News

Scholarships are nowavailable for students age 14-21 to attend the SD Conference November10th-12th, 2014 with a parent.

The scholarships include:

*Registration for the student with a disability (must have an IEP) and oneparent. ($25.00 registration fee required)

*
Pre-conference Session for both


*Lodging on Monday and Tuesday night in a double room at the Kalahari Resort

*Most meals are covered by the conference (Starting with a reception onMonday evening through lunch on Wednesday.)

*Additional attendees must pay registration fee. (Use regular registrationform)

The 2014 Self Determination Conference
will beheld November 10-12, 2014, at the Kalahari Resort in Wisconsin Dells. This willbe the seventh year of the conference and the theme is, Mission Possible:

Discovering the Potential in our Communities.

Applications for scholarships are still available to individuals with
disabilities experiencing financial hardships can apply for a scholarshipto theconference. Learn more about the conference in this yearsbrochure
.


Dont miss out on this opportunity to learn, connect, and make a change! EarlyBird registrationends Aug. 29.
The deadline to request a scholarship is Sept. 30, or until there are no longerfunds available. The deadline to register for the conference is Thursday, Oct. 15.

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We Want to Hear From You!

Do you have a question, a news story, an idea, an event, or information you think others would benefit from? Post it on the Self-Determination Network and share it with over 200 people. There's a wealth of experience, knowledge and skills represented by the members of the Self-Determination Network.

It Only Takes "Five"

Take five minutes to check out what's happening on the SD Network:

  • Join the Conversation: There has been a lot of buzz lately about the new handicapped symbol. Have you seen it? What are your thoughts? Is it too disability specific?
  • Posting: Stefaine posted a great job opening for a Community Bridge Builder for Living Our Visions, Inc. (LOV-Dane) Check it out!
  • Watch: Watch a video from last years Self-Determination Conference.Registerfor this years conference today!
  • Let Your Voice Be Heard: The DHS has produced a plan that will change the way long term supports through Medicaid will be delivered. Let your voice be heard
  • Share: Share your story about self-determination. Have you advocated for yourself or others to gain independence? Have you defied odds or proven naysayers wrong? Our stories provide opportunities to inspire and learn from each other. Share your story with us.
  • Learn: Read about the Achieving a Better Life Experience (ABLE) Act that could potentially improve life for thousands of people with disabilities.

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Were hoping Coffee Breaks will return in October or November. What topics would you like to have on the Self-Determination Network Coffee Breaks? Answer ourOne-Minute Poll now!

34_blogs.pngNew Members

Stop by to welcomeournewest members

Do you know someone who should join the SD Network? Spread the word andinvitefriends, families and other interested folks!


35_blogs.jpegUpcoming Events

Here's a sample ofupcoming eventslisted on the SD Network:

Post your eventon the SDS Network and it can be included in future Network News emails to members! Questions? Suggestions? ContactStacy Ellingen.

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The Self-Determination Network is powered byIn Control Wisconsinand supported financially by ourmembersandSponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.

Come work for LOV-Dane!


By Stefanie Primm, 2014-08-11

Community Bridge Builder

Do you

  • Approach the world with curiosity, enthusiasm, empathy and fun?
  • Love to bring people together to create inclusive community?
  • Dig deep to understand a challenge and think outside the box to solve it?
  • Enjoy both supporting others behind the scenes and shining in the spotlight yourself?
  • Have superb communication skills?

LOV-Dane is looking for a person who answers yes to these questions! This position will support individuals with a variety of disabilities as they explore their gifts and dreams, set manageable goals, and build the skills and connections to achieve them.

The right candidate will believe in and delight in our members; be a good listener, teacher, and salesperson; have experience breaking long-term goals into manageable pieces; be highly organized and self directed; enjoy being creative with a team; anticipate and address challenges with patience and empathy; be flexible; have the ability to respond to diverse needs and styles.

The Bridge Builder will

  • Build relationships with project members (individuals with disabilities), their families and close supporters
  • Support project members as they find their own voices and motivations and make clear personal choices
  • Work with project members not for them by teaching the skills needed to fade assistance as individuals become more independent
  • Facilitate authentic relationships between members and others
  • Actively seek out community connections (clubs, churches, service groups, employment) with and for project members and help build relationships between LOV-Dane and other community organizations
  • Help project members design and maintain organizational systems that will increase their independence at home, work, or the community

This position is full time, annual pay is $27,000-$31,000 (based on experience) and benefits are included. A drivers license and vehicle with car insurance are essential for frequent travel around Madison and Dane County.

