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ANCOR has measured the impact of the direct support workforce crisis on community providers and their ability to provide high-quality community-based services for people with intellectual and developmental disabilities (I/DD). Although our research indicates that this was a significant challenge long before the COVID-19 pandemic, data from the 2022 State of America’s Direct Support Workforce Crisis confirms that these problems have not only been amplified by the pandemic but are also at the root of service and program closures, service launch delays, struggles adhering to quality standards and more. The results of our 2022 survey reveal that this workforce emergency is now to the point of denying access to services and further threatening the quality of services for people with I/DD.

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2022 Diehard Award Winners


By SD Network, 2022-10-24

We want to congratulate this year's Diehard Award winners who were recognized at the Self-Determination Conference. These individuals received a Diehard Award for going above and beyond in supporting the lives of people with disabilities. Please help us congratulate and thank these people for their outstanding advocacy efforts:

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As climate-related disasters become more common and more severe, most countries in the world are “neglecting their obligations to respect, protect, and fulfill the rights of persons with disabilities in their responses to the climate crisis,” according to a report from the Disability Inclusive Climate Action Research Program.

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For decades, Mark Laing and Luanne McGregor have needed home health care aides. ​​If someone doesn’t show up for them, that means they don’t get out of bed. The couple said their hope is to have better pay for their caregivers. They believe it may be a systematic issue of low pay and short staffing that leads to people not showing up.

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Direct Care Workforce Capacity Building Center will support recruitment, retention, and professional development of workers who provide home and community-based services.


The Administration for Community Living has awarded a five-year grant totaling over $6 million to establish a national center to expand and strengthen the direct care workforce across the country. In support of the Biden-Harris Administration’s commitment to strengthening the care economy, this initiative will provide technical assistance to states and service providers and facilitate collaboration with stakeholders to improve recruitment, retention, training, and professional development of the direct care workers who provide the critical services that make it possible for people with disabilities and older adults to live in their own homes and communities.

The center will harness the power of a team of organizations with expertise in disability, aging, and workforce issues, including several organizations that are part of  ACL’s disability and aging networks. Led by the National Council on Aging, partners include the National Association of Councils on Developmental DisabilitiesADvancing StatesParaprofessional Healthcare Institute (PHI)the University of Minnesota’s Institute on Community Integrationthe National Alliance for CaregivingLincoln University Paula J. Carter Center on Minority Health and Aging, the Green House ProjectSocial Policy Research Associates, and Housing Innovations.

“The shortage of direct care workers has become a national crisis and a serious civil rights issue,” said ACL Acting Administrator Alison Barkoff. “Increasing numbers of people with disabilities and older adults who want to live in the community – a right protected by the Americans with Disabilities Act and other civil rights laws – are unable to get the services they need to do so. The Direct Care Workforce Capacity Building Center is an important step toward addressing the challenges to recruiting, training and retention of these critical professionals and creating the robust, stable workforce we need to meet growing needs.”

Long-standing workforce shortages have reached crisis levels during the COVID-19 pandemic; today, more than three-quarters of service providers are not accepting new clients and more than half have cut services as a result of the direct care workforce shortage. High turnover – averaging nearly 44 percent across states –  also mean that people who are able to get services often experience service disruptions and receive inconsistent care. As a result, increasing numbers of people are left with no option but to move to nursing homes and other institutions, people who want to leave these facilities cannot, and the health and safety of those who live in the community is at risk. In addition to  undermining people’s civil right to community living, this leads to poorer health outcomes and higher costs of care, which are most often borne by taxpayers.

With demand for home and community-based services increasing, due in part to the rapidly growing populations of older adults and people with disabilities, more than 1.3 million new jobs for direct care workers will be created by 2030. A coordinated, national effort to improve our national capacity to recruit, train and retain a high-quality, competent, and effective direct care workforce has never been more important.

The national Direct Care Workforce Capacity Building Center will serve as a hub, providing tools, resources and training to assist state systems and service providers and to support the development and coordination of policies and programs that contribute to a stable, robust direct care workforce. The center’s website will  share resources from  the federal government, highlight state and local model policies and best practices that can be replicated or adapted, and  share training and technical assistance materials.  In addition, the center will facilitate peer-to-peer sharing of lessons learned and promising practices through learning collaboratives and support collaboration between state systems, including Medicaid, aging, disability, and workforce agencies; service providers; and aging, disability and labor stakeholders.  

The center will support stakeholders in tackling key issues affecting recruiting and retention, such as:

  • Poor wages: According to the Bureau of Labor Statistics, direct care workers were paid a median hourly wage of $14.20 in 2021. According to a report from PHI, in 2020, about two in five direct care workers used public assistance programs; a little over a quarter were enrolled in Medicaid and just under a quarter used nutrition assistance programs. 
  • Lack of benefits: According to the same report, in 2020, less than half had health insurance through their employer or a union (and 13 percent had no health insurance at all). Many do not have paid sick days or family/medical leave.
  • Limited opportunities for career advancement and professional recognition.

The center also will support stakeholders in developing or leveraging existing training and professional development to strengthen the quality of services.

This initiative builds upon the ongoing collaboration to strengthen the direct care workforce between ACL, the Department of Labor, and other HHS agencies, including the Centers for Medicare & Medicaid Services (CMS) and the Assistant Secretary for Planning and Evaluation.


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In recognition of October being National Disability Employment Awareness Month, the Southwest ADA Center is conducting a study on the experiences of employed people with disabilities using service animals and other assistance animals at work. This study is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).

 

Are you a US resident (18+) with a disability who uses an assistance animal at your place of employment? We are interested in learning about your experiences through the following survey link:


 

If you have trouble or need assistance completing the survey including alternate formats, please contact Vinh Nguyen at vinhn@bcm.edu.


Please share this survey with members of your organization and others who may be interested in taking the survey.
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Adults with disabilities rarely have been employed at such a high rate as now. This is in large part thanks to the pandemic. When COVID hit, almost every job switched to being done remotely. This eliminated one of the biggest employment barriers for people with disabilities--the need for transportation to and from work. Employers realized that so much could be done virtually . Even with the pandemic winding down, people seem to think that working remotely will continue to be an option for years to come.  

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There are worker shortages in every field of the economy. This Op ed in The Washington Post explains why the care worker shortage is a crisis and a disaster for the rest of the economy. It talks about how how not having enough caregivers leads to people not being able to fill jobs in the rest of the economy. The rate of pay for caregivers is a major contributing factor in this.   

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Sightseeing the Apostle Islands is often challenging for people who have mobility impairments.The nonprofit group Friends of the Apostle Islands plans to raise $325,000 by the end of next year to build a roughly 500-foot ramp that slopes gradually down to Meyers Beach. The National Park Service is expected to match that amount to fund construction of the project, which could begin as early as 2024. Beyond addressing mobility issues, the park has added audio devices at its visitors center and interpretative displays at Michigan Island and Little Sand Bay. For those who are blind or vision-impaired, the park offers a Junior Ranger booklet and brochure with maps in braille.

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Increasing wages and benefits, improving training and career development options, adding flexibility to state Medicaid waiver programs to pay family caregivers for providing personal care services, providing incentives and compensation for travel, and new data collection and tracking efforts would go a long way toward improving the personal care aide workforce in rural America.

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