA): February 7th, 12p.m. to 12:30p.m., Online
- Disability Advocacy Day: March 20th, 9:30a.m. to 3:30p.m., State Capitol, Madison WI
- WisconsinSibs: Journey Forward : February 17th, 8:30a.m. to 1p.m., Easterseals, Waukesha, WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
December 2017
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InControl Wisconsin wants to take a minute to wish everyone Happy Holidays! We really appreciate all of our Network members and Sponsors. We couldn't keep this Network going with you!
This is the season of giving! Our sponsors help us out in so many ways. Learn about how you can support the Network.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For December, we shine the spotlight on Carrie. Between being the mother to five children and her job organizing events for IRIS participants, free time is rare for this busy lady. Stop by this month's Member Spotlight to get to know Carrie.
"Dreams energize our imagination. They give us a glimpse of what in some cases is the possible. It’s nice to dream, but we have to remember it’s truly just a dream!" In this month's entry, Stacy shares how while dreams can be fun to have, they can also sometimes be a reality check. We encourage you to share your thoughts and experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Vacation Rental Accommodations: More and more vacation accommodation websites are making efforts to be accessible for people with disabilities. Learn about how one lodging rental company is coming out with a new website that will accommodate people with various types of disabilities.
- Dental Care Struggles: The National Council on Disability has put out a brief about the concerning lack of dental care for people with disabilities. Read what recommendations the Council suggests.
- Website Accessibility: New accessibility guidelines for government websites will take effect in January. Find out what the new guidelines will mandate.
- Problems with Fake Service Animals Continue: Untrained service animals continue to be a problem across the country. Learn what service animal owners feel is needed to prevent these laws from being exploited.
- Medicaid Summary: In the Fall of 2014, the Center for Medicaid and CHIP Services (CMCS) conducted a Nationwide Adult Medicaid Consumer Assessment of Healthcare Providers and Systems (CAHPS) survey of Medicaid enrollees to attain national and state-by-state measures of access, barriers to care, and experiences with care across delivery systems and major population subgroups. Find out what the survey found.
- Check it Out: The Minnesota Department of Human Services created an awesome video series about supported decision making. Check it out!
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Implementing Person-Centered Principles In TBI Service Systems: December 12th, 12p.m. to 1p.m., Online
- Webinar: Disability-Competent Care Self-Assessment Tool: December 13th, 1p.m. to 2p.m., Online
- WisconsinSibs: Journey Forward : February 17th, 8:30a.m. to 1p.m., Easterseals, Waukesha, WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
November 2017
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Share your comments, questions, and ideas in this discussion!
We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:
David Pinno
Sue Urban
Take five minutes to check out what's happening on the Self-Determination Network:
- Watch: Watch this excellent short video done by The Arc designed to speak directly to people with developmental disabilities about supported decision-making and getting help making decision.
- Caregiver Act: A bill that would address the needs of family caregivers is gaining support. Learn how this act would help families.
- Unique Fashion Line: More and more fashion designers are designing clothes for people with disabilities. Find out which popular designer recently launched an adaptive clothing line.
- Accessible Airport Kiosks: One airline has incorporated new technology into their self-service kiosks to ensure they are accessible to all travelers. Read about these new kiosks.
- States Tighten Leash on Service Animals: A growing number of states are enacting laws designed to keep people from passing off their pets as service animals. Learn what states are doing.
- Smart Home Products Increase Independence: Smart home products are often marketed for their convenience, but the technology also can help people with disabilities become more independent. Read about how thousands of technology products have opened up a world of possibilities for people with disabilities.
- Building Full Lives Grant:The Wisconsin Board for People with Developmental Disabilities in partnership with In Control Wisconsin is offering a great opportunity for organizations Interested in supporting individuals with disabilities to Build FULL LIVES in the community. Applications due November 17th.
- Interesting Court Case: This in an interesting case about glass-front vending machines not being accessible. Find out why the Supreme Court declined to review the case.
- Successful Aging: As people age, they may experience new and chronic health conditions that make it difficult to participate in activities at home, at work, and in the community. A study showed that there are four areas that people felt were important for successful aging with a physical disability. Learn what the areas are.
- ABLE Account Annual Contribution Limit: It was recently announced that the total annual contribution limit to an ABLE account will increase in 2018. Find out how much it will increase.
