News
This is a very interesting but disheartening article inDisability Scoopwritten by Michelle Diament about how federal statistics indicate that people with disabilities are far more likely to be victims of violent crime. The statistics and facts she gives are very interesting. It certainly makes one think.
Crime Odds Double For Those With Disabilities
By Michelle Diament
People with disabilities remain far more likely to be victims of violent crime, new federal statistics indicate.
There were 1.3 million nonfatal violent crimes committed against persons with disabilities in 2013, according to data released this month from the U.S. Department of Justices Bureau of Justice Statistics.
Overall, people with disabilities were more than twice as likely to experience violent crime as compared to the general population, the agency said.
Within this population, those with cognitive disabilities were the most likely to report being victims ofviolent crime and about half of victims had multiple conditions. The vast majority of crimes cited were related to simple assault followed by aggravated assault, robbery and rape or sexual assault.
The findings are based on data from the National Crime Victimization Survey, an annual survey of about 90,000 households asking about their experiences with crime whether reported or unreported to authorities.
Just under half of incidents involving people with disabilities were reported to police, the Bureau of Justice Statistics found. In other cases, those surveyed said they didnt seek law enforcement assistance because they dealt with the matter another way, believed the incident was not significant enough or thought police would not help, among other reasons.
Nearly a quarter of those with disabilities who were victimized indicated that they believed they were targeted due to their disability.
Source: http://www.disabilityscoop.com/2015/05/26/crime-odds-double/20329/
WBAY.COM: How far have we come? The Americans with Disabilities Act 25 years later
By SD Network, 2015-06-01
An interesting story on wbay.com written by Andrea Hay about the 25th anniversary of the Americans with Disabilities Act (ADA). She explains some of the effects the ADA has had including workplace discrimination laws. She tells the story of one Wisconsin man who has immensely benefited from the ADA.
How far have we come? The Americans with Disabilities Act 25 years later
By Andrea Hay
From accessible buildings with ramps and wheelchair lifts to automatic doors and elevator keypads, many experience the effects of the Americans with Disabilities Act every day without even realizing it. But to some people with disabilities, the past 25 years have made a world of difference.
Tom Deidrich lost his arm in a farming accident at age 18, and later, a car accident broke his neck and left him paralyzed. He says living as a quadriplegic in the 1980s meant rarely leaving the house, and finding work nearly impossible.
I applied for a job in Green Bay doing interior sales work, got called in for an appointment to meet with the manager, told him who I was, and he looked at me and said you cant work here, said Deidric.
That cant happen now, and thats important. I dont think people realize how blatant the discrimination was, he said.
Deidrich says his life changed when the ADA declared equal access to everything public in 1990. Movie theaters, grocery stores and shopping centers put in ramps, elevators, and create wider doorwaysas well as other accessibility requirements on public accommodations. The upgrades imposed on businesses made the act controversial.
Workplace discrimination of people with disabilities became illegal. Diedrich gained employement at Options for Independent Living, and even helped the Green Bay Packers renovate for people with disabilities. They really did an excellent job, he said, adding they went beyond the requirements.
A lot of positive things have happened, but were not done yet, said Deiedrich. Transportation is a big issue. While weve got very good transportation services here in the metropolitan Green Bay area, what about people in the country who have issues and cant drive?
He says his mission is to end discrimination permanently in business and home life alike.
[People with disabilities] want to be your next door neighbor. They want to be able to work and pay taxes just like everybody else, he said.
A MONUMENTAL TIME FOR CIVIL RIGHTS
Two years prior to the passing of the America ns with Disabilities Act, Eunice Kennedy Shriver won her uphill battle to gain official approval to use the name Olympics in the Special Olympics.
Its the only other thing that can be listed as having Olympics in it because the actual Olympics are so well known, explained Matt Harper, Special Olympics Wisconsin Regional Director.
So she had to fight through and kind of work through a lot of controversy and use her family name and do whatever it took to get Special Olympics recognized in the disability community and make sure that everybody knew what Special Olympics was trying to accomplish, he said.
The Special Olympics has grown from a small event just a few hundred athletes in in Soldier Field to millions of athletes all over the world, with the International Torch Run Conference hosting thousands of attendees. This years torch run will be held in the Bahamas, and hundreds of law enforcement officers will participate to raise money for Special Olympics.
