News
In a statement released on April 2, 2026, Representative Shelia Stubbs (D-Madison) celebrated Autism Acceptance Day at the Wisconsin State Capitol, emphasizing the need for dignity, agency, and the removal of systemic barriers for autistic residents. Highlighting CDC data that shows Wisconsin has a higher prevalence of autism than the national average—1 in 26 children compared to the national 1 in 31—Stubbs called for increased funding for essential resources and respite programs. She praised the efforts of partner organizations like the Autism Society of Wisconsin, the Wisconsin Autism Providers Association, and Autism United of Wisconsin, reaffirming her commitment to advocating for the rights and full community inclusion of all autistic Wisconsinites.
brookings institute: Aging with dignity: Providing long-term supports and services at home for our nation’s elders
By SD Network, 2026-04-03
The provided article from Brookings highlights the urgent need for a structured long-term care system as the U.S. population ages, noting that seven in 10 individuals will eventually require significant long-term services and supports (LTSS). Currently, middle-income households face a "collapsed" private insurance market and high costs that exceed average savings, while Medicaid remains restricted to the very poor and often prioritizes nursing homes over preferred in-home care. To address this, authors Richard G. Frank, Sherry Glied, and their colleagues propose a new Medicare home care benefit designed as an entitlement to provide financial protection and allow elders to age with dignity in their own homes.
PHi: A New Federal Proposal Would Further Undercut Home Care Workers’ Labor Rights
By SD Network, 2026-04-03
The U.S. Department of Labor has proposed a rule that simplifies the process for employers to classify home care workers as independent contractors, a move critics argue will lead to widespread misclassification. This change would strip workers of essential labor protections—such as minimum wage, overtime pay, and workers' compensation—costing individual aides an estimated $7,229 to $10,247 annually in lost compensation. By shifting the burden of payroll taxes and insurance to the workers, the proposal risks destabilizing a fragile care system already struggling with high turnover and recruitment challenges. PHI and other advocates are urging the public to submit comments by April 28, 2026, to oppose the rule and protect the rights of this predominantly female and diverse workforce.
ASSOCIATION OF PROGRAMS FOR RAUL INDEPENDENT LIVING: Help Shape Research: Adults with Cerebral Palsy
By SD Network, 2026-04-03
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AAPD: American Association of People with Disabilities Responds to Executive Order Threatening Vote by Mail
By SD Network, 2026-04-03
The American Association of People with Disabilities (AAPD) has issued a statement strongly condemning President Trump’s Executive Order titled “Ensuring Citizenship Verification and Integrity in Federal Elections,” arguing it creates significant barriers for the more than 40 million eligible voters with disabilities. The AAPD contends that by establishing a “citizenship list” based on potentially inaccurate federal data and imposing a 60-day deadline for eligibility sharing, the order threatens to disenfranchise disabled individuals who rely on the flexibility of voting by mail due to health flares, transportation issues, or living in long-term care facilities. Ultimately, the organization asserts that the President lacks the constitutional authority to unilaterally alter election laws and vows to continue its REV UP Campaign to protect accessible democracy.
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NATIONAL PUBLIC RADIO: 'What if I die first?' Making a plan is key for family caregivers. Here's how
By SD Network, 2026-04-02
To help family caregivers navigate the daunting "what if I die first?" scenario, experts emphasize the necessity of creating a formal, evolving contingency plan that prioritizes the wishes of the person receiving care. Key strategies include writing a letter of intent to document daily routines and preferences, identifying a trusted support network beyond immediate family, and maintaining a "have and have-not" list for essentials like housing and government benefits. By proactively addressing these difficult conversations and using resources from organizations like The Arc and the National Down Syndrome Society, caregivers can ensure a smoother transition and long-term stability for their loved ones.
MOTHER JONES: Home Care Wasn’t Ready for the Climate Crisis—Even Before Trump’s Cuts
By SD Network, 2026-04-02
The article from Mother Jones highlights a burgeoning crisis for the 7 million Medicaid recipients who rely on home and community-based services (HCBS) to live independently, as they face the dual threats of escalating climate disasters and systemic federal funding cuts. Experts warn that a combination of GOP-led budget cuts to Medicaid and the dismantling of FEMA’s resilience programs has left under-resourced care providers unable to plan for evacuations or emergency contingencies. This lack of federal-to-local support, compounded by low wages for home care workers, is increasingly forcing disabled and elderly individuals out of their communities and back into more restrictive institutional settings during extreme weather events.
