SD Network

Category: Network News


96 Self-Determination Network News:

August 2017

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Early Bird Registration Ends September 1st...Register Today!

Registration is now open for the 10th annual Self-Determination Conference. This conference ​works ​to ​empower ​people ​with ​disabilities ​in ​Wisconsin ​to ​have ​more ​control ​over ​their ​lives. ​More ​than ​600 ​people ​each ​year ​participate ​in ​the ​conference ​to ​learn ​more ​about ​self-determination ​and ​self ​directed ​supports ​so ​they ​can ​live ​independently, ​be ​members ​of ​their ​communities, ​and ​use ​public ​funds ​efficiently. ​The ​conference ​participants ​include ​people ​with ​disabilities ​and ​their ​family ​members, ​direct ​care ​providers, ​and ​professionals ​from ​Wisconsin’s ​disability ​community.  Early bird registration ends on September 1st. Register today! 

Diehard Award Nominations

Do you know someone who goes above and beyond to improve community supports for individuals with disabilities? Do they support self-determination? Nominate them for a Diehard Award! A Diehard is an individual who has made a significant contribution to the advocacy work here in Wisconsin. A diehard is someone with a steadfast commitment to the principles of community integration and self-determination. Diehards go above and beyond to make sure everyone is counted. Awards will be presented at the Self-Determination Conference on November 3rd at the Kalahari Resort and Conference Center in the Wisconsin Dells. Nominations are due on Friday, October 6th. Nominate someone today!

Annual Caregiver Award Nominations

Do you know a caregiver or team that deserves to be honored for the great work they do?  The Wisconsin Long-Term Care Workforce Alliance’s Annual Caregiver Awards are the only statewide recognition of these outstanding individuals and teams working tirelessly in all service locations.  Nominations are due this Friday, August 18th. Learn how to nominate someone deserving!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.  For August, we shine the spotlight on Barb. When she’s not traveling the world or reading mystery novels, she is busy helping people with self-direction.  She is a firm believer in using this Network as a resource to connect with others. Stop by this month's Member Spotlight to get to know Barb.

Who should we shine the Spotlight on next?

128 Stacy’s Journal

Most people don’t think twice about stepping off a sidewalk curb or running up a flight of stairs to get to their favorite restaurant. For people with disabilities, simple tasks such as these often present many challenges. In this month's entry, Stacy discusses how laws such as the Americans with Disabilities Act have greatly improved life for people with disabilities, but, yet, there's much room for improvement.  We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Wisconsin's Direct Care Worker Shortage:  It's no secret that Wisconsin has reached a crisis level shortage of direct care workers.  Find out why advocates feel that the 2% increase in long-term care isn't enough.
  • The 27th Anniversary of the ADA:  July marked the 27th anniversary of the Americans with Disabilities Act (ADA).  This publication put out by the Department of Justice highlights the enforcement efforts of the law this year.
  • Call for Presenters:  Proposals to present at the 2018 Circle of Life Conference are now being accepted.  Proposals are due October 5th.
  • Symbol of Access Controversy:  The international symbol of access was redesigned a few years ago.  Learn about the controversy surrounding the new symbol.
  • Uber Accessibility Lawsuit:   Uber was recently sued by the Equal Rights Center, a civil rights nonprofit based in Washington, D.C., for violating the Americans with Disabilities Act.  Find out why.
  • Gaming Accessibility:  Gaming is becoming more and more popular. Read about how one nonprofit organization is aiming make video games accessible for people with disabilities.
  • Test Driving:   Buying a new car is both exciting and a big decision for most people.  Learn how a recent court ruling confirmed that individuals who use hand controls to operate cars and trucks have equal right to test drive vehicles before purchasing them. 

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: July 2017


By SD Network, 2017-07-13

96 Self-Determination Network News:

July 2017

Connect Share Learn http://sdnetworkwi.org/  

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Registration is now open for the 10th annual Self-Determination Conference. This conference ​works ​to ​empower ​people ​with ​disabilities ​in ​Wisconsin ​to ​have ​more ​control ​over ​their ​lives. ​More ​than ​600 ​people ​each ​year ​participate ​in ​the ​conference ​to ​learn ​more ​about ​self-determination ​and ​self ​directed ​supports ​so ​they ​can ​live ​independently, ​be ​members ​of ​their ​communities, ​and ​use ​public ​funds ​efficiently. ​The ​conference ​participants ​include ​people ​with ​disabilities ​and ​their ​family ​members, ​direct ​care ​providers, ​and ​professionals ​from ​Wisconsin’s ​disability ​community. Register today! 

