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The Department of Health Services has been granted an extension which pushes the Electronic Visit  Verification (EVV) implementation date back into 2020. The federal law would have gone into effect January 1, 2020, requiring all personal care and supportive home care workers to verify their time/location through an electronic system (smart phone, etc.).  

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For the third time this year, additional funding will keep alive a federal program that moves individuals with disabilities from institutions into the community.  Legislation signed this month allots another $122.5 million for Money Follows the Person which is a Medicaid program provides states with funding to pay for employment supports, housing and other services so that people with disabilities can transition from nursing homes and other institutional facilities to homes in the community.  The latest action will keep the program running through the end of this year, but advocates say it's operating at a  minimum level.

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The U.S. Access Board has released for public comment advisory guidelines for wheelchairs used on commercial passenger aircraft during flight. These onboard wheelchairs are provided by air carriers as a means of facilitating the transfer of passengers with disabilities to aircraft lavatories since personal wheelchairs cannot be used in the cabin. The Department of Transportation (DOT) has expressed its intention to supplement its regulations under the Air Carrier Access Act (ACAA) to include performance standards for onboard wheelchairs on covered aircraft. The Board is developing these non-binding guidelines as technical assistance to air carriers and manufacturers of onboard wheelchairs by providing an example of how to meet DOT's planned performance standards.

As indicated in a https://www.federalregister.gov/documents/2019/08/20/2019-17873/advisory-guidelines-for-aircraft-onboard-wheelchairs">notice published in the Federal Register, the guidelines specify dimensions, features, and capabilities for onboard wheelchairs that will allow passengers with disabilities to be more safely and comfortably transported aboard airplanes in flight. In addition, the guidelines include criteria to allow the onboard wheelchair to fully enter the lavatory in a backward orientation and be positioned over a closed toilet, and for the lavatory door to be closed. This feature would afford those passengers who cannot independently transfer to the toilet to have privacy in performing non-toileting tasks related to personal hygiene or medical needs. The Board has posed a number of questions to the public about specific provisions in the guidelines but welcomes input on all portions of the document.

As part of a negotiated https://www.transportation.gov/sites/dot.gov/files/docs/ACCESS%20Committee%20Final%20Resolution.11.21.16.pdf">rulemaking to improve access for air travelers with disabilities, DOT has put forth plans to supplement its ACAA regulations and require onboard wheelchairs with enhanced functionality on aircraft with more than 125 passenger seats.

Related information, including instructions for submitting comments, is posted at https://www.regulations.gov/docket?D=ATBCB-2019-0002" target="_blank">www.regulations.gov (Docket ATBCB-2019-0002). Comments are due October 21, 2019. In addition, on September 12, 2019, the Board will hold a public hearing that will provide an opportunity to submit comments either in person or by phone. Further details will be posted on the Board's website at https://www.access-board.gov/onboard" target="_blank">www.access-board.gov/onboard. Those who wish to provide testimony at the hearing should contact Rose Marie Bunales at (202) 272-0006 (voice) or bunales@access-board.gov by September 5, 2019.

For further details on the guidelines or the public hearing, contact Wendy Marshall at (202) 272-0043 (voice) or marshall@access-board.gov, or Mario Damiani at (202) 272-0050 (voice) or damiani@access-board.gov.

Public Hearing on Advisory Guidelines for Aircraft Onboard Wheelchairs  
September 12, 2019, 9:30 - 4:00 (ET)
Remote attendance options will be posted at: https://www.access-board.gov/onboard" target="_blank">www.access-board.gov/onboard
Access Board Conference Center 
1331 F Street, NW, Suite 800
Washington, D.C. 

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96 Self-Determination Network News:

August 2019

Connect Share | Learn http://sdnetworkwi.org/  

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Register Today!

The 2019 Self-Determination Conference will take place October 14th-16th at the Kalahari Resort in Wisconsin Dells.  The Conference empowers people with disabilities in Wisconsin to have more control over their lives. Technology is constantly evolving and so is the Self-Determination Conference. Join us as we learn ways to live healthier, happier and more productive lives.  Registration closes September 27th.  Register today!

Diehard Award Nominations

Do you know someone who goes above and beyond to improve community supports for individuals with disabilities?  Do they support self-determination?  Nominate them for a Diehard Award!  A Diehard is an individual who has made a significant contribution to the advocacy work here in Wisconsin. A diehard is someone with a steadfast commitment to the principles of community integration and self-determination. Diehards go above and beyond to make sure everyone is counted.  Nominations are due by 12p.m. on September 5th.  Nominate someone today!

 

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“Scotland Reports” from Lynn Breedlove

In early August, Lynn Breedlove represented In Control Wisconsin at an International Disability Congress in Glasgow, Scotland. He presented highlights of his paper entitled “Self-Direction Worldwide: Contrasting Beliefs and Their Impact on Practice” and attended several workshops focused on self-direction. He was the U.S. representative in a half-day brainstorm with self-direction advocates from 9 countries focused on the current state of self-direction around the world.  He is writing a series of articles for the SD Network about what he learned.  Today, we are pleased to share the first in his series.  Join the conversation: Please share comments, and thoughts with one another using the network. 

