Category: Network News
October 2016
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Hot Topics and Challenges
Join the conversation! As we all work on a day-to-day basis to enhance lives of people with disabilities in our communities, we may run into challenges or face questions about how to move forward. There are also "hot topics" in the disability community that come up as well... topics that we may have heard about but don't know enough about. Share your hot topics and challenges in our discussion forum by responding to the discussion already started or by starting one of your own on this page. By sharing these, we can support each other and together find a path forward.
2016 Election and Wisconsin Long-Term Care
Before heading to the polls on November 8th, advocates for people with disabilities and older adults in Wisconsin are reminding candidates about one of the most important issues they will take a vote on if elected: long-term care. The Wisconsin Long-Term Care Coalition has released three documents to help people talk to and ask question of their local candidates about long-term care. We encourage you to look at these documents and have conversations with your local Assembly and Senate candidates regarding long-term care in Wisconsin.
Take our One-Minute Poll!
Click here to take this month's one-minute poll. Election Day is coming up on November 8th. Millions of Americans will be flocking to the polls. Will you be one of them?
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better. For this month, we shine the spotlight on Jennifer Kuhr. Being recently elected to the Wisconsin Board for People with Developmental Disabilities is just one of her many accomplishments. This disability advocate extraordinaire fully encompasses the definition of self-determination. Stop by this month's Member Spotlight to get to know Jennifer.
Who should we shine the Spotlight on next?
Take five minutes to check out what's happening on the Self-Determination Network:
- Presidential Debate Questions: Laura posted information regarding how people can vote to have a disability related question asked in the final presidential debate. Find out how you can vote.
- Job Opening: Wisconsin Family Ties is seeking a Parent Peer Specialist. Learn about what this position entails.
- Web Accessibility: A company has created a software system which allows websites to be accessible for people with disabilities without changing the existing code or impacting the design. Read about this new system.
- TV Show Gives Glimpse of Daily Life: A new show, 'Speechless', is giving people a glimpse into what daily life is like for families who have someone with a physical disability. Find out what show it is.
- Self-Advocacy Resource Center: The first-ever national resource center for self-advocacy has opened. Learn what the center offers.
- Recommendations on Autonomous Vehicles: The National Highway Transportation and Safety Administration is being commended for its inclusion of people with disabilities in discussions leading to the release of its “Federal Autonomous Vehicle Policy.” Read about their recommendations.
- Personalizing Homecare: A new home care approach in Scotland is making a real difference in older people's lives. Learn about this new approach.
- Disability Service Ranking: New national rankings find states across the nation have top services for people with disabilities, but also warns that more people are facing long waiting lists for supports. Find out which states ranked best.
- Diehard Award: Do you know someone who has made a significant contribution to the advocacy work here in Wisconsin? Nominate them for a Diehard award.
- Caregiver Concerns: A new survey found that a large majority of caregivers have serious concerns not only about their relative's (who has special needs) financial future, they're worried about their own. Read more about their concerns.
- Changes to the ABLE Act and Special Needs Trusts: Congress is trying to pass two separate pieces of legislation that would allow people with disabilities and their families to save more money without losing their benefits. Learn about how these could impact many people.
- Direct Care Workforce Survey: Wisconsin’s direct care workforce crisis is leaving people with disabilities and the elderly without needed care. Help by taking this survey to show lawmakers how the workforce crisis is impacting real people.
In this month's entry, Stacy discusses how having a disability affects sibling relationships. We encourage you to ask her questions and/or share your experiences as well.
Here's a sample of upcoming events listed on the Self-Determination Network:
- AbilityMKE Now: October 26th, 9p.m., 104.1 Riverwest Radio (or online)
- Across the Lifespan Conference: November 3rd-4th, Glacier Canyon Lodge, Wisconsin Dells WI
- 2016 Self-Determination Conference: November 8th-10th, Kalahari Resort, Wisconsin Dells WI
- Door County Parents in Partnership: November 4th-5th, Landmark Resort, Egg Harbor WI
- 2017 Multiple Perspectives Conference: April 13th to 17th, Ohio State's Columbus Campus, Columbus OH
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
September 2016
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Join our Welcome Team
Are you a viral social butterfly? Do you like to connect with people with the same interests? Do you enjoy interacting with people online? We are currently seeking voluntary Network Hosts to join the Welcome Team for the Self-Determination Network. Applications are due on October 3rd. Find out how to apply today!