Changes to Medicaid and the AHCA

The Senate has delayed its vote on the American Health Care Act (AHCA) until after its summer recess. There is a lot at stake for Wisconsin in this vote. The AHCA cuts federal Medicaid funding by 25% over 10 years and eliminates key health care protections for children and adults with disabilitiesEstimates indicate Wisconsin could lose $1 billion in funding and put many essential programs and supports for children/adults with disabilities and seniors at risk. These significant cuts to Medicaid mean cuts to Wisconsin programs like Family Care, IRIS, the Children’s waiver, BadgerCare, mental health programs like CCS, Katie Beckett, SeniorCare, autism services, therapies like OT, PT and Speech, personal care, supports provided in schools and even Aging and Disability Resource Centers. Many of these are “optional services” in Medicaid and are at significant risk of being cut or eliminated.  We encourage people to continue to contact the Wisconsin Senators to ask questions and share their thoughts about this bill.

128 Stacy’s Journal

Whether it’s going to the store to get milk, going to work, going to a doctor apportionment, or meeting friends for dinner, most people get out of their house on a daily basis. For many people with disabilities, going out isn’t always easy. In this month's entry, Stacy discusses how transportation is often one of the biggest barriers she faces. We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Guardianship Survey:  The Wisconsin Board for People with Developmental Disabilities is conducting a survey in hopes of gathering information from a variety of stakeholders about their knowledge of and experience(s) with Wisconsin's adult guardianship system and children transitioning into adulthood to assist the  Board in better understanding which issues should be prioritized for short-term and long-term planning and action.  The survey closes August 1st.
  • Caregiver Awards: Do you know a caregiver or team that deserves to be honored for the great work they do?  The Wisconsin Long-Term Care Workforce Alliance’s Annual Caregiver Awards are the only statewide recognition of these outstanding individuals and teams working tirelessly in all service locations.  Nominations are due August 1st.
  • Big City Challenges:  Even with the American with Disabilities Act (ADA) and federal legislation to protect the people  with disabilities, studies find that too many American citizens are restricted in where they can go or live due to lack of handicap-accessible accommodations. Find out what many people feel is causing this.
  • New Technology Eases Transportation Issues:  Public transportation often causes difficulty and stress for people with disabilities. Read about how modern technology firms are working to change this. 
  • Update to Building Accessibility Standards:  The  International Code Council recently released an update to 2009 Accessible and Usable Buildings and Facilities standards that provide greater accessibility to buildings for persons with physical disabilities and incorporates new elements of building design.  Learn what the new standards include.
  • Pros and Cons of On-Demand Services:  These days, people can do anything from make doctor appointments to get groceries or prepared meals delivered with just a click of a button.  While these on-demand services are often very for people with disabilities, they  often come with  some limitations.   Read about the benefits and risks of three common on-demand services.
  • MCOs and Consultant Agencies Selected for Dane County:  The Wisconsin Department of Health Services recently announced the managed care organizations selected to serve Family Care members and the IRIS consultant agencies that intend to serve participants in the IRIS program in Dane County.  Find out which care organizations and consultant agencies were selected.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: June 2017


By SD Network, 2017-06-19

96 Self-Determination Network News:

June 2017

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2017 Disability Pride Fest

The 5th annual Disability Pride Festival will be held on Saturday July 29th from 12p.m. to 5p.m. at Tenney Park in Madison, near where the Yahara River empties into Lake Mendota. Each year, the festival brings together artists, performers, advocates, and organizations to celebrate the contributions made by people with disabilities to the local community. Well-known local talent such as Tara Ayres, Tani Diakite and the Afrofunkstars, First Wave performers Lewis Elder, and others have graced the stage in previous years. This year, Gaelynn Lea, winner of NPR’s Tiny Desk Competition, is coming back.  New groups of performers will be joining the fun as well.  Visit the website for more information!

