News
FAMILY VOICES OF WISCONSIN: Call for Presenters for the 2025 Circles of Life Conference
By SD Network, 2024-10-02
Circles of Life is Wisconsin’s annual conference for families who have children with disabilities and the professionals who support them.
Our theme for 2025 is overcoming barriers. We’re starting the search for presenters with interesting stories to tell now.
We look forward to seeing you May 8-9, 2025 in the Wisconsin Dells for Circles of Life 2025.
Calling All Presenters
Apply NOW to present at the 2025 Circles of Life Conference!
Parents, family members, professionals and anyone with experience and information to share are encouraged to apply. Presenters receive free registration to the conference.
All topics related to families who have children with disabilities are welcomed. 2025’s focus is overcoming barriers. Proposals on a wide variety of other topics will also be selected. (Never Presented Before? Ask about a mentor.)
WISCONSIN BOARD FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES: Wisconsin Disability Policy Internship Program
By SD Network, 2024-10-02
The Wisconsin Disability Policy Internship is a 4-6 month, part-time (20 hour a week) paid internship designed to provide an early public policy career level experience in disability policy. Interns will earn $20 an hour and will work within key Wisconsin policy divisions, state agencies offices, or disability organizations.
Submit your application by October 28,2024 at 5pm
Who can apply? Required to Apply
Please contact Sally Flaschberger by email at sally.flaschberger@wisconsin.gov or by phone at 608-266-5038 if you have questions or need assistance with the application.
Click the button below to learn more and apply today! |
The annual ranking for best cities for people with disabilities was recently released. The ranking is based on the 33 indicators of disability-friendliness including things such as cost-of-living, employment for people with disabilities, cost of health care and in-home services as well as accessibility in over 180 cities. The data is from government agencies, disability nonprofits, and other sources.
A hug from your child. A text message from your teenage son saying “I love you, mom.” Going to your daughter’s soccer game. Taking your kids to Disneyland. Having your little one run to you when you pick them up from school or daycare. Watching your child giggle at something funny. What do all of these things have in common? These are events that commonly bring adults my age joy. Most parents don’t even realize how often they get that little jolt of joy, but it usually happens multiple times a day. Kids have a way of bringing a little joy into the world even on your worst days. What happens when people aren’t able to have kids? At times, it’s not easy to do, but speaking for myself, I try to live vicariously through my sister and friends who have kids. For people with significant physical limitations, interacting with small kids is always a little bit of a gamble.
“Stacy,” with emphasis on the C ("Stay Ceeeee"), my almost two-year-old nephew squealed over FaceTime while his four-year-old brother anxiously waited to show me the school bus he had just drawn. With that five-minute FaceTime call, no matter how bad my day had been, it was made! A few years ago—I guess about four years ago now—I wrote about the yearning to be a mother. My sister had just had her first baby and I had become an aunt. I didn’t know how my nephew would interact with me. I didn’t know what to expect. Would he be scared of me? Not being able to talk or physically take care of him like many aunties do, how could I form a relationship with him? What would that look like? Questions like these swirled in my head.
Four years later and another little adorable nephew (if I do say so myself) added to the mix, I can tell you that those two little boys are the apples of my eye. Being an aunt is awesome. Like with some of my friends’ kids, since they never knew any different, my nephews just know me as Aunt Stacy. Do they realize I’m a little different than most people? Of course they do. Honestly, I think they realized something was different about me when they were just a few months old, but they’re still too young to articulate the questions.
My four-year-old nephew may be starting to ask questions about me to my sister and brother-in-law, but, so far, in front of me, he hasn’t really asked about why I’m different. I know he will and I want him to ask all the questions he has. Of course, the depth of our answers will depend on his age. For a couple years, telling him that I was born this way will be sufficient for him. When he gets older, we’ll introduce the term cerebral palsy and explain what it is. Will we ever share my birth story with him? Probably eventually way down the road, but we’ll wait until he asks.
Are my nephews afraid of me? That’s a difficult question to answer. When it’s been a while since they’ve seen me in-person, when they initially see me, they often step back and shy away. While I understand that they’re just not used to seeing someone with a significant physical disability, admittedly, it stings a little. Usually, with some prompting and coaxing from other adults, the boys warm up pretty fast and I can get a fist bump or a high five. If I’m around them long enough, I sometimes can even get a hug! It just depends on the scenario. I know this will get better with age and they’ll be less and less timid.
While I may not be able to do traditional things aunts do like babysit or take them on fun adventures, I continue to find ways to interact with my nephews. Whether it’d be giving them rides on back of my wheelchair, having them help open my birthday gifts, or giving them high fives, I cherish every little interaction I have with the boys because not only does it fill my heart with joy, I also know it helps them understand who I am. Right now, they are at the age where ramps are pretty cool, so they love it when I come visit because my sister and brother-in-law set up a portable ramp so I can get in the house with my power chair, and the kids love riding their bikes up and down the ramps. They also enjoy running up and down the ramp in our van. Things like this are unique to having an aunt who has physical limitations.
Will my nephews be accepting to people with disabilities because they have me in their lives? I can’t say for sure, but I hope so. Will my relationship with the kids be different from the typical aunt? Yes, but know what? That’s okay. I know the exorbitant amount of joy they bring to my life; I only hope that I can bring a jolt of joy to theirs!