Take our One-Minute Poll!
InControl Wisconsin is always looking for ways to better serve our community. By learning about you, our Network Members, we can better meet your interests.In last month’s Network News, we asked members answer a one-minute poll question about who they are. We have 492 members on the Self-Determination Network and only three have responded. That’s less than 1%! We know we can do better than that! Help us better be able to help you by taking the one-minute poll now!
Take five minutes to check out what's happening on the Self-Determination Network:
- Assistance for Service Providers: Many disability service providers are worried about cuts in services due to new mandates. Find out about, if passed, a new bill would offer a temporary increase in Medicaid funding for programs for people with disabilities.
- Disability in the Election: According to new data, voters with disabilities may have a major role in November's election. Learn why this is.
- ADA Regulations Broaden: Recently, the Dept. of Justice announced its issuing new regulations to expand who's covered under the Americans with Disabilities Act. Read about what it now will cover.
- Waiting Lists May Violate ADA: According to the Dept. of Justice, having people with disabilities on waiting lists for community-based services may violate the Americans with Disabilities Act. Find out why this may be.
- Caregiver Awards: The Wisconsin Long-Term Care Workforce Alliance is now accepting nominations for the 2016 Caregiver Awards. Spread the word!
- Disability Reality Show Wins Emmy: For the first time ever, a TV show starring cast members with disabilities has won an Emmy Award. Find out what show it is!
- Disability, and Consumer Attitudes and Preferences Survey: Here's an opportunity to participate in a survey about consumer attitudes and preferences for individuals with disabilities.
- Call for Presenters: Proposals are now being accepted to present at the 2017 Multiple Perspectives Conference. Proposals due December 3rd.
- Transportation Survey: Here's a chance to take a survey about transportation for people with disabilities.
In this September's entry, Stacy talks about how having a physical disability impacts friendships. We encourage you to ask her questions and/or share your experiences as well.
Here's a sample of upcoming events listed on the Self-Determination Network:
- AbilityMKE Now: September 28th, 9p.m. to 10p.m., Radiowest River, Milwaukee WI
- Ability Fest: October 2nd, 4p.m. to 7:30p.m. The Camelot Golf Club, Lomira WI
- River Falls Parents in Partnership: October 7th-8th, Country Inn, River Falls WI
- Across the Lifespan Conference: November 3rd-4th, Glacier Canyon Lodge, Wisconsin Dells WI
- Door County Parents in Partnership: November 4th-5th, Landmark Resort, Egg Harbor WI
- 2017 Multiple Perspectives Conference: April 13th to 17th, Ohio State's Columbus Campus, Columbus OH
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Connect | Share | Learn | http://sdnetworkwi.org/
Changes to Wisconsin Long-Term Care:
What’s Next?
On July 28th, the Wisconsin Department of Health Services (DHS) announced plans to expand Family Care and IRIS programs statewide by beginning of 2018. This will eliminate the wait list for hundreds of people seeking long-term care services. This means the final seven counties in Wisconsin will finally have access to services. Learn more about the plan.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better. In August, we shine the spotlight on Chad Murphy-Price. As an avid waterskier and public speaker, he fully believes in the power of self-determination. He has an incredible outlook on life which he uses to inspire others everyday. Stop by this month's Member Spotlight to get to know Chad.
Who should we shine the Spotlight on next?
Take our One-Minute Poll!
InControl Wisconsin is always trying to come up with ways to improve our Networks for people. Occasionally, we're going to start asking for simple feedback from our members. Using the data that's collected, we will better be able to serve our members.
To start with, we simply want to know who you are. We'd greatly appreciate it if you would take a minute to take our poll.
Take five minutes to check out what's happening on the Self-Determination Network:
- Watch: This is an excellent webinar recording about the new ABLE programs.