Source: http://wbay.com/2015/05/24/how-far-have-we-come-the-americans-with-disabilities-act-25-years-later/
Self-Determination Network News:May2015
Last Chance toRegisterfortheAging Empowerment Conference
TODAYis the last day to registerfor the Living a Self-Determined Life: A Conference on Empowerment for Older Adults. Join InControlWisconsin and other sponsors on June 1stfor aconference exploring self-determination and empowerment in aging at the Glacier Canyon Lodge Conference Center at the Wilderness Resort in Wisconsin Dells. This statewide event will examine new approaches to providing support to older adults that encourage autonomy and choice.
The keynote address entitled, Self-Determination: Past, Present, & Future will be given by Dr. KevinManhoney.Dr. Kevin Mahoney, Professor of Social Work at Boston College and Founding Director of the National Resource Center for Participant-Directed Services, will share a national perspective on the expansion of self-determination in long-term care. To prepare for the future, we need to understand the past and achievements that bring us here today. What can we learn from the evidence of success that supports this model of service delivery as we look toward the future? This keynote will help us understand the challenges and opportunities we may face in continuing to advance self-determination.
See this brochuremore information or register here. The registration deadline is this TODAY, May 22nd!
Budget Proposal Update
Last week, members of the Joint Finance Committee made an announcement about proposed long-term care changes in the state budget.They announcedthat they are pursuing limited reforms with strong legislative oversight. Legislators proposed giving the Department of Health Services authority to work with the Federal Government to make changes toFamilyCarewith some key requirements.We havelinksto the full press releaseas well as statements from disability organizations in response to iton ourLearn about the Budget page. While many feel this is a big step in the right direction, questions and concerns about the future of the IRIS programand Aging and Disability Resource Centers (ADRCs)remain. Well continue to keep ourBudget pageas up to date as possible as events unfold.
Earlier in the month, we had another great Coffee Breakdiscussionwith Lynn Breedlove about the proposed changes. We still encourage you totake actionand voice your concerns!
The Results areIn!
In this months one-minute poll, we asked people which programs they use to self-direct (or to help someone else use to self-direct). Over 57% of people say they use IRIS. Roughly 27% of people use Family Care, and about 15% of people either use other programs or dont use any programs to self-direct.Now, we want to know what you think of the Joint Finance Committee's announcement. Take ourone-minute pollnow!
It Only Takes "Five"
Take five minutes to check out what's happening on the Self-DeterminationNetwork:
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The ADA25 and Faith Initiative: The ADA Wisconsin Partnership posted a neat resource abouta campaigntoencourage faith communities and organizations to sponsor and join in celebrations and activities related to the 25thanniversary of the Americans with Disabilities Act (ADA).
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New Rules for Medicaid Managed Care: This is avery interesting article about upcoming changes expected in the managed care system.
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Transportation Hurdles: A great article about the need for better accessible transportation.
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Self-Determination ConferenceCall for Proposals:Proposals are now being accepted for the 2015 Self-Determination Conference. Proposals due June 1st.
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Call for Exhibitors: Exhibitors are wanted for the 2015 Self-Determination Conference. Applications are due July 1st.
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Concerns about Online Social Security Services: An interesting article about concerns over social security moving more services online.
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New Disability Liaison: A great story about the new Disability Liaison at the White House.
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Transition Conference Call for Proposals:Proposals are now being accepted for the 13th Annual Wisconsin Transition Conference.
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Mental Health Advisory Council: The Disability Rights Wisconsin Mental Health Advisory Councilis seeking new members. Applications are due June 19th.
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Post news or start a discussion: It's easy to do and a great way to share information and network with others!
Stacys Journal
This month Stacy shares some of her experiences and thoughts on trying tonavigate through the system. We encourage you to ask her questions and/or share your experiences as well.
New Members
Stop by to welcomeournewest members
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Hes a veryoutgoing personwho wants to get to know others and share ideas.
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This person is asupervisorat Lutheran Social Services.
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Shes theProgram Directorfor Reach, Inc.
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Shes anOutreach Specialistfor the Promise grant and works with the BOND project.
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Thismotheris worried about IRIS.
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Thisparentis trying to understand the adult system.
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Thisparentis trying to keep up to date with the budget proposal.
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She wants to learn more aboutadvocacy.
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She has beenworking with people with disabilitiesfor over 15 years.
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Thiscaregiverwants to make her own decisions.
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This personoperatesan adult home and is opposed to the budget changes.
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Thismotheris interested in learning how to help people become more self-directed.
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She works for The Womens Community and islooking for informationthat might help her clients.
Do you know someone who should join the Self-DeterminationNetwork? Spread the word and invite friends, families and other interested folks!