- Polling Place Accessibility: A new report found that less than 20% of polling places were fully accessible during the 2016 election. Read about what's being done to try to correct it.
- Hunting Bill: The State Assembly passed a bill that would allow people with disabilities to hunt from a car with a lift. Read about the bill.
When most people hear the word “segregation,” they automatically assume it’s a negative thing. However, at times, that’s not the case. It’s human nature for people to associate with others like them. In this month's entry, Stacy discusses how, as a person with a physical disability, she often struggles to fit in within the disability community. Have you had similar feelings? We encourage you to share your thoughts and experiences as well.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Interdisciplinary Care Teams For Older Adults: December 7th, 11a.m. to 12:30p.m., Online
- WisconsinSibs: Journey Forward : February 17th, 8:30a.m. to 1p.m., Easterseals, Waukesha, WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Stop By and Say Hi!
More than 600 people will soon gather at the annual Self-Determination Conference. This year's theme is "Self-Determination in Full Color: Celebrating You... Mind, Body and Spirit." Participants will learn more about self-determination and self directed supports so they can live independently, be members of their communities, and use public funds efficiently. We encourage you to look at the brochure to see all the interesting sectionals the conference will offer. InControl Wisconsin will have a booth in the exhibit hall. If you're going, be sure to stop by and say hi! Registration closes on October 20th. Register today!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For October, we shine the spotlight on Mike. This self-advocate began leading a self-determined life at a very young age. When he’s not busy volunteering for the Wisconsin Augmentative Alternative Communication Network or attending conferences, he enjoys catching up on his favorite TV shows. Stop by this month's Member Spotlight to get to know Mike.
Who should we shine the Spotlight on next?
Having somebody who has a significant disability in a family has its challenges. Extended family has a choice whether or not to accept the circumstances the person has. In this month's entry, Stacy discusses how her extended family not only accepts, but embraces her unique challenges. We encourage you to share your experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Compassionate Allowances List Grows: New conditions have been added to the compassionate allowances list for U.S. Social Security. Learn what the new conditions are.
- Caregiving and Dementia: The Administration on Aging put out a special newsletter on dementia care and advocacy topics. Read and learn about some helpful tips.
- Scholarship Opportunity: The American Association on Health and Disability is accepting applications for the Frederick J. Krause Scholarship for undergraduate (junior/senior status) and graduate students with disabilities who are majoring in a field related to disability and health. Applications due November 15th. Find out how to apply today!
- Google Wants Help: Google is looking to the public in an effort to make navigating the world easier for people with disabilities. Read about how you can help.
- Accessibility Hub: A first of its kind digital hub is designed to address needs of over 1 billion people facing disability, digital literacy or aging related barriers. Learn about this unique hub hopes to provide.
- Results are In: The National Association of States United for Aging Disabilities administered a survey of state agencies that deliver Long Term Services and Supports. Find out what the survey found.
- Home Care Worker Challenges: According to a new national report, Wisconsin is expected to need an additional 20,000 home care workers by 2024. Read about why this is so frightening.
- Poor Wages Hurt Care Worker Longevity: A new report reveals that direct care workers can't afford to stay in their jobs. Learn about why the average wage isn't enough to live on.
- Criminal Justice and the ADA: The Justice Department issued guidance earlier this year to facilitate compliance with the Americans with Disabilities Act (ADA) during interactions criminal justice entities. Read about what the guidelines include.
- Estimated Social Security Increase: It's estimated that people who receive Social Security could see an increase in 2018. Find out what the estimate is based on.
- Sidewalk Requirements: A new paper explains the historical and modern state of the ADA's legal influence on sidewalks and answers important legal questions about the duties of local communities and governments under the ADA. Learn about available resources for businesses and governments to use in planning for accessible sidewalks.
- Supported Decision Making: The Council on Quality and Leadership recently issued a paper about applying approaches of Supported Decision Making in the US. Read about practices and benefits of Supported Decision Making.
