News
An inspirational story in theGazatte Extra written by Nick Crow about a man who has learned to look beyond his physical disability. It does a great job of explaining his struggles and triumphs. He learned to not use his disability as an excuse and to use his determination to become successful!
Janesville man looks beyond physical disability
By Nick Crow
JANESVILLE Janesville native Nathan Scafe has not letcerebral palsy stand in his way since graduating from Craig High School in 2008.
He graduated from UW-Whitewater in 2012 with a degree in social work and political science.
He's worked as an intern in the state Legislature and worked for UW-Madison. He moved to Madison last month to live on his own.
Scafe, 25, was born 13 weeks premature. He said he uses his condition as a motivation, not an excuse.
"You can do what you want to do," Scafe said.
Yvonne Stueber, executive director at Broadscope Disability Services, formerly United Cerebral Palsy of Southeast Wisconsin, said Scafe is an example of how changes in perception and advances in technology helped people with cerebra palsy be successful.
I think technology can contribute to a person's ability to become a contributing member of the greater community, Stueber said. We have computer-assistive technologies, medical research advances studying how a persons' gait at a young age will impact his/her aging process decades down the road and countless other advances.
"It is important to look at an individual's abilities and strengths and contributions, rather than looking at labeling individuals and seeing them as different.
Stueber said society has a growing appreciation for people with disabilities--seeing their talents rather than looking at what might appear as limitations.
We have a long way to go to being an inclusive workplace welcoming persons of all abilities and backgrounds, Stueber said. People with disabilities are like any of us. They want to use their gifts and talents, be a contributing member of society.
Scafe said his family had high expectations.
"My parents expected me to go to college and to do everything that a normal kid would do. That was really crucial in that I grew up knowing that I should be able to do these things, so I just kind of figured out a way to do it," he said.
He sometimes got discouraged or depressed and became frustrated with his condition, but he realized hard work was the only way he would succeed, he said.
"When I was younger, there was a process of accepting the fact that I have a disability," Scafe said. "There was a process of accepting it and realizing the fact that I can do everything that I want to do. It's just a matter of working."
"I had people around me to push me," he said. "I know from my time in Whitewater that there are people with disabilities that don't have that. They don't have people who push them to step out of their comfort zone, and that makes a huge difference. It's really easy to get complacent and accept help when you don't necessarily need it.
"It's important to have things in place when you do need it, but it's also important to push yourself and move beyond what you think are your limitations."
Among those Scafe credits for his success is Kathy White, assistive technology specialist for the Janesville School District. Scafe said White was someone who helped him to see that his disability didn't have to stop him.
"I've known Kathy since I first moved into the district (in third grade)," Scafe said. "She, I think, is a really creative problem solver in that she finds ways to use technology that really helped me and catered to my needs and leveled the playing field."
"She was there to make me aware of different options and encourage me to try different things," he said.
Scafe said he didn't always want to put in the work, but White pushed him.
"I was a bit of a feisty person in my younger days," Scafe said.
"I would go back and go back and go back," White said. "I'm persistent. Nathan will tell you. I kept hammering at him and hammering at him because I believed in him. That's really so important that we believe they (the students) can be successful."
During his time in Janesville, Scafe met with physical therapists twice a week, an occupational therapists once a week and learned how to dress himself, get in and out of bed and get out of a car.
"I think that the reason why I'm able to live independently is because of the things that I've learned," Scafe said.
"I think from a disability standpoint, the therapists and things that the district offered played a critical role in me being able to be an independent adult," he said. "I live on my own in Madison, now, and the skills that I learned like dressing and things, that all kind of started with therapists here at school."
White said she assisted Scafe with technology but also helped him with things his regular teachers may not have noticed. She told a story she remembered about Scafe from when he was in elementary school.
"He was a third-grader at the time," White said. "He had to do a project with all of these animals at a marsh. They gave him a white piece of paper, and then he had to color and draw the marsh."
"Well, by the time he would have colored the marsh ... and he couldn't draw," she said. "So we gave him a brown piece of paper and used clip art. He found all the critters and everything else and we put them on there. So sometimes it's just simple adaptations. It's seeing the end result. The goal is what's important. Him showing his knowledge is what was important and that's with all of our kids."
Scafe said the biggest misconception people have about him is that he can't do many things everyone else does.
"In Nathan's case, it shows people to look beyond the wheelchair, look beyond the fact his one hand didn't work, look beyond all those things," White said. "It's not what I ever saw. I saw Nathan. I saw a student and that's what we see in all of our kids. We see the student first. The disability, OK fine, it's there, but let's find a way to make him successful."
