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As climate-related disasters become more common and more severe, most countries in the world are “neglecting their obligations to respect, protect, and fulfill the rights of persons with disabilities in their responses to the climate crisis,” according to a report from the Disability Inclusive Climate Action Research Program.

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For decades, Mark Laing and Luanne McGregor have needed home health care aides. ​​If someone doesn’t show up for them, that means they don’t get out of bed. The couple said their hope is to have better pay for their caregivers. They believe it may be a systematic issue of low pay and short staffing that leads to people not showing up.

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Direct Care Workforce Capacity Building Center will support recruitment, retention, and professional development of workers who provide home and community-based services.


The Administration for Community Living has awarded a five-year grant totaling over $6 million to establish a national center to expand and strengthen the direct care workforce across the country. In support of the Biden-Harris Administration’s commitment to strengthening the care economy, this initiative will provide technical assistance to states and service providers and facilitate collaboration with stakeholders to improve recruitment, retention, training, and professional development of the direct care workers who provide the critical services that make it possible for people with disabilities and older adults to live in their own homes and communities.

The center will harness the power of a team of organizations with expertise in disability, aging, and workforce issues, including several organizations that are part of  ACL’s disability and aging networks. Led by the National Council on Aging, partners include the National Association of Councils on Developmental DisabilitiesADvancing StatesParaprofessional Healthcare Institute (PHI)the University of Minnesota’s Institute on Community Integrationthe National Alliance for CaregivingLincoln University Paula J. Carter Center on Minority Health and Aging, the Green House ProjectSocial Policy Research Associates, and Housing Innovations.

“The shortage of direct care workers has become a national crisis and a serious civil rights issue,” said ACL Acting Administrator Alison Barkoff. “Increasing numbers of people with disabilities and older adults who want to live in the community – a right protected by the Americans with Disabilities Act and other civil rights laws – are unable to get the services they need to do so. The Direct Care Workforce Capacity Building Center is an important step toward addressing the challenges to recruiting, training and retention of these critical professionals and creating the robust, stable workforce we need to meet growing needs.”

Long-standing workforce shortages have reached crisis levels during the COVID-19 pandemic; today, more than three-quarters of service providers are not accepting new clients and more than half have cut services as a result of the direct care workforce shortage. High turnover – averaging nearly 44 percent across states –  also mean that people who are able to get services often experience service disruptions and receive inconsistent care. As a result, increasing numbers of people are left with no option but to move to nursing homes and other institutions, people who want to leave these facilities cannot, and the health and safety of those who live in the community is at risk. In addition to  undermining people’s civil right to community living, this leads to poorer health outcomes and higher costs of care, which are most often borne by taxpayers.

With demand for home and community-based services increasing, due in part to the rapidly growing populations of older adults and people with disabilities, more than 1.3 million new jobs for direct care workers will be created by 2030. A coordinated, national effort to improve our national capacity to recruit, train and retain a high-quality, competent, and effective direct care workforce has never been more important.

The national Direct Care Workforce Capacity Building Center will serve as a hub, providing tools, resources and training to assist state systems and service providers and to support the development and coordination of policies and programs that contribute to a stable, robust direct care workforce. The center’s website will  share resources from  the federal government, highlight state and local model policies and best practices that can be replicated or adapted, and  share training and technical assistance materials.  In addition, the center will facilitate peer-to-peer sharing of lessons learned and promising practices through learning collaboratives and support collaboration between state systems, including Medicaid, aging, disability, and workforce agencies; service providers; and aging, disability and labor stakeholders.  

The center will support stakeholders in tackling key issues affecting recruiting and retention, such as:

  • Poor wages: According to the Bureau of Labor Statistics, direct care workers were paid a median hourly wage of $14.20 in 2021. According to a report from PHI, in 2020, about two in five direct care workers used public assistance programs; a little over a quarter were enrolled in Medicaid and just under a quarter used nutrition assistance programs. 
  • Lack of benefits: According to the same report, in 2020, less than half had health insurance through their employer or a union (and 13 percent had no health insurance at all). Many do not have paid sick days or family/medical leave.
  • Limited opportunities for career advancement and professional recognition.

The center also will support stakeholders in developing or leveraging existing training and professional development to strengthen the quality of services.

This initiative builds upon the ongoing collaboration to strengthen the direct care workforce between ACL, the Department of Labor, and other HHS agencies, including the Centers for Medicare & Medicaid Services (CMS) and the Assistant Secretary for Planning and Evaluation.