- Best Cities for People with Disabilities: Wallethub released its annual "Best & Worst Cities for People with Disabilities" report. Find out which two Wisconsin cities are in the top 150 best cities.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: Long-Term Services And Supports And Caregiving For Adults Aging With Disability--Session 1: October 16th, 11a.m. to 1p.m., Online
- Veterans' Resource Fair: October 16th-17th, Waukesha County Expo Center Arena, Waukesha WI
- Webinar: Advances At The Intersection Of Aging And Long-Term Disability-- Session 2: October 18th, 11a.m. to 1p.m., Online
- Webinar: Advances At The Intersection Of Aging And Long-Term Disability-- Session 3: October 20th, 11a.m. to 1p.m., Online
- 2017 Self-Determination Conference: November 1st-3rd, Kalahari Resort, Wisconsin Dells WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Time is Running Out...Register Today!
There is still time to register for the 10th annual Self-Determination Conference. This conference works to empower people with disabilities in Wisconsin to have more control over their lives. More than 600 people each year participate in the conference to learn more about self-determination and self directed supports so they can live independently, be members of their communities, and use public funds efficiently. The conference participants include people with disabilities and their family members, direct care providers, and professionals from Wisconsin’s disability community. View this year's conference brochure and register today!
Diehard Award Nominations
Do you know someone who goes above and beyond to improve community supports for individuals with disabilities? Do they support self-determination? Nominate them for a Diehard Award! A Diehard is an individual who has made a significant contribution to the advocacy work here in Wisconsin. A diehard is someone with a steadfast commitment to the principles of community integration and self-determination. Diehards go above and beyond to make sure everyone is counted. Awards will be presented at the Self-Determination Conference on November 3rd at the Kalahari Resort and Conference Center in the Wisconsin Dells. Nominations are due on Friday, October 6th. Nominate someone today!
Stacy’s Journal
Lately, it seems like all of the news coverage has been about the catastrophic storms that are happening around the world. Back to back major hurricanes in the south, wildfires in the west, earthquakes in Mexico… it seems endless. This month, Stacy discusses what extra steps people with disabilities have to take when Mother Nature throws curve balls. We encourage you to share your experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Care Homes of the Future: As populations around the world begin to live for longer than they ever have, their individual needs related to their health become even more complex which means is that care homes need to use greater amounts of, and more intelligent, assistive technologies. Learn what else research suggests.
- Special Needs Trust Flexibility: Thanks to a new law, people with disabilities can establish special needs trusts for themselves. Read how this will help people save money.
- Self-Driving Wheelchairs: Researchers and robotics experts say they have developed cost-effective technology that would allow power wheelchairs to drive themselves. Find out what these chairs are expected to cost.
- The Eclipse in Real Time: The solar eclipse that happened last month was viewed by millions of Americans. Learn how thanks to technology people with visual impairments wee able to experience the eclipse.
- Automated Home: Although initially developed by engineers to recreate sci-fi fantasies, smart homes in modern times are important tools for increasing agency and accessibility for elderly people and people with disabilities. Read about how new technology is helping people live more independent.
- Call for Proposals: Proposals to present at the 2018 National ADA Symposium are now being accepted. The submission deadline is September 30th.
- Emergency Preparedness: For older people and people with disabilities, emergency preparation is a must. The Administration for Community Living has put together resources for how to prepare for an emergency.
- Voters with Disabilities: New data has been released on voting experiences for people with disabilities. Learn what the data showed.
- Housing Barriers: As people with developmental disabilities increasingly live in community-based settings, a new report finds that they face a multitude of barriers in obtaining housing. Read about what's being done to try to resolve these.
Upcoming Events
Here's a sample of upcoming events listed on the Self-Determination Network:
- Sibshop Kickoff: September 17th, 3p.m. to 5p.m., The Building for Kids, Appleton WI
- Webinar: Section 504 Workshop: September 19th, 12p.m., Online
- Red Roskopf Day AbilityFest Celebrating Communities And Families: October 1st, The Golf Club at Camelot, Lomira WI
- The Riot 2017 National Conversation: October 5th, Teleconference
- Veterans' Resource Fair: October 16th-17th, Waukesha County Expo Center Arena, Waukesha WI
- 2017 Self-Determination Conference: November 1st to 3rd, Kalahari Resort, Wisconsin Dells WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
August 2017
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Early Bird Registration Ends September 1st...Register Today!