White said it takes a team effort within the district to help any student be successful.
"It's never just one person," White said. "In Nathan's case, it was a physical therapist, it was an occupational therapist, it was myself and the teachers. We all worked together to make sure that Nathan had the best education that we could give him."
"The second big part is an expectation," she said. "You are a student in the Janesville public schools. We want you to be the best that you can be, and we knew that Nathan was very college bound. When you look at that, you see the kid first. You're just a kid like anybody else. So you can't use this hand. So what? Let's figure out a way around this piece."
Scafe said he thinks it's important for high schoolers to know that people with disabilities can do what any average teenager does.
"I had friends in high school," Scafe said. "We went to dances and hung out. It's just a matter of doing things a little differently and taking a little extra time to do things you need to do."
White enjoys providing assistance to students and seeing them learn.
"The great thing about being a teacher is you don't know where they're going to end up and who's lives they're going to touch," White said. "I don't know what Nathan is going to do in the future. I know he's touched some great lives, and he's done some wonderful things already."
"Just because something happened to you doesn't mean you're life is over or it's going to take a different turn than you might have thought," she said. "It could go a better direction."
Scafe said that for now his goal is to get a new job that he enjoys.
"I'm trying to figure out what my next step is," he said. "I'm not really sure what the future holds."
Source: http://www.gazettextra.com/20150529/janesville_man_looks_beyond_physical_disability
A great article in Disability Scoopwritten by Shaun Heasley about how Google is putting up millions of dollars for a disability initiative. It's forusing emerging technologies to increase independence for people living with disabilities. They're asking people with disabilities for suggestions of problems that they would like to see addressed with the money.
Google Putting Up Millions For Disability Initiative
By Shaun Heasley
Google is looking to address the needs of a billion people with disabilities worldwide and its putting big bucks behind the effort.
The Internet search giant said this week that Google.org the companys charitable arm is offering up $20 million to nonprofits using emerging technologies to increase independence for people living with disabilities.
As part of theinitiativedubbed The Google Impact Challenge: Disabilities, the company is also asking people with disabilities to suggest problems that they would like to see addressed with the grant money.
Google has already committed funding to two groups the Enable Community Foundation which links people needing prosthetics with volunteers who use 3D printers to create them at no cost and World Wide Hearing which will use the funds to develop a low-cost kit to detect hearing loss using smartphone technology.
The Google Impact Challenge: Disabilities will seek out nonprofits and help them find new solutions to some serious what ifs for the disabled community. We will choose the best of these ideas and help them to scale by investing in their vision, by rallying our people and by mobilizing our resources in support of their missions, Jacquelline Fuller, director of Google.org, said in a blog post.
Alongside the monetary commitment, Google said it will work to ensure accessibility of its own products and add new offeringsthat benefit people with disabilities. The company cited its work developing self-driving cars as well as Liftware, a utensil designed to help people with hand tremorseat more easily, as examples of its existing work in this space.
Historically, people living with disabilities have relied on technologies that were often bulky, expensive and limited to assisting with one or two specific tasks. But thats beginning to change, Fuller wrote. Together, we can create a better world, faster.
Advisers for the new project include autism self-advocate Temple Grandin and Catalina Devandas Aguilar, the United Nations special rapporteur on the rights of persons with disabilities.
Source: http://www.disabilityscoop.com/2015/05/27/google-millions-disability/20337/
This is a very interesting but disheartening article inDisability Scoopwritten by Michelle Diament about how federal statistics indicate that people with disabilities are far more likely to be victims of violent crime. The statistics and facts she gives are very interesting. It certainly makes one think.
Crime Odds Double For Those With Disabilities
By Michelle Diament
People with disabilities remain far more likely to be victims of violent crime, new federal statistics indicate.
There were 1.3 million nonfatal violent crimes committed against persons with disabilities in 2013, according to data released this month from the U.S. Department of Justices Bureau of Justice Statistics.
Overall, people with disabilities were more than twice as likely to experience violent crime as compared to the general population, the agency said.
Within this population, those with cognitive disabilities were the most likely to report being victims ofviolent crime and about half of victims had multiple conditions. The vast majority of crimes cited were related to simple assault followed by aggravated assault, robbery and rape or sexual assault.
The findings are based on data from the National Crime Victimization Survey, an annual survey of about 90,000 households asking about their experiences with crime whether reported or unreported to authorities.