Changes to Medicaid and the AHCA

Members of the U.S. Senate are working behind closed doors on their own version of American Health Care Act (AHCA).  The U.S. Senate is preparing to vote on the AHCA within the next two weeks. There is a lot at stake for Wisconsin in this vote. The AHCA cuts federal Medicaid funding by 25% over 10 years and eliminates key health care protections for children and adults with disabilitiesEstimates indicate Wisconsin could lose $1 billion in funding and put many essential programs and supports for children/adults with disabilities and seniors at risk.

There have been no public hearings held on these major proposed changes. These significant cuts to Medicaid mean cuts to Wisconsin programs like Family Care, IRIS, the Children’s waiver, BadgerCare, mental health programs like CCS, Katie Beckett, SeniorCare, autism services, therapies like OT, PT and Speech, personal care, supports provided in schools and even Aging and Disability Resource Centers. Many of these are “optional services” in Medicaid and are at significant risk of being cut or eliminated.  

In addition, the Senate is also debating things such as even larger cuts to Medicaid, weakening protections for people with disabilities and other pre-existing conditions by allowing states to charge them more for health care, and allowing states to stop providing Essential Health Benefits (rehabilitative services and devices, mental health services, prescription drug coverage, etc...).

There is going to be a Community Conversation About Changes to Medicaid in Wisconsin held in Oshkosh on Thursday evening of this week. We encourage people to attend and/or contact the Wisconsin Senators to ask questions and share their thoughts about this bill.  

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.  For June, we shine the spotlight on Ann.   This enthusiastic IRIS Consultant just won an award for Customer Experience/Living the Brand.  She encourages people to be creative and to dare to dream.  She enjoys watching people light up when they start discovering life’s possibilities.   Stop by this month's Member Spotlight to get to know Ann.

Who should we shine the Spotlight on next?

128 Stacy’s Journal

Ever want just one day where everything goes right? In this month's entry, Stacy shares how she was bound and determined to make that day happen, but, sometimes, life throws you unexpected curves.  We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Inclusive Design:  Making sure that websites and apps are accessible to people with disabilities has become a big emphasis.  Learn the difference between "accessibility" and "usability" when it comes to websites and apps, and what things developers have to think about when creating them.
  • Long-Term Care Survey:  The Waisman Center is conducting a WI Adult Long Term Care Survey.  Take the survey now.
  • Accessibility of Fitness Centers:  A recent study found that people with physical disabilities have limited opportunities to participate in physical activity.  Read about the factors causing this.
  • Health Care Kit:  The Wisconsin Board for People with Developmental Disabilities has developed a Self-directed Health Care Kit designed to help individuals with developmental and intellectual disabilities advocate for their own health care.  Check it out.
  • Disability Statistics:  A report recently came out about disability statistics in the US.  Take a look at the statistics for Wisconsin.
  • SPARKS Grants:  Applications are now being accepted for SPARKS Grants which are mini-grants of $500 to $3,000 are designed to help community groups of people with disabilities and family members make a change in their community.  Apply today!
  • Partners in Policymaking:  Partners in Policymaking is a leadership program for self-advocates, siblings, and parents of children birth to 21 meets six times in the coming year from Friday at noon to Saturday afternoon in Madison.  Learn more and apply today! 

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Self-Determination Network News: May 2017


By SD Network, 2017-05-15

96 Self-Determination Network News:

May 2017

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Register now for the 4th annual Aging Empowerment Conference: Living a Self-Determined Life which will be held June 6th (full conference) and June 7th (Self-Determination Summit) at  the Glacier Canyon Lodge Conference Center at the Wilderness Resort in Wisconsin Dells.  Sponsored by InControl Wisconsin, this unique event gathers older adults, their families, and the professionals who support them and explores self-determination and empowerment in aging.  Registration closes June 1st.  Learn more and register today!

Changes to Medicaid and the AHCA

Recently, the U.S. House passed a health reform bill (AHCA) that cuts Medicaid funding by 25%, and jeopardizes the important Medicaid supports that makes it possible for people with disabilities to live and work in the community instead of being forced into nursing homes or institutions. People with intellectual and developmental disabilities rely on Wisconsin’s 20 Medicaid programs— including Family Care, IRIS, MAPP, BadgerCare—and the ForwardHealth card to stay healthy, become employed, and remain in their homes. Medicaid also provides essential therapies, equipment, special education services and equipment from physical therapists to feeding tubes, and many other services critical to people with disabilities and often makes the difference between caregivers being able to keep their jobs or leaving the workforce to care for family members. The House bill caps and cuts federal funding for the entire Medicaid program without placing any controls on rising health care, prescription, and other increasing costs. The bill suggests per capita caps and block grants to Medicaid, which will force states to make decisions on who should be covered under state Medicaid programs, whether people have to wait for services, and what community based services and supports are included.  

