News


A new housing development in Minnesota is intended to help people with disabilities mingle with others outside of their own group.  Bethesda, a Watertown, Wis.,-based nonprofit, is building the $18 million, 52-unit complex of apartments and townhouses for people with intellectual and developmental disabilities and people 55 and older.  People will live independently in their own apartments, but mingle in common areas to socialize, take classes, exercise and practice yoga.

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Thanks to a new rule, all 50 states and Washington, D.C. have mandates that require some level of insurance coverage for the treatment of autism.  Insurance companies are now required to cover treatment for autism that is “medically necessary and appropriate and is not experimental,”

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President Trump proclaimed October as National Disability Employment Awareness Month..  In the proclamation, it talks about how we need to reaffirm a commitment to fostering opportunity for people with all abilities to use their skills and talents in the workplace.

Read full proclamation 

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The city of Madison is considering fining restaurants that give out plastic straws unless a customer asks for one first.  This proposed ordinance's whole purpose is to cut down on the amount of waste, particularly of single-use plastics, in the city, but the proposal is drawing criticism from a number of groups.  The Disability Rights Commission doesn't support it claiming many people with disabilities rely on straws.

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Hiking is a common outdoor in Wisconsin.  Now people who have mobility issues can experience the beauty of  the outdoors  like never before.  Thanks to an organization called Access Ability Wisconsin, there are now 15 all-terrain outdoor  wheelchairs and 12 trailers that people can borrow for free (with a $50 deposit) at eight locations around the state.  These wheelchairs can go almost anywhere — up hills, over mud, through forests, even on 12 inches of fresh Wisconsin snow. 

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National Survey on Health and Disability

We want to know how your access to health care and insurance may be affecting your life.

Participants Needed



The NIDILRR-funded Collaborative on Health Reform and Independent Living (CHRIL) is looking for adults with disabilities to complete an online survey about health insurance and health care services. Whether you have private insurance, insurance from an employer, TRICARE, Medicaid, Medicare, or no insurance right now please complete the survey.

  • Adults, 18 and over, with any type of disability, mental or physical health condition are encouraged to participate
  • The survey should take about 20 minutes to complete
  • Responses are anonymous

To complete the survey, click here:


(or copy & paste into your browser: https://tinyurl.com/NSHD2019)


Whether or not you complete the survey, you can choose to enter a drawing to win one of ten $100 gift cards. If you prefer to take the survey over the phone or have any questions about participating, please call toll-free 1-855-556-6328 (Voice/TTY) or email  healthsurvey@ku.edu
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According to a recent study, people with disabilities are less likely to use the Internet than any other group.  Of the more than 56 million people in the US who have a disability, many haven't been able to afford service or have lacked the digital training to access the internet.  What this means for people with disabilities is that they often miss out on the benefits and opportunities that high-speed internet connectivity affords the rest of the population. That's where Comcast's expansion of its Internet Essentials program comes in. The program has been modified several times over the years to include low-income veterans and people receiving public housing benefits.

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Every year BPDD puts together an Annual Report detailing our grants, projects, conferences and policy work outcomes for the previous year. Our federal charge in the Developmental Disabilities Act is, identifying the most pressing needs of people with developmental disabilities and developing innovative and cost-effective ways to meet these needs in a manner that upholds human and civil value. Councils (Boards) must include, at minimum, 60% people with developmental disabilities and their family members.

The BPDD State Plan, informed by statewide input from the disability community, focuses primarily on
two areas: Full Participation in the Community & Advocacy Efforts. During 2018–2019, we have made
significant progress in all our goal areas.

BPDD Annual Report 2018-2019 

You can find a link to our 5-year state plan here: https://wi-bpdd.org/wp-content/uploads/2016/09/2017-2021-State-Plan-Final.pdf 

Starting in 2020 we will be hosting a number of Community Conversations around the state to gather input for our next 5-year state plan. Please read through our current state plan and our annual report so you can help us develop our new state plan to address the needs of the disability community.

