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Health and Human Services Secretary Robert F. Kennedy Jr. is facing significant backlash from disability rights advocates after testifying before a House committee that Medicaid programs paying family caregivers are "rife with fraud." Kennedy argued that these programs often compensate relatives for tasks they should perform for free, such as running errands or driving to appointments, and claimed the government lacks the oversight to verify actual work. Advocates and families of medically complex individuals have denounced these comments as deeply insulting, noting that many caregivers provide life-sustaining, round-the-clock medical care that saves the government money by keeping patients out of institutional settings. The controversy highlights a growing tension as states face rising healthcare costs and potential federal budget cuts while simultaneously struggling with a chronic shortage of professional home-care workers.

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This research brief from the Community Living Policy Center highlights that Medicaid Home and Community-Based Services (HCBS) significantly improve quality of life while proving more cost-effective than institutional care. Research indicates that transitioning individuals from nursing homes to the community via programs like "Money Follows the Person" reduces healthcare costs by 23-30%, as the average annual expenditure for HCBS is approximately $17,298 per person compared to $54,462 for institutional settings. Beyond financial savings, HCBS access is linked to better health outcomes, including fewer emergency room visits and hospitalizations, by addressing social determinants of health and promoting person-centered planning. However, the report notes that these benefits are currently threatened by a direct care workforce crisis and significant unmet needs, with over 600,000 individuals remaining on waiting lists for services.

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A recent ProPublica investigation reveals that the Trump administration is pushing a rule change to the Supplemental Security Income (SSI) program that could reduce or eliminate benefits for approximately 400,000 disabled adults, including those with Down syndrome and dementia. The proposal specifically targets individuals living with family members who receive food assistance through SNAP. Initially proposed by the now-defunct Department of Government Efficiency (DOGE) led by Elon Musk, the change is being framed by critics as a significant blow to disability rights and the financial stability of low-income households.

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The AARP article highlights five accessible U.S. citiesWashington, D.C., Bellevue, Chicago, Denver, and Tucson—that are ideal for travelers with mobility challenges due to their robust public transportation and walkable urban centers. These destinations offer a variety of barrier-free attractions, ranging from the flat, paved trails of the National Mall and the Chicago Riverwalk to adaptive kayaking in Bellevue and wheelchair-accessible shuttles in Denver. By prioritizing transit options like the Sun Link Streetcar in Tucson or the accessible Metrorail in D.C., these cities allow visitors to focus on cultural experiences—such as visiting museums and botanical gardens—rather than the logistics of car-free navigation.

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The TIME article argues that proposed GOP healthcare cuts and the "One Big Beautiful Bill Act" will exacerbate an invisible crisis by forcing more children into caregiving roles. Written by Lisa McCarty, who shares her own experience as a childhood caregiver, the piece highlights that an estimated 5.4 million youth in the U.S. already care for ill or disabled family members—a burden that leads to higher rates of depression, anxiety, and long-term mental health struggles. As Medicaid reductions threaten to strip coverage from millions, including those relying on Home Care Based Services, the author warns that the lack of formal support systems will leave even more children to perform unpaid, essential work that carries a heavy emotional and financial toll into adulthood.

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Health and Human Services Secretary Robert F. Kennedy Jr. is facing intense backlash from disability rights advocates after testifying before the House Ways and Means Committee that Medicaid home-care programs are "rife with fraud." Kennedy specifically criticized programs that pay family members to care for elderly or disabled relatives, suggesting they are being compensated for tasks like grocery shopping or driving to appointments that should be done for free. Advocates and family caregivers have called these remarks "insulting" and "dismissive," arguing that the work often involves managing complex medical needs—such as ventilators and feeding tubes—and serves as a vital, cost-effective alternative to institutionalization. The controversy comes amid rising concerns over potential federal Medicaid cuts and a chronic shortage of professional home-care workers.

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COMMUNITY HORIZONS: Get Fired Up!


By SD Network, 2026-04-24

Self-direction is one of the most empowering programs in disability services — and one of the least talked about. Get Fired Up is a new podcast hosted by Cindy and Jamie from Community Horizons, a support broker agency in Wisconsin that helps people with disabilities hire and manage their own caregivers. New episodes drop every Friday.

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Seeking research participants

How do people with and without a disability think about the experience of disability?

A team of researchers and disability advocates is collaborating to study this question, and they would appreciate your input.

Are you: age 18 or over?

Do you: live in a U.S. State, District, or Territory?

You are eligible to participate in this research study and complete this survey on disability identity. People with and without a disability are eligible to take the survey. This survey is brief and should take no more than 10 minutes to complete. It consists of 25 multiple choice questions.

Share this information and survey link with your friends, family, and colleagues who may be interested in completing the survey.

Complete the Survey
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