- ADA 26th Anniversary: Late in July, America celebrated the 26th anniversary of the Americans with Disabilities Act (ADA). Check out these great links about the ADA.
- Caregiver Wage Rule: The US Supreme Court recently threw out a case disputing a 2013 Department of Labor regulation that requires in-home care workers to receive minimum wage and overtime pay. Learn why many care agencies sued over this change.
- Community Living on the Rise: A new report reveals that more Medicaid dollars are going toward community-based services than institutional care. Read more about how community living seems to be trending.
- Register Now: The Across the Lifespan Conference is coming up in November. Register today!
- Disability in America: The most common characteristic among people with disabilities in this country is living near or in poverty. Find out how many people think that can be changed.
- Bringing Disability into Entertainment: More and more television shows are bringing the notion of disability into storylines. Learn how this helps people gain a new perspective on disability.
- Call for Presenters: Presenter applications are now being accepted for the 2017 Circle of Life Conference. Applications are due October 7th. Apply today!
- Virtual Reality Simulator: Learn about how a new virtual reality simulator is helping teens with autism learn how to drive.
- More Community-Based Options: Read about how states are being urged to strengthen community based options so that people with disabilities can remain in their communities.
- Accessible Cabins: In Wisconsin, camping is often thought to be a fun summer activity. Learn about how accessible cabins in some state parks make it possible for people with physical disabilities to experience camping.
In this month's entry, Stacy discusses her opinion about disability in the world of sports. We encourage you to ask her questions and/or share your experiences as well.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Sibling Summit: September 17th, 8:30a.m. to 3:30p.m., American Family World Headquarters, Madison WI
-
Across the Lifespan Conference: November 3rd-4th, Glacier Canyon Lodge, Wisconsin Dells WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Connect | Share | Learn | http://sdnetworkwi.org/
ABLE Accounts
ABLE Accounts, which are tax-free savings accounts for people with disabilities and their families, are now being created as a result of the passage of the Stephen Beck Jr., Achieving a Better Life Experience Act of 2014 or better known as the ABLE Act. Income earned by the accounts will not be taxed. Contributions to the account made by any person (the account beneficiary, family and friends) will be made using post-taxed dollars and will not be tax deductible. These savings accounts will not affect a person's eligibility for SSI, Medicaid, and other public benefits. Accounts must be used for disability-related expenses that are not covered by insurance, Medicaid, or Medicare. To be eligible for an ABLE account, people must have onset of disability before the age of 26 and receive SSI and/or SSDI. If a person doesn't receive SSI/SSDI, but still meets the age of disability requirement, he/she could still be eligible to open an ABLE account if they meet Social Security's definition and criteria regarding significant limitations and obtain a letter from a doctor.
Each state will have their own stipulations for ABLE accounts. Earlier this summer, states began launching programs allowing individuals to open these accounts. It's unknown when Wisconsin will establish its program for accounts; however, in some states, people do not have to be a resident to open an ABLE account. In other words, people who live in a state that doesn't yet have a program setup can open an account in a state which does. We've setup an ABLE account section on the Network where we'll continue to add information about ABLE account programs as more are created.
Take our One-Minute Poll
We're bringing one-minute polls back. To start off with, just for fun, this month we're asking people what their favorite summer activity is. Take our one-minute poll now!
Take five minutes to check out what's happening on the Self-Determination Network:
- Make Change Happen: SPARK Grants are designed to organize groups that aim to make changes in their communities resulting in a positive impact on the lives of people with disabilities. Applications due on July 29th. Apply today!
- ADA 26th: The Americans with Disabilities Act (ADA) turns 26th at the end of this month. Read about the many ways it has improved the lives of people living with disabilities.
- Summertime Tips: The summer season can often present a host of challenges for people with disabilities. Here is a list of tips and information to keep in mind about summer fun and safety.
- Staying Fit: Many times, it's challenging for people with disabilities to stay physically active. Learn about how a technology company will soon release software that will be able to track activity level for people who use wheelchairs.
