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Member Spotlight: Priscilla


By SD Network, 2026-10-06

Meet Priscilla: a powerhouse self-advocate, award-winning leader, and microbusiness owner who refuses to let life’s unexpected twists slow her down! Whether she is commanding the stage as a conference presenter, mentoring peers, or checking out sleek rides at local car and bike shows, she brings unstoppable energy to everything she does. But of all her impressive titles, there is one she wears with the absolute most pride: being an amazing grandmother. Spunky, resilient, and fiercely independent, Priscilla is the true author of her own story, proving every day that challenges are just part of the adventure.

How are you involved with self-determination? What advocacy work are you involved in?
Priscilla Battle is a self-advocate, peer mentor, conference presenter, moderator, microbusiness owner, and the winner of the 2025 Diehard Award. In 2019, her life changed drastically when her previously hidden, invisible disabilities began becoming visible, bringing unpredictable daily challenges like temporary speech loss, severe pain that restricts limb movement, and seizure-like episodes triggered by sensory inputs. Her journey with self-determination became deeply personal when it was suggested that she move into a group home after living independently for over 30 years. Refusing to be put into a box that did not fit her life, she fought back alongside her cousin and employer at C. Renee Consulting, ultimately securing the necessary supports to remain safely in her own home. Today, she uses her experiences to encourage others with disabilities to find and use their voices, firmly believing that they belong in every conversation where decisions are being made about their lives. Reflecting on her resilience, Battle notes, "Sometimes I feel like my brain is forever fighting against my desire to be great—but I keep pushing forward," she added.

Tell us some good news! What's the most exciting thing happening for you—or in Wisconsin—in terms of self-determination?
Priscilla is deeply enthusiastic about the growth of a stronger community of self-advocates and peer mentors in Wisconsin. She highlights their collective efforts to help individuals with disabilities learn how to use their voices, understand their choices, and step into leadership roles within their own lives and communities. To counter the common issue of outside decisions being made without including the people they affect, she emphasizes a straightforward approach to understanding people with disabilities, asserting, "Listen to us!" Through sharing experiences, asking questions, and standing up for their rights, self-advocates are actively driving change. She is particularly focused on engaging high school students and young adults early on so they can grasp the principles of self-advocacy and self-determination before others attempt to define their futures. Ultimately, she sees a shifting landscape where individuals with disabilities are not merely asking to be heard, but are actively becoming mentors, presenters, business owners, and community leaders who are empowering the next generation to recognize that their voices truly matter.

What are some of your hobbies?
When Priscilla is not busy advocating, mentoring, presenting, or managing her business, she fills her time with crafting, cooking, traveling, and attending car and bike shows. However, her absolute favorite role in life is being an amazing grandmother, a title she wears with immense pride. Spending time with her family brings her immense joy and serves as a powerful reminder that despite life's daily challenges, there is still so much to celebrate and enjoy. For her, these moments are all about family, laughter, love, and making lasting memories with the people who mean the absolute most to her. Reflecting on the happiness her family brings, she shares, "Being a grandmother brings me so much joy."

Any final thoughts you'd like to share?
Priscilla acknowledges that her journey has not always been easy, and she continues to write her own story every single day. Through her experiences, she has learned that self-determination is far more than a program, policy, or phrase—it is deeply personal. For her, it means having the freedom to decide where she lives, choosing who supports her, speaking up when something feels wrong, and having people truly listen to her instead of speaking for her. While her disabilities are a part of her story, they do not define the whole story. She is a self-advocate, peer mentor, presenter, business owner, grandmother, and leader who ultimately remains the sole person who gets to decide what comes next in her life.

***We love hearing the views and opinions of Network members. We need to mention that the views and opinions expressed on this site are those of the person who is sharing them. They do not necessarily reflect InControl Wisconsin or any of our supporters and funders.

 


The article highlights a growing crisis among service providers for individuals with intellectual and developmental disabilities, driven by severe direct support staff shortages and impending Medicaid funding cuts. Due to these constraints, most providers have been forced to decline new referrals, reduce existing programs, or delay new initiatives, leaving vulnerable populations at risk of losing essential care like home-based support and residential services. The situation is further compounded by federal immigration policies affecting the direct care workforce and administrative delays in Medicaid payments, pushing the disability support system toward a point where critical services may soon become effectively inaccessible.

