News
ADMINISTRATION FOR COMMUNITY LIVING: Center for People with I/DD and Mental Health Conditions Seeks Steering Committee
By SD Network, 2023-02-23
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Through a cooperative agreement with the National Association of State Directors of Developmental Disabilities Services (NASDDDS), ACL has launched a new center to improve support for people with intellectual and/or developmental disabilities (I/DD) who have mental health conditions.
This center will focus on capacity building by supporting state agencies with policy development, service design, and service coordination resources. Guided by people with lived experience, the center also will provide information, training, and peer-to-peer learning for people with I/DD who have mental health conditions, their families, and the professionals who work with them. The center is currently recruiting for its steering committee, which will make important recommendations on how the center should move forward. The steering committee of 12 people will meet 4 times per year. Steering committee members and, if needed, their support staff will be paid to participate in this project. A recruitment explainer video by NASDDDS partner Green Mountain Self-Advocates is posted on the NASDDDS YouTube channel. The three-minute video includes open captions and American Sign Language interpretation. If you are interested in joining the committee, email snonnemacher@nasddds.org, call 570-460-3964, or fill out the interest form by March 17, 2023. |
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ADMINISTRATION FOR COMMUNITY LIVING: Call for Promising Practices: Supporting Adults with I/DD and Family Caregivers
By SD Network, 2023-02-23
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Brandeis University, in partnership with the National Association of Councils on Developmental Disabilities (NACDD), is gathering information to identify promising practices and policies that support adults with intellectual and developmental disabilities (I/DD) and aging family caregivers. The number of adults with I/DD living with aging caregivers is significantly increasing. The majority of families are unknown by the formal service system. There is a need for greater communication and collaboration between aging and disabilities systems to support these families. They are interested in successful practices at local, state, and national levels such as:
Brandeis and NACDD will share this information with aging and disability advocates across the country. This project is supporting a community at practice of state teams that are bridging aging and disability. It will help inform their work and future work in other states.
Please help with this information gathering by taking the survey linked below. Complete the survey by March 1, 2023. Contact joecaldwell@brandeis.edu for more information. |
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WISCONSIN DEPARTMENT OF HEALTH SERVICES: EVV 101: Helpful Tools to Learn More
By SD Network, 2023-02-23
Electronic visit verification (EVV) is required by federal law for personal care and applicable supportive home care services. All states must collect visit information using an EVV system or they won’t get their full federal funding for Medicaid.
How does EVV work?
When workers arrive to provide care, they should check in using their employer’s EVV system. When workers finish providing care, they should check out with the EVV system. The system does not track their location during the visit.
Our website is the best place to learn about EVV. Here are four places to start:
- Wisconsin EVV: a video that explains what EVV is
- Frequently Asked Questions: answers to common EVV questions
- Your Key to EVV: newsletters explaining the ins and outs of EVV
- EVV Hard Launch Forum for Personal Care and Applicable Supportive Home Care Services: a video from our most recent forum about EVV on December 6, 2022
Right now, EVV in Wisconsin is in the soft launch phase. This is a time for provider agencies and workers to learn and start using an EVV system without consequences. This changes to the hard launch phase on May 1, 2023. On May 1, there are consequences for not using EVV. For more information, please read the ForwardHealth Update No. 2022-48.
If you know someone who wants to know more about EVV, share this email with them. They can also sign up for our emails.
Please reach out with any questions or comments you may have. We value your thoughts.
Wisconsin EVV Customer Care
833-931-2035
vdxc.contactevv@wisconsin.gov
THE CAP TIMES: Opinion | Home care staffing crisis leaves people abandoned
By SD Network, 2023-02-23
This is an interesting opinion piece in The Cap Times about the caregiver crisis. A member of the Madison City Council and the Dane County Board is talking about the caregiver crisis that has been affecting people with disabilities and the elderly. For this board member, it's both personal and political as this person requires personal care assistance to complete all of her basic needs.