- Partners in Policymaking: Partners is an advocacy and systems training for individuals who will be able to work with legislation and communities on policies and initiatives that will support participation and inclusion of people with disabilities. Find out how to apply!
- Innovative News App: A new app allows people who have visual impairments to enjoy their favorite newspapers without needing any special formats. Find put how the app works!
- Family Care/IRIS Expand: For over 400 people in one Wisconsin county, the wait for long-term care services will soon be over. Learn which county Family Care and IRIS are now in.
For July's entry, Stacy discusses how amusement and theme parks can be challenging places for many people who have disabilities. We encourage you to ask her questions and/or share your experiences as well.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Parent to Parent Training: July 30th, 9am to 3pm, Neenah WI
- Disability Pride Festival: July 30th, 12pm to 5pm, Brittingham Park, Madison WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Connect | Share | Learn | http://sdnetworkwi.org/
Changes to Wisconsin Long-Term Care: What’s Next?
On Thursday June 9th, the Wisconsin Department of Health Services contacted the co-chairs of Joint Finance to withdraw its Concept Plan on Family Care/IRIS 2.0. Participant input was said to be major reason for withdrawing the plan from consideration. Changes to Long-Term Care remain in law, so this does not mean there will be no changes; however, at this point, it is unclear what the changes and timeline will be. Be sure to stay up to date on the latest developments on our Long-Term Care Redesign page.
It's with deep sadness that we tell you that Wisconsin DHS Secretary Kitty Rhoades recently passed away. InControl Wisconsin wants to express its deepest sympathies and condolences to her family and friends during this time.
You are Invited to Join the Conversation!
We all have questions that we’re looking for advice on. The Network is a great way to tap into the ideas and experiences of other people - the members of the network. So if you’d like to post a question, we can all share our thoughts with you. This month, Stacy is tackling the challenge of hiring her own staff and she’d like to hear from you. Join the conversation!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better. This month, we shine the spotlight on Wanda Vielliex. Thanks to being able to self-direct her own supports, she's able to fulfill her passion of helping people. This volunteer extraordinaire is active in many clubs and organizations in her community. Stop by this month's Member Spotlight to learn more about Wanda!
Who should we shine the Spotlight on next?
Take five minutes to check out what's happening on the Self-Determination Network:
- Final Overtime Rule: Read about how the final overtime rule for caretakers may impact many people with disabilities.
- Travel App: Learn about a new app that helps people with disabilities find accessible hotels.
- Accessible Dollar Bills: Find out about how advocates are pushing the U.S. Department of Treasury to make the next dollar bill accessible.
- Community Living: Read about how a study found that many families of those with disabilities who had to transition from institutions to community living are happy with the results.
- Web-Captioning Survey: Learn and find out how you can voice your opinion about a proposal that assesses the monetary value of captioning web content for people with hearing impairments.
- Be Inspired: Read about a high school athlete who doesn't let having a disability hold him back.
- Transportation Survey: Here's an opportunity to participate in a survey about transportation for people with disabilities.
- Benefits Calculator: Learn about a neat tool you can use to estimate your Social Security benefits.
- Parent Support Needed: A support group is looking for parents of children with special needs to support other parents going through similar experiences.
In this month's entry, Stacy discusses her recent care challenges and how she's tackling them. We encourage you to ask her questions and/or share your experiences as well.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Accessible Pontoon Boat Rides: June 1st-September 30th, Tenney Park, Madison WI
- 2016 Transformation Conference: June 28th-30th, Hilton Alexandria Old Town, Alexandria VA
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Connect | Share | Learn | http://sdnetworkwi.org/
2016 Aging Empowerment Conference
There is still time to register for the 2016 Aging Empowerment Conference. It is hosted by InControl Wisconsin will be held June 7th and 8th at the Glacier Canyon Lodge Conference Center at the Wilderness Resort in Wisconsin Dells. The conference focuses on the interconnected relationship between older adults, their caregivers, and the professionals who support them. It's an opportunity to explore ways to advance self-determination as the foundation for providing support while empowering older people to retain control of their lives. Learn more information and find out how to register today!