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In recognition of October being National Disability Employment Awareness Month, the Southwest ADA Center is conducting a study on the experiences of employed people with disabilities using service animals and other assistance animals at work. This study is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).

 

Are you a US resident (18+) with a disability who uses an assistance animal at your place of employment? We are interested in learning about your experiences through the following survey link:


 

If you have trouble or need assistance completing the survey including alternate formats, please contact Vinh Nguyen at vinhn@bcm.edu.


Please share this survey with members of your organization and others who may be interested in taking the survey.
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Adults with disabilities rarely have been employed at such a high rate as now. This is in large part thanks to the pandemic. When COVID hit, almost every job switched to being done remotely. This eliminated one of the biggest employment barriers for people with disabilities--the need for transportation to and from work. Employers realized that so much could be done virtually . Even with the pandemic winding down, people seem to think that working remotely will continue to be an option for years to come.  

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There are worker shortages in every field of the economy. This Op ed in The Washington Post explains why the care worker shortage is a crisis and a disaster for the rest of the economy. It talks about how how not having enough caregivers leads to people not being able to fill jobs in the rest of the economy. The rate of pay for caregivers is a major contributing factor in this.   

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Sightseeing the Apostle Islands is often challenging for people who have mobility impairments.The nonprofit group Friends of the Apostle Islands plans to raise $325,000 by the end of next year to build a roughly 500-foot ramp that slopes gradually down to Meyers Beach. The National Park Service is expected to match that amount to fund construction of the project, which could begin as early as 2024. Beyond addressing mobility issues, the park has added audio devices at its visitors center and interpretative displays at Michigan Island and Little Sand Bay. For those who are blind or vision-impaired, the park offers a Junior Ranger booklet and brochure with maps in braille.

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Increasing wages and benefits, improving training and career development options, adding flexibility to state Medicaid waiver programs to pay family caregivers for providing personal care services, providing incentives and compensation for travel, and new data collection and tracking efforts would go a long way toward improving the personal care aide workforce in rural America.

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Despite a surge in hiring of digital accessibility specialists, as of 2022, only 3% of the Internet is fully accessible to people with disabilities. Only 26% of business owners the majority of business owners still don't know how to make their websites accessible. This article explains the complexities and challenges of making the Internet accessible to everyone. 

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Comment period will remain open through  November 30

The 2022 National Strategy to Support Family Caregivers (the strategy) is now available for public comment for a period of 60 days. Comments received from the public will be used to inform the ongoing work of two Congressionally mandated caregiving advisory councils, as well as to inform future updates to the strategy.
The strategy is intended to serve as a national roadmap for better recognizing and supporting family and kinship caregivers of all ages, backgrounds, and caregiving situations. It includes nearly 350 actions the federal government will take to support family caregivers in the coming years and more than 150 actions that can be adopted at other levels of government and across the private sector to build a system to support family caregivers. 
The strategy was developed jointly by the advisory councils established by the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act and the Supporting Grandparents Raising Grandchildren (SGRG) Act, with extensive input from family caregivers, the people they support, and other stakeholders. 
Each year, around 53 million people provide a broad range of assistance to support the health, quality of life and independence of a person close to them who needs assistance as they age or due to a disability or chronic health condition. Another 2.7 million grandparent caregivers – and an unknown number of other relative caregivers – open their arms and homes each year to millions of children who cannot remain with their parents. Millions of older adults and people with disabilities would not be able to live in their communities without this essential support – and replacing it with paid services would cost an estimated $470 billion each year.
While family caregiving is rewarding, it can be challenging, and when caregivers do not have the support they need, their health, wellbeing and quality of life often suffer. Their financial future can also be put at risk; lost income due to family caregiving is estimated at $522 billion each year. When the challenges become overwhelming and family caregivers no longer can provide support, the people they care for often are left with no choices except moving to nursing homes and other institutions or to foster care – the cost of which is typically borne by taxpayers.
ACL is requesting comments on:
  • The most important topics/issues for the advisory councils to focus on moving forward; and
  • Issues that were not covered by the initial strategy that should be addressed in future updates.
Comments can be submitted via an online form. Respondents have the option to comment on each individual component of the strategy or provide feedback on the strategy as a whole.
For additional information about the strategy, contact Greg Link.   
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