The version of the bill passed by the House also allows states to charge people with pre-existing conditions more for their health care and lets health insurance plans stop providing Essential Health Benefits like prescription drugs, speech, physical and occupational therapies, and mental health and substance use disorder treatments. The AHCA has now moved to the Senate, where a 13-member working group has been established to draft a Senate health care bill that will draw 51 votes of support.  We encourage people to contact the Wisconsin Senators to ask questions and share their thoughts about this bill.  

128 Stacy’s Journal

Eating is a necessity of human survival, but it’s also a very social activity. In this month's entry, Stacy discusses some of the many challenges that people with disabilities face during mealtime. We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • New Approval Process for Personal Care Services:  The process for accessing personal care services through Medicaid is changing for those who are enrolled in “fee for services” Medicaid.  Learn how this will impact people.  
  • Interesting Court Case:  An interesting court case has recently surfaced about how the McDonald's website and mobile app violate the Americans with Disabilities Act (ADA).  Find out why McDonald's is being sued.  
  • Waterproof Wheelchair:  A new wheelchair has been invented that is lightweight, waterproof, and does not require batteries.  Read about how this chair works.   
  • Economic Barriers:  A recently released report finds that 27 years after the Americans with Disabilities Act was signed into law,  people with disabilities still face many hurdles to financial inclusion.    Learn what else the report reveals.    

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96 Self-Determination Network News: 

April 2017

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Let Your Voice Be Heard!

The State legislature’s Joint Finance Committee has finished most of the public hearings on the 2017-2019 state budget.  There are three more public hearings remaining.  The proposed budget includes small increases for some programs such as specialized transportation and the Medicaid Personal Care program.  These increases do not reflect the actual need and are not guaranteed to stay in the budget.  This is your opportunity to let members of the JFC know what you like and what you don’t like! 

Aging Advocacy Day

Are you interested in issues affecting older adults? You’re invited to join members of the Wisconsin Aging Advocacy Network (WAAN) and others to help educate state legislators about issues affecting Wisconsin’s aging population.

On Wednesday May 17th, citizens from around the state will gather in Madison for a day of advocacy training and meetings with legislators. No experience is necessary; you’ll get the training and support you need before meeting with state lawmakers. Following the training, join others from your assembly and senate district to provide information and share personal stories with your legislators to help them understand how specific legislative policies impact older constituents.  Registration closes May 1st. Learn more and register today!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.  For April, we shine the spotlight on Kurt.   This avid water skier  is involved in a plethora of disability organizations. He believes self-determination is about lifestyle development and letting people be the best versions of themselves. Stop by this month's Member Spotlight to get to know Kurt.

Who should we shine the Spotlight on next?

128 Stacy’s Journal

For this month's entry, Stacy talks about how having a physical disability impacts a person's fashion. We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Supporting Wellness Resource:  Here's a great resource about health and wellness activities for people who have disabilities. Check it out!
  • Health and Transition Resource:  PACER's National Parent Center on Transition & Employment has a new section on their website focused on health and transition for students with disabilities.  Discover what information it has to offer.
  • Neat Photo Exhibit:  A photographer did a neat project where she  took photos and interviewed people with disabilities about what they wish others understood about their condition.  Check out the photos.
  • 'Special Needs' Controversy:  A group of celebrities are taking a stand against the term "special needs."  Learn about what they are did to demonstrate that everyone has the same needs.
  • Caregiver Career Program:  In an effort to attract and retain more nursing home caregivers, Wisconsin is launching an innovative program called the Caregiver Career Program. Find out more about the program.
  • New App:  A new dating app, Glimmer, is trying to create an inclusive space for online dating, particularly for people with disabilities.  Learn about this app.
  • Interesting Court Case:  There is an interesting court case going on about how existing 911 services are inaccessible to people who have hearing impairments.  Read about the case.
  • Accessible Kiosks:  New kiosks are available which translates customer's selections into sign language.  Find out how these kiosks work. 
  • Impact of Care Worker Shortage:  The home care worker crisis isn't  just effecting people with disabilities who live independently in their own home or apartment; it's also effecting group homes and nursing homes.  Learn what many feel needs to be done to fix it.
  • ABLE Act Improvements:  Earlier this month, a bi-partisan group of Members of Congress introduced a group of individual bills that would better the benefits provided through the ABLE Act.  Read about the proposed bills.  

