SD Network

Category: Surveys

Each year, the Wisconsin Board for People with Developmental Disabilities (BPDD) does an annual survey for self-advocates and family members who have participated in a BPDD project.  They want to know what you think of our projects! 

If you participated in a project this year, please take a couple of minutes to complete this short survey.  Your feedback helps us understand how their projects impact people’s lives, and they share this information directly with their funders. 

Below is a list of projects, trainings, events and grants that you could have participated in over the last year. Please also fill out the survey if you participated in grassroots state or federal advocacy that was brought to your attention by BPDD, if you follow them on social media and have shared content or connected with other people around the state virtually through Living Well Wednesdays or the Self-Determination YouTube Channel. 

  • People First activities
  • COVID-19 activities 
  • Living Well activities
  • Partners in Policy Making
  • Youth Leadership Forum
  • Sparks Grants
  • Employment First Partner Grants
  • Building Full Lives
  • Partners with Business
  • Take Your Legislator to Work
  • Supported Decision Making
  • Family-Led or Family Navigator Project
  • Self-Determination Conference
  • Employment First Conference
  • Voting Trainings
  • Disability Advocacy Day

Take survey

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Student Respite Program Survey

By SD Network, 2021-04-21

Do you know of a respite program that uses students as respite providers? If so, please complete this brief survey ( no later than June 1, 2021.  Survey results will be used to help create a free downloadable toolkit to promote the development of respite programs that engage students as respite providers.

We would greatly appreciate if you could also share this invite within your networks, as appropriate.

This project is led by Dr. Kim Whitmore, Assistant Professor in the School of Nursing at the University of Wisconsin – Madison in partnership with the Respite Care Association of Wisconsin. Funding for this project is provided by the Lifespan Respite Grant Program from the Administration for Community Living (Grant No. 90LRLI0032-01-00).

Please contact Kim Whitmore at with any questions.

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Researchers at Brandeis University are conducting a study on the experiences of people with disabilities who self-direct Medicaid-funded HCBS during the pandemic. Please see the attached flyer for more information.

Brandeis COVID Flyer (3).pdf Seeking Participants for Self-Direction and COVID
Brandeis COVID Flyer (3).pdf, 330KB

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The NIDILRR-funded Collaborative on Health Reform and Independent Living (CHRIL) at the University of Kansas is looking for adults with disabilities to complete an online survey about health insurance, health care access and the current pandemic. Whether you have private insurance, insurance from an employer, TRICARE, Medicaid, Medicare or no insurance right now please complete the survey. 

  • Adults, 18 and over, with any type of disability, chronic illness/disease, mental or physical health condition are encouraged to participate.
  • The survey should take about 20 minutes to complete.
  • Responses are anonymous.
  • The survey may look familiar to you. It was posted in 2018 and 2019, and is being posted for a third time now. We welcome participation from those who completed it before and those who have never done it before.

To complete the survey, go to:

Whether or not you complete the survey, you can choose to enter a drawing to win one of fifteen $100 gift cards. Weekly drawings will happen until the survey closes April 30, 2021. If you prefer to take the survey over the phone or have any questions about participating, please call toll-free 1-855-556-6328 (Voice/TTY) or email
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The Center on Aging and Trauma of The Jewish Federations of North America’s Holocaust Survivor Initiative, invites organizations to participate in a national survey on Person-Centered, Trauma-Informed (PCTI) Care. This ACL grantee is working to build the capacity of aging service providers to provide PCTI care to older adults with a history of trauma as well as their family caregivers. They are conducting this survey to collect information on the current capacity of organizations to provide this type of care.

Responses are anonymous. Only one survey should be submitted by an organization. Respondents are strongly encouraged to coordinate with colleagues to reduce multiple responses from a single organization. Only U.S. organizations should participate.

Respond by March 22, 2021

Take the Survey (estimated 15 minutes to complete)

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The Wisconsin Disability Vote Coalition (WDVC) is encouraging voters to share their experience in the November 2020 election by taking a Voter Experience survey. We need your help!
SABE Survey for Voters with a Disability
The SABE GoVoter Survey asks people with disabilities to share their experience in the November election. SABE stands for Self Advocates Becoming EmpoweredThe survey looks at accessibility and disability voter access at the polls. The Disability Vote Coalition will use survey results to advocate with elected officials to make improvements to our voting system.
Help us get the word out and share this survey with voters who have a disability. If a voter would like assistance completing the survey, we can help! Contact Wendy Heyn, Voting Outreach and Advocacy Specialist, Disability Rights Wisconsin at or call 414-302-5641.
Links to SABE Surveys
English Survey
Spanish Survey
League of Women Voters Wisconsin Survey
Take the League of Women Voters WI Voter Experience survey for the November 2020 election. This survey is open to all Wisconsin voters. Complete this survey to share your voting experience - absentee, early voting, or in person on Election Day. This will help us to know about any issues you faced or good things you would like to see shared in other parts of the state.
Links to LWVW Survey
English Survey
Spanish Survey
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Did you provide assistance or resources to voters with disabilities or older adults? We want to hear from you! Help us plan for the new year! We are reaching out to the disability community and the aging network to ask for your feedback by completing this survey. It would be especially helpful to hear from you by the end of December. The purpose of the survey includes:
  • Get feedback on Disability Vote Coalition trainings and resource materials.
  • Learn about what you did to help support voters
  • Learn about any barriers for voters with disabilities and older adults based on your experience.
  • Get your input for our planning.
Take the Survey
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The Great Lakes ADA Center is conducting a research to identify emerging practices to support disability inclusion in the context of the pandemic. They are looking for members of disability employee resource or affinity groups, and diversity and inclusion professionals to interview. Participation includes a 30-40 minute interview via a web-based platform where participants will be asked about their work experiences, success stories, and resources to support disability inclusion in the workplace. 

 Findings will be disseminated widely through the center and various disability and business-related networks. All responses will remain confidential and anonymous, with all shared results being de-identified. For more information contact: Courtney Mullin, Research Assistant, Great Lakes ADA Center at

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We need your opinion!  (This survey is intended for family members of children and youth with disabilities.)

Recent data and stories from families of children with disabilities, like yours, tell us that many who are eligible for long-term supports do not know about these programs and may not be getting what they and their families need.

One solution that disability advocates have proposed is to develop a group of Family Navigators located around the state who would “walk aside” families like yours, if you would like, and help you understand what supports are available and how they might help your child.  A Family Navigator could help families with understanding and accessing disability-related supports for your son or daughter, such as health care, community support, school services, transition services and more.

Please take just a few minutes to answer the survey questions.  The survey can be found here:

Your feedback will be compiled with that from other families and shared with state officials and legislators.  Our goal is to reach 500 families throughout Wisconsin.

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This year is the 30th anniversary of the Americans with Disabilities Act (ADA)!

This survey should take no more than 15 minutes to complete. Please complete the survey ASAP, as the survey link will close April 15th, 2020. We will have the results by July 26th, 2020. If you haven’t responded to this survey before, you have the opportunity to do so now!

You have been chosen to receive this survey because you have been recognized as a leader or significant figure in the fight for rights for people with disabilities. When completing the survey, please answer on behalf of people with disabilities in your community so we can report findings representative of the community. Please feel free to forward the link to this survey to other individuals whom you would consider leaders in the disability community. This survey is anonymous.

This non-scientific survey is a collaborative effort of the Southwest ADA Center, the ILRU program at TIRR Memorial Hermann, and the Health Information Sciences program at UTHealth (University of Texas Health Science Center at Houston). Inquiries should be directed to .

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