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Self-Determination Network News: May 2016
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2016 Aging Empowerment Conference
There is still time to register for the 2016 Aging Empowerment Conference. It is hosted by InControl Wisconsin will be held June 7th and 8th at the Glacier Canyon Lodge Conference Center at the Wilderness Resort in Wisconsin Dells. The conference focuses on the interconnected relationship between older adults, their caregivers, and the professionals who support them. It's an opportunity to explore ways to advance self-determination as the foundation for providing support while empowering older people to retain control of their lives. Learn more information and find out how to register today!
Changes to Wisconsin Long-Term Care: What’s Next?
Since the Department of Health Services (DHS) submitted the Family Care/IRIS 2.0 Concept Paper to the Committee on Joint Finance on March 31st, committee members and others have asked a number of questions about why the Department chose to have three separate administrative zones if Family Care/IRIS 2.0 is implemented statewide. DHS has released a new webpage entitled "Family Care/IRIS 2.0: "Why Three?" which has additional information about the topic.
Be sure to stay up to date on the latest developments on our Long-Term Care Redesign page.
Take five minutes to check out what's happening on the Self-Determination Network:
- Call for Proposals: Proposals to present at the 2016 Across the Lifespan Conference are now being accepted through July 31st.
- Call for Exhibitors: Applications are now being accepted to be an exhibitor at the 2016 Self-Determination Conference.
- Advocates See Opportunity in Self-Driving Cars: Read about how many people with disabilities see a new opportunity coming with the advancements in self-driving cars.
- States Work Together on ABLE Accounts: Learn about how many states are banding together to create ABLE accounts.
- The History of Disability: Check out pictures from an exhibit in London about how disability has changed over the last 80 years.
- Google Disability Initiative: Find out how Google is helping to increase independence for people with disabilities.
- Housing Tips: Here is a great list of tips people with disabilities should know about housing.
- Phone Communication: Learn about how the Federal Communications Commission is trying to make it easier to communicate over the phone.
- Accessible Technology: Read about a new Accessible Technology section recently added to a popular disability informational website.
- First ABLE Accounts: Find out which states will be the first to offer ABLE accounts.
Stacy’s Journal
This month, Stacy discusses her quest to inspire and how her opinion on this topic may differ from many others who have disabilities. We encourage you to ask her questions and/or share your experiences as well.
Upcoming Events
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: "Two Tickets Please": May 26th, 1:30 p.m. to 3:00 p.m., Online
- Accessible Pontoon Boat Rides: June 1st-September 30th, Tenney Park, Madison WI
- Webinar: Vertical Access: June 2nd, 1:30p.m. to 3:00p.m., Online
- 2016 Aging Empowerment Conference: Living A Self-Determined Life: June 7th & 8th, Glacier Canyon Lodge Conference Center at the Wilderness Resort, Wisconsin Dells WI
- 2016 Transformation Conference: June 28th-30th, Hilton Alexandria Old Town, Alexandria VA
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
Since the Department of Health Services (DHS) submitted the Family Care/IRIS 2.0 Concept Paper to the Committee on Joint Finance on March 31st, committee members and others have asked why the Department chose to have three separate administrative zones if Family Care/IRIS 2.0 is implemented statewide.
DHS published a new web page with additional information about this topic, Family Care/IRIS 2.0: "Why Three?"
https://www.dhs.wisconsin.gov/familycareiris2/zones.htm" target="_blank" rel="noreferrer noopener">Click to view Family Care/IRIS 2.0: “Why Three?”
The first programs for ABLE accounts (accounts that allow people with disabilities to save money without losing their government benefits) are set to become available in some states this summer. Nebraska and Ohio are among the first states expected to offer ABLE accounts. Each state has to pass their own legislation and create regulations for these accounts.
A WISCONSIN FAMILY LEADERSHIP INSTITUTE
NOW accepting applications for 2016!
WiFLI is a new opportunity for Wisconsin families to participate in
an intensive leadership development experience. Upon completion families will be able to:
- engage with partners
- participate in quality improvement activities
- serve on advisory committees
- organize local groups
- improve their communities for children with disabilities or special health care needs and their families.
If you previously participated in a family learning opportunity such as PIP, YiPPE, Partners in Policymaking, or have served on an advisory or community committee, you will find WiFLI a great next step in your journey. WiFLI provides an in depth leadership development experience for families supporting a family member with disabilities or special health care needs. The Institute has a strong focus on building skills for participatory leadership, values of community inclusion and principles of individual and family centered practices.
WHO: Parents and other family members supporting a child or young adult 0-26 who has a disability or special health care need
WHEN: Summer/Fall weekends 2016
WHERE: Lake Lawn Resort, Delavan, WI
WHAT: Five, 1 ½ day face-to-face learning sessions starting Friday at 4:00pm, ending Saturday at4:00pm. Participants commit to all five sessions and participate in a community project.
COST: 25 participants will receive a full scholarship covering hotel and meals
Applications available at http://go.wisc.edu/hut55a. If you have questions, please call or email Sonja Oetzel at (608)265-8955, soetzel@wisc.edu or Liz Hecht at (608)263-7148. Visit the WiFLI website at http://www.waisman.wisc.edu/cedd/wifli.htm
Applications are due by May 15th
SCHEDULE FOR 2016
June 3-4
Clarifying Values and Creating a Foundation for Leadership
July 15-16
Innovations in Supporting Children and their Families
September 9-10
Developing Your Advocacy and Communication Skills
October 7-8
Building an Action Strategy as Part of a Team
November 4-5
Completing the Circle and Looking Ahead
This program is sponsored by the University of WI-Madison, Waisman Center UCEDD (University Center for Excellence in Development Disabilities) in collaboration with Family Voices of WI with funding from the Department of Health Services to the CYSHCN network of Regional Centers and Parent-to-Parent organizations.
People with disabilities often struggle to find appropriate housing. There are many different barriers and issues people have to consider when looking for housing. Disability.gov put together a great list of people should know about housing. It includes tons of excellent resources too!
The Federal Communications Commission is trying to make it easier for people with disabilities to communicate over the phone. They proposed a rule that would require wireless phone networks to recognize real-time text starting in December 2017. Real-time text would allow people to send and receive messages as they're being relayed without a separate device or translator on the line.
We thank the Great Lakes ADA Center for providing us with the following information about how a new technology section was added to ada.gov.
New Accessible Technology Section Added to ADA.gov
The Department of Justice has launched a new Accessible Technology sectionfor ADA.gov, its Americans with Disabilities Act (ADA) Web site, to further assist covered entities and people with disabilities to understand how the ADA applies to certain technologies, such as Web sites, electronic book readers, online courses, and point-of-sale devices. Covered entities have longstanding obligations to make their programs, goods, services, and activities accessible—including those they provide online or via other technology. The new Web pages compile in one place the Department’s technical assistance and guidance about accessible technology, as well as information about the Department’s accessible technology enforcement efforts, regulation development, and other federal accessible technology resources and initiatives.
DISABILITY SCOOP: Disability Advocates See Opportunity In Self-Driving Cars
By SD Network, 2016-05-03
As self-driving cars become more of a reality, many people with disabilities see a new opportunity coming. Advocates are urging manufacturers to make sure that people with disabilities are included in planning and development of this new technology. They want to make sure the disability community's needs are incorporated into the original designs rather than being introduced later or only as special modified models.
Manufacturers and project managers point out that unfortunately expectations of self-driving cars are unrealistic at this point. They say that each person's situation is different and determining who can use which car will be a "nightmare of complexity." Federal guidelines are now being drafted for automated vehicles that are expected to include the needs of those with disabilities.