News
HELEN SANDRSON ASSOCIATES: Personalising Homecare: A Breath of Fresh Air for Rhona
By SD Network, 2016-10-04
A new home care approach in Scotland is making a real difference in older people's lives. Like in the U.S, increasing need along with reducing financial resources and workforce meant that achieving improvements using existing resources was key. In this pilot study, person-centered thinking tools were used to determine what really matters to people. They looked at each facet of the person's life and by thinking differently and making small changes, they found the person could get a lot more out of her staff time and greatly improve her quality of life.
NATIONAL COUNCIL ON DISABILITY: National Council on Disability Commends NHTSA Recommendations on Autonomous Vehicles
By SD Network, 2016-10-04
The National Council on Disability (NCD) recently commended the National Highway Transportation and Safety Administration (NHTSA) for its inclusion of people with disabilities in discussions leading to the release of its “Federal Autonomous Vehicle Policy.” The NHTSA not only involved stakeholders with disabilities in discussions, they also considered recommendations from the NCD's 2015 report on self-driving cars which suggested not to impose limitations on people with disabilities through unnecessary license requirements, and to base any limitations on actual risk instead of unsubstantiated fears.
First-Ever National Resource Center for Self-Advocacy to Empower People with Intellectual and Developmental Disabilities
By SD Network, 2016-10-03
We would like to thank the Great Lakes ADA Center for providing us with the following information about a new National Resource Center for Self-Advocacy for people with disabilities.
ACL is excited to announce the first-ever grant to establish a National Resource Center for Self-Advocacy (NRCSA) to empower people with intellectual and developmental disabilities (IDD) for enhancing their voice on issues important to their well-being and daily life. Self Advocates Becoming Empowered (SABE) will lead the effort in partnership with several organizations.
“The Developmental Disabilities Act was created to ensure ‘that individuals with developmental disabilities and their families participate in the design of and have access to needed community services, individualized supports, and other forms of assistance that promote self-determination, independence, productivity, and integration and inclusion in all facets of community life, through culturally-competent programs,” said Aaron Bishop, Commissioner for the Administration on Disabilities. “The National Resource Center for Self-Advocacy will support opportunities for people with intellectual and developmental disabilities to strengthen their skills and voice for this important self-advocacy role.”
The self-advocacy movement is a human and civil rights movement, stemming from the civil rights movement of the 1960’s, but led by individuals with intellectual and developmental disabilities to ensure they have the same rights, responsibilities, and opportunities as people without disabilities. Starting internationally more than 40 years ago, the movement has empowered individuals to make choices in their lives, provided opportunities to have a voice, and opened pathways for leadership development.
Following a series of regional Self-Advocacy Summits convened five years ago, the Administration on Intellectual and Developmental Disabilities, which is now part of the Administration on Disabilities within the Administration for Community Living, funded six technical assistance projects to support self-advocacy and share information. This new national resource center continues the mission of developing self-advocacy resources across the U.S. and will work during the next five years to:
· Compile resources, best practices, training curriculum, and success stories for an online clearinghouse accessible to the public;
· Research the history of the self-advocacy and other civil rights movements to understand their evolution, leadership, and best practices to produce a report and webinar on the findings;
· Provide training and technical assistance to new entities in addition to the established more than 1,000 self-advocacy organizations across the nation for advising, building consensus, recruiting youth, supporting grant writing, developing leaders, and more; and
· Establish a fellowship through mini-grants to disability organizations to create disability fellowships that offer leadership development and employment opportunities for fellows.
The center will collaborate with a diverse range of organizations including self-advocacy organizations, disability-related nonprofits, universities, state government agencies, and others to achieve the grant goals.
“The people affected by policy should have the greatest voice in developing it,” said Katherine Cargill-Willis, Program Specialist with AIDD. “With this grant, ACL aims to make this ideal more of a reality for people with disabilities.”
Self Advocates Becoming Empowered (SABE) will lead the effort as part of a $2 million, five-year cooperative agreement funded by ACL under the Administration on Disabilities as an AIDDProject of National Significance. Partner organizations on the new resource center include:
· Autistic Self Advocacy Network (ASAN)
· Green Mountain Self Advocates (GMSA)
· Heartland Self-Advocacy Resource Network (HSRN)
· North East Advocates Together (NEAT)
· Pacific Alliance
· Project Action!
