Stacy Ellingen

Stacy's Journal: Thankful

user image 2020-11-04
By: Stacy Ellingen
Posted in: Stacy's Journal

Can you believe Thanksgiving is in just a few weeks? Where has this year gone? It’s no secret that 2020 will be a year people won’t soon forget. As the holiday season approaches, many people often take time to reflect on the year that has gone by. No doubt that this year was different than we all could have imagined. While most of the issues were undesired, many people found lots of silver linings. In a time where the world is kind of chaotic, there’s a lot of things to be thankful for.  As a person with a significant disability, each Thanksgiving I try to take a few minutes to reflect on the year. Many times, it’s easy to get caught up in the busyness of the holidays, and forget what’s really important. For people with disabilities, it’s so important to reflect on the positives in our lives.

As I begin to think about the year that has gone by, I’m amazed by all that has happened. For starters, in January, I was having so many care problems. I began the process of switching to Family Care in hopes it’d be easier. As it turned out, that wasn’t the case. It was good to learn how it works, but it wasn’t going to work for my current situation. It was very disappointing to find out that there is no real good care program for people like myself. I’m still shocked by this, but it just confirms more advocacy is needed. Timing was impeccable in March when my parents and I decided to start in IRIS. All this was happening right when the pandemic hit.

Everything was shut down in the beginning of March. Most of my caregivers went back to their hometowns because the colleges were shutdown. I’m fortunate that I was able to move in with my parents for three months. If they weren’t able to take care of me, I would have ended up in a nursing facility.  As much as I complained about being at their house on their schedule, I’m very thankful that I was able to stay with them.

When we realized that the pandemic wasn’t going anywhere anytime soon, my mom and I came up with different care shift schedule to try. We interviewed and hired several new workers. I’m very shocked by how well things have been going. This has been probably the best four or five month stretch we’ve had in years. Now, I know that after the holidays, we’ll have to hire some new people because a few of my current workers are moving on, but it gives me hope that this will continue to be doable.

In June, I became an aunt for the first time. As hard as it was emotionally for me, words can’t describe how amazing my nephew is. He brings so much joy to the family. I’m so thankful that I’ll be able to watch him grow up and be part of his life.

I haven’t shared anything about this because I didn’t want people to feel bad, but in September, I had COVID – 19. It ran through most of my workers and I. I had to go to my parents for about three weeks. Thankfully, my symptoms were very mild, and somehow, neither of my parents got it. Coincidently, during that time, I ended up in the hospital with a gastrointestinal issue, but, thankfully, I didn’t need surgery this time.

As weird as this sounds, I’m very thankful that so much has gone virtual this year. As I’ve discussed in previous entries, for me, not having to worry about transportation or cares, I’m able to attend many more events and meetings than I otherwise would have.  Like everyone else, I miss seeing people in-person, but, with everything being virtual, I have more opportunities to participate in things.

The key word is thankful. With so much going on in the world, sometimes it’s hard to see the positives in life. I’m incredibly thankful for the life I have. Things could be so much worse. It’s because of the overwhelming support from my amazing friends and family that I’m able to be as successful as I am. Unfortunately, I know everyone does not have that support. It’s sad to think about and hear stories about people not having that kind of support. Do I find myself still being down and wishing things were different? Of course, I do. However, in those times I have to remember what I have and what I’ve been able to accomplish.

This Thanksgiving, I challenge each of you to take five minutes and reflect on the good things that happened this year. Yes, there were a lot of unpleasant things that occurred, but I’m willing to bet if we truly think about it, the good outweigh the bad.  I believe it’s true - - when bad things happen, it brings out the good in people. This year is the perfect example of it. We need to remember to be thankful for what we have. Happy Thanksgiving, everyone. I’m thankful for what each of you do for the disability community.

***The views expressed here are strictly those of the author and do not necessarily reflect those of InControl Wisconsin, the Network or any of our sponsors.

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