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Recently, the Dept. of Justice announced its issuing new regulations to expand who's covered under the Americans with Disabilities Act.  It will cover those with everything from cancer to diabetes, epilepsy, attention deficit disorder, learning disabilities, and other conditions. The new regulations will take effect October 11th.

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96 Self-Determination Network News: August 2016

Connect Share Learn http://sdnetworkwi.org/  

Changes to Wisconsin Long-Term Care:
What’s Next?

On July 28th, the Wisconsin Department of Health Services (DHS) announced plans to expand Family Care and IRIS programs statewide by beginning of 2018. This will eliminate the wait list for hundreds of people seeking long-term care services.  This means the final seven counties in Wisconsin will finally have access to services. Learn more about the plan.

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.  In August, we shine the spotlight on Chad Murphy-Price.  As an avid waterskier and public speaker, he fully believes in the power of self-determination.  He has an incredible outlook on life which he uses to inspire others everyday.  Stop by this month's Member Spotlight to get to know Chad.

Who should we shine the Spotlight on next?

Take our One-Minute Poll!

InControl Wisconsin is always trying to come up with ways to improve our Networks for people. Occasionally, we're going to start asking for simple feedback from our members.  Using the data that's collected, we will better be able to serve our members.  

To start with, we simply want to know who you are.  We'd greatly appreciate it if you would take a minute to take our poll.

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Take five minutes to check out what's happening on the Self-Determination Network:

  • Watch:  This is an excellent webinar recording about the new ABLE programs.
  • ADA 26th Anniversary:  Late in July, America celebrated the 26th anniversary of the Americans with Disabilities Act (ADA).  Check out  these great links about the ADA.
  • Caregiver Wage Rule:  The US Supreme Court recently threw out a case disputing a  2013 Department of Labor regulation that requires in-home care workers to receive minimum wage and overtime pay.   Learn why many care agencies sued over this change.
  • Community Living on the Rise:  A new report reveals that more Medicaid dollars are going toward community-based services than institutional care. Read more about how community living seems to be trending.
  • Register Now:  The Across the Lifespan Conference is coming up in November.   Register today! 
  • Disability in America: The most common characteristic among people with disabilities in this country is living near or in poverty.  Find out how many people think that can be changed.
  • Bringing Disability into Entertainment:  More and more television shows are bringing the notion of disability into storylines.  Learn how this helps people gain a new perspective on disability.
  • Call for Presenters:  Presenter applications are now being accepted for the 2017 Circle of Life Conference.  Applications are due October 7th.  Apply today!
  • Virtual Reality Simulator:  Learn about how a new virtual reality simulator is helping teens with autism learn how to drive.
  • More Community-Based Options:  Read about how states are being urged to strengthen community based options so that people with disabilities can remain in their communities.
  • Accessible Cabins:  In Wisconsin, camping is often thought to be a fun summer activity.  Learn about how accessible cabins in some state parks make it possible for people with physical disabilities to experience camping.    

128 Stacy’s Journal

In this month's entry, Stacy discusses her opinion about disability in the world of sports. We encourage you to ask her questions and/or share your experiences as well.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

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The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 


Oftentimes, camping is thought of as an fun summertime activity in Wisconsin.  However, for many people with physical disabilities, tent camping is too difficult.  To try to accomodate people who have physical challenges, the Wisconsin Dept of Natural Resources has 10 wheelchair-accessible log cabins around the state.  The cabins are equipt with things such as two hospital beds, a Hoyer lift, and a shower-commode chair.  

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Member Spotlight: Chad Murphy-Price


By SD Network, 2016-08-09

196Meet Chad Murphy-Price.  This man doesn’t know the meaning of the word “impossible”. As an avid waterskier and public speaker, he fully believes in the power of self-determination.   Being able to self-direct his personal care attendants has allowed him to go on many trips and speaking engagements that he otherwise wouldn’t have been able to.   Chad has an incredible outlook on life which he uses to inspire others everyday.  We are so fortunate to have him as a member of the Network.

How are you involved with self-determination? Why did you join the SD Network?

Chad joined the SD Network because he wanted to help others become more self-determined in their lives.  He finds it very rewarding to be able to self-direct his care attendants when he goes on trips and speaking engagements.  He says it makes him feel very self-determined.

Tell us some good news - what's the most exciting thing happening for you (or in Wisconsin) in terms self-determination?

Right now, Chad is really looking forward to being the keynote speaker at the Speak Up Speak Out Conference in Chicago at the end of October.  He presents about livin

What tip or resource would you like to share with people who want to be more self-determined?

The tip Chad would like to share with others is “no matter how hard or how difficult things may seem, always remember to continue the very best you can, and that will in turn get you through the times."

What are some of your hobbies?

In his free time, Chad enjoys doing website design and adaptive waterskiing..  He skies with the Pewaukee Lake Waterski Club every Thursday in summer.

 ***We love hearing the views and opinions of Network members. We need to mention that the views and opinions expressed on this site are those of the person who is sharing them. They do not necessarily reflect InControl Wisconsin or any of our supporters and funders.


Medicaid officials want states to do more to make sure that people with disabilities have access to services to remain in the community.  Recently, the Centers for Medicare and Medicaid Services released guidelines states and services can take to ensure a strong home care workforce is in place.  States are also being urged to create registries to help people find qualified home care workers.

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Vanderbilt University has designed a virtual reality simulator to help teens who have autism learn how to drive.   It's specifically designed to teach people the basic rules of the road, and it also collects information about ways they react to situations.  It then can alter the scenarios with varying degrees of difficulty to provide people with the training they need.  Overall, trials of this program have had positive results, but more research needs to be done.

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Circles of Life Conference - CALL FOR PRESENTERS!!

The Call for Presenter application and instructions are now available on the COL website! The conference will be held May 4-5, 2017 at the Holiday Inn, Stevens Point and draws 400 - 500 families who have children with special needs from around the state. The deadline is October 7th.

The Circles of Life Conference Planning Committee encourages you to submit an application!

http://www.circlesoflifeconference.com/call-for-presenters/


More and more television shows are bringing the notion of disability into storylines.  While there are still many  troublesome factors associated with this (such  as exploiting disabilities and characters are usually played by an actor without a disability), having disability in the storylines is helping society gain a new perspective on disability.  The show "Born This Way" (which is about seven young adults living with Down Syndrome) is gaining popularity. The show doesn't focus on Down Syndrome but rather by how the cast pursue their passions and dreams.  

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