Changes to Wisconsin Long-Term Care: What’s Next?
Since the Department of Health Services (DHS) submitted the Family Care/IRIS 2.0 Concept Paper to the Committee on Joint Finance on March 31st, committee members and others have asked a number of questions about why the Department chose to have three separate administrative zones if Family Care/IRIS 2.0 is implemented statewide. DHS has released a new webpage entitled "Family Care/IRIS 2.0: "Why Three?" which has additional information about the topic.
Be sure to stay up to date on the latest developments on our Long-Term Care Redesign page.
Take five minutes to check out what's happening on the Self-Determination Network:
- Call for Proposals: Proposals to present at the 2016 Across the Lifespan Conference are now being accepted through July 31st.
- Call for Exhibitors: Applications are now being accepted to be an exhibitor at the 2016 Self-Determination Conference.
- Advocates See Opportunity in Self-Driving Cars: Read about how many people with disabilities see a new opportunity coming with the advancements in self-driving cars.
- States Work Together on ABLE Accounts: Learn about how many states are banding together to create ABLE accounts.
- The History of Disability: Check out pictures from an exhibit in London about how disability has changed over the last 80 years.
- Google Disability Initiative: Find out how Google is helping to increase independence for people with disabilities.
- Housing Tips: Here is a great list of tips people with disabilities should know about housing.
- Phone Communication: Learn about how the Federal Communications Commission is trying to make it easier to communicate over the phone.
- Accessible Technology: Read about a new Accessible Technology section recently added to a popular disability informational website.
- First ABLE Accounts: Find out which states will be the first to offer ABLE accounts.
This month, Stacy discusses her quest to inspire and how her opinion on this topic may differ from many others who have disabilities. We encourage you to ask her questions and/or share your experiences as well.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: "Two Tickets Please": May 26th, 1:30 p.m. to 3:00 p.m., Online
- Accessible Pontoon Boat Rides: June 1st-September 30th, Tenney Park, Madison WI
- Webinar: Vertical Access: June 2nd, 1:30p.m. to 3:00p.m., Online
- 2016 Aging Empowerment Conference: Living A Self-Determined Life: June 7th & 8th, Glacier Canyon Lodge Conference Center at the Wilderness Resort, Wisconsin Dells WI
- 2016 Transformation Conference: June 28th-30th, Hilton Alexandria Old Town, Alexandria VA
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Connect | Share | Learn | http://sdnetworkwi.org/
2016 Aging Empowerment Conference
The 2016 Aging Empowerment Conference which is hosted by InControl Wisconsin will be held June 6th and 7th at the Glacier Canyon Lodge Conference Center at the Wilderness Resort in Wisconsin Dells. The conference focuses on the interconnected relationship between older adults, their caregivers, and the professionals who support them. It's an opportunity to explore ways to advance self-determination as the foundation for providing support while empowering older people to retain control of their lives. Learn more information and find out how to register today!
Changes to Wisconsin Long-Term Care: What’s Next?
On March 31st, the Wisconsin Department of Health Services (DHS) submitted their Concept Paper for the Long-Term Care Redesign (Family Care/IRIS 2.0) to the Joint Finance Committee of the state legislature. Soon after, they also released a summary of the changes made to the Concept Paper based on feedback received from public hearings, testimony, and stakeholder meetings regarding the draft of the Paper. Joint Finance now must consider the paper and vote to accept the redesign proposed by DHS or reject the proposal for continued changes. Joint Finance cannot alter the plan themselves.
Be sure to stay up to date on the latest developments on our Long-Term Care Redesign page.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For this month, we shine the Spotlight on InControl Wisconsin board member Laura Hanson. When she’s not exploring the great outdoors with her family, she is very involved in supporting and advocating for Self-Directed Supports (SDS) and Integrated Employment. She has a wealth of knowledge in both of these areas. In fact, she recently started a group on the Network for people who are involved in SDS to share their experiences and ideas with others. Stop by this month's Member Spotlight and learn more about Laura!
Who should we shine the Spotlight on next?