Living Our Visions, Inc. (LOV-Dane) is a grassroots organization of individuals with disabilities and their families or other community members. LOV is committed to building fulfilling, community-centered lives for all citizens. LOV is not an agency or program but an organization in which members and others can mobilize their strengths and gifts to enrich the lives of people with disabilities and strengthen the civic life of the community as a whole. By focusing on the assets of people with disabilities, LOV is committed to altering the perception that the primary role of people with disabilities is as clients and receivers.

Learn more about us at: www.lovdane.org

Please submit a cover letter, resume and responses to the following questions by noon (12pm) on Wednesday, August 20, 2014 to employment@lovdane.org

1. How are you involved in your community? What have been the most rewarding parts of your involvement?

2. What experiences have you had supporting people with disabilities? What draws you to this life path?

3. Several of the members of this project are reluctant to try new things and meet new people. How would you help them move forward?

4. Describe your experiences teaching someone a new skill and supporting him or her to become more independent.

5. Creative use of technology is a critical part of becoming independent for many of the people you will be working with. Describe your experience/comfort with utilizing technological tools such as smartphones, tables and web-based tools.

6. This job requires a lot of self-direction and flexibility. What experience have you had working independently and balancing multiple priorities and projects?

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Take A Stand On the Plan campaign helps people submit comments on Wisconsin Home and Community Based Services Transition Plan

The Department of Health Services (DHS) has produced a plan that will significantly change the way in which long term supports through Medicaid waivers (including Family Care, IRIS, legacy waivers and the Childrens Long Term Support Waiver) will be delivered to participants.A copy of the plan can be found here:http://www.dhs.wisconsin.gov/LTCare/StateFedReqs/waiver.htm

There are only have 30 days to submit public comments on the DHS Wisconsin Transition Plan that will require the states providers of home and community based services funded through Medicaid to offer supports in inclusive community settings that allow people with disabilities to have more choices about where and how they work and live. Comments are dueSeptember 2nd, 2014.

The Board for People with Disabilities, People First Wisconsin, and Disability Rights Wisconsin have created a website and tool to help self-advocates, families and providers submit public comments to the Department of Health Services. Go to:

www.takeastandontheplan.organd click on take action and use this online tool to submit comments

Paper copies of the online tool and help filling it out are available upon request. Contact John Shaw at608-266-7707.

DHS must hear from people with disabilities, families and advocates that believe people with disabilities need more choice in their lives and should be a part of our communities. Without your input, these changes may not be strong enough to make lives better!

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A great article in theMarshfield News Heraldabout The Social Security Administration's "The Faces and Facts of Disability." I think it's awesome that a small newspaper to do an article like this.

Facts about Social Security Disability

The Social Security Administration recently launched "The Faces and Facts of Disability," an education and awareness initiative to help educate the public about Social Security disability insurance and dispel common misconceptions. Social Security disability insurance is coverage that workers earn by paying Social Security taxes on their earnings. Nearly 9 million disabled workers receive disability insurance. These 9 million individuals make up a diverse group of individuals with mental impairments, sensory disabilities, and physical disabilities.

Definition of disability

The Social Security Act defines disability very strictly. Eligibility rules differ from those of private plans. Social Security does not provide temporary or partial disability benefits, like workers compensation or veterans' benefits do. One of the qualifications that Social Security looks at to see if an individual is disabled under Social Security's Act is if he or she cannot work due to a severe medical condition that has lasted or is expected to last at least one year or result in death. The individual's medical condition must prevent them from doing work that they have done in the past, and it must prevent them from adjusting to other work.

Disability is unpredictable

Disability is unpredictable and could happen to anyone at any age. Tragically, every day thousands of young people are seriously injured. Many individuals hear about disability but they don't think it will happen to them. One in four 20 year olds insured for disability benefits become disabled before reaching retirement age. Social Security disability insurance provides a critical source of financial support to these people.

Social Security Disability payments

The average monthly disability benefit paid by Social Security to beneficiaries at the beginning of 2014 was $1,146. Even with this disability payment one in five beneficiaries live in poverty and most are low income. More than 49 percent of all disabled beneficiaries receive less than $1,000 per month.