Read Scotland Report #1

Read a summary of “Self-Direction Worldwide”, with a link to the full paper

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The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

For August, we shine the spotlight on Lydia. This college senior is determined not to let anything stop her from achieving her goals!  She believes it’s so important to advocate and show the world what people with disabilities can do. Stop by this month's Member Spotlight to get to know Lydia.

128 Stacy’s Journal

"The events of the last month have been a whirlwind. I find myself trying to find a sweet spot between wanting to do all I can to advocate for people with all disabilities, but yet wanting to be as socially “normal” as I can. At times, it’s challenging to find the right balance, but I wouldn’t trade either for the world."

In this month's entry, Stacy talks about trying to balance being a strong advocate and wanting to lead a "normal" life as possible.  We encourage you to share your thoughts and experiences as well.

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Take five minutes to check out what's happening on the Self-Determination Network:

  • Family Caregiver Characteristics: The Administration for Community Living released a data profile using data from the Caregiver Outcome Evaluation Study of the National Family Caregiver Support Program which examines characteristics of caregivers including age, relationship to care recipient, level of caregiving intensity, and use of NFCSP services.  Find out what the study found.
  • State Budget Impact:  The state budget passed by the legislature and approved by the Governor will fund state programs for the next two years. Read the Survival Coalition's summary.
  • Inclusive Emojis: An updated collection of emojis intended to be more inclusive and diverse was released.  Learn what new things are included.
  • Housing Assistance Funding: Federal officials announced that they plan to set aside millions of dollars to help people with disabilities access housing in the community. Find out what the funding Will help with.
  • Accessible Homes:  For people with disabilities, house  hunting can be very frustrating. Read about the push to make all homes more accessible.
  • Employment First Partner Grants:  The Wisconsin Board for People with Developmental Disabilities is seeking up to eight organizations to engage in community outreach activities that lead to increased community, integrated employment for people with intellectual and developmental disabilities. Applications are due August 30th.
  • Self-Advocate Leaders Needed:  People First Wisconsin is seeking applications from eight people with intellectual/developmental disabilities to become Self-Advocate Leaders for the Wisconsin Board for People with Developmental Disabilities’ Model Approaches to Living Well grant project. Learn more and apply today! 
  • Partners in Policymaking:  Wisconsin Partners in Policymaking is a six‐session advocacy and systems change training program designed to develop a group of future leaders across the state who are able to work with legislators and communities on policies and initiatives that will support the full participation and inclusion of people with developmental disabilities in all aspects of life. Applications for Fall are due September 1st.
  • New MCOs for Family Care: The Wisconsin Department of Health Services recently announced New managed care organizations (MCOs) have been selected to provide the Family Care program in some counties in Wisconsin beginning next year.  Learn about the change.
  • PIP and YiPPE Trainings: Transition Parents in Partnership (PIP) and Youth in Partnership with Parents for Empowerment (YiPPE) Trainings for 2020-2021 are now open for registration. Find out more about these great programs and register today! 

128 Upcoming Events

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

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The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

Member Spotlight: Lydia Dawley


By SD Network, 2019-08-11

67747890_2498566557040546_564841607342325760_n.jpgMeet Lydia.  This college senior is determined not to let anything stop her from achieving her goals!  She has done all sorts of amazing things with assistive technology and hopes to help students with disabilities discover how it can help them.  She believes it’s so important to advocate and show the world what people with disabilities can do.  We’re so fortunate to have Lydia as a member on the Network.

What's your story? Tell us a little bit about yourself.

Lydia is a 22 years old senior at University of Wisconsin-Whitewater. Her major is Liberal Studies with special interest in Communication Sciences and Disorders and Special Education. She hopes to be an assistive technology specialist. She wants to figure out what and how students can use technology. Her goal is to have a clinic where there would be an assistive technology specialist, occupational therapist, speech-language therapist, and physical therapist. She explains that she wants to have a place for people with disabilities to go and get resources where everyone is on the same page.

Lydia is from Decorah, Iowa which is 3 1/2 hours away from Whitewater. She graduated from high school in 2015, and she was the first high school student in Iowa to participate in individual and large group speech competition who used an augmentative communication device. Since her junior year in high school, she has been an ambassador for Prentke Romich Company. She explains that they have communication devices and apps, and she goes around the Midwest to conferences talking about her experiences and about the app LAMP Words For Life.

This summer, Lydia is an intern at Access to Independence in Madison where she helped with the peer support program. Now, she helps teach classes at colleges about what resources there are in college for people with disabilities.

How are you involved with self-determination? 

When Lydia lived in Iowa, she spoke at events to help inspire others to advocate for themselves. “I think that is important” she says.

