SD Network

News

Disability Advocacy Day Registration


By SD Network, 2016-02-02

Disability Advocacy Day

March 15th, 2016

Madison, WI

You may register online or download a registration form and mail in.

Lunch: You may purchase a box lunch when you register for $12.00

Or bring your own lunch.

Parking is available at Monona Terrace and around the Capitol. Parking fees are on your own.

Transportation:For groups of 10 or more: If you need transportation assistance please contact Michelle Roach at: michelle@promotelocal.com or 920-723-5571.

Wisconsin Coalition of Independent Living Centers are available to assist you.See the list.

Make Lunch check payable to: Survival Coalition

Mail check and registration forms to: Survival Coalition, PO Box 7222, Madison, WI 53707

Registration Deadline is March 4th!

Posted in: default | 0 comments

Every five years, the Wisconsin Board for People with Developmental Disabilities (BPDD) is required to submit a plan to the federal government for systems change focused on improving the quality of life for people with developmental disabilities through full inclusion and participation in all aspects of community life.

BPDD spent a year collecting public input. More than 800 people with disabilities, families, professionals and advocates provided input.Board members reviewed the input to determine the best investment of available resources based on priorities identified statewide.

The Board has nowdrafted a2017-2021 State Plan

This plan will be in effect for the 2017-2021 federal fiscal years.

Public Comments on BPDD's 2017-2021 State Plan

The draft is now open for public comment. If you have comments or suggestions, please write to: BPDD-State Plan, 101 E. Wilson Street, Room 219, Madison, WI 53703 or emailbpdd@wisconsin.govbyMarch 14, 2016.

You may also provide comment by completing the following online survey:

https://www.surveymonkey.com/r/WZWM58J.

The Board will review all the public comments and decide how to address them. If the BPDD Board determines that significant changes are needed, based on public comment, the board will send out a revised plan for an additional 45 days to gather additional feedback. Once approved and completed, the plan will besubmitted to the federal government.

Accessibility info:If you would like the State Plan draft in another language or format, please emailbpdd@wisconsin.govor call(608) 266-7826.

Posted in: default | 0 comments

This is a great article in the JanesvilleGazetteXtrawritten by Catherine Idzerda about how Rock County is going to finally get Family Care. She explains that Governor Walker signed Family Care into law in Rock County meaning that people who have been waiting years for services will have them in less than three months.

The wait is over: Rock County gets Family Care

By Catherine Idzerda

Gov. Scott Walker holds up the Family Care Bill after signing it into law for Rock County while surrounded by local representatives and community residents at the Rock County Courthouse in Janesville.
icon_previous.gif
1
of
4
icon_next.gif

JANESVILLEThe wait is finally over for Rock County, and it's closer to over for the nearly 300 elderly and disabled people who still need services.

On Tuesday, Gov. Scott Walker, surrounding by Rock County Board members, elected officials and others, signed Family Care into law for Rock County at the Rock County Courthouse.

People who expected to wait nine or more years for service now will have to wait no more than three.

Walker told the gathered crowd that he was pleased to be signing the bill that would offer cost effective and quality care for people with developmental disabilities and those who need long-term care.

Rock County has been on the brink of Family Care for more than eight years but has been postponed for one reason or another.

Most of the rest of the state has already implemented Family Care, a program that provides services for the frail elderly and adults with developmental or physical disabilities.

How will things be different under Family Care?

The managed care organizations that will be delivering services under Family Care are required by law to eliminate waiting lists within 36 months.

Employment, housing and other services for adults with developmental disabilities are now provided through the Rock County Developmental Disabilities Board. Services are paid for with federal Medicaid waivers and about $4 million in local tax dollars.

For example, a person with a developmental disability might need a place to live and a place to work.

The developmental disabilities board contracts with providers such as Kandu Industries, which has segregated workshops were people with disabilities can work to their own level. Kandu also trains people for jobs in the community.

The person might find a job there.

The board might also contract with an organization such as REM or Lutheran Social Services for a supervised place to live.

Each individual client's needs are considered.

However, the developmental disabilities board has a limited amount of money to spend and has a waiting list of about 250 people. The waiting list is about nine years long.

It's difficult for the board to predict when a person will come off the list. Sometimes, emergencies come up, and the board has to provide immediate housing for someone.

Long term care, which helps older people stay in their homes as long as possible, has a waiting list of 39.