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96 Self-Determination Network News:

March 2017

Connect Share Learn http://sdnetworkwi.org/  

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dsc_5212 6 2.jpgThe keynote speaker for the 4th annual Aging Empowerment Conference: Living a Self-Determined Life, s
ponsored by InControl Wisconsin, will be the Associate State Director State Advocacy from AARP Wisconsin, Helen Marks Dicks.   The keynote address is titled, "Powerful Aging: Changing the Stories We Tell."  Relationships between generations, just like those between individuals, are often based on perceptions, both positive and negative. How powerful we are and how powerful people perceive us to be can be limited or enhanced by attitudes about aging.  On one hand, those perceptions can be empowering and enriching.  They can enable and embolden people to stand up for their beliefs in the face of fear.  They can cultivate passion and meaning out of the pursuit of lifelong goals and dreams.  On the other hand, negative perceptions, if left unchecked and unchallenged, can construct barriers that limit our possibilities and define us in terms of deficit, particularly when it comes to aging.  The challenge for each of us is to rewrite the narrative of aging and tell a story that we have written and the one we want to live.  Helen Marks Dicks will share her thoughts on how we can all express our own power as the author of our own life story and how together we can reshape perceptions of aging.

Watch for registration information for this year's Aging Empowerment Conference coming soon! 

State Budget Summary

The voices of people with disabilities and their families are so important in shaping public policy at the local, state and federal levels. Here's a great new document from People First WI that shows what's in the Governor's proposed budget for the WI disability community, along with questions you can ask your legislators and the Governor. You can also use this at Disability Advocacy Day on March 21st in Madison.  Let your voice be heard!

Changes to Medicaid and the ACA

The House Health Subcommittee of the Energy & Commerce Committee introduced the Affordable Care Act (ACA or Obamacare) replacement bill last week. A markup is the process by which congressional committees and subcommittees debate, amend, and rewrite proposed legislation. In addition, according to The Hill, the Congressional Budget Office (CBO) analysis of the bill is not ready. A CBO analysis shows items like how much the bill would cost and how many people could lose coverage.

The ACA contains many protections important to people with disabilities, including protections for people with pre-existing conditions, making sure that coverage people with disabilities need cannot be denied, and ensuring there is no lifetime limit on the amount of or cost of coverage you can receive.  This ACA bill contains major changes to Medicaid in the form of  Per Capita Caps--that will reduce funding and could result in changes to Wisconsin Medicaid funded programs like Family Care/IRIS, Katie Beckett, Children's Long-Term Supports, school and autism therapies and more. Medicaid makes it possible for people with disabilities and older adults to live in the community instead of nursing homes or institutions.  The Wisconsin Board for People with Developmental Disabilities has put together this presentation about how these changes would impact people with disabilities.  This article lists the top threats that these changes would pose to children and families.  Also, this video by the Kaiser Family Foundation does an excellent job of explaining how Medicaid currently works and what the proposed changes would mean for people. We encourage people to ask questions and share their thoughts about this proposal with their Representatives.  

128 Stacy’s Journal

In this month's entry, Stacy discusses how, just like everyone else, people with disabilities strive to be independent. She shares how a recent change in her life has been stressful, but, yet, has made her as independent as possible! We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • HCBS Statewide Transition Plan:  DHS is seeking public comment on its Medicaid Home and Community-Based Services statewide transition plan.  Let your voice be heard!
  • 2017 Employment First Conference:  The Employment First Conference focuses on things such as integrated employment.  Register for this year's conference today!
  • Tax Tips:  Regardless if they're working or not, people with disabilities and their caregivers usually have higher daily living and medical care costs. Learn about how some costs could be deductible. 
  • Worker Shortage:  Governor Walker's next budget calls for a four percent increase in the Medicaid reimbursement rate for personal care, but advocates say this won't solve the problem.  Find out why.
  • New App:  A new free app allows people who are deaf or hard of hearing to easily communicate with others.  Read about how this new app works.
  • Criminal Justice Entities:  The Department of Justice recently released a guidance statement to address various criminal justice entities regarding compliance of the Americans with Disabilities Act (ADA).  Find out what the statement ensures.
  • Update on Service Dogs:  Here's an update on a popular service dog case.  Learn how the U.S. Supreme Court ruled.
  • 2017 Circles of Life Conference:  There are several opportunities to participate in this year's Circles of Life Conference.  Find how you can get involved.
  • Disability Services Rating Site:  There's a new website where people can rate disability care and support options.  Read about how this website works.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96 Self-Determination Network News:

