Category: Member Spotlight
How are you involved with self-directed supports and self-determination? Why did you join the SDNetwork?
I have been involved with adults who have developmental disabilities and focusing on their life in the community for 33 years. I have known since I was in high school that I was not someone destined for corporate life, but rather that my work was meant to be working side by side with individuals who have a disability. To my good fortune that often has come with family, friends and community who surround those individuals. Working with people to identify the possibilities their lives hold and working toward the realization of hopes and dreams for their futures has been my lifes work and passion. I have met wonderful people and have been part of people's community-based homes and lives for many years. Being part of this ever-growing and transforming movement of life in the community and self-determination has been a blessing in my life. I was asked to help host the SDSnetworkand my hope is that through conversation and connectedness, that we together can find a sense of common purpose and sharing through this on line community.
Tell us some good news - what's the most exciting thing happening for you (or in Wisconsin) in terms of Self-Determination or Self-Directed Supports?
The most exciting thing for me personally, at this juncture in my life, is that I amnetworkingwith people from around Wisconsin and the United Stated and finding that this movement is BIG! I moved to Madison in 1982 because it was where things were happening- creative, innovative and ground breaking. Today, widening my scope, outside of the world of residential supports in Dane County, I see this movement is BIG around the world! I have met people in the past several years from England, New Zealand, Australia, Germany, Ireland, Canada, Michigan, Cincinnati, Indianapolis, my dear home town of Madison, etcand am so excited to be living and learning in a widenetworkof passionate and energetic people who get-it! I guess I shouldnt be surprised. While I was working hard on a micro level, the world just kept charging forward around this on a macro level! Its awesome!
What tip or resource would you like to share with people who want to direct their own supports, or who would want to be more self-determined?
My tip is, be sure to tell your story. There is wisdom to be drawn on and information deep in your life stories that tell others, in a special way, who you are, whats important to you and what makes you tick. If people are listening well and looking to discover and realize what you are all about, your stories will go a great way in identifying those things. Personally, I believe that telling your life story through conversation goes much farther than answering a lot of questions about yourself on a piece of paper.
Also, identify your gifts; if you dont know what they are, just think about what you have to offer with your head, your hands and your heart. If you cant come up with it on your own, ask those who surround you in your life. You will be surprised with how the list grows once you start asking. Examine and think about what others say your gifts are. Gifts, talents, strengths, what you bring to others lives will be the beginning of your own discovery process and your journey of sharing and building on your lifes dreams.
Identify and grow yournetwork; these are your friends, family, acquaintances, fellow workers, neighbors etc,.., its amazing when people know your stories and dreams where that will lead. People will often reach out to help you discover your lifes goals once they know you value and acknowledge them as important in your life.
What message would you like to share with themembersof the SD Network?
Thisnetworkis our common ground, were united by the thread of self-determination and self direction, lets make the most of it. The SDSnetworkis our community so lets engage. We can connect, have conversation, learn, or just run things by one another. The sky is the limit, but it takes each of us to extend ourselves out just a little bit. I know, I myself have wondered about what to post, wondered if it was the appropriate forum, thought about how to word things etc. My commitment is to no longer let that questioning voice get in the way of putting myself out there andnetworkingwith you all. I ask you to do the same. One thing I did do, which you too may find helpful, is make the SDSNetworkone of my home pages. Everyday when I log on to the internet, the SDSnetworkopens up and I have the opportunity to see whats new or better yet to comment and share.
What's your dream vacation?
I actually have had a dream vacation that I want to relive. How about that? I went to Grand Cayman Island about 20 years ago on a fluke. It was one of those last minute unbelievable deals that my husband and I could not pass up. To tell you the truth I didnt even know the first thing about the Cayman islands when I got on the plane. The 7-day vacation was such a beautiful experience that I want to go back. The land, the water, the people, were all amazing and beautiful. My favorite experience while on Grand Cayman was snorkeling. I took a sailboat out to a reef and swam with stingrays! I also snorkeled in a beautiful cove where schools of fish came and surrounded me and I swam with them. I could feel their little bodies swimming all around me. It was surreal.
My immediate community is Windsor/DeForest Wisconsin. I have lived here for about 19 years. Its a suburb about 5 minutes north of Madison. Its very green and country-like, but close to all the amenities of Madison. Perfect! The first thing I noticed out here is the country wave. Everybody waves when you drive by. Its heartwarming! I have great neighbors who have come to be good friends over the years. I love country walks and all the natural beauty I live near. As far as Madison; I love the openness, the people, the creativity, the lakes, the neighborhood festivals and the community as a whole. I couldnt think of a better place to live.
