A manufacturing company in West Allis has found a great employee. Eric Gama, who is on the autism spectrum, has found his calling as a machine assistant at Allis Manufacturing. Allis Manufacturing has made a deliberate effort to provide people on the spectrum with meaningful job opportunities.

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Recently, Governor Evers signed a bill ordering the state’s Department of Financial Institutions to set up an ABLE program for residents or join one of the existing multi-state consortiums. ABLE accounts allow people with disabilities to save money for disability related expenses without losing their benefits. They are tax-free accounts. The Achieving a Better Life Experience Act was passed in Congress and signed by former President Barack Obama in 2014, and was the first piece of legislation which recognized the extra costs of living with a disability, according to the ABLE National Resource Center. Though the ABLE Act is a federal law, individual states are tasked with developing their own programs and the regulations and benefits specific to each program can vary depending on the jurisdiction, according to the ABLE National Resource Center.

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On April 18, 2024, the Department of Justice issued an updated guide of The Americans with Disabilities Act and Other Federal Laws Protecting the Rights of Voters with Disabilities | ADA.gov. This guide describes the legal protections designed to allow full access to every aspect of elections, including registration and voting, for people with disabilities. For more information on this and other new and updated guidance on voting rights, please read the press release: Office of Public Affairs | Justice Department Launches Updated Voting Rights and Elections Website | United States Department of Justice.

Disability Rights Wisconsin, the League of Women Voters of Wisconsin, along with four voters with disabilities filed a lawsuit against the Wisconsin Elections Commission. The lawsuits seeks to allow voters with disabilities to cast their ballot electronically. Many people who have disabilities aren't able to physically fill out a ballot without assistance, therefore they can't vote privately. If an electronic ballot was available, many voters who have disabilities could vote independently and privately .

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A $258 million plan to improve the pay for thousands of home health care providers in Wisconsin was halted after lawmakers on the Legislature’s powerful budget committee blocked it. The plan that DHS sent to the Joint Finance Committee last month involves covering services for people enrolled in Medicaid home and community-based long-term care programs. Advocates for providers of long-term health-related services, as well as for the people who receive that care, say that if providers can’t cover higher wages, their workforce will shrink along with the number of agencies that provide that care.

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The Center on Knowledge Translation for Disability and Rehabilitation Research invites you to complete a research survey. We want to hear from adults with disabilities about the ways you find and use information in your daily life. Your experiences will help researchers learn to share information in more accessible and meaningful ways.

The survey takes about 20 minutes to complete and is confidential. We will not identify people by name when we write or talk about this research study. 

Click here to begin the survey in English

Click here to begin the survey in Spanish

Or copy and paste the URL below into your internet browser:

English: https://survey.alchemer.com/s3/7770841/Disability-Community-Survey-II

Spanish: https://survey.alchemer.com/s3/7701290/Encuesta-Discapacidad

Thank you for participating. Your voice matters! If you need accommodations to complete the survey, please email Jennifer Bumble at jbumble@air.org.

Dr. Jennifer Bumble

American Institutes for Research

jbumble@air.org

Note: English and Spanish flyers attached.

Self-Determination Network News:

April 2024

Connect | Share |Learn | http://sdnetworkwi.org

2024 Self-Determination Conference Call for Presenters

Are you interested in presenting at the 2024 Self-Determination Conference?  Session proposals for are now being accepted for Tuesday, October 22nd and Wednesday, October 23rd, 2024. This year’s theme: A Seat at the Table: Nothing About Us Without Us! will help people with disabilities have a voice in supports they need to lead a more Self-Determined life. Proposals due by on May 10th. Submit an application today!

Please Help InControl Wisconsin's Caring Across Cultures Project

Are you someone who hires direct care workers?  Are you a family member of someone who receives support from a direct care worker?  Are you a direct care worker?  If so, InControl Wisconsin would like you to share a short video, audio clip, or written story of your personal experiences to help others understand the relationships between direct care workers and the people who hire them.  We will give you questions to answer, to make it easier for you.

Your stories will be used in online learning courses and/or other resources hosted on InControl Wisconsin’s website as part of the Caring Across Cultures learning platform. (See this link for more details about the project.)

Why are we asking for your help? Caring Across Cultures is a project with a goal of helping direct care workers and the people who hire them to build strong relationships. We want to help them connect and build trust across cultural differences.

What better way for someone who is thinking about hiring direct care workers to hear directly from people who are already doing it? The same is true for someone thinking about becoming a direct care worker. There’s nothing like hearing from someone first hand about what it’s like.