Community resources

Disability Benefit Specialists at the Aging and Disability Resource Center of Central Wisconsin work with individual's ages 18-59 years old with physical, mental, and developmental disabilities. They can provide accurate information on public and private benefits and programs; help determine which benefits and programs you may be entitled to, and assistance with filling out applications. Some of the programs a Disability Benefit Specialist can help with are Medicaid, Social Security Disability Income (SSDI), Supplemental Security Income (SSI), Medicare, Prescription Drug Assistance, and Insurance Issues. They can also provide referrals, assistance, and support on other matters including disability rights.

To contact a Disability Benefit Specialist, call the Aging &Disability Resource Center of Central Wisconsin at 888-486-9545. The ADRC-CW serves Langlade, Lincoln, Marathon and Wood counties.

Source: Social Security. The Faces and Facts of Disability.http://www.socialsecurity.gov/disabilityfacts/materials.html#a0=5

Contributed by Michelle McDougal, disability benefit specialist with Aging & Disability and Resource Center of Central Wisconsin.

Source:http://www.marshfieldnewsherald.com/story/life/2014/07/26/facts-soc...

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A great article by Michelle Diament from Disability Scoop about the Achieving a Better Life Experience (ABLE) Act.

Congress Weighing Tax-Free Disability Savings Accounts

By Michelle Diament

July 24, 2014

A long-stagnant bill that would establish a new way for people with disabilities to save money without jeopardizing their government benefits is starting to make its way through Congress.

The legislation known as the Achieving a Better Life Experience, or ABLE, Act would allow people with disabilities to create special accounts where they could save up to $100,000 without risking eligibility for benefits like Social Security. Whats more, under the plan, individuals would not lose Medicaid coverage no matter how much money is deposited in the proposed accounts.

A U.S. Senate hearing Wednesday marked the first step in Congress for the bill which has been under consideration since 2006.

Under the proposal, individuals with disabilities would be able to create ABLE accounts at any financial institution. Modeled after the popular 529 college savings plans, funds deposited in ABLE accounts could be used to pay for education, health care, transportation, housing and other expenses. Interest earned on savings within the accounts would be tax-free.

In testimony before the Senate panel, Sara Wolff, 31, who has Down syndrome, said that passing the ABLE Act would change her life. Under current law, Wolff and many others with disabilities cannot have more than $2,000 at any given time without forfeiting government benefits. As a result, Wolff said she works two jobs but is careful not to earn more than $700 a month even though shes capable of far more.

Just because I have Down syndrome, that shouldnt hold me back from achieving my full potential in life. I can work a full-time job, be a productive member of society and pay taxes but because of these outdated laws placed on individuals with disabilities, people like me are held back in life, said the Moscow, Pa. resident who has amassed more than 250,000 signatures on an onlinepetitioncalling on Congress to pass the bill.

With widespread support from lawmakers in both political parties and the disability community, backers say they expect the ABLE Act to be fast-tracked and hope to have a bill on President Barack Obamas desk by the end of September.

This is really the most popular piece of legislation in Congress right now, said Sara Weir, vice president of advocacy at the National Down Syndrome Society, who indicated the bill has 366 co-sponsors in the U.S. House of Representatives and 74 in the Senate.

Next up, the House Ways and Means Committee is expected to consider the ABLE Act before sending it for a vote in the full House and Senate.

Weir said advocates are already in talks with financial institutions who are eager to begin offering the new accounts should the ABLE Act become law.

No other bill in Congress has this level of bipartisan, bicameral support, said Sen. Bob Casey, D-Pa., the legislations leadsponsor. We want all 535 members of Congress behind this important legislation, and we need to build on our momentum in order to get the bill passed when we return from the August recess.

Source:http://www.disabilityscoop.com/2014/07/24/congress-weighing-savings/19545/

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Interesting blog on commerce.gov about the Americans with Disabilities Act (ADA). I find the facts and figures very interesting--particularly the age statistics.