February 2017

Connect Share Learn http://sdnetworkwi.org/  

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The 4th annual Aging Empowerment Conference: Living a Self-Determined Life will be held June 6th (full conference) and June 7th (Self-Determination Summit) at  the Glacier Canyon Lodge Conference Center at the Wilderness Resort in Wisconsin Dells.  Sponsored by InControl Wisconsin, this unique event gathers older adults, their families, and the professionals who support them and explores self-determination and empowerment in aging. Presentation proposals and exhibitor applications are now being accepted.  The submission deadline has been extended to March 1st.  Apply today!

2017 Self-Determination Conference

Mark your calendars!  The 2017 Self-Determination will be held November 1-3 at the Kalahari Resort in Wisconsin Dells.  It's the 10th anniversary of the conference this year!  This year's theme is health and wellness.  Presentation proposals are now being accepted.  Proposals are due April 7th. Submit a proposal today

Disability Advocacy Day

Make your voice be heard by attending this year's Disability Advocacy Day in Madison on Tuesday March 21st! Disability Advocacy Day is designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives.  Registration closes March 10th. Find out more information and register today!

128

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.  In February, we shine the spotlight on Emily.  This very determined lady hasn’t encountered an obstacle that she can't overcome.  This college graduate truly encompasses the definition of self-determination!  Stop by this month's Member Spotlight to get to know Emily.

Who should we shine the Spotlight on next?

128 Stacy’s Journal

In this month's entry, Stacy explains why having patience is so important when you have a disability. She talks about how waiting is a big part of her life. What do you have a hard time waiting for? We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Watch:  The ABLE National Resource Center has recorded a webinar about four of the new ABLE programs.  Learn about how these programs could benefit you.
  • FINDS Survey:  The Family and Individual Needs for Disability Supports (FINDS) Survey is currently being conducted about the experiences of parents and family members who provide support to their family member with intellectual or developmental disability. This survey closes on March 30th. 
  • Updated Airline Accessibility Training:  After a record number of complaints in the area of disability air travel, the US Department of Transportation recently released new training material for airlines and passengers.  Find out what the training focuses on.
  • Tangata Group:  Several disability rights scholars have joined together to form The Tangata Group, a nongovernmental organization dedicated to promoting disability rights.  Read about what this group hopes to do.
  • Google Maps:  Google has added an accessibility feature to Google Maps.  Learn how this feature helps people with disabilities.
  • EAS Accessibility Study:  A study of the National Emergency Alert System (EAS) was recently done.  Find out what was found regarding accessibility of the EAS and what recommendations were made.
  • Final Rule Regarding SNAP and ABLE Accounts:  The Food and Nutrition Service published a final rule that since the Supplemental Nutrition Assistance Program (SNAP) is federally funded ABLE funds won't compromise eligible people from accessing benefits under the SNAP program. Read more about this rule.
  • Family Care Expanding:  The Department of Health Services announced the expansion of Family Care services in six northern Wisconsin.  Learn which counties are finally getting much needed services.
  • Wisconsin Youth Leadership Forum:  The Wisconsin Youth Leadership Forum is a week long training and career awareness program for high school students with disabilities.  Applications are due April 1st.
  • Call for Proposals:  The 2017 Aging and Disability Network Conference is calling for Proposals for Workshop Presentations. Proposals due February 24th.
  • Storytellers Fellowship:  The Disability Rights Storytellers Fellowship provides the opportunity for an individual with a disability to learn and apply skills in digital media storytelling, and to connect with media professionals to prepare participants for advanced careers in media production, journalism, online advocacy, or digital design.  Applications are due March 15th.
  • Concerns over Medicaid:  Talk of major changes to Medicaid have many people with disabilities worried.  Read about how the changes could impact services.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

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The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96 Self-Determination Network News:

January 2017

Connect Share Learn http://sdnetworkwi.org/  

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The 4th annual Aging Empowerment Conference: Living a Self-Determined Life will be held June 6th (full conference) and June 7th (Self-Determination Summit) at  the Glacier Canyon Lodge Conference Center at the Wilderness Resort in Wisconsin Dells.  Sponsored by InControl Wisconsin, this unique event gathers older adults, their families, and the professionals who support them and explores self-determination and empowerment in aging. Presentation proposals and exhibitor applications are now being accepted.  Submission are due February 15th.  Apply today!