· Our Communities Standing Strong (OCSS)
· Southwest Alliance
· Southwest Institute for Families and Children (SWI)
· TASH
· University of Missouri-Kansas City Institute for Human Development (UCEDD) (UMKC-IHD)
This project is part of an ongoing effort by ACL to amplify voices that are often missing from intellectual and developmental disability conversations, including self-advocates and people with and without disabilities from diverse communities. To this purpose, AIDD has awarded grants toUniversity Centers for Excellence in Developmental Disabilities, Education, Research and Service (UCEDD) for:
· Fellowships to support recruitment and retention of trainees with disabilities, and from culturally and linguistically diverse backgrounds. Participants complete a capstone project for creating systemic change for community-based activities.
· Planning partnerships with institutions that serve minorities to co-design training experiences that promote interdisciplinary approaches to research, training, and services.
· Diversity training across the UCEDDs to guide and sustain cultural competence within programs that serve people with developmental disabilities.
For more information, please email Katherine Cargill-Willis.
DISABILITY SCOOP: Through Cerebral Palsy, ‘Speechless’ Looks To Get People Talking
By SD Network, 2016-10-03
A new show, 'Speechless', is giving people a glimpse into what daily life is like for families who have someone with a physical disability. The comedy is based on a boy's life growing up with a brother who has cerebral palsy. The show depicts the daily challenges and shows how all of the family members become advocates. The casting was very unique for this show.
For people with disabilities, accessing the Internet can be a challenge. An Israeli-based company has created an innovative software system which allows web applications and website owners to make websites accessible without changing their existing code or impacting their website design. The software has "accessibility skins" which allows websites to be changed through step-by-step wizards and then website users are able to choose the skin they need to meet their needs. Examples of skins include partial/complete blindness, epilepsy, and motor disability.
Parent Peer Specialist – Beloit, WI
Wisconsin Family Ties is seeking a compassionate, motivated individual to work as a Parent Peer Specialist in Beloit. Use your own life experience as a parent or primary caregiver of a child with social, emotional or behavioral challenges to assist other families like yours. This is a great opportunity to get in on the leading edge of the growing peer specialist profession.
Position Description
The Parent Peer Specialist (PPS) will provide information, training, support and advocacy to families in the School District of Beloit as they navigate the various systems and supports serving their children. The PPS will also provide outreach, information and training to schools, local governments, service providers and community organizations. Work hours for this position are flexible; occasional weekend work may be required.
Key Requirements:
- Experience as a parent or primary caregiver involved in the day-to-day care of a child or adolescent with social, emotional or behavioral challenges. No exceptions to this requirement will be considered.
- Strong verbal and written communication skills required. Bilingual (English / Spanish) candidates preferred.
- Experience navigating service systems to obtain services for your child. Service systems include, but are not limited to, mental health, public education, child welfare, substance use treatment, juvenile / family court, and corrections.
- Knowledge of special education processes and requirements
- Knowledge of resources and services available in Rock County and the surrounding area
- Must have a car and a valid driver’s license
Job Summary
Employer: Wisconsin Family Ties, Inc
Location: Beloit, WI
The deadline to apply for this position is October 20, 2016
Send resume and cover letter to info@wifamilyties.org. Please indicate the position title in the subject line of your email.
This job opening is posted as a courtesy. InControl Wisconsin, the Network and our sponsors are not responsible for ensuring the validity of the information in this posting. Potential applicants are encouraged to research the organization and/or person who is hiring and to proceed at your own risk.
September 2016
Connect | Share | Learn | http://sdnetworkwi.org/
Join our Welcome Team
Are you a viral social butterfly? Do you like to connect with people with the same interests? Do you enjoy interacting with people online? We are currently seeking voluntary Network Hosts to join the Welcome Team for the Self-Determination Network. Applications are due on October 3rd. Find out how to apply today!
Take our One-Minute Poll!
InControl Wisconsin is always looking for ways to better serve our community. By learning about you, our Network Members, we can better meet your interests.In last month’s Network News, we asked members answer a one-minute poll question about who they are. We have 492 members on the Self-Determination Network and only three have responded. That’s less than 1%! We know we can do better than that! Help us better be able to help you by taking the one-minute poll now!
Take five minutes to check out what's happening on the Self-Determination Network:
- Assistance for Service Providers: Many disability service providers are worried about cuts in services due to new mandates. Find out about, if passed, a new bill would offer a temporary increase in Medicaid funding for programs for people with disabilities.
- Disability in the Election: According to new data, voters with disabilities may have a major role in November's election. Learn why this is.