Meet Martha Oie, Northwoods gal and Community Connector Extraordinaire. She can't help herself... When she meets you, Martha immediately begins to look for connections, for places where you can share your talents and gifts. Learn more about Martha as we shine the Member Spotlight on her.
Why did you join the SD Network?
I joined the Network to share stories. People learn from each other and I try to do anything I can to widen my network of people. I use the social media that works for me, depending on what Im working on.
Tell us some good news - what's the most exciting thing happening in terms of self-determination or Self-Directed Supports?
There are a lot of cool connections happening for folks. People are starting to focus on their skills and assets to find ways of helping each other. A couple of people I know who cant read or write are providing cares to some other people. It works for everyone theyre employed and the people theyre supporting are getting great care. Another couple has a farm and are worrying that they wont be able to pay the mortgage. So were getting them connected to some folks who might want to rent out some of their land to focus on sustainable agriculture. Everyone wins that way!
Were also working to make our local timebank (http://www.timetradersnorth.org) more effective. Were learning how help it grow & develop, connecting to more networks. Were learning to ask people, What do you have to offer? Its about the person I can do this, see me for who I am, take the time to know me.
What tip or resource would you like to share with people who want to direct their own supports, or who would want to be more self-determined?
Get connected to the Internet. Look for special programs to get Internet in your home or use the computers at the public library. The Internet provides access to education, whats happening in the world, whats happening in your community.
What message would you like to share with the members of the SD Network?
Focus on what you have (not what you dont have). Join groups youre interested in local book clubs, etc. Start small and get started. Access whats local bring what you have.
What famous person have you met or would like to meet?
I know Rudi Stajduhar, whos originally from Croatia. He was spokesperson for United Nations Secretary-General, Kurt Waldheim. I spend time with him every year and learn so much from him. Hes 93 yrs old and still reads a lot. He inspires me in so many ways.
Are you a dog person or a cat person?
Both! I dont know which Id pick. We have 2 dogs & 4 cats. The cats tend to hide out.
In this SD Network Member Spotlight, we'll meet Patti Becker.
1. How are you involved with the SD Network?
I am involved with SDS in both my work and personal life. My work life has always included working with individuals using services to find the community supports they wanted, not what others thought they needed. Currently, I work with individuals using long-term care supports in both Family Care and IRIS in my role of supporting the work of InControl Wisconsin. InControl has a fantastic group of consultants and dedicated board of directors who do an excellent job of keeping the ideas and resources of self-determination present in Wisconsins landscape. I also work as a consultant to the IRIS program, providing technical support and resources to the IRIS Community Living Initiative. We are working hard to get the message out to Wisconsin IRIS participants that they can have control of where and with whom they live.
In my personal life, I have two third graders at my house, one who uses special education supports and one who uses gifted and talented supports. This year my son began leading his own IEP meetings. Both realized they did not appreciate the segregation their learning styles were creating and have advocated with us for them to return to a more inclusive self-determined school schedule. We are proud of both of them and their school district for keeping up with the paces of change.
2. Tell us some good news - what's the most exciting thing happening for you (or in Wisconsin) in terms self-determination or Self-Directed Supports?
What is most exciting about SDS and self-determination is the momentum it has had in growth these past few years. Wisconsin has gone from a state where SDS was active in a few counties, but now almost 10,000 people use IRIS and more folks are choosing self-determination in managed care than ever before in its history. This growth brings challenges for communities, providers and individuals using services. Challenges bring opportunity and it is exciting to think of the creative changes that are on the horizon.
3. What tip or resource would you like to share with people who want to direct their own supports, or who would want to be more self-determined?
People who want or use SDS need to know that creativity and community connections are their best ally. SDS isnt about how to make the most of your public dollars. Rather it's about how to make the most of your life in the community, accessing public dollars as needed. This can be a difficult paradigm shift to make for many whove lived a system-driven life. But once the shift happens, lives really do get better.
4. What message would you like to share with the members of the SD Network?
I have a number of quotes I hold on to when things get rough. I think everyone should have some. I will share two with the SDS network:
- If you arent living on the edge, you are taking up too much space. ~Lou Whittaker, famous mountainclimber.
- Put your helmet back on and keep marching forward.~self-advocate and SDS leader in Wisconsin, Steve Verriden.
5. Are you a dog person or a cat person?
I have had both dogs and cats in my life. I would say I am more of a dog person. Oddly, our newest dog Herbie a lab/bassett hound mix, is a bit like a cat in his demeanor and behavior.
6. What's your favorite movie or book or song/musician?
This is the hardest question to answer. My favorites vary throughout time, but I consistently am a fan of the blues.