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Member Spotlight: Emily


By SD Network, 2024-05-12

Meet Emily. This active young woman loves being busy. Whether it’s she’s rock climbing, water skiing, snow skiing, traveling, or volunteering at her church, she can’t sit still. As an Independent Living Coordinator at an Independent Living Center, she shows her consumers how to use self-determination to be independent. We’re so fortunate to have her as a member of the Network!

What's your story?  Tell us a little bit about yourself.

Emily is 27 years old living with spastic quadruple cerebral palsy. She has a passion for advocating  for the disability community. She shares that her goal is to assist and support individuals with disabilities. “There has been a lot of individuals and a lot of programs that have helped me get to where I am today and I would like to give that support to other individuals with disabilities as well,” she tells us. She never sits still, and she’s always trying new things and going on adventures.

How are you involved with self-determination? Why did you join the SD Network?

Emily works as an Independent Living Coordinator at Independence First in Milwaukee. She explains that showing her consumers that they have self-determination and can be independent is the main part of her job. She joined the Network because she feels that the more connections she can make within the disability community, the better resource she’ll be for someone else.

Tell us some good news - what's the most exciting thing happening for you (or in Wisconsin) in terms of self-determination? 

Emily doesn’t want to give too much away, but she has been looking into making the next step in her career which is going back to school and getting her masters degree.

 What tip or resource would you like to share with people who want to be more self-determined?

Emily explains that as an adult, having self-determination isn’t as scary as it was as a kid. She encourages people to have goals and to start small. “Work on your goals a little every day and ask for help from your support system if you need it,” she says.

What are some of your hobbies?

Emily enjoys being active. She loves waters skiing in the summer and snow skiing in the winter. Recently, she has been trying adaptive rockclimbing and she really likes that too. “Anything to keep active,” she says. She loves to travel (preferably to the beach, and she’s also very involved in my church. 

***We love hearing the views and opinions of Network members. We need to mention that the views and opinions expressed on this site are those of the person who is sharing them. They do not necessarily reflect InControl Wisconsin or any of our supporters and funders.

The brief provides background information on Home and Community-Based Services (HCBS) and the work of the Home and Community-Based Services Federal Opportunities Regarding Workforce and Research Data (HCBS FORWARD) workgroup. It summarizes the workgroup’s recommendations to federal and state agencies, non-profit organizations, and research institutions to improve data infrastructure and information on the HCBS workforce. Implementing these recommendations will bolster the data infrastructure needed to answer key questions about the HCBS workforce and drive data-informed policy decisions to improve the quality of and access to HCBS for the millions of Americans who are receiving or need these services. 

View brief

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The U.S. Department of Health and Human Services finalized a rule that prohibits discrimination on the basis of disability. This rule, titled Discrimination on the Basis of Disability in Health and Human Service Programs or Activities, advances equity and bolsters protections for people with disabilities under Section 504 of the Rehabilitation Act.

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The Disability Vote Coalition is looking to partner with schools to help students with disabilities  understand their voting rights and responsibilities.  

The purpose of these grants is to 

  • find creative ways that educators can inform students with (and without) disabilities to register and become active voters,
  • inform students of potential barriers to voting (i.e. photo ID, transportation) so they are better prepared to handle them if they come up; and,  
  • empower students with an understanding of their voting rights and how to advocate for themselves when needed.  
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For Michael Ward of Madison, art has helped him find a purpose in life. Diagnosed with cerebral palsy when he was just five days old, Ward has speech and movement his whole life; however, that didn't deter him from finding his passion.  He started creating coloring books containing universal quotes in hopes of inspiring people with disabilities to preserve through life's challenges. Recently, Ward participated in an art festival.

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U.S. airlines got a little bit better with mobility devices in 2023. The 10 major carriers transported 835,327 wheelchairs and other aids last year, and there were 11,527 reports of damage. This article lists the top 10 best airlines for handling mobility devices.

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As part of the Biden-Harris Administration's Care Workers Recognition Month activities and in support of President Biden's Executive Order on Increasing Access to High-Quality Care and Supporting Caregivers, the U.S. Department of Health and Human Services announced that 20 states have been selected to participate in two separate technical assistance programs that together will help participating states better recruit, train, and retain direct care workers, who provide home and community-based services for older adults and people with disabilities.

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USAging invites the aging services network and its partners to join the National Caregiver Champion Collaborative (CCC). The CCC will facilitate peer networking and engagement among professionals who lead caregiver services and supports. Participants will gather regularly to share successful strategies and best practices, discuss lessons learned, explore new partnerships, and get insight into the latest research and emerging evidence-based caregiver programs.
Caregiver champions are likely to be leaders and managers from organizations that administer caregiver services and supports such as state units on aging, area agencies on aging, Title VI programs, aging services providers, and caregiving service providers.
The CCC is administered by USAging through a cooperative agreement with ACL as part of ACL's $20 million initiative to support implementation of the National Strategy to Support Family Caregivers.
Contact caregiving@usaging.org with questions. 
Learn more and register
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