Take five minutes to check out what's happening on the Self-Determination Network:
- New National Core Indicators: DHS is beginning to use a new system to get information on the quality of life for people with disabilities who are in the Long-Term Care system. Find out how you can let your voice be heard about this!
- Youth Leadership Forum: The deadline to apply for the Wisconsin Youth Leadership Forum (a week long leadership training and awareness program for high school students with disabilities) is May 1st.
- ABLE Account Tweaks: Read about how lawmakers continue to make tweaks to try to improve ABLE Accounts.
- Neat Technology: Learn about a new device that's being developed to help people who have visual impairments.
- Caregiver Tax Credit: Here is an interesting article about a new proposed bill that would allow caregivers to receive a tax credit.
- 2015 Best and Worst Cities Rankings: Find out which cities in Wisconsin made the list of the best cities for people with disabilities.
- Social Security Payee Approach: Learn why Social Security is being urged to redo its representative payee approach.
- Caregiver Benefit: Read about a proposed bill which would ensure that family members who take time off work to care for loved ones with disabilities wouldn't lose Social Security retirement benefits for doing so.
- Video Description Access: Here's an interesting article about how the Federal Communications Commission (FCC) is proposing changes to expand the availability of video described programming for people who have visual impairments.
- Overtime Rule Impact: Learn about how a proposed overtime rule for people who work with disabilities would likely force cuts in services.
This month, Stacy opens up about how she handles some of life's hard questions related to having a disability. We encourage you to ask her questions and/or share your experiences as well.
Here's a sample of upcoming events listed on the Self-Determination Network:
- State Of The Science Conference On The Americans With Disabilities Act: May 4th, Hilton Alexandria Old Town, Alexandria VA
- Public Hearing on Independent Living: May 10th, 1:30 to 3:00p.m., Midstate Independent Living Consultants, Inc., Stevens Point, WI
- Public Hearing on Independent Living: May 11th, 4:30 to 6:00p.m. Access to Independence/Independent Living Council of Wisconsin, Madison WI
- Art, Ability, Access & Enterprise Summit: May 17th, 8:30a.m. to 3:15p.m., Madison Public Library, Madison WI
- 2016 Aging Empowerment Conference: Living A Self-Determined Life: June 6th & 7th, Glacier Canyon Lodge Conference Center at the Wilderness Resort, Wisconsin Dells WI
- 2016 Transformation Conference: June 28th-30th, Hilton Alexandria Old Town, Alexandria VA
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Connect | Share | Learn | http://sdnetworkwi.org/
Explore the New Self-Determination Network Website
Welcome to the new Self-Determination Network. As you probably have noticed, things look a little different. We switched to a new platform called Jamroom. We've excited about this as it has a lot of cool featues. As with any big transition, there is a lot to learn and explore. We understand there will be bumps and detours along the way, but we’re here to help! We've setup this page to help you get started. We encourage you to explore the new site. We've also started a discussion where you can ask questions and post comments about the new website. We want to hear what you think!
Changes to Wisconsin Long-Term Care: What’s Next?
On March 2nd, InControl Wisconsin offered a webinar to provide an update on the current and upcoming developments in the state’s transition to a new Long-Term Care system. It showcased the Stakeholders’ Blueprint for Long-Term Care Redesign and covered the main ideas contained in it. The audio recording of the webinar and the Powerpoint are now available on the InControl Wisconsin website.
Coincidentally, that same day, the Wisconsin Department of Health Services released their concept paper for the redesign of the Long-Term Care System. We've started a discussion where people can share their thoughts and questions about it. What questions do you have about the concept paper? What do you think of the new system they are describing? Join the discussion today!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For this month, we shine the Spotlight on Kathleen Johnson. In addition to being a wife and mother to children with various needs, she recently started a nonprofit art studio/gallery for people with disabilities. Stop by this month's Member Spotlight and get to know Kathleen!
Who should we shine the Spotlight on next?
Take five minutes to check out what's happening on the Self-Determination Network:
- Push to Eliminate Offensive Disability Language: Here's an interesting article about how many people feel we need to eliminate "offensive" terms that are associated with people with disabilities.