Upcoming Events
Here's a sample ofupcoming eventslisted on the Self-DeterminationNetwork:
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Living a Self-Determined Life Conference: June 1stto 2nd, Wilderness Resort, Wisconsin Dells WI
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ADA Free Pontoon Boat Rides on Madison lakes: June 14thto August 16th,TenneyPark, Madison WI
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ADA Legacy Bus Tour: June 25th, 11am to 4pm,Overture Center for the Arts, Madison WI
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State-wide Institute on Best Practices in Inclusive Education 2015:July 27thto 29th, Westwood Conference Center, Wausau WI
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3rd Annual Disability Pride Festival: July 25th, 12pm to 5pm,BrittinghamPark, Madison WI
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Self-Determination Conference: November 9thto 11th, Kalahari Resort, Wisconsin Dells WI
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Wisconsin Transition Conference: February 18th to 19th,Kalahari Resort, Wisconsin Dells WI
Post your eventon the Self-DeterminationNetwork and it can be included in future Network News emails to members! Questions? Suggestions? ContactStacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsinand supported financially by ourmembersandSponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
*DRW Mental Health Advisory Council Seeks New Members*
*The PAIMI (mental health) Advisory Council of Disability Rights Wisconsin seeksnew members who want to advance positive change in working to protect andadvocate for the rights of Wisconsin residents with mental health diagnoses.*
The Council has openings for the following positions:
Parent of a minor child or youth who has received or is receiving mental healthservices
Person who has received or is receiving mental health services or the familymember of a person who has received or is receiving mental health services
Current Council members are from La Crosse, Milwaukee, Menominee, and RacineCounties -we are especially interested in candidates from counties *not*currently represented.
*To apply, please complete and submit thisapplicationbyJune 19th*.
*_BACKGROUND ON THE PAIMI ADVISORY COUNCIL_*
Disability Rights Wisconsin is Wisconsins Protection and Advocacy agency, partof a nationwide network of disability rights agencies mandated by Congress toprovide advocacy services and legal representation on behalf of all persons withdisabilities. Since 1986, DRW and other Protection and Advocacy agencies haveworked through the PAIMI program (Protection and Advocacy for Individuals withMental Illness) to protect the human and civil rights of children and adultswith serious mental health conditions. This work is supported by a PAIMIAdvisory Council.
The PAIMI Advisory Council helps staff and board of directors of DRW setpriorities for the PAIMI program and advises the board on policies and issuesthat affect people with mental illness. The Council also serves as a liaison tothe various communities its members represent.
*Who Can Serve on the PAIMI Advisory Council?*
The Council is committed to maintaining a strong consumer voice, and requiresthat at least 50% of its members be people with the lived experience of mentalillness, who are receiving or have received mental health services. The Councilmust also include the parent of a minor child or youth who has received or isreceiving mental health services. In addition, the Council must include anattorney; a mental health professional; a provider of mental health services;and a member of the general public who is knowledgeable about mental illness,the advocacy needs of persons with mental illness, and has demonstrated asubstantial commitment to improving mental health services.**
*What Are Council Member Expectations?*
The PAIMI Advisory Council meets at least three times per year, generally on aFridayafternoon prior to a DRW Board meeting. Members may also meetperiodically to fulfill committee assignments. Council terms are for two yearsand members may be re-appointed for a second term. Council bylaws require us torecruit members from each region of the state so that the Council can have astatewide voice, and to have membership that reflects the racial and ethniccomposition of the state. Travel, meals, hotel and other meeting expenses arereimbursed for Council members.
*Barbara Beckert, Milwaukee Office Director*
*DISABILITY RIGHTS WISCONSIN*
6737 W. Washington St., Suite 3230
Milwaukee, WI 53214
414-773-4646 Ext 15Voice
414-773-4647Fax
barbara.beckert@drwi.org
Are youInterested inExhibitingat the 2015 Self-Determination Conference?
Exhibitor requests are now being accepted!
Exhibit tables will be available onTuesday, Nov. 10 and Wednesday, Nov. 11, 2015. Space is limited and only applications from exhibitors that directly support self-determination andself-direction will be accepted. All applications will be reviewed by a committee and selected based on interest, needs,and mission of the conference.
Persons with a disability operating their own businessareencouraged to apply!
Last year conference attendees spentthousandsof dollars on art, crafts, jewelry and other products made by people with disabilities.
New this Year! Meet us at the Fair!
We are seeking vendors to help us with our Self-Determination Kick-off Fair (In ALL FAIRness). Set in a State Fair or Carnival atmosphere, this interactive evening will feature games, food, and fun all focused on learning more about disability rights, advocacy, and the ADA. Organizations can set up a booth at the fair. There is no fee but booths will go through an approval process.