Just under half of incidents involving people with disabilities were reported to police, the Bureau of Justice Statistics found. In other cases, those surveyed said they didnt seek law enforcement assistance because they dealt with the matter another way, believed the incident was not significant enough or thought police would not help, among other reasons.
Nearly a quarter of those with disabilities who were victimized indicated that they believed they were targeted due to their disability.
Source: http://www.disabilityscoop.com/2015/05/26/crime-odds-double/20329/
WBAY.COM: How far have we come? The Americans with Disabilities Act 25 years later
By SD Network, 2015-06-01
An interesting story on wbay.com written by Andrea Hay about the 25th anniversary of the Americans with Disabilities Act (ADA). She explains some of the effects the ADA has had including workplace discrimination laws. She tells the story of one Wisconsin man who has immensely benefited from the ADA.
How far have we come? The Americans with Disabilities Act 25 years later
By Andrea Hay
From accessible buildings with ramps and wheelchair lifts to automatic doors and elevator keypads, many experience the effects of the Americans with Disabilities Act every day without even realizing it. But to some people with disabilities, the past 25 years have made a world of difference.
Tom Deidrich lost his arm in a farming accident at age 18, and later, a car accident broke his neck and left him paralyzed. He says living as a quadriplegic in the 1980s meant rarely leaving the house, and finding work nearly impossible.
I applied for a job in Green Bay doing interior sales work, got called in for an appointment to meet with the manager, told him who I was, and he looked at me and said you cant work here, said Deidric.
That cant happen now, and thats important. I dont think people realize how blatant the discrimination was, he said.
Deidrich says his life changed when the ADA declared equal access to everything public in 1990. Movie theaters, grocery stores and shopping centers put in ramps, elevators, and create wider doorwaysas well as other accessibility requirements on public accommodations. The upgrades imposed on businesses made the act controversial.
Workplace discrimination of people with disabilities became illegal. Diedrich gained employement at Options for Independent Living, and even helped the Green Bay Packers renovate for people with disabilities. They really did an excellent job, he said, adding they went beyond the requirements.
A lot of positive things have happened, but were not done yet, said Deiedrich. Transportation is a big issue. While weve got very good transportation services here in the metropolitan Green Bay area, what about people in the country who have issues and cant drive?
He says his mission is to end discrimination permanently in business and home life alike.
[People with disabilities] want to be your next door neighbor. They want to be able to work and pay taxes just like everybody else, he said.
A MONUMENTAL TIME FOR CIVIL RIGHTS
Two years prior to the passing of the America ns with Disabilities Act, Eunice Kennedy Shriver won her uphill battle to gain official approval to use the name Olympics in the Special Olympics.
Its the only other thing that can be listed as having Olympics in it because the actual Olympics are so well known, explained Matt Harper, Special Olympics Wisconsin Regional Director.
So she had to fight through and kind of work through a lot of controversy and use her family name and do whatever it took to get Special Olympics recognized in the disability community and make sure that everybody knew what Special Olympics was trying to accomplish, he said.
The Special Olympics has grown from a small event just a few hundred athletes in in Soldier Field to millions of athletes all over the world, with the International Torch Run Conference hosting thousands of attendees. This years torch run will be held in the Bahamas, and hundreds of law enforcement officers will participate to raise money for Special Olympics.
Source: http://wbay.com/2015/05/24/how-far-have-we-come-the-americans-with-disabilities-act-25-years-later/
Self-Determination Network News:May2015
Last Chance toRegisterfortheAging Empowerment Conference
TODAYis the last day to registerfor the Living a Self-Determined Life: A Conference on Empowerment for Older Adults. Join InControlWisconsin and other sponsors on June 1stfor aconference exploring self-determination and empowerment in aging at the Glacier Canyon Lodge Conference Center at the Wilderness Resort in Wisconsin Dells. This statewide event will examine new approaches to providing support to older adults that encourage autonomy and choice.
The keynote address entitled, Self-Determination: Past, Present, & Future will be given by Dr. KevinManhoney.Dr. Kevin Mahoney, Professor of Social Work at Boston College and Founding Director of the National Resource Center for Participant-Directed Services, will share a national perspective on the expansion of self-determination in long-term care. To prepare for the future, we need to understand the past and achievements that bring us here today. What can we learn from the evidence of success that supports this model of service delivery as we look toward the future? This keynote will help us understand the challenges and opportunities we may face in continuing to advance self-determination.
See this brochuremore information or register here. The registration deadline is this TODAY, May 22nd!