Registration is now open for the 10th annual Self-Determination Conference. This conference works to empower people with disabilities in Wisconsin to have more control over their lives. More than 600 people each year participate in the conference to learn more about self-determination and self directed supports so they can live independently, be members of their communities, and use public funds efficiently. The conference participants include people with disabilities and their family members, direct care providers, and professionals from Wisconsin’s disability community. Early bird registration ends on September 1st. Register today!
Diehard Award Nominations
Do you know someone who goes above and beyond to improve community supports for individuals with disabilities? Do they support self-determination? Nominate them for a Diehard Award! A Diehard is an individual who has made a significant contribution to the advocacy work here in Wisconsin. A diehard is someone with a steadfast commitment to the principles of community integration and self-determination. Diehards go above and beyond to make sure everyone is counted. Awards will be presented at the Self-Determination Conference on November 3rd at the Kalahari Resort and Conference Center in the Wisconsin Dells. Nominations are due on Friday, October 6th. Nominate someone today!
Annual Caregiver Award Nominations
Do you know a caregiver or team that deserves to be honored for the great work they do? The Wisconsin Long-Term Care Workforce Alliance’s Annual Caregiver Awards are the only statewide recognition of these outstanding individuals and teams working tirelessly in all service locations. Nominations are due this Friday, August 18th. Learn how to nominate someone deserving!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better. For August, we shine the spotlight on Barb. When she’s not traveling the world or reading mystery novels, she is busy helping people with self-direction. She is a firm believer in using this Network as a resource to connect with others. Stop by this month's Member Spotlight to get to know Barb.
Who should we shine the Spotlight on next?
Most people don’t think twice about stepping off a sidewalk curb or running up a flight of stairs to get to their favorite restaurant. For people with disabilities, simple tasks such as these often present many challenges. In this month's entry, Stacy discusses how laws such as the Americans with Disabilities Act have greatly improved life for people with disabilities, but, yet, there's much room for improvement. We encourage you to share your experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Wisconsin's Direct Care Worker Shortage: It's no secret that Wisconsin has reached a crisis level shortage of direct care workers. Find out why advocates feel that the 2% increase in long-term care isn't enough.
- The 27th Anniversary of the ADA: July marked the 27th anniversary of the Americans with Disabilities Act (ADA). This publication put out by the Department of Justice highlights the enforcement efforts of the law this year.
- Call for Presenters: Proposals to present at the 2018 Circle of Life Conference are now being accepted. Proposals are due October 5th.
- Symbol of Access Controversy: The international symbol of access was redesigned a few years ago. Learn about the controversy surrounding the new symbol.
- Uber Accessibility Lawsuit: Uber was recently sued by the Equal Rights Center, a civil rights nonprofit based in Washington, D.C., for violating the Americans with Disabilities Act. Find out why.
- Gaming Accessibility: Gaming is becoming more and more popular. Read about how one nonprofit organization is aiming make video games accessible for people with disabilities.
- Test Driving: Buying a new car is both exciting and a big decision for most people. Learn how a recent court ruling confirmed that individuals who use hand controls to operate cars and trucks have equal right to test drive vehicles before purchasing them.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: “Putting Accessibility Law In Your Pocket: The Digital Accessibility Legal Update”: August 15th, 1p.m. to 2:30p.m., Online
- US Wake Sports Festival: August 15th to 16th, Traxler Park, Janesville WI
- Webinar: #ABLEtoSave Series: Understanding Qualified Disability Expenses: August 16th, 1p.m. to 2p.m., Online
- Adaptive Water Skiing: August 16th, 2p.m. to 6p.m., Fischer Park, Burlington, WI
- Adaptive Water Skiing: August 23rd, 10a.m. to 4p.m., Brittingham Park, Madison WI
- Fishing Has No Boundaries: August 26th, 4:30a.m. to 1:30p.m., Lakeshore State Park Inlet Grounds & Docks, Milwaukee WI
- Adaptive Water Skiing: September 6th, 2p.m. to 6p.m., Fischer Park, Burlington, WI
- Red Roskopf Day AbilityFest Celebrating Communities And Families: October 1st, The Golf Club at Camelot, Lomira WI
- The Riot 2017 National Conversation: October 5th, Teleconference
- Veterans' Resource Fair: October 16th-17th, Waukesha County Expo Center Arena, Waukesha WI
- 2017 Self-Determination Conference: November 1st to 3rd, Kalahari Resort, Wisconsin Dells WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
July 2017
Connect | Share | Learn | http://sdnetworkwi.org/
Registration is now open for the 10th annual Self-Determination Conference. This conference works to empower people with disabilities in Wisconsin to have more control over their lives. More than 600 people each year participate in the conference to learn more about self-determination and self directed supports so they can live independently, be members of their communities, and use public funds efficiently. The conference participants include people with disabilities and their family members, direct care providers, and professionals from Wisconsin’s disability community. Register today!