Please complete theapplication formand submit to:
Jenny Neugart atJennifer.neugart@wisconsin.govor mail to:
BPDD, 101 E. Wilson St., Room 219, Madison, WI 53703.
All proposals are due by 12 pm onJuly 1st.
Watch for more information on theWI-BPPD website.
Join us inMoving Self-Determination Forward!
#SDMovingForward
Lets find ways to move forward together.
Tosubmitaproposalto present:
- Go towww.EdEvents.organd click on theWisconsin Transition Conference.
- On the right side of theWisconsin Transition Conference home page, you will seeSubmitaProposal. Click on that link to access your account.
- If you don't already have an account, you will need to create one. If you do have an account just type in your email and password to access theproposalsubmissionform. The system recognizes you by your unique email address and password combination, so be sure to use the same email address whenever you log on to EdEvents.
- Complete the form and clickSubmitProposal.
Presenters will be notified byOctober 23, 2015.
Please pass this request on to those who may be interested!!
If you have any questions, please contactinfo@EdEvents.org
Opportunity to Ask that the State's Budget Include Funding for School Districts that Secure Employment for Students with Disabilities
By SD Network, 2015-05-15
One Last Opportunity to Ask that the State's Budget Include Funding for School Districts that Secure Employment for Students with Disabilities
What You Can Say to JFC Members:
- Representative Rob Brooks budget motion:Rep. Brooks Better Bottom Line Initiative Press Release
- More information on how toCreate a Better Bottom Line for Students with Disabilities.
Contact Joint Finance Budget Committee Legislators:
Wisconsin Legislature
FOR IMMEDIATE RELEASEMay 14, 2015
Rep. Dean Knudson, Member, Joint Finance Committee(608) 266-1526
Senator Leah Vukmir, Member, Joint Finance Committee(608) 266-2512
Rep. John Nygren, Co-Chair, Joint Finance Committee(608) 266-2343
Senator Alberta Darling, Co-Chair, Joint Finance Committee(608) 266-5830
JFC REPUBLICANS PROTECT LONG TERM CARE
Remove Governors Proposed Changes, Preserve Self-Directed Care
MADISONOn Thursday, Republican leaders on the Joint Finance Committee (JFC) announced the rejection of Governor Walkers proposed long term care changes, while pursuing limited reforms with strong legislative oversight. Rep. Dean Knudson (R-Hudson) and Sen. Leah Vukmir (R-Wauwatosa) unveiled the changes alongside JFC Co-chairs Rep. John Nygren (R-Marinette) and Sen. Alberta Darling (R-River Hills).
In removing the Governors changes to FamilyCare and IRIS, the legislators proposed giving the Department of Health Services (DHS) limited authority to negotiate with the Federal Government on potential changes to FamilyCare to integrate long term and medical care, with the following requirements:
Require public and stakeholder input before any changes are made.
Require self-directed care with budget authority, to be defined in statute.
Require a regional model with multiple Integrated Health Agencies (IHA) per region.
Require an independent actuarial study to set rates.
Require the acceptance of any willing provider for a multi-year transition.
Preserve ADRC services.
Require final approval of any waiver application by the Joint Finance Committee before submission to the Federal Government.
This plan requires public input, includes a self-directed option, and gives patients choice between competing providers. Integration of care provides better care for customers and doctors, as well as a better value for taxpayers.
Go to the Wheeler Report (www.thewheelerreport.com
<http://www.thewheelerreport.com>
and see10:53 AMannouncement form Vukmir,Knudsen, Nygren and Darling that JFC has taken the governor's LTC proposalout of the budget.
A great article inDisability Scoopwritten by Michelle Diament about how the White House hired a disability liaison to address the needs of the disability community. The new liaison has lots of experience advocating for people with disabilities.
New Disability Liaison On Board At White House
By Michelle Diament
There is a new staffer at the White House tasked with addressing the needs of the disability community.
Maria Town took over this week as an associate director in the White Houses Office of Public Engagement. In the post, she will focus on incorporating the needs of people with disabilities in Obama administration activities.
The new hire comes just over a month after Taryn Mackenzie Williams left the role. Williamswasin the position temporarily and has since returned to the U.S. Department of Labor where she was stationed previously.
Town, who has cerebral palsy, is a full-time, permanent hire, White House officials said.
Before joining the presidents staff, Town worked as an adviser in the Labor Departments Office of Disability Employment Policy. In that role, she focused on improving employment among youth and young adults with disabilities.