You can record a video or audio clip yourself with your phone (or other device) or you can ask us for help.

Here is a document to help you record your own video or audio.  This document will also tell you how to send us your finished recording: CLICK HERE

Need some help?

• You can work on this at home. If you need some help, Contact Sarah Godfrey, at sarah@promotelocal.com / (262) 349-1968, and she will schedule a phone or video call with you.

• Are you coming to Circles of Life on May 16h in Stevens Point?  How about Employment First in Wisconsin Dells on May 21st? We will have recording equipment on site at both conferences.

Ready to Do This?

• Sign up here! 

• Questions for you to answer when you record yourself

The Self-Determination Network includes some very talented members and we want to help you to get to know each other a little better. Member Spotlight is a great way for us to get to know each other better.

This month, we shined the spotlight on Rosie. This Diehard Award winning very determined survivor and author travels around the world sharing her story of hope and perseverance. Her story has helped medical professionals, researchers, and advocates create needed changes to practices in medical facilities. Check out this month's Member Spotlight to get to know Rosie.   

Who should we shine the spotlight on next?

Stacy’s Journal

Take five minutes to check out what's happening on the Self-Determination Network:

• Investment in Disability Services: President Biden is pushing to improve support for people with disabilities living in the community. Learn about what's being done to strengthen services.
• Funding Opportunity for Technology for Deaf and Hard of Hearing: The Administration of Community Living announced a new grant opportunity for research, development, and evaluation activities toward understanding and optimizing technologies and services used by people who are deaf and hard of hearing. Proposals are due May 6th.
• FOCUS Conference Call for Proposals: The Wisconsin Department of Health Services is now accepting proposals to present at the 2024 FOCUS Conference. Proposals due on May 1st.
• Flying with Dignity: The U.S. Department of Transportation is seeking public comments on a new proposed rule designed to ensure airline passengers who use wheelchairs can travel safely and with dignity.  Public comment due by May 13th.
• Disability Advocacy Day: Hundreds of disability advocates gathered in Madison for Disability Advocacy Day in mid March. Find out what advocates talked with legislators about.
• New Employment Resource: The US Department of Labor recently released a new resource in hopes of increasing integrated employment opportunities for people who have disabilities. Learn how the Competitive Integrated Employment Transformation Hub will help people with disabilities, their families, employment service providers, and state agencies.
• Advocates Continue to Push for More Accessible Voting: Voters with disabilities continue to advocate for better voting accessibility.  Read about some of the challenges voters continue to face.
• New Cafe: A new cafe in Racine is giving people with a chance to show off their skills and learn new ones. Find out more about this unique cafe.
• Disability Issues Should be a Priority: Over 38 million people with disabilities voted in the 2020 election, so many people feel that key disability issues should be a priority in the upcoming election. Learn about what issues people think should be priorities.
• Partners in Business Request for Proposals: The Wisconsin Board for People with Developmental Disabilities wants to partner with high schools to improve their employer engagement practices and employment outcomes for young adults with disabilities. Grant funds and technical assistance are available. Applications are due May 17th. They are also interested in partnering with businesses that want to hire and support individuals with intellectual disabilities. Applications for those grants are due May 31st.
• Flat Funding in Federal Budget: A $1.2 trillion deal for to fund the federal government includes more money for special education and disability employment, but doesn't include money for other disability programs.  Read about why disability advocates feel like many programs that people rely on were essentially cut from the federal budget. 

Upcoming Events 

Here's a sample of upcoming events listed on the Self-Determination Network:

• Webinar: Emergency Preparedness For Organizations Serving People With Disabilities And Older Adults: April 18th, 10a.m. to 11a.m., Virtual 
• Know Your Rights Webinar For Family Members: April 24th, 12p.m. to 1p.m., Virtual
• 7th Annual Older Adult Mental Health Awareness Day Symposium: May 2nd, 9a.m. to 4p.m., Virtual 
• Circles Of Life Conference 2024: May 16th-17th, Holiday Inn, Stevens Point WI
• Employment First Conference: May 21st, Kalahari Resort, Wisconsin Dells WI
• Community Conversation: May 23rd, 10a.m. to 1p.m., Independence First, Milwaukee WI

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

A $1.2 trillion deal for to fund the federal government includes more money for special education and disability employment, but doesn't include money for other disability programs. Advocates feel that it essentially cuts things like home and community based services, state developmental disabilities councils, advocacy services, and many other programs.

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