Changes to Medicaid and the AHCA
The Senate has delayed its vote on the American Health Care Act (AHCA) until after its summer recess. There is a lot at stake for Wisconsin in this vote. The AHCA cuts federal Medicaid funding by 25% over 10 years and eliminates key health care protections for children and adults with disabilities. Estimates indicate Wisconsin could lose $1 billion in funding and put many essential programs and supports for children/adults with disabilities and seniors at risk. These significant cuts to Medicaid mean cuts to Wisconsin programs like Family Care, IRIS, the Children’s waiver, BadgerCare, mental health programs like CCS, Katie Beckett, SeniorCare, autism services, therapies like OT, PT and Speech, personal care, supports provided in schools and even Aging and Disability Resource Centers. Many of these are “optional services” in Medicaid and are at significant risk of being cut or eliminated. We encourage people to continue to contact the Wisconsin Senators to ask questions and share their thoughts about this bill.
Whether it’s going to the store to get milk, going to work, going to a doctor apportionment, or meeting friends for dinner, most people get out of their house on a daily basis. For many people with disabilities, going out isn’t always easy. In this month's entry, Stacy discusses how transportation is often one of the biggest barriers she faces. We encourage you to share your experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Guardianship Survey: The Wisconsin Board for People with Developmental Disabilities is conducting a survey in hopes of gathering information from a variety of stakeholders about their knowledge of and experience(s) with Wisconsin's adult guardianship system and children transitioning into adulthood to assist the Board in better understanding which issues should be prioritized for short-term and long-term planning and action. The survey closes August 1st.
- Caregiver Awards: Do you know a caregiver or team that deserves to be honored for the great work they do? The Wisconsin Long-Term Care Workforce Alliance’s Annual Caregiver Awards are the only statewide recognition of these outstanding individuals and teams working tirelessly in all service locations. Nominations are due August 1st.
- Big City Challenges: Even with the American with Disabilities Act (ADA) and federal legislation to protect the people with disabilities, studies find that too many American citizens are restricted in where they can go or live due to lack of handicap-accessible accommodations. Find out what many people feel is causing this.
- New Technology Eases Transportation Issues: Public transportation often causes difficulty and stress for people with disabilities. Read about how modern technology firms are working to change this.
- Update to Building Accessibility Standards: The International Code Council recently released an update to 2009 Accessible and Usable Buildings and Facilities standards that provide greater accessibility to buildings for persons with physical disabilities and incorporates new elements of building design. Learn what the new standards include.
- Pros and Cons of On-Demand Services: These days, people can do anything from make doctor appointments to get groceries or prepared meals delivered with just a click of a button. While these on-demand services are often very for people with disabilities, they often come with some limitations. Read about the benefits and risks of three common on-demand services.
