We want to hear from members about your experiences with the SD Network. Got questions about how something works? Suggestions for adding something or making something work a bit easier? Not sure why we set things up the way we have? Feel free to leave comments, suggestions, questions, etc. below.
We're glad you've joined the SD Network. There are a few things you need to know.
Questions? Contact the SD Network Manager.
We were so pleased to see so many of you at this year's Self-Determination Conference. There were a ton of great sessions and events this year. What was your favorite part? What were some things that you learned? Do you have a funny story from the conference? Did something really inspire you?
Lets keep the conversation going! Share your comments, questions, and ideas here.
As we all know, Wisconsins Long-Term Care (LTC) system is going through some major changes.In the 2015-2017 budget, Governor Walker and the legislature started a chain of events which will likely lead to major changes inhow people receive LTC support. Lots of informational links can be found on our Resource page.
While a lot of the specifics remain unclear, we encourage you to post your questions and thoughts about LTC in this discussion. We can't promise we'll have all the answers; however, others may have information that would lead to answers.
***A friendly reminder:We really encourage you to debate the facts and express your feelings regarding this issue. In respect for all individuals, we kindly ask that members refrain from posting anything that personally attacks any individual or reflects on partisan politics. We need to remain a non-partisan network. We reserve the right to remove any personal attack or political comment.
We had a great discussion about the State Budget and the future of Wisconsins Long-Term Care programs on the Coffee BreakWednesdaymorning! Special thanks to Lynn Breedlove, board president forInControlWisconsin,for joining us as our special guest again! We really appreciate it. We encourage you to take a look at our one-page summaryof the budget items affecting Long-Term Care. There were several points discussed in the chat. Some of them include:
Share your questions, as well as your resources, information, experiences, and ideas about the future of Wisconsins Long-Term Care programs in this discussion.
What a great discussion about the State Budget Proposal on the Coffee BreakTuesdaymorning! Special thanks to Lynn Breedlove, board president forInControlWisconsin,for joining us as our special guest! There were several points discussed. Some of them include:
The Joint Finance Committee hasbegunvoting on parts of the budget. Theyll likely get to Long-Term Care(LTC)sometime this month. It appears they dislike the budget proposal, but its unclearwhat they will do instead. The co-chairs of the committee, Senator Darling andRepresentativeNygrensaid that theymaysend LTCback tothe Wisconsin Dept. of Health Services (DHS)to rework it.
Aging and Disability Resource Centers (ADRCs)appear to be well-positioned tobe saved.Fiftycounties have formallyopposed the changes to the ADRCs.
The IRIS grassroots advocates have done a good jobadvocating. Its not for sure, buttheres a good chance that IRIS will stay a separate program.
Lynn pointed out that its now known which insurance companies want to take over Long-Term Care. They are United, Anthem, and Molina. None of them are based in Wisconsin.
Two educational briefings on Long-Term Care were held for legislators and staff. Bothwere well attended by all parties.Legislators and staff who knew very littleabout LTC learned a lot and asked a lot of good questions.
This budget proposal came as a surprise to all of us.We took Family Care and IRIS for granted and thought they were safe. Unfortunately, we didnt educate the new legislators about them until now. A lotmore peopleat the Capitolnowknow what IRIS is and understand its different than managed care. Personal stories are making people understandwhyIRIS is important.
DHS continues to say Long-Term Care is eating up the Medicaid budget, but this is not true. In fact, it has actually saved a lot of money.
Itsnot too late to contact members of the Joint Finance Committee and yourlocallegislators. Several of them are still unsure what to vote for.
Some resources mentioned in the Coffee Break include:
Wisconsin State Budget Briefing: Watcha webinar with John Shaw, BPDD, and Lisa Pugh, DRW, on how the 2015-2017 WI state budget impacts people with disabilities.
Wisconsin's Long-term Care Coalition: Resources regarding the long-term care system and what you can do about the proposed Wisconsin Budget.
Contact your state legislatorand share your story.
ContactLynn Breedlove
Share your questions, as well as your resources, information, experiences, and ideas about the budget proposal in this discussion.
What a great discussion about Self-Determination and the State Budget Proposal on the Coffee Break yesterday morning! Special thanks to Lynn Breedlove for joining us as our special guest! There were several points discussed. Some of them include:
Share your questions, as well as your resources, information, experiences, and ideas about the budget proposal in this discussion.
This is an interesting concept--having websites and apps where people can rate places based on accessibility. It's a fairly new concept, so there aren't many ratings or reviews yet. What do you think of the idea? What are the pros and cons?
