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In a statement released on April 2, 2026, Representative Shelia Stubbs (D-Madison) celebrated Autism Acceptance Day at the Wisconsin State Capitol, emphasizing the need for dignity, agency, and the removal of systemic barriers for autistic residents. Highlighting CDC data that shows Wisconsin has a higher prevalence of autism than the national average—1 in 26 children compared to the national 1 in 31—Stubbs called for increased funding for essential resources and respite programs. She praised the efforts of partner organizations like the Autism Society of Wisconsin, the Wisconsin Autism Providers Association, and Autism United of Wisconsin, reaffirming her commitment to advocating for the rights and full community inclusion of all autistic Wisconsinites.

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The provided article from Brookings highlights the urgent need for a structured long-term care system as the U.S. population ages, noting that seven in 10 individuals will eventually require significant long-term services and supports (LTSS). Currently, middle-income households face a "collapsed" private insurance market and high costs that exceed average savings, while Medicaid remains restricted to the very poor and often prioritizes nursing homes over preferred in-home care. To address this, authors Richard G. Frank, Sherry Glied, and their colleagues propose a new Medicare home care benefit designed as an entitlement to provide financial protection and allow elders to age with dignity in their own homes.

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The U.S. Department of Labor has proposed a rule that simplifies the process for employers to classify home care workers as independent contractors, a move critics argue will lead to widespread misclassification. This change would strip workers of essential labor protections—such as minimum wage, overtime pay, and workers' compensation—costing individual aides an estimated $7,229 to $10,247 annually in lost compensation. By shifting the burden of payroll taxes and insurance to the workers, the proposal risks destabilizing a fragile care system already struggling with high turnover and recruitment challenges. PHI and other advocates are urging the public to submit comments by April 28, 2026, to oppose the rule and protect the rights of this predominantly female and diverse workforce.

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We are sharing an opportunity from researchers at the University of Michigan for adults living with cerebral palsy to help inform future research and healthcare improvements.

Researchers from Michigan Medicine’s Department of Physical Medicine & Rehabilitation are conducting a study funded by the Cerebral Palsy Research Network titled:

“A National Survey on Adults with CP: Including Input from the Community.”

The study aims to create space for adults with cerebral palsy to share their experiences with healthcare and aging through participation in focus groups. Insights gathered from participants will help researchers better understand the needs, priorities, and lived experiences of adults with CP.

Researchers are currently recruiting participants and welcome individuals 18 and older with cerebral palsy who are interested in contributing their perspectives.
Participation Requirements Include:

  • Participate in focus groups and advisory sessions
  • Help shape future research on Cerebral Palsy
  • All sessions are held on Zoom (1.5 hours each)

If you or someone in your network may be interested, please review the flyer below for more information about participation and how to get involved. 
For More Information or to Participate:Email: umcpresearch@umich.eduCall: 734-615-6770

 

Click Here to Download an Accessible Version of the Study Flyer

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The American Association of People with Disabilities (AAPD) has issued a statement strongly condemning President Trump’s Executive Order titled “Ensuring Citizenship Verification and Integrity in Federal Elections,” arguing it creates significant barriers for the more than 40 million eligible voters with disabilities. The AAPD contends that by establishing a “citizenship list” based on potentially inaccurate federal data and imposing a 60-day deadline for eligibility sharing, the order threatens to disenfranchise disabled individuals who rely on the flexibility of voting by mail due to health flares, transportation issues, or living in long-term care facilities. Ultimately, the organization asserts that the President lacks the constitutional authority to unilaterally alter election laws and vows to continue its REV UP Campaign to protect accessible democracy.

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The American Association of People with Disabilities (AAPD) is proud to announce that applications for the 2026 Tony Coelho Media Scholarship are now open!
The Tony Coelho Media Scholarship will offer eight (8) scholarships to be used in the fall semester of 2026. High school seniors, undergraduate, and graduate students with disabilities who are pursuing careers in media, communications, or entertainment industries and who will be enrolled in college or a university during the fall of 2026 are eligible to apply. Each recipient will receive $5,625 to help cover the cost of education at their college or university.
This scholarship has been named in honor of Tony Coelho, a former United States Representative from California and the primary author and sponsor of the Americans with Disabilities Act (ADA). Thank you to NBCUniversal for honoring Tony Coelho’s legacy by sponsoring the scholarship.
For more information and next steps to apply for this scholarship, please visit the AAPD website. Any questions can be directed to scholarship@aapd.com

Deadline to Apply: Wednesday, May 29, 2026  at 5 PM ET 

Apply Today!
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To help family caregivers navigate the daunting "what if I die first?" scenario, experts emphasize the necessity of creating a formal, evolving contingency plan that prioritizes the wishes of the person receiving care. Key strategies include writing a letter of intent to document daily routines and preferences, identifying a trusted support network beyond immediate family, and maintaining a "have and have-not" list for essentials like housing and government benefits. By proactively addressing these difficult conversations and using resources from organizations like The Arc and the National Down Syndrome Society, caregivers can ensure a smoother transition and long-term stability for their loved ones.


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The article from Mother Jones highlights a burgeoning crisis for the 7 million Medicaid recipients who rely on home and community-based services (HCBS) to live independently, as they face the dual threats of escalating climate disasters and systemic federal funding cuts. Experts warn that a combination of GOP-led budget cuts to Medicaid and the dismantling of FEMA’s resilience programs has left under-resourced care providers unable to plan for evacuations or emergency contingencies. This lack of federal-to-local support, compounded by low wages for home care workers, is increasingly forcing disabled and elderly individuals out of their communities and back into more restrictive institutional settings during extreme weather events.

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