Under Family Care, the state will contract with one or more managed care organizations to decide what services people need and then contract them out.

The same companies, such as Kandu or REM, will be providing the care, but they will be dealing with the managed care organization instead of the county.

The managed care organizations use money from federal Medicaid waivers and the state to cover costs. For the first five years of operation, the county will pay the state a stipend for taking over the business. The first year that amount is expected to be $3.6 million. It will decline each year after that.

When Family Care was first proposed in Rock County, opponents expressed concerns that people getting services will see those services decreased.

At a meeting in May 2014, Care Wisconsin, a managed care organization described it as going from Cadillac services under the county, to Chevy services under managed care.

Developmental Disabilities Board Director John Hanewall responded that none of his clients got Cadillac services. Instead, they got the services they needed.

The establishment of Family Care also means the loss of county positions. The long term support division and the developmental disabilities board employ 31 people, according to 2016 county budget documents.

Some of those positions will remain. Family Care will be implemented over two to three years, Human Services Director Charmain Klyve said in a previous interview.

During that time, the county will work to make sure workers have an opportunity to consider open positions with the department and the county, Klyve said at the time.

Source: http://www.gazettextra.com/20160126/the_wait_is_over_rock_county_gets_family_care

Posted in: default | 0 comments

Personal Care Survey


By SD Network, 2016-01-22

The Survival Coalition, along with Wisconsin Long-Term Care Workforce Alliance and WPSA want to hear from people who use personal care.

Many people around the state cant find personal care workers to help them. Other people want to hire people they know and trust to work for them. Advocacy organizations are in need of your help to gather more data on this workforce. Thank you in advance for your support.

We want to hear from you!

Please take a few minutes to complete the survey below. Your information can help us tell lawmakers how to make personal care better for the people who use it.

http://goo.gl/forms/ZKoqiOiK9J

Posted in: default | 0 comments

122_blogs.pngSelf-Determination Network News: January 2016

Connect|Share|Learn|http://sdnetworkwi.org/

Changes to Wisconsin Long-Term Care: Whats Next?

On Monday January 4th, the Department of Health Services (DHS) shared publicly its December report on Long Term Care system redesign, as required by the 2015-17 state budget.

DHSs report references an ongoing internal process to redesign the system, the Departments plan to report on its internal work in the Concept Plan (due to Joint Finance April 1st), and states there will be two public hearings in March 2016. It is unclear whether these hearings will be to collect public comment on a draft of the Concept Plan. We will be sure to keep you updated as more details become available.

In the meantime, the Wisconsin Survival Coalition has provided us with some information about the report and suggestions on action steps we can continue to take to voice our opinions.

123_blogs.jpg?width=300

Take five minutes to check out what's happening on the Self-Determination Network:

  • The Objectification of Disability: This has been a popular video on the Internet about inspiration porn and the objectification of disability. What are your thoughts on this?
  • Its Our Story: It's Our Story is a great national initiative to make disability history public and accessible. They have collected over 1,300 video interviews from disability leaders across the country. Check out their videos!
  • National Aging and Disability Transportation Center: This is an interesting press release about a group of disability organizations have formed a National Aging and Disability Transportation Center.
  • Outdoor Activity Survey: Heres a chance to participate in a survey about outdoor activity for people with disabilities.
  • Call for Proposals: Presentation proposals are now being accepted for the Multiple Perspectives Conference. Applications due January 28th.
  • Essay Contest: Heres a student essay contest about inclusion.
  • Home Care Worker Protections: This is an interesting article abouthow a new report shows a lack of oversight in the home care workforce could lessen wage and labor gains for workers.
  • Airline Accessibility Complaints: Find out which airline was fined millions of dollars for not accommodating travelers with disabilities properly.
  • ABLE Accounts Open Doors: This is a very informative article about what ABLE accounts are and how theyll work.
  • ADA Symposium Stipends: Heres information on how you can apply for stipends to attend the National ADA Symposium in Denver, CO in June.
  • Personal Care Survey: The Survival Coalition, along with Wisconsin Long-Term Care Workforce Alliance and WPSA want to hear from people who use personal care.
  • Post news or start a discussion: It's easy to do and a great way to share information and network with others!

124_blogs.jpgStacys Journal

For January's entry, Stacy discusses how advancements in technology have improved the lives of people with disabilities. We encourage you to ask her questions and/or share your experiences as well.

