SD Network

Self-Determination Network News: January 2019

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By: SD Network
Posted in: Network News

96 Self-Determination Network News:

January 2019

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Disability Advocacy Day 2019

Registration is now open for Disability Advocacy Day 2019!  Join fellow advocates on Wednesday March 20th in Madison to let your voice be heard.  Disability Advocacy Day is designed to connect you with your legislators so you can talk about issues that matter to you. You are the expert in sharing how legislative policies affect people with disabilities in their everyday lives. The day starts with a briefing of issues you and your fellow constituents want to discuss with your legislators and after lunch the whole group heads to the capitol for their legislative meetings.  Registration closes March 8th.  Register today!      

128 Stacy’s Journal


"Whether it’s with health issues, relationship issues, financial issues, work issues, or a combination of things, most people face some kind of adversity during life. People deal with challenges in many different ways; some good, some bad. People’s true colors show when they’re faced with adversity."




In January's entry, Stacy opens up about some adversity she has faced over the past two months. How do you deal with adversity?


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Take five minutes to check out what's happening on the Self-Determination Network:

  • SCI Community Input Needed:  Check out the great opportunity Kurt posted about for people with spinal cord injuries to give input to influence research.
  • Adaptive Community Approach Program:  Kurt posted links about the Adaptive Community Approach Program.  Learn about what this awesome program offers for people with disabilities.
  • Youth Leadership Program: The Wisconsin Youth Leadership Forum (YLF) is a week-long leadership training and career awareness program for high school sophomores, juniors and seniors with disabilities.  Applications are due March 15th.
  • New ABLE Account Rules:  With a change taking effect this year, individuals with disabilities can save more money than ever before without losing out on Social Security, Medicaid and other government benefits.  Find out how much people can put in an account.
  • Advancing Person-Centered Practices and Systems: The Administration for Community Living and the Centers for Medicare & Medicaid Services recently announce the launch of the National Center on Advancing Person-Centered Practices and Systems. Read about what the center will provide.
  • Woe in Services:  According to a new report, more people are on waiting lists, fewer are competitively employed and access to services remains uneven.  Learn what causes such disparities.
  • Accommodating Water Park:  A water park has become an official certified autism center.  Find out what the park is doing to accommodate people with autism.
  • Family Caregiver Support Report:  The Administration for Community Living has released documents about family caregiving.  Read about study findings and statistics.
  • Survey Opportunity for People with Visual Impairments:  T-Mobile is  developing a new television service and has begun to implement accessibility features for the individuals with visual disabilities. They are looking for input from adults with visual disabilities.
  • Research Opportunity for Adults who Use Wheelchairs:  A nationally recognized rehabilitation facility is conducting a study on falls and fear of falling in people who use wheelchairs.  They're looking for people to help by taking a survey.
  • Parents of Adult Children Find Support from Each Other:  Many parents who have adult children with disabilities often worry about the future.  Parents in this situations get together monthly to brainstorm solutions.  Read about the group.
  • Government Shutdown Impact: People with disabilities felt the effects of the country's longest government shutdown ever.  Learn about how it impacted many people.
  • Push to Remove the 'R-Word': Two Wisconsin senators are working on legislation to remove the term "mental retardation" and all its derivatives from state code and replace it with the words "intellectual disability."  Read about why the senators are doing this.

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

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The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

 

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