THE NEW YORK TIMES: The Madden sisters don't want to be institutionalized
Sisters Carrie and Kristy Madden, who have muscular dystrophy, rely on California's In-Home Supportive Services (IHSS) - a self-direction program that allows them to hire and manage their own caregivers. They employ Gigi and Felix Valbuena for essential daily tasks like bathing, dressing, and cooking. The article highlights how IHSS enabled paid family caregiving when Carrie initially hired their mother as her caregiver. Now facing $1 trillion in federal Medicaid cuts, the sisters fear losing the independence that IHSS provides.
