Category: Resource
Resource: The Riot! What's in Your Cookbook? Tips & Tricks to Spice Up Self-Advocacy
By SD Network, 2013-07-16
This month's issue ofThe Riot!is called "What's in Your Cookbook? Tips & Tricks to Spice Up Self-Advocacy". If you haven't read The Riot! before, it's time you checked out this great resource.
Here's what the writers of The Riot! have to say about themselves and their publication:
Self-advocates are people with disabilities who speak up for themselves and others. Self-advocates speak up with spoken words, sign language, letter boards or in ways unique to each person.
The Riot is about self-advocacy. We offer a newsletter, a blog where self-advocates can share opinions, an online art gallery, toolkits, games and services to help individuals become stronger self-advocates. We cover topics that are important to self-advocates. And we really dont like silly rules that just keep people down.
We are serious about self-advocacy issues, but we also want to make you laugh and feel good about life. Join us to celebrate the strengths of self-advocates. Help take on the barriers that stand in the way. Most of all, lets work together to help people live the life they want with the support they need.
In this SD Network Member Spotlight, we'll meet Patti Becker.
1. How are you involved with the SD Network?
I am involved with SDS in both my work and personal life. My work life has always included working with individuals using services to find the community supports they wanted, not what others thought they needed. Currently, I work with individuals using long-term care supports in both Family Care and IRIS in my role of supporting the work of InControl Wisconsin. InControl has a fantastic group of consultants and dedicated board of directors who do an excellent job of keeping the ideas and resources of self-determination present in Wisconsins landscape. I also work as a consultant to the IRIS program, providing technical support and resources to the IRIS Community Living Initiative. We are working hard to get the message out to Wisconsin IRIS participants that they can have control of where and with whom they live.
In my personal life, I have two third graders at my house, one who uses special education supports and one who uses gifted and talented supports. This year my son began leading his own IEP meetings. Both realized they did not appreciate the segregation their learning styles were creating and have advocated with us for them to return to a more inclusive self-determined school schedule. We are proud of both of them and their school district for keeping up with the paces of change.
2. Tell us some good news - what's the most exciting thing happening for you (or in Wisconsin) in terms self-determination or Self-Directed Supports?
What is most exciting about SDS and self-determination is the momentum it has had in growth these past few years. Wisconsin has gone from a state where SDS was active in a few counties, but now almost 10,000 people use IRIS and more folks are choosing self-determination in managed care than ever before in its history. This growth brings challenges for communities, providers and individuals using services. Challenges bring opportunity and it is exciting to think of the creative changes that are on the horizon.
3. What tip or resource would you like to share with people who want to direct their own supports, or who would want to be more self-determined?
People who want or use SDS need to know that creativity and community connections are their best ally. SDS isnt about how to make the most of your public dollars. Rather it's about how to make the most of your life in the community, accessing public dollars as needed. This can be a difficult paradigm shift to make for many whove lived a system-driven life. But once the shift happens, lives really do get better.
4. What message would you like to share with the members of the SD Network?
I have a number of quotes I hold on to when things get rough. I think everyone should have some. I will share two with the SDS network:
- If you arent living on the edge, you are taking up too much space. ~Lou Whittaker, famous mountainclimber.
- Put your helmet back on and keep marching forward.~self-advocate and SDS leader in Wisconsin, Steve Verriden.
5. Are you a dog person or a cat person?
I have had both dogs and cats in my life. I would say I am more of a dog person. Oddly, our newest dog Herbie a lab/bassett hound mix, is a bit like a cat in his demeanor and behavior.
6. What's your favorite movie or book or song/musician?
This is the hardest question to answer. My favorites vary throughout time, but I consistently am a fan of the blues.