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The theme of the 2026 Family Voices Leadership Conference is Our Voices, Our Stories: Centering Children and Families in Systems of Care. The virtual conference brings together a community of family and youth leaders, Family Voices Affiliate Organizations, patient and family advisors, and other professional partners and stakeholders from across the country.

We are seeking proposals for sessions that will help attendees reach and serve families, youth, and professionals working to improve systems or operate an effective family-serving organization. 

We are particularly seeking session proposals that:

  • Address the needs of family leaders and patient advisors who participate on Boards and councils in the health care system
  • Prepare and support parents and youth/young adults to participate at decision-making tables
  • Build the capacity of youth family leaders to operate effective family-run, family-serving organizations
  • Focus on family quality of life and well-being and health equity

IMPORTANT DATES

Preconference: April 13-14, 2026, 9-5pm ET

Main Conference: April 15-16, 2026, 12-6pm ET

Proposals are due on December 19, 2025.

Learn More

Member Spotlight: Meetra


By SD Network, 2025-10-30

1000000994.jpgMeet Meetra. When this author isn’t busy working on her next books or helping people with disabilities, she loves participating in adaptive sports and mentoring. She encourages people to get out of their comfort zones and challenge themselves. We’re so fortunate to have her as a member of the Network!

What's your story? Tell us a little bit about yourself.

Meetra is an author living with Spina Bifida. Her first book is entitled, Dis-ability to This-ability, and it can be found at Amazon, Barnes & Noble, Walmart, Kindle, and here.
She also works as a Community Support Manager for adults with disabilities. 

How are you involved with self-determination? Why did you join the SD Network?

Meetra explains that she has always strived to push herself and challenge what she’s capable of doing. She wanted to join because she wanted to continue putting herself out there and helping others challenge themselves. 

Tell us some good news - what's the most exciting thing happening for you (or in Wisconsin) in terms of self-determination?

Meetra shares with us that she’s working on her next few books and she has a few speaking engagements lined up. She has also started an adaptive fitness group class at Peter Kraus Fitness. 

What tip or resource would you like to share with people who want to be more self-determined? 

“You can start anywhere, from the smallest aspect,” she tells us. She explains that staying in your comfort zone does not allow us to grow and thrive. 

What are some of your hobbies?

In her free time, Meetra enjoys writing, participating in adaptive fitness, and watching movies. She also loves mentoring others with disabilities and volunteering with dogs. 

***We love hearing the views and opinions of Network members. We need to mention that the views and opinions expressed on this site are those of the person who is sharing them. They do not necessarily reflect InControl Wisconsin or any of our supporters and funders.

 

UW-MADISON: Sibling Support Study


By SD Network, 2025-10-27

A student in the Social Welfare Program at UW-Madison is conducting a dissertation study focused on the experiences of siblings supporting their siblings with intellectual and developmental disabilities — particularly how those caregiving roles and responsibilities change over time. Participation involves a one-time interview (about 60 minutes) over Zoom or phone, and participants will receive a $40 gift card as a thank-you for their time. Participation is completely voluntary.

See this flyer for more information 

Recruitment Flyer.pdf Sibling study
Recruitment Flyer.pdf, 89KB

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Nearly 600 caregivers responded to NPR's request to share their stories, offering practical advice and expertise. The guide covers navigating the medical system, adjusting to caregiving as a new normal, asking for and accepting support, practicing self-care through boundary setting, and managing changing relationship dynamics. The No. 1 advice from caregivers: Get help from support groups, friends, family, therapists, or faith communities, as caregiving is too isolating to do alone.

View guide

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New research from the National Alliance for Caregiving and AARP finds 63 million Americans, nearly one in four adults, now serve as family caregivers—an increase of 20 million from 2015 to 2025. Family caregivers collectively provide an economic value of $600 billion in unpaid care, yet nearly half experience negative financial impacts. 

Read more

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The Ike Center has a new campaign launching in Milwaukee this month.  It aims to give people with disabilities in our area training and new employment options. The campaign has partnered with several local employers around the area in the hopes of building a more inclusive workforce in the Milwaukee area. 

Read more

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Experts sit down and discuss how cuts will impact real people. Everything from special education to food assistance is discussed in this article.

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Executive Director of People First Wisconsin, Cindy Bentley, was recently featured in an episode of Wisconsin Life. Cindy was institutionalized for many years and fought her way out. She now leads a very successful life and is one of Wisconsin's strongest disability advocates.

Watch episode

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