- Closed Captions on Flights: A great article about how airlines will soon offer closed caption entertainment videos on flights.
- Call for Proposals: Proposals for presenters for the 2016 Self-Determination Conference are now being accepted. Proposals are due April 8th.
- Traveling with a Disability: Here is a great list of things to know when traveling with a disability.
- Residential Disability Community: Read about a first-of-its-kind residential community for people with developmental disabilities that's set to open this Spring in Florida.
- ABLE Accounts: Learn about how ABLE accounts will be intended to work.
In February, Stacy shared about having the desire for love when you have a physical disability, and for this month's entry, she reflected on all of the therapies she has had over the years. We encourage you to ask her questions and/or share your experiences as well.
Here's a sample of upcoming events listed on the Self-Determination Network:
-
Disability Advocacy Day: March 15th, Monona Terrace, Madison WI
- Multiple Perspectives on Access, Inclusion, and Disability 16th Annual Conference: April 13th to 14th, The Ohio State University’s Columbus Campus, Columbus OH
- State Of The Science Conference On The Americans With Disabilities Act: May 4th, Hilton Alexandria, Old Town VA
- 2016 Aging Empowerment Conference: Living A Self-Determined Life: June 6th, Glacier Canyon Lodge Conference Center at the Wilderness Resort, Wisconsin Dells WI
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News: January 2016
Connect|Share|Learn|http://sdnetworkwi.org/
Changes to Wisconsin Long-Term Care: Whats Next?
On Monday January 4th, the Department of Health Services (DHS) shared publicly its December report on Long Term Care system redesign, as required by the 2015-17 state budget.
DHSs report references an ongoing internal process to redesign the system, the Departments plan to report on its internal work in the Concept Plan (due to Joint Finance April 1st), and states there will be two public hearings in March 2016. It is unclear whether these hearings will be to collect public comment on a draft of the Concept Plan. We will be sure to keep you updated as more details become available.
In the meantime, the Wisconsin Survival Coalition has provided us with some information about the report and suggestions on action steps we can continue to take to voice our opinions.
Take five minutes to check out what's happening on the Self-Determination Network:
- The Objectification of Disability: This has been a popular video on the Internet about inspiration porn and the objectification of disability. What are your thoughts on this?
- Its Our Story: It's Our Story is a great national initiative to make disability history public and accessible. They have collected over 1,300 video interviews from disability leaders across the country. Check out their videos!
- National Aging and Disability Transportation Center: This is an interesting press release about a group of disability organizations have formed a National Aging and Disability Transportation Center.
- Outdoor Activity Survey: Heres a chance to participate in a survey about outdoor activity for people with disabilities.
- Call for Proposals: Presentation proposals are now being accepted for the Multiple Perspectives Conference. Applications due January 28th.
- Essay Contest: Heres a student essay contest about inclusion.
- Home Care Worker Protections: This is an interesting article abouthow a new report shows a lack of oversight in the home care workforce could lessen wage and labor gains for workers.
- Airline Accessibility Complaints: Find out which airline was fined millions of dollars for not accommodating travelers with disabilities properly.
- ABLE Accounts Open Doors: This is a very informative article about what ABLE accounts are and how theyll work.
- ADA Symposium Stipends: Heres information on how you can apply for stipends to attend the National ADA Symposium in Denver, CO in June.
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Personal Care Survey: The Survival Coalition, along with Wisconsin Long-Term Care Workforce Alliance and WPSA want to hear from people who use personal care.
- Post news or start a discussion: It's easy to do and a great way to share information and network with others!
Stacys Journal
For January's entry, Stacy discusses how advancements in technology have improved the lives of people with disabilities. We encourage you to ask her questions and/or share your experiences as well.
New Members
Stop by to welcomeour newest members:
- She works with people with disabilities.
- This advocate believes in self-determination and wants to connect with others who do so as well.
- She started a nonprofit art studio and gallery for people with disabilities.
Do you know someone who should join the Self-Determination Network? Spread the word and invite friends, families and other interested folks!