Medicaid Block Grants

The future of Medicaid will be a big issue in 2017. Federal efforts are underway to change Medicaid to a block grant program that states would administer.  This could have a major impact on programs such as Family Care, IRIS, BadgerCare, SeniorCare, and many other programs that older adults and people with disabilities rely on.  The Wisconsin Board for People with Developmental Disabilities/The Arc have put together this presentation that explains in detail what block grants are and how this would effect people with disabilities.  Additionally, the Wisconsin Long-Term Care Coalition has launched a survey for adults and children with disabilities, older adults, their families, care providers, and low income adults to take about how these changes would effect them.  They have also created a document to help people talk to policymakers about how block grants would effect them. We encourage you to take a few minutes to learn about Medicaid block grants and to share your thoughts and opinions with your legislators.

ABLE Accounts

The second anniversary of the signing of the Achieving a Better Life Experience (ABLE) Act is approaching. It allows people with disabilities to setup tax-free saving accounts for disability related expenses which won't jeopardize their government benefits.  Wisconsin legislation repealed the law, so we won't have an ABLE program.  However, several other states have enacted the law and have setup programs for ABLE accounts.  Many of the programs allow people who reside in other states to setup accounts as well.  In our ABLE account section on the Network, we're posting information about states creating new programs as they become available.  Additionally, the ABLE National Resource Center recently released an Accomplishments and Outcomes Report.  It includes lots of interesting statistics and success stories about how ABLE accounts have helped people so far.  Learn more about how these accounts could help you or people you know lead a better life!

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

128 Stacy’s Journal

For this month's entry, Stacy discusses how the New Year brings different types of new hope and opportunities for people with disabilities. We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Wisconsin AAC Network:  Mike is looking for people to join the Wisconsin Augmentative Alternative Communication (AAC) Network.  Find out what this Network is about.
  • TellMe TV:  The first online movie service for people who have visual impairments is now available.  Learn about how it works.
  • Airplane Accessibility:  The Department of Transportation is trying to improve accessibility of airplanes for those with disabilities.  Read about the rule proposal.
  • Updated ADA Guidelines for Buses and Vans:  The US Access Board recently updated accessibility guidelines for transportation vehicles covered by the Americans with Disabilities Act.  Learn what the guidelines address.
  • Hotel Accessibility:  A report reveals that hotel accessibility is right on track.  Find out what's improving.
  • Special Needs Trusts: A new law makes it possible for people with disabilities to create their own special needs trust.  Read about this law.
  • Home Health Care Worker Shortage:  It's pretty well known that Wisconsin has a shortage of direct care workers.  Learn about how some high schools in southwest Wisconsin are trying to help.
  • Accessible Medical Diagnostic Equipment:  New accessibility standards were recently released for medical diagnostic equipment.  Find out what these standards mean.
  • Information and Technology Accessibility:  A new rule was recently released updating accessibility requirements for information and technology in the federal sector.  Read about how the new requirements will help people with disabilities.

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The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.


96 Self-Determination Network News:
December 2016

Connect Share Learn http://sdnetworkwi.org/  

bells160841_640.pngHappy Holidays

InControl Wisconsin wants to take a minute to wish everyone Happy Holidays!  We really appreciate all of our Network members and Sponsors.  We couldn't keep this Network going with you!

This is the season of giving! Our sponsors help us out in so many ways. Learn about how you can support the Network.

Workforce Innovation and Opportunity Act (WOIA) Webinar

Register now for a free webinar hosted by InControl Wisconsin on Thursday January 12th from 2:00p.m. to 3:30p.m. for a webinar about the Workforce Innovation and Opportunity Act (WOIA).  WOIA is new federal policy that is shaping transition and employment services for individuals with disabilities around the country, including Wisconsin. about  the importance of collaboration among schools, DVR, and long term supports; the three main shifts for schools; information about Pre-Employment Transition Services; new sub-minimum wage policy; and WIOA resources.