Census Bureau Releases Disability Facts and Figures in Recognition of ADA Anniversary

Cross blog post fromDisability.gov

In preparation for the anniversary of the Americans with Disabilities Act (ADA) on July 26, the U.S. Census Bureau released its collection of themost recent datapertaining to Americans with disabilities. The numbers are striking. People with disabilities represented 19 percent of the U.S. civilian noninstitutionalized population. Persons with a disability have a physical or mental impairment that affects one or more major life activities, such as walking, bathing, dressing, eating, preparing meals, going outside the home, or doing housework. A disability can occur at birth or at any point in a persons life.

  • Approximately57 millionAmericans have a disability. There are more people with disabilities living in America than the entire population of Canada or the Caribbean.
  • More Americans with disabilities require the assistance of others to perform basic activities of daily living than the entire population of Greece.
  • If you take the population of Ireland and cut it in half, thats roughly the number of Americans living with Alzheimers or other neurocognitive disorders.
  • The number of Americans with vision impairments is comparable to the entire population of Switzerland, and there are more Americans with hearing impairments than in all of Denmark, Paraguay or Hong Kong.
  • By age in the U.S., 8 percent of children under 15 had a disability; 21 percent of people 15 and older had a disability; 17 percent of people 21 to 64 had a disability; and 50 percent of adults 65 and older had a disability.
  • West Virginia had the highest rate at 19% of the U.S. civilian noninstitutionalized population with a disability, the highest rate of any state in the nation. Utah, at 9 percent, had the lowest rate.

On July 26, 1990, President George H.W. Bush signed the Americans with Disabilities Act, which prohibits discrimination against people with disabilities in employment, transportation, public accommodations, commercial facilities, telecommunications, and state and local government services.

Source:http://www.commerce.gov/blog/2014/07/22/census-bureau-releases-disability-facts-and-figures-recognition-ada-anniversary

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Self-Determination Network News: July 2014


By SD Network, 2014-07-16

28_blogs.pngSelf-Determination Network News: July 2014

Connect|Share|Learn|http://sdnetworkwi.org/

New Network Manager

We would like to thank Deb Wisniewski for all her years of hard work and dedication to theSelf-Determination Networkand theEmployment Network. We really appreciate all the time you have spent getting these networks going. We cant thank you enough!

As of June 1st, Stacy Ellingen took over as the network manager. She comes with knowledge about what services, resources, etc there are available for people with disabilities. Shes hoping to be able to use her experiences to help others. Shes looking forward to getting to know our members!

It Only Takes "Five"

Take five minutes to check out what's happening on the SD Network:

  • Join the Conversation: Deb posted an interesting discussion about person-centered planning and personalization. Shes wondering if these concepts are failing people within our long-term care systems. What do you think?
  • Share your ideas: We posted some of the ideas and resources shared during our last Coffee Break with Kat Savyannah of the hOur TimeBanks. We discussed the benefits of TimeBanks and how people can get involved.
  • Get Involved: The 2014 Self-Determination Conference is quickly approaching. Be sure to register today!
  • We need your help: Check out this announcement from Wisconsin Employment First about how your voice can be heard!

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Monthly Coffee Breaks will return in September. When should we hold Coffee Breaks? Answer ourOne-Minute Poll now!

30_blogs.pngNew Members

Stop by to welcomeour newest members.

Do you know someone who should join the SD Network? Spread the word and invite friends, families and other interested folks!

31_blogs.jpegUpcoming Events

Here's a sample ofupcoming eventslisted on the SD Network:

Post your eventon the SDS Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen aticwstacy@gmail.com.

32_blogs.jpg

The Self-Determination Network is powered by In Control Wisconsin and supported financially by ourmembersandSponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.


Did you know that your Family Care, IRIS or other long-term care services may be changing FOR THE BETTER- soon? Thats right! TheSurvival Coalition has new recommendationsregarding Implementation of theNew HCBS Regulations Issued by CMS in Non-Residential Settings,including Vocational Settings. You can view the recommendations by clickinghere.Watch for your opportunity to tell the Department of Health Services how to make changes that matter to YOU!

Stay tuned! Watch for a webinar on the new rule coming soon!

Register nowfor the 2014 Wisconsin Self-Determination Conference!

The2014 Self Determination Conferencewill be held November 10-12, 2014, at the Kalahari Resort in Wisconsin Dells. This will be the seventh year of the conference and the theme is, Mission Possible: Discovering the Potential in our Communities. We will explore life in our communities: what does it mean to belong, how does one get involved, and what can we contribute to our communities?

Click here for more information

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