Disability inclusion means intentionally cultivating environments where all can flourish. It means taking action to make change happen. It means including disabled consumers. Whilst many corporations remain fearful of sticking their head above the parapet, undeniably, small steps lead to greater action.
By 2030, more than 1 in 5 people in the United States are expected to be ages 65 and older, and nearly 70% of all adults who reach age 65 will eventually require some type of long-term services and supports. As the need for long-term care services grows, so too will demand for the many occupations that provide these services. We recognize that many caregivers in the U.S. are unpaid friends or family members. But here’s a look at several growing caregiver occupations that are employed in the home health care services industry.
HUFFPOST: Biden Administration Proposes Big Change To Benefits For People With Disabilities
By SD Network, 2023-02-20
A new proposal from the Social Security Administration would make life easier for millions of disabled Americans whose friends or family help them out with food. The proposal would make it so the government no longer cuts monthly benefits for people who get regular help with meals or groceries.
Self-Determination Network News:
February 2023
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Disability Advocacy Day 2023
Mark your calendar for Thursday March 23rd! Disability Advocacy Day is a day-long event in Madison focused on connecting self-advocates with their legislators to talk about issues that matter to them. Attendees are expected to participate in the full day of activities.
School Boards Matter Forum
Many Wisconsin communities will vote for school board members in the April 4th election. School Boards have a major impact on a community. On Monday March 6th from 6p.m to 7:15p.m., the Wisconsin Disability Vote Coalition is hosting a forum about the important role of school boards. The panel includes school board members who are parents of children with disabilities. You will also receive resources and be better prepared to vote on April 4th!
Registration is required. Register here for the School Boards Matter forum via Zoom.
Captioning will be provided. To request ASL Interpreters or other accommodations, please register as soon as possible and include that on your request.
The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.
This month, we shined the spotlight on Amy. As both former Miss Wheelchair Wisconsin and Miss Wheelchair USA, this teacher has a passion for education and making policy changes that benefit all people. Check out this month's Member Spotlight to get to know Amy.
Who should we shine the spotlight on next?
Check out the Latest Videos!
The Self-Determination Channel is a YouTube channel by and for people with developmental or intellectual disabilities. Unlike other channels, the Self-Determination Channel stands stand out from other channels on YouTube because self-advocates host the videos, and decide and create the content. Videos are posted a couple times a month on a variety of topics self-advocates care about such as technology, employment, caregivers, independent living, and advocacy.
Check out the newest videos on the channel:
- Human Rights: #14 Have the Faith You Want
- Shining a Light on Richard
- Human Rights: #15 Own the Things You Want
- 3 Tips to work with caregivers #Shorts
- Thank a caregiver in your life #Shorts
We encourage you to subscribe to the Channel (you can do so by clicking the red Subscribe button on any of the video pages).
Take five minutes to check out what's happening on the Self-Determination Network:
- 2022 was a Historic Year for Disability Employment: According to a recent report, 2022 was a remarkable and histrionic year for employment for people with disabilities. Learn about how people with disabilities out performed those without disabilities.
- Program Helps Gain Work Experience: Thanks to an internship program, young adults with disabilities are getting connected with career opportunities in the Chippewa Valley. Find out what the program entails.
- Caregiver Shortage Hitting Hard: The caregiver is shortage affects almost everyone in one way or another. Read about how it's hitting LGBTQ elderly and people with disabilities really hard.
- Funding Awarded for Housing for People with Disabilities: In January, HUD announced that it would provide $24.7 million for permanent affordable housing to people with disabilities. Find out what this funding will be used for.
- Great Resources: Direct care workers, also referred to as direct service workers, provide essential supports to older adults and people with intellectual and developmental disabilities, physical disabilities, and behavioral health needs. Check out these great resources that owe strategies and information on self-direction of home and community-based services, strengthening the direct service workforce (DSW) in rural areas, and emerging strategies for states.
- Electronic Visit Verification: Electronic visit verification (EVV) is required by federal law. All states have to collect visit information using an EVV system or they won’t get their full federal funding for Medicaid. It's in soft launch currently, but find out when hard launch will start.