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.  For this month, we shine the spotlight on Cathy Derezinski.  For Cathy, self-determination goes far beyond just her work—it’s a way of life.  She believes self-determination is about sharing dreams and moving on them.  Stop by this month's Member Spotlight to get to know Cathy.

Who should we shine the Spotlight on next?

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

128 Stacy’s Journal

In December's entry, Stacy shares about how while animals are great for some people with disabilities, they can cause others a great amount of anxiety. We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Results are In:  The results from the Survival Coalition's survey about the direct care workforce are in.  Find out what the survey found.
  • Post Election Medicaid Questions:  Deb posted a link to a website about how the results of the election may affect Medicaid.  Learn about how you may be affected. 
  • New App:  Check out a new app that  helps people with hearing impairments detect dangerous sounds, communicate with people, make emergency calls and dance to music.
  • Service Animal Misconceptions:  With service dogs becoming seemingly more and more popular these, there are lots of misconceptions out there about service animals.  Read about some of the common misconceptions.
  • Citizenship and Inclusion:  There is a new shift trending in supporting people with disabilities in our communities.  Read a blog by InControl board member, Patti Becker, about how considering a person's strengths, talents, and assets is more important than focusing purely on their needs.
  • Direct Care Workforce Crisis:  It is pretty known that Wisconsin is experiencing a crisis-level shortage of direct care workers.  This commentary does a great job of putting things into perspective.
  • Technology Accessibility:  Recently, at an Apple product release event, the company highlighted the new ways in which its products allow for increased accessibility.  Learn about some of the ways the company is helping people with disabilities.
  • Movie Theaters:  The Dept. of Justice recently signed a Final Rule that clarifies the Americans with Disabilities Act title lll regulation of requiring movie theaters to provide appropriate auxiliary aids and services for people with disabilities.  Read about this rule.

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96 Self-Determination Network News:
November 2016

Connect Share Learn http://sdnetworkwi.org/  

Proposed 40 Hour Work Week Rule

The Wisconsin Dept. of Health Services (DHS) has proposed a new 40-hour rule for IRIS, limiting the amount of time that a staff person may work for you. At this point, DHS is putting it on hold while they work on revisions of this rule. The Survival Coalition, a cross-disability advocacy coalition, has made recommendations about the proposed rule.  After you read more about the proposed rule and recommendations, share your thoughts about it in this discussion.

Diehard Award Winners

We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference.These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:

  • Beth Wroblewski
  • Olivia Quigley
  • Nikki Vander Meulen
  • Sherry Gundlach
  • Kristy Bridenhagen

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

128 Stacy’s Journal

In this month's entry, Stacy discusses misconceptions many have about people with disabilities and how she handles them.  Have you been in similar situations? We encourage you to share your experiences as well.

196

Take five minutes to check out what's happening on the Self-Determination Network:

  • Person-Centered Planning:  Person-Centered Planning is becoming more and more popular.  Learn about a new approach to help people evaluate risk and the power of having choices.
  • ABLE Act Changes Draw Backlash: Many disability advocacy groups are opposing changes to the ABLE Act.  Find out why.
  • Event Accessibility:  Whether it's a large convention or a small meeting, event planners often struggle to make sure that events are accessible to all people. Read about a document that has been created to help event planners ensure events are accessible to all people.
  • Benefits Increase:  Find out how much Social Security benefits will increase next year.
  • Communications Technology Accessibility Report:  The Consumer and Governmental Affairs Bureau of the Federal Communications Commission released its report on the state of accessibility of communications technology under the Twenty-First Century Communications and Video Accessibility Act of 2010.  Learn what the report entails.
  • Voting Rights:  Even though the election is over, this is an interesting blog about problems voters with disabilities had in the 2012 election.  Did you or someone you know experience problems while voting this year?
  • MiABLE:  Michigan recently launched its program for ABLE accounts.  Learn about the program.
  • Service Dog Case:  A very interesting case about the right to have a service dog in school is making national headlines.  Read about this historic case.
  • Air Travel Rule:  Thanks to a final rule by the Department of Transportation, some air travel challenges for people with disabilities may be relieved.  Find out how this rule will help.  

196

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

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