- MCOs and Consultant Agencies Selected for Dane County: The Wisconsin Department of Health Services recently announced the managed care organizations selected to serve Family Care members and the IRIS consultant agencies that intend to serve participants in the IRIS program in Dane County. Find out which care organizations and consultant agencies were selected.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Adaptive Water Skiing: July 22nd, 5p.m. to 8p.m., South Wood County Park, Wisconsin Rapids WI
- Adaptive Water Skiing: July 26th, 10a.m. to 4p.m., Brittingham Park, Madison WI
- 2017 ADRC Open House: Focus On ABiLiTY: July 26th, 1p.m. to 4p.m, Health & Human Services Building, Waukesha WI
- Adaptive Water Skiing: July 26th, 2p.m. to 6p.m., Fischer Park, Burlington, WI
- The Green Room With Dawn Green: July 26th, 6p.m. to 8:30p.m., Fuel Cafe, Milwaukee WI
- AbilityWI Now!: July 26th, 9p.m. to 10p.m., Online
- Disability Pride Festival: July 29th, 12p.m. to 5p.m., Tenney Park, Madison WI
- Adaptive Water Skiing Picnic: July 30th, 10a.m. to 8:30p.m., Fischer Park, Burlington, WI
- Adaptive Water Skiing - Veterans Clinic: August 9th, 9a.m. to 3p.m., Lance Park, Twin Lakes WI
- Adaptive Water Skiing: August 9th, 10a.m. to 4p.m., Brittingham Park, Madison WI
- US Wake Sports Festival: August 15th to 16th, Traxler Park, Janesville WI
- Adaptive Water Skiing: August 16th, 2p.m. to 6p.m., Fischer Park, Burlington, WI
- Adaptive Water Skiing: August 23rd, 10a.m. to 4p.m., Brittingham Park, Madison WI
- Fishing Has No Boundaries: August 26th, 4:30a.m. to 1:30p.m., Lakeshore State Park Inlet Grounds & Docks, Milwaukee WI
- Adaptive Water Skiing: September 6th, 2p.m. to 6p.m., Fischer Park, Burlington, WI
- Red Roskopf Day AbilityFest Celebrating Communities And Families: October 1st, The Golf Club at Camelot, Lomira WI
- Veterans' Resource Fair: October 16th-17th, Waukesha County Expo Center Arena, Waukesha WI
- 2017 Self-Determination Conference: November 1st to 3rd, Kalahari Resort, Wisconsin Dells WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
June 2017
Connect | Share | Learn | http://sdnetworkwi.org/
2017 Disability Pride Fest
The 5th annual Disability Pride Festival will be held on Saturday July 29th from 12p.m. to 5p.m. at Tenney Park in Madison, near where the Yahara River empties into Lake Mendota. Each year, the festival brings together artists, performers, advocates, and organizations to celebrate the contributions made by people with disabilities to the local community. Well-known local talent such as Tara Ayres, Tani Diakite and the Afrofunkstars, First Wave performers Lewis Elder, and others have graced the stage in previous years. This year, Gaelynn Lea, winner of NPR’s Tiny Desk Competition, is coming back. New groups of performers will be joining the fun as well. Visit the website for more information!
Changes to Medicaid and the AHCA
Members of the U.S. Senate are working behind closed doors on their own version of American Health Care Act (AHCA). The U.S. Senate is preparing to vote on the AHCA within the next two weeks. There is a lot at stake for Wisconsin in this vote. The AHCA cuts federal Medicaid funding by 25% over 10 years and eliminates key health care protections for children and adults with disabilities. Estimates indicate Wisconsin could lose $1 billion in funding and put many essential programs and supports for children/adults with disabilities and seniors at risk.
There have been no public hearings held on these major proposed changes. These significant cuts to Medicaid mean cuts to Wisconsin programs like Family Care, IRIS, the Children’s waiver, BadgerCare, mental health programs like CCS, Katie Beckett, SeniorCare, autism services, therapies like OT, PT and Speech, personal care, supports provided in schools and even Aging and Disability Resource Centers. Many of these are “optional services” in Medicaid and are at significant risk of being cut or eliminated.
In addition, the Senate is also debating things such as even larger cuts to Medicaid, weakening protections for people with disabilities and other pre-existing conditions by allowing states to charge them more for health care, and allowing states to stop providing Essential Health Benefits (rehabilitative services and devices, mental health services, prescription drug coverage, etc...).
There is going to be a Community Conversation About Changes to Medicaid in Wisconsin held in Oshkosh on Thursday evening of this week. We encourage people to attend and/or contact the Wisconsin Senators to ask questions and share their thoughts about this bill.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better. For June, we shine the spotlight on Ann. This enthusiastic IRIS Consultant just won an award for Customer Experience/Living the Brand. She encourages people to be creative and to dare to dream. She enjoys watching people light up when they start discovering life’s possibilities. Stop by this month's Member Spotlight to get to know Ann.
Who should we shine the Spotlight on next?