Marias track record on bolstering youth with disabilities as they transition into the workforce and her demonstrated skill crafting career development opportunities in classrooms, fostering leadership for young people with disabilities and building opportunities for inclusive volunteerism will serve the existing efforts of the White House on behalf of Americans with disabilities well, said Rebecca Cokley, executive director of the National Council on Disability, a federal agency that advises the president on disability issues.
Source:http://www.disabilityscoop.com/2015/05/06/new-disability-liaison/20272/
I turn 30 next week. I cant help but take a few moments to reflect on my 20s. To say a lot has happened in this decade of my life would be a huge understatement. I graduated from UW-Whitewater, moved into my own apartment, and landed a job just to name a few highlights. For most 30 year olds, milestones such as those things are often taken for granted, but for people with significant limitations, like myself, they become much bigger accomplishments we learn to cherish. With that said, this decade has also brought many challenges and obstacles for me.
Until age 26, besides having Cerebral Palsy, I was a relatively healthy lady. I saw my primary doctor for a physical annually, but that was pretty much the extent of my medical appointments. When I hit 26, it was like a switch flipped in my body. I need to mention thiswhen I moved back in with my parents after graduating college, I continued to receive physical therapy once per week. At the time, since I was 25, I was still on my parents insurance. After a few months of receiving therapy in Fond du Lac, the insurance companies decided my treatments were preventative instead of rehabilitative. In other words, in their eyes therapy wasnt going to help me get better anymore, and therefore, they stopped paying. We checked into all the options, but, in the end, I had to stop therapy. Up until that point, I had had physical therapy at least once per week since I was eight months old. Although, there is no way to prove it, I feel as if stopping therapy caused some of my medical issues.
When I turned 26, I switched to being on straight Medicaid. Because of my disability, I had always qualified for Medicaid, but since I was always covered by my parents insurance, Medicaid had been like the last resort. Now, its my primary and only insurance. Before I switched over, I was a little nervous because I had heard many nightmare stories from friends who were on the so called system. Little did I know how thankful Id be to have that coverage just a short time later.
In summer 2011, it all started when I somehow broke my wrist. I went to the doctor and while there she referred me to a pain doctor because my muscle tone had gotten pretty bad. To make a long story short, after that appointment, while on vacation in Florida, I ended up in the hospital with an infection. It was thought to be an one-time thing, but I was back in the ER days after we returned home with the same symptoms. I was referred to a gastroenterologist and had tests done. The problem was thought to be found and I was put on medication to fix it. While all this was going on, I also had a mysterious rash all over my body. After a few trips to urgent care and trying different medications, I was referred to a dermatologist. Eventually, with medication, thankfully the rash did clear up. I finally saw the pain doctor after the holidays; she referred me to a neurologist in Neenah to be evaluated for a Baclofen pump (its a surgically inserted pump that releases medicine directly into the spinal fluid to relax the muscles). I saw him that March, and I had a test spinal tap done in April (that too ended up being a fiasco as I got spinal headaches as a result of it and needed a blood patch). It was decided a Baclofen pump would benefit me. I had the surgery in July 2012 and it was very successful; it helped me so much. I thought I was finally back to being healthy, but just a mere three weeks later, I was back in the ER with excruciating stomach pains. I ended up having emergency surgery which we later found out was literally life-saving. I spent 11 days in the hospital. Since then, Ive been admitted for more tests and had another emergency surgery related to it. Ive had very minimum copays, but Medicaid has paid literally hundreds of thousands of dollars in medical bills for me without a fight. Knock on wood, Ive been pretty healthy for over a year now, but, needless to say, Im very thankful to have coverage!
Im just now beginning the process of getting a new power wheelchair. This will be my first one through Medicaid. I was very fortunate to have had my parents insurance pay for all my chairs in the past. I didnt know how the process worked, so I asked my friends on Facebook. Basically, I got varying answers. My mom has a call into the wheelchair place to setup an eval and get the process started. Ive been warned it may take awhile, so Im prepared to wait.
Learning how the long-term care and healthcare system works is crucial for people with disabilities. Im still learning the ropes. Ive learned that its very important to ask questions and advocate for whats best for yourself.
In closing, I hope this next decade will be better medically. I cant even put into words how much I learned about life in my 20s. I learned just how important self-advocacy really is. I have no choice but to keep advocating for not only myself but for all people with all people with disabilities. Its the only way were going to be able to get the appropriate support we need in order to lead successful lives!
Heres to the next 30 years!
The views expressed here are strictly those of the author and do not necessarily reflect those of InControl Wisconsin, the Network or any of our sponsors.
