SD Network

Category: Surveys

Are you a person self-directing your services, a family member or friend assisting someone to self-direct, or a direct care worker in a self-direction program?

If so, we want to hear from you! Please complete our survey by Friday, August 11th. This survey will take you about 10 minutes to complete. 

We are leading a new project sponsored by Elevance Health to improve worker recruitment and retention in self-direction programs.  The survey responses will inform a white paper on the impact of the workforce crisis on self-direction featuring practical insights and advice from those with lived experience.

We are hoping our survey will reach a wide audience. Please share this survey with others who self-direct, family members, and direct care workers in your network.

Thank you for your help!

Posted in: Surveys | 0 comments

The Wisconsin Department of Health Services (DHS) is renewing the Family Care and Family Care Partnership waivers. A waiver is a special set of rules that allows us to have Medicaid programs like Family Care. For Family Care, it includes the 1915(b) and 1915(c) waivers. With them, we can fund more services and supports to help Family Care and Family Care Partnership members stay in their homes and communities.

We must renew the waivers every five years. This is a chance for us to make Family Care and Family Care Partnership better between 2025 and 2030. We can improve policy, services, and other things that can make the programs better for members.

How can I get involved?


Take our survey! We want Family Care and Family Care Partnership members, families, caregivers, providers, managed care organizations, advocates, and other partners to share their thoughts.

We want to know how Family Care and Family Care Partnership can better serve our members. This is a chance to share your ideas about services, supports, and other areas of care. It should only take 10 minutes. It’s available in English, Hmong, and Spanish. Please submit your responses by August 1.

Take the survey

Posted in: Surveys | 0 comments

Family Caregiver Involvement | Hospital Discharge Survey:

GWAAR, in partnership with our grassroots caregivers, are conducting a survey to collect Wisconsin family caregiver experiences at the time of a loved one/care recipient’s hospital discharge. The intent is to learn about caregiver involvement at the time of discharge. The survey will take less than five minutes of your time to complete. Please complete it yourself if you are a family caregiver and please promote this survey on your social media, websites, within your caregiver support groups, and in newsletters using the QR code or link to the survey below.

For this survey, a “family caregiver” is defined as any relative, partner, friend, or neighbor who has a significant personal relationship with and provides a broad range of assistance for, an older person or an adult with a chronic or disabling condition. Responses to this survey will be combined with overall results to understand the hospital discharge process in urban cities, rural communities, and elsewhere throughout the state of Wisconsin. The data collected will be shared to promote advocacy efforts related to legislation, administrative rules, and healthcare systems and associations. Information collected will be kept anonymous.

Survey link: https://forms.microsoft.com/r/Jhw6C5KmBa

Posted in: Surveys | 0 comments

The Independent Living Council of Wisconsin is looking for public input from consumers, stakeholders, and community partners is needed to describe the challenges and barriers persons with disabilities face. Please take a few minutes to complete the Statewide Plan for Independent Living (SPIL) public input survey. Your input will help develop Wisconsin’s SPIL and assist the Independent Living Network addressing the needs of persons with disabilities.



 




 



If you have any issues accessing the survey, please contact Tyler Wilcox at ilcwcoordinator@il-wis.net.

Posted in: Surveys | 0 comments
In recognition of October being National Disability Employment Awareness Month, the Southwest ADA Center is conducting a study on the experiences of employed people with disabilities using service animals and other assistance animals at work. This study is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).

 

Are you a US resident (18+) with a disability who uses an assistance animal at your place of employment? We are interested in learning about your experiences through the following survey link:


 

If you have trouble or need assistance completing the survey including alternate formats, please contact Vinh Nguyen at vinhn@bcm.edu.


Please share this survey with members of your organization and others who may be interested in taking the survey.
Posted in: Surveys | 0 comments
The Southwest ADA Center at TIRR Memorial Hermann is conducting a study on the experiences of people with disabilities with the accessibility of their health care. This study is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).
 
Are you a US resident (18+) who has experiences with the health care system? We are interested in learning about your experiences through the following survey link:
If you have trouble or need assistance completing the survey including alternate formats, please contact Alexia Smalling at alexia.smalling@memorialhermann.org . Feel free to share the survey link among members of your organization and others who may be interested in sharing their experiences about healthcare access. 
Posted in: Surveys | 0 comments

The National Aging and Disability Transportation Center (NADTC) – a program of the Federal Transit Administration administered by Easterseals and USAging with guidance from ACL – wants to hear about challenges and promising practices in providing accessible transportation to older adults and people with disabilities. Survey responses will help influence the work NADTC does next year.
Take their brief survey by September 28 to share your thoughts.
Take the survey
Posted in: Surveys | 0 comments

The University of Kansas Institute for Health & Disability Policy Studies (funded by ACL's NIDILRR) is looking for adults with disabilities to complete the National Survey on Health and Disability (NSHD).

The NSHD is an annual, online survey about health, quality of life, access to health care services, and the COVID-19 pandemic, concerning people with disabilities or health conditions.
  • Adults 18 and over with any type of disability, chronic illness/disease, mental or physical health condition are encouraged to complete the survey.
  • The survey should take about 20 minutes to complete.
  • Responses are anonymous.

The NSHD especially needs individuals who identify as men to participate in the survey. This is a multi-year survey conducted since 2018 and previous respondents are encouraged to participate.

Participants may also complete the survey by phone. Participants will have a chance to win one of ten $100 gift cards. The survey closes September 2nd.

For more information, call 855/556-6328 (Voice/TTY) or email healthsurvey@ku.edu.



Posted in: Surveys | 0 comments

Are you a person with a disability, ages 18 and up, working for an employer in the United States? If so, the Southwest ADA Center would like to hear from you. Many employers today offer programs and activities designed to improve the health and wellness of their employees. We would like to learn about the wellness programs that your employer offers and your experiences with them. Participant information will be kept anonymous. For more information or to participate in this survey please contact us at 832-708-869 or email: Megan.Gillespie@memorialhermann.org to schedule a brief interview via Zoom.

Posted in: Surveys | 0 comments

The League of Women Voters is conducting a Voter Experience survey to hear from voters about their experience in the April 5th election. 
Please complete the survey and be sure to share any concerns about how the new restrictions on ballot return assistance and on drop boxes affected your voting rights.  If you were not able to vote April 5th because of these restrictions, be sure to complete the survey.  Survey results will be used to support the need for improvements in policy and accessibility. 

Click on the links to view the survey:   English Survey  or  Spanish Survey

Posted in: Surveys | 0 comments
   / 5