Budget Proposal Update
Last week, members of the Joint Finance Committee made an announcement about proposed long-term care changes in the state budget.They announcedthat they are pursuing limited reforms with strong legislative oversight. Legislators proposed giving the Department of Health Services authority to work with the Federal Government to make changes toFamilyCarewith some key requirements.We havelinksto the full press releaseas well as statements from disability organizations in response to iton ourLearn about the Budget page. While many feel this is a big step in the right direction, questions and concerns about the future of the IRIS programand Aging and Disability Resource Centers (ADRCs)remain. Well continue to keep ourBudget pageas up to date as possible as events unfold.
Earlier in the month, we had another great Coffee Breakdiscussionwith Lynn Breedlove about the proposed changes. We still encourage you totake actionand voice your concerns!
The Results areIn!
In this months one-minute poll, we asked people which programs they use to self-direct (or to help someone else use to self-direct). Over 57% of people say they use IRIS. Roughly 27% of people use Family Care, and about 15% of people either use other programs or dont use any programs to self-direct.Now, we want to know what you think of the Joint Finance Committee's announcement. Take ourone-minute pollnow!
It Only Takes "Five"
Take five minutes to check out what's happening on the Self-DeterminationNetwork:
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The ADA25 and Faith Initiative: The ADA Wisconsin Partnership posted a neat resource abouta campaigntoencourage faith communities and organizations to sponsor and join in celebrations and activities related to the 25thanniversary of the Americans with Disabilities Act (ADA).
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New Rules for Medicaid Managed Care: This is avery interesting article about upcoming changes expected in the managed care system.
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Transportation Hurdles: A great article about the need for better accessible transportation.
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Self-Determination ConferenceCall for Proposals:Proposals are now being accepted for the 2015 Self-Determination Conference. Proposals due June 1st.
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Call for Exhibitors: Exhibitors are wanted for the 2015 Self-Determination Conference. Applications are due July 1st.
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Concerns about Online Social Security Services: An interesting article about concerns over social security moving more services online.
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New Disability Liaison: A great story about the new Disability Liaison at the White House.
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Transition Conference Call for Proposals:Proposals are now being accepted for the 13th Annual Wisconsin Transition Conference.
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Mental Health Advisory Council: The Disability Rights Wisconsin Mental Health Advisory Councilis seeking new members. Applications are due June 19th.
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Post news or start a discussion: It's easy to do and a great way to share information and network with others!
Stacys Journal
This month Stacy shares some of her experiences and thoughts on trying tonavigate through the system. We encourage you to ask her questions and/or share your experiences as well.
New Members
Stop by to welcomeournewest members
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Hes a veryoutgoing personwho wants to get to know others and share ideas.
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This person is asupervisorat Lutheran Social Services.
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Shes theProgram Directorfor Reach, Inc.
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Shes anOutreach Specialistfor the Promise grant and works with the BOND project.
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Thismotheris worried about IRIS.
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Thisparentis trying to understand the adult system.
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Thisparentis trying to keep up to date with the budget proposal.
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She wants to learn more aboutadvocacy.
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She has beenworking with people with disabilitiesfor over 15 years.
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Thiscaregiverwants to make her own decisions.
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This personoperatesan adult home and is opposed to the budget changes.
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Thismotheris interested in learning how to help people become more self-directed.
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She works for The Womens Community and islooking for informationthat might help her clients.
Do you know someone who should join the Self-DeterminationNetwork? Spread the word and invite friends, families and other interested folks!
Upcoming Events
Here's a sample ofupcoming eventslisted on the Self-DeterminationNetwork:
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Living a Self-Determined Life Conference: June 1stto 2nd, Wilderness Resort, Wisconsin Dells WI
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ADA Free Pontoon Boat Rides on Madison lakes: June 14thto August 16th,TenneyPark, Madison WI
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ADA Legacy Bus Tour: June 25th, 11am to 4pm,Overture Center for the Arts, Madison WI
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State-wide Institute on Best Practices in Inclusive Education 2015:July 27thto 29th, Westwood Conference Center, Wausau WI
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3rd Annual Disability Pride Festival: July 25th, 12pm to 5pm,BrittinghamPark, Madison WI
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Self-Determination Conference: November 9thto 11th, Kalahari Resort, Wisconsin Dells WI
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Wisconsin Transition Conference: February 18th to 19th,Kalahari Resort, Wisconsin Dells WI
Post your eventon the Self-DeterminationNetwork and it can be included in future Network News emails to members! Questions? Suggestions? ContactStacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsinand supported financially by ourmembersandSponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
*DRW Mental Health Advisory Council Seeks New Members*
*The PAIMI (mental health) Advisory Council of Disability Rights Wisconsin seeksnew members who want to advance positive change in working to protect andadvocate for the rights of Wisconsin residents with mental health diagnoses.*
The Council has openings for the following positions:
Parent of a minor child or youth who has received or is receiving mental healthservices
Person who has received or is receiving mental health services or the familymember of a person who has received or is receiving mental health services
Current Council members are from La Crosse, Milwaukee, Menominee, and RacineCounties -we are especially interested in candidates from counties *not*currently represented.