 


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Self-directed long-term services and supports (LTSS) allow individuals to choose how, when, and from whom they receive care, with over two million older adults and people with disabilities utilizing this model as of 2026. Data from the 2026 Self-Direction National Inventory shows significant enrollment growth across states—ranging up to a 1,100 percent increase in Florida—as well as expanding adoption in all Veterans Affairs Medical Centers for over 12,000 veterans. State agencies generally consider self-directed care to be cost-effective compared to traditional agency models, often costing 20 to 30 percent less per participant while helping address direct-care workforce shortages, particularly in rural areas where participants frequently hire family and friends.



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Wisconsin theater organizations, such as Children’s Theater of Madison and Pink Umbrella Theater Company in Milwaukee, are implementing innovative adjustments and dedicated facilities to make performing arts more accessible to neurodivergent individuals and people with disabilities. Key adaptations include sensory-friendly performances with modified sound and lighting, sensory kits, quiet spaces, trained volunteers, American Sign Language interpretation, and audio descriptions. Additionally, venues are incorporating flexible and non-traditional seating, wheelchair accessibility, adult-sized changing stations, and smart boards for captioning to foster a fully inclusive, welcoming environment for both audiences and performers.



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The Wisconsin Disability Policy Fellowship and Internship Program goal is to provide individuals with developmental disabilities and their families who are passionate about disability rights an opportunity to gain hands-on experience and build a career in the field of disability policy. Our program offers experiences in policy analysis, advocacy, and community engagement at state agencies, legislative offices and disability advocacy organizations. This is a BPDD project funded through a grant from Common Good Philanthropies.

Who Should Apply?

The Internship Program is open to individuals who live in Wisconsin with developmental disabilities and family members of people with developmental disabilities who are committed to disability rights advocacy.  Individuals with some experience with state or local advocacy, good communication skills, and the ability to work in a team, and has basic knowledge of state and local advocacy. 

What do you need to know?

  • The Internship will last 6 months, starting by January 15, 2027, until July 2027.  
  • You must live in Wisconsin.
  • Interns will work 24 hours a week, during regular business hours of 8-5, Monday-Friday
  • Interns will be paid $20 an hour.  Additional funds will be available for travel.
  • Interns will be placed at either a state agency, legislative office, or advocacy organization.
  • Interns have access to training sessions and workshops that enhance their understanding of disability policy and advocacy.
  • Interns will have opportunities to build connections with professionals in the disability policy field.
  • Applications are due October 28th, 2026, by 5pm.

You can find out more and apply using this link or clicking the button below: https://wi-bpdd.org/index.php/wi-disability-policy-leadership-program/

Disability Policy Leadership Program
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Home modifications can help people remain safe and independent in their homes and communities, but finding reliable information about home modification services and resources can be challenging.
Recently updated with support from ACL, the Home Modification Information Network (HMIN) is a free online resource for individuals, caregivers, professionals, organizations, and others seeking information on home modifications. HMIN brings together information about programs, funding opportunities, service providers, and other resources available at the local, state, and national levels.
Users can search by the type of assistance they need and enter a ZIP code to find relevant resources in their area.  
Explore HMIN
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The Family Caregiving Compendium, developed by the George Washington University Milken Institute School of Public Health and the LeadingAge LTSS Center @UMass Boston, is an interactive, searchable resource tracking federal legislative and policy proposals introduced over the past decade to support America's 63 million family caregivers. Designed to organize and compare non-passed federal proposals, the compendium categorizes initiatives across five key domains: expanding and enhancing caregiver programs (such as Medicaid, Medicare, and the Older Americans Act), providing financial supports like tax credits and stipends, delivering training and education, establishing workplace supports such as paid leave, and implementing other cross-cutting policy approaches to strengthen the long-term services and supports (LTSS) system.



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The direct care workforce in the United States experienced rapid growth over the past decade, adding nearly 1.8 million jobs to reach almost 5.4 million workers, driven primarily by a rapidly aging national population. Despite this expansion and projections that direct care will generate more new jobs than any other single occupation over the next decade, workers continue to face severe economic instability. In 2024, the median hourly wage stood at just $17.36 with median annual earnings under $26,000, leaving more than a third of the workforce in low-income households and nearly half relying on public assistance. Composed overwhelmingly of women, people of color, and immigrants, this essential workforce now faces heightened recruitment and retention risks due to emerging federal policy changes, including Medicaid funding cuts, shifting immigration rules, and weakened labor protections.



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