News
What's your story? Tell us a little bit about yourself.
Nekita is a disabled advocate who has been fighting for themselves and others for as long as they can remember. They began advocating in an official capacity in 2015 as a delegate at the WI Youth Leadership Forum. From that point forward, he has dedicated himself to intersectional inclusion in various spaces, with a personal passion for making sure that disabled spaces are queer-friendly and pride events are accessible.
How are you involved with self-determination? What advocacy things are you involved in?
At 16 years old, Nekita was a delegate at the WI Youth Leadership Forum (YLF). Shortly after that, they completed the Youth in Partnership with Parents and Educators (YiPPE) course and the Partners in Policymaking class series. He later returned to the WI YLF as a staff member, where he continues to work today.
Over the years, Nekita has attended and spoken at several Self-Determination Conferences. During their undergraduate studies, they tutored English and Language Arts through UW-Whitewater’s Center for Students with Disabilities (CSD), helping students learn how to research, comprehend, and write various assignments. Reflecting on this teaching philosophy, Nekita noted, "I pride myself on not just going through the motions as a tutor and teacher, but in truly walking through a subject with a student so that they can walk away with a deeper understanding of the subject."
Tell us some good news - what's the most exciting thing happening for you (or in Wisconsin) in terms of self-determination?
An exciting new chapter is beginning for Nekita this fall as they head to grad school at UW-Milwaukee! He is pursuing a Master’s in Library Media and Information Sciences, complete with an additional teaching license. Driven by a lifelong passion for learning and inclusion, Nekita's ultimate goal is to become an inspiring school librarian who connects students with the resources they need to thrive!
What tip or resource would you like to share with people who want to be more self-determined?
Nekita advises people wanting to be more self-determined to find their community. While standing up for oneself is a very good thing, they believe that standing with others will not only help the cause but also bring joy and light into life that can sometimes be forgotten when the sole focus is on fighting.
What are some of your hobbies?
Nekita loves to write, read, and meander through nature. For those interested in his work, his writing can be explored at http://www.nk-writing.com.
***We love hearing the views and opinions of Network members. We need to mention that the views and opinions expressed on this site are those of the person who is sharing them. They do not necessarily reflect InControl Wisconsin or any of our supporters and funders.
The care work sector faces a severe and worsening labor shortage driven by low wages, inadequate public funding through programs like Medicaid and Medicare, and aggressive immigration enforcement. Many essential care providers—including direct care aides, nursing home staff, and hospice workers—are immigrants whose legal protections are being systematically rolled back, forcing them out of the workforce or leading to termination due to shifting immigration policies. As a result, direct care facilities, hospice programs, and independent living systems are increasingly understaffed, forcing registered nurses to absorb basic caretaking duties, creating long waiting lists, and severely limiting the availability and quality of support for the elderly and people with disabilities.
CBS NEWS: Democrats probe DOJ finding that eases way for states to institutionalize mentally ill
By SD Network, 2026-07-26
More than 100 congressional lawmakers have launched an inquiry into a controversial Justice Department legal opinion that makes it easier for states to institutionalize individuals with mental illnesses rather than funding community-based care. Written by the Office of Legal Counsel, the non-binding opinion reinterprets a landmark 1999 Supreme Court ruling by asserting that states are not legally obligated to integrate mentally disabled patients into home or community care settings. In a formal letter to Justice Department leadership, lawmakers requested that the opinion be rescinded and demanded full transparency regarding all officials, administration advisers, and outside groups involved in drafting or influencing it. While the Department of Justice confirmed it is reviewing the request, civil rights advocates warn that weakening the integration mandate could significantly increase institutionalization rates and undermine long-standing disability rights protections.
WISCONSIN STATE FARMER: AgrAbility helps disabled farmers remain productive and independent
By SD Network, 2026-07-26
AgrAbility is a specialized program designed to help farmers, agricultural workers, and their families continue farming successfully despite injuries, illnesses, or disabilities. By providing personalized guidance, funding navigation, and adaptive technologies—such as specialized equipment lifts, modified tractor controls, backup cameras, and quick-attach machinery—the organization enables individuals with physical limitations to navigate their farms safely and regain their independence. Through these tailored interventions and assistive tools, AgrAbility helps farmers overcome significant physical challenges and severe accidents so they can remain productive and retain their livelihoods in agriculture.