Ever want just one day where everything goes right? In this month's entry, Stacy shares how she was bound and determined to make that day happen, but, sometimes, life throws you unexpected curves. We encourage you to share your experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- Inclusive Design: Making sure that websites and apps are accessible to people with disabilities has become a big emphasis. Learn the difference between "accessibility" and "usability" when it comes to websites and apps, and what things developers have to think about when creating them.
- Long-Term Care Survey: The Waisman Center is conducting a WI Adult Long Term Care Survey. Take the survey now.
- Accessibility of Fitness Centers: A recent study found that people with physical disabilities have limited opportunities to participate in physical activity. Read about the factors causing this.
- Health Care Kit: The Wisconsin Board for People with Developmental Disabilities has developed a Self-directed Health Care Kit designed to help individuals with developmental and intellectual disabilities advocate for their own health care. Check it out.
- Disability Statistics: A report recently came out about disability statistics in the US. Take a look at the statistics for Wisconsin.
- SPARKS Grants: Applications are now being accepted for SPARKS Grants which are mini-grants of $500 to $3,000 are designed to help community groups of people with disabilities and family members make a change in their community. Apply today!
- Partners in Policymaking: Partners in Policymaking is a leadership program for self-advocates, siblings, and parents of children birth to 21 meets six times in the coming year from Friday at noon to Saturday afternoon in Madison. Learn more and apply today!
Here's a sample of upcoming events listed on the Self-Determination Network:
- Adaptive Bike Station Launch: June 21st, 4p.m. to 5p.m., Hart Park, Wauwatosa WI
- Community Conversation About Changes to Medicaid in Wisconsin: June 22nd, 6p.m. to 7:30p.m., Oshkosh West High School, Oshkosh WI
- Adaptive Water Skiing: June 28th, 10a.m. to 4p.m., Brittingham Park, Madison WI
- Wisconsin Youth Leadership Forum: July 9th to 14th, Edgewood College, Madison, WI
- Adaptive Water Skiing: July 12th, 10a.m. to 4p.m., Brittingham Park, Madison WI
- Adaptive Water Skiing: July 26th, 10a.m. to 4p.m., Brittingham Park, Madison WI
- 2017 ADRC Open House: Focus On ABiLiTY: July 26th, 1p.m. to 4p.m, Health & Human Services Building, Waukesha WI
- Adaptive Water Skiing: July 26th, 2p.m. to 6p.m., Fischer Park, Burlington, WI
- Disability Pride Festival: July 29th, 12p.m. to 5p.m., Tenney Park, Madison WI
- Adaptive Water Skiing Picnic: July 30th, 10a.m. to 8:30p.m., Fischer Park, Burlington, WI
- Adaptive Water Skiing: August 9th, 10a.m. to 4p.m., Brittingham Park, Madison WI
- US Wake Sports Festival: August 15th to 16th, Traxler Park, Janesville WI
- Adaptive Water Skiing: August 16th, 2p.m. to 6p.m., Fischer Park, Burlington, WI
- Adaptive Water Skiing: August 23rd, 10a.m. to 4p.m., Brittingham Park, Madison WI
- Adaptive Water Skiing: September 6th, 2p.m. to 6p.m., Fischer Park, Burlington, WI
- Red Roskopf Day AbilityFest Celebrating Communities And Families: October 1st, The Golf Club at Camelot, Lomira WI
- Veterans' Resource Fair: October 16th-17th, Waukesha County Expo Center Arena, Waukesha WI
- 2017 Self-Determination Conference: November 1st to 3rd, Kalahari Resort, Wisconsin Dells WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
May 2017
Connect | Share | Learn | http://sdnetworkwi.org/
Register now for the 4th annual Aging Empowerment Conference: Living a Self-Determined Life which will be held June 6th (full conference) and June 7th (Self-Determination Summit) at the Glacier Canyon Lodge Conference Center at the Wilderness Resort in Wisconsin Dells. Sponsored by InControl Wisconsin, this unique event gathers older adults, their families, and the professionals who support them and explores self-determination and empowerment in aging. Registration closes June 1st. Learn more and register today!