- ADA Regulations Broaden: Recently, the Dept. of Justice announced its issuing new regulations to expand who's covered under the Americans with Disabilities Act. Read about what it now will cover.
- Waiting Lists May Violate ADA: According to the Dept. of Justice, having people with disabilities on waiting lists for community-based services may violate the Americans with Disabilities Act. Find out why this may be.
- Caregiver Awards: The Wisconsin Long-Term Care Workforce Alliance is now accepting nominations for the 2016 Caregiver Awards. Spread the word!
- Disability Reality Show Wins Emmy: For the first time ever, a TV show starring cast members with disabilities has won an Emmy Award. Find out what show it is!
- Disability, and Consumer Attitudes and Preferences Survey: Here's an opportunity to participate in a survey about consumer attitudes and preferences for individuals with disabilities.
- Call for Presenters: Proposals are now being accepted to present at the 2017 Multiple Perspectives Conference. Proposals due December 3rd.
- Transportation Survey: Here's a chance to take a survey about transportation for people with disabilities.
In this September's entry, Stacy talks about how having a physical disability impacts friendships. We encourage you to ask her questions and/or share your experiences as well.
Here's a sample of upcoming events listed on the Self-Determination Network:
- AbilityMKE Now: September 28th, 9p.m. to 10p.m., Radiowest River, Milwaukee WI
- Ability Fest: October 2nd, 4p.m. to 7:30p.m. The Camelot Golf Club, Lomira WI
- River Falls Parents in Partnership: October 7th-8th, Country Inn, River Falls WI
- Across the Lifespan Conference: November 3rd-4th, Glacier Canyon Lodge, Wisconsin Dells WI
- Door County Parents in Partnership: November 4th-5th, Landmark Resort, Egg Harbor WI
- 2017 Multiple Perspectives Conference: April 13th to 17th, Ohio State's Columbus Campus, Columbus OH
Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions? Contact Stacy Ellingen.
The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you! Find out how you can help support the Network.
We would like to thank the Great Lakes ADA Center for providing us with the following information regarding a survey opportunity about transportation for people with disabilities.
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Hello and thank you for taking the time to read this email. A Spanish version is also provided directly below. Saludos y Gracias por tomarse el tiempo de leer este correo electrónico.
Nos gustaría invitarle a participar en una encuesta nacional titulada, Acceso y Experiencia de Transporte, el cual está diseñada para mejorar la comprensión de la accesibilidad del transporte público para personas con discapacidad. Esta encuesta está siendo realizada por el Consorcio de la Investigación sobre la Acción para la Participación de la ADA (siglas en inglés ADA-PARC), un proyecto colaborativo de investigación que colabora con siete Centros Regionales de la Ley para americanos con Discapacidades (ADA) (Investigadores Principales: Lex Frieden y Joy Hammel). Este proyecto el cual se enfocan en la vida en la comunidad, la participación comunitaria, el trabajo / desigualdades de participación económica de las personas con discapacidad (Para obtener más información, visite el sitio web: www.adaparc.org). Nos gustaría mejorar nuestro entendimiento sobre el acceso al transporte de personas con discapacidad y utilizar esta información para hacer mejoras a nivel regional y nacional.
Estamos muy interesados en recibir tantas respuestas como sea posible de las personas con discapacidad en base a sus experiencias personales con el transporte público. Siéntase en libertad de compartir la encuesta con entidades potencialmente interesadas. Los resultados servirán como evidencia clave para mejoras al transporte accesible. Utilice el siguiente enlace para acceder y completar la encuesta. Si usted tiene alguna pregunta o comentario acerca de esta encuesta, por favor, póngase en contacto con Joy Hammel a su correo electrónicohammel@uic.edu.
Agregue el enlace de la encuesta aquí: https://unco.co1.qualtrics.com/SE/?SID=SV_00scGeTOzGL21Q9
También deseamos informarle que estamos en la disposición de ayudarle a participar en la encuesta vía teléfono si así lo prefiere, especialmente si el acceso a Internet es un problema para usted o usted prefiere completar la encuesta verbalmente. Puede llamar a nuestro equipo de investigación al 312-996-9655 si desea realizar la encuesta por teléfono. Si desea completar la encuesta por teléfono en español, por favor póngase en contacto con el Sr. Ancel Montenelli al 312-413-1439. Y Por favor, haga mención que usted está llamando acerca de la encuesta de transporte ADA. |
CALL FOR PRESENTERS: Multiple Perspective on Access, Inclusion, & Disability: Seeing Disability at School, Work & Beyond
By SD Network, 2016-09-13
We would like to thank the Great Lakes ADA Center for providing us with the following information regarding the 17th annual Multiple Perspective on Access, Inclusion, & Disability: Seeing Disability at School, Work & Beyond. Applications for presentations are now being accepted!