TIME: “When’s It My Turn?”: Reimagining Disability Inclusion 35 Years After the ADA
By SD Network, 2026-07-26
In this article commemorating the anniversary of the Americans with Disabilities Act, an executive draws on personal experiences with his late brother to advocate for deeper disability inclusion and economic opportunity. While recent workforce statistics reflect encouraging progress—such as a record 38.5% employment-to-population ratio for working-age adults with disabilities—a stark gap remains when compared to the 74.5% ratio for individuals without disabilities. Emphasizing that individuals with disabilities desire independence, meaningful employment, and self-worth, the author calls on employers, policymakers, and community leaders to move beyond basic awareness toward concrete action, accessible technology, and universal design.
WBAY: World’s first pilot to fly with her feet inspires Limbitless Wisconsin participants
By SD Network, 2026-07-26
Limbitless Wisconsin hosted nearly 60 participants and their families at Appleton International Airport for a Disability Pride Month event featuring Jessica Cox, the world’s first licensed pilot to fly using only her feet. During the breakfast meet-and-greet, Cox shared her journey of overcoming obstacles, encouraging individuals impacted by limb differences to pursue their ambitions without letting perceived limitations hold them back. The gathering, sponsored by the Fox Cities Convention & Visitors Bureau, also highlighted local dedication to accessibility and inclusion through the presentation of an official Disability Pride Month proclamation from the city of Appleton.
Community living is a fundamental civil right that enables individuals with disabilities to fully participate in society, maintain connections with family and culture, and access equal opportunities in education and employment. Advocates are expressing deep concern over recent guidance that threatens to weaken federal enforcement of longstanding legal mandates requiring public entities to provide services in integrated, community-based settings rather than institutional environments. Although basic legal protections remain intact, any reduction in federal oversight risks forcing individuals to defend their rights on a burdensome case-by-case basis, making essential daily support harder to access and threatening the core principle that everyone deserves to live freely within their own neighborhoods.
DISABILITY POLICY FOUNDRY: The Inaccessible Cost of Wheelchair Accessible Vehicles (WAVs): A Federal Tax Credit Solution
By SD Network, 2026-07-18
In this blog, the author argues for a targeted federal tax credit to alleviate the prohibitive upfront costs of Wheelchair Accessible Vehicles (WAVs), which often exceed $70,000. Because individuals with physical disabilities face strict state Medicaid and SSI asset limits that prevent them from accumulating the necessary savings, existing state programs and manufacturer rebates offer insufficient relief. To bridge this financial gap, the policy proposal outlines a five-year pilot program providing a refundable $7,500 tax credit for new qualified WAVs, extending eligibility to family caregivers and capping vehicle prices at a Manufacturer’s Suggested Retail Price (MSRP) of $75,000 to prevent manufacturer price inflation. Crucially, the policy allows the credit to be transferred directly to mobility dealers at the point of sale, ensuring low-income families receive an immediate discount rather than paying thousands out-of-pocket for vital transportation infrastructure.
NEWSWEEK: Map Shows 26 States Suing Trump Administration Over Medicaid Rule
By SD Network, 2026-07-18
A coalition of 25 states and Washington, D.C., has filed a lawsuit against the Trump administration to block a Centers for Medicare & Medicaid Services (CMS) rule that mandates Medicaid expansion recipients complete 80 hours of work, education, or community service per month to maintain their health insurance. Led by the attorneys general of California, Massachusetts, and New Jersey, the legal challenge argues that these requirements create complex administrative obstacles that will cause vulnerable individuals—including those with chronic health conditions—to lose vital healthcare coverage. Conversely, federal officials contend the policy will promote independence and skill-building. The lawsuit is politically notable as it unites traditional Democratic strongholds with six critical presidential battleground states, setting up a major clash over the role of government benefits and healthcare access.
WISCONSIN DEPARTMENT OF WORKFORCE DEVELOPMENT: From Dream to Reality: How DVR Helped One Wisconsinite Become a Nurse
By SD Network, 2026-07-18
With the assistance of a state vocational rehabilitation agency, a student with a disability successfully achieved their lifelong dream of becoming a registered nurse. The program provided crucial support throughout their education, including a training grant for college tuition, transportation assistance to reach clinical sites, and valuable counseling that fostered essential self-advocacy skills. Today, they are successfully employed on the night shift at a specialized hospital unit helping patients recover and grow, fulfilling their desire to care for others. Looking to the future, they plan to gain a few years of clinical experience before returning to school to pursue a license as a nurse practitioner.