Changes to Medicaid and the AHCA
Recently, the U.S. House passed a health reform bill (AHCA) that cuts Medicaid funding by 25%, and jeopardizes the important Medicaid supports that makes it possible for people with disabilities to live and work in the community instead of being forced into nursing homes or institutions. People with intellectual and developmental disabilities rely on Wisconsin’s 20 Medicaid programs— including Family Care, IRIS, MAPP, BadgerCare—and the ForwardHealth card to stay healthy, become employed, and remain in their homes. Medicaid also provides essential therapies, equipment, special education services and equipment from physical therapists to feeding tubes, and many other services critical to people with disabilities and often makes the difference between caregivers being able to keep their jobs or leaving the workforce to care for family members. The House bill caps and cuts federal funding for the entire Medicaid program without placing any controls on rising health care, prescription, and other increasing costs. The bill suggests per capita caps and block grants to Medicaid, which will force states to make decisions on who should be covered under state Medicaid programs, whether people have to wait for services, and what community based services and supports are included.
The version of the bill passed by the House also allows states to charge people with pre-existing conditions more for their health care and lets health insurance plans stop providing Essential Health Benefits like prescription drugs, speech, physical and occupational therapies, and mental health and substance use disorder treatments. The AHCA has now moved to the Senate, where a 13-member working group has been established to draft a Senate health care bill that will draw 51 votes of support. We encourage people to contact the Wisconsin Senators to ask questions and share their thoughts about this bill.
Eating is a necessity of human survival, but it’s also a very social activity. In this month's entry, Stacy discusses some of the many challenges that people with disabilities face during mealtime. We encourage you to share your experiences as well.
Take five minutes to check out what's happening on the Self-Determination Network:
- New Approval Process for Personal Care Services: The process for accessing personal care services through Medicaid is changing for those who are enrolled in “fee for services” Medicaid. Learn how this will impact people.
- Interesting Court Case: An interesting court case has recently surfaced about how the McDonald's website and mobile app violate the Americans with Disabilities Act (ADA). Find out why McDonald's is being sued.
- Waterproof Wheelchair: A new wheelchair has been invented that is lightweight, waterproof, and does not require batteries. Read about how this chair works.
- Economic Barriers: A recently released report finds that 27 years after the Americans with Disabilities Act was signed into law, people with disabilities still face many hurdles to financial inclusion. Learn what else the report reveals.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Aging Advocacy Day: May 17th, 10a.m. to 4p.m., State Capitol, Madison WI
- Webinar: Understanding Saving And Investor Choices For ABLE Account Owners: May 24th, 1p.m. to 2:30p.m., Online
- 2017 Aging Empowerment Conference: June 6th-7th, Glacier Canyon Lodge Conference Center at the Wilderness Resort, Wisconsin Dells WI
- Adaptive Water Skiing: June 14th, 10a.m. to 4p.m., Brittingham Park, Madison WI
- Adaptive Water Skiing: June 28th, 10a.m. to 4p.m., Brittingham Park, Madison WI
- Wisconsin Youth Leadership Forum: July 9th to 14th, Edgewood College, Madison, WI
- Adaptive Water Skiing: July 12th, 10a.m. to 4p.m., Brittingham Park, Madison WI
- Adaptive Water Skiing: July 26th, 10a.m. to 4p.m., Brittingham Park, Madison WI
- Adaptive Water Skiing: July 26th, 2p.m. to 6p.m., Fischer Park, Burlington, WI
- Adaptive Water Skiing Picnic: July 30th, 10a.m. to 8:30p.m., Fischer Park, Burlington, WI
- Adaptive Water Skiing: August 9th, 10a.m. to 4p.m., Brittingham Park, Madison WI
- US Wake Sports Festival: August 15th to 16th, Traxler Park, Janesville WI
- Adaptive Water Skiing: August 16th, 2p.m. to 6p.m., Fischer Park, Burlington, WI
- Adaptive Water Skiing: August 23rd, 10a.m. to 4p.m., Brittingham Park, Madison WI
- Adaptive Water Skiing: September 6th, 2p.m. to 6p.m., Fischer Park, Burlington, WI
- Red Roskopf Day AbilityFest Celebrating Communities And Families: October 1st, The Golf Club at Camelot, Lomira WI
- Veterans' Resource Fair: October 16th-17th, Waukesha County Expo Center Arena, Waukesha WI
- 2017 Self-Determination Conference: November 1st to 3rd, Kalahari Resort, Wisconsin Dells WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.