125_blogs.pngNew Members

Stop by to welcomeour newest members:

Do you know someone who should join the Self-Determination Network? Spread the word and invite friends, families and other interested folks!

126_blogs.jpeg?width=200
Upcoming Events

Here's a sample ofupcoming eventslisted on the Self-Determination Network:

Post your eventon the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.

128_blogs.jpg

The Self-Determination Network is powered by In Control Wisconsin and supported financially by ourmembersandSponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.

Robert "Bob" Deist Passed Away


By SD Network, 2016-01-13

Long-time disability advocate Robert "Bob" Deist passed away on Monday, January 11, 2016. Hereis his obituary, where you can leave a message for his family, if you choose. Visitation will beThursdayand funeral will beon Fridayat Gunderson Funeral Home, East in Madison.

Posted in: default | 0 comments

A great article inDisability Scoopwritten by Michelle Diament about how a change in federal law could greatly speed up the availability of ABLE accounts (which will allow people with disabilities to save money without losing their benefits). She explains that lawmakers approved a provision that will allow people with disabilities to open ABLE accounts in any state regardless of where they live. This is great news!

ABLE Accounts May Be Available Sooner Than Expected

By Michelle Diament

A tweak to federal law is poised to greatly expand choice and speed up availability of accounts allowing people with disabilities to save money without risking their government benefits.

Tucked inside a tax bill approved by lawmakers last month is a provision that will permit individuals with disabilities to open new accounts established under the Achieving a Better Life Experience, or ABLE, Act in any state, regardless of where they reside.

The change means that people with disabilities across the country will be able to open ABLE accounts when the first state programs are up and running which could happen as soon as February or March, advocates say.

by Michelle Diament| January 11, 2016

https://www.disabilityscoop.com/wp-content/uploads/2016/01/ds160111_able-668x418@2x.jpg 2x" />

A machine processes stacks of one dollar bills at the U.S. Bureau of Engraving and Printing in Washington. New tax-free savings accounts for people with disabilities will be more broadly available thanks to a change to federal law. (Thinkstock)

A tweak to federal law is poised to greatly expand choice and speed up availability of accounts allowing people with disabilities to save money without risking their government benefits.

Tucked inside a tax bill approved by lawmakers last month is a provision that will permit individuals with disabilities to open new accounts established under the Achieving a Better Life Experience, or ABLE, Act in any state, regardless of where they reside.

The change means that people with disabilities across the country will be able to open ABLE accounts when the first state programs are up and running which could happen as soon as February or March, advocates say.

Advertisement - Continue Reading Below

It's gone. Undo
What was wrong with this ad?
Repetitive
Inappropriate
Irrelevant
Thanks for the feedback! Back
Well review this ad to improve your experience in the future.
Help us show you better ads by updating your ads settings.
Thanks for the feedback! Undo
Well use your feedback to review ads on this site.
Help us show you better ads by updating your ads settings.
Closing ad: %1$d
googlelogo_color_112x36dp.png%22
{"uid":3,"hostPeerName":"https://www.disabilityscoop.com","initialGeometry":"{\"windowCoords_t\":0,\"windowCoords_r\":2560,\"windowCoords_b\":1024,\"windowCoords_l\":-1280,\"frameCoords_t\":1455.3333740234375,\"frameCoords_r\":569.6666870117188,\"frameCoords_b\":1705.3333740234375,\"frameCoords_l\":269.66668701171875,\"styleZIndex\":\"auto\",\"allowedExpansion_t\":0,\"allowedExpansion_r\":0,\"allowedExpansion_b\":0,\"allowedExpansion_l\":0,\"xInView\":0,\"yInView\":0}","permissions":"{\"expandByOverlay\":false,\"expandByPush\":false,\"readCookie\":false,\"writeCookie\":false}","metadata":"{\"shared\":{\"sf_ver\":\"1-0-2\",\"ck_on\":1,\"flash_ver\":\"20.0.0\"}}","reportCreativeGeometry":false}" scrolling="no" marginwidth="0" marginheight="0" width="300" height="250" data-is-safeframe="true" style="box-sizing: border-box; border-width: 0px; border-style: initial; vertical-align: bottom;">

With the new accounts, people with disabilities will for the first time be able to accrue up to $100,000 in savings without losing access to Social Security and other government benefits. Medicaid coverage will remain intact no matter how much money is saved in an individuals ABLE account.

