SD Network

Category: Surveys

The Center on Knowledge Translation for Disability and Rehabilitation Research invites you to complete a research survey. We want to hear from adults with disabilities about the ways you find and use information in your daily life. Your experiences will help researchers learn to share information in more accessible and meaningful ways.

The survey takes about 20 minutes to complete and is confidential. We will not identify people by name when we write or talk about this research study. 

Click here to begin the survey in English

Click here to begin the survey in Spanish

Or copy and paste the URL below into your internet browser:

English: https://survey.alchemer.com/s3/7770841/Disability-Community-Survey-II

Spanish: https://survey.alchemer.com/s3/7701290/Encuesta-Discapacidad

Thank you for participating. Your voice matters! If you need accommodations to complete the survey, please email Jennifer Bumble at jbumble@air.org.

Dr. Jennifer Bumble

American Institutes for Research

jbumble@air.org

Note: English and Spanish flyers attached.

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The University of Kansas Institute for Health and Disability Policy Studies — funded by ACL's National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) — is seeking adults with disabilities to complete the 2023 National Survey on Health and Disability (NSHD). 
The NSHD gives voice to the concerns of people with disabilities and documents their experiences with a variety of issues, including access to health care, insurance coverage, housing, transportation, Long COVID, employment, education, and more. The survey is open to U.S. adults 18 and older with any disability and/or health condition.
For more information, please call 855-556-6328 (Voice/TTY) or email healthsurvey@ku.edu. Participants may complete the survey by phone.
Take the survey
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Survey closes Friday, December 1, 2023
The Aging and Disability Business Institute is seeking participation in the latest Community-Based Organization and Health Care Contracting Survey. They hope to hear about your health care contracting experiences.
If you have not received a unique link for your organization, use the link below to take the survey. The survey is open to all types of aging and disability community-based organizations (CBOs) and networks regardless of whether they are currently contracting with a health care entity.
Your responses will be vitally important in understanding how CBOs and networks are contracting with health care entities to provide services to older adults and people with disabilities in a rapidly evolving market. The Business Institute will use the feedback from the survey to develop targeted resources that help raise the visibility of CBO-health care contracting and educate policymakers and health care professionals on the growing capacity of CBOs for this work.
Organizations that complete the survey will be entered into a drawing for a complimentary registration to a conference of their choice, valued at up to $900.
If you have questions about completing the survey or are experiencing technical issues, contact the Survey Helpline at (855) 359-3033 or RFI5survey@MiamiOH.edu.
Learn more about the CBO-Health Care Contracting Survey on the Business Institute’s website 
Take the survey
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Are you a person self-directing your services, a family member or friend assisting someone to self-direct, or a direct care worker in a self-direction program?

If so, we want to hear from you! Please complete our survey by Friday, August 11th. This survey will take you about 10 minutes to complete. 

We are leading a new project sponsored by Elevance Health to improve worker recruitment and retention in self-direction programs.  The survey responses will inform a white paper on the impact of the workforce crisis on self-direction featuring practical insights and advice from those with lived experience.

We are hoping our survey will reach a wide audience. Please share this survey with others who self-direct, family members, and direct care workers in your network.

Thank you for your help!

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The Wisconsin Department of Health Services (DHS) is renewing the Family Care and Family Care Partnership waivers. A waiver is a special set of rules that allows us to have Medicaid programs like Family Care. For Family Care, it includes the 1915(b) and 1915(c) waivers. With them, we can fund more services and supports to help Family Care and Family Care Partnership members stay in their homes and communities.

We must renew the waivers every five years. This is a chance for us to make Family Care and Family Care Partnership better between 2025 and 2030. We can improve policy, services, and other things that can make the programs better for members.

How can I get involved?


Take our survey! We want Family Care and Family Care Partnership members, families, caregivers, providers, managed care organizations, advocates, and other partners to share their thoughts.

We want to know how Family Care and Family Care Partnership can better serve our members. This is a chance to share your ideas about services, supports, and other areas of care. It should only take 10 minutes. It’s available in English, Hmong, and Spanish. Please submit your responses by August 1.

Take the survey

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Family Caregiver Involvement | Hospital Discharge Survey:

GWAAR, in partnership with our grassroots caregivers, are conducting a survey to collect Wisconsin family caregiver experiences at the time of a loved one/care recipient’s hospital discharge. The intent is to learn about caregiver involvement at the time of discharge. The survey will take less than five minutes of your time to complete. Please complete it yourself if you are a family caregiver and please promote this survey on your social media, websites, within your caregiver support groups, and in newsletters using the QR code or link to the survey below.

For this survey, a “family caregiver” is defined as any relative, partner, friend, or neighbor who has a significant personal relationship with and provides a broad range of assistance for, an older person or an adult with a chronic or disabling condition. Responses to this survey will be combined with overall results to understand the hospital discharge process in urban cities, rural communities, and elsewhere throughout the state of Wisconsin. The data collected will be shared to promote advocacy efforts related to legislation, administrative rules, and healthcare systems and associations. Information collected will be kept anonymous.

Survey link: https://forms.microsoft.com/r/Jhw6C5KmBa

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The Independent Living Council of Wisconsin is looking for public input from consumers, stakeholders, and community partners is needed to describe the challenges and barriers persons with disabilities face. Please take a few minutes to complete the Statewide Plan for Independent Living (SPIL) public input survey. Your input will help develop Wisconsin’s SPIL and assist the Independent Living Network addressing the needs of persons with disabilities.



 




 



If you have any issues accessing the survey, please contact Tyler Wilcox at ilcwcoordinator@il-wis.net.

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In recognition of October being National Disability Employment Awareness Month, the Southwest ADA Center is conducting a study on the experiences of employed people with disabilities using service animals and other assistance animals at work. This study is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).

 

Are you a US resident (18+) with a disability who uses an assistance animal at your place of employment? We are interested in learning about your experiences through the following survey link:


 

If you have trouble or need assistance completing the survey including alternate formats, please contact Vinh Nguyen at vinhn@bcm.edu.


Please share this survey with members of your organization and others who may be interested in taking the survey.
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The Southwest ADA Center at TIRR Memorial Hermann is conducting a study on the experiences of people with disabilities with the accessibility of their health care. This study is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).
 
Are you a US resident (18+) who has experiences with the health care system? We are interested in learning about your experiences through the following survey link:
If you have trouble or need assistance completing the survey including alternate formats, please contact Alexia Smalling at alexia.smalling@memorialhermann.org . Feel free to share the survey link among members of your organization and others who may be interested in sharing their experiences about healthcare access. 
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The National Aging and Disability Transportation Center (NADTC) – a program of the Federal Transit Administration administered by Easterseals and USAging with guidance from ACL – wants to hear about challenges and promising practices in providing accessible transportation to older adults and people with disabilities. Survey responses will help influence the work NADTC does next year.
Take their brief survey by September 28 to share your thoughts.
Take the survey
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