News
This is an anonymous survey. We cannot identify who you are from your survey answers. Your answers will be combined with those from other parents. This will give us a summary so we can all better understand what is helpful to families in general. We will use this information in our work to improve the healthcare system.
This survey contains 18 questions and should take about ten minutes to complete. Please complete this survey by April 15, 2016
Thank you for taking the time to fill out the survey and sharing your ideas with us. If you have any questions or want more information about this survey, please contact Carolyn Allshouse at Carolyn@familyvoicesmn.org
Wallethub.com recently released a list of the best and worst cities for people with disabilities for last year. Multiple factors were considered for the rankings.
Find out which two Wisconsin cities made the list of the best cities!
A new bill is being proposed that would allow people who care for people with disabilities to receive a tax credit. The bill is aimed towards family members who care for loved ones. The credit would be meant to offset costs for caring for individuals with long-term care needs. Caregivers would have to meet certain qualifications to receive the credit.
Read full article here.
DISABLED WORLD: Toyota Working on Wearable Mobility Device for Blind & Visually Impaired
By SD Network, 2016-04-05
Toyota is working to develop a neat device for people who have visual impairments. This wearable device willl provide people with information about their surroundings that other devices are unable to. It will have cameras that detect surroundings and then communicate the user via speakers and vibration monitors. The user will also be able to interact with the device via voice recognition and buttons.
Click here to learn more and watch a video about the device.
Lawmakers continue to tweak ABLE Accounts (accounts that will allow people with disabilities to save up to $100,000 without jepordizing their Social Security and other government benefits). The changes would allow more flexibility to those using the accounts. Some of the proposed changes include:
- Allowing people with disabilities who are employed to allocate extra money to their ABLE accounts
- Expanding eligibility to include people with disabilities that onset by the age of 46 (current requirement is that conditions must exist before the age of 26)
- Allowing families to rollover money they've saved for a person with a disability in a 529 college savings plan to an ABLE account
Family Care/IRIS 2.0 Concept Paper Submitted to Joint Committee on Finance
By SD Network, 2016-04-04
The following information was released by the Wisconsin Dept. of Human Services (DHS) on March 31, 2016:
Click here to view the Family Care/IRIS 2.0 Concept Paper
As required by 2015 Act 55, earlier this afternoon the Department submitted the Family Care/IRIS 2.0 Concept Paper to the Joint Committee on Finance. Consistent with the current program, Family Care/IRIS 2.0 will continue to serve adults with physical disabilities, adults with developmental disabilities, and frail elders who meet financial and functional eligibility requirements.
To create this Concept Paper, the Department held 10 public hearing, met with councils, boards, and committees that advise DHS on its long-term care programs; and held additional meetings with a variety of stakeholders to collect input. We received testimony in person and in writing from more than 750 people.
Thank you to everyone who submitted feedback. We value your input and look forward to working with you as we work toward implementing Family Care/IRIS 2.0.
The Family Care/IRIS 2.0 plan outlined in the Concept Paper reflects the Department’s approach that remains centered on the fundamental principles of self-determination, empowerment, member-centeredness, quality, consumer choice, and fiscal stability.
Next Steps for Family Care/IRIS 2.0
Now that the Concept Paper has been submitted to Joint Committee on Finance, it will need to be reviewed and approved by the Legislature. After the Legislature approves the Concept Paper, the Department will begin developing the formal waiver and/or state plan authority documents to submit to federal Centers for Medicare & Medicaid Services (CMS). DHS will release these documents for public review and will conduct another formal public comment period prior to submission to CMS.
Do you have questions about the proposed long-term care program (Family Care/IRIS 2.0) being proposed by the Wisconsin Dept. of Health Services (DHS)? Check out their Frequently Asked Questions page.
The Wisconsin Youth Leadership Forum (YLF) is a week-long leadership training and career awareness program for high school students with disabilities held June 26- July 1, 2016 at Edgewood College in Madison, WI.
Costs of the program are covered by BPDD.
YLF is for high school students with a disability who are active in their school and/or community and would like to develop leadership and advocacy skills, explore career options, and start making valuable connections with others.
Please forward the application form and other information available at: http://www.wi-bpdd.org/projects/YouthLeadershipForum.cfm to high school students that may be interested.
Application Deadline: Monday, May 1, 2016
Please direct questions to John Shaw at – john1.shaw@wisconsin.gov or (608) 266-7707.
WI DHS implements new National Core Indicators
The Wisconsin Department of Health Services (DHS) is using a new system to get information on the quality of life of individuals with Intellectual and Developmental Disabilities participating in Wisconsin’s Long Term Care System (Family Care, Family Care Partnership, PACE, IRIS, and Legacy Waivers).
The new system is called the National Core Indicators (NCI). NCI uses written surveys to families/guardians, and face to face interviews with individual with disabilities to ask questions about the quality of the person’s life in areas such as: employment, community involvement, living situation, and community involvement.
DHS is beginning to implement NCI now.
You may be contacted to participate in a survey or interview. It’s your choice whether you participate or not, but we strongly encourage you to participate.
This is a very important opportunity to have your voice be heard and let DHS know how participating in LTC services is impacting the quality of your life.
If you have questions or would like more information, contact Michelle Osness, Wisconsin’s National Core Indicators Coordinator at MichelleM.Osness@dhs.wisconsin.gov .
See a sample letter here: http://www.wi-bpdd.org/docs/2016/2016-NCI-notice-of-sample-selection-letter.pdf
***We thank the Wisconsin Board for People with Developmental Disabilities for providing us with this information.
The Rehabilitation Research and Training Center (RRTC) at Virginia Commonwealth University (VCU) is conducting a study of adults with physical disabilities. We want to know about your barriers to employment as well as resources that you need to support your work / career goals. In addition, we are interested in knowing how you find information on employment services and supports. The target groups for the study are:
• Adults with cerebral palsy, spinal cord injury, multiple sclerosis, or other physical disabilities; and
• Young adults ages 18 to 65 with any type of physical disability.
• You may be employed or unemployed.
To be eligible to participate, you must be a U.S. citizen and be able to provide legal consent.
Participants will complete an online survey requiring approximately 20 minutes. One hundred participants will be randomly selected to receive a $25 gift card. However, there is no guarantee that everyone who completes the survey will be selected to receive the gift card.
If you are interested in participating, the VCU-RRTC needs your consent. You may do this by following the link below to read more about the study, review the survey questions, and give your consent.
http://vcurrtc.org/surveys/employment_w_pd/
If you have questions or need special accommodations to participate in the study, please contact:
Dr. Katherine Inge
VCU-RRTC
P.O. Box 842011
Richmond, Virginia 23284-011
kinge@vcu.edu
804-828-5956
TTY: (804) 828-2494
This research is sponsored by the National Institute on Disability, Independent Living, and Rehabilitation Research (#H133B130011) and has been approved by VCU’s Institutional Review Board.
