As the start of 2024, many issues are at play that will affect Medicaid coverage, financing, and access. Medicaid is the primary program providing comprehensive health and long-term care coverage to one in five low-income Americans. This article explains what else to watch for in Medicaid coverage in 2024.

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Meet Chad. This rock climbing fanatic volunteers his time doing all sorts of advocacy things. He believes getting involved in the community is the key to being self-determined. We’re so fortunate to have him as a member on the Network!

What's your story?  Tell us a little bit about yourself.

Chad is a disability advocate in the Madison area.  He currently lives independently in his own apartment and receives supportive homecare.

How are you involved with self-determination? Why did you join the SD Network?

Chad wants to help empower people to have self-determination by helping advocate in our community. “I think it’s important for people to have self-determination to advocate for themselves and to be the most independent they can be,” he says.

Tell us some good news - what's the most exciting thing happening for you (or in Wisconsin) in terms of self-determination?

Some exciting news for Chad is that last year he became the president of the People First Wisconsin Madison chapter.  He also volunteers for the Youth Leadership Forum. He’s taking Partners in Policymaking this year as well.

What tip or resource would you like to share with people who want to be more self-determined?

Chad encourages people to get involved in the community. He explains that it is the best way to be self-determined. “I’ve met a lot of friends through my advocacy journey, and it helps me be a better advocate for myself,” he tells us. 

What are some of your hobbies?

In his spare time, Chad enjoys spending time with his friends, playing video games and going outside when the weather is nice.  He also loves rock climbing.

***We love hearing the views and opinions of Network members. We need to mention that the views and opinions expressed on this site are those of the person who is sharing them. They do not necessarily reflect InControl Wisconsin or any of our supporters and funders.

Beginning in September 2024, the Wisconsin Department of Health Services (DHS) will require all adult long-term care waiver service providers to enroll with Wisconsin Medicaid through the ForwardHealth Portal.

The new enrollment process is how you will become certified as a Wisconsin Medicaid provider and be assigned a Medicaid Provider ID. The new process is for those who provide services to adults who are older, have a physical disability, or have an intellectual or developmental disability and participate in any of the following programs:

• Family Care
• Family Care Partnership
• Program of All-Inclusive Care for the Elderly (PACE)
• IRIS (Include, Respect, I Self Direct)

The new enrollment process is also for individuals, agencies, organizations, vendors, and sole proprietors who provide services listed in the DHS MCO contract or the IRIS Service Definition Manual. Existing Medicaid providers who also want to provide waiver services must access the Portal to add long-term care waiver programs and services to their current Medicaid provider file.

Individual self-directed support (SDS) workers and participant-hired workers will continue to be Medicaid certified and contracted through managed care organizations and IRIS fiscal employer agents.

Sign up for email updates from the Adult Long-term Care Waiver Service Provider Enrollment Project

You will access the E-mail Subscription Sign-up page on the Portal to sign up to receive emails. You can sign up for as many lists as you are interested in.

Subscribe to the Adult Long-term Care Waiver Service Provider Email list.

• Expanded commitment to broader inclusion of people with disabilities across the research enterprise;
• New opportunities for international research and development activities;
• An increased focus on the enabling or disabling characteristics of the communities in which we live; and 
• Call to the field to pursue work that has an intersectional focus.

For 18-year-old Anna Konkel of Brookfield, rock climbing is just a sport. She's proving anything is possible as long as you believe in yourself. This teen who has a visual impairment is competing with assistance from a volunteer who gives her verbal directions as to how to navigate the wall. "(People with disabilities) can do whatever we put our minds to," she says.

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Kaiser Family Foundation has published a new report, A Look at Waiting Lists for Medicaid Home- and Community-Based Services from 2016 to 2023. The report provides insight into one important measure of unmet need for home and community-based services (HCBS) across states.

A few highlights from the report include: 

• The number of states with waiting lists hasn’t changed significantly over time. Currently, 38 states have them.
• As of 2023, there are over 692,000 people on waiting or interest lists for HCBS services.
• Most people on waiting or interest lists for HCBS live in states that do not screen for eligibility before adding people to lists.
• Most people on waiting or interest lists are eligible for other HCBS services, but those services may not fully meet their needs.

