Each year, Global Accessibility Awareness Da spotlights the urgent need for digital access and inclusion for the over one billion people worldwide living with disabilities. For many businesses, this is a prompt to evaluate how well their digital platforms, physical spaces, and customer experiences accommodate individuals of all abilities. But creating accessible digital products and services is just one piece of the puzzle. In truly inclusive organizations, the same principles and practices that guide product development of should also be applied to building inclusive workplaces where everyone can thrive.

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With the election a few short months away, caregivers of all types are seeking better health care options. According to one report,  home health care and child day care are both in the top 10 industries with the largest number of working Medicaid enrollees. Medicaid expansion and health care affordability is an issue on many people’s minds. Wisconsin is one of 10 states that haven’t accepted federal money to expand Medicaid. If it did, many could get Badgercare. Some say that would allow caregivers to work more without worrying about losing their health insurance. 

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Self-Determination Network News:

May 2024

Connect | Share |Learn | http://sdnetworkwi.org

Registration for the 2024 Self-Determination Conference Opens in July

The 2024 Self-Determination Conference will be held October 21st-23rd at the Kalahari Resort in Wisconsin Dells. It's one of Wisconsin’s biggest (and most amazing) event for people with disabilities and the people who support them. Last year, over 800 people attended the conference! This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined live. Registration will open in July. Stay tuned for details!

Please Help InControl Wisconsin's Caring Across Cultures Project

Are you someone who hires direct care workers?  Are you a family member of someone who receives support from a direct care worker?  Are you a direct care worker?  If so, InControl Wisconsin would like you to share a short video, audio clip, or written story of your personal experiences to help others understand the relationships between direct care workers and the people who hire them.  We will give you questions to answer, to make it easier for you.

Your stories will be used in online learning courses and/or other resources hosted on InControl Wisconsin’s website as part of the Caring Across Cultures learning platform. (See this link for more details about the project.)

Why are we asking for your help? Caring Across Cultures is a project with a goal of helping direct care workers and the people who hire them to build strong relationships. We want to help them connect and build trust across cultural differences.

What better way for someone who is thinking about hiring direct care workers to hear directly from people who are already doing it? The same is true for someone thinking about becoming a direct care worker. There’s nothing like hearing from someone first hand about what it’s like.

You can record a video or audio clip yourself with your phone (or other device) or you can ask us for help.

Here is a document to help you record your own video or audio.  This document will also tell you how to send us your finished recording: CLICK HERE

Need some help?

• You can work on this at home. If you need some help, Contact Sarah Godfrey, at sarah@promotelocal.com / (262) 349-1968, and she will schedule a phone or video call with you.

• Are you coming to Circles of Life on May 16h in Stevens Point?  How about Employment First in Wisconsin Dells on May 21st? We will have recording equipment on site at both conferences.

Ready to Do This?

• Sign up here! 

• Questions for you to answer when you record yourself

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Emily. This active young woman loves being busy. Whether it’s she’s rock climbing, water skiing, snow skiing, traveling, or volunteering at her church, she can’t sit still. Check out this month's Member Spotlight to get to know Emily.   

Who should we shine the spotlight on next?

Stacy’s Journal

Take five minutes to check out what's happening on the Self-Determination Network:

• Take a Survey: The American Institutes of Research is looking for people with disabilities to take a survey about the ways you find and use information in your daily lives. Check it out!
• Roadblock for Proposed Funding Boost for In-Home Care: A $258 million plan to improve the pay for thousands of home health care providers in Wisconsin was halted after lawmakers on the Legislature’s powerful budget committee blocked it. Learn the impact of this.
• Research Funding for Mobile App Opportunity: A new funding opportunity is available for programming to plan and conduct research, demonstration projects, trainings, and related activities to develop methods, procedures, and rehabilitation technology that maximize the full inclusion and integration of people with disabilities. Applications due June 7th.
• Lawsuit Seeks Electronic Ballot Option: Disability Rights Wisconsin, the League of Women Voters of Wisconsin, along with four voters with disabilities filed a lawsuit against the Wisconsin Elections Commission. The lawsuits seeks to allow voters with disabilities to cast their ballot electronically.  Learn more about what they are asking for.
• 2024 Election Toolkit: The Wisconsin Disability Vote Coalition has released a toolkit which includes videos, posts, and graphics to get people ready to vote in elections this year. Check it out!
• New Guidance on Voting Rights for People with Disabilities: The US Department of Justice issued an updated guide of The Americans with Disabilities Act and Other Federal Laws Protecting the Rights of Voters with Disabilities. Look at what's new.
• ABLE Accounts: Recently, Governor Evers signed a bill ordering the state’s Department of Financial Institutions to set up an ABLE program for residents or join one of the existing multi-state consortiums. Read about how these accounts help people with disabilities.
• Manufacturing Company: A manufacturing company in  West Allis has made a deliberate point to provide people who have autism meaningful employment opportunities. Find out more about this company.
• Caregiver Champion Collaborative: The National Caregiver Champion Collaborative will facilitate peer networking and engagement among professionals who lead caregiver services and supports. Learn more about this program.
• Best Airlines: U.S. airlines got a little bit better with mobility devices in 2023. Find out what the 10 best airlines for handling mobility devices are.
• Talented Artist: An artist in Madison creates coloring books that have universal quotes. Read more about this talented artist.
• Voting Grant Opportunity for Schools: The Wisconsin Disability Vote Coalition is looking for schools to partner with to help students with disabilities understand their voting rights and responsibilities. Learn about this opportunity.
• Discrimination Rule Finalized: The U.S. Department of Health and Human Services finalized a rule that prohibits discrimination on the basis of disability. Find out more about what this rule means.
• Workforce Brief: The US Department of Health and Human Services along with the Department of Labor released a brief summarizing a workgroup’s recommendations to federal and state agencies, non-profit organizations, and research institutions to improve data infrastructure and information on the HCBS workforce. Learn about the recommendations.

Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

• Wisconsin Council Of The Blind & Visually Impaired Advocacy Day: May 16th, 12p.m. to 1:30p.m., Virtual
• Webinar: Assistive Listening Systems: Where We Are Today And What’s On The Horizon: May 16th, 1p.m. to 2:30p.m., Virtual
• Employment First Conference: May 21st, Kalahari Resort, Wisconsin Dells WI
• Community Conversation: May 23rd, 10a.m. to 1p.m., Independence First, Milwaukee WI
• Webinar: Building And Sustaining An Accessible Federal Technology Environment: May 28th, 12p.m. to 1:30p.m., Virtual
• WisTech 2024 Training # 1 Unlocking The Power Of Recreation: June 11th, 10a.m. to 11a.m., Virtual
• WisTech 2024 Training #2 The ABCs Of AAC: June 18th, 10a.m. to 11a.m., Virtual
• WisTech 2024 Training # 3 Host With The Most: Inclusive Party Planning: July 16th, 10a.m. to 11a.m., Virtual

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

Meet Emily. This active young woman loves being busy. Whether it’s she’s rock climbing, water skiing, snow skiing, traveling, or volunteering at her church, she can’t sit still. As an Independent Living Coordinator at an Independent Living Center, she shows her consumers how to use self-determination to be independent. We’re so fortunate to have her as a member of the Network!

What's your story?  Tell us a little bit about yourself.

Emily is 27 years old living with spastic quadruple cerebral palsy. She has a passion for advocating  for the disability community. She shares that her goal is to assist and support individuals with disabilities. “There has been a lot of individuals and a lot of programs that have helped me get to where I am today and I would like to give that support to other individuals with disabilities as well,” she tells us. She never sits still, and she’s always trying new things and going on adventures.

How are you involved with self-determination? Why did you join the SD Network?

Emily works as an Independent Living Coordinator at Independence First in Milwaukee. She explains that showing her consumers that they have self-determination and can be independent is the main part of her job. She joined the Network because she feels that the more connections she can make within the disability community, the better resource she’ll be for someone else.

Tell us some good news - what's the most exciting thing happening for you (or in Wisconsin) in terms of self-determination? 

Emily doesn’t want to give too much away, but she has been looking into making the next step in her career which is going back to school and getting her masters degree.

 What tip or resource would you like to share with people who want to be more self-determined?

Emily explains that as an adult, having self-determination isn’t as scary as it was as a kid. She encourages people to have goals and to start small. “Work on your goals a little every day and ask for help from your support system if you need it,” she says.

What are some of your hobbies?

Emily enjoys being active. She loves waters skiing in the summer and snow skiing in the winter. Recently, she has been trying adaptive rockclimbing and she really likes that too. “Anything to keep active,” she says. She loves to travel (preferably to the beach, and she’s also very involved in my church. 

***We love hearing the views and opinions of Network members. We need to mention that the views and opinions expressed on this site are those of the person who is sharing them. They do not necessarily reflect InControl Wisconsin or any of our supporters and funders.

The brief provides background information on Home and Community-Based Services (HCBS) and the work of the Home and Community-Based Services Federal Opportunities Regarding Workforce and Research Data (HCBS FORWARD) workgroup. It summarizes the workgroup’s recommendations to federal and state agencies, non-profit organizations, and research institutions to improve data infrastructure and information on the HCBS workforce. Implementing these recommendations will bolster the data infrastructure needed to answer key questions about the HCBS workforce and drive data-informed policy decisions to improve the quality of and access to HCBS for the millions of Americans who are receiving or need these services. 

View brief

The U.S. Department of Health and Human Services finalized a rule that prohibits discrimination on the basis of disability. This rule, titled Discrimination on the Basis of Disability in Health and Human Service Programs or Activities, advances equity and bolsters protections for people with disabilities under Section 504 of the Rehabilitation Act.

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For Michael Ward of Madison, art has helped him find a purpose in life. Diagnosed with cerebral palsy when he was just five days old, Ward has speech and movement his whole life; however, that didn't deter him from finding his passion.  He started creating coloring books containing universal quotes in hopes of inspiring people with disabilities to preserve through life's challenges. Recently, Ward participated in an art festival.

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