Information courtesy of Huffington Post and AXSmap.com
AXSmap.com helps people with disabilities find accessible spots
For people with disabilities, finding accessible restaurants and stores can be frustrating. Despite review sites like Yelp, there is no way to know if a business is accessible until you go and check it out yourself. A new website, AXSmap.com, aims to change that.
AXSmap is an app and website that allows people with disabilities to rate and review the accessibility of local restaurants, hotels, and other businesses, and find accessible spots reviewed by others.
Once you sign up for an account, you can search for a location and review the accessibility of the entryway and bathroom. You can also mark if the location is quiet, spacious, and well-lit, and if there is accessible parking. There is even a space for extra comments and photos.
There are not many reviews of Indiana locations so far. However, if you think the website is useful, the best way to change that is to add one yourself, and ask a friend to do the same.
Check out AXSmap athttp://www.axsmap.com/.
Watch a video on how to use the site athttps://www.youtube.com/watch?v=DFswxhQj6UI. For questions and more information, contact AXSmap athttp://www.axsmap.com/contact/.
Other websites offering accessible business reviews includehttps://ableroad.com/andhttp://www.jjslist.com.
Information obtained from the Great Lakes ADA Center listserv
A very interesting piece written by Thomas C. Weiss fromDisabled World about 'Ableism'. This may be a very controversial topic, but it's a great discussion to have. This piece brings up many points. What are your thoughts on Ableism? What are some things we can do as a society to bring awareness to this issue?
Thoughts on Ableism in America Today
By Thomas C. Weiss
'Ableism,' involves the discrimination against, failure to include, or misguided perceptions of non-disabled persons in regards to those of us who do experience forms of disabilities whether the disabilities we experience are visible or not. Despite efforts such as the Americans with Disabilities Act, the signing of the Convention on the Rights of Persons with Disabilities (CRPD, still not ratified by the U.S. Government), and other efforts, ableism still certainly continues to exist in America. In fact ableism exists on so many levels in America this one article cannot possibly approach all of them.
As things are in America right now, ableism is potentially the very last thing on many American's minds. The same is true for the U.S. Government, which currently has the laziest and most unproductive Congress in decades. The people of America as a whole, whether they experience a form of disability or not, have to deal with the NSA, the TSA, the endless warmongering of the leadership and financial hardship on a daily basis, making issues such as inclusion, the CRPD, and even basic human rights apparent, 'non-issues,' to the leadership of this nation. One has to wonder when the chaos will end.
U.S. Government Policy
The United States Federal Government hires a great many people with disabilities; does this mean the U.S. Government is, 'inclusive?' I suggest it does not. Please examine the representatives of the U.S. Government, both in the House and the Senate, and ask yourself if you are equally represented as a person with disabilities. Ask yourself why there are not more openly disabled representatives in America, considering the fact that People with Disabilities are the largest minority population in this nation. Then ask yourself if there is a deeply-rooted ableism present within the consciousness of politics in America.
The world is reaching forratification of the CRPD, yet America's politicians continue to bicker over ratification of this vital Convention. While many nations around the world have ratified the CRPD, the U.S. Government has not. I can only view this as an ableistic perspective that continues to demean People with Disabilities around the world today. Congress is more interested in receiving a raise than it is in the rights of the nation's largest minority population.
The CRPD clearly states in Article 28 that we, as People with Disabilities, have a right to an adequate standard of living and social protection. Yet the U.S. Government has no issue whatsoever with continuing to allow the Social Security Administration to keep people who experience forms of disabilities on poverty level incomes. The government has no issue with continuing to watch as the unemployment level of people with disabilities remains the highest, as it always has been. Can I be blamed for viewing this as ableism on the parts of America's leadership? It seems to be government policy.
State Policy
States in America continually whine and pule over the costs related to Medicaid, yet are unwilling to change the ableistic perspectives that keep so many People with Disabilities living in poverty a plain example of ableism. While state leadership continues to attend parties where fancy foods are served; while this, 'leadership,' continues to use tax dollars to buy everything from the best clothing to snazzy vehicles people who experience forms of disabilities in states in America find ourselves unemployed, worried about Medicaid, living in poverty, as well as being forced to make a choice between the lesser of two evils when it comes time to vote.
I call this, 'ingrained ableism.' The ableism on the parts of state and other government leaders is so ingrained that changing it appears to be a very long road to travel. When you witness a state or other government leader speaking about disability, many times words such as, 'inspirational,' or other ableistic terminology such as, 'wheelchair-bound,' seems to appear repeatedly. The ableism is so ingrained that you will find state leadership mentioning disability issues only when they are thrust upon these, 'leaders,' to the point where the issues cannot be ignored.