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Planning underway for Awesome Autumn Ability Fest 2020

Kurt Roskopf is planning for Awesome Autumn Ability Fest 2020 to be at the Golf Club at Camelot in Lomira (W192 Hwy 67) 53048.     The date is selected in April based on the Packer Schedule.     The event is designed to be very hospitable and entertaining for everyBODY that does not golf.       

If folks would like to be a part of the planning committee for this event, contact Kurt now:    kurt@abilitywi.tk   facebook.com/roskopfs   262-372-1754

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96 Self-Determination Network News:

September 2019

Connect Share | Learn http://sdnetworkwi.org/  

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Hurry!  Registration Closes Friday!

The 2019 Self-Determination Conference will take place October 14th-16th at the Kalahari Resort in Wisconsin Dells.  The Conference empowers people with disabilities in Wisconsin to have more control over their lives. Technology is constantly evolving and so is the Self-Determination Conference. Join us as we learn ways to live healthier, happier and more productive lives.  Registration closes this Friday, September 27thRegister today!

 

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“Scotland Reports” from Lynn Breedlove

In early August, Lynn Breedlove represented In Control Wisconsin at an International Disability Congress in Glasgow, Scotland. He presented highlights of his paper entitled “Self-Direction Worldwide: Contrasting Beliefs and Their Impact on Practice” and attended several workshops focused on self-direction. He was the U.S. representative in a half-day brainstorm with self-direction advocates from 9 countries focused on the current state of self-direction around the world.  He is writing a series of articles for the SD Network about what he learned.  Today, we are pleased to share the second in his series.  Join the conversation: Please share comments, and thoughts with one another using the network. 

Read Scotland Report #2

Read a summary of “Self-Direction Worldwide”, with a link to the full paper

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For September, we shine the spotlight on Roxanne. When she isn’t traveling around the world, spending time with family and friends, reading, or gardening, she works with people teaching them about Self-Determination and Self-Directed Supports.  Stop by this month's Member Spotlight to get to know Roxanne.

128 Stacy’s Journal

"Many people my age have friends from moms’ groups, friends from their kids’ activities, friends from a volleyball league or other activities. While I’ll probably never friends from situations such as those, I’m incredibly fortunate to be friends with so many people who made such a profound impact on my life. It really does take a village, and I’m truly blessed to have an outstanding village of people who continue to support me! "

In this month's entry, Stacy talks about her special village of people who continue to support her. Who's in your village?  We encourage you to share your thoughts and experiences as well.

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Take five minutes to check out what's happening on the Self-Determination Network:

  • Public Comment on Guidelines for Onboard Wheelchairs:  The U.S. Access Board has released for public comment advisory guidelines for wheelchairs used on commercial passenger aircraft during flight.  Comments due October 21st.  Let your voice be heard!
  • Federal Program Extended: For the third time this year, additional funding will keep alive a federal program that moves individuals with disabilities from institutions into the community. Find out how this money will help, but why advocates are concerned.
  • Delay of Electronic Verification Visit: The Wisconsin Department of Health Services has been granted an extension which pushes the Electronic Visit  Verification (EVV) implementation date back into 2020.  Learn what EVV is about.
  • Exercise and Fitness for All Act: Three U.S. Senators have introduced “The Exercise and Fitness For All Act” to improve access to fitness equipment and classes for people with disabilities.  Read about what this bill would include.
  • Assistive Technology Brief:  The Administration for Community Living (ACL) has released a new Issue Brief on Assistive Technology. Learn what the brief includes.
  • Assistive Robots:  Assistive robots are growing in popularity.   Read about how they are helping people with disabilities be more independent.  
  • Emergency Preparedness:  Emergency preparation is important for everyone. However, older adults and people with disabilities often face additional challenges during emergencies.  Learn about some things to consider when creating a emergency plan.
  • Peers as Caregivers:  A unique program in Washington D.C. teaches people with disabilities to be care providers for their peers. Find out how this program works.
  • Call for Presenters:  Applications to present at the Circles of Life Conference, May 2020! Parents, family members, providers or anyone who has ideas and wisdom to share is encouraged to apply!   The deadline for proposals is October 1st.

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

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The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

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