*To apply, please complete and submit thisapplicationbyJune 19th*.
*_BACKGROUND ON THE PAIMI ADVISORY COUNCIL_*
Disability Rights Wisconsin is Wisconsins Protection and Advocacy agency, partof a nationwide network of disability rights agencies mandated by Congress toprovide advocacy services and legal representation on behalf of all persons withdisabilities. Since 1986, DRW and other Protection and Advocacy agencies haveworked through the PAIMI program (Protection and Advocacy for Individuals withMental Illness) to protect the human and civil rights of children and adultswith serious mental health conditions. This work is supported by a PAIMIAdvisory Council.
The PAIMI Advisory Council helps staff and board of directors of DRW setpriorities for the PAIMI program and advises the board on policies and issuesthat affect people with mental illness. The Council also serves as a liaison tothe various communities its members represent.
*Who Can Serve on the PAIMI Advisory Council?*
The Council is committed to maintaining a strong consumer voice, and requiresthat at least 50% of its members be people with the lived experience of mentalillness, who are receiving or have received mental health services. The Councilmust also include the parent of a minor child or youth who has received or isreceiving mental health services. In addition, the Council must include anattorney; a mental health professional; a provider of mental health services;and a member of the general public who is knowledgeable about mental illness,the advocacy needs of persons with mental illness, and has demonstrated asubstantial commitment to improving mental health services.**
*What Are Council Member Expectations?*
The PAIMI Advisory Council meets at least three times per year, generally on aFridayafternoon prior to a DRW Board meeting. Members may also meetperiodically to fulfill committee assignments. Council terms are for two yearsand members may be re-appointed for a second term. Council bylaws require us torecruit members from each region of the state so that the Council can have astatewide voice, and to have membership that reflects the racial and ethniccomposition of the state. Travel, meals, hotel and other meeting expenses arereimbursed for Council members.
*Barbara Beckert, Milwaukee Office Director*
*DISABILITY RIGHTS WISCONSIN*
6737 W. Washington St., Suite 3230
Milwaukee, WI 53214
414-773-4646 Ext 15Voice
414-773-4647Fax
barbara.beckert@drwi.org
Are youInterested inExhibitingat the 2015 Self-Determination Conference?
Exhibitor requests are now being accepted!
Exhibit tables will be available onTuesday, Nov. 10 and Wednesday, Nov. 11, 2015. Space is limited and only applications from exhibitors that directly support self-determination andself-direction will be accepted. All applications will be reviewed by a committee and selected based on interest, needs,and mission of the conference.
Persons with a disability operating their own businessareencouraged to apply!
Last year conference attendees spentthousandsof dollars on art, crafts, jewelry and other products made by people with disabilities.
New this Year! Meet us at the Fair!
We are seeking vendors to help us with our Self-Determination Kick-off Fair (In ALL FAIRness). Set in a State Fair or Carnival atmosphere, this interactive evening will feature games, food, and fun all focused on learning more about disability rights, advocacy, and the ADA. Organizations can set up a booth at the fair. There is no fee but booths will go through an approval process.
Please complete theapplication formand submit to:
Jenny Neugart atJennifer.neugart@wisconsin.govor mail to:
BPDD, 101 E. Wilson St., Room 219, Madison, WI 53703.
All proposals are due by 12 pm onJuly 1st.
Watch for more information on theWI-BPPD website.
Join us inMoving Self-Determination Forward!
#SDMovingForward
Lets find ways to move forward together.
Tosubmitaproposalto present:
- Go towww.EdEvents.organd click on theWisconsin Transition Conference.
- On the right side of theWisconsin Transition Conference home page, you will seeSubmitaProposal. Click on that link to access your account.
- If you don't already have an account, you will need to create one. If you do have an account just type in your email and password to access theproposalsubmissionform. The system recognizes you by your unique email address and password combination, so be sure to use the same email address whenever you log on to EdEvents.
- Complete the form and clickSubmitProposal.
Presenters will be notified byOctober 23, 2015.
Please pass this request on to those who may be interested!!
If you have any questions, please contactinfo@EdEvents.org