- State Transition Plan: The Wisconsin Department of Health Services (DHS) received final approval on its Statewide Transition Plan from the Centers for Medicare & Medicaid Services. Learn what it includes.
- Collection of Disability Stats: A recent report addresses critical gaps in national and state data related to people with disabilities by synthesizing complex data from numerous U.S. federal agencies into accessible formats. Learn what the data revealed.
- Bill to Increase Caregiver Pay: U.S. Sen. Bob Casey, chairman of the U.S. Senate Special Committee on Aging, and U.S. Rep. Debbie Dingell have introduced legislation to expand access to home and community-based services (HCBS) for adults, people with disabilities and injured workers, while increasing pay and improving benefits for in-home caregivers. Read about how this would help.
- Push to Make Transit Accessible: One in four adults in the US live with a disability; yet various public transportation continue to be inaccessible. Learn about how the Secretary of Transportation wants to make transit accessible for all.
- Future of Self-Directed Care: Self-directed care undeniably has a place in the future of home-based care. How big that place is, however, is still up in the air. Read about the benefits of self-directed. Learn about some of the benefits of self-directed care.
- President Calls to Invest in Services: President Joe Biden used his State of the Union address to double down on his plan to reinvigorate the nation's home and community-based services system. Find out what he plans to do.
- Immigrants Can Bridge Gaps: The U.S. is facing a growing crisis of unfilled job openings and high staff turnover that puts the safety of older, frail residents at risk. Read about why some experts feel that letting immigrants be care workers would work.
- Confusion about Ballot Return Assistance: As affirmed by an August 2022 Federal Court Order, people with disabilities have the right to receive assistance with all aspects of voting, including having a person of their choice deliver their ballot to their clerk or polling place. Read about how there is still confusion about this.
Here's a sample of upcoming events listed on the Self-Determination Network:
- Webinar: One State’s Lessons Learned And Best Practices To Creating An Equitable Work Environment In State Government: February 21st, 1p.m. to 2:30p.m., Online
- Webinar On HCBS Waiver And Participant-Centered Service Planning And Delivery: February 21st, 2p.m. to 4p.m., Online
- Webinar: Accessible Parking And Passenger Loading Zones: March 2nd, 1:30p.m. to 3p.m., Online
- School Boards Matter Forum: March 6th, 6p.m. to 7:15p.m., Online
- An Untapped Funding Approach: Using Medicaid To Pay For Live-In Caregiver Housing And To Offset Wages For Care: March 7th, 1p.m. to 2p.m., Online
- Emerging Workforce Practices For Self-Direction: March 9th, 1p.m. to 2p.m., Online
- Advocacy For Change: March 16th, 9a.m. to 4:30p.m., Concourse Hotel and the Capitol, Madison WI
- Disability Advocacy Day: March 23rd, 10a.m. to 3p.m., Monona Terrace and the Capitol, Madison WI
- Home Health Care Services Electronic Visit Verification Forum: March 23rd, 1p.m. to 3p.m., Online
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
WISCONSIN STATE JOURNAL: Rights group: Some clerks still telling disabled voters they can't get help filing ballots in Wisconsin
By SD Network, 2023-02-19
As affirmed by an August 2022 Federal Court Order, people with disabilities have the right to receive assistance with all aspects of voting, including having a person of their choice deliver their ballot to their clerk or polling place. Yet some voters are being denied.
KAISAR FAMILY FOUNDATION: As Long-Term Care Staffing Crisis Worsens, Immigrants Can Bridge the Gaps
By SD Network, 2023-02-10
The U.S. is facing a growing crisis of unfilled job openings and high staff turnover that puts the safety of older, frail residents at risk. In a tight labor market where job options are plentiful, long-term care jobs that are poorly paid and physically demanding are a tough sell. Experts say opening pathways for care workers to immigrate would help, but policymakers haven’t moved.