Keeping People with Disabilities who live in the states of America impoverished appears to be the policy of states. The section 8 housing programs in America, programs that a great many people who experience forms of disabilities depend upon for example, are so hard to participate in because there simply are not enough homes or apartments funded by the program. What this means is that People with Disabilities living in states in America find ourselves having to group together just to find a place to live. Not only is this a clear violation of Article 28 of the CRPD, it screams of an ableistic perspective among the leadership within states in America. Yet heaven forbid the Governor of a state in America go without a new suit, or a limousine to travel in.
Perhaps the government leadership in states should be placed on, 'programs,' that are underfunded, under-supported and neglected. It might help them to understand just how deeply-rooted their ableistic perspectives truly are. Ask yourself if you have ever been aware of a state governor with a form of disability. Ask yourself if the leadership in your state is reflective of the numbers of People with Disabilities living in your state. Then ask yourself if this is prejudicial, discriminatory, or lacks inclusion.
Local Government Policy
The recent killing of a young man by police, a young man who was unarmed, finds America examining just why the police departments of this nation are equipped as if they are going to fight a war. While this young man from Ferguson may or may not have had a form of disability (I simply do not know, the Ferguson police didn't either), one thing is abundantly clear. The actions of the Ferguson police loudly proclaimed that they just didn't give a damn whether anyone in that community did have a disability or not. The police tossed tear gas in people's yards; they shot rubber bullets at anyone who was not dressed like a combat-ready Marine.
In other words the Ferguson police assumed that everyone in Ferguson was able-bodied. They assumed that people were not disabled in any way and could withstand the blaring 140+ decibels produced by their sound cannon. They assumed, with an incredibly ableistic perspective, that no one in Ferguson experienced a form of disability and could withstand their combat techniques of hatred. The other thought that crosses my mind is that the police simply didn't care.
Cities in America have police departments with serious military equipment from war. With no regard for the forms of disabilities people in America do experience, these police departments have no issue with treating us as if we are, 'animals.' Again this is ableism at its worst. The police will not hesitate to tear gas, sound cannon, bean bag shoot, or even kill people with disabilities and they do not really care if you as a person with disabilities do have a disability. To the police you are an, 'animal,' you are a, 'terrorist.'
Local government in America also has no issue with discriminating against People with Disabilities when it comes to access to buildings, resources, transportation, and a great many other issues we care about. It is the year 2014 and the city I live in is still putting in curb cuts. We are perceived as being second-class citizens, simply because we experience forms of disabilities.
Even from a visible disabilities perspective, examine the populations of those who have jobs in your city and ask yourself if the proportions are correct. Ask yourself if the working population is representative of those who live in your city, then ask yourself why there are so many people who experience forms of disabilities who remain long-term unemployed. Clear prejudice and discrimination continues to exist and comprises an ableism that is unacceptable in what is supposed to be a civil and inclusive society.
Interactions with Individuals who are Not Disabled
The People of America as a whole are becoming more aware of the fact that disability can affect anyone at any time. People in this nation are starting to understand that even though we experience forms of disabilities, we are indeed people first. Yet for too many people in America, a very deep-seated base of hatred and prejudice persists.
Personally, I have encountered a great many people without forms of disabilities whose hearts are definitely in the right place. Unfortunately, subjects such as Disability History, Disability Culture and Disability Awareness are not taught in public schools plain ableism if I have ever witnessed it. Even with their hearts in the right place, many nondisabled persons simply do not have the education they need to understand those of us who experience forms of disabilities, whether those disabilities are visible or not.
I hesitate to present this example of prejudice and hate to you, but it demonstrates just how deeply-seated these things are in some of the minds of people in America. I was with a person just a couple of days ago, attempting to remove a tree stump from my own back yard. He is an overall good person, he was raised during a time in America where prejudice and hate were the norm. He was cutting at the tree stump and singing:
Daniel Boone was a man,
He was a big, strong man.
But the bear was bigger,
So he ran like a (N-word),
Up a tree.
Despite the horrifying racial implications of what this guy was singing, there are some clear ableistic ones as well. Not only was Daniel Boone a strong man he was a big, strong man. Daniel Boone, 'ran,' up a tree. Daniel Boone was apparently a good ole' fashioned nondisabled white male.
In the United States of America, the leadership whether it is on local, state, or federal levels, has no trouble with pointing fingers at say, China or North Korea, and complaining about human rights. The U.S. Government has no trouble with suggesting to the rest of the world that it is somehow better in relation to People with Disabilities because of the Americans with Disabilities Act. The U.S. Government takes great pride in the fact that it has signed the CRPD, yet has not ratified it. I question whether the U.S. Government has the right to point fingers at other nations.