Why did you join the SD Network?

 Lydia explains that she believes it’s important to advocate and to bring awareness to the world, so that people with disabilities can be seen as people first and allowed the same opportunities as everyone else. 

Tell us some good news - what's the most exciting thing happening for you (or in Wisconsin) in terms self-determination?

Since she’s planning to graduate from Whitewater in May, Lydia is applying for grad school at UW-Stout for Rehabilitation Counseling Program, and she explains how it’s kind of stressful because she has to pull all of the items they need. She’s also applying for an Assistive Technology Certificate at the University of Illinois in Chicago; she wants to have enough creditability to work with people with disabilities because she’s afraid that parents won’t want their kids to see her.

Lydia is also excited that she recently got a job offer from Control Bionics to be a freelance writer for them. She’ll start writing about clients that use their device. She explains that the device is a patch that can be placed anywhere on the body and when the muscle contracts, it clicks on the device with the scanner feature.

What tip or resource would you like to share with people who want to be more self-determined?

Lydia encourages people to not be afraid to “beat to your own drum” and ignore the people who say that you can’t. “I can’t tell you how many times people said I couldn’t do something, and I just ignore them because I know that they don’t know me. I know myself so if they don’t want to help me, it’s okay,” she explains. 

What are your hobbies?

“I guess I don’t have any hobbies, I’m just a “typical” college kid,” Lydia jokes. She says she’s on social media all the time, and she likes to binge watch things on Hulu and Netflix. She points out that when she’s in school, she’s too busy with homework or work to do anything.

 

***We love hearing the views and opinions of Network members. We need to mention that the views and opinions expressed on this site are those of the person who is sharing them. They do not necessarily reflect InControl Wisconsin or any of our supporters and funders.

The Wisconsin Department of Health Services (DHS) recently announced that based on results from a recent procurement, Inclusa and Lakeland Care managed care organizations (MCO) have been selected to provide the Family Care program in Brown, Door, Kewaunee, Marinette, Menominee, Oconto, and Shawano counties beginning January 1, 2020. Incumbent managed care organization Care Wisconsin will no longer provide the program in those counties after December 31, 2019.

Read press release

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Wisconsin Partners in Policymaking is a six‐session advocacy and systems change training program designed to develop a group of future leaders across the state who are able to work with legislators and communities on policies and initiatives that will support the full participation and inclusion of people with developmental disabilities in all aspects of life.

Download the application by following this link: http://wi-bpdd.org/wp-content/uploads/2019/06/201920-Partners-Application.docx

Applications are due at noon on September 1, 2019.

Who can participate?

  • Adults with developmental disabilities
  • Adult siblings of individuals with developmental disabilities
  • Parents/primary caregivers of children and youth with developmental disabilities ages birth to 21.

If you have questions or would like more information about the Partners in Policymaking program, please contact Jenny Neugart at jennifer.neugart@wisconsin.gov or (608) 266‐7707.

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People First Wisconsin is seeking applications from eight (8) people with intellectual/developmental disabilities (I/DD) to become Self-Advocate Leaders for the Wisconsin Board for People with Developmental Disabilities’ (BPDD) Model Approaches to Living Well grant project. Self-Advocate Leaders are needed in the following areas:


 

  • Madison/Beaver Dam area
  • Appleton/Fond du Lac area
  • Janesville
  • La Crosse
  • Platteville
  • West Allis/Milwaukee area
  • Watertown

What will the Self-Advocate Leaders do?

The Self-Advocate Leaders will partner with the following Living Well pilot organizations in their area to provide self-advocacy, safety and abuse prevention instruction and facilitate peer groups over the next four years: LOV-Dane, Community Living Connections, SOAR Fox Cities, Aptiv, Down Syndrome Association of Wisconsin, and Bethesda Lutheran Communities.

Self-Advocate Leaders will co-teach self-advocacy, safety, and abuse prevention classes using the Safe & Free curriculum developed by People First Wisconsin for the Living Well project. The training covers sensitive topics, including but not limited to identifying and reporting abuse and neglect, consent, dating and intimate relationships. Self-Advocate Leaders must be comfortable facilitating discussions with peers on these topics.

What is the BPDD’s Model Approaches to Living Well grant project?

Model Approaches to Living Well (called ‘Living Well’ for short) is a five-year federal grant from the Administration on Community Living (ACL) to develop and test approaches for improving the safety, wellness, and community inclusion for people with intellectual and developmental disabilities (I/DD) who receive home and community-based services (HCBS). ACL considers this a Project of National Significance and Wisconsin is one of five states to receive the grant.

 

Follow the link below to download an application: 

http://wi-bpdd.org/wp-content/uploads/2019/08/Living-Well-Self-Advocate-Leader-RFA.pdf 

 

If you have any questions or if you'd like more information you can contact Allison Kelly at 608-266-5038 or email at Allison.Kelly@wisconsin.gov 

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