The Seventeenth Annual Multiple Perspectives on Access, Inclusion & Disability:
Seeing Disability at School, Work & Beyond
At The Ohio State University’s Columbus Campus
· April 11, 2017 - Student Preconference – Disability & Career
· April 12, 2017 - Student Poster Competition
· April 12-13, 2017 - Main Conference 2 Plenaries & 25 Concurrent Sessions
Multiple Perspectives is an ongoing exploration of disability, a conversation including many voices and reflecting perspectives gained through experience and research; theory and practice, arts and sciences. This year’s theme,Seeing Disability continues our dialogue
Disclosure can be a personal choice or an environmental imperative this year’s them focuses on how disability is seen in the environment, the individual and their interaction. Explicit and implicit assumptions from policy and design to everyday choices drive recognition and disclosure at school, work and play. Proposals exploring these choices and their consequences will be given preference in the review process. Following our tradition below are two quotes to help you think broadly about this year’s theme as you prepare your proposal. A little different this year the second quote is the opening verse of a song, links to the full lyrics and a recording are provided.
“Disability doesn't make you exceptional, but questioning what you think you know about it does.”
Stella Young
“I went for a jog in the city air
I met a woman in a wheelchair
I said ‘I'm sorry to see you're handicapped.’
She says ‘What makes you think a thing like that?’”
Lyrics to Talking Wheelchair Blues by Fred Small
Preference will be given to proposals that reflect this year’s theme; encourage discussions across the typical social, political, and disciplinary boundaries; connect individuals to local, national or international communities; or consider parallels, distinctions and intersections with race, gender and ethnicity. This year in particular graduate and undergraduate presenters a sought for a strand of sessions focused on student interests and concerns.
SUBMISSION GUIDELINES FOR MULTIPLE PERSPECTIVES 2016
Proposal Deadline: International Day of Persons with Disabilities (December 3, 2016)
Proposals should be submitted by e-mail as an attachment (Word, TXT, or RTF formats) to ADA-OSU@osu.edu with MP2016 and your name in the subject line
Proposals must include:
- Name of each presenter with titles, institutions, employers etc. as appropriate
- Contact information (phone, mailing address, and e-mail) if there is more than one presenter please indicate one individual as the contact and lead presenter.
- Title of Presentation (9 words or less)
- Short Description 20- 35 words.
- Description (700 words or less) Please describe the content, focus and desired outcomes for the presentation using these questions as a guide.
- What is the format of the presentation (Lecture, Panel, Discussion, Performance, Other)?
- Who is the intended audience (educators, employers, businesses, advocates, students, consumers, researchers, or other)?
- How familiar should the audience be with the topic (beginner, intermediate, advanced)?
- What are your three main goals for the presentation?
Please Note: The full conference fees will be waived and lunch provided for presenters of accepted proposals. Presenters are responsible for their own travel and lodging.
Questions contact L. Scott Lissner at Lissner.2@osu.edu.
We would like to thank the Great Lakes ADA Center for providing us with the following information regarding another survey opportunity. This one is on Disability, and Consumer Attitudes and Preferences.
The Marketing Anthropology Project (MAP), a program of the National Business & Disability Council (NBDC) at The Viscardi Center, is conducting a self-selected sample survey on disability, and consumer attitudes and preferences. The survey seeks to better understand consumers whose buying decisions are mostly likely to be influenced by a business' practices toward individuals with disabilities. Please take a few minutes to complete our self-selective sampling survey.
To complete the survey, go to https://www.surveymonkey.com/r/5F6RS8B.
Please feel free to share our self-selective sampling survey with your friends, colleagues and networks. To learn more about NBDC's Marketing Anthropology Project, please email me at bmacsata@viscardicenter.org. Thank you.
Brandon M. Macsata, General Consultant
National Business & Disability Council (NBDC) at The Viscardi Center
200 West 41st Street, 8th Floor, 800
New York, NY 10036
Phone: 516-465-3748
Email: bmacsata@viscardicenter.org
Visit Us on the Web: http://www.viscardicenter.org, or go directly to the NBDC Member Log-In at http://www.nbdc.com