Where the deeply-rooted ableism in America is concerned, our greatest hope may very well be through education. Many people without disabilities at the moment grew up in this nation hearing little prejudicial ditties such as the one above. Many nondisabled persons in America have no concept of what Disability History, Culture or Disability Studies are. Plainly, if ableism in America is ever to change, these subjects must be taught in public schools. Ignorance drives ableism.
Congressman Who Voted Against Minimum Wage Hike Complains He Hasnt Gotten A Raise Since 2008
http://thinkprogress.org/election/2014/08/13/3470616/lee-terry-salary/
Want an armored personnel carrier for your police force?
http://www.washingtonpost.com/blogs/wonkblog/wp/2014/08/14/want-an-armored-personnel-carrier-for-your-police-force-just-fill-out-this-one-page-form/
Those War-Ready Cops in Ferguson Are 9/11's Awful
http://www.newrepublic.com/article/119081/militarized-police-response-michael-brown-protests-911-legacy
Disabled World(www.disabled-world.com) provides a large range of worldwide health and disability information.
Copyright 2014 - Disabled World - www.disabled-world.com
PR Newswire
WASHINGTON, July 21, 2014
WASHINGTON,July 21, 2014/PRNewswire/ --Sara Wolff, a board member and self-advocate from the National Down Syndrome Society (NDSS), will testify before the Subcommittee on Taxation and IRS Oversight of the US Senate Committee on Finance on the Achieving a Better Life Experience (ABLE) Act (S. 313/H.R. 647). The hearing, "Saving for an Uncertain Future: How the ABLE Act can Help People with Disabilities and their Families", will take place onWednesday, July 23, 2014, at10 a.m., in 215 Dirksen Senate Office Building.
Wolff is a 31-year-old young woman with Down syndrome fromMoscow, Pennsylvania, and has been a board member of NDSS since 2007. Earlier this year, Wolff authored achange.org petitioncalling on members of Congress to pass the ABLE Act in the 113thCongress. Wolff's petition has earned the support of over 250,000 people around the country.
In addition to Wolff, the Congressional panel will also includeCongresswoman Cathy McMorris Rodgers, Member of Congress (R-Washington), U.S. House of Representatives,Spokane, Washingtonand mother to Cole, who happens to have Down syndrome; Robert D'Amelio, Parent and Advocate, Autism Speaks,Charlotte, North Carolina; andChase Alston Phillips, Financial Advisor,Alexandria, Virginia.
"Just because I have Down syndrome, that shouldn't hold me back from achieving my full potential in life,"Sara Wolffsaid. "I can work a full-time job, be a productive member of society, and pay taxes but because of these outdated laws placed on individuals with disabilities, we hold people like me back in life. It's time that Congress act and pass the ABLE Act."
The ABLE Act would amend Section 529 of the IRS Code of 1986 to create tax-free savings accounts for individuals with disabilities. The bill aims to ease financial strains faced by individuals with disabilities by making tax-free savings accounts available to cover qualified expenses such as education, housing and transportation.
"As the mom of a son with Down syndrome, I see firsthand how federal policies limit -- not expand -- opportunities for those with disabilities. And the ABLE Act will change that. It will make sure that Cole -- and the millions like him who have special needs -- will be able to save for their futures and reach their full potential. I am proud to stand beside my colleagues in Congress and those in the disability community as we advance this crucial legislation," said CongresswomanCathy McMorris Rodgers(R-Washington), an ABLE Act Champion.
The ABLE Act is championed by SenatorsBob Casey(D-Pennsylvania) andRichard Burr(R-North Carolina) andMcMorris Rodgers'colleagues, RepresentativesAnder Crenshaw(R-Florida),Pete Sessions(R-Texas), andChris Van Hollen(D-Maryland).
"There is no other bill in the U.S. Congress that has as much bipartisan, bicameral support as the ABLE Act. We have 74 U.S. Senators, including LeadersHarry Reid(D-Nevada) andMitch McConnell(R-Kentucky), and 365 U.S. Representatives that are cosponsoring this bill," NDSS Vice President of Advocacy and Affiliate RelationsSara Hart Weirsaid. "Passing this landmark legislation will go a long way to help people with Down syndrome and other disabilities realize and achieve their own hopes, dreams and aspirations."
Source: http://www.digitaljournal.com/pr/2067555#ixzz389xPnpcj