Here's a sample ofupcoming eventslisted on the Self-Determination Network:
- The Impact of ACA on People with Disabilities: A 2015 Status Report: January 26th, 1pm to 2pm, Teleconference
- Monitoring and Enforcing ACA: A Roadmap for People with Disabilities: February 2nd, 1pm to 2pm, Teleconference
- Sweet and Savory Valentine Open House: February 7th, 12pm to 4pm, Indigo Wings Gallery and Gifts, Monona WI
- Wisconsin Transition Conference: February 18th to 19th, Kalahari Resort, Wisconsin Dells WI
- Disability Advocacy Day: March 15, Monona Terrace, Madison WI
- Multiple Perspectives on Access, Inclusion, and Disability 16th Annual Conference: April 13th to 14th, The Ohio State Universitys Columbus Campus, Columbus OH
Post your eventon the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by In Control Wisconsin and supported financially by ourmembersandSponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Self-Determination Network News:December 2015
Connect|Share|Learn|http://sdnetworkwi.org/
2016 Aging Empowerment Conference:
Living a Self-Determined Life
The 2016 Aging Empowerment Conference: Living a Self-Determined Life focuses on exploring ways to advance self-determination as the foundation for providing support while empowering older people to retain control of their lives. This is the 3rd annual conference and is hosted by InControl Wisconsin and other sponsors. The 2016 Conference will be June 7th-8th at the Wilderness Resort in Wisconsin Dells. Presentation proposals are now being accepted.
Click hereto learn more information and to fill out the application. Proposals are due January 15th.
Changes to Wisconsin Long-Term Care:
Whats Next?
In December, the Department of Health Services (DHS) must submit its quarterly report to the Joint Finance Committee as required by the budget, and tell how it has engaged with stakeholders on Long-Term Care changes. This is another opportunity to engage with policy-makers and let them know you are watching and concerned about the future of Wisconsins Long-Term Care system.
The Wisconsin Board for Developmental Disabilities has sharedfour action stepsthat you can take in December. Remember, by continuing to let your voice be heard, youre showing policy-makers that you care about the future of Long-Term Care in Wisconsin!
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
For December, we shine the Spotlight on Jason Endres. As the former president of People First Wisconsin and also a person who directs his own supports, he full-heartedly that everyone should have the right to live their life as they choose. His tremendous advocacy efforts are widely recognized across the state. Stop by this monthsMember Spotlightand get to know Jason!
Who should we shine the Spotlight on next?
Take five minutes to check out what's happening on the Self-Determination Network:
- Watch: The Wisconsin Board for People with Developmental Disabilities put together a great video that highlights moments from this years Self-Determination Conference.
- Program Summary: Here is the summary of the plan for the Childrens Community Options Program for 2016.
- Protect Access to Specialized Equipment: Significant decreases to availability of customized and essential medical equipment that people with disabilities depend on could be coming in 2016. Find out how you can let your legislators know how this change would affect you or someone you care about.
- Improving Transportation: This is an interesting blog about improving transportation for people with disabilities.
- Community Technical Assistance Grant: The Wisconsin Board for People with Developmental Disabilities is offering a grant for organizations interested in supporting people with disabilities to build full lives in the community. Applications due December 28th.
- ABLE Account Rules Relaxed: This is an interesting about how the IRS has eased up on rules for ABLE accounts.
- Post news or start a discussion: It's easy to do and a great way to share information and network with others!
Stacys Journal
This month, Stacy discusses how theholiday season can often bring on added stress for people with disabilities. We encourage you to ask her questions and/or share your experiences as well.
New Members
Stop by to welcomeournewest members:
- Thisparentwants to learn more about employment.
- Thissupervisoris interested in self-determination.
Do you know someone who should join the Self-Determination Network? Spread the word and invite friends, families and other interested folks!
Upcoming Events
Here's a sample ofupcoming eventslisted on the Self-Determination Network:
- Wisconsin Transition Conference: February 18th to 19th, Kalahari Resort, Wisconsin Dells WI
Post your eventon the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? ContactStacy Ellingen.
The Self-Determination Network is powered by In Control Wisconsin and supported financially by ourmembersandSponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.