SD Network

Self-Determination Network News: May 2017

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By: SD Network
Posted in: Network News

96 Self-Determination Network News:

May 2017

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Register now for the 4th annual Aging Empowerment Conference: Living a Self-Determined Life which will be held June 6th (full conference) and June 7th (Self-Determination Summit) at  the Glacier Canyon Lodge Conference Center at the Wilderness Resort in Wisconsin Dells.  Sponsored by InControl Wisconsin, this unique event gathers older adults, their families, and the professionals who support them and explores self-determination and empowerment in aging.  Registration closes June 1st.  Learn more and register today!

Changes to Medicaid and the AHCA

Recently, the U.S. House passed a health reform bill (AHCA) that cuts Medicaid funding by 25%, and jeopardizes the important Medicaid supports that makes it possible for people with disabilities to live and work in the community instead of being forced into nursing homes or institutions. People with intellectual and developmental disabilities rely on Wisconsin’s 20 Medicaid programs— including Family Care, IRIS, MAPP, BadgerCare—and the ForwardHealth card to stay healthy, become employed, and remain in their homes. Medicaid also provides essential therapies, equipment, special education services and equipment from physical therapists to feeding tubes, and many other services critical to people with disabilities and often makes the difference between caregivers being able to keep their jobs or leaving the workforce to care for family members. The House bill caps and cuts federal funding for the entire Medicaid program without placing any controls on rising health care, prescription, and other increasing costs. The bill suggests per capita caps and block grants to Medicaid, which will force states to make decisions on who should be covered under state Medicaid programs, whether people have to wait for services, and what community based services and supports are included.  

The version of the bill passed by the House also allows states to charge people with pre-existing conditions more for their health care and lets health insurance plans stop providing Essential Health Benefits like prescription drugs, speech, physical and occupational therapies, and mental health and substance use disorder treatments. The AHCA has now moved to the Senate, where a 13-member working group has been established to draft a Senate health care bill that will draw 51 votes of support.  We encourage people to contact the Wisconsin Senators to ask questions and share their thoughts about this bill.  

128 Stacy’s Journal

Eating is a necessity of human survival, but it’s also a very social activity. In this month's entry, Stacy discusses some of the many challenges that people with disabilities face during mealtime. We encourage you to share your experiences as well.

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Take five minutes to check out what's happening on the Self-Determination Network:

  • New Approval Process for Personal Care Services:  The process for accessing personal care services through Medicaid is changing for those who are enrolled in “fee for services” Medicaid.  Learn how this will impact people.  
  • Interesting Court Case:  An interesting court case has recently surfaced about how the McDonald's website and mobile app violate the Americans with Disabilities Act (ADA).  Find out why McDonald's is being sued.  
  • Waterproof Wheelchair:  A new wheelchair has been invented that is lightweight, waterproof, and does not require batteries.  Read about how this chair works.   
  • Economic Barriers:  A recently released report finds that 27 years after the Americans with Disabilities Act was signed into law,  people with disabilities still face many hurdles to financial inclusion.    Learn what else the report reveals.    

128 Upcoming Events                                    

Here's a sample of upcoming events listed on the Self-Determination Network:

Post your event on the Self-Determination Network and it can be included in future Network News emails to members! Questions? Suggestions?  Contact Stacy Ellingen. 

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The Self-Determination Network is powered by InControl Wisconsin and supported financially by our members and Sponsors. We couldn't keep this Network going with you!  Find out how you can help support the Network.

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