***The views expressed here are strictly those of the author and do not necessarily reflect those of InControl Wisconsin, the Network or any of our sponsors.
ADMINISTRATION FOR COMMUNITY LIVING: Available Now: Free At-Home COVID-19 Tests, Including More Accessible Option
By SD Network, 2024-09-26
Starting today, every U.S. household can order free at-home COVID-19 tests through a partnership between the U.S. Department of Health and Human Services Administration for Strategic Preparedness and Response (ASPR) and the United States Postal Service (USPS). These tests will detect the currently circulating COVID-19 variants and are intended for use through the end of 2024. Each order will include four tests.
One of the available options is the Orasure InteliSwab test, which is more accessible for people who are blind or have low vision, as well as people who have low manual dexterity. For more information, including ordering instructions and information about the features that make the InteliSwab test more accessible, please visit ACL.gov/AccessibleTests. About the ProgramThis round of ordering follows six previous opportunities to obtain free over-the-counter COVID-19 tests through this program. Since the program began in the winter of 2021, ASPR and USPS have distributed more than 900 million tests, free of charge, to American households nationwide. These efforts complement ASPR’s ongoing distribution of free COVID-19 tests to long-term care facilities, low-income senior housing, aging and disability networks, and other community organizations to support older adults and people with disabilities living in the community, uninsured individuals, and underserved communities. More than 1 billion over-the-counter tests have been provided to date through this community access program. In addition to collaborating with USPS on ordering and distribution of free COVID-19 tests, ASPR previously invested approximately $600 million across 12 domestic COVID-19 test manufacturers to strengthen the nation’s capacity to manufacture these tests, reduce reliance on overseas manufacturing, secure millions of new over-the-counter tests for future use, and improve preparedness for COVID-19 and other pandemic threats of the future.
|
|
WISCONSIN DEPARTMENT OF HEALTH SERVICE: Request for Public Comment 2025-2027 Wisconsin Medicaid Managed Care Quality Strategy
By SD Network, 2024-09-24
You can make a difference in how the Wisconsin Department of Health Services (DHS) plans to measure and improve the quality of care for Medicaid members. Share feedback on the 2025-2027 Wisconsin Medicaid Managed Care Quality Strategy during the public comment period from September 23 to October 25, 2024. What is the Wisconsin Medicaid Managed Care Quality Strategy?This document will help DHS understand how well certain health plans are working for Medicaid members and how to make them better. The department developed this draft strategy using feedback from groups it works with, the latest data, and information from the Centers for Medicare & Medicaid Services (CMS). The Quality Strategy includes these managed care programs:
Public comment informationFind more information and share feedback on the DHS Quality Strategy webpage. |
AUTISUM SPEAKS: Securing the Future: The Autism CARES Act of 2024 passes in the U.S. House of Representatives
By SD Network, 2024-09-20
The U.S. House of Representatives has taken a crucial step forward in supporting the autism community by passing the Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act of 2024. Over the past two decades, the Autism CARES Act has been a beacon of progress, fundamentally transforming our understanding of autism and reshaping the landscape of support for individuals on the spectrum.
AMERICAN ASSOCIATION OF PEOPLE WITH DISABILITIES: Apply Now for AAPD's 2025 Summer Internship Program!
By SD Network, 2024-09-20
|
|
|
|
ADMINISTRATION FOR COMMUNITY LIVING: Input Needed: Access Board Seeking Feedback on the Risks and Benefits of AI
By SD Network, 2024-09-20
In August, the Access Board, held public hearings on artificial intelligence (AI) with members of the disability community and others. This series stems from the Board’s Memorandum of Understanding with the American Association of People with Disabilities (AAPD) and the Center for Democracy & Technology (CDT).
The hearings supported the Access Board’s work in fulfilling the executive order on the use of artificial intelligence to engage with disability community members and AI practitioners to learn about the risks and benefits of AI, and to issue recommendations and technical assistance to promote equity, accessibility, and inclusion for all.
In addition to those hearings, the Access Board is accepting written comments of 300 words or less until October 31.
ADMINISTRATION FOR COMMUNITY LIVING: GSA Issues Final Rule Adopting Guidelines
By SD Network, 2024-09-20
The General Services Administration (GSA) recently published a final rule adopting the public right-of-way accessibility guidelines issued by the Access Board. Under the rule, which went into effect on September 3, GSA’s federal new construction, alteration, and renovation projects will have to comply with the Access Board’s guidelines.
For new and modified facilities this will mean ensuring accessibility, including by addressing:
- Travel distances from on-street parking to building entrances, making it easier to access government buildings while increasing efficiency for everyone who uses street parking.
- Sidewalk sizes and widths, making it easier for people to pass on the sidewalk, reducing accidental collisions, and better accommodating mobility aids such as walkers, rollators, and both manual and electric wheelchairs.
- Ground slope at passenger loading zones to prevent them from being too steep for people with mobility disabilities to climb.
- Audio and tactile warning systems, including audio signal warnings, truncated domes, and detectable warning pavers, to increase safety by alerting pedestrians to an imminent street crossing and to when they have the right-of-way to cross the street.