Self-Determination Network News:

January 2024

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Disability Advocacy Day 2024

Save the date for the 2024 Disability Advocacy Day on Wednesday March 20th in Madison. It's on a Wednesday this year instead of the usual Tuesday. We'll be sending out information about details and registration in a few weeks. We hope to see you there!

Voting Lunch and Learns

2024 is a huge election year, and the Wisconsin Disability Vote Coalition has you covered! They will be holding virtual Lunch and Learns throughout the year about various voting topics. The first one (register here) is going to be Tuesday January 23rd from 12p.m. to 12:45p.m. It will be about registration and absentee voting. Another Lunch and Learn (register here) will be held on Tuesday February 6th from 12p.m. to 12:45p.m., and the topic will be voting rights and local elections matter. Make sure to keep up to date on voting issues by attending these events.

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Brett. This fun-loving guy is determined to make the best of life regardless of the circumstances. He is determined to make an impact on as many lives as possible. Check out this month's Member Spotlight to get to know Brett.   

Who should we shine the spotlight on next?

Stacy’s Journal

Take five minutes to check out what's happening on the Self-Determination Network:

• Tools to Help Strengthen HCBS: Recently, the Centers for Medicare & Medicaid Services released new tools that will help improve access for millions who receive home and community-based services through Medicaid. Learn about what these tools will help.
• Concerns over the the Census Questioning: The U.S. Census Bureau is considering changing the way it asks people about disabilities and advocates are concerned. Find out why advocates are concerned.
• Investment in Services: Recently, the Biden-Harris Administration announced actions and new data that will help expand home-and-community-based services.  Read about what actions are being taken.
• Guide to Accessible Travel: Traveling is generally fun and exciting, but it also can be stressful. This is especially true for many people who have disabilities. Check out this guide to accessible travel.
• Request for Comment: The Administration for Community Living is announcing an opportunity for the public to comment on the data collection requirements for the ACL Evidence-Based Falls Prevention Program Information Collection. Comments are due February 12th.
• Be your Best Self-Advocate: You are your own best advocate. Take a look at some great tips for being an advocate.
• Youth Leadership Forum: YLF is a week-long forum for high school with disabilities who want to learn more about leadership, self-advocacy skills, and career awareness. Share this opportunity with students who would benefit!
• What's Behind the Shortage: The nearly five million direct care workers who support older adults and people with disabilities are the largest workforce in the U.S. Watch this news clip about what are the causes of the caregiver shortage.
• ABLE Limit Increase: Starting January 1st, people with disabilities are able to save more money in ABLE accounts which are accounts that allow them to save without jeopardizing their government benefits. Find out how much it increased.
• Digital Accessibility Guidelines: The Office of Management and Budget recently released updated guidance requiring federal agencies to improve their digital accessibility for people with disabilities. Learn about what the guidelines are. 

Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

• Webinar: Registration And Absentee Voting: January 23rd, 12p.m. to 12:45p.m., Virtual
• Transition To Adulthood: Healthcare And Advocacy: January 25th, 6:30p.m. to 8p.m., Independence First, Milwaukee WI 
• HSRC Webinar - Expanding Access To Service Coordination: Two Models Of Braiding Funding: January 31st, 1p.m. to 2p.m., Virtual
• Webinar: Designing Accessible Crosswalks: February 1st, 1:30p.m. to 3p.m., Virtual
• Webinar: Voting Rights And Local Elections Matter: February 6th, 12p.m. to 12:45p.m., Virtual
• Webinar: How To Begin And Grow An Adaptive Sports Program And The Resources Needed: February 8th, 1p.m. to 2:30p.m., Virtual 
• 2024 National Self-Direction Conference: March 14th-15th, Marriot Waterfront, Baltimore MD
• Disability Advocacy Day: March 20th, 10a.m. to 3p.m., Monona Terrance and the State Capitol, Madison WI
• Circles Of Life Conference 2024: May 16th-17th, Holiday Inn, Stevens Point WI
• Employment First Conference: May 21st, Kalahari Resort, Wisconsin Dells WI

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.