Despite federalpassageof the ABLE Act in 2014, states had to approve their own legislation and develop mechanisms to regulate and administer the new accounts before letting consumers take advantage. So far, 35 states have approved such legislation, advocates say, but some are farther along than others in implementing programs.

Some of the smaller states dont have the capacity to create an ABLE program so this will allow more people with disabilities to access ABLE accounts and access ABLE accounts faster, said Sara Hart Weir, president of the National Down Syndrome Society.

Without the recent legislative change, individuals with disabilities would have been limited by the timetable and specific offerings in their state. Now, families will be able to shop around to find the state program that best suits their needs and the availability of many options should promote competition among states to make their programs attractive, according to Chris Rodriguez of the National Disability Institute.

Its likely that each state ABLE program will only work with one or a handful of financial institutions and fees may vary, so enabling families to access programs across state lines will dramatically increase their options, Rodriguez said.

Some states are already working to encourage residents to utilize in-state accounts by offering tax incentives, he said.

Its a pretty exciting development, Rodriguez said of the federal provision allowing consumers to access accounts originating in any state. I know its shaking things up. Some of the states are looking to quicken their development and others are sitting back and looking at whether they need to build a program.

Ohio, Florida, Virginia and Nebraska are widely expected to be among the first to make ABLE programs available. Accounts are likely to be created and administered through dedicated state websites, advocates say.

To be eligible for an ABLE account, an individual must have a disability that originated before the age of 26.

Funds in the accounts can be used to pay for education, health care, transportation, housing and other expenses. Interest earned on savings in the accounts will be tax-free.

Source: https://www.disabilityscoop.com/2016/01/11/able-accounts-sooner-expected/21752/

Posted in: default | 0 comments

Stipends for 2016 ADA National Symposium


By SD Network, 2016-01-11

We are pleased to announce that the ADA National Network is hosting the 20thannual ADA National Symposium on the Americans with Disabilities Act and related disability issues. The Symposium will take place in Denver, Colorado fromJune 19 to 22,2016.

The ADA Symposium includes up to date information regarding employment, communication, transportation, emergency preparedness, case law, regulatory updates for government and private entities and the latest on the 2010 ADA Standards for Accessible Design.

Hear from presenters representing various federal agencies including the Departments of Justice, Education, Equal Employment Opportunity Commission and U.S. Access Board. This year there arebreak-out sessions on a wide-range of ADA related topics and online access to hand-outs from all sessions prior to the conference.You can view the SymposiumSchedule and Agendaon-line.

The Great Lakes Centerwill continue our history of supporting participation and attendance from across our six state region.To that end, we are making available a number of stipends in the amount of $650.00 to cover the cost ofregistration (we will not pay late registration fees). The conference is very popular and registration #s have imploded over the past few years resulting in cut off of registration before the deadline due to it being full. Thus, its very important that individuals desiring to attend register for the conference in a timely manner.

Applications will only be accepted from individuals who reside in the Great Lakes Region (IL, IN, MI, MN, OH, and WI). This stipend is only valid for the 2016 Symposium and registration should be completed as soon as possible. Applications will be accepted throughJanuary 29th, 2016. Notification to recipients will be made by emailwithinthe first week of February. Individuals will be responsible for completing the registration process in a timely manner. The sooner you register, the better chance you have of getting the sessions that you want as well as reduce the risk of the registration closing due to being full. Individuals who fail to register in a timely manner will forfeit the stipend. Receipt of the stipend does not guarantee registration. The registration process for the symposium is a first come, first serve process and our office does not have control over it.

Applications for theApplicationstipends can be completed on-line. Questions regarding the Symposium and the stipend program should be directed to the Great Lakes Center at800-949-4232(V/TTY) between the hours of8:00am-5:00pmCentral Time or by email toadata@adagreatlakes.org.

Stipend recipients are responsible for their own travel arrangements and travel costs. The registration fee includes 2 breakfasts and 2 lunches plus a networking reception. The 2016 Symposium will be held at theHyatt Regency Denver at the Colorado Convention Center. Rooms are available at adiscounted rate of $163.00 plus tax. Hotel information can be found on the Symposium website at:http://www.adasymposium.org/Agenda.html.

***Thanks to the Great Lakes Center for sharing this information with us.

Posted in: default | 0 comments
   / 246